I wanted to just say, hello, and see how you are all doing at the moment.
I have been trying to remain positive, and saw a faith healer yesterday which went well.
I want to send you all my prayers and love, and hope that you all remain positive, remember to keep smiling and laugh if you can, it really does help.
Just because I haven't posted for a while doesn't mean I am not thinking of you all. xx
Take care and all the best Susie xx
DebM412
07-07-2007, 11:08 AM
Hi Susie,
It is nice to see your post and makes me happy :) . I am trying to stay positive also for many reasons, not just my nodes.
Hope that you are feeling better.
XOXOXO,
Deb
Nassau one
07-07-2007, 02:50 PM
I am glad the visit to the faith healer went well. Hope it helps you feel better. What other steps are you taking to get a good diagnosis and treatment? Are you going to have another biopsy?
I am 62 today and feel great! It was exactly a year ago today that I saw the surgeon who was to do the biopsy on my mesentery lymph nodes and who told me that day that he was nearly 100% sure I had lymphoma....he was right! What a year it has been!
Love,
Ails
07-07-2007, 03:18 PM
HAPPY BIRTHDAY!!!!!!!!!!!!!:wave:
singer78
07-07-2007, 09:04 PM
Hi,
Yes...Happy Birthday Alison!
I'm glad you saw someone, Susie. I asked at the hospital yesterday, if they had any kind of massage therapy or Reiki, or anything like that available, and they told me to contact another hospital. I think I'm going to.
I had a Reiki session years ago & it actually helped my throat. I really don't know much about it, but even if I can derive 1 hour of peace & solitude during it...it will be worth it. It's always nice to have healing touches.
It's nice to hear from you. I know everyone starts worrying, when you're not on here---you're such a bright ray of sunshine for us! :)
I'm moving along with treatment---so, that's a good thing, although the tummy's not exactly cooperating today. I'll be better ....
love, S.
Ails
07-08-2007, 06:35 AM
Hi Susie
sorry - was so quick in and out yesterday and my brain wasn't working - did 5 - yup, count em 5 - 45 minute exercise classes as we had a mock assessment on our routines. same again next saturday - aaargh - as well as my final theory exam. I hurt all over - but in a good way
Anyway - so glad to see you back and that you're taking positive steps
Ails xx
Ails
07-08-2007, 06:54 AM
Sorry - duplicate - never said I was bright!!
pinkmada
07-08-2007, 06:53 PM
hey susie, how are you feeling? im very hyper just now. i'm tap dancing. not sure whhy cuz its midnight and my downstairs neighbours must hate me right now. actually i dont think anyone lives there just now. oh well. i have 9 days left of treatment! it seems so surreal! i love my oncologist. i had an appoinment with her last week just for a check up and i was in the waiting rrom for ages waiting to get my bloods done and then to be made to wait in another waiting room but she came through and got me and told me that i didnt need my bloods and done and i skipped the queue of people and then she hugged me when i left her office! i cant believe this is almost over! i think i've went back into the denial stage, i cant believe its been 6 months when this time last year my GP was treating me like i was trying to score pain meds or something!
sorry, i keep going off in long rants. not sure why im so hyper. im going to buy tap shoes tomorrow, im using my flatmates sisters just now but i want a pair of pretty ones!
take care
love you loads.
xxxxxxxxxxxx
fairy-lights
07-10-2007, 07:03 AM
Hi Everyone:)
Thank you all for your reply's xx
Alison I hope that you had a great birthday, wow a year that must feel great for you, especially as you have been so ill, good on you girl!!xx
Debs, what's up hon, I know you don't like saying, is it your ladies troubles? You know you can speak to me!! I have been thinking of you, don't worry about your nodes. :nono: (i know it's hard) lots of love xx
Ails, you are funny, I am so proud that you are really going for it with all of your fitness training, just think you'll be so fit and gorgeous everyone will be so envious!! Hope you final theory exam goes well, xx
Singer, how are you coping with treatment at this moment in time? I think you should enquire about relaxation techniques as it made me perk up a bit, still trying to do the mind over matter thingy:confused: xx
Amanda, you are so funny, I can picture a person really going for it with their tap shoes on, you go my friend, it makes you feel better.
