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comeandrelax
06-07-2007, 02:37 AM
i was reading through your posts and you mention that most people with one sided problems get better within 6 to 8 weeks and people with both sided problems take longer. does that mean that if you have been having problems for over a year that you probably have a both sided problem?

i was tested at the end of 2005 and they found a weakness in my right inner ear with the caloric test and the they did a dix hallpike test and found it was in fact my right inner ear causing the trouble. after 20 months im much better but still have days and moments throughout the day where im off and feel bad.

i was told by my balance doctor that some people take a few months and some people can last up to 2 years or alittle more.

month after month i get better and better but its taking a long time. after reading some of your posts i became worried that it may be taking too long. im a 22 year old otherwise very healthly male. my one doc told me a few weeks and his assistant told me more realisticly probabaly much longer

dizzyandsad
06-07-2007, 07:31 AM
I think he means they get better in 6 to 8 weeks of PT?? I dont know. It has been 3 months for me and I have no idea if i have a bi or unilateral.

dizzyandsad
06-07-2007, 07:46 AM
month after month i get better and better but its taking a long time. after reading some of your posts i became worried that it may be taking too long. im a 22 year old otherwise very healthly male. my one doc told me a few weeks and his assistant told me more realisticly probabaly much longer



I hear you I thought would only take a few weeks as I am only 25 but not looking that way...

balancechicago
06-20-2007, 03:04 AM
i was reading through your posts and you mention that most people with one sided problems get better within 6 to 8 weeks and people with both sided problems take longer. does that mean that if you have been having problems for over a year that you probably have a both sided problem?

i was tested at the end of 2005 and they found a weakness in my right inner ear with the caloric test and the they did a dix hallpike test and found it was in fact my right inner ear causing the trouble. after 20 months im much better but still have days and moments throughout the day where im off and feel bad.

i was told by my balance doctor that some people take a few months and some people can last up to 2 years or alittle more.

month after month i get better and better but its taking a long time. after reading some of your posts i became worried that it may be taking too long. im a 22 year old otherwise very healthly male. my one doc told me a few weeks and his assistant told me more realisticly probabaly much longer

Hello, sorry for not responding sooner - I did not see the post.
Once the correct treatment starts, physical therapy with a qualified physical therapist, one sided problems get better in 6 - 8 weeks and bilateral problems take a bit longer. If you had a positive Dix Hallpike, did they clear your BPPV?
Did they give you any exercises or send you to PT?

comeandrelax
06-20-2007, 04:53 AM
Hello, sorry for not responding sooner - I did not see the post.
Once the correct treatment starts, physical therapy with a qualified physical therapist, one sided problems get better in 6 - 8 weeks and bilateral problems take a bit longer. If you had a positive Dix Hallpike, did they clear your BPPV?
Did they give you any exercises or send you to PT?



well when they did the dix hallpike i had horizontal nystagmas going to the left side which i was told just means the problem is coming from my right inner ear. from what i understand with bppv the nystagmas is usually vertical. anyways i was never told i had bppv but rather VN.

comeandrelax
06-20-2007, 05:03 AM
Hello, sorry for not responding sooner - I did not see the post.
Once the correct treatment starts, physical therapy with a qualified physical therapist, one sided problems get better in 6 - 8 weeks and bilateral problems take a bit longer. If you had a positive Dix Hallpike, did they clear your BPPV?
Did they give you any exercises or send you to PT?


are you talking about bppv or with VN and Labs?

balancechicago
06-20-2007, 11:25 PM
Come and Relax,
A few things...
BPPV can be resolved in 1 - 3 visits with the appropriate canalith repositioning maneuver.
VN or Labs takes the 6 - 8 weeks for unilateral and maybe longer for bilateral weakness with the appropriate treatment.

Back to your test results for a second, a horizontal nystagmus could be indicative of a horizontal/lateral canal blockage. A blockage in the anterior or posterior canal would result in a torsional nystagmus (your eye would literally turn like a clock.) With that said, your test results are only as good as your person doing the testing.

