If you are not a registered member of our community, please click here to register...


 Home Message Boards Health Guide Join for Free Testimonials About Us
Search
   
  


PDA

View Full Version : Alternatives to Hysterectomy?


FibiGrey
06-03-2007, 01:35 AM
So, Since April I have had 2 leep procedures and a cone biopsy done... My doctor, whom I'm looking to replace, is just confusing me. I want to talk to him, and he makes me talk to him while he's busy preparing things, and i'm on my back with my feet up in the air, and he just isn't clear. I got a cone biopsy, and my second leep done 3 days ago.. We're waiting for the pathology of the cone to come in, and we'll go from there, hopefully he got it all, but if he didn't, or notices that It's either carcinoma in situ He said I would have to get a hysterectomy. I guess my Dyplasia is so severe, the cone biopsy was done to the inside of my cervix to make sure it wasn't carcinoma. He said they do hysterectomies before Carcinoma even turns into invasive cancer because it's too close for comfort.. I asked him if there were any alternatives to hysterectomies, like chemo, or radiation, and he just looked at me really confused and like I was nuts and said no. I know a hysterectomy would be so much easier, less expensive, and would have better chances of taking care of things, but if there ARE options out there, shouldn't I be the one to chose? I don't even want anymore of these damn procedures done to me. It's too much. I've had to get my cervix frizzled and fried twice in 2 months, and have a piece of tissue removed which was bigger than the size of a quarter. I was given just localized anesthesia for all three procedures, and honestly, smelling my tissue burning, feeling the pinching, and the pulling, the incredible heat from the leep, seeing smoke come out of there, watching blood being pumped through a tube, and seeing a huge chunk of tissue in a cup is kindof torturing and traumatic. Anymore procedures, and a hysterectomy might not even matter, my cervix will have had so much damage already. I told my boyfriend after the last procedure I didn't want another one again until I had another child. Of course If my life really truely depended on it because I had carcinoma and there was no other option, I'm not going to die over it, but really, has anyone experienced a different route other than a hysterectomy?

SippyCup
06-03-2007, 02:42 PM
Please get a second opinion before you do anything! My first doctor told me that I needed to "get used to the idea of a hysterectomy" for the same reason your doctor did. He said it was because the CIS "could come back as invasive." I asked him point blank why I couldn't just have the hysterectomy IF it came back, and he hemmed and hawed, and the said that I could. The point being, IF your CIS comes back as invasive, THEN you can think about a hysterectomy, but it may not come back.

Later, I switched doctors and the new one said that the advice to get a hyst. now was, in my case, "inappropriately pre-mature." She (the new OB/GYN) was very open that she thought I didn't need one. Long story short, she did a cold knife come, had clear margins, and my last pap was clear as a bell.

I can't tell you how relieved I am that I didn't just take my first doctor's advice as gospel. It's very subjective, and you have to feel comfortable with what's happening to your body.

Now, I totally understand that my CIS may return, and it may become invasive, and at some point I may have to take drastic measure--including hyst--but I am going to cross that bridge when (if) I come to it, and I plan to try my best to NOT come to it!

Timber
06-03-2007, 03:49 PM
I hate to say it, but your doctor sounds sort of incompetent. I think it is too early for you to have a hysterectomy, you shouldn't have had 2 LEEPS in 2 months, you should've had general anesthesia for a cone, and your doctor made the LEEP way more traumatic than it should have been.

Can you try to see a different doctor, at least for a second opinion?

FibiGrey
06-03-2007, 05:03 PM
Thanks for the comments,

i do believe hes incompetent. I did research on him online and I found out that a few years ago he pled guilty to felony charges of threatening an airline with a bomb in his luggage, over a seating dispute and not being able to get his luggage back, because it was already on the plan..If someone is so stupid and reckless to do something like that, is that someone I want to trust with my health and my reproductive system?

that being, I'm currently looking for a new doctor, and its been hard as heck to find one that accepts my insurance.. I'm already driving about an hour away to get to a hospital that takes my insurance. My mom advised I see the other gyno at this particular clinic, but him, along with my doctor are partners. They back each other up.

I was worried about not being under general anesthesia when I got the cone biopsy, He said that normally it is done in a hospital under general anesthesia, but he had "special tools" to help him perform this. Honestly, the shots that he had to give me to the center and insides of my cervix were excruciating, I could take the normal LEEP, to just the outside, but the cone and 2nd LEEP were unbearable, I was in tears.

I thought it was too early for all of this to be happening all together. The first doctor I saw when I had moderate dysplasia in the fall told me to wait 4 months, I Waited and it turned to severe, and my new and current doctor told me I should've gotten the leep done promptly after my first colposcopy.

I don't know, I'm lost. I'm definitly not rushing into a hysterectomy unless it's absolutely the only way to save me. My father is going to help me find another doctor, and is going to go with me so that they actually listen to me and my concerns. He says that alot of doctors will take advantage of young girls, or won't completely inform them, because "like oh my god, we can't understand whats going on anyways" (in that valleygirl bimbo sort of way). my father said i'd be crazy to get a hyst. so early. So, I'm definitly looking into the 2nd opinion.

 
 
 




Site owned and operated by HealthBoards.com (TM)
Copyright and Terms of Use © 1998-2008 HealthBoards.com (TM) All rights reserved.
Do not copy or redistribute in any form!