JC07
06-16-2007, 10:00 AM
I sure am glad to have found this board. For the last six months I have been having some horrible problems with my left ear. It comes and goes but now its to the point that it lasts longer. After reading a lot of posts on this board about patulous eustachian tube dysfunction I realized that my symptoms were that of this dysfunction. To make a long story short I went to the doctor the other day to find out my worst nightmare has come true. He told me that I have P.E.T and the only cure for me was to get used to it. How am I supposed to get used to it. The people on here who have P.E.T know what I am going through. For the the worst part is I freak myself out when I start hearing myself breath and when my ear gets all clogged that it has gotten to the point where I now have panic attacks when this occurs making everything else worse. I told my ent about this and he told me Im just going to have to learn to deal with it like its apart of me now. I dont want to deal with it. Theres only so much I can take. Im on the verge of just giving up. Its such a horrible feeling the worst part of this all is I have a job in customer service so im always dealing with the public and when my p.e.t occurs I have walk away from a customer cause I cant handle it. This thing is completely ruining my life. ANYONE ELSE OUT THERE have panic attacks because of this? If so any advice on what to do?
Sponsor
lib
06-16-2007, 10:55 AM
I sure am glad to have found this board. For the last six months I have been having some horrible problems with my left ear. It comes and goes but now its to the point that it lasts longer. After reading a lot of posts on this board about patulous eustachian tube dysfunction I realized that my symptoms were that of this dysfunction. To make a long story short I went to the doctor the other day to find out my worst nightmare has come true. He told me that I have P.E.T and the only cure for me was to get used to it. How am I supposed to get used to it. The people on here who have P.E.T know what I am going through. For the the worst part is I freak myself out when I start hearing myself breath and when my ear gets all clogged that it has gotten to the point where I now have panic attacks when this occurs making everything else worse. I told my ent about this and he told me Im just going to have to learn to deal with it like its apart of me now. I dont want to deal with it. Theres only so much I can take. Im on the verge of just giving up. Its such a horrible feeling the worst part of this all is I have a job in customer service so im always dealing with the public and when my p.e.t occurs I have walk away from a customer cause I cant handle it. This thing is completely ruining my life. ANYONE ELSE OUT THERE have panic attacks because of this? If so any advice on what to do?
you should go see dr poe in boston, he can help you with this as he is a p e t expert.
good luck
you should go see dr poe in boston, he can help you with this as he is a p e t expert.
good luck
KSM79
06-16-2007, 01:11 PM
Hi JC07,
All of us sympathize with you!! PET is a life changing disorder. Have it myself since 4 years now..I know what you're going through. Well, there are a lot of posts discussing this problem. You could go through them. And as Lib, mentioned, Dr.Poe in Boston is THE man who can cure this.
May I ask how you got PET?? As it has only been six months. Did you lose weight or did something happen to you??
Take Care and dont give up.
-Kunal
All of us sympathize with you!! PET is a life changing disorder. Have it myself since 4 years now..I know what you're going through. Well, there are a lot of posts discussing this problem. You could go through them. And as Lib, mentioned, Dr.Poe in Boston is THE man who can cure this.
May I ask how you got PET?? As it has only been six months. Did you lose weight or did something happen to you??
Take Care and dont give up.
-Kunal
Remmy
06-17-2007, 04:29 AM
Dear JC07.
You can bet: a PET attack can lead to a panic attack, because PET is a pesty disease.
The good news here is that YOU CAN ABSOLUTELY stop PET from taking over your life.... at least, you may get partially used to that symptoms, so that a panic attack does not occur each time you have autophony.
Of course, you had to autodiagnose PET, since ENT's tend to misdiagnose it.
And there is another good news: there are tretments for PET!!!
We all are talking about that on another thread here on www.healthboards.com:
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
There are some interesting pages on this thread and more than one person that have recently been operated or are going to be operated shortly.
Join us..... you'll find relief sharing with us, trust me.
Bye
Remmy.
You can bet: a PET attack can lead to a panic attack, because PET is a pesty disease.
The good news here is that YOU CAN ABSOLUTELY stop PET from taking over your life.... at least, you may get partially used to that symptoms, so that a panic attack does not occur each time you have autophony.
Of course, you had to autodiagnose PET, since ENT's tend to misdiagnose it.
And there is another good news: there are tretments for PET!!!
We all are talking about that on another thread here on www.healthboards.com:
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
There are some interesting pages on this thread and more than one person that have recently been operated or are going to be operated shortly.
Join us..... you'll find relief sharing with us, trust me.
Bye
Remmy.
JC07
06-17-2007, 02:42 PM
Hi JC07,
All of us sympathize with you!! PET is a life changing disorder. Have it myself since 4 years now..I know what you're going through. Well, there are a lot of posts discussing this problem. You could go through them. And as Lib, mentioned, Dr.Poe in Boston is THE man who can cure this.
May I ask how you got PET?? As it has only been six months. Did you lose weight or did something happen to you??
Take Care and dont give up.
