:bouncing: Hi Everyone!! I hope that you are all well, and haven't forgotten me already (lol).

I must apologise i have had the worst few weeks recently, and have just returned again from hospital, my white cell count was raised plus usual and I had really bad (runs Sorry!!).

I have found things really hard to deal with, especially wondering if I really had the strength to actually find out what is wrong with me, and then thinking I'd rather not know, especially as no one seems to want to treat me!! It's always your already under a consultant we can only do so much :confused:

I think I am just going to see if I can just get better on my own, i am sure that the lymph nodes will eventually go down?
I am going to see a healer next week, my aunty is into it all, and feel that I need to be cleansed, I'll give anything ago!!

I want to thank you all that have stuck by me, and I want you to know that despite my absents I have still thought of you all, as you have all remained in my heart and will continue to do so, my dear friends.

I have missed our chats and hope to catch up with you soon, another restless night for me, so I thought I'd fill you in.

All the best God bless :angel: Susie xx

Hi Susie,
I am so sorry that you continue to be so unwell and no-one can really give a good diagnosis. It must be SO frustrating! When do you see your consultant again? I guess at this point it is worth trying any kind of healing, when conventional methods have not worked for you.

Love,

Hey Susie, is there any way you can change your GP and demand a second opinion from another consultant? I'm so sorry you were back in hospital.

xxx

Hi Alison, and Amanda

Believe me I have tried to get a second, third and forth etc appointment for another opinion, just not having any luck.

Hopefully I will get some answers one of these day's and I can then resume to normal.

Alison, how are you?, I have had so many prob's change of e-mail and all that and one thing after another so I haven't had the opportunity to catch up wit you, I do think of you and wish you well.

Amanda, I am so pleased that you haven't got long to go, full steam ahead!!!!!!!!!!

You have both been an inspiration to me,

love to the both of you, your friend Susie xx

I do hope you get answers soon. It is hard for me to know what it is like to not know what is going on. I was not getting any symptoms of lymphoma and my diagnosis came as a result of a scan to look into a lower pelvic problem. However, as the problem was small and I felt well, waiting for a diagnosis was easy! When I got the diagnosis, and I am coming up to my anniversary, I was not shocked...not sure why, but just was not. I think it must be awful to just not know what is going on and to feel so bad. Being treated is not nice but at least you get some sense of control of the situation.

I am also older and have got to the stage where I expect anything!!
By the way, I am feeling great!
Love,

Fairy,

It's been a long time since I have written to you, or anyone for that matter. What ever happened to you seeing the ENT that your Son went to? An ENT doc would be a good one for you to see. If only you could get another biopsy. I know you don't want to cause it will cause another scar. I wish you the best and hope that you can get to another doctor.

Luv,
Deb

Hey, can't you change your doctor completely? Go to another practise?
Only 15 days left! I am very excited!

night
xxx

Hi Fairy,
I was wondering where you were....Ails, too.
I, myself, have been having a rough time with two shots I had a week ago---white blood cell shot & red blood cell. They both "threw me for a loop," and I'm so very slowly coming out of it. The problem is, I have chemo again Friday, so, if I'm ever going to accomplish anything at home....now, is the time...Enough about me... :rolleyes:
I'm so sorry to hear you've not gotten very far with your diagnosis. I know what Alison means, when she says it's the 'not knowing' that can drive you crazy. At least when you know, even if it's not exactly 'good' news, you can start up a plan to get better. I remember that part well--it was horrifying to think you have every disease under the sun.
I believe in Alternative approaches, myself---I'm trying to incorporate just a few things, along with my doctor's orders. I think one thing that's important, --but not to overdo it, is getting some sun & fun. Even though I was achey a good portion of the whole last week, I found it healing to get some rays from the sun. My Team told me I could--just not to overdo it and bake. The other thing that helps me so much (and it's really not alternative) is a HOT bath. I wish I had a huge jacuzzi....that would be wonderful.
Maybe a good "detox" would be in order for you, too....like getting ALL the toxins out of your body---that is, if you're in a position to---you might be on med's. I don't know where I'd be without med's right now---it seems like I'm constantly popping something!
I just wanted to say "hi" and tell you I missed your posts. I had a slight suspicion something was a bit "off" with you. I'm so sorry. I wish we could all heal one another on here---but, just the 'concern' from everyone helps for me---and I so appreciate you all.
I haven't looked at the computer all day, so I've got lots of reading to do..
Later...
love, S.

Thank you everyone, I hope that you are well Deb's what's been happening with you? I am thinking of you always as you are probably aware.

I feel as though all of those that have become close are a bit like a second family in a way a support group and I love you allxx

Amanda only 15 day's I can't believe it whoopie!!, I don't really think I can be bothered chasing my docs all the time, as it just make matters worse, I am seeing a faith healer on Friday so lets see what happens??? Let me know when you've finished so I can send you love and a hug.

Singer!!, I am so sorry for not being around for you, I have just been feeling sorry for myself, I have perked up, be it the drugs whatever, I am making a huge effort, and I am in pain but it won't keep me down for ever.

I wish I could have been a friend to you when you felt so low, I am here thinking of you, I hope that you pick up, and at least your getting some sun, it keeps raining here, or that could just be my rain cloud??

Ails, I hope everything is going well for you hon xx

Amanda you are a sweetheart and I know it's the waiting that's the worse, but the docs have said they all follow the same proceedure, and if anything looks different then they don't want to deal with it!! So there basically xx

I am glad to hear that you are feeling well at the moment,

love you all Susie xx