Hello, Thank god there is a place to come to . I have fm since 2000 been n meds did like them . Stop cause i went on fertilitiy treatment . That didnt work so we stop tryen , but its been two years since and during that time i had pain and all that fm brings but i tryed to deal with over the counter pain meds to deal . But now it has been so bad i cant get out of bed the weekness and the dizzieness and pain cant stand this. I takes me a hour or so to get moving and hot shower big help, I am looking into vitiams or nautral thing to help does anyone know ? What to take to help ! Iam a hairdresser my hands have so much pain and memory is getting bad, eyes are very blurried and being so weak i can go on and on .I feel like iam in a bad dream and iam losing myself .My husband says he supports me but than he makes comments . Like be postive i am . And he would call me during the day and iam so weak iam resting he say wake up you day is going by your losing time in your life . he just doesnt get it . Please just venting , if any one knows vitiams that will help please let me know. Thanks Beth 13

:wave: Hey Beth13, Warm Welcome to the boards, vent as much as you need to Sweet, we understand, we've been there. I don't know much about natural meds for fibro, hopefully some of the other girls will be able to help you more. We all try to be positive, even when the pain and fatigue is overwhelming, hubby is trying to help, but it is very difficult for other people to understand what fibro puts us thru. That's why we try to support each other and share our experiences with treatments, meds and tips on dealing with the dd (short for dreaded disease - fibro) on a daily basis on here. Sorry couldn't be more help Beth13, but remember you're not alone anymore, take care gentle fibro hugs Snoozyowl ;)

:wave: Hey Beth13, Warm Welcome to the boards, vent as much as you need to Sweet, we understand, we've been there. I don't know much about natural meds for fibro, hopefully some of the other girls will be able to help you more. We all try to be positive, even when the pain and fatigue is overwhelming, hubby is trying to help, but it is very difficult for other people to understand what fibro puts us thru. That's why we try to support each other and share our experiences with treatments, meds and tips on dealing with the dd (short for dreaded disease - fibro) on a daily basis on here. Sorry couldn't be more help Beth13, but remember you're not alone anymore, take care gentle fibro hugs Snoozyowl ;)

Hello, Thanks so much for your response. It gave me a smile . and knowing there is other people out there with this take care Beth13:)

Welcome Beth. Its been a while since Ive posted on the board. I can relate to a number of your concerns so I felt compelled to reply.
I try to stay away from the pain meds as much as possible. I only ask for them when I really cant stand the pain. The over the counter meds dont help me at all. I dont even bother taking them. I figure, "If it doesnt help, why bombard my liver with more meds if there is no benefit."
Ive recognized that most of my joint pain is mostly caused by the chronic stiffness I have throughout my body. I have been taking the muscle relaxer Soma to relieve the stiffness and it does help with a great deal of the joint pain.
Sometimes it takes me the whole day just to get in the shower, just pulling my shirt off is enough to exhaust me.
My rheumy rxed a vitamin B complex Cerefolin to me, with NAC. Was told it is a vitamin rxed to patience with altzheimers. Hes hoping it will help with my short term memory problem. Im so fogged-up most of the time my son calls me, "Dory" from Finding Nemo. LOL! Honestly, I do sometimes sound like that.
As far as your hubby understanding... He wants to help and understand. He may just be throwing those things out to you as if he were throwing you a life preserver. Hes trying to encourage you not to give up. Unfortunately, they dont understand untill they have walked a mile in out foot steps. We would never wish this on them, but we wish they actually knew how it feels.
I was dxed in 2003 but according to docs in Philly, Ive had this all my life. I too have a hubby who says things like, "Just start excercising" and sometimes gets resentfull of my illness. Your hubby is probably frustrated because there is nothing he can DO to help you. So, he tries to encourage you with things he can SAY. There in lies the rub. Men dont know what to say when their object of affection is ailing. They were not programmed to be caregivers like women. Biologically, hes not equiped to deal with suffering. He may never get it. Hopefully someday he will, but I know the angst you feel when those comments are said, even when said with the best intensions. We KNOW what we should be doing, we CANT at the particular moment these suggestions are made hence, we just feel they dont understand. Learning to live with Fibro and a husband certainly has its mental moments.
A nutricianist told me to get outside every day, hurricane or snow storm. Do something physical outdoors at least 20 minutes a day, just picking up sticks or walking or gardening. I try everyday, even if Im just walking around my yard. I do admit there are times I never leave my porch, but I also have never let this keep me in bed either. I guess living most of my life feeling like Im coming down with the flu has me so confused as to wheather Im sick or not, I just run on automatic pilot.
Find peace and get rid of your stresses. There always is time, thats all we have. Remember to take your time, everything will work out in the end. If you cant deal with something today, it will always be there tomorrow. And if it doesnt get done tomorrow, its probably not something you need to stress over anyway or needed to feel responsible for in the first place. No matter what happenes, you will always manage... you do have all the time in the world.
Feel well,
Felicia

