klc23mom
06-04-2007, 11:20 AM
I know you all will think this is crazy but I had this thought (even though I will be miserable) that if I took a hot bath before my scheduled MRI that it would cause the lesions to light up if there are any there.... it's just a thought... I am just desperate because I don't want to go another 2 or 3 years not knowing what this is....
what do you think???
klc
what do you think???
klc
Sponsor
Bearygood
06-04-2007, 11:53 AM
I'm pretty sure that the only thing this might do is to make you more uncomfortable. :)
klc23mom
06-04-2007, 12:20 PM
Well... darn... it was worth a try... lol... I'm just desperate...
MSNik
06-04-2007, 02:05 PM
Klc, here I go again. Im worried about you. Truly concerned.
Your reading EVERYTHING you can get your hands on, arent you? And its kind of obvious that you are starting to overload...
please, try to relax. Nothing is going to SHOW legions, except an MRI, and I guarantee if there are any active ones, they will show up with contrast. I hope and pray for your sake that you dont have any at all!
Your posting quite a bit these days, which is awesome! Posting here, and asking every single question in the book is what got me thru my first 3 months of having an MS dx. I commend you, you have come to the right place. But, I get the feeling you are also reading every single site on the internet trying to find info....any neuro, will tell you NOT to do that. Its not good to try to self dx, or to try to match symtoms with illnesses. This is why they ( the doctors) go to school 8+ years.
Once you are dx, obviously you want to learn everything you can about your illness. Thats a good idea. But if you have MS, and you think you can learn from 99% of the websites on the net, you are in for a sorry surprise. They call them "snake oil salesmen", the people with all the answers, the diets, supplements and magical herbs which will take away symtoms....if even one of them worked, we wouldnt be here discussing MS Therapy drugs (which are maintenance, not cures) and things which affect us the most, such as heat and hot baths! Now, there is a TON of truth, that eating right, taking certain supplments, and geting the moderate amount of exercise WILL definately help you to feel better! Tried and True...however, many supplements and even some food items, can aggravate MS symtoms and make them worse. For instance, Tomatoes have inflamatory properties, eating too much tomatoe sauce, can trigger nerve pain. Taking certain herbs such as Ecchineaca (which slows down colds) can actually force the body into a relapse, because it is an immune booster. This is all very confusing, but you will never find it on just one website, You need to search and study many to get a conclusive answer
I feel so much for you. Its obvious that you are considering school, juggling yoru family, you have a family which sounds very stable and that you are not being forced into making any kind of decisions, is the best medicine in the world...I also feel for you that you are as of yet Undx- and that is the hardest part of all. BUt I want you to know that researching isnt alwasy the way to go. Its smart to put a shout out here asking "has anyone ever experienced....."...youll get answers from people who ACTUALLY have had those same symtoms, or taken that same drug...or have had that test....THIS BOARD IS A LIFE SAVER. Truly. Just dont start going overboard trying to force anything....its the old "be careful what you wish for" issue. Youll do anything to get a dx...but do you realize how much your life is going to change if it is MS?? Shots, rounds of tests, dr appointments, eye issues, all of this comes with MS. PLease, Pray you DONT have it and Please, Dont go looking for it!
I hope you understand that all of this comes from my spot which sees your fear and pain, and really I do want to help you. But I think it was necessary at this point today, after reading 4+ posts from you, all with quoted facts, that you realize that your not helping yourself, you are making yourself more nervous....
Try to relax. Its going to be okay. Whatever it is.
Your reading EVERYTHING you can get your hands on, arent you? And its kind of obvious that you are starting to overload...
please, try to relax. Nothing is going to SHOW legions, except an MRI, and I guarantee if there are any active ones, they will show up with contrast. I hope and pray for your sake that you dont have any at all!
Your posting quite a bit these days, which is awesome! Posting here, and asking every single question in the book is what got me thru my first 3 months of having an MS dx. I commend you, you have come to the right place. But, I get the feeling you are also reading every single site on the internet trying to find info....any neuro, will tell you NOT to do that. Its not good to try to self dx, or to try to match symtoms with illnesses. This is why they ( the doctors) go to school 8+ years.
