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bluelakelady
08-19-2007, 11:18 AM
hi kids,
at physical therapy yesterday i mentioned i was having a wee flare up of fibro and arthritis. upon examination during release therapy my therapist told me he could not believe i was walking and laughing and had exercised so hard just a few moments ago in the gym. he told me my body is in a huge intense flare up and he could not believe i was not in bed weeping. i laughed and said well no wonder i hurt.
what i realized laying there is state of mind is everything during a flare. i woke knowing fibro was really here, but after so many years of making myself go to therapy it is just habit to push thru. i know laying in bed is not good therapy during a pain flare. exercise is. activity, any activity that takes my mind off the flare.
so i am taking my nasty little fibro flare away for a couple of days to recoup on the mountain. long walks, healthy eating, bubble baths. monday nite is dance exercise and i will not miss it. it is good for my body and mind. i will reward my body for getting up and going to therapy even tho she was hurting. i did not give in yesterday even after a rather nasty fall. i went on with my project for 3 hours, then i came home and fell on my face, so to speak. i am getting a black eye. never had one before. it was quite a fall. i forgot that during a flare up i must be very vigilant watching my walking as fibro especially loves to play in my legs and feet.
my hot tub calls to my wee sore body. i am off to float the pain away. i wish every one of us could have a hot tub. it helps so much with the pain. i think it is the lack of gravity along with the enveloping warmth that strokes my fibro so gently asking her to relax.
there are many ways we all find to get thru a flare up. this is mine. what is yours?
peace,
bluelakelady
ps no doubt that wee fall will manifest as fibro pain. lazy old fibro, rushing in to an easy spot. ;)

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BeHappy2
08-20-2007, 12:29 AM
Hello Blue, So good to see you are asking how we all do with a fibro flare up. For me as i have mentioned numerous times in posts is a pool of water. I have a pool that i can gently relax in. Well the doggone pool had a major leak and it took near 2 weeks for a repair man to fix the hole. Then to mention my mail meds did not make it to the pharmacy, i ran out of meds. I thought the pharmacy was slow mailing them to me but boy was i wrong. A pharmacy mail bag had been stolen. I was sure enough in a very stressful situation and boy did i have major flare up. Most of all here you mention the hot tub. I don't have one but i was very curious of how well they do for flare ups. I'm going to research into insurance possibly helping with the cost for one. Why not, it's therapy and my Rheumy has offered writing a prescription for water aerobics. If it's therapy, insurance should help out. I also took a fall recently, thought i broke my arm,black&blue from elbow to shoulder. ouch! I strongly recommend the water therapy for fibro flare ups. I don't dare just lay around , makes it much worse. Looking forward to reading how others deal with their flare ups. Thanks Blue, this was a good one you posted.

snoozyowl
08-20-2007, 05:22 PM
:wave: Hey BeHappy2 and Blue, hope you both stabilise very soon, warm thoughts to you both, take care, keep well, Snoozyowl;)

bluelakelady
08-23-2007, 10:27 AM
hi behappy2,
ah, my hot tub. honestly i don't know what i would do without it. there is something so soothing about warmth, especially water, that melts my pain down to a doable pile of mush.
like you the flotation alone is helpful. being able to take the weight of gravity off all of me, well it is a feeling of relief. one of those ah ha, heaven things.
i do stretching and all manner of contortions, mostly old dance stretches i can still do in water, giggle. on land is a different story. tee hee.
still flaring away inside. except for potty training p.t. i will be choosing to respect my body and mostly rest her today. little chores and short walks, baby steps back to me.
ibs has come to join the fun. sure glad i hit the salads and water hard the last couple of days. i did break down yesterday and take one belladonna. old injuries are visiting so i am attending to them. wrist braces are back on. this injury is very old, yet today it is as tho it just happened.
i have this topical med i rub on the areas that hurt the worst. it gives me about 2 hours without any pain. actually it is the only thing that literally takes pain away for me. unfortunatly i stink to high heaven when i have it on, so in public is out.
this morning i am pushing myself outside to walk my yards and water along the way.
we are coming into a heat wave and my body sure feels it coming. having the cooler on so i can use my heating pad. giggle.
thank you snoozy for your sweet words, and the words i found in another thread i forgot to reply to. sorry. the fog is coming within. fibro fog is trippy.
peace and pathways thru flares to you all,
bluelakelady

