Hi all... I am fairly new to the boards. This is the first time to the Epilepsy board, so bare with me. I have had seizures and chronic headaches for over 16 years due to a motor vehicle accident (drunk driver). I have found over these 16 years that if I control my headaches I control my seizures. Well I was finally able to get into a new neurologist recently, he tells me that my seizures are epileptic, something that other doctors, both general and specialists, have told me weren't epileptic. I kinda freaked out. He stated that the last EEG I had confirmed epileptic activitiy. He also told me that he felt my headaches were a form of seizure. Which in a way makes sense but then again it doesn't. I am so confused.

I was wondering if anyone else out there has headaches that lead to seizures or doctors that said their headaches were a form of seizure. I need some help. The med that I have been put on is making me too loopy, and tired. Please let me know!!!

Thank you!

Hi all... I am fairly new to the boards. This is the first time to the Epilepsy board, so bare with me. I have had seizures and chronic headaches for over 16 years due to a motor vehicle accident (drunk driver). I have found over these 16 years that if I control my headaches I control my seizures. Well I was finally able to get into a new neurologist recently, he tells me that my seizures are epileptic, something that other doctors, both general and specialists, have told me weren't epileptic. I kinda freaked out. He stated that the last EEG I had confirmed epileptic activitiy. He also told me that he felt my headaches were a form of seizure. Which in a way makes sense but then again it doesn't. I am so confused.

I was wondering if anyone else out there has headaches that lead to seizures or doctors that said their headaches were a form of seizure. I need some help. The med that I have been put on is making me too loopy, and tired. Please let me know!!!

Thank you!

hi im not like you ,i was just wondering how long after your headache do you have a seizure, and what kind of seizure is it.when you have a headache do you have any other feelings during the headache.and what medication are you on ?thanks see ya

chronic headaches are a big problem, and I can't take a lot of pain medication due to being on a blood thinner (along with a ton of other meds). I know I get headaches after seizures, but I also wake up with headaches- don't know if it's from night seizures (wake up with tongue chewed up sometimes, and achey feeling), or sinuses. The headaches and seizures did first start about the same time (decades ago), and go through periods of being better, but for the last 3 years, they've been worse. Good topic....

Hi. I just wanted to say that sometimes I have a dull headache after mine-nothing as bad as yours. I have them in the mornings, usually after I wake myself up during seizures. I am sorry you are dealing with this. I have found with this board that the participants are SO supportive. It has helped me on my down days just to talk to people who "get it". I have had numerous EEGs and MRIs and they can't find anything. I almost with they could so that I could have a confirmed diagnosis and wouldn't feel like I am running around with a brain tumor or something. (My dr has said definitely not) Good luck with the headaches, and like I say, keep checking in-this is a great board for questions and most of all SUPPORT.

I know that any time after I have a sez, I have a headache. Depending on how bad the sez was depends on how bad the headache is. I'll get them sometimes during the day (during which I am usually alone) so I don't know if I have had a mild sez or not.

I have noticed that since I got my VNS implant, I am still having the headaches, but they are nothing like what I was having before.

Curious as too how many seizure suffers also have a history of migraine?

Very good topic by the way.

I have a history of migraine since I was 17 - 39 now. The really interesting thing is I still get migraine aura without the headache for the last year. Now I have all this other undiagnosed stuff going on.

hi all i was wondering about Seizures would falling down be a Seizure since sept 06 i been having falling down spells i also did the very same thing as a child then it stopped when i was around 10 so can you tell me what yor symtons are during a Seizure i have had a mri and brian wave so far the drs are telling me its severe panic disorder but im thinking its not i get headaches quite often and i feel this tingleing sensation in my head i get dizzy and my mind goes blank i dont passout but when i fall i cry and sometimes when i fall noone can help me my whole body goes limp and i just lay there for a few mins then i get up and i have to go sit down to calm myself i have never had this till sept 06 but when i was a child my parents took me to a dr and he told them id out grow my falling down only back then i passed completely out for no reason like down i fall for no reason so what can you all tell me about Seizures .
vickie

Hey all...

Thank you for all your input! It is much appreciated!

When I have a seizure it is because my headaches have gotten so bad that I guess my head can't take it, so it has a seizure. If I keep my headaches to a tolerable level then I don't tend to have the seizures. My headaches are always worse after the seizure, so I usually end up sleeping. Which sometimes helps, but it usually is just being exhausted after the seizure.

