3love
06-05-2007, 11:44 AM
Hi, as some of you may already know, I am in the "trying to find out" stage and having many symptoms that are frighteneing me.
I was wondering if any of you have, the only way I could describe it, a "stupid feeling" like as if you are not as "sharp"? I guess I feel like this face :confused:
Also, sometimes it feels like my mind gets "antsy" like a rushed feeling, I don't know really how else to describe it. It feels like my mind gets anxious. Does that make sense?
Would love to hear back form you!:wave:
Julia
I was wondering if any of you have, the only way I could describe it, a "stupid feeling" like as if you are not as "sharp"? I guess I feel like this face :confused:
Also, sometimes it feels like my mind gets "antsy" like a rushed feeling, I don't know really how else to describe it. It feels like my mind gets anxious. Does that make sense?
Would love to hear back form you!:wave:
Julia
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mnewhall
06-05-2007, 11:49 AM
hi julia,
you just described me to a "t". i am in limbo land too. i do go through periods of the same feelings you are having. the last time it lasted about a month. i felt overwhelmed, anxious, and a hard time remembering. i consider myself pretty "clear minded" and a great multi-tasker :D , but when i started experiencing this, i couldn't even "map out" in my head directions to a place that I had been to before - it scared me and i started writing myself notes and printing out maps from the internet just to feel like i had a grasp on things. it did eventually subside and i'm ok.........for now. hang in there and stay here for great support and just to have people listen to you who understand. i'm glad i found this board, its been very helpful.
you will find many people on here dx'd and undx'd who struggle with this same feeling. wishing you well days, a clear mind, and answers to your questions.
blessings,
michelle:wave:
you just described me to a "t". i am in limbo land too. i do go through periods of the same feelings you are having. the last time it lasted about a month. i felt overwhelmed, anxious, and a hard time remembering. i consider myself pretty "clear minded" and a great multi-tasker :D , but when i started experiencing this, i couldn't even "map out" in my head directions to a place that I had been to before - it scared me and i started writing myself notes and printing out maps from the internet just to feel like i had a grasp on things. it did eventually subside and i'm ok.........for now. hang in there and stay here for great support and just to have people listen to you who understand. i'm glad i found this board, its been very helpful.
you will find many people on here dx'd and undx'd who struggle with this same feeling. wishing you well days, a clear mind, and answers to your questions.
blessings,
michelle:wave:
3love
06-05-2007, 11:49 AM
ooops! I forgot to ask what kind of headaches do you get? Does it feel like pressure, as if an elephant is sitting on your head?
Thanks again!
J
Thanks again!
J
3love
06-05-2007, 11:53 AM
Michelle- That's exactly why my vehicle MUST have navigation! I find even with that I sometimes have trouble.
WOW! did you reply fast or what? :D
Have you seen a neuro yet?
Be well,
J
WOW! did you reply fast or what? :D
Have you seen a neuro yet?
Be well,
J
mnewhall
06-05-2007, 11:56 AM
my headaches usually feel either like someone has stuck a 2 inch diameter pole right thru one temple to the other. the migraines i get usually start with a spasm on the leftside of the back of my neck that goes up and over my head thru the left eye and the left side of my nose. usually an ice pack on my neck, 2 Flexeril, and 2 excedrin and i'm good the next morning.
hope this helps.
yes, i found a good neuro who has really been the first doc to really be concerned about my sx's and willing to go the extra mile to try and get to the root of them and what's causing it.
I had been sent to him by my rheumatologist to conduct a nerve test (EMG) and it was negative and he told me to come see him if i ever wanted to investigate my sx's further. i took him up on that 2 years later last Oct. Glad I did.
michelle:wave:
hope this helps.
yes, i found a good neuro who has really been the first doc to really be concerned about my sx's and willing to go the extra mile to try and get to the root of them and what's causing it.
I had been sent to him by my rheumatologist to conduct a nerve test (EMG) and it was negative and he told me to come see him if i ever wanted to investigate my sx's further. i took him up on that 2 years later last Oct. Glad I did.
michelle:wave:
mnewhall
06-05-2007, 11:59 AM
julia,
see my post above about the neuro.
see my post above about the neuro.
