jessi80
08-21-2007, 08:00 PM
Hi. :wave:
I am 26 yrs old. I have been dealing with fibro since before I was 22, but that's when I was diagnosed. As I am sure everyone on here understands, my life has changed drastically since then. I had a successful career in the US Coast Guard and now, I feel like I have nothing. I am blessed to have a wonderful man and family in my life, but still sometimes feel alone in this struggle (aside from my father who has fibro also).
I am always so tired and in pain. I have been on Fentanyl for over 3 years but want to get off of it so badly. I just started the weaning off process but hope I am not making a mistake. Aside from the pain relief, I hate the way it makes me feel.
I am now on Celebrex, Lyrica, and Oxycodone. I am still looking for other alternatives. The Lyrica helps me sleep better at night (I have no problem falling asleep around dinner time...always get soooo tired in eve along with the constant fatigue throughout the whole day) and I have been told it helps with Fibro pain.
The Celebrex I just started to help with the joint pain. That is a new, really painful symptom that has just started in the last 6 months. I have had it off and on but now it's always here. I am in pain and stiff at the joints.
I hate to see other people suffering like I am but helps to know I am not crazy. I was told it was all in my head and I was to young, so I recieved no help for over 2 1/2 very long years.
Sorry for such a long post but I feel like if I don't vent right now, I will fall apart. Thanks to whomever reads this!! :)
Take care
I am 26 yrs old. I have been dealing with fibro since before I was 22, but that's when I was diagnosed. As I am sure everyone on here understands, my life has changed drastically since then. I had a successful career in the US Coast Guard and now, I feel like I have nothing. I am blessed to have a wonderful man and family in my life, but still sometimes feel alone in this struggle (aside from my father who has fibro also).
I am always so tired and in pain. I have been on Fentanyl for over 3 years but want to get off of it so badly. I just started the weaning off process but hope I am not making a mistake. Aside from the pain relief, I hate the way it makes me feel.
I am now on Celebrex, Lyrica, and Oxycodone. I am still looking for other alternatives. The Lyrica helps me sleep better at night (I have no problem falling asleep around dinner time...always get soooo tired in eve along with the constant fatigue throughout the whole day) and I have been told it helps with Fibro pain.
The Celebrex I just started to help with the joint pain. That is a new, really painful symptom that has just started in the last 6 months. I have had it off and on but now it's always here. I am in pain and stiff at the joints.
I hate to see other people suffering like I am but helps to know I am not crazy. I was told it was all in my head and I was to young, so I recieved no help for over 2 1/2 very long years.
Sorry for such a long post but I feel like if I don't vent right now, I will fall apart. Thanks to whomever reads this!! :)
Take care
Sponsor
snoozyowl
08-21-2007, 08:33 PM
:wave: Hey Jessi, Welcome to the boards, Sorry you are felling sooo bad right now, you still grieving for the you back then, before fibro? yeh me too. I'm a nurse and I can't do that no more, I used to ride a motorbike, can't do that no more, hobbies I enjoyed, can't do them no more, BUT, there are new things I CAN do, I'm looking at riding a trike, I now have the most wonderful dog to keep me company and help me exercise, I've found a whole new world on the internet, never had time before, I've also found a whole world full of new and amazing people, my fellow fibromites, who have helped me and are still helping me come to terms with this dreadful condition, I'm not alone anymore and my fibro sisters understand, they've been thru it, not all of us have the same symptoms as you, but someone somewhere will have:D Fibro loves stress and any physical weakness, it will play and cause you all sorts of probs, don't dispair Jessi, vent all you like, we know what's like, no doubt others will be along to help you if they can and give you support. Try to keep well, take care gentle fibro hugs Snoozyowl;)
jessi80
08-21-2007, 09:31 PM
Thank you so very much for the warm welcome. Yes, I still am grieving for the old me. I sometimes feel guilty for not doing more and when I try I remember why I don't!! My boyfriend doesn't like when I do that to myself and he is right. I am ambitious and this change has been hard for me but I hope to be able to help others at least. Thank you for making a difference and if I can ever return the favor, let me know! ;)
Bouncy
08-22-2007, 06:07 AM
Hi Jessie,
I'm new too and can empathise with everything you've said.
