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View Full Version : Got results this week ~ not what I expected...


shiningstar521
08-09-2007, 09:38 PM
I had my second leep done July 20th. (first one march 1st) i was diagnosed with carcinoma in situ after the first one. i had my first leep and waited the three months for my next pap. this came back abnormal and had a colposcopy which suggested i should have another leep.... well i went back to the dr. a week after my leep because i was still having so much pain and bleeding (which i have been having pain since January, but is getting worse as time goes on).... my dr did an ultrasound, said everything looked ok. she told me to be off work and rest for a few days, and i should start feeling better.
i had a different dr in the same office perform my second leep and am continuing care with her right now. but she said my results from the second leep were totally normal, and that i should come back in a week for another exam. The doctor i had do the first leep did an ultrasound and suggested that i have adenomyosis which is causing my pain. the second dr. said nothing about this. anyway, i went back on monday for my 2 weeks checkup. she did another ultrasound (still having very uncomfortable pain) and said it still looks pretty normal...no cysts, etc. i asked her when i got there how my results could have varied so much from the colposcopy biopsy to the leep biopsy. she explained a lot to me, and flat out told me she didn't think she got it. she said from me having the first leep i had scar tissue form which pushed it up further. she she wants me to wait *3 monthsssssssssss* until i am fully healed so i can have a laproscopy and another extensive leep done together at the hospital. waiting three months seems absurd to me?!?! i don't know what to do. does anyone have any similar experiences? i am sooo confused, frustrated, upset...and hurting! i don't know a lot of people are telling me i should get a second opinion. others say how will a new doctor tell me what's going on if they haven't performed the procedures??? anyone? any info???? please :) i'm so glad i found you all here, it has helped me just reading all of the messages and knowing i am not alone in this!!! my fear is this.... i KNOW it can take years for this to turn into invasive cancer... but, who knows how long i have had this going on? i hadn't been to the doctor
for over three years. *which was stupid on my part* and if it is further up my cervix??? i'm just so scared. and not sure what to do, or how to go about getting a second opinion if i do. thanks for letting me vent ;)

namaste

shiningstar521
08-10-2007, 05:52 PM
anyone?????????

Aryes517
08-10-2007, 08:38 PM
Hi Namaste
I can totally relate to the frustration that you are feeling about the conflicting results. Read my past posts and you will see that my results have been all over the place. Although, I haven't had any abnormal bleeding or any systems that would led me to believe that i had anything wrong before being dx, i was originally dx with CINIII.

Try asking around to friends and co workers maybe they can recommend a good gyno that you could see for a second opinion. That's what i did, and my results are still wacky, but i keep taking my supplements and i keep going back for check ups. That's all that we can really do at this point. I think that there is still so much to learn about HPV and dysplasia that the Dr's just don't know.

Try not to panic.

Take care
~Lisa

SusanGene
08-12-2007, 07:34 PM
LISA IS RIGHT!! GET 2ND AND THIRD OPINIONS AND YOU'LL FIND OUT: "THEY" DON'T KNOW. IT'S PATHETIC, REALLY. :( It is more expensive in the short term to get 3 opinions but it's cheaper in the longterm.

shiningstar521
08-12-2007, 10:27 PM
thanks for your replies :) i think tomorrow i am calling to make an appointment for a 2nd...well 3rd opinion...at a different hospital? i think i need to go with my intuition here...
three months is a long time to wait and wonder in pain.

piperpilot
08-13-2007, 09:11 AM
I suggest that you see a Gynecologic Oncologist--they have expertise in the pathology of cancer and pre-cancerous conditions. It sounds like you have been through the ringer with Ob/GYn group and I would not trust them to help you effectively manage your situation, let alone provide an accurate diagnosis.

shiningstar521
08-13-2007, 05:14 PM
thanks for your support piper :) i think that's what i'm looking for lol...
i *have* been through the ringer, and i've had enough. i want to feel better! i am 27 with two beautiful children to worry about :) i want to be healthy and KNOW i'm healthy!

 
 
 




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