NarLyB
06-05-2007, 12:10 PM
Reading this thread has made me feel much better about myself. I was beginning to think I was going crazy!
I'll have periods (usually just days) where I just can't focus, my mind jumps all over the place and I can't come up with words. The word thing turns into a trivia game with friends and co-workers. I can tell them the first letter and some description of what it means, but the actually word just won't come out!
I used to have headaches when I'd get scatter-brained (more so than usual, I am blonde). I don't get them anymore though. I see a chiropractor somewhat regularly and she has figured out how to adjust my neck and shoulders to keep them away, or get rid of them quickly if the do start.
I prefer to not take any more drugs than I absolutely have to. My chiro, acupuncturist and naturopath are who I turn to for all problems (always keeping my neuro informed, of course). Luckily, my neuro is open to alternative treatments.
I'll have periods (usually just days) where I just can't focus, my mind jumps all over the place and I can't come up with words. The word thing turns into a trivia game with friends and co-workers. I can tell them the first letter and some description of what it means, but the actually word just won't come out!
I used to have headaches when I'd get scatter-brained (more so than usual, I am blonde). I don't get them anymore though. I see a chiropractor somewhat regularly and she has figured out how to adjust my neck and shoulders to keep them away, or get rid of them quickly if the do start.
I prefer to not take any more drugs than I absolutely have to. My chiro, acupuncturist and naturopath are who I turn to for all problems (always keeping my neuro informed, of course). Luckily, my neuro is open to alternative treatments.
3love
06-05-2007, 02:35 PM
narly- do you have ms?
parisiancat
06-05-2007, 06:04 PM
3Love, you are definitely not alone. I just had the worst brain-fog day since dx. I just could not think straight.It took three times as long as normal to do everything. My memory was in tatters. I tried to tell my colleagues several stories about my weekend and forgot the entire point of the story half way through. My speech was thick. My balance was off. I must have seemed drunk!
Today was extreme but I think brain fog is fairly common in ms. I have more clear than foggy days but on an average bad day everything just feels fuzzy and a bit more of an effort.
I don't normally get headaches, but strangely, today I had a piercing headache. Do your headaches coincide with your foggy days?
Cat
Today was extreme but I think brain fog is fairly common in ms. I have more clear than foggy days but on an average bad day everything just feels fuzzy and a bit more of an effort.
I don't normally get headaches, but strangely, today I had a piercing headache. Do your headaches coincide with your foggy days?
Cat
3love
06-05-2007, 08:03 PM
Hey Cat, to answer your question, no I can have brain fog even without the headaches. Were you diagnosed with ms? As for myself, I'm still searching.:confused:
Julia
Julia
LupieOne
06-05-2007, 09:45 PM
Limbo here too and yes, I am so foggy I need a lighthouse in my head to show me the way most days! lol
I already have Lupus brain fog and Fibro-fog...but this is all so much worse and frustrating!! My Lupus is actually 'quiet' right now anyways and rheumy says this-along with all my other current problems, is way too much to simply be from Fibro-which is what my NOW EX Neuro told me after a 3 day hospital stay in April. Typical attitude of many docs...'don't know what's wrong...let's blame the Lupus or Fibro!!' I've actually told an ENT a few years, back who i went to for an odd/apparantly rare and unknown ear disorder I've had for several years now in my left ear(its a beat that echos in my ear with every syllable I say-and also to music and other people talking sometimes too-very maddening to say the least) that I didn't want to hear 'Oh it must be from your Lupus'!! lol He did not like that and gave me copies of my records and told me he couldn't help me then!! My Rheumy was NOT happy with him and she said I must have stepped on his ego!! lol
Not EVERYTHING that happens to me for the rest of my life is going to be from Lupus or Fibro or any of my many other disorders! That's their 'cop-out'. them basically saying 'well, hell, I'm stumped!' lmao
But yeah, I can totally relate here and can no longer multi-task with ease like I use to.
Hopefully, we will all have our answers soon.