Bouncy
08-23-2007, 03:17 PM
Sorry to hear you're stryggling.
Hope things settle down soon.
In respect of the IBS I started using aloe vera juice sometime ago and (touch wood) haven't had a problem since. Maybe it's coincidence but I tend to hang on to any bit of hope there may be so I'm choosing to believe it's helping. ;)

bluelakelady
08-23-2007, 03:46 PM
hi bouncy,
thanks. no struggle really. just going around the block again with my best bud fibro. attitude keeps me chipper. tomorrows come. they always do. this is another blessing of fibro. tomorrows. never know when i will just wake up and all will be right inside again. giggle. i love the up times. the down time reminds me of the treasure those up times really are and to always take good care of my body.
the ibs is created by a med i take. since i have to take it we dance in the loo. aloe juice is wonderful. i juice with a berry blend a friend gave me.
i still bend over to smell the flowers. exercise. giggle.
peace,
bluelakelady
ps. nice to meet you!!!

cantell
08-23-2007, 05:08 PM
Hi ya blue, I too am sorry you are in a flare..is it hot there? my god it is hot here yesterday it got 110 our weather has been setting record temps this month and last month they put a burn band on and started rationing the water useage.

I dont know but I think the weather has something to do with fibro suffers..on the 17th I had to go to er with chest pains..thought I was having a heart attack turns out it was costochondritis in my sternum. now I have to go for a stress test.
I have also gotten dizzy and just fell down..very ungracfull to say the least..I am like a cat grabing at thin air all the way down..my husband only wittness this once and he was like..what the heck???? the wall caught me and I saved myself a very unlady like landing..LOL

i envy you on the hot tub and the other lady on the pool..i do have a water hose tho! LOL

i hope you feel better real soon!

snoozyowl
08-23-2007, 05:53 PM
:wave: Wow!! you get HOT weather out there, its drizzling here in the UK and very windy!! I was able to get out the last coupla days and thankful to be able to as well, get a bit stir crazy at times, I've just coming thru a flare, so am happy to have the good days back hopefully for quite a while:D My dog appreciates the walks as much as I do, although he was getting worried when the trees started to creakin the woods where we were walking eek: Am gonna try water aerobics soon and some gentle stretching exercises that Goldie has promised me:cool: You ladies take care, hope the flares stop really soon. Cantell, does the dizziness just come over you? Well, actually I supppose it must for you to lose balance like that huh? I've also heard that fibro can mimic a heart attack, that was scarey:( I bet!! Good luck with your stress test Cantell, let us know how you get on. Hugs to ya all Snoozyowl;)

BeHappy2
08-24-2007, 01:12 AM
Howdy Blue.
You have convinced me of a Hot tub, definately for winter days to come. Hubby injured at work, in & out of hospitals, i am totally fibro flared. Soon as i can financially, a Hot Tub for sure. Wish i knew the topical med you have, i have tried numerous over the counter with no relief. My whole body feels twisted in knots. You take care and enjoy your Hot tub relief, i'll have to stick to my pool until weather changes. Not complaining of my pool, it's just that pool is seasonal and hot tub can be used year round. Enjoy.
Since we're both having major flare up, more than willing to listen to your tips.

BeHappy2

samm
08-24-2007, 09:27 AM
Hi ya'll. Hang in there blue. I love your attitude! I also have learned that a good attitude makes all the difference, but you are an inspiration. I agree that staying in bed only makes it worse. I read somewhere about 'the zone'. The premise was that if you find something that you enjoy and really get involved and focused on it that you can (at least for a few minutes) escape the pain. I'm a piano teacher and I've noticed that this happens a lot during my lessons (which I do really enjoy.) I can be really hurting when they come in, and then they get up to leave and I realize that I haven't noticed the pain (which is still there) for awhile. Don't know if that makes sense, but it's true in my case. By the way, I also adore my hot tub. Besides easing the muscle pain and the emotional comfort, it's really great for restless legs. Hope both of the flareups calm down soon! Cantell, I also had costochondritis a few months back. It will scare you to death, huh? That one slipped up on me. I didn't know it was related to fibro, but later I found it on the symptom list. Mine came back after a couple of weeks, but since that time, its been fine. Hope yours is too.

cantell
08-24-2007, 10:01 AM
hey samm, yes it slipped up on me too. and with heart attacks in my close family (mothers side) I was concerned..I school myself constantly so that I dont go into a panic attack..suffer from that too..and its no picnic either.

