FLFLOWERGIRL
08-21-2007, 04:07 PM
To all of you that have been DX'ed or are in the process, I have questions!
I became anemic in Jan., due to this anemia I was very sick with many anemia symptoms. My blood levels went up then down so I stayed sick for 7 mo's. Now I am better with a higher Hgb.
In the beginning of this illness, I started getting a neck cramp in the late afternoon. After two days it progressed to a sick feeling in my head. I have facial numbness only slightly and tingly fellings on the left side only and sometimes my teeth hurt. They ruled out TN with MRI. I was given Xanax by my doc for anxiety from the anemia. This just happened to help this facial neck and head thing. I wonder why the Xana helps? The doc told me I was getting a tension headache. I personally don't believe that at all. Well, this has lasted for at least 5 mo's now. It comes everyday and feels like it starts in the muscle of my neck and shoulder area. A few times when I was really sick I had blurred vision and jelly legs and just overall muscle weakness. My mom kept saying get some sun so I would lay out in the sun and get really sick, still due. I am an avid gardener too, hence my screen name.
Anyway, I went to another doc an internist, he said I had symptoms of MS and ordered an MRI of my brain. Thank goodness it was a clean MRI. It was an open MRI if that really matters??:confused: I have been reading around for information. I'm confused, I read that you cannot rule out MS with only a brain MRI and my doc told me that I don't have anything wrong with me. That is two now, I finally have a referral to my husbands Neuro next week. I put this visit off because I have seen many doctors from the anemia situation. Now I guess I am ready for another visit. Does anyone have any advice for me on what to expect? What I should be asking about or knowing?
Thanks in advance for any information. FLFLOWERGIRL:cool:
I became anemic in Jan., due to this anemia I was very sick with many anemia symptoms. My blood levels went up then down so I stayed sick for 7 mo's. Now I am better with a higher Hgb.
In the beginning of this illness, I started getting a neck cramp in the late afternoon. After two days it progressed to a sick feeling in my head. I have facial numbness only slightly and tingly fellings on the left side only and sometimes my teeth hurt. They ruled out TN with MRI. I was given Xanax by my doc for anxiety from the anemia. This just happened to help this facial neck and head thing. I wonder why the Xana helps? The doc told me I was getting a tension headache. I personally don't believe that at all. Well, this has lasted for at least 5 mo's now. It comes everyday and feels like it starts in the muscle of my neck and shoulder area. A few times when I was really sick I had blurred vision and jelly legs and just overall muscle weakness. My mom kept saying get some sun so I would lay out in the sun and get really sick, still due. I am an avid gardener too, hence my screen name.
Anyway, I went to another doc an internist, he said I had symptoms of MS and ordered an MRI of my brain. Thank goodness it was a clean MRI. It was an open MRI if that really matters??:confused: I have been reading around for information. I'm confused, I read that you cannot rule out MS with only a brain MRI and my doc told me that I don't have anything wrong with me. That is two now, I finally have a referral to my husbands Neuro next week. I put this visit off because I have seen many doctors from the anemia situation. Now I guess I am ready for another visit. Does anyone have any advice for me on what to expect? What I should be asking about or knowing?
Thanks in advance for any information. FLFLOWERGIRL:cool:
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MSNik
08-21-2007, 05:10 PM
wow. First of all, try to relax. Nothing is going to happen to you overnight and nothing is going to get worse by waiting to see another doctor, ok?
An Open MRI is not usually recommended (unless it is the ONLY way to go) for MS diagnosis. Open MRIs do not have the same capabilities to see very small legions as closed ones do- so therefore, there is still a chance that things were there, but it didnt pick them up....keep that in mind. Secondly, it is true that you cannot rule out MS by an MRI of any type. First of all, many things can show up with MS in a spinal tap...also a spinal MRI can show things which wont show up on a brain scan...an internist is NOT qualified to rule out MS, so I agree that its a good thing you are seeing a Neuro soon!
