Hi Folks

Hopefully I am bringing some good news here on the PET front!!!

I have been trying many treatments with my Natropath and we have been led to antifungal treatments.

The reason this happened is that I read a message from a PET sufferer on a different healthboard and a natropath Dr answered and said have you considered a fungal problem... This got me thinking as my PET started when I moved to a tropical place, also that my PET is better in winter and in dry conditions and fungus is dormant in those conditions.. another thing was that my ear feels very itchy when my PET is worse, I also have candida problems..

I don't however have any pain in my ears which you would expect with a fungal problem, anyway we thought what the hell lets try it, she has put me on a couple of antifungal tablets (natural) and antifungal ear drops, let me know if you want to know the ingredients.

Well it's only been a few days and my ear has improved heaps, today I have had no problems at all, and yesterday it was pretty good, at first my ear itched worse than ever and has some pain but that could be a healing crises..

Anyway I could be counting my chickens too soon and it's just a coincedence but I will keep you posted on the progress... It is possible that for me a fungal problem is contributing to the PET but that may not be the case for you, but who knows it's worth a try..

Good luck to us all :angel:

Hi Folks

Hopefully I am bringing some good news here on the PET front!!!

I have been trying many treatments with my Natropath and we have been led to antifungal treatments.

The reason this happened is that I read a message from a PET sufferer on a different healthboard and a natropath Dr answered and said have you considered a fungal problem... This got me thinking as my PET started when I moved to a tropical place, also that my PET is better in winter and in dry conditions and fungus is dormant in those conditions.. another thing was that my ear feels very itchy when my PET is worse, I also have candida problems..

I don't however have any pain in my ears which you would expect with a fungal problem, anyway we thought what the hell lets try it, she has put me on a couple of antifungal tablets (natural) and antifungal ear drops, let me know if you want to know the ingredients.

Well it's only been a few days and my ear has improved heaps, today I have had no problems at all, and yesterday it was pretty good, at first my ear itched worse than ever and has some pain but that could be a healing crises..

Anyway I could be counting my chickens too soon and it's just a coincedence but I will keep you posted on the progress... It is possible that for me a fungal problem is contributing to the PET but that may not be the case for you, but who knows it's worth a try..

Good luck to us all :angel:

Thanks, petear... I've been suffering with what I think is PET for almost 8 years now; and would be very interested in how your therapy is going if you'll keep us posted. Also, I'd appreciate it if you could share the ingredients of the pills and drops like you mentioned. Thanks.

Ingredients Below

Formula SF722 which contains 10-Undecenoic Acid and KI immune defence which contains Astragalus, Shitake mushroom, Olive leaf extract... Ear drops
5Ml Thuja, 10MlEthenol and 10MlCider Vinegar. From a Natropath.

It's been 4 PET free days now and no itching sensation in my ear, I can't say for sure that it's this treatment but it seems to be.. If I'm still good in 6 - 12 months then I would say yes definately. So I will keep everyone posted with a weekly or monthly update, If you don't hear from me then it's still working.

Hey I just did a search on 10-Undecenoic Acid and it can irritate the mucous membranes in some people, maybe that's why it's working??? Give it a go people and tell me what happens!!!

Just saw this quote and love it:

"The doctor of the future will give no medicine, but will interest his patients in the care of the human frame, in diet, and in the cause and prevention of disease."
Thomas A. Edison

petear: Where do you buy your ear drops and pills?

I've been suffering with PET for almost 4 years now and I would be very interested in learning how others have coeped with this annoying condition. I had an appt. with a specialist today in Ohio, Dr. Clifford Megarian, he prescribed some steroid nasal drops and told me that there was nothing else that could be done. I've tried the nasal drops before, they did not help me at all. He told me that I have to live with this annoying condition. I was heart broken. I truely was. I cried a few tears as soon as I got to my van. I am willing to try anything. Please share with me what has worked for you and what has not. Thank you, annsdc2007

The ear drops were made up by my natropath and she gave me the pills, if you do an internet search I'm sure you will find a place that sells them, I'm in Australia and I think she orders her stuff from New Zealand.. I actually think the pills: Formula SF722 is what is working so try those first.