I seen that you are a bama girl too..I am 45 mins north of the birmingham area. I was wondering if you have filed for disibility with your fibro?


~take care~ and enjoy your hot tubs!! the one's lucky enough to have one..I slobbered over the thought of getting a jacuzzi at one time then backed out of it because I was afraid that the water jets would just kill me! (skin thing)

I also found out that if your doc perscribes you a hot tub alot of insurance company's will pay for it..wonder if medicade/medicare would also pay for one??

samm
08-24-2007, 10:57 AM
Roll Tide Cantell ;) Bham is one of those "I have to go 100 miles (north) to see a specialist" towns. No, I havent filed for disability yet. I love my job (teaching piano lessons) and so far it's working for me. I set my own hours (don't start till after 11:00am !) and since I get to sit all day, it's not physically a problem. And thank God, not much detail work. The main thing is I'm my own boss, so if I mess up on the books, no one cares but me! I'm 42, so I've got a long time to work...we'll see. Stay cool!

bluelakelady
08-24-2007, 11:24 AM
so nice to see you all here sharing ideas and ways to get thru those flares.

deleted

today fibro and costo and arthritis are dancing within. weather sure does have something to do with it. we are in a hot spell with cool nights. the changes in temp disturb my body.
within my mind all is well and at peace. where it counts. body is what body is. my thoughts and feelings are mine to choose. i choose to be joyous no matter what aspect of my body is upset. breathing exercises. love them. calmness comes and pain eases.
take care dear friends. drizzly in the u.k. not sure i could do that. i do love the sun so. it really helps ease pain. 10 minutes of sun and i am feeling so much better. have to be careful due to the lupus issue. giggle. that is a lie. i never worry about that.
peace,
bluelakelady

snoozyowl
08-25-2007, 12:21 AM
:wave: Hi everyone, Strange thing I can't take the heat:confused: Might be I'm used to the UK's weather, I have to be careful about the temp in my bath as well, it just wipes me out, the cold I can deal with I just wrap up warm, then again my body temp is outta whack due to a tumour on my pituitary gland, thankfully it isn't malignant, but still does and has caused probs. According to my doc I've probabley got MS as well so perhaps that causes the heat thing:rolleyes: Mind you if it's too cold then I don't go out full stop:( Must admit at times I don't really know what condition is causing what prob, except the flares, that has just gotta be dear ole fibro come to play, you all take care now, everyone stabalise for goodness sake:D try to keep well my lovely fellow fibromites, warm thoughts and the tenderest of fibro hugs to you all Snoozyowl;)

BeHappy2
08-27-2007, 12:54 AM
Hi Blue& All, Today was a perfect pool day and i just have to say i sure did some thinking since it was so relaxing. I thought wouldn't it be nice to enclose this pool for the winter and have one heck of a big hot tub. Ha, well that takes the bucks that i don't have right now. Cantell mentioned some insurance will help out with a prescription for a hot tub. I definately will check into this,Thanks Cantell. There's no question about water therapy for Fibromyalgia. For anyone who can even get into a kiddie pool, give it a try.
I see we're not aloud to give out any info for pain creams so Blue thanks for giving it a try and i'll figure something out.

BeHappy2

nix5149
08-27-2007, 02:55 AM
Strange thing I can't take the heat:confused:

You're not the only one. Cold works for me. We're against the norm. ;)

I'm in California, near the desert. I try to keep the house A/C set at a fairly high level (80 degrees) to save energy costs -- my usage had doubled the month before, and the rates are being raised 30%. :mad: In the car I crank it up. :D I have a fairly high internal thermostat, and it doesn't take a lot of activity for me to break into a major sweat. I have a fan in my room to help me sleep.

