misspeca27
06-05-2007, 12:11 AM
My mom who is in her early 50's is having ms-like symptoms. There is not family history of it. She has tingling/burning in her feet/hands/nose. The nose comes and goes. Her doctor thinks it is carpoltunal. She is setting up an appointment with the neurologist anyways. I have read that it may also be stress, anxiety, diabetes, or menopause. Can anyone give me some in site.
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bella67
06-05-2007, 08:48 AM
Hi misspeca,
I think you're right in saying it could be any of those things. But it's good she chose to follow up with seeing a neurologist. Secondly I don't know why her doc is saying carpal tunnel when she's getting tingling in her nose? That's usually confined to the wrist and hands. Has she had any tests done yet like an MRI, or any blood work?
I think you're right in saying it could be any of those things. But it's good she chose to follow up with seeing a neurologist. Secondly I don't know why her doc is saying carpal tunnel when she's getting tingling in her nose? That's usually confined to the wrist and hands. Has she had any tests done yet like an MRI, or any blood work?
mnewhall
06-05-2007, 08:51 AM
Hi,
Just wanted to let you know that I suffer from Raynaud's and your mom's sx's could be similar to that, so it's a good thing she's making an appt with the neuro. the following is an excerpt from a website about Raynaud's. you can using any search engine and pull up many sites for it. please let us know how your mom is and the appt goes. wishing her well. blessings, michelle
What is Raynaud's?
Raynaud’s (ray-NODES) is a disorder of the small blood vessels of the extremities, reducing blood flow. When exposed to cold, the blood vessels go into spasms, which may cause pain, numbness, throbbing and tingling. Emotional distress may also trigger such a response.
The fingers are usually the primary affected areas, although toes, nose, ears and other extremities may be involved. In a typical case, fingers turn from white or blue (or both) within minutes of cold exposure then become red when they warm up. These color changes, which may vary from person to person, are an exaggeration of a normal response to cold exposure. A normal cold response in the hands is a blotchy red and white pattern. Raynaud’s-type color changes are distinctively different.
The disorder has been called Raynaud’s “phenomenon,” “syndrome” or “disease.” Although physicians have used these terms to identify different types, today the words are used interchangeably. There are, however, two major kinds of Raynaud’s that are important to recognize:
Primary Raynaud’s, the most common type, is not linked to another underlying medical condition or disease. There is no apparent cause for the phenomenon to occur. Primary Raynaud’s is not usually “disabling” in the typical sense, but sufferers can experience great discomfort and pain – requiring lifestyle adjustments to minimize exposure to cold and stress.
Secondary Raynaud’s is the term used when Raynaud’s is associated with another medical condition or disease, often of a rheumatic nature such as scleroderma (also known as systemic sclerosis) or systemic lupus erythematosus. Often, Raynaud’s symptoms are the first sign that such an underlying connective tissue disease exists. Patients with the secondary form are more likely to suffer more serious problems from Raynaud’s, such as skin ulcers (which can cause serious long-term damage to the blood vessels), or even gangrene.
Just wanted to let you know that I suffer from Raynaud's and your mom's sx's could be similar to that, so it's a good thing she's making an appt with the neuro. the following is an excerpt from a website about Raynaud's. you can using any search engine and pull up many sites for it. please let us know how your mom is and the appt goes. wishing her well. blessings, michelle
What is Raynaud's?
Raynaud’s (ray-NODES) is a disorder of the small blood vessels of the extremities, reducing blood flow. When exposed to cold, the blood vessels go into spasms, which may cause pain, numbness, throbbing and tingling. Emotional distress may also trigger such a response.
The fingers are usually the primary affected areas, although toes, nose, ears and other extremities may be involved. In a typical case, fingers turn from white or blue (or both) within minutes of cold exposure then become red when they warm up. These color changes, which may vary from person to person, are an exaggeration of a normal response to cold exposure. A normal cold response in the hands is a blotchy red and white pattern. Raynaud’s-type color changes are distinctively different.