Hi there. I am a new member as well and feel your pain. I have found it a blessing to come on this site as well. As far as energy...my rheum doctor did blood work and found I was lacking in carnitine (I don't eat any red meat, which is the best place to get this). She put me on carnitor 3x per day and my energy was through the roof compared to before taking this. It is unpleasant tasting (like fish) and makes your urine smell like fish, but it was worth it. If you haven't had any bloodwork I would suggest asking to have this checked out.

Hope this helps and keep your head up!

Hello, Thank you for your response to me ,it realy helps noing that i not alone .I have not had blood done but i will be going to the doctor soon. I will ask him this . thanks again Beth13

Hello, I just read your response, It touch me deeply thank you, for understanding, sometimes we feel so alone in this illness , realy alone Even though we have family , i have a twenty year old daughter .I hate her seeing me like this i am supose to be a exsample for her , i hide this so much i dont want her to see me like this . She to was told, she has a borderline ammuine problem. but the docters dont know . My mother had M.S. and pass away at sixty 2001 from M.S. anyway i just take one day at a time with a smile . Yesterday was bad went in our pool at night to relax my joints they hurt so much . I do know the more we move the better we will feel .My hubby to says join a gym to ,but i realy thinking about doing yogga i want to take a natureal approach toward this i was on line looking into herbs, vitiams and areomatherphy oil to put in baths . I did try meds i hated taking them viox aways gave me more headacks so did celebrax.Also our heath insurance stop since we open our own bizz my husband is looking into insurance . Thats why i am looking into herbs vitiams . Also that nasa bed or topper my bed is so hard it has a pillow top but i hate it .My husband said we can replace the bed soon . you are right men are not the caregivers we are I know he doesnt non what to say sometimes or understand. Thats why i try not to let the things he say bother me i just wish he will understand its hard. He is away for a month at time we own a trucking company he is on the road alot . That where the stress plays in But i deal with it .When he comes home i try not to let him see me feelen so bad because we only have a week before he leaves again. I guess this is part of the problem i hide this he thinks i not as bad as i am . But we do have good days and bad days sorry for venting again . i just want to thank you again for your reply back . Also i seen your from jersey i was born there i will always be a jersey girl lol i was born in monclair my family moved to south jersey to Toms River i was raise in TR i had two hair salon there than we move to fla ten yrs ago i like it here, very diffrent. My brother still lives in TR.Love the summers miss the snow at the holidays .well thanks again for the kind words and listening Beth 13

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All of you are not alone.....I to suffer from FM and have been recently dignoised. I think I have been suffering from FM since 2001 and now finalally got the dignoises. I have noticed that I to have short term memory loss and can't concentrate. I also have blured vision and my eye doctor said that my eyes have not changed. I think this might be part of my focus and concentrating problems. I was told by a friend to try CORVALEN to help with my concentrating problems. So I am on the search for this supplement. I now take MSM, B-complex, Co-Q10, Glucosamine and Chondroitin, Fish Oil, and use the Blue-Emu Super Strength soothing formula 3 times a day. I also joined the local gym and starting just walking on the treadmill for 3 days a week. (About 2 miles a day) this has made me feel much better so far. If anyone has anymore information out there please let me know.:)