Once you are dx, obviously you want to learn everything you can about your illness. Thats a good idea. But if you have MS, and you think you can learn from 99% of the websites on the net, you are in for a sorry surprise. They call them "snake oil salesmen", the people with all the answers, the diets, supplements and magical herbs which will take away symtoms....if even one of them worked, we wouldnt be here discussing MS Therapy drugs (which are maintenance, not cures) and things which affect us the most, such as heat and hot baths! Now, there is a TON of truth, that eating right, taking certain supplments, and geting the moderate amount of exercise WILL definately help you to feel better! Tried and True...however, many supplements and even some food items, can aggravate MS symtoms and make them worse. For instance, Tomatoes have inflamatory properties, eating too much tomatoe sauce, can trigger nerve pain. Taking certain herbs such as Ecchineaca (which slows down colds) can actually force the body into a relapse, because it is an immune booster. This is all very confusing, but you will never find it on just one website, You need to search and study many to get a conclusive answer
I feel so much for you. Its obvious that you are considering school, juggling yoru family, you have a family which sounds very stable and that you are not being forced into making any kind of decisions, is the best medicine in the world...I also feel for you that you are as of yet Undx- and that is the hardest part of all. BUt I want you to know that researching isnt alwasy the way to go. Its smart to put a shout out here asking "has anyone ever experienced....."...youll get answers from people who ACTUALLY have had those same symtoms, or taken that same drug...or have had that test....THIS BOARD IS A LIFE SAVER. Truly. Just dont start going overboard trying to force anything....its the old "be careful what you wish for" issue. Youll do anything to get a dx...but do you realize how much your life is going to change if it is MS?? Shots, rounds of tests, dr appointments, eye issues, all of this comes with MS. PLease, Pray you DONT have it and Please, Dont go looking for it!
I hope you understand that all of this comes from my spot which sees your fear and pain, and really I do want to help you. But I think it was necessary at this point today, after reading 4+ posts from you, all with quoted facts, that you realize that your not helping yourself, you are making yourself more nervous....
Try to relax. Its going to be okay. Whatever it is.
klc23mom
06-04-2007, 04:47 PM
Klc, here I go again. Im worried about you. Truly concerned.
Your reading EVERYTHING you can get your hands on, arent you? And its kind of obvious that you are starting to overload...
please, try to relax. Nothing is going to SHOW legions, except an MRI, and I guarantee if there are any active ones, they will show up with contrast. I hope and pray for your sake that you dont have any at all!
Your posting quite a bit these days, which is awesome! Posting here, and asking every single question in the book is what got me thru my first 3 months of having an MS dx. I commend you, you have come to the right place. But, I get the feeling you are also reading every single site on the internet trying to find info....any neuro, will tell you NOT to do that. Its not good to try to self dx, or to try to match symtoms with illnesses. This is why they ( the doctors) go to school 8+ years.
Once you are dx, obviously you want to learn everything you can about your illness. Thats a good idea. But if you have MS, and you think you can learn from 99% of the websites on the net, you are in for a sorry surprise. They call them "snake oil salesmen", the people with all the answers, the diets, supplements and magical herbs which will take away symtoms....if even one of them worked, we wouldnt be here discussing MS Therapy drugs (which are maintenance, not cures) and things which affect us the most, such as heat and hot baths! Now, there is a TON of truth, that eating right, taking certain supplments, and geting the moderate amount of exercise WILL definately help you to feel better! Tried and True...however, many supplements and even some food items, can aggravate MS symtoms and make them worse. For instance, Tomatoes have inflamatory properties, eating too much tomatoe sauce, can trigger nerve pain. Taking certain herbs such as Ecchineaca (which slows down colds) can actually force the body into a relapse, because it is an immune booster. This is all very confusing, but you will never find it on just one website, You need to search and study many to get a conclusive answer
I feel so much for you. Its obvious that you are considering school, juggling yoru family, you have a family which sounds very stable and that you are not being forced into making any kind of decisions, is the best medicine in the world...I also feel for you that you are as of yet Undx- and that is the hardest part of all. BUt I want you to know that researching isnt alwasy the way to go. Its smart to put a shout out here asking "has anyone ever experienced....."...youll get answers from people who ACTUALLY have had those same symtoms, or taken that same drug...or have had that test....THIS BOARD IS A LIFE SAVER. Truly. Just dont start going overboard trying to force anything....its the old "be careful what you wish for" issue. Youll do anything to get a dx...but do you realize how much your life is going to change if it is MS?? Shots, rounds of tests, dr appointments, eye issues, all of this comes with MS. PLease, Pray you DONT have it and Please, Dont go looking for it!
I hope you understand that all of this comes from my spot which sees your fear and pain, and really I do want to help you. But I think it was necessary at this point today, after reading 4+ posts from you, all with quoted facts, that you realize that your not helping yourself, you are making yourself more nervous....
Try to relax. Its going to be okay. Whatever it is.
