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View Full Version : Meds for fibro??


kdel
08-15-2007, 09:13 AM
Does anyone take narcotic pain meds for fibro? Maybe I should add more info. I'm asking because this is what I have been prescribed and take regularly. I have severe fibro along with some other painful conditions. Anyway my doc is on vacation and the covering doctor will not refill my rx. I don't have enough to last till he gets back unless I cut it down a bit and was just wondering if anyone else has gone through this?

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snoozyowl
08-15-2007, 10:07 AM
:wave: Hey Kdel, sorry to hear of your predicament:( I don't take controlled meds for fibro, but my sis does for r/o, although her present dose is beginning to fade in its effectiveness, she is very unhappy about having the dosage put up and her doc is trying to work out another way. That aside, the covering doc should have read your history, surely, I mean they're covering for your reg doc and should be following your normal treatment unless a unexpected prob comes up!! What have they suggested instead, a better med, just as effective but without the side effects of your present med or what? They can't leave you with nothing, that's unethical and cruel.:mad: Do they think you've gone thru your meds too early, have you had bad flares or more pain then usual? Either way ask what the problem is and if necessary report the ******!! Could you see another doc explain to them what's going on. Your doc put you on those type of meds for a reason, if this doc can't see that then they shouldn't be doing the job:rolleyes: Thoughts with you Kdel, really hope you get this prob sorted very very soon, like yesterday, this should never have been allowed to happen:nono: Let us know how you get on, hopefully one of the gals on here can suggest some more effective advice, it just makes me so angry that these docs come in and start altering meds for no good reason, I'm off again, sorry Sweet, just really p***** me off! Take care Kdel try and keep well hugs Snoozyowl;)

kdel
08-15-2007, 10:26 AM
Thanks for responding. I wish I knew the reason why but there doesn't seem to be one. It's not too early, he has my chart right in front of him and knows my history. Not only is he not going to do it-he won't even speak to me.
I also know he is not against narcotics alltogether because when I had strep he offered me liquid hydrocodone because I was havining trouble swallowing.
I declined telling him I could manage with what I had so he knows I'm not trying to get extra or I'd have jumped at that. I do know it's not just me he won't do it for because the receptionist told me so I really don't understand except that he probobly doesn't agree with the treatment so wants no part of it. He's quite old and hopefully will retire soon! Also there is no other doctor in the practice anymore so seeing someone else there is not an option

snoozyowl
08-15-2007, 11:07 AM
wave: Hey Kdel, sounds like the old coot should of retired already, dozy sod!! Right, what about your local ER, have you got official back up on the meds you take, so they know you're legit, oh honestly, what you have to do just to get the meds you're legitimately entitled to:mad: If not, the recep lady at your doc's seems sympathetic to your prob, she must feel sooo embarrassed by this twit she's got landed with calling himself a doc, refuses to talk to you, how dare he??!!!! good grief, he shouldn't retire, he should be shot!!!!:mad: :mad: I bet your reg doc will have lost most of pts by the time he gets back from his hols, serves him right for hiring such a dozy old duffer, but this ranting isn't helping you, sorry. Yeh ER whajafink? Proof from nice recep lady that you need them there meds, down to ER, explain, show proof, get meds you need, pain under control again, then reg doc gets back, complaint goes in about silly old codger neglecting the very patients he's supposed to be looking after. Sounds like a plan Kdel, if you lived near me I'd come with you and kick (I'd use me walking stick really!) silly old codger in the shin, right on the bone, where it hurt the most. I'm not violent person usually, It just really ticks me off this sort of thing, I know I hide it well:p You'd never guess would ya, Let me know whats happening, take care try to keep well hugs and thoughts to ya Snoosyowl;)

kdel
08-15-2007, 12:03 PM
Well thanks for making me laugh! Er is not really an option since my husband just changed jobs and I won't have insurance until Sept. 1 so as it is I will have to pay for the meds out of pocket. You've given me inspiration- I'm going to call again!