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All of you are not alone.....I to suffer from FM and have been recently dignoised. I think I have been suffering from FM since 2001 and now finalally got the dignoises. I have noticed that I to have short term memory loss and can't concentrate. I also have blured vision and my eye doctor said that my eyes have not changed. I think this might be part of my focus and concentrating problems. I was told by a friend to try CORVALEN to help with my concentrating problems. So I am on the search for this supplement. I now take MSM, B-complex, Co-Q10, Glucosamine and Chondroitin, Fish Oil, and use the Blue-Emu Super Strength soothing formula 3 times a day. I also joined the local gym and starting just walking on the treadmill for 3 days a week. (About 2 miles a day) this has made me feel much better so far. If anyone has anymore information out there please let me know.:)
Hello, Thanks for your response these med you take are they from a docter or vitiams . Idont have heath insurance .Ialso have memory issues like you i forget little things its crazy , i start something and move on to another task and forget about the one started. keep smiling thanks again i am have a real bad shoulder cramp goen in my pool huges Beth13

Hello, Thanks for your response these med you take are they from a docter or vitiams . Idont have heath insurance .Ialso have memory issues like you i forget little things its crazy , i start something and move on to another task and forget about the one started. keep smiling thanks again i am have a real bad shoulder cramp goen in my pool huges Beth13

Oh Beth, I know exactly what you mean about your daughter. I have a 15 yr old son and an 11 yr old daughter. I used to be a roll model now, Im just a roll?!?... half baked, round and fluffy but still light and airy inside! LOL!!!! JK!!!
I too am concerned with what kind of impression Im leaving on my kids. I used to work a full time job in computer graphics, take them to extra activities at least 4 days a week. I used to cook, clean, shower and put on make-up every day. Now they are lucky if I shower. There are times I have more energy then others and do accomplish some of the above.
I guess Im feeling pretty useless lately. Its been a long month for me health-wise. Not so much the fibro but it all started July 11. I had a bug fly in my ear. I kept cleaning my ear but nothing was there, I thought I was feeling something there but I think it was my imagination. On the 22nd I was at a friends house and my son and 3 other boys dove into the hot tub I was trying to relax in. It ended in a splash war and I got an ear full. I knew when it hit me it was going to leave a mark. On the 27th, I was in the emergancy room with severe ear pain and a head ache. I had swimmers ear...hadent had that since I was a kid. The 30th I was in the docs office, drops and vicoden werent working, still in severe pain, needed oral antibiotics. 5 days after, August 3, I got an abcessed tooth, needed a root canal. Still on anti-b's, on the 7th, while on vaca in the mountains in Pennsy, started coughing. back to the docs when I got home from vaca on the 13th...More anti-b's. This past Monday was in the ER for chest x-rays... thought I had walking pneumonia... lungs were clear, acute bronchitis was the dx. Unfortunately this is the time of year my fibro will start acting up. I have also been having trouble falling asleep, have had restless leg and with all the anti-tussive meds Ive been taking, cant take my sleeping pill with any of them. My IBS has been acting up all summer and usually I feel my best in the summer. Cant even eat a burger!:( :mad: . (beef and pork dont mix with my IBS) I have been feeling pretty bad lately. Cant breath, cant sleep, cant eat, cant move. Ran out of my anti-anxiety meds and havent called to have them filled yet so I feel like Im ganna dye. I know its inevitable but I mean like...soon. I think Im finally feeling a bit better today, probably cause of the heavy duty cough meds rxed by the ER Doc. Anyway... enough of that.
Im in Jackson, close to TR, originally from Sayerville, near Woodbridge. I want to move to a warmer climate myself but would miss the snow, no matter how bad the winter makes me feel. Where else in the USA can you live less than an hour from the beach (shore), the mountains and the city? I am not the typical Jersey girl though. Ive always lived on the fringe. Never had Big hair, sorry am not a Bruce fan at all. Do know Jon Bongiovie, but not a big fan of his music either. Road out of the Spectrum in the bands limo once about 10 yrs ago. They dropped me at my car. WHAT A RUSH THAT WAS!!!!! Also spent the night running around a five star hotel with one of the band members and friends, planting bugs in other band members rooms and setting up practical jokes for when they finally retired to their rooms... thats what the bugs were for, to listen to their reactions! I still have my backstage pass with the incognitto name written on it that I needed to ask for at the hotel to get to their floor. See, I DID have a life!!!!
Sorry for running on, Im known for that, so if you have survived my long post, thanx for reading.
Feel well,
Felicia