I've been suffering with PET for almost 4 years now and I would be very interested in learning how others have coeped with this annoying condition. I had an appt. with a specialist today in Ohio, Dr. Clifford Megarian, he prescribed some steroid nasal drops and told me that there was nothing else that could be done. I've tried the nasal drops before, they did not help me at all. He told me that I have to live with this annoying condition. I was heart broken. I truely was. I cried a few tears as soon as I got to my van. I am willing to try anything. Please share with me what has worked for you and what has not. Thank you, annsdc2007

Me too I have had it for 11 years and have been told the same stories, I have recently read that steriods and antibiotics will make a fungal problem worse, so if fungal is related to PET you can see how these things don't work!! Try the SF722 it's the only thing that has worked so quickly for me it's amazing... 6 days PET free now!!!

PETEAR: Its great that the drops and pills are working for you. However I have a coupla questions for you:

1) You said you're using Ear Drops..is that correct? If YES, I am surprised that its working coz there is no way for the drops to reach the ET through the ear. You can only get to it by using nose drops or something through the mouth.
2) You mentioned that maybe the mucous membranes are being irritated. But how can the mucous membranes be irritated through the ears since there are located in the nasal passage where you sinuses are?

Just wanted to clarify these points with you.

Take Care-
KSM79

I know it doesn't make sense it just SEEMS to be working..

I don't think the ear drops are doing anything personally, I think it's the SF722 I am pretty sure I have had systemic candida for some time and this has rid it, MAYBE the candida had some sort of chain reaction that affected the et tube like made me more susceptible to allergies or something, who knows...

The comment about mucous membranes was that I looked up the ingredients in SF722 and it said it may cause irritation of the mucous membrane in some people but I think that is if you come in contact with the liquid, if you broke the capsule open, i'm not really sure...

It could all be a co-incedence and it's because the barometric pressure has dropped or something but it seems a bit weird that I was really chronic and came good three days after taking the tablets.

I would like to see if anyone else gets results from taking it too, to see if it really is the tablets.

Who knows the body is a mysterious place and things don't always make sense, I just want to share my experience and hope that I may help someone else so they don't suffer for 11 years like I did...

7 days now PET free...

Well I cut down on the SF722 and didn't take the KI immune support and my ear is playing up a bit, very interesting!!!! so I'm not sure which is the one that helps the most.. I think I will go back on the prescribed dose again and experiment later...

Well I cut down on the SF722 and didn't take the KI immune support and my ear is playing up a bit, very interesting!!!! so I'm not sure which is the one that helps the most.. I think I will go back on the prescribed dose again and experiment later...


- Interesting... Let us know what happens if you increase the dosage- a lot of us want to know!!

Hi Folks

Hopefully I am bringing some good news here on the PET front!!!

I have been trying many treatments with my Natropath and we have been led to antifungal treatments.

The reason this happened is that I read a message from a PET sufferer on a different healthboard and a natropath Dr answered and said have you considered a fungal problem... This got me thinking as my PET started when I moved to a tropical place, also that my PET is better in winter and in dry conditions and fungus is dormant in those conditions.. another thing was that my ear feels very itchy when my PET is worse, I also have candida problems..

I don't however have any pain in my ears which you would expect with a fungal problem, anyway we thought what the hell lets try it, she has put me on a couple of antifungal tablets (natural) and antifungal ear drops, let me know if you want to know the ingredients.

Well it's only been a few days and my ear has improved heaps, today I have had no problems at all, and yesterday it was pretty good, at first my ear itched worse than ever and has some pain but that could be a healing crises..

Anyway I could be counting my chickens too soon and it's just a coincedence but I will keep you posted on the progress... It is possible that for me a fungal problem is contributing to the PET but that may not be the case for you, but who knows it's worth a try..

Good luck to us all :angel:

Petear - I am intrigued because my PET is also at its worst in hot, humid weather, like it is every day in the DC summer.

Sorry folks
It stopped working, I think it might of been a coincedence or something but I had a wonderful couple of PET free weeks, it came back though and I still have it even though my Natropath increased the dose..

I see another ENT in November he is a Prof and apparently the man to see, so lets see what happens.

On the other hand I found that if I grab my throat to create pressure and then kind of strain my throat it works quite well at closing the tube, hey don't know if it's a safe thing to do though so be careful.