A neuro, who is familiar with MS will give you some tests in the office, balance tests, reaction time tests, nerve tests possibly. None of them hurt and they tell alot. Make sure that this Neuro you are going to has a patient load of MS patients...many Neuros do NOT see MS patients and refer them out. He might order another MRI, of the spine...he will probably order a spinal tap to rule out several infections and even LYME. Lyme cannot be ruled out by a simple blood test anymore..it must be sent to a special lab, or spinal fluid should be drawn to get a 100% positive answer on yes or no...
MS is a disease which is hard to diagnos...it is usually done, by ruling out everything else...so dont be surprised if it takes alot of tests and awhile, timewise, before you get answers....
The symptoms you were talking about with the anemia sound very much like MS symtpoms as well. Its possible that the Xanax helped because it simply relaxes your body and mind, allowing you to get a good nights sleep and also to deal with the unknown better. I take about 2 of them a week right now, just trying to deal with pain and anxiety that I have been having due to major stressors in my job, life and family....I think Xanax helps me cope... in your case, the facial neck and head thing that you questioned MIGHT be caused by stress, and the xanax is helping to control that...thats all I can think of...its not pain killer, so it has to be helping your mind- not the physical symtpoms...nothing wrong with that, as long as its helping!
Stay strong, and let us know what happens with the neuro, ok??
nikki
An Open MRI is not usually recommended (unless it is the ONLY way to go) for MS diagnosis. Open MRIs do not have the same capabilities to see very small legions as closed ones do- so therefore, there is still a chance that things were there, but it didnt pick them up....keep that in mind. Secondly, it is true that you cannot rule out MS by an MRI of any type. First of all, many things can show up with MS in a spinal tap...also a spinal MRI can show things which wont show up on a brain scan...an internist is NOT qualified to rule out MS, so I agree that its a good thing you are seeing a Neuro soon!
A neuro, who is familiar with MS will give you some tests in the office, balance tests, reaction time tests, nerve tests possibly. None of them hurt and they tell alot. Make sure that this Neuro you are going to has a patient load of MS patients...many Neuros do NOT see MS patients and refer them out. He might order another MRI, of the spine...he will probably order a spinal tap to rule out several infections and even LYME. Lyme cannot be ruled out by a simple blood test anymore..it must be sent to a special lab, or spinal fluid should be drawn to get a 100% positive answer on yes or no...
MS is a disease which is hard to diagnos...it is usually done, by ruling out everything else...so dont be surprised if it takes alot of tests and awhile, timewise, before you get answers....
The symptoms you were talking about with the anemia sound very much like MS symtpoms as well. Its possible that the Xanax helped because it simply relaxes your body and mind, allowing you to get a good nights sleep and also to deal with the unknown better. I take about 2 of them a week right now, just trying to deal with pain and anxiety that I have been having due to major stressors in my job, life and family....I think Xanax helps me cope... in your case, the facial neck and head thing that you questioned MIGHT be caused by stress, and the xanax is helping to control that...thats all I can think of...its not pain killer, so it has to be helping your mind- not the physical symtpoms...nothing wrong with that, as long as its helping!
Stay strong, and let us know what happens with the neuro, ok??
nikki
FLFLOWERGIRL
08-22-2007, 12:28 AM
Nikki--Thanks so much for your wealth of information. I just wish that I had the whole spine MRI with the brain. I hated the open MRI, it was really hard to just relax. I even took a Xanax to help, and it did. I was still ready to get out. I am not looking forward to another. No way will I do a closed. I hope this doctor will accept that. I know he likes to read his own MRI's. I had a spinal tap when I was 7 and I couldn't walk for 3 days. I hope they are not like that anymore, I'm sure they do something different by now?
I'm not sure this Neuro is well versed in MS. I will have to call ahead and find out. I was only going to him because my PCP said I need to go to one and we know this doc already.
I went to a Rhumey to rule out Lupus and any other autoimmune diseases. I do have Hashimotos thyroiditis (an autoimmune disease) which puts me at risk of developing another. As for the Lyme this doc just asked if I have been bitten by a tick. I said yes when I was very young, he said no. He said that the problem is after running 3 pages of test that took 3 1/2 wks, we just don't know what is wrong with you. You don't have anything that I do. What all do they rule out first?
The symptoms that I stated were not anemia THEY ARE my problem. I had to wait 7 mo's for all anemia symptoms to go away to know that it was not anemia. The Hematologist said they are not related.
I also thought that the Xanax was acting as a muscle relaxer. I don't know it's properties, I just know it takes most of the pain away. And I really don't feel stressed like I was, that is why this is so weird to me. Thanks for answering and for all your good information. I will post the results of my neuro apt. next week. FLFLOWERGIRL:)
I'm not sure this Neuro is well versed in MS. I will have to call ahead and find out. I was only going to him because my PCP said I need to go to one and we know this doc already.
I went to a Rhumey to rule out Lupus and any other autoimmune diseases. I do have Hashimotos thyroiditis (an autoimmune disease) which puts me at risk of developing another. As for the Lyme this doc just asked if I have been bitten by a tick. I said yes when I was very young, he said no. He said that the problem is after running 3 pages of test that took 3 1/2 wks, we just don't know what is wrong with you. You don't have anything that I do. What all do they rule out first?
The symptoms that I stated were not anemia THEY ARE my problem. I had to wait 7 mo's for all anemia symptoms to go away to know that it was not anemia. The Hematologist said they are not related.
I also thought that the Xanax was acting as a muscle relaxer. I don't know it's properties, I just know it takes most of the pain away. And I really don't feel stressed like I was, that is why this is so weird to me. Thanks for answering and for all your good information. I will post the results of my neuro apt. next week. FLFLOWERGIRL:)
jalo123
08-22-2007, 01:42 AM
xanax is an anti-anxiety medicine, and it does relax you, thus it will relax the tension you feel in your neck and shoulders.....
Good luck with your dr. visits
Janet
Good luck with your dr. visits
Janet
Hope4All
08-22-2007, 08:50 AM
If you don't have it already ask for the CD of your MRI and the report.
My dr says my MRI is normal then when I read the report I found that I have 3 lesions and white matter disease. He said everyone has this and its normal....in my gut I know this is totally wrong!
After asking him about the report he finally said "there is something wrong with you I just don't know what"
I'm going to make an appt with an MS specialist. I will be more willing to believe him over this previous Neuro. This guy is was not good for me, further more I found out he charged my insurance co for a huge amount and said he spent 60min with me on the first visit, that is totally wrong........IF he's lucky it was at most 15min!!!!!!
Ask for a copy of your cd and report, this way when you seek a second opinion you will have everything in hand for your visit.
Just my advice to you
Hope
My dr says my MRI is normal then when I read the report I found that I have 3 lesions and white matter disease. He said everyone has this and its normal....in my gut I know this is totally wrong!
After asking him about the report he finally said "there is something wrong with you I just don't know what"
I'm going to make an appt with an MS specialist. I will be more willing to believe him over this previous Neuro. This guy is was not good for me, further more I found out he charged my insurance co for a huge amount and said he spent 60min with me on the first visit, that is totally wrong........IF he's lucky it was at most 15min!!!!!!
Ask for a copy of your cd and report, this way when you seek a second opinion you will have everything in hand for your visit.
Just my advice to you
Hope
MSNik
08-22-2007, 09:01 AM
Hi Flflowergirl,
You sound like you are on the right track! Im sorry you have had to deal with so many different things; and I want you to know that MS mimics so many things, and so many sytmpoms are crossed from different auto-immune diseases, that it might be tough for you to get a firm dx very fast....
Does your insurance allow you to see an MS Specialist? An MS Specialist is simply a Neuro who sees nothing BUT MS patients...in your case, I would think it might be beneficial to you. Of course they are usually hard to get appoitnmtnts with, so it certainly wouldnt hurt to see your husband's neuro first...even if it is a bust, it might make you feel better!
