Hi All, I have been feeling so hot and sweaty for the last few days. Actually, can not really sleep. I am sort of sweaty for my neck, upper body. Is this part of RSD symptoms? What can be done about it beside being naked?
Anita

Its kinda the nature of the beast. You sympathetic system controls that. for me it comes and goes. Im glad they are jumping to the blocks right away. You might be of the lucky ones and get out of this mess! Keep a positive attitude and dont fret. Everything will work its due course.

Just try not to get ahead of yourself and take it day by day. Sometimes day by day doesnt work so I go momment to momment. :)

Jon

Thank you Jon for the encouragement! Yestersday, i think i had a nervous break down after RSD is confirmed by a doctor. I don't have the block schedule yet but hopefully soon as i need to see the PM doctor first.
I really hope that my RSD will stop progressing. It seems progressing quite rapidly.
Anita

hi guys, i also have the hot thing going. it is awful. my hubby will feel me and my body seems cold but i will be dripping sweat. i get very cranky when i sweat so, it's not cool. it comes and goes. this is a newer symptom for me. also newer symptom is daytime sleepiness. went to my pm last month and he said it was from the rsd so he gave me provigil. did not help at all. so bad im having trouble driving. can't seem to keep my eyes open. this is not good as i drive my daughter to summer camp everyday. went to pm today and saw the partner. he said it's not from rsd to go and get a sleep study from my primary doc. do any of you have trouble with excess daytime sleepiness???? it;s driving me crazy. sorry, off the subject here. anyway, hope every has a pain free night, patti

Anita,
The sweats do come and go. Do you notice they come more when your doing something? Theres not much you can do, I start peeling off the clothes.. In the winter I use to wear shorts, then two hrs later Iam like its so cold in here.. It comes and goes so fast.. I actually though I was going through early menopause or something.. This was all before I was dx. I think Jon is right.. sound like your getting early treatment. Thats a good sign.. Rightnow everything is flaring up for you.. Its like a sparkler going off inside you going crazy.. I think once you start the treatments it will all slow down for you.. I was the exact way. Mine progressed quickly.. I woke one day in my hands and quickly to my feet and extremities. The sparks have calmed down now.. Its a differant type of pain then when I first started.
Are you seeing a therapyist at all.. It might help. I can tell your head is spinning right now. Gosh I remember those days so clearly.. My family finally talked me into going to therapy.. It helps just to get your feelings out.. Are you taking any antidepressants?
I know your scared. The unknown is the worst. Just rememeber everyone is differant. Try not to think of the worst. I think its great that YOur going in the right direction. Thats a good sign.. It seems to me you were dx very fast.. Thats a big plus.. Hopefully the can put you in remission.. In the mean time.. Take some time for yourself.. Try to relax alittle.. Sit in the room by yourself.. With some nice soft music. Just try to lower your anxiety.. I feel for you so much.. I wish I could just come over there and hug you.. Sounds like you need it... We are all here for you.. Take it easy.. "hugs"
Michelle

Michelle,
I am so glad to have the support from you and others. I am literally having a nervous break down ( crying, anxious, depressed, confused, etc). Last night i was able to fall asleep a little bit. I will be seeing a pain psychologist.
I am like you. I woke up one day, my hands got numb and dry with alot of wrinkles, then a few days later, it started to swell, stiff and pain set in. Then i felt my feet were going through the familar process (the ball of my feet gets puffy and painful when standing and walking and toes started to wrinkles). Can you tell me what were your symptoms with your feet?
Thanks for your hugs!
Anita

Anita,
I had basically the same symtoms.. I started noticeing my feet at work. Only when I would sit down in between pts.. It was a weird joint pain feeling. By the time I would get home from work.. They would burn so bad. It wasn't until I went to bed where they would start swelling up.. AT that time I was still using ice on them.. I had no idea I had RSD.. I did have the same thing on the bottom balls of my feet.. I would get out of that bed and touch the rug.. Oh god.. it was so painful.. Those symtoms seemed to disappear is I had the lidocaine treatment. I still get it once in a while.. not much though..
Do you have any involuntary muscle movement in your legs... I had to keep moving constantly.. I hated it.. I do have the prune look to the feet and hands. My veins protrude alot.. and my toes look blueish purple alot of the times..
Michelle

