Hi !New to Forum.Had a tough time getting here but wasn't going to be discouraged. Just kept plugging along! I have had fibro for the last 30 yrs. Diagnosed in 1985 by a rheumatologist who within 5 mins. of examining me gave me a name for my excrutiating pain. FIBROMYALGIA!!!!I had escaped disc surgery ,the doctors didn't have a reason for my sciatic pain going to my toes and they wanted to operate. I knew it was muscular and luckly I became a nanny for an orthopedic surgeon who told me he didn't know what the problem was but not to have any body do surgery on me. An Answer to My Prayer!!!! I am now just shy of 53 yrs. old and 2 weeks ago I was diagnose with myofascial pain syndrome. An answer to my chest pain that keeps me awake througout the night. After all these yrs. and flares I had a time of being pain free when I was on Prednisone. I felt like 20 again and didn't realize how much pain my body is in. You get used to this body and how it feels! I am doing cranialsacral therapy with a physical therapist and it has been given me the most relief! Thanks for letting me "talk"to fibro. friends.

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Hi Joyct and welcome to our boards. Sounds like you have a good handle on your condition, that is great! Whenever you can find something that can relieve some of the pain and discomfort, I say "Go for it."
Once again, welcome and feel free to ask any questions of any board members. It seems that one or more of us have suffered from about any FM,CFS,MPS,etc. symptoms you can imagine, and we all have found ways to deal with them, and some good ideas for coping.

http://www.healthboards.com/ubb/smile.gif Katt

Hi and welcome! I'm newly diagnosed so it's really interesting to read about other's experiences and successes. I was doing physical therapy for a while and one of the therapists did Craniosacral release and it helped!! I was never a beliver in that kind of stuff but I'm keeping an open mind and I was pleasantly surprised when it worked.

http://www.healthboards.com/ubb/smile.gif

Thanks,Thanks,Thanks to Kattnap1 and cioc1212 for your encouragement! All these yrs. of keeping it to myself and not wanting my hubby and family to " hurt" with mentioning my pain;there are those who understand (those from this and the christian fibro forum). The Christian forum is dear to my heart for there we can pray for one another!!!Anyone who has questions about fibro.and my yrs. of med.experimentation feel free to ask!!

Joyct: Welcome to the greatest Fibro board in the Western Hemisphere....You're among friends who share together joy and struggle, without judgment and with plenty of patience and compassion. Hang around, kid! Al

Thanks for the welcome Allen,


Where is Peoria located ?Anywhere near Scottsdale,Az? We were there visiting friends last Oct. My second visit there in Oct with temperatures in the high 90's-103 degrees. Boy, sure gets hot. They have the heat on because it has been in the 50's ~~~that is spring temp. to us since we have temp.below 30's many mornings!!! I loved seeing the sunshine there EVERYDAY!!!!!!!

Welcome, Joyct! This is a great board. I am fairly new to it also but sure get necessary info and support. It helps remember I am not alone, that some days are worse than others, that there are things to try and not every thing works for every person.

Thanks Corene,

Have family in Montreal,they are cousins of my dads. I remember seeing pictures taken in front of their apts.of snow 10 feet high!!!I am in Ct. and we are having a snow storm (northeaster)that has dumped between 6 and 9"since 11:30 this morning!! the roads are being called treacherous! I have had fibro. for yrs. being diagnosed in 1985! I was diagnosed only 2 weeks ago with Miofascial pain syndrome. I really do feel so much more pain in the winter. I think the barametric pressure changes really does me in. I go for cranialsacrial therapy. When I was younger I had deep trigger point massage that would leave huge bruises on me and extreme pain (like being hit by a mack truck).I am now being told that could have attributed to the new syndrome(MPS). I have not been able to hold down any job.I have sciatic pain that mimics a disc problem. The good Lord has kept me from unnecessary surgery. Let me know the things that are helping you cope with this DISEASE!!

Just a short hello. Like to read your posts. Dale

Joyct, isn't snow wonderful?! I'm happy BC only gets a couple dumps a year that last a day or two and are gone.
I use flaxseed oil 1000mg in morning with food which seems to help the joint popping and also the irritable bowel is noticeably better.
I try to walk 2 blocks to 20 minutes a day depending on weather and my tolerance.
I check the boards lots for others info and try some and if they work I keep doing it.
I try to remain positive although, as you know, that is a challenge on the bad days.
I take flexeril, motrin, and robaxacet for pains and to help with sleep. I take Zomig periodically for migraines.
Also, I have a massage oil I use called Pain Relief(essential oil) but that really is no help if my whole body is going at it. It does help my hands and neck and shoulders.
If you would like to "talk" more in depth my email is whimsical1_52@yahoo.com
Have a good one!

Hello Joyct,
I live here in the Southwester part of ALaska, and I will agree that weather change plays a major role, in what and how you really feel. Its like you can predict the weather, before it does change. I was finally diagnosed with fibro- only after they ruled out everything else, they could try to figure. I too have chest pains during the night, well not so much so since taking amitriptileyne(SP)....but it does flare up a few times a week. There have been times I didn't take any meds before, so I stop taking them for a couple of days, and boy was I wrong, because I felt horrible, and wonder how I coped without the meds. It made me think of the ten years working on the Fishing docks, and remembering the same feeling and thinking it was the work that made me feel so bad...At least now we have a name, and looking for the best course to aleviate stress and pain. Happy Valentines to ALl here on the board!

Originally posted by joyct:
I felt like 20 again and didn't realize how much pain my body is in. You get used to this body and how it feels!

Joyct- I meant to respond but got distracted. I was stunned when I started the Celexa and actually got GOOD sleep, I hadn't realized how bad it had gotten! I guess it's harder when it just creeps up on you like some of the FM symptoms do,you just don't realize it as quickly. I had stopped dreaming and my sleep was 100% unrefreshing. It got to the point where I was freezing cold all the time and couldn't stay awake, almost like narcolepsy but not quite, before I was able to get help. It's sad that we have to get that sick sometimes before getting the help we need. I was thinking that I was crazy, it didn't occur to me that I was sick, especially since so many doctors told me that I was "fine".