Lyme, is very difficult to dx as well anymore. The fact that you never saw a tick on you, doesnt rule it out. I know of many people who have had Lyme, and swear they never saw the tick, never got the red ring markings which are usually described, and yet, they didnt know they had it, and now they suffer with symtpoms very much mine....the best way to rule out Lyme is a spinal tap. however look into Lyme Specialists in your area, and find out about how they diagnosis LYme...there are special blood banks which run special tests, which arent the average blood test, which are pretty good. You might also read up on the Lyme board here, ask if anyone there can tell you how their Lyme was dx, especially if they live in your part of the world.
Now, as for the MRI. You would be better off in a closed one, however if you really cant, you cant. I personally have had them both and dont see that either one is better then the other...the open one, had 6 more inches of space then the closed one....but maybe that was just the facility where I had it done...you need to discuss this with whomever is going to rule out MS. Not a GP.
The spinal taps, should not keep you flat on your back for longer than 12 hours. I have had 3 of them. Each time, Ive been told to stay flat (to avoid leakage) for 12 hours. Ive laid on the couch and only gotten up to use the bathroom and take sips of coke or coffee....drinking caffeine both before and after the spinal wards off the dreaded headache. Ive never had a problem, but again, that could be due to who performs it.
Now the last thing I want to bring up is that Hope is right about trying to get copies of any tests you have had done (in the last 3 years). By keeping copies of everything, you reduce having to have tests repeated, or waiting for one doc to request them from another. However, should you get any copies or notes, I highly suggest you do not try to interpret your own reports. The wording used in the reports is tricky, and those guys went to school for 8+ years to both read, write and understand imaging reports. Best to collect the info and let someone else interpret it for you! That someone, being a specialist.
Good luck. Ill be thinking of you...let us know what happens with you.
Nikki
You sound like you are on the right track! Im sorry you have had to deal with so many different things; and I want you to know that MS mimics so many things, and so many sytmpoms are crossed from different auto-immune diseases, that it might be tough for you to get a firm dx very fast....
Does your insurance allow you to see an MS Specialist? An MS Specialist is simply a Neuro who sees nothing BUT MS patients...in your case, I would think it might be beneficial to you. Of course they are usually hard to get appoitnmtnts with, so it certainly wouldnt hurt to see your husband's neuro first...even if it is a bust, it might make you feel better!
Lyme, is very difficult to dx as well anymore. The fact that you never saw a tick on you, doesnt rule it out. I know of many people who have had Lyme, and swear they never saw the tick, never got the red ring markings which are usually described, and yet, they didnt know they had it, and now they suffer with symtpoms very much mine....the best way to rule out Lyme is a spinal tap. however look into Lyme Specialists in your area, and find out about how they diagnosis LYme...there are special blood banks which run special tests, which arent the average blood test, which are pretty good. You might also read up on the Lyme board here, ask if anyone there can tell you how their Lyme was dx, especially if they live in your part of the world.
Now, as for the MRI. You would be better off in a closed one, however if you really cant, you cant. I personally have had them both and dont see that either one is better then the other...the open one, had 6 more inches of space then the closed one....but maybe that was just the facility where I had it done...you need to discuss this with whomever is going to rule out MS. Not a GP.
The spinal taps, should not keep you flat on your back for longer than 12 hours. I have had 3 of them. Each time, Ive been told to stay flat (to avoid leakage) for 12 hours. Ive laid on the couch and only gotten up to use the bathroom and take sips of coke or coffee....drinking caffeine both before and after the spinal wards off the dreaded headache. Ive never had a problem, but again, that could be due to who performs it.
Now the last thing I want to bring up is that Hope is right about trying to get copies of any tests you have had done (in the last 3 years). By keeping copies of everything, you reduce having to have tests repeated, or waiting for one doc to request them from another. However, should you get any copies or notes, I highly suggest you do not try to interpret your own reports. The wording used in the reports is tricky, and those guys went to school for 8+ years to both read, write and understand imaging reports. Best to collect the info and let someone else interpret it for you! That someone, being a specialist.
