Hi there,

I think our other post went missing there, well I cant find it, but this computer is acting up big time. Anyway just wondering how you are doing, coping etc etc in this wonderful spiney world !!!!

Regards
Round 1

Round,
you are so nice to have time to think of me in your situation... thank you so much for your thoughtfulness! I hope you are doing a bit better, are you?

I am waiting for surgery on Sept. 06 regarding some opacity behind my sinuses, what is that so far nobody knows.
And than same month i will have discogram done and than day of the surgery will be scheduled for 3 levels at this time.
Right now i am all "wired" for 90 days with some devices, monitors which monitor my heart for 24/7 and sends reports to my cardiologist.
Never a dull moments, see how much I have to "look forward to"? LOL

All the best to you!

A Lot going on there for you, wil be thinking of you, and hope everything will go according to plan. I am 12 weeks now post double level fusion, happy but not, as you can see from my posts. If this pressure feeling would stop I would be far better and be able to sit abit more.

I just find the days endless when you really cant do much. !!! Sorry to be such a moaner, especailly when you have your hands full, and wish you were 12 weeks down the line..... sorry.


Round 1

Honey, you are not a moner, you are human been in pain and that is why we have each other here - to listen and be for each other, is in it? :-)

I feel your pressure - i felt it for a very long time. Seating was impossible, walking - i felt like a ton of weight was attached to that area. I would say for a good 8 month i felt that terrible pressure. I hope for you will not take that long, you know everybody is so different.
I know, Round, how hard this is; you are so right about time goes so slow when you can't do anything. First time in my life i learned how to say to myself :"YOu can't do this or that". It was the hardes thing for me, who always did everything herself. I see when my husband cooks and how something gets on a floor, it drives me nuts, i want to bend and clean right the way... but how can I? So i slowly learned to take a deep breath and let it go... Not easy though... still not!

Thanks Moldova, I some days I am so positive about this and somedays just so fed-up which I know is only natural. My son is starting back to school he is 5 and I really need to be okay to drive and collect him, its not far but its the traffic and parking, and just want to be there acting normal like all the other mums. Only I'm not. I know I can drive and I know its not far, but its the change in my routine, and I dont want to find I go back to bed after dropping him off and stay there till I need to collect him, as this would be back to where I was day one....... I really have to re think, I know I could ask friends but I just want to be there, not have him collected by someone..... I had to do that before surgery for 3 months, and he just said the other day "mum i really hope your better to collect me from school".
Oh Moldova, know what you mean about the cooking, and the cleaning and the dropping, where would we be without the grabbers. I hope to day is more pain free for you and let me know how you are doing?

Round 1

Round 1 - that is the biggest challenge trying to be a Mom and being there for your children when you are suffering so. I go thru that too. I can't take my meds because I need to drive them here or there and I suffer. I think alot of times my pain gets ahead of me because I have to wait until I have done my Mommy thing. I just wanted you to know that I too think it is important for us to be there. We can't do alot of things with them like throwing a football or bouncing a basketball so we NEED to be there for the things we can do. Hugs.

Moldova, I think of you often and pray for you. You are going thru so much. Forgive me but I can't remember - are they just watching the lung spot??

Thanks Diet,

How are you doing, I know there was a bid long thread but I just sometimes lose track on them, the mind wanders, I know you are due to consultant the day after me, and is it six months since surgery. Diet I just came across as I goggled this pressure feeling, and eventually I saw something saying it was because of the scarcum being fused that this causes that pressure? You said you had it to am I correct ?

Thanks for understand my panic re going back to school runs,
I know my little fella thinks that all his friends should realise that I have a bad back, one fella threw himself down on the floor and asked me to tie his shoes !!!! My son said, get up of the floor my mum cant bend put your foot on her knee, and whey cant you do it yourself ???? I just laughed, but its different for him he grew up with me like this. But yes I do miss not been able to run after him or cycle play ball, hell just be normal. Never guess by the above I am having a better day today. Got up and did stayed up for 90 min just went to lye down for 35 min and I went out sat, walked sat , drove sat, etc and I am still up 3 hours later......... I have a heat wrap on my back and boy is it making a difference.

Diet, Moldova, thank you. Moldova, take care of yourself and I am thinking of you.


