Hi there!

Just checking in to see how you are feeling today. My Mom had chemo and she had the same symptoms as you. She also had red pee and a metalic taste in her mouth.
You are a strong puppie and will be fine! I love your outlook. You keep it up or Ails will kick your b---.
Have a good day and sing a song.

Hugs,

Deb

Hi DEB,
I'm so happy someone got back to me today.
Sitting here at home & occasionally checking e-mails, it gets quite boring..
Also--taking med's out the wah-zoo... It can make you pretty cranky.

I know from all I can tell, that I'm following "protocol." Is your mom well, now? Did she have lymphoma? I hope she's the picture-of-health!

I'm taking a break from singing, as most of my lymph nodes are from the chest, up. I've needed this break for years---go figure---what a way to take a vacation, huh? I suppose my vocal chords are getting a much needed rest. I'm not exactly a "coffee house" singer---I tend to "belt" out a song once in awhile....Anyway, I'm actually enjoying the break---but, like I said, I would've enjoyed it much better on a sunny beach, overlooking the ocean. That day will come, right??
:)
I'm some better today---still have the crampy feeling in my belly.. .
and my mouth is fighting off some herpes-type sores. But...my outlook is much better. Thanks for asking.

I know--I have to be strong, or I'll hear it from Ails...:) :) :)

You'd better believe it!! Wow, am I getting a reputation for being a scary headmistress type?:dizzy:

Sorry on so late - hectic day at work followed by studygroup (which was thanfully cut short as normally goes on til 10)

Told you you'd start to feel better

I viewed it as getting the crap kicked out of me every couple of weeks, taking 2/3 days to shake it off, enjoy myself for 10 days then go again!!

Ails xx

Hey,

Just thinking, why not have chemo and stay at the beach! Maybe there should be a facility that people can go to on the beach.
Did you have really bad fatigue before you were diagnosed? I think you did but not sure. Just wondering the whole story. My system is down at work so I would like to know what happened with you.

Deb:cool:

HEADmistress, is right, Ails !!!!
We can always count on you to tell us to "pull ourselves up by the bootstraps....or else!"
Deb...I'm not sure if you're asking me or Ails about fatigue...but, I had fatigue symptoms from 2 - 3 years ago very badly...then subsided. All seemed somewhat "ok," until I had a collarbone node grow very quickly in April---then all hell broke loose. Putting the pieces together has been easy, now... Like we've all said, "hind sight is 20/20."
Love you guys :)

:wave: Hi singer,

Hows you? I have missed our little chats!!

I hope you are feeling abit better, are you getting used to everything now?, has it had a chance to sink in?

I'm still unsure of what's going on:confused:

I just wanted you to know I am thinking of you, and I love you xxx

Susie,
How sweet of you. I've grown to love all you wonderful people, too (I have a few favorites, of course, you included)...
I'm so sorry of your plight. I was following some of what you've posted, since you've been back from the hospital---and, my goodness.... they seem to be still "jerking" you around a bit. Are you scheduled for more tests? Did they prescribe anything for you for pain? And...most, important, are they still seeking answers for you?
I, myself, had a good crying spree last night. I started feeling "sorry" for my situation, even though I've accepted it, and am trying to get well. Treatment is a bit rough--rougher than I expected, actually---although I'm still anxious to beat it! I didn't know I'd go through so many symptoms. The one that "got" me last night, was the debilitating flu-like incapacitating night I had---with a low-grade fever. It only lasted about 4-6 hours, but I thought I was through with it, for the next few days. I still can't seem to establish a pattern. I'm keeping a journal, now, but, from what I understand, there really may be none.
I guess it's a series of ups & downs, like everyone says....but, I just started missing my job, my family---helping out my elderly parents, going shopping--- I know I'll be able to eventually....but, I guess right now is an adjustment period :confused: ??? I was o.k. at the Oncologist, ok when we (my hubby & I) drove around afterward--even ate McDonald's food---then, proceeded to get feverish & sickly all night. I'm sorry to complain. No one said this is going to be easy---and as I always say, I KNOW there's many suffering, ill people out there so much worse off than me.---I just guess we all need to feel sorry once in awhile, and last night seemed to be "that" night for me. A good cry is always good, no?
I hope you're feeling, at least some better----are you?
Your's was the first post I've read since I woke---I'm so glad when you're back on the forum...You say such kind, encouraging things & everyone on here loves you.
XO S. (So far, so good for me ...today....)

:) Don't be sad, it's so normal to feel at a loss, especially everything your being thrown at the moment, your bound to feel really rough, and it's natural to feel a loss for the life you onced lived, you will get it back.

I miss going out, and being able to go to the supermarket, picking the kids up from school, the normal things. It's hard especially when you take them for granted.

I am sorry you are low, but it's healthy to cry and at least your normal:confused:

Thank you for the nice things you said about me, I feel the same about you too.

I have had my morphine doubled and i am on diazapan (my memory is getting worse for spelling)

My consultant is being fired after I have my blood results back.