Good luck. Ill be thinking of you...let us know what happens with you.
Nikki
Bearygood
08-22-2007, 11:17 AM
Hi, FLFLOWERGIRL! A few things in addition to what the others have posted...
While it's not unusual to see other auto-immune things pop up in those who have one, I would not include Hashimoto's in this. I am also hypothyroid of this type and I have never seen any link that includes this -- as you probably know, Hashimoto's is determined by the presence of an antibody and is most frequently hereditary.
Re: MRIs and MS, lesions can occur on the brain, c-spine and t-spine, not the lumbar. The very top of where the l-spine is connected to the t-spine is usually included in t-spine MRIs and as far as MS lesions, that's the point to which they can appear, not below. If something shows on an l-spine MRI below that point (again, which is usually included in the t-spine MRI) it's not MS related. An open MRI is NOT recommended for the brain and it is ONLY okay for one of the spinal MRIs although I can't remember which one offhand. I was very freaked out when I did my first MRI and it's become much easier. I take valium before, close my eyes BEFORE entering the tube and KEEP THEM CLOSED! I have a few more tips that might help and I'm sure others do as well.
Re: your symptoms, I think it's a little strange that your doctor told you they "sound like MS". What you're describing can be attributed to many other things. You are doing the right thing as a next step to see a general neurologist.
Good luck and keep us posted.
While it's not unusual to see other auto-immune things pop up in those who have one, I would not include Hashimoto's in this. I am also hypothyroid of this type and I have never seen any link that includes this -- as you probably know, Hashimoto's is determined by the presence of an antibody and is most frequently hereditary.
Re: MRIs and MS, lesions can occur on the brain, c-spine and t-spine, not the lumbar. The very top of where the l-spine is connected to the t-spine is usually included in t-spine MRIs and as far as MS lesions, that's the point to which they can appear, not below. If something shows on an l-spine MRI below that point (again, which is usually included in the t-spine MRI) it's not MS related. An open MRI is NOT recommended for the brain and it is ONLY okay for one of the spinal MRIs although I can't remember which one offhand. I was very freaked out when I did my first MRI and it's become much easier. I take valium before, close my eyes BEFORE entering the tube and KEEP THEM CLOSED! I have a few more tips that might help and I'm sure others do as well.
Re: your symptoms, I think it's a little strange that your doctor told you they "sound like MS". What you're describing can be attributed to many other things. You are doing the right thing as a next step to see a general neurologist.
Good luck and keep us posted.
LaDeeDa
08-22-2007, 01:03 PM
You might also ask your neuro about doing your next MRI with and/or without dye - fluoroscopy. When they insert the dye it sometimes makes it easier to spot lesions.
FLFLOWERGIRL
08-22-2007, 03:45 PM
I have already had this in my open MRI. Thanks. FLFLOWERGIRL:)
FLFLOWERGIRL
08-22-2007, 04:01 PM
Berrygood--Thank you for all your thoughts. As for the hypo/autoimmune disease, that is what I have read in several places? I just keep that in the back of my mind when this stuff comes up.
I did ask the tech about open verses closed and he said it was just the same. My dad had told me that his doctor disagreed, I just took the easy way out. It looks like I have to go back in anyway for the neck. They still put a cage over my face which was probably like a closed MRI. I did close my eyes before going in and wouldn't open until I came out. I knew better. Maybe this time the doctor will say the spine will be okay for open.
As for the doctors saying MS, he did. Maybe he told me that because that is what he put on the order as a reason for DX for the insurance company. It's just one of the many things that I have been ruling out, I definately don't want the DX of MS. I am so use to the different personalities of the doctors that they really don't phase me anymore. I just listen............Thanks again! FLFLOWERGIRL:)
I did ask the tech about open verses closed and he said it was just the same. My dad had told me that his doctor disagreed, I just took the easy way out. It looks like I have to go back in anyway for the neck. They still put a cage over my face which was probably like a closed MRI. I did close my eyes before going in and wouldn't open until I came out. I knew better. Maybe this time the doctor will say the spine will be okay for open.