Hi I have had a head cold and hayfever and my tube has stayed close for more than seven days now, does anyone else experience that?

Hi Folks

Hopefully I am bringing some good news here on the PET front!!!

I have been trying many treatments with my Natropath and we have been led to antifungal treatments.

The reason this happened is that I read a message from a PET sufferer on a different healthboard and a natropath Dr answered and said have you considered a fungal problem... This got me thinking as my PET started when I moved to a tropical place, also that my PET is better in winter and in dry conditions and fungus is dormant in those conditions.. another thing was that my ear feels very itchy when my PET is worse, I also have candida problems..

I don't however have any pain in my ears which you would expect with a fungal problem, anyway we thought what the hell lets try it, she has put me on a couple of antifungal tablets (natural) and antifungal ear drops, let me know if you want to know the ingredients.

Well it's only been a few days and my ear has improved heaps, today I have had no problems at all, and yesterday it was pretty good, at first my ear itched worse than ever and has some pain but that could be a healing crises..

Anyway I could be counting my chickens too soon and it's just a coincedence but I will keep you posted on the progress... It is possible that for me a fungal problem is contributing to the PET but that may not be the case for you, but who knows it's worth a try..

Good luck to us all :angel:
That is wonderful news! I have been suffering with PET on and off for about a year now. It is the most frustrating, irritating and socially debilitating problem. I am a 37 year old pregnant mom (due in jan 2008) and I already have 2 1/2 year old boy/girl twins. It is hard to be a good mom and function normally throughout the day when you feel so uncomfortable with this hearing problem. I hear my own voice at distracting and deafening levels in both ears from time to time...but mainly my right ear. It all started after I had a severe ear infection in my right ear and than fluid in my middle ear. I had my ear drained and I went on Prednisone. It eventually "went away" for 6 months. In early August (16 weeks pregnant), I developed severe sinus congestion where I would blow my nose so hard to get the gunk out. That started teh popping and crackling...etc. Then my voice "popped back in my head" as loud as ever and lasted for 2 1/2 months. Just when it went away for one week (after visiting a holistic Chiropractor), I developed a severe sinus infection AGAIN!!! Both ears completely clogged up and this lasted for two plus weeks. As soon as the congestion started clearing, the "LOUDNESS" returned. The ONLY relief I get is when I lay on my side or put my head between my legs of sniffle in really hard to clog my tubes for a minute...until I swallow. This has been a HORRIBLE problem to deal with. I love to sing...used to sing professionally. That is no longer an option. Does anyone have any answers for me or natural remedies?? I hope we all find a "cure" for this debilitating problem.

Hi BabyTimes,

No definitive answers here, but I think Petear may have been on to something with the whole fungus idea...based on the theory that my acid reflux (LPR) resulting from fungus or some other bacteria in the system, I'm trying to eat a simpler, more natural diet that's gluten-free with a lot more stuff cut out.

Sorry if this isn't making sense...I'm trying to follow the SCD diet, which was designed for intestinal problems based on the idea of starving the bad bacteria in our system...thinking that acid reflux might stem from the same problem, and even mask itself as sinus problems, this diet could possibly work.

I'm jumping around, but my sinus problems are actually caused by acid reflux, and maybe some other factors too. And my PET usually only acts up when my sinuses are acting up too, in particlar in moldy, humid environments. Also, a bunch of people w/ PET also have LPR (this type of acid reflux).

Anyways, I feel for you because one of my goals has been to get this under control before I get pregnant. I can imagine what a pain it must be to have while you're pregnant or with small children around. It's hard enough dealing with when you're just trying to take care of yourself.

Hi
This LPR can you tell you have it?
I too suffer from Sinus problems, I also get digestive problems from too much gluten, but I always find that if I eat very healthy no gluten etc, my pet gets worse and if I eat disgusting food loads of fat etc it gets better, I always assume that the healthy eating has an anti inflammatory effect which is great for the rest of the body, not the ear and vise versa.

Any thoughts?

I also feel that I caused my ear problem from overuse of nasal spray and sinus medication.

Also an update: I had to cancel my ENT appointment, I unfortunately had to attend a funeral at the same time, I rebooked for March but I am on top of the cancellation list so hopefully will get in sooner, ear has been playing up the last couple of days quite badly (weather is getting dryer and hotter)..

