just six more weeks and then all of this will be over!!! I can put it down to (bad) life experience. maybe in a few years time i'll be able to look back and laugh(?!!!) who knows. i can't belive how quickly the past 5 months have gone! It seems like yesterday that i was finally diagnosed. i've stopped taking people with me when i get treatment!!! i remember when i had my first treatment and i swore that i'd always have someone there cause i didn't like being around all the 'sick' people cause i've never thought of myself as being sick. but now i get a lot of uni work done in the hours im sitting doing nothing and i get bored talking to the same person for hours. it's weird how much everything changes in such a short space of time huh?
xxx

I can't believe that's all you have left, 6 wks, wow what a journey you have been on, I can still remember your first thread. My how far you have come :D

I am so proud of you, as you managed to remain upbeat and calm about things, I know you had a few bad moments, but you remained strong :)

I have come to know you well, and I really help you will remain on this forum when you are fully better,as I will still need you, and everyone else, can learn from your experience.

Lots of love and hugs your friend susie xx

Thank you so much. That made me cry. Of course I will remain on this forum! You won't get rid of me that easily! I honestly don't think i would've had the same strength as I've had if I didn't have you guys to talk to. Other people to share you stories and experiences with and to to give advice to all the new people and know that people are listening to your advice and you are making a difference. You guys have all been amazing and theres no way I could've done all this without you.
Love you loads and I'll speak to you when you get out of hospital.
xxx

To all of "you"---
I, too, feel an amazing gratitude toward you all.
I plan on remaining on this forum, too---I know first-hand, all the good it can do. When I first posted, I was at my wit's end. I still have a long haul, but all of you help immeasurably! :)

Ok, this is something i keep meaning to post and always forget, just over a month ago after i got out of hospital i had a sore chest and was out of breathe more often. When i went in for my treatment i told the nurses and the doctor told me i wouldnt get the bleomycin drug. they then had me sheduled for a respitory function exam and that was perfectly normal and by this time my hest and breathing had went back to normal. The next timei went in for chemo i was told i still woulndt get the bleomycin just to be on the safe side. And on tuesday when i was in again i was told i wouldn't be getting it again! Now i'm kinda worried (ok, really worried) that if this thing comes back in a few years time or something else goes wrong i'm always going to think that it was because they stopped giving me one of the drugs.

But, just remember, what "one" drug doesn't eliminate, "another" one will.
You're still getting a strong cocktail of drugs. And I'm sure they did blood work and maybe found it still lurking in your veins in small amounts. They certainly don't want you to lose any lung fuction.
I, too, heard about certain drugs affecting certain organs, and I guess that's the reason for watchful monitoring. I know they really bombard the heck out of us with all these drugs---but, sometimes, I wonder if 'everyone' needs to follow the usual protocol. I'm still learning.
I go today (to my Oncologist) & posted a question about any specific questions to ask him after my first chemo. I need to write them all down. I get a little anxious, because I know his time is limited, and the room is always packed!
S.

:wave: Hi Mada

I didn't mean to make you cry, i just wanted you to know how much you mean to me!!

I feel as though i am being fobbed off, and my consultant has had enough of me. oh I am sooooo fed up.

Good luck with your last session.

Love you lots, Susie xxxxx

oh it's ok! it was good crying!

I wish i could do something for you. Even just yell at your doctors.

xxx

:wave: Amanda i could really do with someone making a stand for me, I feel as though the medical profession don't give a dam!!

Your a great girl, love ya xxxx

Hi Mada

The bleomycin can be a SWINE on your lungs i got quite breathless at times with it! On the ABVD regime (and the others I should imagine) there are several combinations of drugs they can use - all as good as each other. It's just a case of finding a suitable one for each patient. I doubt it will come back once you're done, Sweetie, but if it does (and that's a very BIG if) it will certainly not be due to the combination.

Think about it this way - they substituted it with a drug that was every bit as good and did the same job. If they had not it could have permanently damaged your lungs and your long term quality of life would have been affected because they were too / rigid and didn't find an alternative to a drug that was affecting you

Not long now!!!! Another 5 and a bit weeks. Hmmmmm, a couple of weeks to recovering - then fun, fun, fun!! Have you started planing what you're going to do?

How exciting for you!!

ails xx