klc23mom
06-03-2007, 04:42 PM
HI, I thought since I have kinda gotten to know everybody a little on here the last couple days, I could start comparing symptoms... I'm not sure I have MS... I may be in denial but I've been sure I've had things in the past and it would be confirmed otherwise so I figure this will be the same.... and I'm just nuts.... which I know I'm not..... you can't make these kinda symptoms up....
I was just wanting to see if anyone in any stage of this disease had tingling in the face, lips, forehead..... and eyes that felt numb and when the numb eyes happened your vision got really blurry???
Is memory lapses also something that is common along with having a hard time speaking almost like you get stuck on your words and studder???
Also pain in legs that is worse then all of the other pain in your other muscles???
please compare... I know it can be different in everybody...
Kristen
I was just wanting to see if anyone in any stage of this disease had tingling in the face, lips, forehead..... and eyes that felt numb and when the numb eyes happened your vision got really blurry???
Is memory lapses also something that is common along with having a hard time speaking almost like you get stuck on your words and studder???
Also pain in legs that is worse then all of the other pain in your other muscles???
please compare... I know it can be different in everybody...
Kristen
Sponsor
zandvoort
06-03-2007, 06:46 PM
Hi klc- ABSOLUTELY! on the facial numbness. My lips were numb on and off for about 3 weeks then it crept up my face to my forehead and major pain in my ears one afternoon. It was really scary! Face has been numb ever since with pressure in head and ears- 8 months. A couple months after that my yongue went numb. Things taste kind of funny sometimes- bitter and fizzy. I do not have a dx.
As you say, different with everybody but I know how nice it is to know you are not alone. I also have blurred vision about 5-10 feet depth. My legs and arms are similar weakness levels. It is one of the things that makes me think it may NOT be MS- too systemic. If lesions were causing my problems, they would have to be everywhere!LOL!
One more thing- the most painful part of my body is what I have been using. So, If I have been walking, my legs hurt most. If typing, my arms, etc. does that happen to you?
Good luck on your dx journey- I start my 3rd Neuro tomorrow. Hope he's a keeper!:)
As you say, different with everybody but I know how nice it is to know you are not alone. I also have blurred vision about 5-10 feet depth. My legs and arms are similar weakness levels. It is one of the things that makes me think it may NOT be MS- too systemic. If lesions were causing my problems, they would have to be everywhere!LOL!
One more thing- the most painful part of my body is what I have been using. So, If I have been walking, my legs hurt most. If typing, my arms, etc. does that happen to you?
Good luck on your dx journey- I start my 3rd Neuro tomorrow. Hope he's a keeper!:)
beagleboy
06-03-2007, 06:58 PM
I was having patchy numbness in my face that would come on go. The nuero thought it might be from the Topamax the other nuero had put me on for headaches so he had me stop taking it. It's been 6 weeks since I stopped but the same numbness is still. Headaches came back, too.
lilc
06-03-2007, 09:25 PM
I haven't had much trouble with facial numbness, but during the "severe L'Hermitte's" time the back of my tongue was numb. Have had the back of my head go numb and my chin, too, but not for long spells.
The memory lapses and trouble getting words out, now THAT I've had MUCH trouble with! I was doing radio part time for a few years before my dx. I said some pretty funny stuff, and it was NOT a ccomedy sho! Aslo have trouble typing. Ordinarily I would go back and fix those typos I just made, but thought a real-time exapmle would be some comfort!
And pain. I have bouts of severe pain in my legs and feet mainly.
I do have MS. But I did have to go through the "ruling out everything else" process, as it wasn't a slam-dunk case. Where are you at in the process?
The memory lapses and trouble getting words out, now THAT I've had MUCH trouble with! I was doing radio part time for a few years before my dx. I said some pretty funny stuff, and it was NOT a ccomedy sho! Aslo have trouble typing. Ordinarily I would go back and fix those typos I just made, but thought a real-time exapmle would be some comfort!
