Hi! I'm brand new here, and just this past month got a diagnosis of fibromyalgia. I have nearly all the symptoms others have posted here, but I haven't noticed anyone else complaining of muscle twitches - which I have almost daily. My dr. sent me to a neurologist, who didn't think anything was wrong with me neurologically, but he did say that fibromyalgia wasn't "a proven disease" and thought that I was too "nervous and sensitive" (English was his second language, so maybe he doesn't express himself too well). I guess I'd better get on the ball and find myself a rheumatolist, but I live in the middle of nowhere, and it takes about 2 hours to reach the nearest medical specialists....anyway, I've enjoyed yall's posts, and look forward to reading more of them.

Dear Sujenkie,
Good to have you here. Welcome and hope that you find this to be the place to help you. I come here every so often.
I don't mean to get into your business but any time a doctor talks to you like that is the time to look for another doctor. That neurologist should have done some tests on you. I had one that did the muscle test by sticking the needles in the legs. The needles were very small but I got sick and thought I would pass out. He got me a cold wet cloth and finished the testing. When he wrote up his report he said it was inconclusive because he had to abort the testing. LOL Think I want him to touch me again. Nada.
I have since seen better doctors and know now what was really wrong with me. I have 3 ruptured disc in my neck and the scar tissue is very prominate. The neurologist I saw first should have been able to see this on the MRI he had done.
Oh well, live and learn. I want you to feel welcomed to this board. Love, hugs and prayers, Bonnie
Want to talk my email is absalter@flash.net

Hey Bonnie, I just had to tell you, I had the same test about 6 years ago and they didn't get too far on me either, I couldn't tolerate it at all! The guy got mad at me too......... Oh well!

whoops, double posted......... !!

[This message has been edited by cioc1212 (edited 02-02-2001).]

Sujenke, welcome! From what I can tell, these muscle twitches are very common! When my daughter was so sick and bedridden in Dec., her muscles twitched constantly. It was amazing. It seems to go along with the spasms, but even muscles that aren't in a hard spasms twitch at random. Maybe this is something more closely associated with myofascial pain syndrome.

Val

My right lower eyelid twitches alot as does my lower lip. Go figure at least I think IT DOESNT HURT! LOL
welcome!
Gracie

I get a twitch in my cheek now and then. When it happens it usually lasts most of the day. I find that massaging it seems to help it go away faster. It is strange, like not being in control of your own face, lol.

Now that I think about it, I get a twitch next to my nose when I'm really stressed out. Occasionally I get one on other places on my face too. Only under EXTREME stress though.

Thanks for your reply, and I don't mind you getting into my business at all! That's why I posted - for some advice and opinions. A lady at my church is getting me in contact with a nurse she knows who also has fibromyalgia, and she should be able to give me the names of a good specialist. At least the neurologist admitted that he didn't know much about fibromyalgia, but he could rule out neurological problems. (at least that's ONE thing I don't have to worry about!)

Thanks for the welcome!

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Sujenke

Welcome Sujenke! I get muscle twitches, too. Sometimes I get a kind of whole body jerk which I am assuming is a part of the fibro. I wake myself up at night just as my mouth is flying open and then my jaw crashing shut. Man! That hurts and then the whole next day my teeth ache. Can't say as I know of anything that helps. I do not asking questions on the "board" and checking out the postings whenever I have access to a computer keep me well informed and give me suggestions.