As for the doctors saying MS, he did. Maybe he told me that because that is what he put on the order as a reason for DX for the insurance company. It's just one of the many things that I have been ruling out, I definately don't want the DX of MS. I am so use to the different personalities of the doctors that they really don't phase me anymore. I just listen............Thanks again! FLFLOWERGIRL:)
FLFLOWERGIRL
08-22-2007, 04:52 PM
Jalo123--I guess I'm using this med in the wrong way. I asked the doctor for muscle relaxers and he just said no. He was thinking tension whatever and Xanax was better! I was not wanting to change meds because it takes away the facial thing that make me crazy. Thanks! FLFLOWERGIRL:)
Hope--Yes, I do have a copy ordered of my MRI and do keep all of my records. Your doctor sounds a little like some of mine. I'm glad that I can pick who I go to. I understand your frustration, believe me. Good luck with your next visit. Thank you for sharing your experience. FLFLOWERGIRL:)
Nikki--Thanks for giving such great support. I understand about all the other things per say. I don't even care much anymore just want to get back to normal again. I know I might not even get a real DX anyway!
My insurance will let me go wherever. My husband did call his doctor today and ask if he is a MS specialist, they said he treats many MS patients. I don't know if that is good enough but I will at least start there. I go on Tues.
The Lyme I will ask about at my apt. the Rhumey didn't think that was a possibility. Hummmmmmm...................I know that I don't want a LP either.
I am thinking that maybe this is an autoimmune like response either to the type of iron that I was on, or my system running down so low. It is definitely my CNS acting up. I was feeling fine until I started the iron, 3 days later I was very sick and symptoms progressed from one to the next. The doctors just looked at me and thought that it was anemia. I knew something was way wrong. I still get better everyday. That is a good thing! Thanks again. FLFLOWERGIRL:)
Hope--Yes, I do have a copy ordered of my MRI and do keep all of my records. Your doctor sounds a little like some of mine. I'm glad that I can pick who I go to. I understand your frustration, believe me. Good luck with your next visit. Thank you for sharing your experience. FLFLOWERGIRL:)
Nikki--Thanks for giving such great support. I understand about all the other things per say. I don't even care much anymore just want to get back to normal again. I know I might not even get a real DX anyway!
My insurance will let me go wherever. My husband did call his doctor today and ask if he is a MS specialist, they said he treats many MS patients. I don't know if that is good enough but I will at least start there. I go on Tues.
The Lyme I will ask about at my apt. the Rhumey didn't think that was a possibility. Hummmmmmm...................I know that I don't want a LP either.
I am thinking that maybe this is an autoimmune like response either to the type of iron that I was on, or my system running down so low. It is definitely my CNS acting up. I was feeling fine until I started the iron, 3 days later I was very sick and symptoms progressed from one to the next. The doctors just looked at me and thought that it was anemia. I knew something was way wrong. I still get better everyday. That is a good thing! Thanks again. FLFLOWERGIRL:)
jalo123
08-22-2007, 05:17 PM
Open MRI Vs. closed MRI, I'm told it makes no difference but rather the power of the machine is the thing that you want to know,,,I had a 3.0 one and that one has the greatest detail, according to my Neuro.. It was closed and actually I was very comfortable and fell asleep during it.. In fact I had 3 MRI's within a month's period of time.. My Doc started with Thoracic and worked his way up to the brain.
As far as Iron and Anemia, I have never heard of Iron raising cane with the CNS system. Anemia can give you some funky symptoms too. And it should resolve as the Anemia resolves.
Keep on taking the Xanax, it sounds like it is working for you, Tension can cause the symptoms you describe alsol. And it's normal to feel this while you are getting worked up for a diagnosis.
If your doc wants you to have an MRI, please follow his lead, he cannot safely prescribe meds for you without a diagnosis. ANd yes I agree, it's important to keep a record off all your testing. As a Heath Professional, I realize the importance of the records. It makes a big difference in your treatment options when they have all the records available.