And pain. I have bouts of severe pain in my legs and feet mainly.
I do have MS. But I did have to go through the "ruling out everything else" process, as it wasn't a slam-dunk case. Where are you at in the process?
tiredbunni
06-03-2007, 09:28 PM
Hi KLC,
I have had parts of my face go numb. I had my lips go numb/tingle
and my tongue. It doesn't last long. It comes and goes.
Sometimes it will be the right side and other times the left. I had just the right side of my face like cut down the middle go numb. It is strange. I just get a bit concern when the numbness is in my mouth that it doesn't spread
down my throat.
My eyes feel funny but I wouldn't say numb - pain yes just
in the left eye. I don't want another attack of ON. I am going
to upgrade my glasses. It has been almost a year and I have
not got back my acquity of vision I lost. I am believing that
my new prescription will last longer than 4 days.
I wish you the best. :)
Bunni
dx RRMS 12/06
Avonex, Klonopin, Flexeril, Skelaxin
I have had parts of my face go numb. I had my lips go numb/tingle
and my tongue. It doesn't last long. It comes and goes.
Sometimes it will be the right side and other times the left. I had just the right side of my face like cut down the middle go numb. It is strange. I just get a bit concern when the numbness is in my mouth that it doesn't spread
down my throat.
My eyes feel funny but I wouldn't say numb - pain yes just
in the left eye. I don't want another attack of ON. I am going
to upgrade my glasses. It has been almost a year and I have
not got back my acquity of vision I lost. I am believing that
my new prescription will last longer than 4 days.
I wish you the best. :)
Bunni
dx RRMS 12/06
Avonex, Klonopin, Flexeril, Skelaxin
klc23mom
06-03-2007, 11:02 PM
I haven't had much trouble with facial numbness, but during the "severe L'Hermitte's" time the back of my tongue was numb. Have had the back of my head go numb and my chin, too, but not for long spells.
The memory lapses and trouble getting words out, now THAT I've had MUCH trouble with! I was doing radio part time for a few years before my dx. I said some pretty funny stuff, and it was NOT a ccomedy sho! Aslo have trouble typing. Ordinarily I would go back and fix those typos I just made, but thought a real-time exapmle would be some comfort!
And pain. I have bouts of severe pain in my legs and feet mainly.
I do have MS. But I did have to go through the "ruling out everything else" process, as it wasn't a slam-dunk case. Where are you at in the process?
Well, I'm just getting started.... I had my blood work done Friday and I go for my MRI this coming Friday... thanks for the real time example.... I make those mistakes to but I automatically fix them as I'm messing them up.... if that makes sense and I slow down when I type because I can't process my thoughts quick enough.... I suck at online chat.... but these boards I can do because it's not as fast paced ... lol ... thanks
klc
The memory lapses and trouble getting words out, now THAT I've had MUCH trouble with! I was doing radio part time for a few years before my dx. I said some pretty funny stuff, and it was NOT a ccomedy sho! Aslo have trouble typing. Ordinarily I would go back and fix those typos I just made, but thought a real-time exapmle would be some comfort!
And pain. I have bouts of severe pain in my legs and feet mainly.
I do have MS. But I did have to go through the "ruling out everything else" process, as it wasn't a slam-dunk case. Where are you at in the process?
Well, I'm just getting started.... I had my blood work done Friday and I go for my MRI this coming Friday... thanks for the real time example.... I make those mistakes to but I automatically fix them as I'm messing them up.... if that makes sense and I slow down when I type because I can't process my thoughts quick enough.... I suck at online chat.... but these boards I can do because it's not as fast paced ... lol ... thanks
klc
klc23mom
06-03-2007, 11:10 PM
Hi klc- ABSOLUTELY! on the facial numbness. My lips were numb on and off for about 3 weeks then it crept up my face to my forehead and major pain in my ears one afternoon. It was really scary! Face has been numb ever since with pressure in head and ears- 8 months. A couple months after that my yongue went numb. Things taste kind of funny sometimes- bitter and fizzy. I do not have a dx.
