hello all,have been waiting nearly 4 weeks for my mri scan results,anyway i rang my neurologist's secretary today and she read out the letter he is sending me,basically he has seen my results,and is not sure about 'something' so needs to have a meeting with somebody else.. i am, POOPING myself. as i really think i have abrain tumor,and this proves it,dosent it? i mean, what else could he not be sure of??? Anyone been told this after an mri scan??

While I really think you should NOT have been given that vague information over the telephone, at the same time I encourage you to not think the worst. Can you call back and ask to speak to the dr ?

Best wishes - and I know it is hard, (yes, I do, I've had a tumour and remember the waiting to find out) --- but try not to worry til you understand what is going on. Keep busy with other things.

Okay, I've been in your shoes!! It SUCKS!! My story, I went in for what my doctor said was a routine CT scan, due to my worsening migraines. He said it's nothing to worry about, yada yada.. So I thought fine, no big deal. I had my CT scan done two weeks later, didn't give it a second thought. Two days after I had it done the nurse from my doctors office called saying he needed to see me NOW, like RIGHT NOW. So I book it to the doctors, thinking the whole time "OMG I have a brain tumor!! I'm gonna die!! OMG!!". He said they found what they thought was a brain aneurysm and they were sending me off base (my husband is in the Army) to the hospital in town to have an angiogram done that day, and if they thought it was necessary they would also do an MRI.. GREAT.. So I go do the angiogram, they said, "Okay, were your gonna go have an MRI now.." Again, I"m like OMG, it's something HORRIBLE!! I"m gonna die, OMG!!" So they do the MRI and send me home, providing NO info.. I call my doc, leave a message.. He calls me back saying "Well, it's not an aneurysm, but there IS a "spot" there and I'm sending you to Seattle to see a neurosurgeon." (That's the closest one to me since I'm in Fairbanks Alaska.) He didn't explain what this "spot" was, nothing, just called it a spot.. So I got to wait form the beginning of March, to the end of April, knowing nothing about what was going on in my brain. And to make matters worse, they were still referring to it as an aneurysm!! So I finally get in to see the neurosurgeon and he said it's NOTHING to worry about! Just some mild dilation in the artery, and some slight calcification.. I worried about this "spot", almost driving myself insane, for almost 2 months, and it turned out to be NOTHING!! So the moral of the story, worrying won't do a thing for you!! Just sit back and try to chill out. I KNOW it's hard, but what else can you do?? Wondering all the "what ifs" will only drive you mad!! I hope the doctor gets back to you soon and is able to give you a bit more clarification on this. Please keep us updated on what's going on!!

hello all,have been waiting nearly 4 weeks for my mri scan results,anyway i rang my neurologist's secretary today and she read out the letter he is sending me,basically he has seen my results,and is not sure about 'something' so needs to have a meeting with somebody else.. i am, POOPING myself. as i really think i have abrain tumor,and this proves it,dosent it? i mean, what else could he not be sure of??? Anyone been told this after an mri scan??
Hi Dizzymoo
Ok, I'm with everyone else. Don't panic. It does no good and it'll make you crazy. I've had a zillion MRIs of my brain. Had a brain umor removed in December. The good news is tumors are pretty obvious. THey show up as bright white spots on an MRI....at least when they use a contrast dye. Little tiny white spots I had also. Two they believed were metastasis (I have cancer), and some other little white spots were concluded to be veins.
Usually the radiologist will write his findings of the MRI and give them to the doctor, so if it was a tumor I'd think they'd be able to identify one pretty easily.
So my advice is to relax and wait to see what he says. IT's been 4 weeks. If it were a tumor or even suspected tumor they'd have you back quicker than this.
Hellas

Thank you for all your replys, i didnt get the letter today,so im not a happy bunny!! i will be ringing them on monday to try and get some more info tho,so if i do get any i will try to post it on here...i feel amazingly depressed today, its just all getting so much to deal with,i wish i could just sleep untill i know whats going on..

This is really starting to annoy me and my family,we are all so worried, we rang my Neurologist's secretary yesterday to try and get some more info, told her how worried i was etc, and she said she would pass this onto my Neurologist and get him to ring me, didnt get a phone call. We have also rang my doctor and she said she would ring him and try to get things moved faster,but no luck. Also, his 'secretary' told me on friday that she posted a letter to me from my Neurologist on thursday , but i didnt get it, then when my mum talked to her yesterday,she said she posted it on friday, yet..still not letter. it has been over a month now, and i was orignaly told it would only take upto 3 weeks. Cant help but feel i am being messed around majourly by these people. I have been living in fear for nearly a year now and it is starting to really badly get to me,i am now very very depressed.

Sorry for the long rant,but i needed to get it of my chest.


x leonna

Leona!
I know this was before you got the news, but I just read it.
It's ok to rant here too! Why do you think I have so many posts under my name? HAHAHA
I saw my neurosurgeon once before he cut my head open to extract the tumor. Never once in the Hospital when he did take it out and only once about a month after the surgery! Must be how those neuro's are! Luckily I never had to call him for anything or I'm sure I would have gotten the same as you've received.
Still, that said, he was BRILLIANT!!! The surgery was supposed to be 3-4 hours and it was less that 2! He did tell my sister that it was just sitting on the surface like a marble, and came out bery easily! I was home in 2 days, with never haven taken a painkiller at all! I'd reccomend him to anyone!
Faith :)