snoozyowl
08-15-2007, 12:11 PM
:wave: Hey Kdel, I was SERIOUS:D tee tee, at least my rantings inspired you not to give up and try again, it just proves that you are not alone on here. They say laughter does you good:) I still want to know what happens, you hear:) Take care, keep well hugs Snoozyowl;)

kdel
08-15-2007, 12:53 PM
Hi again Snoozyowl. I can't even believe the response I got but here it is-He may be willing to refill it 4 days AFTER my regular doctor gets back! This doesn't even make sense because that would be something like 33 days from the last time. My doc writes for 25 days (because of prev ins. co.) but even if he was thinking it was for 30 days,he's still off by 3 days. Tell me if I'm wrong but if you take something 4 times a day then a 100 pills would last 25 days correct? Anyway I know from the past when this happened once before, he has no intention of doing it at all. The last time he kept saying ok tomorrow and kept making me call back. This went on for about 3 days and then I went there and he wouldn't even come out and talk to me even though he wasn't with a patient and the staff didn't even want to go speak to him so I just gave up. This time I plan to really speak with my doctor when he gets back because it seems to me this idiot is playing games and they are dangerous ones. I'm also not sure whose office it even is or if they are partners. I think though considering the age difference between the 2 that mine is not the boss. Who do I even complain to?

snoozyowl
08-15-2007, 01:43 PM
:wave: Hey Kdel, this guy is just unbelievable!! your math is spot on Sweet, sounds like this chap has no confidence in himself and if he is the boss then he wants to check with your doc to see what's going on, to keep you dangling like this is not only dangerous but cruel. Your doc be in for a b******ing I know you said bout the insurance, but Kdel if you have to go to the ER and explain, no doc worth his salt is gonna turn you away surely. As for complaining, every doc no matter where they practice are governed by a Medical Board of that country, every doc has to register with them, just like every nurse has to register with that country's nurse's governing board. Now do you know anyone else in the medical profession? cause its different over here to the States, no? try your local library, loads of info just ask the librarian for info on medical register for docs and their governing body. One of the gals on here may be able to help on this. If anyone reading this thread knows the official name and address of the States doc's medical board please let us know many thanks Snooze. Back to you Kdel keep me posted, just when you think you ain't got a single giggle left let us know Poppet you take care and try to keep positive and well hugs Snoozyowl;) ps Did notice no smilies!!! the Owl is sseerriioouuss!!!!! hee hee

kdel
08-15-2007, 02:15 PM
Thanks for all your help. Now I just have to try to make do with what I have left which means cutting down quite a bit. After the receptionist relayed his answer to me she wispered for me to call on Monday and she would have my regular doc write it out then instead of the 23rd. Ridiculous!

snoozyowl
08-15-2007, 03:16 PM
:wave: At least we know we're not the only ones who think this bozzo is off his trolley!! That recep must of been doing this sort of whispering all the time your doc has been away. Don't be surprised if there be fireworks between the 2 of them will you? but carry on with the complaint, if he regularly covers other docs it means he's doing this sort of thing wherever he goes. I'm afraid some docs think they can play at being the almighty, surgeons are the worse, believe me! Hang on in there Kdel, give me a shout anytime and don't forget the E in ER stands for EMERGENCY which if you run out,:eek: you need meds and it will become an EMERGENCY:( yeh? keep me posted be thinking of you Snoozyowl;)

dodie77
08-16-2007, 04:21 AM
I'm on controlled meds for Fibro and CFS I take narcotics for the pain and believe that without them I would not be able to continue to work. Alot of people seem to think that I'm some kind of drug attack but I've never used drugs in my life. I go to a Chronic Pain Management DR. The meds I take have given me back quality of life. I still have bad days and some days the meds don't touch the pain but for the most part I have to say going to this DR. has helped me. I was wondering if any other Fibro sufferers are on controlled meds?

