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View Full Version : Doctors can't figure out so I am researching


allergyqueen
07-10-2007, 02:30 AM
Hello All, Boy where do I start! about 7 years ago out of the blue my life changed. One day I was so happy and excited on a trip then BAMMMM this weird feeling came over me was dazed and confused then of course that what just happened to me hit me as I was so happy having a good time at what I was doing then this TERRIBLE feeling at that time did not last to long then next day at work bammmm again came over me and seemed like every day same time 2:00pm was like clock work this AWEFUL dazed confused could not think or concentrate I could understand all that was going on but don't ask me what 10+5-3 was as I found it VERY frustrating as I could not or want to think as was like a cloud over my head and brain not functioning right lasted about 15 min or so I eventually did the worse thing I left my job thinking maybe to much stress but loved my job just ALOT of troubleshooting and problems and me being a profectionist think I did it to myself anyway regret quitting my job as it was extremely good pay and hard to come by now. But Doctors suggested I take time off well when I was at home or out I would still get them just not as frequent none the less still had them. Doc's both family and neurologist had me see a physicologist thinking stress anxiety I got so tired of it as I new was more then that may of fed the fire but even at rest happened STRESS would make them more frequent but still got them without stress just never knew when they would hit and controlled my life as I then was afraid to do anything. Well make LONG story short NO meds just worked thru them on my own and THEY WERE AWFUL I would know when they where coming I would get a bad headache usually top of back of my head then it would hit then I was relieved when I would get a ringing in my one right ear that meant they it was leaving they lasted ALOT longer upto an hour. Then puff they all of a sudden just left for like 2 months and I was told that if it was petit seizures they can go away hmmmmmmmmm I was SOOOOOO EXCITED man what a normal feeling AND THEN bammmmmmmm again started getting them again only with vengence now I get headache starts then confused doom feeling and stare but knew what was going on around me but was afraid others knew what was going on but now I would confuse my words and slur them out or say "up instead of down" or "plap instead of lap" things like that siliva like drooling, and 3 fingers go numb,tingly, thumb index and middle fingers, I get blur vision, and thought please don't question me as I am not all there but knew what was going on just could not concentrate and everything was a struggle I thought after is this a stroke? scarey stuff and was afraid people would know what was happening to me and scared now I started getting this feeling like I AM GOING DOWN like going to pass out but touch wood never have but same time think maybe I should go right out then maybe doc's would see what is going on. I have had several trips to neuro and tests EEG, EKG, blood work for everything, monitor on head GO FIGURE though never had a spell with monitor on... grrrrrrrrr I even tried to force them to come just so doctors would see what was happening but nope all was clear GRRRRRRRRRRRRRRR mind you I took the 2 days off work with monitor cause did not want people to see me like frankenstein wires all over my head but now I wish I never did cause they would of seen em for sure at work worse then at home but I still get them at home just not as frequent they (Doc's)think I am nuts yet I HATE THIS FEELING AND LIFESTYLE cant or am affraid to do anything for fear of these attacks. Now mind you STRESS can bring them on INSTANTLY like a blood rush and there it is but it IS NOT stress or depression, or anxiety, I thought maybe was that seizures the one from lights monitors reflexion from my pool in back, I do stare a a computer at work all day in a call centre for 10 hrs and people on phone yelling a swearing and screaming at me all day. But yes stress fuels the fire I have been working again for the past 1 1/2 and I average maybe 3 a day and they can last a good hour long and they just getting more intense. Neuro doc says well we can try you on something BUT I must warn you they can make them worse... hmmmm how worse? I guess I am still standing not going right out and maybe the pills will make me go right into one? I will add my Mother suffers from Gran maul seizures and she started just one day from stress doc says she does not have epilepsy but Gran mal sezieures they think she started with stess as well?????She just dropped and shook all over and she goes right out with hers and over the years got real bad but now they got her on sooooooooo many drugs now that she has very minimal now but no memory VERY short memory can remember years ago as a child but not yesterday or 1/2hr ago kinda thing. And her meds knock her on her butt so tired. And all my Mom's health issues she has I have like low b-12, heart I have MVP multi valve prolapse, gallbladder issues which I had removed, Future hystorectomy as well. My family doctor chuckles and says wow everything your Mom has you have. I said NOT funny JUST HELP ME... I am so frustrated I am 46 yrs of age and feel it is awful that I am searching the internet finding all I can about seizures and doctors can diagnose?????????I wish they could just be in my body. ANY FEEDBACK WOULD BE GREATLY APPRECIATED! I am just so lost and scared as they are getting worse. I thought it was chocolate stopped eating chocolate! thought it was sugar stopped eating sugar, it is controlling my life but I am going nuts trying to fix or diagnose myself. And what better then people who can relate to what I am saying.

Thanks for reading my novel.[/B]

neurowreck
07-10-2007, 09:00 AM
What about a glucose tolerance test to check for low blood sugar- the regularity of it happening around 2 pm brought this to mind- and it could still happen at other times as well, depending on how much fat and protein you've eaten with meals, to keep the blood sugar more stable.... just an idea. Good luck :)

Travis from MN
07-10-2007, 03:04 PM
It's possible then it may be family related (inherited) ? Can you trace it any farther back or other ailments documented on the maternal side that tend to repeat? (see where I am going with this?) Check out any other conditions that stand out and repeat in relatives (family history) on that side and have yourself checked if they can cause the symptoms you are having. Basicly Know whats in the family closet "just in case".