Round 1

First of all: Thank you so much for being so thoughtful and kind, thank you for your prayers, you just wonderful people who have heart to think of others while having such problems yourselves...
I can't even imagine how do you handle your little kids in this situation. My grandaughter (she is 2) wants me to get on a floor with her to play and she wants "grammy" to tie her shoes... My daughter is right here, so this is easy. But you are mothers and nobody there to help - God Bless you, girls! I am sure besides your physical pain, you have to deal with guilt (same here) that you can't do what you want or have to do... this is our neuture.
I still hope that one day we all will get better and this hard time will be like a bad dream for us... I pray for all of us.
I told my healthy girlfriend all about this board and people on it. She said that for 2 hours she was reading our posts and cryed; because of me not complaing much to anyone (just to you all, forgive me :-) she never knew to what extend people suffer and how it affects our lives. And also she was shocked how wonderful people in here and how much support we all have for each other. She is so funny; she thought when you in pain you have to be miserable, so how come people have strengh care for each other? I called her selfish *** LOL

Isn't it wierd how we are so much alike with our problems ? There should be a book written for future spineys , by a spiney . There are so many things that we cannot do anymore , the simplest things are impossible. Thank GOD my children are grown enough that they don't need us to carry them . My youngest daughter cook's most of the time and takes care of me when I need something , she is 16 yrs old. I still drive her to cheerleading and Dr. appointments but soon she will have her drivers lisence and we won't have to drive...Round there are so many things we can't do , but we can be there for them in other ways . I'm sure your pain will lighten up a tad soon ,and maybe you'll be able to do a little more. Playing on the floor with your child is pretty tuff , but getting back up off the floor is even harder.;)

I wish they found a cure for all us pain sufferers , maybe stim cell implants or something ?? Did they ok them to experiment with this yet ? I would love to see this stuff work. I seen on the news about a horse they used stim cells on that had torn ligaments and other problems and now the horse is racing again...Gee squish some of that stuff in my back would ya ?

Shawley

Moldova--I forgot all about your other problems ! Jeesh you must feel like the bionic woman with all them wires attached to you ? I hope they can take care of your problems. Hope your surgery goes well . I'm sure we will al be thinking of you during your big day in surgery and praying everything goes well.

Shawley

Thank you, Shawley! I am like a bionic woman right now - not even funny! All wired like an FBI agent; my friends kidding saying that they have to be careful what they are saying around me. LOL

As much trouble as I am with my health issues i always say : could be worse. I was saying once before how i had to take my son for 3 years to Sloan Cat. in NYC to a children department and saw babies, toddlers, teens who have cancer; pail, chimo therapy IV attached to their poor arms, sad and sick... Since than I feel nothing in this earth can be worse than this sinery; whatever happens to me it's OK but please Lord, don't give something bad to my kids or kids, they deserve better!:angel:

Now when i am in a lot of pain i never ask "Why me?". I am still here to talk to you all, still above the ground, still can enjoy my pasta and wine once in a while - so I am still good, am I? :) Talking about pasta - why not have it today?? Everyone is invited, have plenty of space for all walkers, canes and crutches ...:)

Moldova, you do make me smile, even though you are putting on a brave.
Thanks for the invite for pasta, might be a tad bit over done by the time I arrive, and you really are safe, as I cant travel !!!! but tell you I will be having egg noddles with soya sauce and whatever thrown in so looks like pasta is the easiest for us all to cook. Had have a glass of wine for me to.
Take care and mind yourself.

Round 1

I definately will! And when you ready to come over - just let me know!! :-)

Hi Moldova I must have missed something here, because I am reading about heart monitors right? What happened and whats going on? I pray you are ok. Sorry I did not see your post earlier, just to let you know i am praying for you, God Bless you and get better soon

KKmom, thank you for asking,
yes, i have heart monitor for 30 days ... This thing bipping all night long, beeping throught out the day the minute i go from room to room... like i needed more pain in a neck.
Well, nothing i can do about it.
Have a great day!

Moldova...
I was just thinking about you, and here was this post!! I do hope that everything is going a tad better for you. All of the wires on the heart moniter are a pain!! (I've worn one several times also...irregular heartbeat!!) The funniest part is when I accidentally unsnapped one of the leads...now that was scary...I didn't know what else to do, so I just snapped the sucker back onto the patch... Never did hear anything about it...guess they have this type of thing happen. Gosh, you sure have a busy schedule for Sept. I do wish you all the health in the world...so that everything goes very smoothly for you. Love pasta....love it love it love it. Can't have the wine...but PASTA, yum. I should be italian...not irish!!
Have a good day..

Leslie

Thank you, Sage... you made me smile about pasta and being Irish.
My girlfriend is Italian who is on diet all her life but her husband is Irish and loves pasta to death. So they constantly fight: he wants pasta for dinner every night and she doesn't want to cook past since she will eat it too! They are too funny!
I wish you to feel better and very soon to be out and about... :-)