froggyfog
06-03-2007, 01:03 AM
My husband had his second MRI, this one was with contrast. We are still waiting for results....I hate waiting.
Yesterday he said he was having electrical like sensations shooting down his arms/hands. He told me he had also been having them across his chest....when I questioned him on how long this has been going on he told me for a couple of weeks now but it only happens occassionally when he is relaxing or about to dose off.
He told me the thing that scares him is a couple of times he feels this "like a electrical disconnection in the middle of my chest", he trys to expain it to me but I don't have a clue. He says in only a second but he's afraid it will happen one time and it will stay that way.
Has anyone had any of these experiences???
Thanks for your replys!
Froggyfog
Yesterday he said he was having electrical like sensations shooting down his arms/hands. He told me he had also been having them across his chest....when I questioned him on how long this has been going on he told me for a couple of weeks now but it only happens occassionally when he is relaxing or about to dose off.
He told me the thing that scares him is a couple of times he feels this "like a electrical disconnection in the middle of my chest", he trys to expain it to me but I don't have a clue. He says in only a second but he's afraid it will happen one time and it will stay that way.
Has anyone had any of these experiences???
Thanks for your replys!
Froggyfog
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peace40
06-03-2007, 05:49 AM
So sorry to hear what your husband is going through. I can relate to some of what you are describing. I dont know how to explain a strange symptom I get at times which feels like an electrical storm, but through my whole body at time. I also describe this feeling to my neuro sometimes as an internal tremor, which is very stong and again can be anywhere in my body. I think sometimes it is so hard to articulate what we are feeling but just that it is real. I have spent 2 years trying to describe this feeling and like your husband I mostly get it before going off to sleep or it wakes me from my sleep. The neuro and ms nurse tell me its most likely what happens before a relape. I just know its difficult and yes very scary. All the best and I hope others can shead light on some of these strange symptoms we can have.
Bearygood
06-03-2007, 11:21 AM
Could you be describing what's known as L'Hermitte's Sign? Look it up and see.
julieleaps
06-03-2007, 12:27 PM
My L'Hermitte's sign is "activated' when I lower my chin to my chest...I get shooting electrical impulses down through my lower back and thighs. That's the way I've described them to this point. It's one of the symptoms that makes my NS think my issues are mechanical and not MS.
Keep asking questions - eventually you'll fnd a good answer.
Keep asking questions - eventually you'll fnd a good answer.
Bearygood
06-03-2007, 12:43 PM
My L'Hermitte's sign is "activated' when I lower my chin to my chest...I get shooting electrical impulses down through my lower back and thighs. That's the way I've described them to this point. It's one of the symptoms that makes my NS think my issues are mechanical and not MS.
What I've seen on this for MS includes the aggravation when lowerig the chin -- does your doctor think it's not MS related because it manifests in your lower back and thighs?
Last appointment, my neuro was actually a little irritated with me because I tried to clarify something I said during my first appointment. I had described something like an "electrical current" running through the back of my neck but when I read up more on symptoms and L'H, it wasn't really the same thing. I've gotten this thing on and off which is not really quite a "shock" -- it's more like someone crumpled up a piece of paper in the back of my neck. Almost like your stomach gurgling but in a different place. But who knows? (And sometimes it actually DOES happen in tandem with my stomach gurgling, LOL!) :)
What I've seen on this for MS includes the aggravation when lowerig the chin -- does your doctor think it's not MS related because it manifests in your lower back and thighs?
Last appointment, my neuro was actually a little irritated with me because I tried to clarify something I said during my first appointment. I had described something like an "electrical current" running through the back of my neck but when I read up more on symptoms and L'H, it wasn't really the same thing. I've gotten this thing on and off which is not really quite a "shock" -- it's more like someone crumpled up a piece of paper in the back of my neck. Almost like your stomach gurgling but in a different place. But who knows? (And sometimes it actually DOES happen in tandem with my stomach gurgling, LOL!) :)
julieleaps
06-03-2007, 12:55 PM
Beary, you are right! I did read that, too, and totally wish I had remembered during the discussion with my NS.