Also re baby: I have heard many times that pregnancy makes pet worse because the pregnancy hormones soften tissue and cartlidge in the body to prepare it for birth, also many pregnant women get pet, then it returns to normal after birth (for most).. I am trying for a baby too at 37 and I assume that the ear will get worse..."even though one ENT told me I should get pregnant"...???????

Wow

I just looked up LPR, I have loads of the symptoms like clearing your throat all the time etc.. and the avoid these foods list are the foods that I often think make my PET worse like raw onion and tomatoes, I have also just recently started drinking heaps of OJ and have noticed an increase in PET symptoms and I wondered in the back of my mind if it was a cause...

Did you see an ENT or who about this?????

I will start to avoid those foods right away and let you know the outcome..

Nicky xx

Nicky,

I have the throat clearing too, but mostly in the more humid weather, and after eating certain foods. I think sugar is a bad one, along with dairy and the carbs that turn into sugar. Onions and tomatos don't seem to bother me though. I'm not sure about the oj, since I drink lots of water to clear everything out...and actually, I started drinking the water because other fluids were giving me PET.

Dr. Poe was the one who first diagnosed me with LPR, and then a local ENT did too. You just have to find an ENT who is familiar with it, but the treatment is similar to the treatment for GERD.

That is interesting that eating fat helps you, but I guess that makes sense, since having fat in the eustachian tube helps relieve the PET symptoms.

The theory behind the healthy eating is that the LPR is what's causing my PET, so if I can get the LPR under control, then my PET should be better.

My name is Michael P and I also have PET. I believe I may have had this condition since Jr. High school yet did not realize I had a condition then since it started when I was very young and assumed I was no different than anyone else until college. I wonder if it may have been caused by use of tetracycline for acne when I was young. Please let me know if you have PET and have used tetracycline when you were a youth. My condition would be considered borderline (I know there is a better medical term) because it is very dependant on my weight. If my weight falls below 180 my tubes start to open and I need to head for the greasiest hamburger place I can find, fast. I find the science to this condition fascinating. If my weight climbs to 195 and I miss a couple meals, the body seems to begin to feed itself on the fat surrounding the eustachian tubes FIRST and will cause the condition. Fasting for my religion becomes more of a sacrifice than for most and intolerable. I guess I will need to see Dr. Poe since I have recently been getting borderline high blood pressure readings so the eating fat therapy does not sound sustainable. I can tell you what to avoid, caffeine, sugar, running excessively and rapid weight loss. If you need a quick but temporary fix you can use a saline sinus cleanse from the drug store. I am also interested in a long term solution. It sounds like Dr. Poe has a procedure that undoes the defect in the eustachian tube where the opening is too large by creating a pocket and filling it with some material. I am a web developer and if I get some help I plan to post what I discover on a web site to help other sufferers of this condition get educated and to find a good doctor and get the treatment they need. I feel sorry for the patient that has this condition permanently and would hope they see Dr. Poe as soon as possible. I read somewhere that Dr. Poe is training other Drs in his procedure so he is not the only one doing them. Good luck and God Bless. Remember there is always a reason for our trials, it just might take some time to realize what that purpose might be. It certainly adds humility and thankfulness for what we do have going for us.

I am commenting after reading a post on another thread. I made a commitment to myself: If this worked, I would try to reinforce this theory and try to get the word out to people suffering with PET issues.

I have been suffering with the symptoms that you describe for approximately 2 years. I stumbled across a post on a different web site that drew a correlation to PET and a probable sleep disorder. The post also correlated TMJ/Bruxing (Teeth grinding) and Acid reflux as common symptoms that commonly pop up with PET. I know this sounds strange but the logic that followed made a huge amount of sense. I will try to lay it out for you and to let you know that I had all of them. PET is only a final symptom of a journey of unintended consequences that got me to this point.

The logic goes something like this:

1.) Poor sleep (failure to transition through Stage 2 sleep to REM) can cause many health problems … in this case PET (Patulous Eustachian Tubes).

2.) Bad habits develop...Stage 2 sleep is where all of the bad habits develop. Most/All (as I understand) teeth grinding/teeth clenching/saliva swallowing/snoring/tossing & turning happens in stage 2 sleep. I did not even think I had a sleeping disorder... I seemed to fall asleep easily, but awoke easily. Note: If you stay in stage 2 sleep all nite, you have a sleep disorder.

