I found a very interesting post on another site and since I don't know if I can paste it in, I will give you a summary in my own words as I understand it which isn't real well, I had to read it several times. I'd love to know what you all think, I hadn't heard this before but it does make sense.

The person posted and said that there were two types of FM, one is the group of people who get the dizziness,nausea and vertigo symptoms with the FM. In these people, the suspected trigger for the FM is a virus and their FM tends to be more severe and also more of an autoimmune disorder. It is believed that these people have an underlying defect in the immune system.

The other group is made up of people who have some kind of traumatic spinal injury. This group has all of their symptoms that begin to appear after a trauma.

This information, if true, would explain why some seem to be sicker than others and also why some of us seem to react to certain meds that don't help the other group at all.

Has anyone else heard all this? Am I slow in "getting" it?

I have read about this. Yes,I believe you are right.

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Dale

Hey Cioc 1212: I suppose there could be several types of Fibro, since Fibro is a "syndrome" or collection of related diseases and symptoms, like CFS. The maddening thing is they still have a hard time determining exactly what Fibro is and what its causes are(eg., the virus theory, immune system theory, traumatic accident theory). Sometimes I wish I had picked up one of the better known diseases, not one they are only recently beginning to understand(God, if you're listening, I'm just kidding ). Al

Al, my hubbie just popped in to see what I was laughing at! And "frustrating" doesn't come close to describing it. It does seem like several categories or causes of FM would explain a lot though, doesn't it? Oh well, it's time for my massage, I've been waiting for two days now.... http://www.healthboards.com/ubb/biggrin.gif Night!

[This message has been edited by cioc1212 (edited 02-20-2001).]

It all gets pretty confusing. Like ExpandHorizons, I have the vertigo, nausea bit, but I have experienced a great deal of physical trauma. Trauma APPEARED to be the onset trigger for me, but, really, who knows?

Twenty years (dang! I HOPE not that long!) on down the road, they may discover some recessive gene, or dormant something or other that predisposes people to get it once triggered. Hmmmmmmmmmm. It's all still speculation what is and isn't, but it's interesting exploring all the possibilities.

cioc1212, do you have a link to the article or....shoot, can't remember where you said you read it.
HEY! how was the massage? oh, yum!


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Copper
Let Miracles Replace all Grievances

Copper, the massages are really,really great. It makes my skin tingly and if I concentrate, I can unlock my muscles while he's massaging so it does help quite a bit. It also helps with tension headaches but I do have to show him how to do my neck better (too much hair in the way, I think). My neck actually has lumps that are excruciating to touch. It has also helped with my husband "believing" me, he can really feel the difference in my muscles when I'm having good or bad days. Last night he told me twice to "relax will ya?" but I wasn't tense, just my legs were frozen up and they weren't budging!

The link was on a chat board. I don't know if I can post it or not? I think it's ok, I'll try to find and post it. It wasn't an expert opinion, just a board like ours. It jumped out at me because I'd never heard that before. I do NOT have a lot of the nervous system type problems, such as tingling,vertigo, nausea,etc. or shooting pains,burning,swelling or numbness. I have in the past but it's been obviously related to a pinched sciatic nerve and it's gone away. It does seem that there are two groups of us, one with the "basic" pain and fatigue w/achiness and the other group with added swelling,numbness,more severe pain,etc. At least that is the way it seems to me, just from listening. I don't have any pain other than aches,gnawing,unrelenting,achiness in my jaw/face,neck,back and legs/feet.

Originally posted by cioc1212:
Copper, the massages are really,really great....I don't have any pain other than aches,gnawing,unrelenting,achiness in my jaw/face,neck,back and legs/feet.

LOL(not REALLY)! Like THAT's not enough!?!?! Sheese, this disorder SUCKS BIGTIME no matter HOW you're affected! http://www.healthboards.com/ubb/tongue.gif, right? Aside from what may have been a trigger to onset (re: chemical imbalance vs. trauma), the end result is icky either way, eh?


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Copper
Let Miracles Replace all Grievances

[This message has been edited by Copper (edited 02-22-2001).]

Yes, it's plenty. I left out a lot of the other symptoms too, I was just considering the sheer pain. http://www.healthboards.com/ubb/smile.gif There is a difference though between having sharp pain and having a constant ache. I think with me it's mental, I think that I should be able to deal with the aching since it doesn't have me rolling around on the floor crying. It's bad though, I really shouldn't be questioning myself, it gets so bad at times that all I can do is go to sleep to get away from it. That is not mild pain, it's moderate to severe.

Sounds to me like the first group would be thyroid disorders of a mostly hereditary nature, and the second group (with the spinal trauma)(and I think they mean spinal around the neck area) would be the pituatary gland getting a shock as in whiplash, which affects the thyroid, and hence the thyroid problem again.
Cioc, what has your Dr. said about the thyroid thing? Thought you were going to check it out?

Hi JB, I called yesterday to get copies of ALL my tests and bloodwork. I'm going to pick them up, probably early next week.

JB- I asked my doc to run "thyroid tests". I just picked up copies of my records (for $26) and found out that all she ran was a TSH which was .738 Looks like I'll be getting stuck again.

But it does look like seratonin is most likely to be a big part of my problem and I don't know if that's related at all to thyroid problems. After one of Coppers recent posts about SAD, I made the connection and there is a strong family history of seratonin problems....on the side of the family that seems to have passed on the most genetic tendencies (unfortunately).