I think we have to learn to create a new us as a way to cope.
It's so easy to pine for what we had though, isn't it?
I'm new too and can empathise with everything you've said.
I think we have to learn to create a new us as a way to cope.
It's so easy to pine for what we had though, isn't it?
jessi80
08-22-2007, 12:18 PM
Hi Bouncy,
You are absolutley right. Sure isn't easy but trying to stay strong. Thanks for the welcome and welcome to you too!
You are absolutley right. Sure isn't easy but trying to stay strong. Thanks for the welcome and welcome to you too!
headpain05
08-22-2007, 01:39 PM
I am new here as well...I constantly grieve for the old me. I feel like I am not fulfilling my potential and it makes me angry (if I let it). I feel like I am always searching for my purpose in life...it has changed so dramatically since the start of the pain 4.5 years ago. I was the same age as you (23) when it hit...I understand what it feels like to be so young and have everything you counted on go up in smoke. My best advice is to keep on searching for the new doors that open to you after another has closed. Best wishes.
jessi80
08-22-2007, 05:44 PM
:wave: Hi Headpain05,
You said: (I feel like I am not fulfilling my potential and it makes me angry (if I let it). I feel like I am always searching for my purpose in life.)
That is exactly how I feel and is the hardest part for me (other than the physical effects). It pains me to know other suffer with this also, but helps to know I am not alone or going crazy. Thank you and best wishes to you too! :)
You said: (I feel like I am not fulfilling my potential and it makes me angry (if I let it). I feel like I am always searching for my purpose in life.)
That is exactly how I feel and is the hardest part for me (other than the physical effects). It pains me to know other suffer with this also, but helps to know I am not alone or going crazy. Thank you and best wishes to you too! :)
beth13
08-22-2007, 07:34 PM
Hello Jesse , I to am new here thank god there is a place for us.And know we are not alone . I just take one day with a smile. I to am a jersey girl was born there Toms River .I notice that weather plays a big part the warmth feels so good when i visit nj in the winter i am so stiff and in pain from the cold but always love the snow . any way keep a smile on lots of hugs Beth13
jessi80
08-22-2007, 08:20 PM
Thank you beth13 and welcome to you too!
Just reading what people have posted and the warm welcome on here has helped. I try to stay positive too...i always say if I smile maybe that feeling will work its way in. :) Its worth the try right??
I was stationed in St. Petersburg FL and was dealing with Fibro during my time there. I definitely agree, the cold does make it worse! I became a wimp though, ;) got used to the warm weather, even though I was born in MA and have lived most of my life in the North East. I miss FL and hope to return there sometime.
Thanks for the message!! :D
Just reading what people have posted and the warm welcome on here has helped. I try to stay positive too...i always say if I smile maybe that feeling will work its way in. :) Its worth the try right??
I was stationed in St. Petersburg FL and was dealing with Fibro during my time there. I definitely agree, the cold does make it worse! I became a wimp though, ;) got used to the warm weather, even though I was born in MA and have lived most of my life in the North East. I miss FL and hope to return there sometime.
Thanks for the message!! :D
headpain05
08-23-2007, 03:08 PM
Do you find that the cold makes the fibro worse...or the snow? Or is it one in the same? I just moved from Chicago, which doesn't have hardly any snow, but does have the cold. Now that I'm in Michigan I wonder if the Fibro will get a bit worse because here we have the snow and the cold. Thanks and keep on moving!
jessi80
08-23-2007, 05:03 PM
Hi Headpain05,
I find for me it's the cold in general. I am effected by rain and dampness but don't really feel worse when it snows (the cold goes right thru me). I hope you enjoy your new home and the weather there is agreeable for you!!
Jessi80
I find for me it's the cold in general. I am effected by rain and dampness but don't really feel worse when it snows (the cold goes right thru me). I hope you enjoy your new home and the weather there is agreeable for you!!
Jessi80