*hugs*
cathy
I already have Lupus brain fog and Fibro-fog...but this is all so much worse and frustrating!! My Lupus is actually 'quiet' right now anyways and rheumy says this-along with all my other current problems, is way too much to simply be from Fibro-which is what my NOW EX Neuro told me after a 3 day hospital stay in April. Typical attitude of many docs...'don't know what's wrong...let's blame the Lupus or Fibro!!' I've actually told an ENT a few years, back who i went to for an odd/apparantly rare and unknown ear disorder I've had for several years now in my left ear(its a beat that echos in my ear with every syllable I say-and also to music and other people talking sometimes too-very maddening to say the least) that I didn't want to hear 'Oh it must be from your Lupus'!! lol He did not like that and gave me copies of my records and told me he couldn't help me then!! My Rheumy was NOT happy with him and she said I must have stepped on his ego!! lol
Not EVERYTHING that happens to me for the rest of my life is going to be from Lupus or Fibro or any of my many other disorders! That's their 'cop-out'. them basically saying 'well, hell, I'm stumped!' lmao
But yeah, I can totally relate here and can no longer multi-task with ease like I use to.
Hopefully, we will all have our answers soon.
*hugs*
cathy
3love
06-06-2007, 12:28 AM
Hey Lupie, when you say you ear beats to sound, is it like a crackling noise? My ear crackles to loud noises- like when I'm loading my dishwasher, or when my kids are loud or when I'm yelling at my kids for being so loud :D
Hmmmm.....
Julia
Hmmmm.....
Julia
NarLyB
06-06-2007, 10:44 AM
3love
Yes I do have MS. Dx in 1993.
Yes I do have MS. Dx in 1993.
LupieOne
06-06-2007, 11:35 AM
Hey Lupie, when you say you ear beats to sound, is it like a crackling noise? My ear crackles to loud noises- like when I'm loading my dishwasher, or when my kids are loud or when I'm yelling at my kids for being so loud :D
Hmmmm.....
Julia
Julia,
No, mine is just that...a beat thatechos to every syllable I speak...like if was saying "Hello...how are you?" In my left ear I hear in a slight delay..."bum,bum...bum bum bum"
I have recently found a way to finally make people understand what it sounds like in my ear/head...take your left hand, place the palm over your left ear and with the index finger of you right hand, tap on the back of your left hand that's over your ear. THAT'S what it sounds like! lol All tests for that prob have so far been inconclusive. Docs say I need to go to Manhattan Eye and Ear Institute because its apparantly something they haven't ever heard of and is probably rare.
*hugs*
Cathy
Hmmmm.....
Julia
Julia,
No, mine is just that...a beat thatechos to every syllable I speak...like if was saying "Hello...how are you?" In my left ear I hear in a slight delay..."bum,bum...bum bum bum"
I have recently found a way to finally make people understand what it sounds like in my ear/head...take your left hand, place the palm over your left ear and with the index finger of you right hand, tap on the back of your left hand that's over your ear. THAT'S what it sounds like! lol All tests for that prob have so far been inconclusive. Docs say I need to go to Manhattan Eye and Ear Institute because its apparantly something they haven't ever heard of and is probably rare.
*hugs*
Cathy
mnewhall
06-06-2007, 02:12 PM
Cathy,
I have experienced that same sound but its not all the time and usually comes on just like if i had a muscle start twitching. mine sounds just like that but it's fast and its usually because i am having sensitivity to sound at the very moment. and just as quick as it comes, it goes away. it's like my ear drum is twitching.
michelle
I have experienced that same sound but its not all the time and usually comes on just like if i had a muscle start twitching. mine sounds just like that but it's fast and its usually because i am having sensitivity to sound at the very moment. and just as quick as it comes, it goes away. it's like my ear drum is twitching.
michelle
3love
06-06-2007, 03:22 PM
It's also in my left ear, but for me, it's a crackling noise. I also have this constant high pitched "head noise" that sounds like this- eeeee.... I only hear it when it is quite. It feels like it is coming from inside of my head! :eek:
Be well,
J
Be well,
J