3.) Bad habits lead to more bad habits: The teeth grinding causes excess saliva leading to Acid Reflux on an empty stomach. If your like me, you are probably on Prevacid or another PPI med ... getting off this will be another challenge.

4.) Unintended Consequences....The teeth grinding/clenching over conditions the jaw muscles which pinch the eustachian tubes. Installing/purchasing a nite guard only encourages more biting and saliva generation... something like a dog with a stick in it's mouth.

5.) The feedback loop starts ... The grinding and the Acid reflux keeps the poor paitent in Stage 2 sleep all nite.... and the problem gets worse .. if it is only in one ear, the symptoms will eventually spread into the other ear. My ears would also pop in an out during the day when under stress (clenching my jaw)

6.) The cure ... Quit grinding your teeth / shed the nite guard and get through stage 2 sleep as quickly as possible. Essentially let the jaw muscles, built up over the past 10 years chewing on my nite guard, atrophy.

I left the nite guard on the bed stand and began taking herbal supplement 5-htp which was recommended on another thread (designed to boost serotonin levels: I could just have low serotonin). It has been two weeks ... still can tell i’m grinding some, but the symptoms are beginning to fade.

Note: I am not a doctor and I am sure there are many holes in the logic, but it appears to be working. I went to many doctors (ENTs) and they all looked at me and told me there was really nothing they could do. I was convinced I would have to learn how to cope with this (PET) or go insane. Hopefully, I will not have to do either. It probably would not hurt any of us to go to a sleep clinic and validate some of this.

Good Luck, I think there is hope.
Jeff

UPDATE: Went to see new Dr in Perth Australia



Dr Atlas was brilliant, he totally understood me and said how ridiculous it was to suggest me putting on weight, my problem is clearly not sudden weight lose due to the fact that weight gain makes no difference, anyway he asked how it affected my life and I burst into tears poor man, I guess that answered his question, he mentioned Dr Poe in the US before I has a chance to and suggested laser surgery on the ET tube which will be done through my nose, so no cutting!!! and depending on how bad the ET tube is he may inject some fat, he says this is what Dr Poe has documented and is sending me a paper written by Dr Poe on the procedure, the risks are that my ear may be over corrected and I have a blocked ET tube but I am willing to take that risk.. He has done this procedure for others too which is good.. He sent me for a CT scan too when I mentioned that my Mum and Granddad had ear problems in their left ear too, but he thinks my results will come back fine, he seems to think it's something I was born with and it has progressed over time..



He was so lovely and took heaps of time with me, such a different experience from the other ET doctors I have seen, it pays to wait and pay the big bucks for sure...



So next step is they get my CT results and then ring me with surgery dates, hopefully not too long a wait ( I will have to put the babies off a bit )..



Also they did a hearing test before I went in and it was normal, my left ear being better than my right!!!!



Thanks for all your support through this I hope it works out I will keep you posted.



Love Nik xxx

Petear, thanks for posting updates, and please continue! At this point I am working on controlling the diet (trying out the Specific Carbohydrate Diet for the LPR acid reflux), and the true test will be this summer when the DC humidity hits again. I would like to move to a cooler/drier climate, since that seems to help. May also start thinking about the surgery option again, though I'd love to be able to control this at the root of the problem if possible.

The CT scan was clear

My surgery dates are April 28th

So he is cauterising the ET tube and maybe injecting fat if needed and inserting a grommit.

I will keep you updated

that's pretty soon :) good luck!

update::: I just found out I will be also be having an alloderm graft in my et tube, look it up it sounds great.. Surgery a week on Monday will hopefully be home tuesday and I will write a message then for you all...:angel:

Hi PET Ear.. I hope your surgery went great. Just wanted to know if Dr.Atlas injected fat through the nose or through the mouth? Its surprising how this can be done through the nose.
I am sure you'll tell us all about your surgery anyway but just wanted to ask you this questions anyway!!
-KSM