dodie77
08-16-2007, 04:23 AM
;)I'm on controlled meds for Fibro and CFS I take narcotics for the pain and believe that without them I would not be able to continue to work. Alot of people seem to think that I'm some kind of drug attack but I've never used drugs in my life. I go to a Chronic Pain Management DR. The meds I take have given me back quality of life. I still have bad days and some days the meds don't touch the pain but for the most part I have to say going to this DR. has helped me. I was wondering if any other Fibro sufferers are on controlled meds?

snoozyowl
08-17-2007, 10:33 AM
:wave: Hey Kdel, how ya doing girl? you keeping it together Sweet? Let me know whats going on with you? Your in my thoughts warm hugs Snoozyowl;)

kdel
08-17-2007, 10:52 AM
Hi Snoozyowl. Thanks for thinking of me. I'm not quite sure how I'm doing really I'm a bit confused-yesterday I took my last pill for the day at 5pm. Woke up this morning around 5:00. Felt ok for a couple hours except for an increase in pain so around 7 took my medication. That's 14 hours in between doses. I don't understand why during the day it's so much worse? I never go 14 hours! What in the world is going on? No one else is really responding either so I went over to addiction and recovery looking for anyone that may be going through the same thing but when I read the rules I'm not supposed to post this there because my meds are legitimate and I haven't been abusing them but I just wanted to know what signs to look for that may be considered dangerous. During the day I am definitley feeling some things like headaches, muscle spasms and twitching and yesterday some wierd line in my vision but I had been outside in sunlight and then came in and it was gone in about 5 min. so don't really know if that counts for anything. Any input would be great,even if it's a guess!

snoozyowl
08-17-2007, 11:38 AM
:wave: Hey Kdel, well 14 hours in between doses, good sign I'd say, don't forget during sleep the body relaxes, during the day there is so much more going on around us, subconsciously, our minds and bods react to all manner of things, from watching a news bulletin to a sloppy romantic film, our emotions over react we get a bit stressed and there you go, a spasm is born and we have no idea what we did to deserve that!!:confused: I think the thing with your vision was the sunlight and I bet your taking things a little more easy coz you know you ain't got the meds to fall back on, tain't no sin Sweet. When you say dangerous signs do you mean withdrawal symptoms? I think the reaction your having goes to prove your not addicted to or abusive with your meds? Maybe you'll be able to come off them and go on something more lighter, you know? Headaches, well your under stress at the mo right? worrying about not having your normal meds, are you gonna be in so much pain that you have to go to the ER. Financal struggles are always a worry, let alone what some freshman doc is gonna wanna do to us:eek: coz he ain't got a clue what fibro is!! Spasms and twitching could be due to the drop in med doses, but then it could be the fibro, how much longer till your reg doc gets back?, discuss it with him and see where you go from there. Must admit I'm pleased that you have had this sort of reaction and not the other kind. I believe everything happens for a reason, I have to, otherwise what's the point of anything? hopefully what has happened with you and taking these powerful meds will lead to you not having to take them and an improvement in your fibro, that can be managed with lighter meds, now that would be a result Kdel me dear old bean whadjafink?? Mega hugs to ya, get back to me soon Snoozy;)

kdel
08-17-2007, 12:45 PM
Yes when I say dangerous I mean withdrawal. Also you're right about me not doing very much, in fact I am a little afraid to go anywhere because the pain always increases with activity and since I don't know what could happen I really don't want to be out somewhere if and when it does. Also I have been extremely lucky that my normally nutty, hyper, never sit still 5 year old son has been so laid back all week! He seems happy to just hang with me. Probobly because we were on vacation last week with way too many people (all family on my husbands side) and he spent most of his time playing with the other kids. In fact I just told him I missed him while we were on vacation. He thought that was funny but after he said he did too and was happy it's been just us for a few days because we're getting to spend alot of special time together. I hope I didn't just jinx that! Anyway my regular doc comes back Monday but I'm not counting on any immed. attention since he is the more popular doctor and I'm sure his desk is overloaded with messages. I will however ask for special attention when I call! I'm learning that it can't hurt to ask right?