Michelle,
I don't have too much involuntary movements of my legs yet. However, i have noticed the color change on the bottom of my feet from red, blueish red or purple and then pale color. My big toe wrinkles and the color is more pale. Sound like RSD on my feet? At first, i was only paying attention to my hands and totally ignore why my feet were burning so bad. Me too, i used a lot of ice. I would stand on the ice water as i was icing my butt pain. Me too, my veins on my hands are dilated and puffy too? Is that the symtoms of RSD?
Thanks for sharing your experience!
Anita

I don't know if it is menopause or the RSD. I dont have hot flashes I have sweats. It pours off of me especially my face and neck. Either way it helps to cut back on caffeine, avoid stress, (yeah haha) and for me sleep with the window open. It is almost like a panic throwing back the blankets when the heat hits, poor chihuahuas go flying

Sweat pours down my husband's back. He has to change his shirt several times a day, and sometimes even his pants! I guess it must not be a side effect of methadone if you all have it and take various other medicines.
Sunny

I can't wait for winter..cold winds, snow...ok..I know I will still sweat. I have a small house, and my elec bill this month is almost 300. why...because I keep my house cold. My daughter, who was visiting, was sitting on the couch under a blanket. hubby had a flannel shirt on. She touched my arm and said how cold I was. Then I asked her to explain why I had a lot of sweat on my face and neck. Her reply was expected. I think it had the word weird in it.(lol). all I can say is I HATE SUMMER::mad:
Mary
:angel:

Anita,
I would say you have alot of the symtoms. They all come at differant times. Not for everyone but most of it.. Do you symtoms is your feet ever go away? I noticed mine were more towards late afternoon into the nite.. I would wake up with alot of pain. Then as I started moving around more I was a little better.. I talked to my dr about it.. He said what happens is, when your moving around your not concentrating on the pain as much. When your laying there of course your brain starts thinking.. Kind of makes sense.
You know what I wanted to ask you.. In the begining I had alot of sensitivity.. Not so much to the touch with the hand. I rememeber dropping a comb on my foot.. I went through the ceiling.. I was going through all of this not knowing I had RSD.. I would tell my PT all of this.. He must of thought I was crazy. lol lol..
It sounds to me like you are educating yourself pretty good. Thats great.. Are the meds working for you at all?
Thinking of you
Michelle

Hi Guys,

I am convinced the sweating is related directly to the RSD and not the meds. As soon as I got my pump which has bupivacaine in it, the sweating stopped. At that point, I was still taking oral meds so if it had been related to the meds, it would have continued, but it didn't (from what I remember). The bupivacaine is similar to lidocaine, marcaine, etc which they put in blocks to quiet the sympathetic system. My "theory" is that the bupivacaine is constantly going in to my system quieting down my sympathetic system which among other things, has caused the sweating to stop. YAY! I wish the same for all of you as I know how bad the sweating can get.

Sharon :)

I agree with sharon. While I was recieving the blocks I stopped sweating and then about a week or so after finishing they came back. They were using marcaine so im under the assumption it mellowed my sympathetic system down a bit. I did sweat in the beginning but it was due to the steroids she was using.


Jon

Sweating was one of the symptoms that pointed my doctors toward the RSD diagnosis in the beginning.
I remember telling my PT one day that my palms would just start profusesly sweating for no reason....she said maybe you have a touch of RSD. Looking back what an insane statement that was... a touch of RSD :confused:
After my second block my RSD went cold....ice cube arms. Since then have been on blood pressure meds to increase circulation. I can have 2 pairs of socks on and my feet are still cold to the touch.
I can't deal with temperature extremes in either direction....hot or cold...and the humidity is killing me but looking towards the winter I don't know how I'll handle that. If I could keep the temperature at a constant 80 degrees with zero humidity...what a dream that would be :)
Jeanne

Jeanne,
I am the same as you when it comes to humity.. I flare up so much.. I have my air on constantly.. I like it be about 75.. I can't handle it colder then that or I flare up because I am so cold.. The cold weather kills me.. I just get that deep bone pain, body joints. In the warm weather I swell more and my hands and feet burn so bad.. Today was very humid here. my feet hurt so much.. I've been slippers all day.. Even when I have to out.. I don't care what people say anymore.. they can look all they want..
Michelle