Thank you for your concern... I'm not looking for a diagnoses of MS... frankly, I'm scared to death of it and I guess that's why I'm researching other things because honestly... all signs point to MS.... I already have eye issues and all the pain and fatigue that I can handle.... I have prayed every night.... that's why I have waited 4 years and have the symptoms get worse before I even considered going to the doctor....
klc
Your reading EVERYTHING you can get your hands on, arent you? And its kind of obvious that you are starting to overload...
please, try to relax. Nothing is going to SHOW legions, except an MRI, and I guarantee if there are any active ones, they will show up with contrast. I hope and pray for your sake that you dont have any at all!
Your posting quite a bit these days, which is awesome! Posting here, and asking every single question in the book is what got me thru my first 3 months of having an MS dx. I commend you, you have come to the right place. But, I get the feeling you are also reading every single site on the internet trying to find info....any neuro, will tell you NOT to do that. Its not good to try to self dx, or to try to match symtoms with illnesses. This is why they ( the doctors) go to school 8+ years.
Once you are dx, obviously you want to learn everything you can about your illness. Thats a good idea. But if you have MS, and you think you can learn from 99% of the websites on the net, you are in for a sorry surprise. They call them "snake oil salesmen", the people with all the answers, the diets, supplements and magical herbs which will take away symtoms....if even one of them worked, we wouldnt be here discussing MS Therapy drugs (which are maintenance, not cures) and things which affect us the most, such as heat and hot baths! Now, there is a TON of truth, that eating right, taking certain supplments, and geting the moderate amount of exercise WILL definately help you to feel better! Tried and True...however, many supplements and even some food items, can aggravate MS symtoms and make them worse. For instance, Tomatoes have inflamatory properties, eating too much tomatoe sauce, can trigger nerve pain. Taking certain herbs such as Ecchineaca (which slows down colds) can actually force the body into a relapse, because it is an immune booster. This is all very confusing, but you will never find it on just one website, You need to search and study many to get a conclusive answer
I feel so much for you. Its obvious that you are considering school, juggling yoru family, you have a family which sounds very stable and that you are not being forced into making any kind of decisions, is the best medicine in the world...I also feel for you that you are as of yet Undx- and that is the hardest part of all. BUt I want you to know that researching isnt alwasy the way to go. Its smart to put a shout out here asking "has anyone ever experienced....."...youll get answers from people who ACTUALLY have had those same symtoms, or taken that same drug...or have had that test....THIS BOARD IS A LIFE SAVER. Truly. Just dont start going overboard trying to force anything....its the old "be careful what you wish for" issue. Youll do anything to get a dx...but do you realize how much your life is going to change if it is MS?? Shots, rounds of tests, dr appointments, eye issues, all of this comes with MS. PLease, Pray you DONT have it and Please, Dont go looking for it!
I hope you understand that all of this comes from my spot which sees your fear and pain, and really I do want to help you. But I think it was necessary at this point today, after reading 4+ posts from you, all with quoted facts, that you realize that your not helping yourself, you are making yourself more nervous....
Try to relax. Its going to be okay. Whatever it is.
Thank you for your concern... I'm not looking for a diagnoses of MS... frankly, I'm scared to death of it and I guess that's why I'm researching other things because honestly... all signs point to MS.... I already have eye issues and all the pain and fatigue that I can handle.... I have prayed every night.... that's why I have waited 4 years and have the symptoms get worse before I even considered going to the doctor....
klc
MSNik
06-04-2007, 05:18 PM
Oh Sweetie, I hope you are mad at me for what I wrote. Im not saying you wish you had MS..of course not. No one would. But there is another way of looking at this. Look at all of us who DO have dx of MS, and are doing so well. I mean, for the most part, the people who communicate on this board are still working, or at least taking care of their homes and children...having children for that matter and even traveling, both for business and pleasure. MS doesnt have to be a bad thing in the grand scheme of things....at least you know you wont die from it! Im really sorry that you are so scared. Its normal though. Absolutely normal. Youd be weird if you DIDNT have fear of the unknown.
As for what Im trying to tell you, I didnt say it very well. Desperate said it so much better in her post. Knowing too much, can be a scary thing. BUT NOT knowing is even scarier...by putting all that info into your brain, your scaring yourself, and that is where my concern for you stems from. Please believe me that I feel your fear and your pain. Youre NOT going through this alone. ok??
we are all here for you..but be careful. Dont overeducate yourself to the point where you scare yourself. Stress is THE WORST thing you can do to yourself at this point..
ok?
