dawn2
06-26-2001, 10:55 AM
Do any of you have lumps in some of these trigger points? I have them real bad on the outside of my thighs - it runs about 5/6 inches and if you run your finger over it, you can feel bumps. I had my husband message these bumps out and I cannot believe how much better my legs feel. I'm not saying I'm perfect, but I wasn't as stiff this morning nor did I have as much pain. The sides of my thighs are still sensitive to the touch, but are not screaming at me. Sound familar?
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dawn2
06-26-2001, 05:52 PM
JB:
Thanks again! It sure sounds like myofascia to me. I know 10 years ago when I asked one doc about this, she felt it had to do with the lining of the muscle (back of thigh) and when it bunched up, it would press on the sciatica and make me an unhappy camper.Later it went to the sides of both thighs and back of each legs. At that time, fibro wasn't a word used by many docs. I do agree with you on that repetitive things will aggravate it. If I sit too long (like going on a drive more than 30 minutes) it really begins to aggravate it. Then if I have to go somewhere within the next day or two, it gets it even madder! Thanks so much for your input. This is something definitely to bring up to the doc. This has been going on for 13 years! I aim to get answers. I have an appt with both a rhem and an endo doc the end of July. Will a rhem doc pick up on this and relate it to the thyroid? I sure hope so. Take care and hope you're arm doesn't have to be in a cast too long!
Thanks again! It sure sounds like myofascia to me. I know 10 years ago when I asked one doc about this, she felt it had to do with the lining of the muscle (back of thigh) and when it bunched up, it would press on the sciatica and make me an unhappy camper.Later it went to the sides of both thighs and back of each legs. At that time, fibro wasn't a word used by many docs. I do agree with you on that repetitive things will aggravate it. If I sit too long (like going on a drive more than 30 minutes) it really begins to aggravate it. Then if I have to go somewhere within the next day or two, it gets it even madder! Thanks so much for your input. This is something definitely to bring up to the doc. This has been going on for 13 years! I aim to get answers. I have an appt with both a rhem and an endo doc the end of July. Will a rhem doc pick up on this and relate it to the thyroid? I sure hope so. Take care and hope you're arm doesn't have to be in a cast too long!
MsBearNW
06-27-2001, 12:30 AM
Hi Dawn and JB--
I was diagnosed about a year ago with Myofascial Pain Syndrome by a rheumatologist in Seattle that I FINALLY referred myself to after I exhausted ALL other avenues with orthopedic surgeons with them finding nothing except a small herniated disc at L-5, S-1 level which I found out after the surgery was NOT the culprit. I have lived with this for almost seven years now not knowing what it was but knowing that there was something terribly wrong with me. The chronic pain was so unbearable at times but I kept it together as much as I could for my girls. They are the only two precious things that got me through all the pain. I tried all kinds of different drugs for the pain (Ultram was the best) and when the rheumatologist in Seattle
put me on Elavil I just couldn't believe the difference it made for me. I'm feeling about 90% better and I'm so glad I found him! I just wanted to tell everyone out there to never give up hope as I never did and am feeling so much better! The things that seem to help me the most are daily gentle stretching and massages!
I was diagnosed about a year ago with Myofascial Pain Syndrome by a rheumatologist in Seattle that I FINALLY referred myself to after I exhausted ALL other avenues with orthopedic surgeons with them finding nothing except a small herniated disc at L-5, S-1 level which I found out after the surgery was NOT the culprit. I have lived with this for almost seven years now not knowing what it was but knowing that there was something terribly wrong with me. The chronic pain was so unbearable at times but I kept it together as much as I could for my girls. They are the only two precious things that got me through all the pain. I tried all kinds of different drugs for the pain (Ultram was the best) and when the rheumatologist in Seattle
put me on Elavil I just couldn't believe the difference it made for me. I'm feeling about 90% better and I'm so glad I found him! I just wanted to tell everyone out there to never give up hope as I never did and am feeling so much better! The things that seem to help me the most are daily gentle stretching and massages!
dawn2
06-27-2001, 10:21 AM
Dear MB & JB:
I guess the important thing we can tell the others is to be PERSISTENT in finding out what the problem is. I even had an MRI for this pain and the "lab" said slightly herniated disc. My primary went by that and said to go a chronic pain center and get a steroid shot in my spine. I said no way! So I took my MRI results to an ortho spec. and he said that my discs were fine - typical wear and tear and that was NOT causing the pain. But...he never told me what was....I am on primary doc #3 (because of moving) and still he blows this pain off. I had to take the initiative myself to pursue the doctors I need after seeing what has been written on these posts. I cannot say enough how greatful I am for those who are sharing their stories and giving advice. You're all the greatest!!
I guess the important thing we can tell the others is to be PERSISTENT in finding out what the problem is. I even had an MRI for this pain and the "lab" said slightly herniated disc. My primary went by that and said to go a chronic pain center and get a steroid shot in my spine. I said no way! So I took my MRI results to an ortho spec. and he said that my discs were fine - typical wear and tear and that was NOT causing the pain. But...he never told me what was....I am on primary doc #3 (because of moving) and still he blows this pain off. I had to take the initiative myself to pursue the doctors I need after seeing what has been written on these posts. I cannot say enough how greatful I am for those who are sharing their stories and giving advice. You're all the greatest!!
JB*
06-27-2001, 06:45 PM
Hi Dawn
As far as I know I'm the only one relating it to thyroid. I never had it before my thyroid went wonky, and when my thyroid was treated it went away. So I'm just speculating that it has something to do with the thyroid (in my case anyway.)I had my adrenals treated too so maybe it's related to that. Anyway, it's worth a thought.
JB
As far as I know I'm the only one relating it to thyroid. I never had it before my thyroid went wonky, and when my thyroid was treated it went away. So I'm just speculating that it has something to do with the thyroid (in my case anyway.)I had my adrenals treated too so maybe it's related to that. Anyway, it's worth a thought.
JB