Any way, love and hugs to you, I hope your feeling better Susie xx

Fairy Susie,
I certainly hope they can find out what's up with your new blood work.
I keep thinking back, of ALL the tests I had, and how they would have NEVER found what I have, without my PET scan. Do they offer those in England?
It's where they inject you with glucose/hint of radiation (?I think) and you lie very quiet, while they watch your system react. In my case, they found 2 more lymph nodes (in my chest) both size 1 cm. , which put me in stage 2A. Until then, had I NOT had that test, they would've probably assumed I just had the 2 collarbone nodes, and just done radiation, without chemo. That's what I thought, initially, until all these extensive tests. They are SO worth it. My Oncologist told my husband yesterday, that he (my husband)may have "saved" my life, by finding my lymph node early. I guess I owe my hubby one, huh? :)
I pray :angel: you get some answers soon. You have people all over the globe praying for you. There's so many people pulling for you.
XO S.

:angel: and you too.

i had a Ct scan which showed my spleen to be enlarged but that was last yr, since nothing has been done.

No one is bothered about the nodes in the collor bone region.

I'm going to try not to think about it, it's obvious there's nothing wrong:confused:

lots of love keep up your spirits, and be grateful for the loving man you married i'm sure he isxx

Very sweet of you.
Enjoy the rest of your day.
XO

how are you singer and ali my friends of cyber-space?

oh what a beautiful morning
oh what a beautiful day
I'm going to sack my consultant
everything's going my way

(not quite)!!

I'm in a better mood, I have decided to join a gym and get physical!! (lol)

More like buy a coffee and watch the professionals!!

Have a great day,

love and hugs Susie xx

Fair Susie,
Good for you! I wish I were at that point in my life...the working out part. It's coming, but not soon enough!
I'm still having stomach problems, as in indigestion/constipation. I can't seem to find the right combo of med's & diet to keep somewhat regular. The last few days have been terrible with cramping & burping. So, I'm down to trying to figure out what to eat. I'm getting afraid of food. I should probably call my cancer center & find out what's what. In the meantime, I think I need to give up my beloved "coffee" that you mentioned & anything that may cause indigestion--fried foods, spicy foods, etc...
I usually wake up, and coffee is the first thing made. There's no doubt about it...my one post "chemo sucks" --I'm still standing by that. It's just very difficult to figure out how to live normally. I'm SO hoping my body will accept this better, the further I get into treatment.
I stayed in bed longer than normal today---I'd rather sleep, if I could.
I need to resolve this---so, dear Susie, you're not alone. As helpful as doctors/nurses & the medical staff may be (not in your case, though)---sometimes, I guess you just have to figure stuff out on your own.
Hopefully, as the day goes on, my attitude will become better.
I know "attitude" means a lot, now, doesn't it? :)

Try not to be down, you have so much going for you, this is just a blip in your life right now, it'll soon change before you know it you'll be like pinkmada telling us how great she's been feeling, she was like you and remained strong just as you are doing now!!

Can you take senecot (for relief of constipation) or anything like that?

Perhaps try sticking to soups and easy digestible foods like jelly yumm :D

Don't become afraid of food be strong and fight the inner demon :blob_fire

Get as much sleep and rest as you can and concentrate on the good things in life xx

lots of love and well wishes fairy Susie xx

Hi Singer

I know it's tough but do try to cheer up - attitude will get you a long way

Susie - how wierd "blip" is the EXACT word me, my friends and family all use to describe 2005 for me!!

Ails xx

Hey Singer ;) ,

I think you are a super strong woman and are handling this "blip" very well so far. You get down but you bring yourself right out of it. Remember, you are human and are therefore entitled to feeling down at times. Just keep up what you are doing are you will be fine.
Are you watching any good movies? My husband jokes with me cause when I go to rent a movie it never fails that I get a stupid one. Any movie suggestions would be welcomed!
You have a good day and I hope that indigestion goes away.

Hugs to you!

Deb

:wave: Hi Ladies

Well Ails they say great minds think a like!!!!!!

Singer keep it cool ;) That's another of my 10yr olds phrases!

Debs have you seen Bridget Jones diary, If you have then you know I was talking about apple catchers the other week girls, well you know she wears big knickers, that's me!! especially when she slides down that firemans pole, whole lot of bottom in your face, I need to work on it:dizzy: It's got to go:eek:

Ails I am missing your humor come on girl let it ripp :)

love you all xx

:wave: Singer, you know I love you and all,

and you know I am a little bit on the slow side at the moment :dizzy: I am having trouble keeping up with all your threads, and trying to remember which ones I have replied to:confused:

It's not your fault that you are so popular :) I just need help that's all :bouncing: I'm all over the place at the moment so just bare with me, as i am trying to follow all of your posts and remain a friend for you to lean on.

All the best for now, I'll try to keep up tomorrow, another day and all :wave: xx

Susie,
You're just so sweet.
I wish we were all in closer proximity, because we'd (all you super-lovely-forum-ladies) have one he** of a "girl's night out," wouldn't we?????
Singer :)

I know---don't worry about answering the posts in any order---
Just as long as we hear from one another, we can figure it out.
That's what's important. :)

:bouncing: I'll drink to that my friend!!:bouncing: