Skinnyjess
07-16-2007, 10:51 PM
Hi there, Im new to this board. I dont know where ealse to go really. So I searched for a fourum with people who may have been where I am at right now.
I have been having many MS symtoms for about a year now. They are starting to efect my everyday life now. I have developed a tremor in both my hands. My eyes get blurry cloudy spots in them that come and and sometime I even see double. I have been so tired I can hardly stand to be in my own skin. Im a mom and wife and work and all I want to do is sleep. My list of symtoms go's on and on when I read about MS I feel as though Im reading about my self.
My general Dr Looked at me and ordered a ton of blood work all checked out fine so she made me a app. with a nuro Dr who I seen today. She looked me over got my history and I told her my symptoms she mostly concerned about my tremor, not my eyes nor being tired or all the mucle pain and weakness I have. She gave me a bottle of pill called Topamax? and told me to take one or two a day and wished me good luck and showed me the door out. ??????:mad: I still dont get it? Why wasnt a MRI or more tests ordered.
Years ago I used to have panic disorder and now I think Dr's see that I used to have that and they think its all just stress related and send me on my way.
I called my Dr today as soon as I got home and told her I wanted another referl for another Nero. I hope she gives me one. Is it alway this hard to get someone to listen to you? Im not 100% sure that I have MS but Im pretty darn sure and the least they could do would be to do an MRI on me.
Sorry to vent so much Im just lost and I feel really hopless right now. I was just hoping someone out there could help give me some advice.
I have been having many MS symtoms for about a year now. They are starting to efect my everyday life now. I have developed a tremor in both my hands. My eyes get blurry cloudy spots in them that come and and sometime I even see double. I have been so tired I can hardly stand to be in my own skin. Im a mom and wife and work and all I want to do is sleep. My list of symtoms go's on and on when I read about MS I feel as though Im reading about my self.
My general Dr Looked at me and ordered a ton of blood work all checked out fine so she made me a app. with a nuro Dr who I seen today. She looked me over got my history and I told her my symptoms she mostly concerned about my tremor, not my eyes nor being tired or all the mucle pain and weakness I have. She gave me a bottle of pill called Topamax? and told me to take one or two a day and wished me good luck and showed me the door out. ??????:mad: I still dont get it? Why wasnt a MRI or more tests ordered.
Years ago I used to have panic disorder and now I think Dr's see that I used to have that and they think its all just stress related and send me on my way.
I called my Dr today as soon as I got home and told her I wanted another referl for another Nero. I hope she gives me one. Is it alway this hard to get someone to listen to you? Im not 100% sure that I have MS but Im pretty darn sure and the least they could do would be to do an MRI on me.
Sorry to vent so much Im just lost and I feel really hopless right now. I was just hoping someone out there could help give me some advice.
Sponsor
duttin
07-16-2007, 11:38 PM
Welcome,
This neuro sounds like a real whack job!!!1
Did she do a neuro evaluation?
The standard protocol would have been to order an MRI with and without contrast.Your GP can order these.
The topamax may help with the hand tremors,did this neuro give you a follow-up appointment to check to see if this med was working?
I'd definately push for a different neuro.
This neuro sounds like a real whack job!!!1
Did she do a neuro evaluation?
The standard protocol would have been to order an MRI with and without contrast.Your GP can order these.
The topamax may help with the hand tremors,did this neuro give you a follow-up appointment to check to see if this med was working?
I'd definately push for a different neuro.
hayshe
07-17-2007, 10:46 AM
My suggestion to you is to seek out an MS Neuro Specialist in the area. I waisted over 3 years going from Drs to Neuros etc. One trip to the specialist, and I was dx. Take Care
Skinnyjess
07-17-2007, 11:11 AM
Well she had me walk on my toes and touch my nose then she rubbed me with cotton and then she would poke me with a needle? She told me to follow up with my General Dr in 1 mo.
She didnt even listen to the other stuff that I had going on. Like the tingling numbness I get in the weirdest places that comes and go's one day it was in just one toe, it was the funniest feeling ever.
I havent yet told me grneral or any Dr that I think I mite have MS I would like them to find it. Im also afraid if I say that they will think Im a freak or something.
The worst thing is the double vision and cloudy spots. I would love to just get a MRI done. Im still shocked that , that Dr didnt even mention one.
What is a MRI Like? I have had CT scans with Die they are freaky! Is it like that?
Am I crazy for thinking I have MS? Should I only be worried about the tremor like all the Dr's seem to be. I wonder if they are only treating the tremor because that is the only thing that they can see is wrong?
Thanks for taking the time to listen to this crazy girl....
She didnt even listen to the other stuff that I had going on. Like the tingling numbness I get in the weirdest places that comes and go's one day it was in just one toe, it was the funniest feeling ever.
I havent yet told me grneral or any Dr that I think I mite have MS I would like them to find it. Im also afraid if I say that they will think Im a freak or something.
The worst thing is the double vision and cloudy spots. I would love to just get a MRI done. Im still shocked that , that Dr didnt even mention one.
What is a MRI Like? I have had CT scans with Die they are freaky! Is it like that?
Am I crazy for thinking I have MS? Should I only be worried about the tremor like all the Dr's seem to be. I wonder if they are only treating the tremor because that is the only thing that they can see is wrong?
Thanks for taking the time to listen to this crazy girl....
Skinnyjess
07-17-2007, 04:32 PM
My Eyes are really bothring me today, Im so very anoyed by all this.
My dr hasnt gotten back to me as of yet.
Should i just go to my general Dr and tell her that I want a MRI scan to rule out MS? Or would I be just making her mad by telling her how to do her job?
My dr hasnt gotten back to me as of yet.
Should i just go to my general Dr and tell her that I want a MRI scan to rule out MS? Or would I be just making her mad by telling her how to do her job?
MSNik
07-17-2007, 04:45 PM
an MRI might or might not show MS...it depends on what is happening at the time you go- sometimes legions show up, but not with the contrast- and therefore they cant know for sure that they are MS legions...other things, such as MIgranes and head trauma can leave legions too.
The advice you got to find an MS clinic was the best advice. YOu can waste years of time dealing with GPs and regular Neuros...at least with an MS clinic you can get your tests done and get things going. Remember, it takes years sometimes (for me only a week) to get a dx...your symtpoms certainly sound like they COULD be MS...and they definately sound like Neurological symptoms..
The doctor you saw sounds like an idiot...definately pursue another neurologist., and if you can go to a specialist, an MS specialist, and there is a large university hosptial or MS center in your area, do whatever you have to do to get the referral to go! Dont waste time with small time GPs....they have no idea what they are looking for and youll probably wind up getting the "see you in 3 months" thing for the next 3 years! If your eyes are really bothering you, contact an opthamologist NOT AN OPTOMOTRIST immediately. An opthamologist can tell if the optic nerve is inflamed, treat it, or refer you to a neuro-opthamologist. You dont want to play games with this, its very painful and often scary...and its a definate sign to get further evaluation. A good Opthamologist will probably even refer you to a good MS doc..
Good luck. And keep us posted.
Nikki
The advice you got to find an MS clinic was the best advice. YOu can waste years of time dealing with GPs and regular Neuros...at least with an MS clinic you can get your tests done and get things going. Remember, it takes years sometimes (for me only a week) to get a dx...your symtpoms certainly sound like they COULD be MS...and they definately sound like Neurological symptoms..
The doctor you saw sounds like an idiot...definately pursue another neurologist., and if you can go to a specialist, an MS specialist, and there is a large university hosptial or MS center in your area, do whatever you have to do to get the referral to go! Dont waste time with small time GPs....they have no idea what they are looking for and youll probably wind up getting the "see you in 3 months" thing for the next 3 years! If your eyes are really bothering you, contact an opthamologist NOT AN OPTOMOTRIST immediately. An opthamologist can tell if the optic nerve is inflamed, treat it, or refer you to a neuro-opthamologist. You dont want to play games with this, its very painful and often scary...and its a definate sign to get further evaluation. A good Opthamologist will probably even refer you to a good MS doc..
Good luck. And keep us posted.
Nikki
Mishpat70
07-18-2007, 01:45 AM
Hi there, Im new to this board. I dont know where ealse to go really. So I searched for a fourum with people who may have been where I am at right now.
I have been having many MS symtoms for about a year now. They are starting to efect my everyday life now. I have developed a tremor in both my hands. My eyes get blurry cloudy spots in them that come and and sometime I even see double. I have been so tired I can hardly stand to be in my own skin. Im a mom and wife and work and all I want to do is sleep. My list of symtoms go's on and on when I read about MS I feel as though Im reading about my self.
My general Dr Looked at me and ordered a ton of blood work all checked out fine so she made me a app. with a nuro Dr who I seen today. She looked me over got my history and I told her my symptoms she mostly concerned about my tremor, not my eyes nor being tired or all the mucle pain and weakness I have. She gave me a bottle of pill called Topamax? and told me to take one or two a day and wished me good luck and showed me the door out. ??????:mad: I still dont get it? Why wasnt a MRI or more tests ordered.
Years ago I used to have panic disorder and now I think Dr's see that I used to have that and they think its all just stress related and send me on my way.
I called my Dr today as soon as I got home and told her I wanted another referl for another Nero. I hope she gives me one. Is it alway this hard to get someone to listen to you? Im not 100% sure that I have MS but Im pretty darn sure and the least they could do would be to do an MRI on me.
Sorry to vent so much Im just lost and I feel really hopless right now. I was just hoping someone out there could help give me some advice.
I have been having many MS symtoms for about a year now. They are starting to efect my everyday life now. I have developed a tremor in both my hands. My eyes get blurry cloudy spots in them that come and and sometime I even see double. I have been so tired I can hardly stand to be in my own skin. Im a mom and wife and work and all I want to do is sleep. My list of symtoms go's on and on when I read about MS I feel as though Im reading about my self.
My general Dr Looked at me and ordered a ton of blood work all checked out fine so she made me a app. with a nuro Dr who I seen today. She looked me over got my history and I told her my symptoms she mostly concerned about my tremor, not my eyes nor being tired or all the mucle pain and weakness I have. She gave me a bottle of pill called Topamax? and told me to take one or two a day and wished me good luck and showed me the door out. ??????:mad: I still dont get it? Why wasnt a MRI or more tests ordered.
Years ago I used to have panic disorder and now I think Dr's see that I used to have that and they think its all just stress related and send me on my way.
I called my Dr today as soon as I got home and told her I wanted another referl for another Nero. I hope she gives me one. Is it alway this hard to get someone to listen to you? Im not 100% sure that I have MS but Im pretty darn sure and the least they could do would be to do an MRI on me.
Sorry to vent so much Im just lost and I feel really hopless right now. I was just hoping someone out there could help give me some advice.
CJRT
07-18-2007, 09:38 AM
Find another doctor. YOU are your ONLY advocate in this and YOU need to press them on this. I have found this out. I've been dealing with my problems 4 years. I saw an idiot the first time I was sent to a neuro. I got mad and wrote him a scathing letter and sent it to his chief of staff too and I got a reply that he'd be happy to see me again, but he wasn't going to change his mind. So I didn't go back and see him.
I finally, finally, finally found a good neuro. I had typed out a list of symptoms to take with me to help jog my memory. He took it from me. Read it in front of me and discussed each one with me. I was shocked as I didn't think a doctor would take that kind of time.
So there are good ones out there and there are ones that care, but generally on the whole, most neuros have the bedside manner of dishrags and obviously could care less about most patients. But there are good ones. Don't give up. Press your GP about it. I'm lucky my GP is being very supportive on all this.
But I let the first neuro convince me nothing was wrong and 2 years later, I'm worse off. If I had keep pushing to see another, I might have gotten some kind of treatment sooner and my hands wouldn't be as bad as they are right now.
Good luck. YOU know when your body is not right. It doesn't take a medical degree for us to know our own bodies and when things are not as they should be.
But I have also found that if you go in and are organized, act intelligent, calm and professional, they tend to listen more. When I have been frustrated, anxious and even angry, I don't get anywhere with the doctors. I even rehearsed what I was going to say when I saw my latest neuro and I went in with a typed out copy of my complete medical history and my symptoms and he was impressed that I had everything so organized so he could just read it and ask me questions instead of trying to pull stuff out of me. I have also found something interesting. I've seen so many doctors and I notice that when I dress a little nicer, put on makeup, and take more care with my appearance, I also get treated better than when I slop in in jeans, flipflops and hair in a ponytail. I know doctors aren't supposed to judge on appearance, but they are human and I'm sure they do. So I've gotten to wear I put on my "soccer mom" outfit, a little makeup (even when I don't feel like it) and I really get my mind set on what I'm going to say and how I'm going to say it and I've had a lot better results lately. I know that shouldn't matter, but apparantly it does. I almost treat it like a job interview with care in my appearance and with my "resume" in hand and get myself mentally into a "interview" like mindset. I think its made a lot of difference. Even the surgeon I recently saw for my hernia surgery treated me differently when I was dressed better than when I went in in jeans, no makeup and just generally feeling like I'd been run over with a car. The next time, I made more of an effort in my appearance and demeanor and I was amazed at the different way he treated me.
Now I'm sure not all doctors are like this. But this is just my own observations.
And I used to work for a doctor and know from experience that they don't like hysterical patients or ones that come in and are clearly not prepared, have no idea what medication they take, what symptoms they have, etc.
And people on here really encouraged me to make a symptoms list and keep a symptoms diary and that has helped me be able to talk more clearly to the doctors.
Good luck and don't give up the fight. And this board has been GREAT support and inspiration for me, so check out the threads. Some really nice and good people here.
CJ
I finally, finally, finally found a good neuro. I had typed out a list of symptoms to take with me to help jog my memory. He took it from me. Read it in front of me and discussed each one with me. I was shocked as I didn't think a doctor would take that kind of time.
So there are good ones out there and there are ones that care, but generally on the whole, most neuros have the bedside manner of dishrags and obviously could care less about most patients. But there are good ones. Don't give up. Press your GP about it. I'm lucky my GP is being very supportive on all this.
But I let the first neuro convince me nothing was wrong and 2 years later, I'm worse off. If I had keep pushing to see another, I might have gotten some kind of treatment sooner and my hands wouldn't be as bad as they are right now.
Good luck. YOU know when your body is not right. It doesn't take a medical degree for us to know our own bodies and when things are not as they should be.
But I have also found that if you go in and are organized, act intelligent, calm and professional, they tend to listen more. When I have been frustrated, anxious and even angry, I don't get anywhere with the doctors. I even rehearsed what I was going to say when I saw my latest neuro and I went in with a typed out copy of my complete medical history and my symptoms and he was impressed that I had everything so organized so he could just read it and ask me questions instead of trying to pull stuff out of me. I have also found something interesting. I've seen so many doctors and I notice that when I dress a little nicer, put on makeup, and take more care with my appearance, I also get treated better than when I slop in in jeans, flipflops and hair in a ponytail. I know doctors aren't supposed to judge on appearance, but they are human and I'm sure they do. So I've gotten to wear I put on my "soccer mom" outfit, a little makeup (even when I don't feel like it) and I really get my mind set on what I'm going to say and how I'm going to say it and I've had a lot better results lately. I know that shouldn't matter, but apparantly it does. I almost treat it like a job interview with care in my appearance and with my "resume" in hand and get myself mentally into a "interview" like mindset. I think its made a lot of difference. Even the surgeon I recently saw for my hernia surgery treated me differently when I was dressed better than when I went in in jeans, no makeup and just generally feeling like I'd been run over with a car. The next time, I made more of an effort in my appearance and demeanor and I was amazed at the different way he treated me.
Now I'm sure not all doctors are like this. But this is just my own observations.
And I used to work for a doctor and know from experience that they don't like hysterical patients or ones that come in and are clearly not prepared, have no idea what medication they take, what symptoms they have, etc.
And people on here really encouraged me to make a symptoms list and keep a symptoms diary and that has helped me be able to talk more clearly to the doctors.
Good luck and don't give up the fight. And this board has been GREAT support and inspiration for me, so check out the threads. Some really nice and good people here.
CJ
Skinnyjess
07-18-2007, 07:35 PM
Hi there, well I just typed this really long reply and I dont know where it went too? Hmmmm...
Here go's take 2..
I went to see my General Dr today I went over my list of symptoms with her she was pretty understanding that I wanted to see another neuro and she said she would send me to another one. I got another referl to see another nero Dr and when the nurse called in the referl she told the neuro office that it was to rule out poss MS. So maybe this is a start?
Thanks for all the great advice, its nice to know im not alone and the only one that has had to make a Dr look twice and do something that they werent going to do already.
Here go's take 2..
I went to see my General Dr today I went over my list of symptoms with her she was pretty understanding that I wanted to see another neuro and she said she would send me to another one. I got another referl to see another nero Dr and when the nurse called in the referl she told the neuro office that it was to rule out poss MS. So maybe this is a start?
Thanks for all the great advice, its nice to know im not alone and the only one that has had to make a Dr look twice and do something that they werent going to do already.
MSNik
07-18-2007, 10:11 PM
YEAH! Thats great that they were cool and actually helped you to get another appointment. Yes, I would say this is a really good start! Congrats. Someone who took you seriously and was willing to give you a hand...rare in the MS world!
Good. Rule out MS. or confirm it. Either way, it will be a relief to you and youll have our support no matter what!
Nikki
Good. Rule out MS. or confirm it. Either way, it will be a relief to you and youll have our support no matter what!
Nikki
MS for life
07-18-2007, 10:49 PM
Speaking of neuro's, I was leary when I was told by my Internal doctor's nurse who was making the appointment that it was going to take five weeks, but he was worth the wait. Then she said to me, he's a little quirky, but he's a very good doctor. Then I commented that to the nurse when I got in there before seeing the neuro. She seemed stressed over something falling off his desk and trying to get it back in just the right order. She looked at me like, well I guess that's a good way to put it "quirky".
Well, he came in and by the time I was done, I felt like I was interogated by a computer, the way his brain seemed to be working overtime. However, I did get him to crack a smile a couple of times and saw that there was more to him than just an excellent brain. He just kept saying, you are such a healthy person, I want to get this right and not overlook anything.
The second time out, while waiting for him to come in about my nerve conductivity test, the nurses were all in a huff because he was considering canceling his vacation set up in August. I laughingly guessed correctly that when he takes a vacation, they get a vacation.
So, after he said I did not have carpal tunnel and nothing else looked permanent yet, he then went the step closer to stating that things are looking more and more like MS and had I done my homework he gave me on the medicine. When I explained that I had done my first round with the book he gave me, and then put it down for a couple of days to go back and read again when my emotions had settled down, he was so sweet about this whole thing not being the end of the world and the fact that I was so healthy probably made me more aware of my body to pick up on the symptoms so early. He has me convinced that if we get going with this, I may beat it altogether. Regardless, I know I have someone in my corner fighting with me.
So, if he drives his employees crazy to give me what I need, this time I will be selfish and take it because I just love him!
My point during this long winded response, is that the right doctor can make a huge difference. You should not only feel confident with his findings and recommendations, but also comfortable confiding in him.
Well, he came in and by the time I was done, I felt like I was interogated by a computer, the way his brain seemed to be working overtime. However, I did get him to crack a smile a couple of times and saw that there was more to him than just an excellent brain. He just kept saying, you are such a healthy person, I want to get this right and not overlook anything.
The second time out, while waiting for him to come in about my nerve conductivity test, the nurses were all in a huff because he was considering canceling his vacation set up in August. I laughingly guessed correctly that when he takes a vacation, they get a vacation.
So, after he said I did not have carpal tunnel and nothing else looked permanent yet, he then went the step closer to stating that things are looking more and more like MS and had I done my homework he gave me on the medicine. When I explained that I had done my first round with the book he gave me, and then put it down for a couple of days to go back and read again when my emotions had settled down, he was so sweet about this whole thing not being the end of the world and the fact that I was so healthy probably made me more aware of my body to pick up on the symptoms so early. He has me convinced that if we get going with this, I may beat it altogether. Regardless, I know I have someone in my corner fighting with me.
So, if he drives his employees crazy to give me what I need, this time I will be selfish and take it because I just love him!
My point during this long winded response, is that the right doctor can make a huge difference. You should not only feel confident with his findings and recommendations, but also comfortable confiding in him.
Skinnyjess
07-21-2007, 01:48 PM
Hey there,
I have a small update!...
I went to my reg eye dr yesterday because my eye is driving me nuts! She was really concerned and got me in right away and did a full exam on me. She used die and checked my preasure she checked my color sight and my vison. She said there is no reason that my eye should be doing this everythig is perfect with my eyes. She then got on the phone her self and made me a asap appointment with a optic nerve speacialist to see if I have optic nurphosis? Sorry sp? it was a long word when she said it...
The dr is going to see me on Friday.
She sais she dosnt have the scans and tools to see the part of the optic nerve she needs to see for MS. But she asked me a ton of qestions even more them my Dr did. She asked if my vision changes in the shower even. She told me she was really worried about me and that she was going to do what she could to to get me the help I need asap because it didnt see that my reg Dr was going to do it.
I need to send her a basket of cookies! She was alsome! Im going to be upset if I have MS and it took a reg eye Dr to fight for a Dx for me. That is sad huh? She will be my fav Dr for ever. And my angel !
So Im not sure what is going to happen on Friday what the other dr is going to do to me? Has anyone seen one of these Dr's before?
Thanks for the suport you guys are the best! I dont have anyone... Other then my husband I havent told any family about this. I dont really have much of a family suport system other them my husband so it really helps to get on here and talk with you.
THANK YOU!!!!!
I have a small update!...
I went to my reg eye dr yesterday because my eye is driving me nuts! She was really concerned and got me in right away and did a full exam on me. She used die and checked my preasure she checked my color sight and my vison. She said there is no reason that my eye should be doing this everythig is perfect with my eyes. She then got on the phone her self and made me a asap appointment with a optic nerve speacialist to see if I have optic nurphosis? Sorry sp? it was a long word when she said it...
The dr is going to see me on Friday.
She sais she dosnt have the scans and tools to see the part of the optic nerve she needs to see for MS. But she asked me a ton of qestions even more them my Dr did. She asked if my vision changes in the shower even. She told me she was really worried about me and that she was going to do what she could to to get me the help I need asap because it didnt see that my reg Dr was going to do it.
I need to send her a basket of cookies! She was alsome! Im going to be upset if I have MS and it took a reg eye Dr to fight for a Dx for me. That is sad huh? She will be my fav Dr for ever. And my angel !
So Im not sure what is going to happen on Friday what the other dr is going to do to me? Has anyone seen one of these Dr's before?
Thanks for the suport you guys are the best! I dont have anyone... Other then my husband I havent told any family about this. I dont really have much of a family suport system other them my husband so it really helps to get on here and talk with you.
THANK YOU!!!!!
MSNik
07-21-2007, 01:53 PM
Hi Skinnyjess.
Thats great that you found yet another doctor who took an interest in you. The disease you are talking about is Optic Neuritis..which simply means inflammation of the optic nerve. And, it is true, your regular doc might not have the equiptment to see behind the eye to see if the optic nerve is inflamed..
The test itself doesnt hurt, and its rather quick, however its really important that you have it done. Your symtpoms might very well be ON as it is called.
Optic Neuritis is a huge part of MS, not everyone suffers from it, however, I do, and its quite painful at times....the only treatment is steroids, or to ride it out, however riding it out can be risky (damage to the eye permanetly) and also really painful. Steroids treat it in a few days....
keep us posted, and sounds like you are getting some great care. Good for you!
Nikki
Ps if you reserach Optical Neuritis on this board, youll find TONS of info on that part of MS...
Thats great that you found yet another doctor who took an interest in you. The disease you are talking about is Optic Neuritis..which simply means inflammation of the optic nerve. And, it is true, your regular doc might not have the equiptment to see behind the eye to see if the optic nerve is inflamed..
The test itself doesnt hurt, and its rather quick, however its really important that you have it done. Your symtpoms might very well be ON as it is called.
Optic Neuritis is a huge part of MS, not everyone suffers from it, however, I do, and its quite painful at times....the only treatment is steroids, or to ride it out, however riding it out can be risky (damage to the eye permanetly) and also really painful. Steroids treat it in a few days....
keep us posted, and sounds like you are getting some great care. Good for you!
Nikki
Ps if you reserach Optical Neuritis on this board, youll find TONS of info on that part of MS...
moore170
07-21-2007, 05:01 PM
Find a neuro that specializes in MS. You are not crazy to think you may have it. If you do have it the sooner you start treatment the better. If you don't have MS whatever is going on needs to be treated too. You know your body so just keep going until you get answers to your questions.
Candy
Candy
kimmy57
07-22-2007, 12:39 AM
Hello. I went through the same thing. I lost the vision in my right eye over a course of two weeks. I saw my optometrist twice. On the second visit, he referred me to an opthomologist and secured an appointment the same week.
The op. ran tests then came in and said, "I think you may have MS." I was at a neurologist's office the next day, and had an MRI that same week. I was diagnosed at the beginning of the next week - all within a month. I thank God that my eye doctor was diligent enough to admit that he thought it was a problem with the optic nerve and I needed specialists. I also thank God that I found out as quickly as I did. I wish I didn't have this, but I have heard so many stories about people visiting doctor after doctor and having test after test. Good luck - -
The op. ran tests then came in and said, "I think you may have MS." I was at a neurologist's office the next day, and had an MRI that same week. I was diagnosed at the beginning of the next week - all within a month. I thank God that my eye doctor was diligent enough to admit that he thought it was a problem with the optic nerve and I needed specialists. I also thank God that I found out as quickly as I did. I wish I didn't have this, but I have heard so many stories about people visiting doctor after doctor and having test after test. Good luck - -
Hope4All
07-22-2007, 07:56 AM
Hey there,
I have a small update!...
I went to my reg eye dr yesterday because my eye is driving me nuts! She was really concerned and got me in right away and did a full exam on me. She used die and checked my preasure she checked my color sight and my vison. She said there is no reason that my eye should be doing this everythig is perfect with my eyes. She then got on the phone her self and made me a asap appointment with a optic nerve speacialist to see if I have optic nurphosis? Sorry sp? it was a long word when she said it...
The dr is going to see me on Friday.
She sais she dosnt have the scans and tools to see the part of the optic nerve she needs to see for MS. But she asked me a ton of qestions even more them my Dr did. She asked if my vision changes in the shower even. She told me she was really worried about me and that she was going to do what she could to to get me the help I need asap because it didnt see that my reg Dr was going to do it.
I need to send her a basket of cookies! She was alsome! Im going to be upset if I have MS and it took a reg eye Dr to fight for a Dx for me. That is sad huh? She will be my fav Dr for ever. And my angel !
So Im not sure what is going to happen on Friday what the other dr is going to do to me? Has anyone seen one of these Dr's before?
Thanks for the suport you guys are the best! I dont have anyone... Other then my husband I havent told any family about this. I dont really have much of a family suport system other them my husband so it really helps to get on here and talk with you.
THANK YOU!!!!!
Hi there! I'm going to have my brain MRI on Friday. I found something very interesting in your post. What did the Dr mean when asked if your vision changed in the shower? I see shooting stars in the shower and a few times the shower water looked like balls of fire. My neuro said I was hallucinating!!!!!!
Is this an MS sign that anyone knows of?
Hope
I have a small update!...
I went to my reg eye dr yesterday because my eye is driving me nuts! She was really concerned and got me in right away and did a full exam on me. She used die and checked my preasure she checked my color sight and my vison. She said there is no reason that my eye should be doing this everythig is perfect with my eyes. She then got on the phone her self and made me a asap appointment with a optic nerve speacialist to see if I have optic nurphosis? Sorry sp? it was a long word when she said it...
The dr is going to see me on Friday.
She sais she dosnt have the scans and tools to see the part of the optic nerve she needs to see for MS. But she asked me a ton of qestions even more them my Dr did. She asked if my vision changes in the shower even. She told me she was really worried about me and that she was going to do what she could to to get me the help I need asap because it didnt see that my reg Dr was going to do it.
I need to send her a basket of cookies! She was alsome! Im going to be upset if I have MS and it took a reg eye Dr to fight for a Dx for me. That is sad huh? She will be my fav Dr for ever. And my angel !
So Im not sure what is going to happen on Friday what the other dr is going to do to me? Has anyone seen one of these Dr's before?
Thanks for the suport you guys are the best! I dont have anyone... Other then my husband I havent told any family about this. I dont really have much of a family suport system other them my husband so it really helps to get on here and talk with you.
THANK YOU!!!!!
Hi there! I'm going to have my brain MRI on Friday. I found something very interesting in your post. What did the Dr mean when asked if your vision changed in the shower? I see shooting stars in the shower and a few times the shower water looked like balls of fire. My neuro said I was hallucinating!!!!!!
Is this an MS sign that anyone knows of?
Hope
MSNik
07-22-2007, 10:23 AM
If your Neuro actually said that, hes an idiot.
Heat, especially in the shower - affects the Myelin....and can cause shooting stars, as well as dizziness, nauseu and overall sickness. You hear alot about heat sensitivity with MS...it usually starts with hot showers. DO NOT ever take a bath, or a jaccuzzi- it will wipe you out for days.
If you are taking a hot shower, and you see those stars- its pretty normal for having MS...cool the water down gradually until it is cold. You want to lower your core temp as quickly as possible and things will start to reverse(righten) themsevles..
However, in the future, stay out of HOT showers...tepid, at best.
Heat, especially in the shower - affects the Myelin....and can cause shooting stars, as well as dizziness, nauseu and overall sickness. You hear alot about heat sensitivity with MS...it usually starts with hot showers. DO NOT ever take a bath, or a jaccuzzi- it will wipe you out for days.
If you are taking a hot shower, and you see those stars- its pretty normal for having MS...cool the water down gradually until it is cold. You want to lower your core temp as quickly as possible and things will start to reverse(righten) themsevles..
However, in the future, stay out of HOT showers...tepid, at best.
Skinnyjess
07-22-2007, 01:13 PM
Its been a couple years now that I have noticed the twinkling spots that apear only in the shower and dance aroud the shower walls. I have told my Dr of these for years and she has given me a couple things of what they could be. I have noticed if I take cooler showers I dont get them. I also get dizzy or weak.
I had a weird thing with my eye lastnight and I have to admit I had a little break down fit. :( .... We were going out to dinner with friends and on the way there my eye started acting up but this time it was the other eye and then it started to get warm inside my eye? It started to freak me out a bit. My husband said is your eyes bothering you again? I went into a bit of a hissy fit... I said.. Hell YES! and my leg muscle is flippin killing me too and my eye is getting hot! Im so sick of everyday there is something wrong with me somewhere and no one can find what it is...Some should take me out to the paster and shoot me! :mad: .... There was a moment of quiet and then my husband put his hand on me and said They will figure it out honey they are doing all kinds of tests on you someone will find what it is. Sometime my husband can be the biggest pain in my but ....BUT sometimes Im so glad I have him.
I had a weird thing with my eye lastnight and I have to admit I had a little break down fit. :( .... We were going out to dinner with friends and on the way there my eye started acting up but this time it was the other eye and then it started to get warm inside my eye? It started to freak me out a bit. My husband said is your eyes bothering you again? I went into a bit of a hissy fit... I said.. Hell YES! and my leg muscle is flippin killing me too and my eye is getting hot! Im so sick of everyday there is something wrong with me somewhere and no one can find what it is...Some should take me out to the paster and shoot me! :mad: .... There was a moment of quiet and then my husband put his hand on me and said They will figure it out honey they are doing all kinds of tests on you someone will find what it is. Sometime my husband can be the biggest pain in my but ....BUT sometimes Im so glad I have him.
MSNik
07-22-2007, 03:18 PM
Jess,
Sounds like you better do everything you can to keep this husband of yours...they show their true colors now and then, dont they??;)
hes right. You need to be both patient, and calm...being upset and nervous only aggravates the immune system and thus brings on all sorts of new symptoms. You have to Handle MS not let MS handle you...and even though you arent 100% sure of the MS aspect, whatever it is, its mimicing MS pretty well....heat- avoid it. Totally and at all costs...especially during the hottest days of the year..remmeber when you used to think a HOT shower would feel SOOO good on a cold winter morning? Forget it. And, the days when you ache and are dying to sit in a hot bathtub? Forget it...you need to start getting used to avoiding the heat. Your eyes are going to be the single most important thing to take care of, and heat affects them first, and fatigue second.
The very best advice I can give you is to try to relax. Find a way...trashy magazines your thing? Read them. Movies? Great- stick with comedies or drama...no tear jerkers! Like to swim? Great way to stay focused on what you are doing....laps are especially good to try to knock out! Yoga, excellent if you have the patience, I cant hack it...JUST KEEP BUSY and stop thinking about how you feel every minute of every day. I know that sounds cold, and it isnt meant to be, but you truly cant appreciate when you feel good, if you are soo foclused on when you feel bad. Believe me, when you have bad days, youll know it! Right now, you are having massive anxiety over this, and thats perfectly normal and understandable...but right now, you better go hug that man of yours and promise him youll try to handle this....
This is harder on our loved ones then us at some points...with that said, imagine how he is feeling, knowing how scared you are? You have to both reassure him, and yourself, that you will get to the bottom of this and deal with it.
This is the absolute best place to vent and share fears and anxieties- thats why we are all here...so keep on bringing them on and Ill keep trying to help you by responding...ok?
Hugs,
Nikki
Sounds like you better do everything you can to keep this husband of yours...they show their true colors now and then, dont they??;)
hes right. You need to be both patient, and calm...being upset and nervous only aggravates the immune system and thus brings on all sorts of new symptoms. You have to Handle MS not let MS handle you...and even though you arent 100% sure of the MS aspect, whatever it is, its mimicing MS pretty well....heat- avoid it. Totally and at all costs...especially during the hottest days of the year..remmeber when you used to think a HOT shower would feel SOOO good on a cold winter morning? Forget it. And, the days when you ache and are dying to sit in a hot bathtub? Forget it...you need to start getting used to avoiding the heat. Your eyes are going to be the single most important thing to take care of, and heat affects them first, and fatigue second.
The very best advice I can give you is to try to relax. Find a way...trashy magazines your thing? Read them. Movies? Great- stick with comedies or drama...no tear jerkers! Like to swim? Great way to stay focused on what you are doing....laps are especially good to try to knock out! Yoga, excellent if you have the patience, I cant hack it...JUST KEEP BUSY and stop thinking about how you feel every minute of every day. I know that sounds cold, and it isnt meant to be, but you truly cant appreciate when you feel good, if you are soo foclused on when you feel bad. Believe me, when you have bad days, youll know it! Right now, you are having massive anxiety over this, and thats perfectly normal and understandable...but right now, you better go hug that man of yours and promise him youll try to handle this....
This is harder on our loved ones then us at some points...with that said, imagine how he is feeling, knowing how scared you are? You have to both reassure him, and yourself, that you will get to the bottom of this and deal with it.
This is the absolute best place to vent and share fears and anxieties- thats why we are all here...so keep on bringing them on and Ill keep trying to help you by responding...ok?
Hugs,
Nikki
moore170
07-22-2007, 04:32 PM
I believe stress is the worst thing for MS. I was finally diagnosed when my husband was diagnosed with stage IV hodgkins disease. The stress brought out symptoms that could not be ignored. Every other stressful time since then has brought on exacerbations.
Nikki and hubby are right - try to relax. For me deep breathing and YOGA are good for others it is something else. Whatever works to reduce your anxiety do it - although impossible to do away with stress completely do your best to minimize it as much as you can.
Candy
Nikki and hubby are right - try to relax. For me deep breathing and YOGA are good for others it is something else. Whatever works to reduce your anxiety do it - although impossible to do away with stress completely do your best to minimize it as much as you can.
Candy