I'm entering week 2 of a major flare up.

This is what is really freaking me out. I actually PASSED OUT sitting on the couch last night watching a movie with the boyfriend! THAT was WEIRD!!! I took my normal meds a little early, around 8:30 pm. I made spaghetti and we sat down to watch the DVD. I had a slight headache and thought about getting some ibuprofen, decided against it, and the next thing I know I'm being hefted under my arms onto my feet and coaxed to bed around 11:00. I woke up at around 7:00 this evening, sore, foggy, and eyes swollen almost shut. :(

Now, I am the insomniac / narcoleptic who can't sleep on planes or in cars! I've been awake until 3:00 am for the past two weeks, meds be damned. I am very resistant to falling asleep. I have a lot of anxiety around falling asleep.

Maybe the movie "Wild Hogs" has even stronger soporific qualities than Stephen Fry's reading.

snoozyowl
08-27-2007, 12:09 PM
:wave: Hi Nix5149, thanks for that, I was beginning to feel the odd one out, the sweating thing is unbelievable ain't it? Worse than going thru the 'change' with all the 'hot flushes' thought I was going into that again :eek: Could be that lack of sleep caught up with you, but does sound a wee bit drastic to pass out. Maybe a good time for a doc check, just to be on the safe side. Hope you come out of your flare really soon. xx
BeHappy2, hydrotherapy works for you? Thanks I needed that bit more encouragement to try it, been a wee bit hesitant to be honest, heard a lot of people saying it don't work for them, then again they did have arthritis as well.
Thinking of you Blue, hope you're feeling post flare soonxx
Take care, warm thoughts to you all hugs Snoozyowl ;)

bluelakelady
08-28-2007, 10:44 AM
hi kids,
thanks snoozy. appreciate the thoughts.
doing okay. yesterday was long and stress filled. work stress. left me fragil.
within my mind there is peace. it is enough.
peace and love,
bluelakelady
ps. hot weather puts me down. air conditioning hurts. swamp cooler and a blanket, go figure?, work for me. wish i could handle cold. it gets really cold here in winter. well, really cold for california. giggle.

snoozyowl
08-28-2007, 03:49 PM
:wave: Hi Blue, sorry to hear bout the stress:( you've been under. regarding the weather, wonder if it's the atomspheric pressure, you know the high pressure stuff, someone else was saying that they were suffering when the barometer showed low pressure, getting very technical ain't it? Feel better soon gentle Blue, hugs Snoozyxx ;)

bluelakelady
08-29-2007, 10:59 AM
hi kids,
a little heads up. boy am i dumb sometimes!! how could i forget this???
if you are in a flare, as i am at the moment, do not have procedures that invade your body in any way, unless absolutely necessary. i had a catheter used on me yesterday, another u.t.i., and it really hurt. usually i just breath and feel the pressure of it going in. not yesterday. like a tiny red hot poker. i even said ouch, which surprised my fnp and me. hypersensitive to pain, smell and sounds at the moment too. bizarre.
during the drive as the tears of exhaustion rolled down my cheeks i realized i was also looking at the trees, the birds, the grasses, and seeing the beauty. really seeing it. constant reminder that joy is all around me anytime i need a fix. giggle. tears are good. they cleanse our body and mind. besides, as we all know during a flare keeping tears back is like holding a breaking dam together with bubble gum. ain't gonna work! tee hee.
off to my beloved hot tub. two rounds of p.t. yesterday also. i refuse to cancel any appt unless i have severe fibro fog. pain is not a good enough reason, nor is infection. as always it is worth it. potty training is going well as is stroke recovery, tho being in a flare is slowing down progress. all in good time.
peace,
blue

snoozyowl
08-29-2007, 11:31 AM
:wave: Hang on in there Blue, it will pass as you know, warm thoughts and gentle hugs Snoozyxx;)

bluelakelady
08-29-2007, 11:49 AM
thank you snoozy,
within my mind there is peace and joy. it is all that truly matters. the body is what it is. i still choose to be happy i am alive, able, aware.
actually i am glad all my goodies are here at the same time. costo showed up as did myofacial. i would rather do them all at once and get it done so i can boogie on.
giggle.
peace,
blue
hot tub was the wrong idea. oh well. needed motivation to hit the shower anyway. now i smell good and am dressed before 8 am. brag, brag. sensitve to heat this year. trippy. usually i thrive on it. oh, duh! lupus flare. hello lupus, been awhile. welcome home. giggle. giggle. ah, the family blue is all gathered. they will feast and then leave full and content once again. aware, ability, choice, can do. bye byeeeeee . . .