Remember he's a neuroSURGEON, and by his own admission, he doesn't specialize in these sorts of things. I think if he thinks it's mechanical, he's able to fix it with more surgery - and that's what he's good at.
I am going to see neurologist who ordered the EVPs on June 12th. Plan to discuss both the L'H and abnormal somasensory EVP with him then. Frankly, I was surprised the NS had requested and received the EVP results, when he was the one that referred me to the nueorologist who ordered the test...??
I thought I was seeing him this past Friday just for a follow-up on my ACDF surgery. Good to have both of them looking at the results anyway - can't hurt.
Remember he's a neuroSURGEON, and by his own admission, he doesn't specialize in these sorts of things. I think if he thinks it's mechanical, he's able to fix it with more surgery - and that's what he's good at.
I am going to see neurologist who ordered the EVPs on June 12th. Plan to discuss both the L'H and abnormal somasensory EVP with him then. Frankly, I was surprised the NS had requested and received the EVP results, when he was the one that referred me to the nueorologist who ordered the test...??
I thought I was seeing him this past Friday just for a follow-up on my ACDF surgery. Good to have both of them looking at the results anyway - can't hurt.
froggyfog
06-03-2007, 05:12 PM
L hermitte's sign sounds like what he has except his electrical sensations really don't correspond to the flexion or extension of his head/neck. Do you know if it has to correspond with the neck movement???:confused:
He has had a complete blood workup and it was all good.:) Plus he has had a lower back MRI with some mild disc hernation and degenrative changes. If the head MRI comes back OK.....maybe we should have his upper back MRI since these sensations were from his arms and chest area..:confused:
I still think he has MS since he has double vision(but he discounts it by saying he has always had double vision(but all the family knows it has become a lot worst where he is covering one eye to see), intolerance to heat(gets a bad headache and weak then has to lay down),numbness in his thigh area, and his VEP was borderline, Plus on his nerve conduction test he had delayed sensory with his arms....of course his lower back hurts bad(on MS Contin & Percocet)so what do I know:p
Froggy
He has had a complete blood workup and it was all good.:) Plus he has had a lower back MRI with some mild disc hernation and degenrative changes. If the head MRI comes back OK.....maybe we should have his upper back MRI since these sensations were from his arms and chest area..:confused:
I still think he has MS since he has double vision(but he discounts it by saying he has always had double vision(but all the family knows it has become a lot worst where he is covering one eye to see), intolerance to heat(gets a bad headache and weak then has to lay down),numbness in his thigh area, and his VEP was borderline, Plus on his nerve conduction test he had delayed sensory with his arms....of course his lower back hurts bad(on MS Contin & Percocet)so what do I know:p
Froggy
julieleaps
06-03-2007, 05:21 PM
My neurosurgeon has suggested a myleogram with extension and flexion so they can see if there is something going on in my neck area that's causing the L'Hermitte's. If you do a search on L'Hermitte's sign or phenomenon, you'll find more information - I don't remember if it affects the arms or not.
Good for you that you are trying to educate yourself - so far, my husband is in denial: doesn't want to jump to any conclusions, etc, etc. I wish he'd do
a little research on his own...
Good for you that you are trying to educate yourself - so far, my husband is in denial: doesn't want to jump to any conclusions, etc, etc. I wish he'd do
a little research on his own...
froggyfog
06-04-2007, 02:06 AM
I read everyones responses to my husband....his double vision has been acting up so I read it for him.
He said it's feels like he has stuck his finger in a light socket, that it wasn't a mild electrical sensation but a very strong one that does just shoots down his arms.
Is it normal to have this strong of a sensation?
Froggyfog
He said it's feels like he has stuck his finger in a light socket, that it wasn't a mild electrical sensation but a very strong one that does just shoots down his arms.
Is it normal to have this strong of a sensation?
Froggyfog