peteybear
02-08-2001, 06:35 PM
Hello,I am new to the board here, and found everything very enlightening, and helpful somewhat to having fibro-,severe accelerated joint desiese,epicondilitis(chrondic pain, I believe)arthitis of an eighty year old man....people think that I don't look sick, and that I still do the chores that need to be done in-house and outside as well. They say that I am do young to have such problems, and it has taken a while for the Doctors to finally realize it was fibro-...there is nothing more discouraging than to have my wife say, 'again', pain, your always hurting, so I just say as little as possible and continue to work to the best that I can, and wish the ones who doubt can just step in my shoes for one day, to really feel what it is like, not to have your meds, and you have to wake up and go to work and your body is still tired, and stiff, you don't feel like moving. I take amtrip. at night for sleep, but its not working all that well, also relfen, and morphine, the morphine is the smallest dosage the doctor wants me to have, but it really has no affect on my worse days, and I end up just laying like a vegetable, until I feel better. Well I could go on and on, about this and that, about everything and my list is very long, on how my life has changed.
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Dale
02-08-2001, 07:12 PM
Hello Peteybear, That is awful. I am seeing a new doctor. My hope is for more relief too. I have been going slowly down hill for well over 10 years. I just keep on getting new problems. Degenerative disk problems and now my heart. I find it so hard to move anymore. Hope you get more relief.
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gracieathome
02-09-2001, 11:51 AM
Welcome Peteybear!
Lots of support here, Copper is smart!, Cioc is supportive, and everyone else is nice too!
People dont post as much as I like but im patient and its worth the wait.
See ya round.
Gracie
Lots of support here, Copper is smart!, Cioc is supportive, and everyone else is nice too!
People dont post as much as I like but im patient and its worth the wait.
See ya round.
Gracie
Lory
02-11-2001, 09:04 AM
Originally posted by peteybear:
Hello,I am new to the board here, and found everything very enlightening, and helpful somewhat to having fibro-,severe accelerated joint desiese,epicondilitis(chrondic pain, I believe)arthitis of an eighty year old man....people think that I don't look sick, and that I still do the chores that need to be done in-house and outside as well. They say that I am do young to have such problems, and it has taken a while for the Doctors to finally realize it was fibro-...there is nothing more discouraging than to have my wife say, 'again', pain, your always hurting, so I just say as little as possible and continue to work to the best that I can, and wish the ones who doubt can just step in my shoes for one day, to really feel what it is like, not to have your meds, and you have to wake up and go to work and your body is still tired, and stiff, you don't feel like moving. I take amtrip. at night for sleep, but its not working all that well, also relfen, and morphine, the morphine is the smallest dosage the doctor wants me to have, but it really has no affect on my worse days, and I end up just laying like a vegetable, until I feel better. Well I could go on and on, about this and that, about everything and my list is very long, on how my life has changed.
Hi, I'm new to this board, also. I also have degenerative disc disease, degeneratie joint disease, and Parkinson's. I can function most days, but since exercise is recommended for all these, and deep-water aerobics is what i can tolerate, I go to the local pool here in Eugene, ORegon, 3 times a week. It's a wonderful thing for stretching, while you're in wonderfully warm water. I also do stationery bike 5 days a week for about 10 minutes each. Anything to keep from getting stiff. I take Flexeril and Remeron at night, and it really helps keep the pain at bay. I also get a full-body massage when I can afford it -- by a person who has become used to treating FMG folks. There is help out there, just keep moving till yo find what works for you. Lory
Hello,I am new to the board here, and found everything very enlightening, and helpful somewhat to having fibro-,severe accelerated joint desiese,epicondilitis(chrondic pain, I believe)arthitis of an eighty year old man....people think that I don't look sick, and that I still do the chores that need to be done in-house and outside as well. They say that I am do young to have such problems, and it has taken a while for the Doctors to finally realize it was fibro-...there is nothing more discouraging than to have my wife say, 'again', pain, your always hurting, so I just say as little as possible and continue to work to the best that I can, and wish the ones who doubt can just step in my shoes for one day, to really feel what it is like, not to have your meds, and you have to wake up and go to work and your body is still tired, and stiff, you don't feel like moving. I take amtrip. at night for sleep, but its not working all that well, also relfen, and morphine, the morphine is the smallest dosage the doctor wants me to have, but it really has no affect on my worse days, and I end up just laying like a vegetable, until I feel better. Well I could go on and on, about this and that, about everything and my list is very long, on how my life has changed.
Hi, I'm new to this board, also. I also have degenerative disc disease, degeneratie joint disease, and Parkinson's. I can function most days, but since exercise is recommended for all these, and deep-water aerobics is what i can tolerate, I go to the local pool here in Eugene, ORegon, 3 times a week. It's a wonderful thing for stretching, while you're in wonderfully warm water. I also do stationery bike 5 days a week for about 10 minutes each. Anything to keep from getting stiff. I take Flexeril and Remeron at night, and it really helps keep the pain at bay. I also get a full-body massage when I can afford it -- by a person who has become used to treating FMG folks. There is help out there, just keep moving till yo find what works for you. Lory
Allen
02-11-2001, 06:05 PM
Hey P-Bear: good to have you aboard. Sorry some of your friends and family don't understand: be sure you explain as clearly as possible what Fibro is like(I say it's like having the flu all the time). They mean well, but the whole American public is just beginning to wake up to our ailment. I can get by with Ultram for moderate pain and Vicodin for severe pain is a life saver. The most demoralizing thing for me is the fatigue and drowsiness(some of it from the Neurontin and Klonipin I have to take for facial spasms). Remember what it was like to be really awake? Get better, Al
mark a
02-11-2001, 10:53 PM
I am new here and new to this illness alot of things that you talk about here i can relate too since i have been feeling the same things
I have not yet been diagnosed with fibromylagia yet.but am going tomarrow to the va ruematoligist my primary care doctor suspects this.My question is ,How do they test you for this so that they may diagnose you with it since my blood work come back good?What is it that they do?I do have constant joint pain my stomac is also screwed up too and i do have stiffness all the time
even when i am sitting down or laying down for a few minutes it is hard getting back up.
it take's a while for me to losen up but i still have joint pain.This is constant no matter what i do.so please help.Mark A
I have not yet been diagnosed with fibromylagia yet.but am going tomarrow to the va ruematoligist my primary care doctor suspects this.My question is ,How do they test you for this so that they may diagnose you with it since my blood work come back good?What is it that they do?I do have constant joint pain my stomac is also screwed up too and i do have stiffness all the time
even when i am sitting down or laying down for a few minutes it is hard getting back up.
it take's a while for me to losen up but i still have joint pain.This is constant no matter what i do.so please help.Mark A
cioc1212
02-12-2001, 09:45 AM
Hi Mark and welcome! FM is pretty much a "rule out" diagnosis. When they rule everything else out and you still feel like you're dying despite looking and testing healthy....you've got FM! The only real definitive test is to press certain area's on your body to see if they are super tender and even that "test" is questionable. The best advice I can give is to make a list. On paper, list all your symptoms even if they seem unrelated to FM. Please come back later and let us know how you made out with the doc. ! You certainly sound like you fit right in with the rest of us so I suspect you'll be back tonight with more questions. Be sure to read down the board for the information on the old posts and check out some of the web sites given.