-Kunal
Hey Kunal
I got PET because of all the weight I lost. Who knew doing something good for yourself would have a nasty side effect. I had lost about 70 pounds within a year. To think I had no idea my weight was affecting my ear until the ENT told me. That was the first thing he said to me, he was like it happens to people who lose a lot of weight. Then hes like well take the good with the bad. Honestly if i knew this would happen to me. I would so choose being overweight as oppose to having a screwed up hearing dysfunction. Im thankful there are others out there who have P.E.T but its the worst feeling in the world when a doctor tells u theres no cure and that you will just have to learn to live with it.
All of us sympathize with you!! PET is a life changing disorder. Have it myself since 4 years now..I know what you're going through. Well, there are a lot of posts discussing this problem. You could go through them. And as Lib, mentioned, Dr.Poe in Boston is THE man who can cure this.
May I ask how you got PET?? As it has only been six months. Did you lose weight or did something happen to you??
Take Care and dont give up.
-Kunal
Hey Kunal
I got PET because of all the weight I lost. Who knew doing something good for yourself would have a nasty side effect. I had lost about 70 pounds within a year. To think I had no idea my weight was affecting my ear until the ENT told me. That was the first thing he said to me, he was like it happens to people who lose a lot of weight. Then hes like well take the good with the bad. Honestly if i knew this would happen to me. I would so choose being overweight as oppose to having a screwed up hearing dysfunction. Im thankful there are others out there who have P.E.T but its the worst feeling in the world when a doctor tells u theres no cure and that you will just have to learn to live with it.
JC07
06-17-2007, 02:47 PM
you should go see dr poe in boston, he can help you with this as he is a p e t expert.
good luck
Thanks for the information. I will be checking this doctor out!
good luck
Thanks for the information. I will be checking this doctor out!
JC07
06-17-2007, 02:49 PM
Dear JC07.
You can bet: a PET attack can lead to a panic attack, because PET is a pesty disease.
The good news here is that YOU CAN ABSOLUTELY stop PET from taking over your life.... at least, you may get partially used to that symptoms, so that a panic attack does not occur each time you have autophony.
Of course, you had to autodiagnose PET, since ENT's tend to misdiagnose it.
And there is another good news: there are tretments for PET!!!
We all are talking about that on another thread here on www.healthboards.com:
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
There are some interesting pages on this thread and more than one person that have recently been operated or are going to be operated shortly.
Join us..... you'll find relief sharing with us, trust me.
Bye
Remmy.
Hello, Remmy
I tried checking out that link you provided but I cant seem to get it to work. HAs the page moved?
JC
You can bet: a PET attack can lead to a panic attack, because PET is a pesty disease.
The good news here is that YOU CAN ABSOLUTELY stop PET from taking over your life.... at least, you may get partially used to that symptoms, so that a panic attack does not occur each time you have autophony.
Of course, you had to autodiagnose PET, since ENT's tend to misdiagnose it.
And there is another good news: there are tretments for PET!!!
We all are talking about that on another thread here on www.healthboards.com:
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
There are some interesting pages on this thread and more than one person that have recently been operated or are going to be operated shortly.
Join us..... you'll find relief sharing with us, trust me.
Bye
Remmy.
Hello, Remmy
I tried checking out that link you provided but I cant seem to get it to work. HAs the page moved?
JC
Remmy
06-18-2007, 01:08 PM
Hi JC.
I just tried the link I gave you and it works.
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
Notice that when the engine of the forum visualizes this link, it adds [url] at the beginning and at the end of the line and, maybe, the URL is divided into two lines. So, to get it work, you should:
- Remove [url]
- Merge the two lines into one
Let me ask you some questions, if you do not mind:
1) How old are you? How tall are you?
2) You told us that you have lost 70 pounds during last year.... what is your weight right now? Did you gain any weight?
3) Have you been on a self made diet?
4) How long after you stopped losing weight, did PET show up?
5) What was your first symptom? Do you have tinnitus?
In my case, I was 85 Kg in January 05 and I lost 20 Kg in six months. I was on a diet with a doctor. After that my weight was stable.
PET showed up six month later I stopped losing weight.
I'm 35 and I'm 171 cm.
Thanks.
Bye
Remmy.
P.S.: If you want, you may answer on the other thread.
I just tried the link I gave you and it works.
http://www.healthboards.com/boards/showthread.php?t=475298&page=31
Notice that when the engine of the forum visualizes this link, it adds [url] at the beginning and at the end of the line and, maybe, the URL is divided into two lines. So, to get it work, you should:
- Remove [url]
- Merge the two lines into one
Let me ask you some questions, if you do not mind:
1) How old are you? How tall are you?
2) You told us that you have lost 70 pounds during last year.... what is your weight right now? Did you gain any weight?
3) Have you been on a self made diet?
4) How long after you stopped losing weight, did PET show up?
5) What was your first symptom? Do you have tinnitus?
In my case, I was 85 Kg in January 05 and I lost 20 Kg in six months. I was on a diet with a doctor. After that my weight was stable.
PET showed up six month later I stopped losing weight.
I'm 35 and I'm 171 cm.
Thanks.
Bye
Remmy.
P.S.: If you want, you may answer on the other thread.