snoozyowl
08-17-2007, 01:37 PM
:wave: You push girl for immed attention, don't hang back, it's alright to be a bit selfish now and again:D The withdrawal symps that I know about are shivers, shakes, rapid pulse. mood swings. intense pain, how you tell the diff tween that and fibro pain don't know, guess pain where you don't normally have it? visual disturbances, perhaps hullacinations? I think your being sensible about going out and about, I wouldn't myself, must be honest. I also think your being sensible about too much activity. Kids are full of surprises ain't they? bless him:angel: Young kids are vvery perseptive at times, perhaps he senses that his mummy ain't quite herself right now. At the mo I've got a concussed daughter :dizzy: and a hubby with a pulled back muscle that won't listen to me and thinks the pain will go away on it's own while he carrys on as usual,:rolleyes: hey ho, I'll chuck a valium down his gullet, that'll keep him rested up and quiet:eek: Keep me posted Sweet, take it easy loads and loads of warm and gentle hugs Snoozyowl;)

kdel
08-17-2007, 02:29 PM
So sorry to hear about your daughter and husband. Sounds like you've got your hands full! Thanks for taking the time with me when you have so much going on yourself. Also thanks for that list of symptoms-scary though! Especially hallucinations and rapid heart rate. I do believe that would send me to the ER for sure.
All the best to your family. And about your husband the valium sounds like a good idea! Men can be stubborn.

snoozyowl
08-17-2007, 02:44 PM
:wave: Variety is the spice of life, so its said, Kdel its my pleasure to help another fibromite with a bit of info. That bit about men? ain't that the truth, stubborn and downright childish at times when they're ill or hurt. Mind you I don't really mind it keeps my hand in with all the hands on nursey stuff:D I just tell all of my tribe, 'do as I say or your on you own" it usually works. Hubby is doing as he's told now!! Catch ya soon Kdel, keep me posted ok? Hugs Snoozyowl;)

SOPHIABELLA
08-17-2007, 11:28 PM
Hi snoozy,


yes I am on narcotics and the doc should have given you notice before they went on holiday! You must be suffering, you poor little boo boo! :( It seems like once you are on the big gun drugs that they own you, and you should kiss their feet to keep the meds coming!!!!! I hate depending on someone else, and it makes you feel like less of a human being! Cant whoever filled in for your doc look at your file and refill it for you? You can always ask if the can refill just enough until your doc returns? That way it is not a full perscription. Good luck to ya, I am off to bed, I am tired from my med change.............Big Hugs Sbella

kdel
08-18-2007, 09:27 AM
Hello Sophiabella and thanks for the reply and support. The covering doc will not do a damn thing for me. I somewhat understand his reluctance however he could have offered to see me or at least speak to me to see what kind of situation he is leaving me in and also yes he could have written the script for a smaller amount. I am really pissed about the lack of concern on his part. This is not the first time he has done this and I am also not the only one he has done it to. My husband has diverticulitis which is ( I don't know if you know so I'll try to explain) a problem with the intestines/colon and periodically it flares up and gets infected. If this is not treated immediatley with powerful antibiotics there could be a rupture and possibly death. Well a few months ago it flared while reg. doc was away and when my husband called for an appt. he was told he had to wait 2 days for an appt. well that is not possible with this sort of thing and any doc should know this so when my husband complained he said well, if you can't wait then go to the ER! We argued until we got him in that day. The doctor was annoyed, did not examine him, take his temp or even ask how bad it was and when my husband started to tell him the doctor cut him off and said I'm just gonna give you exactly what the other doc did and you can make an appt. with a specialist. Nice guy huh?

snoozyowl
08-18-2007, 11:38 AM
:wave: Hey Kdel, I'd definately put in a complaint about this quack!! Hubby should go to ER and when there tell them about this twit and the predicament he put both of you in, endangering someone's life like that is not in the oath, you know the one every doc takes at the beginning of his career, it says 'to preserve life', not make it a living hell and just for good measure throw in agony and endangering their life.

Snoozyowl;)

 
 
 




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