As you say, different with everybody but I know how nice it is to know you are not alone. I also have blurred vision about 5-10 feet depth. My legs and arms are similar weakness levels. It is one of the things that makes me think it may NOT be MS- too systemic. If lesions were causing my problems, they would have to be everywhere!LOL!
One more thing- the most painful part of my body is what I have been using. So, If I have been walking, my legs hurt most. If typing, my arms, etc. does that happen to you?
Good luck on your dx journey- I start my 3rd Neuro tomorrow. Hope he's a keeper!:)
Thanks, it is nice knowing I'm not alone.... my numbness jumps around from all the places I mentioned.... I also have numbness that jumps around my entire body but I was a little worried about the facial numbness... sometimes if my lips are numb... I have an even harder time speaking, it can be really scary when you are geniunely trying to talk and can't.... as for the pain being worse when something is being used more... my legs will hurt more than they normally already do if I've done something but my other muscles seem to follow that.... it almost feels like I have worked out and I'm aching all over (mainly arms, hands, feet, back and legs hurt the most severe) so it doesn't really stick to the one part... it seems like just the exertion itself effects everything.... because I get hot and feel that I need to stop or I will pass out.... lol... sorry for the dramatics but that is how it is sometimes, anytime I'm in a flare....
klc
As you say, different with everybody but I know how nice it is to know you are not alone. I also have blurred vision about 5-10 feet depth. My legs and arms are similar weakness levels. It is one of the things that makes me think it may NOT be MS- too systemic. If lesions were causing my problems, they would have to be everywhere!LOL!
One more thing- the most painful part of my body is what I have been using. So, If I have been walking, my legs hurt most. If typing, my arms, etc. does that happen to you?
Good luck on your dx journey- I start my 3rd Neuro tomorrow. Hope he's a keeper!:)
Thanks, it is nice knowing I'm not alone.... my numbness jumps around from all the places I mentioned.... I also have numbness that jumps around my entire body but I was a little worried about the facial numbness... sometimes if my lips are numb... I have an even harder time speaking, it can be really scary when you are geniunely trying to talk and can't.... as for the pain being worse when something is being used more... my legs will hurt more than they normally already do if I've done something but my other muscles seem to follow that.... it almost feels like I have worked out and I'm aching all over (mainly arms, hands, feet, back and legs hurt the most severe) so it doesn't really stick to the one part... it seems like just the exertion itself effects everything.... because I get hot and feel that I need to stop or I will pass out.... lol... sorry for the dramatics but that is how it is sometimes, anytime I'm in a flare....
klc
klc23mom
06-03-2007, 11:12 PM
Thanks everybody.... I wasn't sure if that was going to be related or not.... my numbness jumps around on my face but I always seem to have some tingles somewhere on my face as in my feet and hands....
lilc
06-03-2007, 11:42 PM
I do so wish the board had spell-check...PLEASE, let us know how things go. Since you are going for the MRI Friday, and since someone will probably recommend it at some point, get a copy of the MRI!
zandvoort
06-04-2007, 07:37 AM
Hi klc-
The sx you described about just working out....Does it feel like that lactic acid burn you get when you over-work your muscles? I describe it like that to my docs and it really seems to explain to them how I feel. Weak, shaky, burning. But, add a sunburn on top of that cause my skin burns too and when I am really bad, add an ache in my bones. For me, the lactic acid burn feeling is a 24x7 thing. Sometimes worse than others though. Especially at night. 2-3 am is the worst which is weird cause I am not using the muscles! How can muscles hurt the most when you are not using them????LOL:dizzy:
Does that sound like what you are experiencing?
I used to swim 3x a week but had to stop because I cannot make it from one side of the pool to the other without my body just shutting down- cannot kick one more time. Now I do yoga- it helps with the balance and since it works with gravity, does not take much energy. If you are having trouble exercising, you may want to try it. I use Yoga Zone DVDs because they are 20 minute segments and they show beginner and intermediate poses at the same time so you can kind of customize your program.