I have just come across this message board and I'm so happy to know there are other people out there like me! I also have PET and I've never met anyone else who does. No one seems to understand what we go through every minute of every day, so it's been so nice to read your messages and know how you feel, and to know that you know how I feel. I've had it now for several years. I really don't know when it started, but I was diagnosed with Meniere's disease maybe 10 years ago. The Meniere's isn't bad. I have an episode maybe once or twice every 6 months or more. Somewhere between then and a couple of years ago, the PET started. It's mostly in my left ear, but my right ear seems to try to keep up with my left. I have a lot of popping and I sometimes hear fantom sounds. Symptoms are relieved when I have a cold or if I'm sleeping. Usually lying down and sort of scrunching up my neck puts pressure on the E tubes and helps a ton. Unfortunately, you can't really live much of a life by sleeping or lying down! If my tubes are open everything is airy, I can hear myself breathing, and my voice is loud in my head. Sometimes it sounds like I'm actually breathing through my ears instead of my nose or mouth. Lots of times I can hear my pulse in my head. Plugging my nose and sniffing closes the tubes and brings wonderful relief until I swallow, yawn, talk, or inhale again. It's extremely annoying and debilitating.
I talked with an ENT here in Utah who put me on Iodine drops (SSKI) and a nasal spray that had estrogen in it, I think. They didn't help at all. He said the next step would be injecting gel into the E tubes. The gel would last for about 3 months. He said that if the gel injections worked, they could try injecting gelfoam that would last longer, a year maybe. If that didn't work the next step would be surgery where they close the E tube permanently. This would require tubes inserted which fall out after a year, and having the tubes put in again every year.
I'm extremely curious to know if surgury works. I'm not to the point where I feel like my life is over, but lately I see myself going down that road. It's getting harder and harder to put myself in social situations because the noise level is always so high and the popping in my head is so bothersome. Sometimes it's all I can think about and I'm forced to stay at home where it's quiet. I do find relief whenever I am able to focus on other things...it takes my mind off of it and it's like it's not a problem for a little while. But when I'm thinking "Do I go spend time with friends or stay home because my ears are driving me crazy?" that's not a decision people should have to make. I'm sure you all understand! Keep up your posts and I'm very interested in sharing tips and experiences. Thank you so much for letting me know you all are out there!

Hi Guys

I haven't had the surgery yet I go on Monday so I will keep you updated..

I'm really glad I'm getting the alloderm graft rather than fat, as fat would eventually be absorbed by the body, alloderm is like skin and will grow and become part of my ET tube, hopefully closing it up a bit.. Ask your doctors about it???

hi petear,
Isn't Alloderm , skin taken from your own body? Or is it some artificial material.
Just curious. And will they inject it through your nose or your mouth?
-KSM

Have any of you tried PatulEnd or know of someone who has? If so, does it work? How effective is it and is it worth it? Thank you!

hi petear,
Isn't Alloderm , skin taken from your own body? Or is it some artificial material.
Just curious. And will they inject it through your nose or your mouth?
-KSM

it's made from doner skin cells so not my skin and it's not artificial, it's dried or something and when grafted the blood vessels expand and join with mine to become new skin, if you look it up it will explain it better, apparently it's more succesful than using your own skin as your own skin requires more than one stage of surgery or something like that... sounds promising though...

They will go through my nose with a mini camera so I expect my nose will be a bit sore after, I will let you know anyway...

Have any of you tried PatulEnd or know of someone who has? If so, does it work? How effective is it and is it worth it? Thank you!

Yes I have, the first time it worked well but after not so well and it stings like buggery... I was also a bit concerned as to whether the ingredients may in the long term cause more problems by the way it burns so much...

Hi PetEar..Have u had your surgery? We are all dying to hear about the results. Please do so when you get a chance.
Looking forward to hearing from you.

-KSM

Hi

I'm back home, it's too soon to tell if it's been a success.

So far my ear isn't blocked which I thought might happen but the alloderm graft takes a few weeks to integrate properly so it may block up a bit later, the surgery was done through my nose so my nostrils and sinuses are sore and swollen and my throat is a bit sore but that's all the pain... Dr Atlas has done the same surgery as Dr Poe just using alloderm instead of cartlidge and I don't have a grommet (tube) in my ear as he said Dr Poe only uses them for patients who have to fly home.... So I just need to heal a bit and get back to normal life and then I will know if it's worked.. But I do feel a lot better than I thought I would after surgery...Dr Atlas also said it was a very difficult surgery so I can see why a lot of ENT's may avoid it, hence finding a great Dr is the answer.