snoozyowl
08-29-2007, 12:35 PM
:wave: Ah Blue, my heart goes out to you as all your 'friends' come to play, never rains, but it pours, so they say. Stay happy gentle Blue, wish you speedy turnaround:) let us know how you're doing, warm thoughts and tenderest hugs Blue, Snoozyxxx;)

bluelakelady
08-31-2007, 11:27 AM
morning all,
yesterday was the weepy day. hooray! the weepy day means i am on my way back up. funny but the weepy day usually is a sign that this flare is coming to an end. it is not a crying. it is tears falling down my face for no reason. like i have too much fluid and this is a way to get it out.
i watched chick movies that always make me cry. got myself quite a headache. worth it tho as i feel so much better today.
while it makes no sense this is my life. weird, bizarre, wonderful and mine.
i am making myself go dancing tomorrow night. good for my body. wonderful for my mind. healing.
i have another u.t.i. so will go get antibiotics today. guess the potty training is going slow. giggle. going slow is the problem. ha! more p.t. today for fibro. tho the release therapy hurts it is always worth it the next day, and the next.
i did notice this flare up that i have lost my center. that space from which i meditate into the pain. this has not happened in 7 years. it is a sense of being fractured within. body energies bouncing around instead of flowing gently. i have a friend who will come help me next week to get my center back. she is magic. without touching me she redirects the energy. i shake and jerk and i love it.
i love this coming back feeling. rebirth.
peace,
blue

BeHappy2
09-01-2007, 12:02 AM
Good for you Blue, sounds like your Fibro Flare is ready to leave. Dance the night away, enjoy. Sure wish i had a magic friend to redirect the energy.
Your posts are always so amazing with sunshine.
So you also had one of those painful headaches, ouch. I posted mine tonight in the Fibro & Tramdol thread. It's pretty bad when it hurts to open your eyes best to keep them closed.
Take care,


BeHappy2

bluelakelady
09-01-2007, 11:40 AM
hi behappy,
headache is gone. fibro release therapy. i feel fibro slowing down. the other guys are easing a bit. blessings come.
it is the weekend, with all her chores. todays p.t. is painting. giggle.
found a bit more stroke damage to work on while in p.t. my silly right foot.
have a grand weekend one and all,
blue

snoozyowl
09-03-2007, 09:51 PM
:wave: Hiya Blue, so glad you're on the turnaround, good news indeed:) take care, keep well hugs Snoozyxx;)

bluelakelady
09-04-2007, 11:09 AM
thanks snoozy,
had a setback. overdid the house painting. spent yesterday sleeping away the day.
our weather has changed. my body rebels. silly body. like it can control weather?
more stroke therapy today and fibro release. my therapist knows just how to dig into those spots and get them to relax. bless him. each day as i worked my fanny off this past weekend i kept thinking tuesday, tuesday. and it got me thru. i will be so glad when the house is done.
hope you all are well and smiling thru the rough spots.
peace,
blue

snoozyowl
09-05-2007, 10:58 PM
:wave: Hi Blue, yeh, trying to smile thru this ongoing flare, following the stretches that Goldie passed on to me is helping, been chatting to Goldie recently about SLE/Lupus etc. What an amazing lady she is and with such a positive outlook:angel: I'm learning Blue, slowly and gently. I have, at long last, accepted that fibro coming to live with me is not my fault. I still get frustrated and rebellious at times, but then I like to think that, that shows I haven't lost my spirit for living, given time I will adapt and grow. Would you believe that I'm going for a belly dancing session this weekend?:D Wish me luck Blue!!!! I'll let you know how I get on. The weather over here isn't too bad, cooler than it has been, although I haven't been able to get out much, this flare has my legs going shaky and feel like they are gonna give out, hey ho, this too will pass eventually. Take care all and try to keep as well as you can, hugs Snoozyxx;)