Good luck on the MRI on Friday!:wave:
The sx you described about just working out....Does it feel like that lactic acid burn you get when you over-work your muscles? I describe it like that to my docs and it really seems to explain to them how I feel. Weak, shaky, burning. But, add a sunburn on top of that cause my skin burns too and when I am really bad, add an ache in my bones. For me, the lactic acid burn feeling is a 24x7 thing. Sometimes worse than others though. Especially at night. 2-3 am is the worst which is weird cause I am not using the muscles! How can muscles hurt the most when you are not using them????LOL:dizzy:
Does that sound like what you are experiencing?
I used to swim 3x a week but had to stop because I cannot make it from one side of the pool to the other without my body just shutting down- cannot kick one more time. Now I do yoga- it helps with the balance and since it works with gravity, does not take much energy. If you are having trouble exercising, you may want to try it. I use Yoga Zone DVDs because they are 20 minute segments and they show beginner and intermediate poses at the same time so you can kind of customize your program.
Good luck on the MRI on Friday!:wave:
klc23mom
06-04-2007, 11:15 AM
Hi klc-
The sx you described about just working out....Does it feel like that lactic acid burn you get when you over-work your muscles? I describe it like that to my docs and it really seems to explain to them how I feel. Weak, shaky, burning. But, add a sunburn on top of that cause my skin burns too and when I am really bad, add an ache in my bones. For me, the lactic acid burn feeling is a 24x7 thing. Sometimes worse than others though. Especially at night. 2-3 am is the worst which is weird cause I am not using the muscles! How can muscles hurt the most when you are not using them????LOL:dizzy:
Does that sound like what you are experiencing?
I used to swim 3x a week but had to stop because I cannot make it from one side of the pool to the other without my body just shutting down- cannot kick one more time. Now I do yoga- it helps with the balance and since it works with gravity, does not take much energy. If you are having trouble exercising, you may want to try it. I use Yoga Zone DVDs because they are 20 minute segments and they show beginner and intermediate poses at the same time so you can kind of customize your program.
Good luck on the MRI on Friday!:wave:
Well, I don't really get the burning.... I just have like a throbbing pain down to the bone.... the only burning sensation I get is usually in my feet if I've worked them to hard.... thanks for the good luck wish.... I hope you find your diagnosis soon as well!!!
God Bless!!
klc
The sx you described about just working out....Does it feel like that lactic acid burn you get when you over-work your muscles? I describe it like that to my docs and it really seems to explain to them how I feel. Weak, shaky, burning. But, add a sunburn on top of that cause my skin burns too and when I am really bad, add an ache in my bones. For me, the lactic acid burn feeling is a 24x7 thing. Sometimes worse than others though. Especially at night. 2-3 am is the worst which is weird cause I am not using the muscles! How can muscles hurt the most when you are not using them????LOL:dizzy:
Does that sound like what you are experiencing?
I used to swim 3x a week but had to stop because I cannot make it from one side of the pool to the other without my body just shutting down- cannot kick one more time. Now I do yoga- it helps with the balance and since it works with gravity, does not take much energy. If you are having trouble exercising, you may want to try it. I use Yoga Zone DVDs because they are 20 minute segments and they show beginner and intermediate poses at the same time so you can kind of customize your program.
Good luck on the MRI on Friday!:wave:
Well, I don't really get the burning.... I just have like a throbbing pain down to the bone.... the only burning sensation I get is usually in my feet if I've worked them to hard.... thanks for the good luck wish.... I hope you find your diagnosis soon as well!!!
God Bless!!
klc
willo1980
06-04-2007, 11:48 AM
I was having patchy numbness in my face that would come on go. The nuero thought it might be from the Topamax the other nuero had put me on for headaches so he had me stop taking it. It's been 6 weeks since I stopped but the same numbness is still. Headaches came back, too.