The disorder has been called Raynaud’s “phenomenon,” “syndrome” or “disease.” Although physicians have used these terms to identify different types, today the words are used interchangeably. There are, however, two major kinds of Raynaud’s that are important to recognize:
Primary Raynaud’s, the most common type, is not linked to another underlying medical condition or disease. There is no apparent cause for the phenomenon to occur. Primary Raynaud’s is not usually “disabling” in the typical sense, but sufferers can experience great discomfort and pain – requiring lifestyle adjustments to minimize exposure to cold and stress.
Secondary Raynaud’s is the term used when Raynaud’s is associated with another medical condition or disease, often of a rheumatic nature such as scleroderma (also known as systemic sclerosis) or systemic lupus erythematosus. Often, Raynaud’s symptoms are the first sign that such an underlying connective tissue disease exists. Patients with the secondary form are more likely to suffer more serious problems from Raynaud’s, such as skin ulcers (which can cause serious long-term damage to the blood vessels), or even gangrene.
anniebooboo
06-05-2007, 09:07 AM
Gday guys.
I am brand new here and not sure even if i am posting correctly. My doctor thinks I may have MS and I am waiting for an MRI. I have lots of bizzare sensory and motor symptoms in my limbs, but the ones that are particularly bad are my chronic reflux and a weird feeling that I get in my throat. It often feels that my throat is slightly paralyzed or that I have a blockage. I have had an endoscopy which showed no blockage but slight damage from reflux. Do MS and reflux (or a weird throat sensation) go hand in hand? Sometimes I choke on even soft food and I frequently choke in my sleep. Is this MS related or very bad reflux? Has anyone had a similar experience? Lastly, I have buzzing in my left foot whenever I bend my head forward. The doctor said this could be L"Hermittes sign but I'd like to know if this is a definite MS symptom or can you get this happening with some other disorders too? Sometimes I even buzz when I'm not bending forward. Does anyone else have this happen?
Annie
I am brand new here and not sure even if i am posting correctly. My doctor thinks I may have MS and I am waiting for an MRI. I have lots of bizzare sensory and motor symptoms in my limbs, but the ones that are particularly bad are my chronic reflux and a weird feeling that I get in my throat. It often feels that my throat is slightly paralyzed or that I have a blockage. I have had an endoscopy which showed no blockage but slight damage from reflux. Do MS and reflux (or a weird throat sensation) go hand in hand? Sometimes I choke on even soft food and I frequently choke in my sleep. Is this MS related or very bad reflux? Has anyone had a similar experience? Lastly, I have buzzing in my left foot whenever I bend my head forward. The doctor said this could be L"Hermittes sign but I'd like to know if this is a definite MS symptom or can you get this happening with some other disorders too? Sometimes I even buzz when I'm not bending forward. Does anyone else have this happen?
Annie
bella67
06-05-2007, 10:06 AM
Hi annie,
I see your post, so I guess you're doing it right. *hee he* I don't have answers to your questions since I'm still in the diagnosis phase myself. However, last nite I started having the buzzing in my left hand. It was SO annoying, and it felt like I was holding an electric razor in my hand. It wouldn't go away till I went to bed and woke up this morning. So, I know what you're talking about.
Good luck with tests, and welcome to the board!
Lisa
I see your post, so I guess you're doing it right. *hee he* I don't have answers to your questions since I'm still in the diagnosis phase myself. However, last nite I started having the buzzing in my left hand. It was SO annoying, and it felt like I was holding an electric razor in my hand. It wouldn't go away till I went to bed and woke up this morning. So, I know what you're talking about.
Good luck with tests, and welcome to the board!
Lisa
Bearygood
06-05-2007, 12:19 PM
Hi, annie and miss.
annie, MS can produce some weird stuff and vary greatly in person to person but this is the first I've personally ever heard/seen of reflux. That said, just because I'm not aware of it doesn't mean someone else won't have insight for you! Electrical sensations, vibrating and buzzing can be MS symptoms. There are other things that can cause this and certainly with reflux, quite a few other things.
miss, lots of theories abound about MS and genetics/heredity. Largely, it points so far as to the possibility of it being genetic but NOT hereditary. In other words, a genetic predisposition but it doesn't mean you'll necessarily get it. That said, it doesn't seem to be the case in all people who have MS and looks like there are different things that might both cause it and/or trigger it in those people with predispositions. Again, MANY theories abound. Re: your mother's symptoms, they could be MS but also other things.
