Cyn, came up with Oprah, We would like you to write your Histories. Then we all can send them maybe Jan.6th, What do you say? We need to post her address. If anyone has it at hand please, post. Thank you, Kim, Cyn, and Scoobs

Let's fight for ourselves!

The address for Oprah is: Harpo Productions, P. O. Box 909715, Chicago, IL 60607. I know this 'cause I visit her site frequently (there are several good articles re: FM accessible through her site on the "thrive" health portion). I know FM sufferers from sea to shining sea would like to "improve their spirit"!

Several talk shows have had FM victims on. I can't recall which ones, but I have seen several. I think Montel was one of them. As for research, the Arthritis Foundation is doing some. I have found so many sites with info and several places that are doing research and clinical trials. If I can find some of them again, I'll let you all know where they are. Linda D

I think if we all write to Oprah we need to express our expectations. Are we just trying to get the exposure for the not so well known condition? Or do we want her to have an expert on the show to offer some treatment options? The show writers will probably contact the Arthritis Foundation for informaton. I wonder geographically if there is any clusters of FMS/CFS......? Just throwing some ideas out there.

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~Luv, Scoobs~

Does anyone remember when FMS awarness is? Is it in May, May 12th? We should request that it be done at that timeing. I would love to have some of our own doctor's. The good ones named in our letters. I'm going to put my new in. We should say that we are writers from the same healthboard, gee pubicity for the board, maybe. I would like to have experts and sufferers. I watch some of the shows but, didn't remember the FMS on Montel, but I don't watch tv as much with a 2 yr. old. Well, not my shows that is. Clusters. Good thought, We could ask our doc's. and see if they have any thoughts. I know some of us don't have a "really knowlegable" doctor. Maybe some of our doc. would write too. Well, the only way to do something is to jump right in. We've done that. Cyn, Good stuff. If anyone wants an outline just remember, you are the author and what you have gone through, your concerns, your words are important. I know that there are so many different thoughts out there, let's try. the worst that would happen is a no. So what do we have to loose? Not a thing, but maybe we will be heard. That would be a great gain. In the letter we should write that we are a group together maybe just use the name, Health Boards FMSers united. Or something like that at the top. Welcome to all help on this matter. The way we keep in the forfront is to make ourselves known. The congress people I wrote and never heard back so I then sent an e-mail, which is never read, my ex-sister in law works for a congressman and says send in the mail; if you want to have a person read it. Good writing, Kim

Well Cyn and Scoobs, I guess that there arn't too many that are interested. Oh, well we tried. Let's give it another week or so. The old board is about to close and then see if anyone else wants to join us. love, Kim

I'm brand new here, but if it's not too late, I would like to jump on this bandwagon! I'd love for the question of how folks in my situation deal with getting diagnosis, treatment, drugs, when you are poor, temporarily unemployed, uninsured, etc., as well as the question of disability claims, public health entities that can diagnose and treat FMS, etc.

If you need a letter from me, just let me know.

Hi BPaine, Yes please write we. Maybe we should wait to send till Feb.1st. Does anyone think this is better? Pain meds. Ch ten nbc, Philadelphia Pa. has on there web site a form they will send you to get free meds. My girl friend got it last mo. Now she just recieved most of her meds for free.I asked her for the address and info. earlier today for a friend of my husbands and she said she would look for the form if you can't get it. Try typing in nbc10.com then go. Let me know if you find it. Welcome to one of the best boards around. Take care and good luck, Kim

This sounds terrible I can't remember where i posted this, For free meds. it's nbc10.com look under health from last mo. I think I did it backwards before. Sorry, Kim

Just thought I would let you know that May 12th is FMS Awareness Day, although some of us celebrate on more days than that http://www.healthboards.com/ubb/wink.gif

In the DC area about 18 month ago, CBS news did a "news clip" on pain in general. It was done by Kathleen Sullivan at one of my doctor's offices. They interviewed a couple of different people and of course by the time the clipped news came out it was very short, but still informative. It's a shame we can't find one of Hollywood's finest that has FMS. Having Montel as a spokesperson for MS has certainly helped them get the word out. But then again, I don't think I would wish this type of pain on my worst enemy--ex son-in-law yes, but not my enemies http://www.healthboards.com/ubb/smile.gif

Does anyone read those mags. thoses tell alls? Maybe we could find someone in there. I don't read them but, maybe. Where and how should we look? love, Kim

Hey guys, I've found a site with a sample letter and a long list of media outlets that we can write to for recognition of FM/CFS.Check it out and see what you think! http://www.geocities.com/CapitolHill/4277/media.html

Linda, Thank you. I'm going to see next, Kim