OliverBocca
06-06-2007, 11:49 PM
I was just wondering... about a month ago, I started getting tingling down my spine and into my butt and down both legs when I bend my head down and my chin goes down towards my chest.
It's a rather sudden, not painful tingling (no numbness involved that I can discern) that comes and goes as I elevate or lower my chin to or away from my chest.
I have a Neurologist appt. next week, so I can ask him, but you all know what a comfort it is to be able to ask people things on this board because "someone, somewhere" might have a story to share.
:angel:
So Cal Holly
It's a rather sudden, not painful tingling (no numbness involved that I can discern) that comes and goes as I elevate or lower my chin to or away from my chest.
I have a Neurologist appt. next week, so I can ask him, but you all know what a comfort it is to be able to ask people things on this board because "someone, somewhere" might have a story to share.
:angel:
So Cal Holly
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julieleaps
06-07-2007, 12:24 AM
It's called L'Hermitte's phenomenon. I am experiencing this post-neck surgery. Haven't figured out the exact cause yet - seeing both my NS and a neurologist. Will let you know when I find something out. You can do a search on the 'net for more info...
StephanieAnne
06-07-2007, 01:15 AM
I have it too, right now :dizzy: and I have had it for about 6 years and I actually didn't tell my neuro about it until I had been dx'd I always wondered what it was and now I know mine is worse when stress :eek: is involved it goes right down my back and shoulders it is always my reminder that I have MS
Make sure you tell your neuro about it, th at my help to get a dx
best of luck ;)
Make sure you tell your neuro about it, th at my help to get a dx
best of luck ;)
lilc
06-07-2007, 07:13 AM
So that you can tell your neuro, it is pronounced "lair-meets". It is not uncommon in MS, and MS is most often the cause. It is the sx that made me see a doctor - it was so bad for me for a while that I couldn't even put a key in the lock on my door without both legs going numb. That was 2 years ago. I still feel it very slightly, but it doesn't bother me any longer.
OliverBocca
06-07-2007, 09:19 PM
Thanks everyone for the input...It's helpful and comforting at the same time. (in that strange what the heck is wrong with me way that MS brings us all the time...)
ShelleyTab
06-07-2007, 10:10 PM
:wave: hi out there!
Actually, I'm really glad this was brought up. I have been having this since my latest relapse (update - it is now getting better - :angel: ) and it hasn't been going away any since my relapse. I know it's common with MS, but I was hoping it would go away with the relapse. My MS specialist told me chances are it would stay with me in some degree, but my neuro told me it would likely go away with the relapse. Obviously the specialist is more likely correct. Anyway, i'm glad that i'm not the only one (but sorry you guys also have to deal with it!). Anyone know of anything to help with it? It's not painful, but sometimes it makes taking my shot in the stomach or leg very difficult (which are my two preferred places to take it) because I tend to shake when it happens. Any advice would be welcome!
Thanks,
Shell
Actually, I'm really glad this was brought up. I have been having this since my latest relapse (update - it is now getting better - :angel: ) and it hasn't been going away any since my relapse. I know it's common with MS, but I was hoping it would go away with the relapse. My MS specialist told me chances are it would stay with me in some degree, but my neuro told me it would likely go away with the relapse. Obviously the specialist is more likely correct. Anyway, i'm glad that i'm not the only one (but sorry you guys also have to deal with it!). Anyone know of anything to help with it? It's not painful, but sometimes it makes taking my shot in the stomach or leg very difficult (which are my two preferred places to take it) because I tend to shake when it happens. Any advice would be welcome!
Thanks,
Shell
lilc
06-08-2007, 12:10 AM
Shell, for me it was SO bad for 6 months, I resigned myself to just having to live with it permanently. Then one day I realized it was virtually gone. Actually, it may have gone away completely for a while, or it may be I just didn't notice it. These days I don't notice it unless I conciously check for it.
As for advice on dealing with it, this might make me sound insane, but it just doesn't bother me anymore to feel the numbness/tingling, at low levels. I do take neurontin (a low dose, only 300 mg every night), but if I miss a dose the numbness/tingling/L'Hermitte's (and pain) DOES get to be too much. Makes me believe I might be able to get rid of it altogether if I upped my dosage, but I'm not willing to do that yet.
As for advice on dealing with it, this might make me sound insane, but it just doesn't bother me anymore to feel the numbness/tingling, at low levels. I do take neurontin (a low dose, only 300 mg every night), but if I miss a dose the numbness/tingling/L'Hermitte's (and pain) DOES get to be too much. Makes me believe I might be able to get rid of it altogether if I upped my dosage, but I'm not willing to do that yet.