Good luck to both of you and keep us posted!
annie, MS can produce some weird stuff and vary greatly in person to person but this is the first I've personally ever heard/seen of reflux. That said, just because I'm not aware of it doesn't mean someone else won't have insight for you! Electrical sensations, vibrating and buzzing can be MS symptoms. There are other things that can cause this and certainly with reflux, quite a few other things.
miss, lots of theories abound about MS and genetics/heredity. Largely, it points so far as to the possibility of it being genetic but NOT hereditary. In other words, a genetic predisposition but it doesn't mean you'll necessarily get it. That said, it doesn't seem to be the case in all people who have MS and looks like there are different things that might both cause it and/or trigger it in those people with predispositions. Again, MANY theories abound. Re: your mother's symptoms, they could be MS but also other things.
Good luck to both of you and keep us posted!
NarLyB
06-05-2007, 12:21 PM
Annie,
MS does show symtoms such as you're describing, but so do other neurological disorders. It could even be something as simple as a vertebral subluxation (vertebra that are out of alignment causing pressure on the spinal cord).
Try not to worry too much as stress and anxiety could worsen your symptoms. I know that is easier said than done (I was dx in 1993 and had a major meltdown), but just let your doctor know every symptom you have, when you have them, if they happen at any specific times while doing or not doing certain things, and how long they last.
Remember that there are many of us out here either with MS or are going through analysis to find out what is going on. There's always people here to support you and listen. Most have advice, encouraging words or just a joke to help ease the tension.
MS does show symtoms such as you're describing, but so do other neurological disorders. It could even be something as simple as a vertebral subluxation (vertebra that are out of alignment causing pressure on the spinal cord).
Try not to worry too much as stress and anxiety could worsen your symptoms. I know that is easier said than done (I was dx in 1993 and had a major meltdown), but just let your doctor know every symptom you have, when you have them, if they happen at any specific times while doing or not doing certain things, and how long they last.
Remember that there are many of us out here either with MS or are going through analysis to find out what is going on. There's always people here to support you and listen. Most have advice, encouraging words or just a joke to help ease the tension.
Bearygood
06-05-2007, 12:28 PM
Hey, NarLy, I want to ask you some other stuff about what you're doing on the alternative front as well but one question here, your neuro (and you) are okay with doing chiropractic?? I've been an advocate for a long time but quite honestly, have been very reluctant to go for a regular adjustment because of brain lesions. It's not really that I don't trust mine but I'm not positive that a bad adjustment can't cause lesions...it didn't really concern me until my neuro-opth says she's seen that happen. :confused:
murph15402
06-05-2007, 12:35 PM
Hey, NarLy, I want to ask you some other stuff about what you're doing on the alternative front as well but one question here, your neuro (and you) are okay with doing chiropractic?? I've been an advocate for a long time but quite honestly, have been very reluctant to go for a regular adjustment because of brain lesions. It's not really that I don't trust mine but I'm not positive that a bad adjustment can't cause lesions...it didn't really concern me until my neuro-opth says she's seen that happen. :confused:
Bearygood - that's a really interesting question that i hadn't even thought of! I didn't really talk to my neuro at all about the chiropractor. I actually started seeing my chiropractor 5 times/week while my symptoms were really flaring (my left arm was completely useless & most of the left/upper part of my body was numb). I thought i had pinched a nerve or something & needed to get it released. It finally subsided after a few weeks, but when it didn't go away completely I finally gave in & went to see my PCP. interesting.....
erin
Bearygood - that's a really interesting question that i hadn't even thought of! I didn't really talk to my neuro at all about the chiropractor. I actually started seeing my chiropractor 5 times/week while my symptoms were really flaring (my left arm was completely useless & most of the left/upper part of my body was numb). I thought i had pinched a nerve or something & needed to get it released. It finally subsided after a few weeks, but when it didn't go away completely I finally gave in & went to see my PCP. interesting.....
erin
NarLyB
06-05-2007, 12:41 PM
Hey Bearygood :wave:
My chiro is probably almost as knowledgable about MS as my neuro. She (the chiro) reads everything he (the neuro) does and whenever I have an MRI, she looks through the results also.
