hotflash
06-04-2007, 01:59 PM
Hello Ladies
If MS symptoms are aggravated by heat how the heck do you survive both hotflashes (and I mean all the time) and 100 plus temps all the time? Do you think thats why I;m still stiff and tired and still can't get rid of the numbness in my right foot. Someone (maybe it will be me) should ask the doc how the heck we are supposed to live with innner heet and outdoor heat lol this can kill you
hotflash
If MS symptoms are aggravated by heat how the heck do you survive both hotflashes (and I mean all the time) and 100 plus temps all the time? Do you think thats why I;m still stiff and tired and still can't get rid of the numbness in my right foot. Someone (maybe it will be me) should ask the doc how the heck we are supposed to live with innner heet and outdoor heat lol this can kill you
hotflash
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MSNik
06-04-2007, 02:07 PM
Good Grief, I could have written this one, myself! :) If you get an answer, let me know!! I have asked my doc several times how to survive this, and his answer has consistently been stay cool. Stay in the A/c, stay in a pool, whatever it takes....
You think my boss will put a pool outside my office for those days when I feel the need? Lol..
Its horrible, isnt it? You are NOT alone!
Nikki
You think my boss will put a pool outside my office for those days when I feel the need? Lol..
Its horrible, isnt it? You are NOT alone!
Nikki
KTMorra
06-04-2007, 02:58 PM
Im melting right along with you. It's like a hotflash on the sun most of the time. Had to laugh at someone recommending light cotton night gowns. The only plus is they dry a lot faster than the other kind after you wring them out.
I think a nice move to say maybe Alaska would be an idea?
I did see a cooling vest on the internet that looked like it might work, it had gel inserts that you charge in the freezer. makes you look like a crossing guard though. This wrung out dishcloth feeling has got to come to an end soon.
Stay as cool :cool: as possible, but never let them see you sweat right?
:p
Take care and good luck
KT
I think a nice move to say maybe Alaska would be an idea?
I did see a cooling vest on the internet that looked like it might work, it had gel inserts that you charge in the freezer. makes you look like a crossing guard though. This wrung out dishcloth feeling has got to come to an end soon.
Stay as cool :cool: as possible, but never let them see you sweat right?
:p
Take care and good luck
KT
MSNik
06-04-2007, 04:04 PM
well put KT!! :) Actually there is a whole line of clothing made for MS patients which is similar to what you are describing. I get catalogs all the time trying to sell me this stuff. Unfortunatley, you are right, they arent especially flattering! I am thinking of trying some of this though for this summer outtings...anything that keeps us cool has to keep us happy, right?? IM not exactly looking forward to some of the places I need to go this summer...at least staying cool might help.
Hugs to you.
N
Hugs to you.
N
bella67
06-04-2007, 04:47 PM
I'm actually so blessed today. It's unseasonably cool , and I have the windows open with a ceiling fan and it's beautiful!! But, on hot days I need the a/c or I can't even function. I used to think this was something everyone felt when they were hot. But, then when I married my husband and he would constantly tell me I was crazy, and it wasn't warm in a room I knew it was just me..lol We battle over the thermostat ALL the time. I tell him if he wants dinner on the table, and the house cleaned I need the a/c!! I get nauseous, dizzy, feel like I weigh 500lbs, but he still doesn't get it. My 10 yr old gets the same way in the heat, this is why he doesn't participate in organized sports.
My best advice to you is to buy those lil mini fans with the batteries, and also I saw this one device that was a ring you put around your neck to cool you off. I'll have to look it up to find you the name of the product. Remember your wrists, neck, and feet are spots to keep cool.
My best advice to you is to buy those lil mini fans with the batteries, and also I saw this one device that was a ring you put around your neck to cool you off. I'll have to look it up to find you the name of the product. Remember your wrists, neck, and feet are spots to keep cool.
lilc
06-04-2007, 06:19 PM
Flash, you KNOW I understand!
One day last summer I was standing in my friend's pool, submerged up to my chin, and sweat was POURING off my forehead! Welcome to the Valley of the Sun...
I've actually wondered also if hot flashes impact myelin function. After all, it is REAL HEAT. Fortunately they pass. I have those little battery operated fans, the neck coolers. Have tried icing pulse points. The most effective thing I've found is rice-paper fans (the oriental, accordian-folding type). Silk fans are pretty, but they don't move nearly as much air as the paper fans. They are hard to find, though. When I find them I buy all they have!
But as we know, none of these things do a darned thing for the hot flashes...I usually just sit and look pitiful until they pass...!
One day last summer I was standing in my friend's pool, submerged up to my chin, and sweat was POURING off my forehead! Welcome to the Valley of the Sun...
I've actually wondered also if hot flashes impact myelin function. After all, it is REAL HEAT. Fortunately they pass. I have those little battery operated fans, the neck coolers. Have tried icing pulse points. The most effective thing I've found is rice-paper fans (the oriental, accordian-folding type). Silk fans are pretty, but they don't move nearly as much air as the paper fans. They are hard to find, though. When I find them I buy all they have!
But as we know, none of these things do a darned thing for the hot flashes...I usually just sit and look pitiful until they pass...!
hotflash
06-05-2007, 01:29 PM
lilc
I have two battery operated fans. I was raised in Fla, moved to Chicago when I was a teenager and a few other states and moved to AZ in 1994. I thought I was done with my hotflashes 3 years ago but they started up again about 4 months ago. I knew something was wrong with me when I couldn't lay out in the sun anymore without feeling like I was having a stroke. I used to be able to lay out in the sun all summer long until 3 years ago. Since MS is more common in women than men I think I will ask my doc about a link between hormoned and MS
hotflash
I have two battery operated fans. I was raised in Fla, moved to Chicago when I was a teenager and a few other states and moved to AZ in 1994. I thought I was done with my hotflashes 3 years ago but they started up again about 4 months ago. I knew something was wrong with me when I couldn't lay out in the sun anymore without feeling like I was having a stroke. I used to be able to lay out in the sun all summer long until 3 years ago. Since MS is more common in women than men I think I will ask my doc about a link between hormoned and MS
hotflash
NarLyB
06-05-2007, 01:37 PM
Definitely ask your doc about hormone problems.
I had a hysterectomy five years ago (was dx with MS 1993, I'm 39) and have had occasional problems with hormone levels. Both my GP and my neuro seem to think that MS may have something to do with this, but no one really knows. They both watch my hormone levels and we make adjustments as needed.
I'm not getting hot flashes any more (thank GOD!!!) so we must be doing something right. I don't take any of the prescription hormone replacements, we just try to maintain with diet. Seems to be working.
I had a hysterectomy five years ago (was dx with MS 1993, I'm 39) and have had occasional problems with hormone levels. Both my GP and my neuro seem to think that MS may have something to do with this, but no one really knows. They both watch my hormone levels and we make adjustments as needed.
I'm not getting hot flashes any more (thank GOD!!!) so we must be doing something right. I don't take any of the prescription hormone replacements, we just try to maintain with diet. Seems to be working.
MSNik
06-05-2007, 04:37 PM
HI girls. This particular topic is hitting close to home for me. Thanks for opening it up. THere is a definate link between hormones and MS and studies are being done now to determine what it is. For instance, we all know that being pregnant, your body goes into remission and you are probably at your healthiest; however, its very common, as soon as the baby is born, to relapse. With that, they are doing studies on Estrogen and how that affects MS. Another commonly known fact is women complain more when they get their periods than any other time about symtoms flareups. (true for me as well). I turned 40 last year, wanted more than anything to go off the pill and have my tubes tied. The gyn said FINE to that. The MS specialist says FINE TO THAT BUT...theres always a but. His but is he wants me to stay on the pill no matter what, because there is some evidence that the Estrogen in the pill protects the body from relapses. To which I replied "If thats true, why did I get MS after being on the pill for 20 years?" :confused: To which he replied "you might have gotten it 10 years sooner". :dizzy: Ive gone round and round on this, having my gyn call my MS doc, and talk to him. Ive finally decided that Im going to get my tubes tied and go off the pill and if in fact after 3 months Im feeling worse, well, then we will know that the lower amount of estrogen in my body is what is causing it, which will either put me back on the pill or estrogen supplements. The funny part is EVERY woman in my family had a hysterectomy by 40- except me- so we have no idea when Menopause is even supposed to hit. I feel like it is hitting already, but no one is sure...hot flashes and night sweats have become a way of life!
Suggestions welcome, and Narly- you are one lucky woman to be able to handle this without supplements!
Suggestions welcome, and Narly- you are one lucky woman to be able to handle this without supplements!
lilc
06-05-2007, 05:21 PM
Nikki, that is interesting.
When I developed sx that started me on the road to dx I was perimenopausal. Am now post. Coincidentally, the last period I had was the day after my LP! (Great time to have lower back cramps :jester: )
When I developed sx that started me on the road to dx I was perimenopausal. Am now post. Coincidentally, the last period I had was the day after my LP! (Great time to have lower back cramps :jester: )
hotflash
06-05-2007, 05:54 PM
I had a hysterectomy 7 years ago and I took estrogen for one month I quit taking it after that because I swear I had more hotflashes with it than without it. Then a few years later they came out with the study on how hormone replacements can cause cancer which scared me more. I could have had this for years and not know it. I complained to my dr about 8 years ago that my feet were numb and tingly and he told me it was because I was on my feet all the time at work. All he did was send me to a neuro for a carpul tunnel test which of course came out fine. It was my feet I complained about. I used to have my kids rub my feet all the time, I thought maybe it was from the varicose vein that I have. I am going to ask about the hormones since thats when I started to feel worse!!!
hotflash
hotflash
mnewhall
06-05-2007, 06:03 PM
this is a very interesting post for me. i'm 40 and had a hysterectomy in 2000. i started on hormone replacement therapy and in the past couple of years my sx's have been worse which prompted me to see a neuro. i always felt worse with my sx's during that time of the month. i was dx'd with fibromyalgia and a host of other autoimmune diseases and had heard about autoimmunity being higher prevalence in women. i am undx'd for MS at this time, but neuro is 95% sure it is.
i am on a pretty low dose of plant based estrogen called Vivelle Dot which is a patch and the dose is .075 and i change the patch twice a week.
i don't know if i can handle the hotflashes if i were to think of going off the patch to see how i would feel in the way of my neuro sx's. i would definitely wait until winter to try that :eek: something to definitely ask the doc about.
stay cool,
michelle
i am on a pretty low dose of plant based estrogen called Vivelle Dot which is a patch and the dose is .075 and i change the patch twice a week.
i don't know if i can handle the hotflashes if i were to think of going off the patch to see how i would feel in the way of my neuro sx's. i would definitely wait until winter to try that :eek: something to definitely ask the doc about.
stay cool,
michelle