And to answer your questions joblo... I always have a headache. I have never been able to get rid of it. I am only able to take it to a liveable, tolerable level. Usually if my headaches get to a level 9 then that is when my seizures start. They are also brought on by stress. There is another feeling before a seizure, my head gets this tingling, fuzzy feeling starting about 30 mins before a seizure. I think it is part of my aura. Another part of my aura is a jerking that happens on the right side of my body, that moves to my entire body. The faster the jerking the closer I am to a full seizure. I am not on a medication just for the seizures. I tend to be allergic to the meds for it. I am on Lyrica 150mg twice a day. Which make me wacked out, and other than wacking me out it doesn't seem to have an affect on my seizures or headaches. It does seem to be helping my fibromyalgia though. My body isn't as touchy. I am on some good pain meds though. It does take my headaches down to a tolerable level.

Sorry to hear that you all have seizures, and headaches! I know they are NOT fun at all!!! Thank you all for your support!!! :angel: :D

Curious as too how many seizure suffers also have a history of migraine?


I actually have a history of migraines. I've never had the migraines diagnosed. But ever since I was young- about 8 or 9 years old- I would get migraines (or if it wasn't a "migraine", it was a severe headache which made me unable to do anything but lie down and attempt to sleep [which was difficult because the pain was so bad]). I've never really been sensitive to lights or sounds with a migraine, though. Just in the sense that my head hurt so bad, I wanted to just cover my head with a pillow and block everything else out (maybe that's what they mean by being more sensitive to lights and sound?). When I was younger, I only had a few of what I'd call "migraines"- maybe one every two years or so. But I was always VERY prone to headaches. There was a while (actually, about 6 years) where I had a headache just about every day. My pediatrician diagnosed me with hypoglycemia when I was about 14, and said this was where my daily headaches were coming from (except within the past 6 years, low blood sugar never shows up on any blood tests). I also blame my suinuses, because I was plagued with sinus infections and bad allergies ever since I was little.
But anyway, I'm rambling. But I will say that my migraines became more frequent as I got older. I have them a couple times a year now, though I have gone a few years in between where I didn't have any.
I was diagnosed with epilepsy when I was about 15, though I'd been having seizures since I was 12. And that's about the same time that the almost-daily headaches began. Wow, I never made that connection before.
Also, a while after I started Tegretol back in 2001 (when I was 19), I noticed that I had headaches a lot less often. I still get them, but not every day like I used to. And I've only had a few of migraines since then. And then I read that Tegretol is sometimes used to treat migraines.

So basically, it seems like my headaches seem to sort of coincide with my epilepsy. Not necessarily with my seizures (though I have a lot of seizure activity when I have my period, and that's also usually when I get migraines), but they started at around the same time as my seizures, and the anti-seizure meds have helped to make the migraines a little less frequent.

I also have a history of migraines, with very similar symptoms to some types of seizures (not the complex partials I 'normally' have), with visual auras, and horrendous pain, nausea, want every light off, and any movement is horrible. I've been fortunate that I haven't have one of those lately. I take propranolol for another disorder, but it's also used in migraine prevention; until I was put on Coumadin, Excedrin helped a lot (surprisingly, since boatloads of rx stuff wouldn't help).

This last week has been really hard with headaches= I rarely have 2 hours without pain, and have gone through every over the counter med I have that I can still take with the blood thinner; today when I went for the blood thinner labwork, I asked my docs' nurse to ask my doc about a med she'd mentioned about 3 weeks ago. I got it a few hours ago, and had to take a double dose at first (still a dose often prescribed), and 2 hours later, any other med (nausea, a propranolol, lorazepam, Soma, etc), and it's just now (nearly 5 hours later) getting to the tolerable stage.

I had muscle cream on my neck, vapor cream under my nose, a nose breathing strip on my nose, and probably looked and smelled like a drugstore dumpster !! I had myself all lied out on my bed in good body alignment, to reduce any tension aspects, a warm cloth (bad), cool water and a fan on (better but no 'eureka' moment), and have been at this for 6 straight days. I hope the new stuff works. I didn't want a narcotic, but the stuff I have that usually works, has been like spitting in the wind.

Sorry to hear neurowreck! I hope that you have a breakthru soon! I know the feeling! I just wanted to add some support for you neurowreck!

Here is good thoughts stretching out to you!!! Good Luck!!

to sentence doing and every one else who posted on this question from bevin 30 i am a long time sufferer of seizures which started at the age of four and one of my symptoms was having very bad tension headaches in my temporal lobe area. I still have thosesymptoms as an adult. But the weird thing is that i have never had a migraine but my brother and my mom always get the migraines and so dose a cousin of mine on my moms side of the family. research has shown that migraines and seizures
are connected because they occur in the same neural pathways of the brain. that is why anti seizure meds will sometimes work on migraine headache sufferers.