I have a lesion right at the base of my skull. It's actually been gradually getting smaller over the last year since it was discovered.
She has several MS patients and we've all done well. My opinion, the adjustments keep my nerves awake and working.
I had a flare up a few months ago where my entire right arm went numb and lost dexterity in my hand. My doctor told me that he thought the adjustments she did after the symptoms first appeared, probably kept it from getting worse. I, of course, kept waiting for it to go away and after 3 weeks gave in and went to my neuro.
I will never stop seeing my chiro! I did start Tysabri a couple of weeks ago and am hopeful that it will help to maintain me so that I can let my body (while being prodded with chiro and accup) heal itself.
I'm a firm believer that the body can heal itself, it's just that we have messed with the natural programming of our bodies by various things like processed foods, refined sugars (which I LOVE), and other environmental affects. So now, I am just trying to figure out how to reprogram.
My chiro is probably almost as knowledgable about MS as my neuro. She (the chiro) reads everything he (the neuro) does and whenever I have an MRI, she looks through the results also.
I have a lesion right at the base of my skull. It's actually been gradually getting smaller over the last year since it was discovered.
She has several MS patients and we've all done well. My opinion, the adjustments keep my nerves awake and working.
I had a flare up a few months ago where my entire right arm went numb and lost dexterity in my hand. My doctor told me that he thought the adjustments she did after the symptoms first appeared, probably kept it from getting worse. I, of course, kept waiting for it to go away and after 3 weeks gave in and went to my neuro.
I will never stop seeing my chiro! I did start Tysabri a couple of weeks ago and am hopeful that it will help to maintain me so that I can let my body (while being prodded with chiro and accup) heal itself.
I'm a firm believer that the body can heal itself, it's just that we have messed with the natural programming of our bodies by various things like processed foods, refined sugars (which I LOVE), and other environmental affects. So now, I am just trying to figure out how to reprogram.
misspeca27
06-05-2007, 12:47 PM
Her blood work is fine and has not had a MRI yet...
Keep my mom in your prayers,
Misspeca27
Keep my mom in your prayers,
Misspeca27
NarLyB
06-05-2007, 12:51 PM
Misspeca27
My blood work is always normal. My neuro never seems to be surprised by that.
I will definitely keep your mom in my prayers. :angel:
My blood work is always normal. My neuro never seems to be surprised by that.
I will definitely keep your mom in my prayers. :angel:
murph15402
06-05-2007, 04:16 PM
NarlyB - is your chiro in Boulder, by any chance, or up in Johnstown? Just curious. I work just outside of Boulder, but my chiro is further south, by my house.
but yeah, mine reads all my tests & stuff as well. He also has me taking a huge daily dose of fish oil to try to help maintain the myelin on my nerves. I've been taking it since my huge flareup in March w/ no more major problems, so that's something!
MissPeca27 - good luck to your mom!!!
erin
but yeah, mine reads all my tests & stuff as well. He also has me taking a huge daily dose of fish oil to try to help maintain the myelin on my nerves. I've been taking it since my huge flareup in March w/ no more major problems, so that's something!
MissPeca27 - good luck to your mom!!!
erin
NarLyB
06-06-2007, 10:36 AM
My chiro is in Loveland. A little far for you. She's absolutely wonderful though.
I'm going to try taking a fish oil again. I don't like fish and have had a hard time finding a capsule that doesn't make me burp up fish later on.
I've tried freezing them and taking them with food, but it still comes back at me.
Yuck!
I'm going to try taking a fish oil again. I don't like fish and have had a hard time finding a capsule that doesn't make me burp up fish later on.
I've tried freezing them and taking them with food, but it still comes back at me.
Yuck!
Bearygood
06-06-2007, 11:27 AM
Really? Mine doesn't at all -- I don't know if I can post the brand though.