Fantastic news about you though I'm so happy for you xx My daughter passed her first tap and ballet grading a few weeks ago, and she loves it, bless her, I love you lots xx
I have applied to do an access cause into nursing and health care, as I want to be a health visitor, I am fed up of being in the house and feeling sorry for my self.
I have decided to do my own sit and wait therapy, as I am sick of doctors and although my lymph node in my collar bone still worries me, I am going to beat it.
I am not going to dwell on thing's there are people far worse off than me, life is for living and that is exactly what I intend to do, whose with me??
I love you all, as you know you have all become a big part of my life, keep smiling :) xxxxx
DebM412
07-10-2007, 12:26 PM
Susie,
My good friend! You make me smile and lift up my spirits!
I am so happy that you are doing better. Remember you did have a biopsy and it was not cancer. You can beat this! You sound like you are on your way!!!! ;)
I am still exercising and finding that I need to eat more than I am. I uped my running times and not my food so yesterday I got weak. Nothing a little more food could not fix.
Yes, my surgery that I am going to have done will be in the fall. I want to enjoy summer and I have a race to run in before getting this done. :cool:
My probs are female, hubby and nodes.
Keep doing what you are doing cause you sound great!
Lots of love and hugs to you,
Deb :angel:
singer78
07-10-2007, 12:28 PM
Hi Susie,
Just wanted to say "hi" also.
I'm slowly coming around, after my 3rd chemo treatment.
I think I'd be more chipper, if I didn't have to have the Neulasta shot---it makes me achy & cranky.
It's good to hear you're remaining on the "upbeat" about everything.
I know it's hard, when you know you're not operating 100%. Just remember: Everything can turn around in the blink of an eye. You just might wake up some morning and feel completely healed! Somebody told me, that our bodies are constantly trying to "heal" themselves.
I can't believe after my next chemo treatment, I'll be half-way there (with chemo, that is). I still will have to have radiation---I'll think of that, when I get there. I'm still doing the "one day at a time" theory. It works for me.
:) :) :)
fairy-lights
07-10-2007, 02:30 PM
:angel: Hi Debs :( I don't like you being down!!
They want to biopsy my node and I said no, as my white platelet counts high etc, but I want to live life not wollow in self pity :) .
What's hubby done to upset you? Is it lack of understanding? They can't relate bless them, they think it's all so easy, my hubby said if he had been pregnant he would of only had to have an Asprin!!! (not a clue:confused: )
You must keep up your food intake my friend that's not good, all this worry will effect your nodes!! (no more said on the matter!)
Enjoy your summer, our's is naff rain and more rain, small bit of sun in between it would be dryer in the rain forest!!
I love you lots as you know and I am always here for you :angel:
Singer my poorly friend, you sound fed up:confused: Not surprising poor you.
At least there is only half way left to go now, that's brill.
Radiation isn't as bad I have been told. Try and keep your chin up, and do things you enjoy.
Sleep is a great way of healing your body so remember to get lot's of rest.
I wish I could come and see you both, and give you both a hug.
Keep your chin up all of you.
lot's of love and bestest wishes susie xx
singer78
07-10-2007, 03:10 PM
Susie,
Geee...I'm sorry I'm coming off poorly, but in reality, I guess I do feel half-mast!--Maybe a quarter-mast!
The good thing is, even "I" know, that every phase fades away....sometimes not quickly enough.
I even have my family reprimanding me for not calling---but, sometimes it takes energy to even 'talk.' My hubby tells me not to feel bad for anything I need to do, to feel better. I'm listening to him---He sees first-hand some of the problems I'm experiencing.
Anyway---on the upswing, I ate a pretty big breakfast. You just can't go wrong with hash browns and scrambled eggs and toast.
:)
fairy-lights
07-11-2007, 06:50 AM
:angel: Honey you don't have any thing to apolagise for anything, you do what ever feels right for you, sounds as though you have a very sensitive husband.
It takes a lot sometimes to build up your energy especially when you want to speak to any one, so just maybe say I have just called to say hi, hope your ok, I will call again when I feel better, and that won't take long but at least you have shown them your ok.
I expect that they are just concerned and don't want to think may be you are dwelling in self pity. People who don't know what you have been through can't begin to understand.
I have gotten up every day and got dressed, put on some make-up regardless of how ill I feel, and it makes me feel more positive.