Oh Beth, I know exactly what you mean about your daughter. I have a 15 yr old son and an 11 yr old daughter. I used to be a roll model now, Im just a roll?!?... half baked, round and fluffy but still light and airy inside! LOL!!!! JK!!!
I too am concerned with what kind of impression Im leaving on my kids. I used to work a full time job in computer graphics, take them to extra activities at least 4 days a week. I used to cook, clean, shower and put on make-up every day. Now they are lucky if I shower. There are times I have more energy then others and do accomplish some of the above.
I guess Im feeling pretty useless lately. Its been a long month for me health-wise. Not so much the fibro but it all started July 11. I had a bug fly in my ear. I kept cleaning my ear but nothing was there, I thought I was feeling something there but I think it was my imagination. On the 22nd I was at a friends house and my son and 3 other boys dove into the hot tub I was trying to relax in. It ended in a splash war and I got an ear full. I knew when it hit me it was going to leave a mark. On the 27th, I was in the emergancy room with severe ear pain and a head ache. I had swimmers ear...hadent had that since I was a kid. The 30th I was in the docs office, drops and vicoden werent working, still in severe pain, needed oral antibiotics. 5 days after, August 3, I got an abcessed tooth, needed a root canal. Still on anti-b's, on the 7th, while on vaca in the mountains in Pennsy, started coughing. back to the docs when I got home from vaca on the 13th...More anti-b's. This past Monday was in the ER for chest x-rays... thought I had walking pneumonia... lungs were clear, acute bronchitis was the dx. Unfortunately this is the time of year my fibro will start acting up. I have also been having trouble falling asleep, have had restless leg and with all the anti-tussive meds Ive been taking, cant take my sleeping pill with any of them. My IBS has been acting up all summer and usually I feel my best in the summer. Cant even eat a burger!:( :mad: . (beef and pork dont mix with my IBS) I have been feeling pretty bad lately. Cant breath, cant sleep, cant eat, cant move. Ran out of my anti-anxiety meds and havent called to have them filled yet so I feel like Im ganna dye. I know its inevitable but I mean like...soon. I think Im finally feeling a bit better today, probably cause of the heavy duty cough meds rxed by the ER Doc. Anyway... enough of that.
Im in Jackson, close to TR, originally from Sayerville, near Woodbridge. I want to move to a warmer climate myself but would miss the snow, no matter how bad the winter makes me feel. Where else in the USA can you live less than an hour from the beach (shore), the mountains and the city? I am not the typical Jersey girl though. Ive always lived on the fringe. Never had Big hair, sorry am not a Bruce fan at all. Do know Jon Bongiovie, but not a big fan of his music either. Road out of the Spectrum in the bands limo once about 10 yrs ago. They dropped me at my car. WHAT A RUSH THAT WAS!!!!! Also spent the night running around a five star hotel with one of the band members and friends, planting bugs in other band members rooms and setting up practical jokes for when they finally retired to their rooms... thats what the bugs were for, to listen to their reactions! I still have my backstage pass with the incognitto name written on it that I needed to ask for at the hotel to get to their floor. See, I DID have a life!!!!
Sorry for running on, Im known for that, so if you have survived my long post, thanx for reading.
Feel well,
Felicia
Hello Felicia, I read your email ,It sounds like you had a rough summer .But sounds like your better,It is realy hard in front of our kids we dont want them to only rember the sickness and not being energentic.Sometimes i hide it and push myself the other day, my daughter asked me to go to walmart pay some bills with her i did but i was in so much pain she got out of the car and i started to cry when she got back in i had sunglasses on she knew i was crying i felt so bad she insisted to take me home but i said no i was so fatigue it was overwhelming so we went to walmart just walking around i felt better this is a nightmare some days i know how you feel . You have two children and still small my daughter is 20 in school it must be hard when you dont feel good and the kids need you when they are younger it is harder . She does help alot i hate it sometimes but thats what family is right. also when i get my u know once a month women thing i have flare fm i feel worse, but i always have some fatigue and pain and sleep is a big thing i never fall completely asleep ,also i have ben forgetting thing more and more . Iam a hair stylist and never realy wrote things down i find i have to . I use to work fulltime now part time i rent a station so it gives me flexability to work .In nj they would not let you rent a station in a salon but things change . I did wear big hair in nj in the 80s no more lol always being a jersey girll in heart like the food the habbits where we are from i do like bruce and love bon jov and i cant believe you hung with them lol. i am into country now i always like it but , jersey is a whole another world from florida the people are real frienly here but o my god . i say no more . But the weather here does help with th fm the cold i love snow but it hurts bad .We do get cold here i live 45min north tampa spring hill area on the west coast close to the gulf its a little more country here then tampa clearwater .Its getting build up here . We want a small home here and one in the mnts like tennesse or north carlina The housev we have now i cabt keep up with the pool yard house to much for me we are moving in nov to a smaller home not so much outside work we have a lawn person but i love gardening and i cant enjoy it anymore i have been doen pots there easyer to take this fm takes so much fron us . But we have to look at it in a diffrent way we are strong enough to have this we are not weak people to have this it makes us look in side of ourself and no we will be fine . well i am babling on i do hope you feel better it was nice to here from you . If i still live in jersey i would have meet for lunch cause jackson was real close toms river well take care of you. hugs Beth