bluelakelady
09-06-2007, 09:59 AM
dance on snoozy!!
good for you. exercise is so important. and dance is fun. smiling is good exercise for your face and mind. laughter good for lung expansion and breath.
ah kiddo, fibro is an illness, not some bizarre choice. if it were a choice none of us would be here, right? there is nothing you could have done to make it come. it just does. how well i remember thinking the same thing.
in time you will turn that anger and frustration into energy for healing mind and spirit. never be frustrated with your progress in this as it is as individual as we are. had you met me 12 years ago you would have seen a scared, angry, fragil woman. we all have a hard time adapting. we rail against the limitations as we mourn the loss of our old "me". yet we are reborn, different, new, better humans gifted with a compassion so deep.
getting fibro was one of the turning points in my life. it is a blessing i thank the universe for. i found my peace. what could be better than that? and i found all of you here. life is good. so good.
have fun with your belly dancing lessons. i am so very proud of you. get those legs shaking for a reason. giggle. and that tummy rolling up and down will strenghten your whole being. most of all have fun and laugh alot.
peace,
blue

Glojer
09-10-2007, 02:38 PM
Oh blue, I am so sorry I was not here for you during your flare. Sounds like it was a doozy! I can't believe I have been a way from the boards so long because I think of you all and pray for you all every night. I have thought every day I would get here to see how everyone was doing and of course as I always say LIFE gets in the way. I hope you are doing much better. Fibro does love to sneak in when we are weak with some other problem....little devil!!

We have been and are still getting remodeling done on our home. It is a long drawn out process because we have to do bravemans PT and doc visits and all the family things in between scheduleing all the work. What an ordeal and what a challenge for my fibro. These 6am mornings for workers and salesman are about to do me in. Then of course you have all the shopping to do to pick out the new faucets and things. Most people would like the shopping part but my fibro and I don't like it. The plumber has been here for four hours already this morning installing a new shower faucet set up and a new toilet. I don't know what will hurt the most after he leaves the fibro or the bill.

My doc has suggested I try massage therapy for the muscle knots in my back. I have done regular PT in the past without much success and I want to try something else first. Have you had any experience with massage therapy? When I called for info, I was told they also do the stones, I'm not real sure on that either.

Hope you danced fibro right into the ground blue. I love dancing!!!! I have to say, with everything going on and the fact I don't get on my treadmill as often as I would like these days I am doing remarkable well (knock wood/rub my rabbits foot/and everything else) and when you throw in the stress factor......well I'm just doing great. Like we always say 'attitude is everything'.

Say do you think that bag of candy I bought and ate one day when the stress and running around was especially bad had anything to do with my IBS flare.......giggle!

Miss you and everyone on the board. I miss Golden, haven't talked to her in ages, hope bilij is doing great, how is Linda (pa235), I guess Godsgirl is back at school......the list goes on. I can't wait for my time to be my own again, I will pop in every chance I get.

Love
Glojer

bluelakelady
09-12-2007, 10:54 AM
hi glojer,
not to worry. i felt you the whole time. i know where your heart is.
do the massage therapy. it is worth it. stones, hmmm, no never had those used. let me know what it is and if it helps you i will seek it out too. anything that is not a pill i am always willing to try.
goldie and the rest of us old girls are still hanging about. i see them in threads here and there. with the weather changes as autumn comes to us i guess we all disappear from time to time. fibro sure does love these weather changes. so does r.a. giggle. little rat.
candy cause ibs!! no, please no!! giggle. i would shrivel up to a rasin without my candy!!! giggle.
my flare is almost gone. still napping each day tho. i will know it is over when i have the energy to get thru a whole day without falling out now and then.
had a tia yesterday. always a bit of a setback. p.t. showed right side weakness again. glad it was a tia and not a stroke. giggle.
oh yes, i forgot to say if you do the p.t. ask for fibro release therapy. it takes time to get those knots worked out. and it does hurt in the beginning. however i always feel better the next day. at first it would hurt for a couple of days, then i would feel energized. now when i have it i feel the energy flowing as soon as i leave.
please give braveman and miracleman a huge hug for this lady of the blue lake.
i was gifted with a joy that took all my pain away day before yesterday. my grandaughter has arrived healthy and daughter is doing well. laughter and joy always chase fibro away.
be well my friend.
love,
blue

bopper
09-12-2007, 12:58 PM
Hi bluelakelady.

