Pearlscale
06-05-2007, 02:09 PM
Just to update and let you know. I have been reading and learning. My possible MS has went to probable MS. Neuro wasn't happy with the way my left eye reacted and wants to do test looking for present or past optic neuritis. If she finds any, then it turns to positive MS. She is talking injections. But it is my choice. Probably had it for 20 yrs she said. She saw 7 lesions and the Dr reading the MRI said 9+. And she said the one that read it does know what he is doing. (and probably did see some she missed)
So many questions. Thinking I'm in my relapsing stage right now. Have been a few weeks, if I am right. But half the battle is in knowing. I'm still the same person I was before just have alot of decisions to make now. I am staying positive, my strength comes from above and my family. (and now probably alot from you all)
Just wanted to introduce myself. A few of you I have met.
I'm Marsha.
Prayers for each of you.
Marsha
So many questions. Thinking I'm in my relapsing stage right now. Have been a few weeks, if I am right. But half the battle is in knowing. I'm still the same person I was before just have alot of decisions to make now. I am staying positive, my strength comes from above and my family. (and now probably alot from you all)
Just wanted to introduce myself. A few of you I have met.
I'm Marsha.
Prayers for each of you.
Marsha
Sponsor
duttin
06-05-2007, 02:46 PM
Marsha,
Your neuro seems to be on the right track.
MS is livable and managable.But nobody wants to hear those words,but better to know than to not know.
You will go through a greiving process as we all have but it sounds like you have a great support system and we are all here for you.
You are absolutely right about the injections being your decision.Some here have approached their ms through a natural approach and others like myself have chosen the injections.
The disease modifying meds are to slow down the progression of the disease.
Your neuro seems to be on the right track.
MS is livable and managable.But nobody wants to hear those words,but better to know than to not know.
You will go through a greiving process as we all have but it sounds like you have a great support system and we are all here for you.
You are absolutely right about the injections being your decision.Some here have approached their ms through a natural approach and others like myself have chosen the injections.
The disease modifying meds are to slow down the progression of the disease.
KTMorra
06-05-2007, 03:44 PM
Hi Marsha
I'm Katie, Very nice to meet you, unfortunately its under these circumstances.
I know and understand very well what your going through, I was there this February. Its kind of like an emotional roller coaster right now. You do seem to have a great attitude with all of this and thats going to help you out a lot. Has your Neuro given you the drug choices yet or is he waiting for the final results? I remember that day very well, before I had to make that decision I still held out some hope that this was just a fluky thing that was going to go away. It hit me hard even though I knew it was coming.
You are absolutely correct in that you are still the same person you were before this. There is life after MS! This group is awesome as I'm sure you know, and anytime you need to vent or have questions please don't hesitate to ask.
Take care and good luck to you
Kt:wave:
I'm Katie, Very nice to meet you, unfortunately its under these circumstances.
I know and understand very well what your going through, I was there this February. Its kind of like an emotional roller coaster right now. You do seem to have a great attitude with all of this and thats going to help you out a lot. Has your Neuro given you the drug choices yet or is he waiting for the final results? I remember that day very well, before I had to make that decision I still held out some hope that this was just a fluky thing that was going to go away. It hit me hard even though I knew it was coming.
You are absolutely correct in that you are still the same person you were before this. There is life after MS! This group is awesome as I'm sure you know, and anytime you need to vent or have questions please don't hesitate to ask.
Take care and good luck to you
Kt:wave:
Bearygood
06-05-2007, 07:33 PM
But half the battle is in knowing.
ABSOLUTELY!
Do you know what test will they do do see if you have or have had Optic Neurits? Curious to see if it's an MRI of the orbits to check for a lesion or something else...
There are plenty of people on here who can offer great advice about which drug to go with.
Good luck, Marsha!
ABSOLUTELY!
Do you know what test will they do do see if you have or have had Optic Neurits? Curious to see if it's an MRI of the orbits to check for a lesion or something else...
There are plenty of people on here who can offer great advice about which drug to go with.
Good luck, Marsha!
Pearlscale
06-06-2007, 09:15 AM
Thanks Kt, Nuffs, and Bearygood for the welcome.
I will be following the injection threads very carefully. I want to see what each of you are taking, how long, and how if has affected you both with side effects and slowed the progression.
The tests I will be having done is the VER and SEP. My Dr said the VER will show if I have ever had optic neuritis. And the SEP will show how the muscles on my left side have been affected. I go June 25 for these tests. I will know the results immediately and will see the Dr afterwards.
She told me that if I had presented with all my symptoms 10 yrs ago, I would have been diagnosed MS on the spot but now they are more causious before recommended and starting the injections.
Is anyone holding out for the pill form that is on the horizon rather than starting injections. I know this is a questions for the Dr but I have to wait another couple weeks before I see her again. Also, if you start the injections can you change to the pill form when it becomes available?
Also, has anyone ever had what I think is 5th nerve involvement. Major pain in the face, jaw, ear, teeth, down the neck. This and the horrible shin and muscle tightness in my legs are a problem for me right now.
And I cannot stand to wear my seatbelt when I drive. The chest strap causes me pain. I end up tucking it under my arm. Is this the MS Hug I hear about?
Thanks and prayers.
Marsha
I will be following the injection threads very carefully. I want to see what each of you are taking, how long, and how if has affected you both with side effects and slowed the progression.
The tests I will be having done is the VER and SEP. My Dr said the VER will show if I have ever had optic neuritis. And the SEP will show how the muscles on my left side have been affected. I go June 25 for these tests. I will know the results immediately and will see the Dr afterwards.
She told me that if I had presented with all my symptoms 10 yrs ago, I would have been diagnosed MS on the spot but now they are more causious before recommended and starting the injections.
Is anyone holding out for the pill form that is on the horizon rather than starting injections. I know this is a questions for the Dr but I have to wait another couple weeks before I see her again. Also, if you start the injections can you change to the pill form when it becomes available?
Also, has anyone ever had what I think is 5th nerve involvement. Major pain in the face, jaw, ear, teeth, down the neck. This and the horrible shin and muscle tightness in my legs are a problem for me right now.
And I cannot stand to wear my seatbelt when I drive. The chest strap causes me pain. I end up tucking it under my arm. Is this the MS Hug I hear about?
Thanks and prayers.
Marsha
Bearygood
06-06-2007, 11:23 AM
Marsha, it sounds like your doctor is being very thorough -- and that is definitely something to be grateful for. Sounds like you're in good hands! :)
Re: the pill form; good question and I'm not sure what the answer is for myself. I'm going to continue being monitored and depending on what happens or hopefully DOESN'T happen, I may have to re-evaluate even before that's available. However, you're wanting to tackle this now so you shouldn't wait -- it will be a while before anything becomes readily available.
Re: the pill form; good question and I'm not sure what the answer is for myself. I'm going to continue being monitored and depending on what happens or hopefully DOESN'T happen, I may have to re-evaluate even before that's available. However, you're wanting to tackle this now so you shouldn't wait -- it will be a while before anything becomes readily available.