Is there an Epilepsy Specality Clinic in your region, say within 90 minutes. Those establishments are good to take advantage of. Often takes 3-6 months to get in. Hopefully you can arrange a WEEK LONG reservation for testing, if not longer to try and have better testing done.

I have never needing to use those facilities, being pretty well controlled, but have known friends who did. Also was asked to bring in "real food" for them.

I understand researching (online) seizure/epilepsy medications when I am changed. I have been diagnosed since I was a child. No family history on either side.

When I was in secondary school I would have an aura often times before a GM (grand mal) that would be a ringing in the ear to warn me. Not always did a GM develop after the ringing, but I took every time as a serious warning; especially when I was on the road.

--Travis

allergyqueen
07-11-2007, 03:00 AM
Hi travis, Thank you very much for your response. YES I know exactly what you are saying about the family history. As far as my Mother is concerned she does not even know whay she has them as I spoke to my Grandmother Mom of my Mother who is 99 and you would not know it as she is as spry as a 40 year old. Just all on Moms side have heart conditions from Grandpa's side. I always wished I would be as heatlthy as a horse as Nan. But no seizures on both sides of family. It is just strange that I have EVERY aliment that Mom has such as Seizures, Heart problems, Gall bladder, woman issues such as I have to go in for a hystorectomy like Mom cysts and pre cancer hypo placia, and cysts on my ovaries, Doc chuckes says WOW you just like your Mom with all my health issues. But I My dad on the other hand and ALL his sibblings are diabetics, So I am seroiusly looking into this glucose thing as well just I know when I feel faint I know I must get food or will pass out. But as far as the seizure thing I HONESTLY dont think from my calculations has anything to do with glucose may trigger but even on a full stomach sweets no sweets they happen. TRUST ME I have tried THIS AND THAT but still they come with vengence. I am so confused:confused: :confused: and trying and driving myself absolutely crazy trying to diagnose myself watching EVERYTHING that I eat and did etc.. to see WHY I have 3 other siblings and either one of them experiece this WHY ME??????? I even thought hmmmm I was breastfead maybe that? I don't know just doing sooooooooo much of WHYS and can't understand. I just know these are seizures of some sort just don't know WHY and how to control them on my own I WISH DOCTORS WOULD PUT ME IN HOSPITAL FOR EVEN 3 days they would see but NO just I am told well we can put you on meds but can make it worse? HMMMM well I see my Mom how bad she got on meds BUT in same breath they finally control her. I am just soooooooooo confused and know this is a aweful way of living life I watch my 2 boys AND PRAISE GOD so far they don't take this from me however I did not get them till I was 39 I JUST PRAY TO GOD they don't EVER experience this. other things medically they do BUT not seizures. I can go on and on I AM SORRY I am just sooooooooooo confused and am just looking for answers and WHY l..... WHY ME not my other brother or sisters?

THANK YOU SO MUCH TRAVIS for your respose I GREATLY APPRECIATE IT I am just soooooo confussed and just researching as to why driving me crazy

Take care,
best of luck to you Travis
Kelli

TN Bell
07-12-2007, 10:30 PM
I understand where you are coming from. My seizures or episodes started in 2005, until then I had never fainted in my life and I am now 66. I have been through all kind of tests but I still don't know exactly what is causing my problem. They think it might be epilepsy but I was in the hospital and nothing not one thing showed up. I sure hope they can find out what is causing our problems they seem so similar. I wish you the best of luck and hope that you find out what is causing your problem. I am so thankful that I didn't start having these episodes while I was young and having my children as I don''t know how I could have survived. Even now, sometimes I cannot do my housework like I should and I feel so worthless but I have a great husband who is wonderful about helping me. Again, I wish you the very best with finding out what your problem is. God Bless, Tn Bell

allergyqueen
07-13-2007, 12:12 AM
Hi TNBell Thank you ever so much for your feedback. It is so upsetting isn't it! I remember when it first started I would say when test's where being done Oh God please don't let them find anything, well severe anyway, something I can just take a pill for like a imbalance of hormone or something. Now I just pray they find something again not severe but an ANSWER. Today I only had 2 attacks better then 4. It is hard when a doc says nerves, stress, anxiety cause he is the doc you do what he says but in your heart and mind you know it is NOT that if anything the stress of the ownknown answers STRESS"S me out. Then family says well the doc's have done this or that and checked and nothing "SO GET OVER IT" HMMMMM that is what is soooo upsetting I monitor my food I think of what I was doing, I stop myself from living activieties everything cause I just can not relate when the spells hit. I could be PERFECTLY fine then BAMMM where did this come from then 1 hour or so later I come around I know when they are coming and I know when they are leaving. They just are getting more and more harder to fight and deal with. the could it be heart,stress,food,actions, grrr is so frustrating my answer is put me in hospital for just 2 days they will see what is happening but geesh you go in for open heart surgery these days you are out the same day as there is NO room's available. "SAD" I do not want to be a ginny pig try this or that and tell me can make it worse??? There the doc's but everything is in the blood I guess geesh is so frustrating and so not fair. Thank you for your kind words...And remember you are NOT WORTHLESS just frustrated! and very lucky to have your husband to support you just TAKE IT EASY TNBELL and go with the flow we just have to FUNCTION the best way we can I guess and pray for a answer. All the best to you and Thank you again.

Kelli

 
 
 




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