I will give you guys weekly updates

Hi PetEar..Glad that you're feeling better. I just wanted to know if Dr.Atlas injected Collagen also in your ET's.
How is your surgery different than injecting fat or Collagen into your ET's?
I am planning on getting the fat injected into my ET's..just wanted to ask you if you spoke to Dr.Atlas regarding that.
Please let me know if you have any information.
Thanks
KSM

No he didn't inject fat or collegen, I was going to get fat injected a few years ago and decided against it, the reason is that fat will eventually be absorbed by the body and you will be back at square one, with the alloderm graft, alloderm is like doner skin so it will eventually graft to your own skin and become permanent, also if you get a substance injected into your et tube your blocking it up, whereas a graft isn't blocking it up, it is possible the graft will grow to block the tube it's a risk, but it's not injected in a way to block it from the start if you get what I mean... Look up alloderm..

Hope I made sense..

Hmm..yeah it does make sense. i am sure it was an expensive surgery. I want to ask you how much it cost you but you cannot give out that information on here. But I know how much Dr.Poe costs..i am guessing you do as well? So is it Dr.Atlas as expensive as Poe?
I hope you recover completely and the PET is gone.
Keep us posted

I have private health insurance so most of it was covered, the gap to pay is a couple of grand. In australia we also have medicare which covers some medical expenses, I'm not sure how it works in the states...

hi petear..just wanted to touch base with you as to how you were feeling. give us some good news.

Well for six days after surgery I was still getting pet symptoms, then the next 3 days where pet free, then I visited the Dr today for a post op check up he sprayed local anaesetic up my nose and put a camera up to have a look, all looked fine, but as I was leaving I had pet symptoms which cleared up quickly and I thought maybe it was from the spray etc....

So it seems a little better but I would still not like to commit to it working as yet as I often have respite periods with pet and this could be one of them, if I'm pet free for six months or more than I would say success...

If it doesn't work I'm giving up the fight and going to accept it, sometimes fighting it is the most exhausting thing, I may have to get counceling or something but we will see...

Still staying positive and hope the relief stays.

Hi Petear...Just checking up on u..How r u feeling now?

At the moment I have the flu so feel yucky and no PET but that could be the flu....

Feeling better, still no PET, only had one episode when I had been excercising for an hour or so...

Cross fingers

So do u think the surgery was successful? Or u think you would want to wait for a little longer to decide if it was..

So do u think the surgery was successful? Or u think you would want to wait for a little longer to decide if it was..

I would like to wait a year to make that decision, my ear has seemed better but it's winter here and its always better then anyway and I have been sick too... On the weekend I went out for a couple of drinks and it played up then, dehydration!! and it tried to play up a bit today but it did recover quickly...

So at this stage I would say it hasn't completely worked but maybe it's not as bad, lets see what happens when summer comes!!!!

What has your Doc done exactly..Is it the cartilage graft which Dr. Poe does or is it the Collagen injection. Could you explain the procedure in a detail if you dont mind. I can discuss with my Docs here in India and see if it can be replicated.
Thanks

What has your Doc done exactly..Is it the cartilage graft which Dr. Poe does or is it the Collagen injection. Could you explain the procedure in a detail if you dont mind. I can discuss with my Docs here in India and see if it can be replicated.
Thanks

It's the same as Dr Poe using Alloderm, I think I have explained it previously

Update:

Don't bother people it didn't work

Now that I have healed and my cold has cleared up the PET is back just as it was before..

Waste of time and money, at least I tried..

Seems to me the only thing that can help a bit is sound therapy...

Sorry guys

Is there anyone out there who has had any success????

I'm so sorry, Petear. I think everyone was hoping it would work. I know I was. Thank you for the update. Now I guess we just look for other options. There's got to be something out there that can take care of this problem. Best of luck to you and to all of us who have to deal with this.

SH**...really sorry to hear that. I guess all of us pinned our hopes on you. Have you talked to Dr.Atlas about it.. maybe he could try again. Many of the cases with Dr.Poe didnt work the first time, but he tried again..and some of them got relief the second time round.
Isnt there even a 10% improvement??
Really sorry again!! :(