I'm having a whole host of neuropathic problems in my legs, right arm, and face. Been like this over 2 years now. Well, I didn't notice as much numbness or tingling when I was Topamax for migraines. But since getting off the med in February I've noticed my episodes of numbness and tingling have increased. And each time, it's worse. Right now I have a message into my Neuro's nurse because I have weakness in my legs and my arm. Last week though, my right leg tingled and went numb in patches for like 3 days! The right side of my face was tingling too. It started with my jaw and ear then spread to my eye and forehead and lips. My eye felt numb but my vision never blurre, thank goodness! I wonder if the Topamax kept things from getting bad?
I'm having a whole host of neuropathic problems in my legs, right arm, and face. Been like this over 2 years now. Well, I didn't notice as much numbness or tingling when I was Topamax for migraines. But since getting off the med in February I've noticed my episodes of numbness and tingling have increased. And each time, it's worse. Right now I have a message into my Neuro's nurse because I have weakness in my legs and my arm. Last week though, my right leg tingled and went numb in patches for like 3 days! The right side of my face was tingling too. It started with my jaw and ear then spread to my eye and forehead and lips. My eye felt numb but my vision never blurre, thank goodness! I wonder if the Topamax kept things from getting bad?
AllyG
06-05-2007, 10:19 AM
Hi,
I also got the numb face thing before I was diagnosed. Whole left side of my face was numb & my GP put me on steroid tablets, laughed when I suggested it could be MS - then about a month later I ended up in hospital unable to walk. My diagnosis came fairly quickly after that!!
I dont think I've experienced any facial numbness since but I do notice that side of my face is less sensitive.
Ally.
I also got the numb face thing before I was diagnosed. Whole left side of my face was numb & my GP put me on steroid tablets, laughed when I suggested it could be MS - then about a month later I ended up in hospital unable to walk. My diagnosis came fairly quickly after that!!
I dont think I've experienced any facial numbness since but I do notice that side of my face is less sensitive.
Ally.
mnewhall
06-05-2007, 11:42 AM
klc,
yes, i have had some numbness in the lips and tongue before and the chin. the weirdest numbness has been my eyes (it felt just like the eye doc had put the numbing drops in to dilate my eyes). the other weirdest numbness came by way of my ear - the actual ear and ear canal and my hearing became muffled in it. i have constant numb spots on my upper back right over the spine that's about 3.5 inches in diameter and the left heel right as it starts to go to the arch.
I am undx'd at this time but doc is 95% sure it's MS. clean MRIs and LP and all blood work fine. he's ordering another brain MRI for November since it's been well over a year and a half since the last one.
please hang in there and keep a journal of your sx's. this is not the easiest disease to obtain a dx, but it is important for the docs to rule out other things first. so many sx's can overlap with other conditions. it is very hard to be patient and wait, but i've been waiting for about 16 years worth of sx's and they are only now starting to manifest themselves in a way that can help my doc with coming to a definite dx.
i have been dx'd with fibromyalgia, raynaud's, sjogren's, interstitial cystitis, hyper to hypothyroidism, endometriosis, etc, etc and the list goes on.
praying for peace and answers for you,
michelle :)
yes, i have had some numbness in the lips and tongue before and the chin. the weirdest numbness has been my eyes (it felt just like the eye doc had put the numbing drops in to dilate my eyes). the other weirdest numbness came by way of my ear - the actual ear and ear canal and my hearing became muffled in it. i have constant numb spots on my upper back right over the spine that's about 3.5 inches in diameter and the left heel right as it starts to go to the arch.
