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View Full Version : My liver story - please advise


 

 

 
Dessy
08-02-2007, 04:51 PM
Hi all I am new to the boards and I felt I would share my story and hopefully gain some advice.

I am a 30 year old female, who has celiac diease (an autoimmune disease where I cannot eat wheat, oats, barley, rye or malt), polycystic ovarian syndrome, and just recentally I have been dignosed with FNH (they are pretty sure). I have multiple masses some which cannot be measured and four that can be. The largest is 7.3 X 6.4 cm. The MRI report says the masses have signal dropout suggesting the presence of Kupffer cells. I'm assumming Kupffer cells are associated with FNH. Does anyone know anything about this?

I have had an ultrasound which orginally found the masses back in the begining of June. I stopped taking the pill the middle of june. The end of June I had a CT and which is where they though I might have adenomas. In July they did an MRI and that is where they feel they are probably focal nodular hyperplasias. The doctors presented my case to a tumor board committee and the general concenses was to do a repeat MRI in October and then from there decide what to do (biopsy or not). Is this resonable?

I have a bit of discomfort, but I am not in pain. My liver enzymes are slightly elevated but that could be due to the fact I have a fatty liver.

I have polycystic ovarian syndrome...so I actually don't get my period when I am off the pill...I'll occasionally get some break through bleeding. My doctors have told me to stay off the hormones because of the FNH. Anyone else have this problem?

I have a few questions that I hope you can all help me with. I'm trying not to drive my doctors crazy with the little things :)

Do you avoid soy based products?

Do you buy organic foods?

Do you drink alcohol sparingly?

Is exercise restricted?

Also I am overweight do you know if there is connection between weight and FNH?

I have been reading all sorts of inspiratational stories on this board. I am so happy to have found you all.

Thank you :)

Dessy

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