Make sure that any fish oil warrants that it comes from mercury and lead-free waters, etc. Mine says it right on the black bottle. ;)
You guys are lucky re: your chiropractors. I forgot to talk to my neuro-opth about this again yesterday. I'm not sure what I'm going to do in that department but I need to go back to my acupuncturist for sure! I've been a delinquent for the last 2 weeks!
Make sure that any fish oil warrants that it comes from mercury and lead-free waters, etc. Mine says it right on the black bottle. ;)
You guys are lucky re: your chiropractors. I forgot to talk to my neuro-opth about this again yesterday. I'm not sure what I'm going to do in that department but I need to go back to my acupuncturist for sure! I've been a delinquent for the last 2 weeks!
murph15402
06-06-2007, 11:56 AM
Yeah, Loveland's a little far, though a friend just recommended an awesome neuro (an ms specialist) in Loveland that i may be giving a call. we'll see....
I get my fish oil from my chiro, actually. it's liquid, but has a lemon flavoring in it. doesn't taste bad, i just hate the texture!!! i do a shot of that followed by a shot of orange juice & then it's gone. not too bad. i keep telling my husband that it's VERY sad, and i know i'm getting old when i'm doing shots of fish oil instead of shots of something else!!! ha ha!
enjoy this nice weather before the storm rolls in! : )
I get my fish oil from my chiro, actually. it's liquid, but has a lemon flavoring in it. doesn't taste bad, i just hate the texture!!! i do a shot of that followed by a shot of orange juice & then it's gone. not too bad. i keep telling my husband that it's VERY sad, and i know i'm getting old when i'm doing shots of fish oil instead of shots of something else!!! ha ha!
enjoy this nice weather before the storm rolls in! : )
NarLyB
06-07-2007, 11:06 AM
The neuro in Loveland, Schmitt? If so, he's mine and I love him. He has a new partner also. I've never seen her and haven't heard anything about her. My neighbor has MS also, and she too goes to Schmitt.
I don't see any reason why you couldn't post the name of your fish oil. The proverbial 'they' created these boards for people like us so that we can share and support each other.
I don't see any reason why you couldn't post the name of your fish oil. The proverbial 'they' created these boards for people like us so that we can share and support each other.
Bearygood
06-07-2007, 12:15 PM
Just checked the board rules and you're right; it's okay! The brand of fish oil I've been using is Spectrum. It's caught from wild small fish and represents that on the label that there's nothing funky. :)
NarLyB
06-07-2007, 12:35 PM
Thank you! I'll have to give it a try. I know I definitely feel and function better when taking fish oils, I just hadn't found one that didn't make me gag.
Bearygood
06-07-2007, 12:49 PM
Well, nothing's affected me at all for sure but it never has with any brand so good luck! Here's another one that might be good for you although I don't know much about where they get the oil from. It's called Coromega. It's liquid, tastes like orange and is supposed to be good for people who have that problem. I got a free sample from the company after a neighbor told me her doctor recommended it and I bet you still can.
misspeca27
06-07-2007, 02:30 PM
My mom went to the doctors today. The doctor does not think its ms. She did blood samples for other things. Monday she has a CAT scan. At the end of the month she is going to see a neurologist.
Please keep her in your prayers,
Misspeca
Please keep her in your prayers,
Misspeca
MSNik
06-07-2007, 10:39 PM
Hi Mispeca. I hope your mom feels better soon. Since MS cannot be diagnosd by either a CT scan or Blood work, I really hope she gets to the neuro soon! Blood work is always good to have done just to show any deficiencies or abnomalities, and a CT scan will certainly show things like pinched nerves and even some abnomalities of the brain; however it will not really show detail or legions associated with MS. It might be enough to point towards a problem though. Dont be suprised if the first thing the Neuro does is send her for an MRI...
Will keep her in my prayers!
Nikki
Will keep her in my prayers!
Nikki
misspeca27
06-14-2007, 12:43 PM
Her CAT Scan was normal, that is a good sign because a man that works with her his mother has MS. And he said that there would have been areas that were not normal. At the end of the month see is still going to the neuro.
Thanks and keep on praying,
MIsspeca
Thanks and keep on praying,
MIsspeca