Hello all. I was diagnosed with FM 3 months ago. I am not sure how long I have had it, but I have experienced many of the symptoms since High School. I feel very alone right now. I know of nobody I can talk to who understands, except my mom who also has FM. But she always seems to ignore it half of the time and drown it away with pain killers the other half. I have to little girls (ages 2 yrs and 11 months) and a great husband. It's just that my girls are to young to understand why mommy can't give them horsie rides or spin them around like there daddy does. And my husband (bless his heart) just plain doesn't undertand. He tries, but he just CAN'T! Sorry I've written so long, I'll stop for now. Thanks for just listening.

OH! And if anyone knows any good doctors in the Utah Valley or even Salt Lake Valley areas, I'm looking for one. Thanks again!

LisaN

Hello Lisa, Your husband needs to read the boards, also have you done research on the internet? If not, do so and print it so he may read when the kids are asleep. My husband also has fms and much more. There are doctor list for the us on FMS. It took me a long time to find them. Not your normal hospital groups, just what we have doctors. I got my new one on the net. He's great! He's a Board certified Infectious diesease, cfs and fms doctor. I got him off of the co-care, good doctors list. But I don't remember where I found it. Good luck and write when you want, and as much as you'd like there is no limit. Good Luck and take care, Kim Check out other board topics that relate to you! Good hunting.

Hi Welcome to the board http://www.healthboards.com/ubb/smile.gif
Finding a doctor that specializes in this is very frustrating. Every time I find one I run into insurance problems. I have learned so much just from writing and reading on this site. Hope we can help you ....

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~Luv, Scoobs~

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[This message has been edited by Elaine from Kentucky (edited 01-24-2001).]

Hello Lisa! FM can be a lonely thing. Not very many people can even imagine what it's like, and when you try to explain it they look at you like "Well you look fine to me!"You are lucky to have an understanding husband. I've been married to mine for 14 years, and try as he may, he still doesn't get it. He does help alot around the house, and always has. But he still has no clue of how I feel. My children are older, and they have a hard time grasping the concept. I have read everything I could on this FM syndrome, and each time I read something, I realize, if I didn't have it, I couldn't believe it either. There's just so much going on, so darn many different, seemingly unrelated symptoms, and yet you don't look sick! I have found, on this board, a real nice group of people who do understand, and are willing to cry with you or laugh with you, or help you with anything you may be wondering about. Just coming here and typing out my feelings really helps so much. There are only a few of us who post here on a regular basis, but you won't find a better group anywhere else. Welcome! There's always room for one more! Lots-o-Luv...Linda D

Lisa, This has been a great board for many mos. The people are really careing although. We did have some prankstures on the old board. It can be very hard whem people attak people personnaly. I have found one such place on one of these boards to date. We need each other and should not feel reluctant to speak up and yell if we need. Here is the place to do it. Take good care, Kim

Lisa,
I found a good site on the web that is written in terms the lay person can understand. There is an article by a Dr. Bruce Massau. So look for Massau + Fibromyalgia. It is what I have given to friends and family members and it helps them to understand us. There are others out there but some of theme are too deep for me to understand. A lot of things don't quite register with me at times, so it makes it difficult to read them. Also there are some people that might be in Salt Lake area and they can help you find a doctor. I have gone to pain specialists or physiatrists as they are called. I've had good luck with both of them. Gentle hugs to you and welcome aboard. There are lots of good people on the board that give good info to, so just plan on reading a lot for the first couple of months.

Thank you all! I will probably be on the board as much as possible. I look forward to getting to know you all better and hearing your suggestions.

Lisa N

Lisa the address for the site Charlie Weaver mentioned is www.chronicpainsolutions.com/index.html (http://www.chronicpainsolutions.com/index.html) good luck, Maylon.

HI.I'm a Newbie to this board but have been on another board for 2 years.I have a severe case of Fibromyalgia_just wanted to say hi! :)

Hi Lisa,

Well you do have not to feel alone any more, you found us, I think this dd is hard for anyone to understand because our pain moves to different areas, one day the neck, the next the legs etc, etc. We understand since we live this each and every day.

Post often, ask ??? and if you can help with a reply we would appreciate that also. There are a lot of caring and informative people on this board.

Hugs, Linda

welcome little sister. we all know that feeling of being the only one. we also all found out how wrong we were. we found each other here. alone we are not.
absolutely no one is going to "understand" what you are experiencing. you have to have it to get the point. what they can do is make room on the planet for you as you are. not the kids tho. they won't get it until they are adults. for now maybe you could give your older child a piece of paper with a promise of a horsey ride or twirl with daddy. ask daddy first. that way your child will have the piece of paper that assures the ride will happen. children are not born with patience. they learn that at around age 30, giggle. hang in there.
peace,
bluelakelady

Hi Lisa,
I am sorry that you are dealing with this at a young age..and with young children. I think we all know that alone feeling..this is a very isolating illness for a lot of us. But the boards help, and it sounds like you have a supportive husband, and that helps too!
My favorite book about Fibromyalgia is by Devin J. Starlanyl, you can search for her books on the web. I think she is most accurate in her descriptions of the illness...and some of her ideas for dealing with it all. I have taken her book into the doc with me at times to help explain something I am dealing with. I don't always have the right words...but I can show him things in the book!
There are some meds that can help you feel better..depending on your symptoms.So, hopefully you can work on those things with your doctor. But, you can come here and ask and talk too!