Glad to hear you are doing better. You are a tremendous inspiration to me!

I think of you often and re-posted on a thread we were corresponding through some time ago. I just finished writing a letter to dh pouring my heart out and expressing my wishes for a divorce. Phew. That's hard to type.

We will get through this though and hopefully, remain great friends.

I owe much of my strength to you!

Glojer
09-12-2007, 10:28 PM
Oh blue a granddaughter, hugs and loves to you and your family. Take those rests every chance you get. Braveman is having some sort of intestinal problem......ick for him. He had to do some lab tests today......ick.....ick.....ick!!!! It should show what kind of bugs are in there we hope and he can get the right kind of meds for that. His myositis disease is flaring but that will just be an increase in his weekly injection. We now know what his magic number for dosage is weekly to keep the myositis hidden away. We had to try lower mgs. though, you don't know until you try.

As soon as braveman gets the intestinal bug straightened out I will be able to call the massage therapist and get started, thanks for the tip on fibro release therapy. I am looking forward to it. I know I will be sore for a few days afterward but anything that will help.

You hang in there with the TIA's, don't let them turn into anything worse...you hear! We need you giving out that great advice and keeping our spirits up. What an awsome responsibility we give you.....shame on us. But we are shameless when it comes to that!

Peace and pain free days!
Glojer

bluelakelady
09-13-2007, 10:39 AM
dear bopper,
your strength is your own. it has always been within you. i have no doubt your fibro was wrestling within as you wrote your letter. altering the balance of a relationship is rather stressful. you take care not to spiral into a flare as you work your way thru this.
it is always a good thing to stop doing something you realize is unhealthy. i am proud of you. i know, little sister, i know the mountain of emotions you are going thru. and yet there is that sense of simply being done. just done. it is a relief, yes? please stay tuned in to your body as you start this new journey. know that we are all here for you any time. sorry i lost you in the other thread.
dearest glojer,
so sorry to hear braveman is having difficulty. poor dear. and you kiddo! balancing all this and keeping a smile in your heart. very hard, yet i know you are so able. fibro or not. i sure hope you can get started with release therapy soon. it will help you have the energy you require to be there for our dear wonderful braveman.
thank you for the congrads. funny how fibro acts. even in moments of grand joy there it is lurking behind a tree just waiting to see if there is a banquet to dive into. happy excitment is stress on the body too. having to ease myself gently into the joy instead of leaping. quiet joy.
i shall tell my body what you have said. there is no responsibility put upon me that i do not choose to accept. we are all here for each other. your words speak sweetly to my heart. i thank you for them and the honor you gift me with. a place in your heart.
more p.t. today. release therapy and exercise. we bruised my legs on tuesday. he really worked my right leg hard. no doubt we will do that again today. we save the f.r.t. for last. (f.r.t.? giggle, you know what i mean!)those moments of mashing my knots about is my reward for working out so hard. now i know i am weird!! giggle. i call it good pain. healing pain is good for my mind. food for my determination, fodder for my attitude.
the only thing hanging on is the fibro fog. some of it is that tia, not being able to understand numbers is coming back. i really feel the fibro fog tho and it is very different from the confusion after a tia. like swimming thru thick water. upside of the fog is the laughter. i make myself laugh so often when i am fogged out. the bizarrest words in the oddest sequence. in that sense fibro fog is fun. for myself and those around me. if only i could remember a few i would share them. giggle. lost in the fog.
be well my dear friends. remember to laugh long and often.
peace,
blue

Glojer
09-14-2007, 06:15 PM
Strange words, strange ways.....oh how I understand!! Laugh I do and so does everyone around me but I am just glad I am giving them something to laugh about. Laughter is so good for us.

 
 
 




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