I am undx'd at this time but doc is 95% sure it's MS. clean MRIs and LP and all blood work fine. he's ordering another brain MRI for November since it's been well over a year and a half since the last one.
please hang in there and keep a journal of your sx's. this is not the easiest disease to obtain a dx, but it is important for the docs to rule out other things first. so many sx's can overlap with other conditions. it is very hard to be patient and wait, but i've been waiting for about 16 years worth of sx's and they are only now starting to manifest themselves in a way that can help my doc with coming to a definite dx.
i have been dx'd with fibromyalgia, raynaud's, sjogren's, interstitial cystitis, hyper to hypothyroidism, endometriosis, etc, etc and the list goes on.
praying for peace and answers for you,
michelle :)
LupieOne
06-05-2007, 09:58 PM
Yes, I too get numb areas all over my body and on my face/head as well. My left temple area and cheek was where i first noticed it a few years back now. And now, I get the areas of numbness, hot and cold sensations all over the place at any given moment.
Its all just more pieces of this crazy puzzle i call my life. Maybe someday, it'll be complete-but most likely there will be a couple of pieces missing. lol
*hugs*
Cathy
Its all just more pieces of this crazy puzzle i call my life. Maybe someday, it'll be complete-but most likely there will be a couple of pieces missing. lol
*hugs*
Cathy
klc23mom
06-05-2007, 11:43 PM
klc,
yes, i have had some numbness in the lips and tongue before and the chin. the weirdest numbness has been my eyes (it felt just like the eye doc had put the numbing drops in to dilate my eyes). the other weirdest numbness came by way of my ear - the actual ear and ear canal and my hearing became muffled in it. i have constant numb spots on my upper back right over the spine that's about 3.5 inches in diameter and the left heel right as it starts to go to the arch.
I am undx'd at this time but doc is 95% sure it's MS. clean MRIs and LP and all blood work fine. he's ordering another brain MRI for November since it's been well over a year and a half since the last one.
please hang in there and keep a journal of your sx's. this is not the easiest disease to obtain a dx, but it is important for the docs to rule out other things first. so many sx's can overlap with other conditions. it is very hard to be patient and wait, but i've been waiting for about 16 years worth of sx's and they are only now starting to manifest themselves in a way that can help my doc with coming to a definite dx.
i have been dx'd with fibromyalgia, raynaud's, sjogren's, interstitial cystitis, hyper to hypothyroidism, endometriosis, etc, etc and the list goes on.
praying for peace and answers for you,
michelle :)
OMG.... Michelle, it feels so good to know that someone has the EXACT (almost) symptoms that I do... the numbness in the eyes... that is exactly how I explained to my doctor and my vision get alot more blurry than usual when they are numb.... and the numbness over your spine in the top center, I have that exactly to and I would ask my husband if he was numb there because you start to think it must me normal because you have so much happening to you.... but, my husband never says that he has anything that I ask about.... so it's not normal but then you just think you crazy at times... I don't know how long my road to a diagnosis will be and I don't know what the diagnosis will be when it comes but I know something is definately not right.... I hope you get an answer soon!!! God Bless You!!!!
KLC
yes, i have had some numbness in the lips and tongue before and the chin. the weirdest numbness has been my eyes (it felt just like the eye doc had put the numbing drops in to dilate my eyes). the other weirdest numbness came by way of my ear - the actual ear and ear canal and my hearing became muffled in it. i have constant numb spots on my upper back right over the spine that's about 3.5 inches in diameter and the left heel right as it starts to go to the arch.
I am undx'd at this time but doc is 95% sure it's MS. clean MRIs and LP and all blood work fine. he's ordering another brain MRI for November since it's been well over a year and a half since the last one.
please hang in there and keep a journal of your sx's. this is not the easiest disease to obtain a dx, but it is important for the docs to rule out other things first. so many sx's can overlap with other conditions. it is very hard to be patient and wait, but i've been waiting for about 16 years worth of sx's and they are only now starting to manifest themselves in a way that can help my doc with coming to a definite dx.
i have been dx'd with fibromyalgia, raynaud's, sjogren's, interstitial cystitis, hyper to hypothyroidism, endometriosis, etc, etc and the list goes on.
praying for peace and answers for you,
michelle :)
OMG.... Michelle, it feels so good to know that someone has the EXACT (almost) symptoms that I do... the numbness in the eyes... that is exactly how I explained to my doctor and my vision get alot more blurry than usual when they are numb.... and the numbness over your spine in the top center, I have that exactly to and I would ask my husband if he was numb there because you start to think it must me normal because you have so much happening to you.... but, my husband never says that he has anything that I ask about.... so it's not normal but then you just think you crazy at times... I don't know how long my road to a diagnosis will be and I don't know what the diagnosis will be when it comes but I know something is definately not right.... I hope you get an answer soon!!! God Bless You!!!!