Hello Felicia, I read your email ,It sounds like you had a rough summer .But sounds like your better,It is realy hard in front of our kids we dont want them to only rember the sickness and not being energentic.Sometimes i hide it and push myself the other day, my daughter asked me to go to walmart pay some bills with her i did but i was in so much pain she got out of the car and i started to cry when she got back in i had sunglasses on she knew i was crying i felt so bad she insisted to take me home but i said no i was so fatigue it was overwhelming so we went to walmart just walking around i felt better this is a nightmare some days i know how you feel . You have two children and still small my daughter is 20 in school it must be hard when you dont feel good and the kids need you when they are younger it is harder . She does help alot i hate it sometimes but thats what family is right. also when i get my u know once a month women thing i have flare fm i feel worse, but i always have some fatigue and pain and sleep is a big thing i never fall completely asleep ,also i have ben forgetting thing more and more . Iam a hair stylist and never realy wrote things down i find i have to . I use to work fulltime now part time i rent a station so it gives me flexability to work .In nj they would not let you rent a station in a salon but things change . I did wear big hair in nj in the 80s no more lol always being a jersey girll in heart like the food the habbits where we are from i do like bruce and love bon jov and i cant believe you hung with them lol. i am into country now i always like it but , jersey is a whole another world from florida the people are real frienly here but o my god . i say no more . But the weather here does help with th fm the cold i love snow but it hurts bad .We do get cold here i live 45min north tampa spring hill area on the west coast close to the gulf its a little more country here then tampa clearwater .Its getting build up here . We want a small home here and one in the mnts like tennesse or north carlina The housev we have now i cabt keep up with the pool yard house to much for me we are moving in nov to a smaller home not so much outside work we have a lawn person but i love gardening and i cant enjoy it anymore i have been doen pots there easyer to take this fm takes so much fron us . But we have to look at it in a diffrent way we are strong enough to have this we are not weak people to have this it makes us look in side of ourself and no we will be fine . well i am babling on i do hope you feel better it was nice to here from you . If i still live in jersey i would have meet for lunch cause jackson was real close toms river well take care of you. hugs Beth