Hang in there. And, dont be afraid to post questions or state your fears...weve all had them.
Nikki
As for what Im trying to tell you, I didnt say it very well. Desperate said it so much better in her post. Knowing too much, can be a scary thing. BUT NOT knowing is even scarier...by putting all that info into your brain, your scaring yourself, and that is where my concern for you stems from. Please believe me that I feel your fear and your pain. Youre NOT going through this alone. ok??
we are all here for you..but be careful. Dont overeducate yourself to the point where you scare yourself. Stress is THE WORST thing you can do to yourself at this point..
ok?
Hang in there. And, dont be afraid to post questions or state your fears...weve all had them.
Nikki
klc23mom
06-04-2007, 05:37 PM
Oh Sweetie, I hope you are mad at me for what I wrote. Im not saying you wish you had MS..of course not. No one would. But there is another way of looking at this. Look at all of us who DO have dx of MS, and are doing so well. I mean, for the most part, the people who communicate on this board are still working, or at least taking care of their homes and children...having children for that matter and even traveling, both for business and pleasure. MS doesnt have to be a bad thing in the grand scheme of things....at least you know you wont die from it! Im really sorry that you are so scared. Its normal though. Absolutely normal. Youd be weird if you DIDNT have fear of the unknown.
As for what Im trying to tell you, I didnt say it very well. Desperate said it so much better in her post. Knowing too much, can be a scary thing. BUT NOT knowing is even scarier...by putting all that info into your brain, your scaring yourself, and that is where my concern for you stems from. Please believe me that I feel your fear and your pain. Youre NOT going through this alone. ok??
we are all here for you..but be careful. Dont overeducate yourself to the point where you scare yourself. Stress is THE WORST thing you can do to yourself at this point..
ok?
Hang in there. And, dont be afraid to post questions or state your fears...weve all had them.
Nikki
I'm not made at all, I appreciate your comments alot and I am going to stop researching as of now... I think it's a defense mechanism, I've always done it for anything, my friend had fertility issues and I researched like crazy for her and my aunt has pmdd and of course I researched for her too.... I don't know why, it may be the want to be nurse in me... trying to help everybody (including myself).... but I will stop... no more research.... promise!!!
Klc
As for what Im trying to tell you, I didnt say it very well. Desperate said it so much better in her post. Knowing too much, can be a scary thing. BUT NOT knowing is even scarier...by putting all that info into your brain, your scaring yourself, and that is where my concern for you stems from. Please believe me that I feel your fear and your pain. Youre NOT going through this alone. ok??
we are all here for you..but be careful. Dont overeducate yourself to the point where you scare yourself. Stress is THE WORST thing you can do to yourself at this point..
ok?
Hang in there. And, dont be afraid to post questions or state your fears...weve all had them.
Nikki
I'm not made at all, I appreciate your comments alot and I am going to stop researching as of now... I think it's a defense mechanism, I've always done it for anything, my friend had fertility issues and I researched like crazy for her and my aunt has pmdd and of course I researched for her too.... I don't know why, it may be the want to be nurse in me... trying to help everybody (including myself).... but I will stop... no more research.... promise!!!
Klc
MSNik
06-04-2007, 07:36 PM
Again, thank you for understanding, but dont take what I say literally - as in NO research. Just limit your research to things which you are CERTAIN you need to understand in order to discuss further with a doctor. If he mentioned something to you that you didnt understand, you would ask for clarification, right? On here, if someone mentions something you arent familiar with, you can research it, or ask about it..but dont OBSESS on it. Thinking that all these things will happen to you, is a mistake- but thinking that because someone else has a symptom YOU have means YOU have what THEY have, is also a mistake.
Does that make sense? I just worry about you. Youre a newbie here, and youre likely to be scared to death...we all were at one time. The biggest thing you can take from this board is that you have a HUGE support system and even more information ALL OF WHICH is basically verifiable. No one here is trying to be a doctor, but most here are experiencing very real issues which they feel the desire to share. We are all here to help you thru this. Take advantage of it and try to not be so afraid of this....whatever it is, youre doing just fine!
Ok?
N
Does that make sense? I just worry about you. Youre a newbie here, and youre likely to be scared to death...we all were at one time. The biggest thing you can take from this board is that you have a HUGE support system and even more information ALL OF WHICH is basically verifiable. No one here is trying to be a doctor, but most here are experiencing very real issues which they feel the desire to share. We are all here to help you thru this. Take advantage of it and try to not be so afraid of this....whatever it is, youre doing just fine!
Ok?
N