KLC
klc23mom
06-05-2007, 11:48 PM
Hi,
I also got the numb face thing before I was diagnosed. Whole left side of my face was numb & my GP put me on steroid tablets, laughed when I suggested it could be MS - then about a month later I ended up in hospital unable to walk. My diagnosis came fairly quickly after that!!
I dont think I've experienced any facial numbness since but I do notice that side of my face is less sensitive.
Ally.
Thanks Ally, it sucks how we get treated like complete idiots by the doctors sometimes... I guess that's why I research so much so that I'll have an arsonal ready for when they try to attack.... it's only some doctors but I've been to those some.... I was diagnosed 6 years ago with a rare disease call pseudotumor cerebri and it took two years and a host of different doctors before I finally found a good neuro who did a spinal tap to confirm the diagnosis along with my really good opthamologist... so the good ones are out there but it just takes some searching to find them....
klc
I also got the numb face thing before I was diagnosed. Whole left side of my face was numb & my GP put me on steroid tablets, laughed when I suggested it could be MS - then about a month later I ended up in hospital unable to walk. My diagnosis came fairly quickly after that!!
I dont think I've experienced any facial numbness since but I do notice that side of my face is less sensitive.
Ally.
Thanks Ally, it sucks how we get treated like complete idiots by the doctors sometimes... I guess that's why I research so much so that I'll have an arsonal ready for when they try to attack.... it's only some doctors but I've been to those some.... I was diagnosed 6 years ago with a rare disease call pseudotumor cerebri and it took two years and a host of different doctors before I finally found a good neuro who did a spinal tap to confirm the diagnosis along with my really good opthamologist... so the good ones are out there but it just takes some searching to find them....
klc
willo1980
06-06-2007, 02:10 PM
You said you have numbness on the top of your back...
When my sx's began I had a patch about the size of a golf ball on the left side of my back about mid way down. I told the Rheumy my moron doc referred me to about it and she seemed unconcerned. Her answer was something stupid "probably just neuropathy." Well, I WAS concerned because why was I having neuropathy. Freaky, as I type this that tingling sensation is in my back! :eek: My patch has since spread to encompass most of the left side and sometimes crosses over the spine. In my opinion, I don't think it's normal for a 27 year old's back to be doing this!! My dad has severe degenerative disk disease and he says his back never tingles.
At least I'm not the only one out there!
When my sx's began I had a patch about the size of a golf ball on the left side of my back about mid way down. I told the Rheumy my moron doc referred me to about it and she seemed unconcerned. Her answer was something stupid "probably just neuropathy." Well, I WAS concerned because why was I having neuropathy. Freaky, as I type this that tingling sensation is in my back! :eek: My patch has since spread to encompass most of the left side and sometimes crosses over the spine. In my opinion, I don't think it's normal for a 27 year old's back to be doing this!! My dad has severe degenerative disk disease and he says his back never tingles.
At least I'm not the only one out there!
OliverBocca
06-06-2007, 11:42 PM
My first MS attack started with numbness in my left leg. Three days later I had a full on attack after running a 5k (April 9, 2006... I'll never forget that date). I got numbness in my left side of the body (shoulder to fingers, lower back to toes) and facial numbnes on one side only.
I was kind of a "slam dunk" MS case; they knew right away I had it but spent an awful lot of time ruling everything else first. (It ended with a lumbar punch... that sealed it.)
I was kind of a "slam dunk" MS case; they knew right away I had it but spent an awful lot of time ruling everything else first. (It ended with a lumbar punch... that sealed it.)