Good luck
Jalo123
As far as Iron and Anemia, I have never heard of Iron raising cane with the CNS system. Anemia can give you some funky symptoms too. And it should resolve as the Anemia resolves.
Keep on taking the Xanax, it sounds like it is working for you, Tension can cause the symptoms you describe alsol. And it's normal to feel this while you are getting worked up for a diagnosis.
If your doc wants you to have an MRI, please follow his lead, he cannot safely prescribe meds for you without a diagnosis. ANd yes I agree, it's important to keep a record off all your testing. As a Heath Professional, I realize the importance of the records. It makes a big difference in your treatment options when they have all the records available.
Good luck
Jalo123
MSNik
08-22-2007, 06:02 PM
hi flflowergirl
Yup, any doc who at least sees MS patients is a good place to start! Good luck, let us know when you see him, what he says...
And, remember you can ALWAYS ask for a second opinion or go see an MS SPecialist in the future if you feel you need to. Just get the testing started and see where this takes you. As for the LYme question, ask the Neuro how he tests for Lyme...he might send out to a special lab the blood work (mine did) or he might be a fan of Spinal Taps..but at least ask, you might get the answer you want!
Hugs
N
Yup, any doc who at least sees MS patients is a good place to start! Good luck, let us know when you see him, what he says...
And, remember you can ALWAYS ask for a second opinion or go see an MS SPecialist in the future if you feel you need to. Just get the testing started and see where this takes you. As for the LYme question, ask the Neuro how he tests for Lyme...he might send out to a special lab the blood work (mine did) or he might be a fan of Spinal Taps..but at least ask, you might get the answer you want!
Hugs
N
FLFLOWERGIRL
08-22-2007, 07:20 PM
Jalo123--Thank you. I will ask questions about the MRI differences. It will be good to hear what there take is on it. I can't believe that you went in X3 crazy.
I know iron doesn't sound like it would be something, but I have read that if you are sensitive to sulfites you might have a reaction. I was on Ferris Sulfate. My mom is alergic to sulfa. I really don't know, I was taking 3 a day and the Hemo doc said that's enough to kill anyone.
Another thing with the CNS is that I read that you have Ferritin in that system and my body had a 2 Ferritin that means Iron depletion. Anything under 10 is not good, mine is now a 9. My hair falls out from it. I just wonder what no Ferritin really does to some? The anemia is resolved and those symptoms too, like you said. I'm just trying to put the puzzle together and I know it's not my job. Thanks! FLFLOWERGIRL:)
I know iron doesn't sound like it would be something, but I have read that if you are sensitive to sulfites you might have a reaction. I was on Ferris Sulfate. My mom is alergic to sulfa. I really don't know, I was taking 3 a day and the Hemo doc said that's enough to kill anyone.
Another thing with the CNS is that I read that you have Ferritin in that system and my body had a 2 Ferritin that means Iron depletion. Anything under 10 is not good, mine is now a 9. My hair falls out from it. I just wonder what no Ferritin really does to some? The anemia is resolved and those symptoms too, like you said. I'm just trying to put the puzzle together and I know it's not my job. Thanks! FLFLOWERGIRL:)
FLFLOWERGIRL
08-22-2007, 07:26 PM
hi flflowergirl
As for the LYme question, ask the Neuro how he tests for Lyme...he might send out to a special lab the blood work (mine did) or he might be a fan of Spinal Taps..but at least ask, you might get the answer you want!
Hugs
N
I will ask about the Lyme testing. I don't mind giving a little blood for a test but a spinal; tap??????????????????Thanks! FLFLOWERGIRL:(
As for the LYme question, ask the Neuro how he tests for Lyme...he might send out to a special lab the blood work (mine did) or he might be a fan of Spinal Taps..but at least ask, you might get the answer you want!
Hugs
N
I will ask about the Lyme testing. I don't mind giving a little blood for a test but a spinal; tap??????????????????Thanks! FLFLOWERGIRL:(