There is much confusion and much more misdiagnoses in the world about dizziness. Here are some ways to tell if the difference between BPPV and "VN or labs." Please keep in mind these are some pretty broad generalizations that you may not fit perfectly into either catagory, because you have a bit of both. The severity of dysfunction of VN or labs will impact the serverity of your symptoms. BPPV, it is there or it is not.
Hope this helps...
BPPV: every time you get yourself into a particular position or turn in a particular direction you get super dizzy. World spinning, nauseous, possibly vomiting lasting for a few minutes and then feeling "off," exhausted, just plain :p for the next few hours or so. You find yourself avoiding that position like the plague. You sleep on propped up on a bunch of pillows or in a chair. You spend an extraordinary amount of time and energy avoiding turning in the direction that gets you dizzy (doing 360 degree turns in the opposite direction, moving en block, etc.)
VN or labs: You just feel not right. Your head is somewhat "swimmy," you are "foggy" you have difficulty concentrating or reading, you don't like crowds, busy environments, bright lights, etc. You are off balance and are concerned that people will think you are intoxicated. You avoid going out into public and end up feeling pretty isolated. No one can really understand what you are going through and sometimes people do not believe that you are suffering as much as you actually are suffering, because they can not "see" your problem. They understand a broken arm and how that can bring you down, but do not understand dizziness. If this goes on long enough, you can end up pretty ticked off at the world, sad and feeling helpless.

As you can see from these boards you are not alone. I, also, hope that you know that just because many health care practitioners just don't get it - there are many out there that do.

All the best,
M

Lauren29
06-21-2007, 12:47 AM
Balance- That is a spot on description of VN and def what I have over the BPPV. I wish that I could find one of these health care professionals that understood what I was going through. So glad that you are on this board! :)

comeandrelax
06-21-2007, 01:45 AM
Come and Relax,
A few things...
BPPV can be resolved in 1 - 3 visits with the appropriate canalith repositioning maneuver.
VN or Labs takes the 6 - 8 weeks for unilateral and maybe longer for bilateral weakness with the appropriate treatment.

Back to your test results for a second, a horizontal nystagmus could be indicative of a horizontal/lateral canal blockage. A blockage in the anterior or posterior canal would result in a torsional nystagmus (your eye would literally turn like a clock.) With that said, your test results are only as good as your person doing the testing.

There is much confusion and much more misdiagnoses in the world about dizziness. Here are some ways to tell if the difference between BPPV and "VN or labs." Please keep in mind these are some pretty broad generalizations that you may not fit perfectly into either catagory, because you have a bit of both. The severity of dysfunction of VN or labs will impact the serverity of your symptoms. BPPV, it is there or it is not.
Hope this helps...
BPPV: every time you get yourself into a particular position or turn in a particular direction you get super dizzy. World spinning, nauseous, possibly vomiting lasting for a few minutes and then feeling "off," exhausted, just plain :p for the next few hours or so. You find yourself avoiding that position like the plague. You sleep on propped up on a bunch of pillows or in a chair. You spend an extraordinary amount of time and energy avoiding turning in the direction that gets you dizzy (doing 360 degree turns in the opposite direction, moving en block, etc.)
VN or labs: You just feel not right. Your head is somewhat "swimmy," you are "foggy" you have difficulty concentrating or reading, you don't like crowds, busy environments, bright lights, etc. You are off balance and are concerned that people will think you are intoxicated. You avoid going out into public and end up feeling pretty isolated. No one can really understand what you are going through and sometimes people do not believe that you are suffering as much as you actually are suffering, because they can not "see" your problem. They understand a broken arm and how that can bring you down, but do not understand dizziness. If this goes on long enough, you can end up pretty ticked off at the world, sad and feeling helpless.

As you can see from these boards you are not alone. I, also, hope that you know that just because many health care practitioners just don't get it - there are many out there that do.

All the best,
M



im still alittle confused by what the horizontal nystagmus would mean. and also if vn takes 6 to 8 weeks then how do people still have residual symptoms for a couple years??

i did not have horizontal nystagmas and i don't have anything close to the description you had of bppv. im sure i have VN but im still getting residual "off feeling" mostly after doing something strenous. its been about 20 months.

balancechicago
06-21-2007, 07:56 AM
When assessing someone for BPPV, there are different types of nystagmus that tell which canal and where it is blocked. There are torsional and horizontal that persist or fatigue. The torsional are up beating or down beating.

I do not have your history nor have I examined you, but you can try the exercises that I posted in Charlotte's VRT. Retraining your system correctly is the only way to return to normal.

If frustrated with your care continue to seek out a professional specializing in treating vestibular disorders - not one that happened to take a weekend course or vaguely remembers learning about it in school. Until you end up in the right care, this can persist for a very long time as you are experiencing. If your medical professionals are not helping you, challenge them to help you find a qualified person. Not all physicians or physical therapists are created equal. Even ones that claim to be vestibular experts, may not be. The most difficult thing is to be able to figure out who is who. This may or may not help and I apologize for that if it does not. I do not mean to frustrate you more, my intent is to let you know what you should expect from your medical professionals.

All the best,
M

 
 
 




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