MS for life
08-24-2007, 12:33 PM
Hey, I'm back. I have a question and would like a response from anyone that has been diagnosed with MS. I'm not finding anything definite in my research and was hoping for some help.
I was on previously and I know, I still need to change my name, but was hoping to not be back, but after having all the tests, I ended up being diagnosed with "sticky blood" or anticoagulant blood and started on a baby aspirin. I know the hemotologist and neuro had a long test to make the diagnosis, however my neuro stated that if I had ANY odd symptoms to give a call. Otherwise, he wanted me back in six months and we would run some more tests just to be sure their diagnosis was correct. The only symptoms I still had were fatigue and my hands and feet tingling, so he started me on a very small dose of Neurontin.
Two weeks later, my body seems to have gotten accustomed to the Neurontin and I am sleeping through my hands and feet falling asleep, thus some of my fatigue seems to be gone also. However, starting at the beginning of the week, my hip began hurting and after a short run yesterday, which usually stretches it out, I had excruciating pain, so much that I could not finish my run. It is on the outside of my hip, NOT the flexor. I find the pain intensifies when I stand and cross my feet, however this also seems to be stretching it out some. Still very painful today. I also feel that the numbness is more prevalent on my left side than my right now, the same as the hip. My arm and leg seem to be very heavy.
Any insight would be helfpul. I am just getting over the reality that I don't have MS and now the fear is creeping back in. If it continues, I will call the neuro on Monday, but was wondering about the hip pain or in general, what does an exacerbation feel like with MS?
Thanks in advance.
I was on previously and I know, I still need to change my name, but was hoping to not be back, but after having all the tests, I ended up being diagnosed with "sticky blood" or anticoagulant blood and started on a baby aspirin. I know the hemotologist and neuro had a long test to make the diagnosis, however my neuro stated that if I had ANY odd symptoms to give a call. Otherwise, he wanted me back in six months and we would run some more tests just to be sure their diagnosis was correct. The only symptoms I still had were fatigue and my hands and feet tingling, so he started me on a very small dose of Neurontin.
Two weeks later, my body seems to have gotten accustomed to the Neurontin and I am sleeping through my hands and feet falling asleep, thus some of my fatigue seems to be gone also. However, starting at the beginning of the week, my hip began hurting and after a short run yesterday, which usually stretches it out, I had excruciating pain, so much that I could not finish my run. It is on the outside of my hip, NOT the flexor. I find the pain intensifies when I stand and cross my feet, however this also seems to be stretching it out some. Still very painful today. I also feel that the numbness is more prevalent on my left side than my right now, the same as the hip. My arm and leg seem to be very heavy.
Any insight would be helfpul. I am just getting over the reality that I don't have MS and now the fear is creeping back in. If it continues, I will call the neuro on Monday, but was wondering about the hip pain or in general, what does an exacerbation feel like with MS?
Thanks in advance.
Sponsor
MSNik
08-24-2007, 03:01 PM
Hi MS for life,
you asked what an excaberation feels like with MS. An excaberation is the same thing as a relapse, and for each of us, its slightly different. I think its safe to say that it starts out with an overall feeling of fatigue, beyond anything normal. You wouldnt be running or even exercising when one of these suckers hit; trust me on that! With many people, optical neuritis hits- thats if they are prone to it....with some people, the tingling/burning comes back with a vengence. Mine has never left, not in a year....others complain about flu-like symptoms and feeling kind of "underwater" as far as functioning goes...many people start feeling that they cant concentrate, or that they lose their balance/coordination...
I know this is quite a list, but just like MS is different for each one of us, how it affects us when it hits, is also different. Hope this gives you some info you were looking for.
Your description of what you told us, doesnt sound like an MS thing. It does however sound like it should be checked out further. At least call your doctor and tell him what is happening, see if there are more tests they want to run, whle this is happeneing...
Good luck .
Nikki
you asked what an excaberation feels like with MS. An excaberation is the same thing as a relapse, and for each of us, its slightly different. I think its safe to say that it starts out with an overall feeling of fatigue, beyond anything normal. You wouldnt be running or even exercising when one of these suckers hit; trust me on that! With many people, optical neuritis hits- thats if they are prone to it....with some people, the tingling/burning comes back with a vengence. Mine has never left, not in a year....others complain about flu-like symptoms and feeling kind of "underwater" as far as functioning goes...many people start feeling that they cant concentrate, or that they lose their balance/coordination...
I know this is quite a list, but just like MS is different for each one of us, how it affects us when it hits, is also different. Hope this gives you some info you were looking for.
Your description of what you told us, doesnt sound like an MS thing. It does however sound like it should be checked out further. At least call your doctor and tell him what is happening, see if there are more tests they want to run, whle this is happeneing...
Good luck .
Nikki
MS for life
08-24-2007, 03:18 PM
Thanks, I did not really think so either, but just wanted to be sure.
snoozyowl
08-25-2007, 01:56 AM
:wave: Hi there, read your thread with interest, just wondered if you've been tested for fibromyalgia, may be worth having that checked, may not show with blood work or MRI or x-rays, its a pressure point test, hopefully your doc will know or be able to refer you to a rheumy doc. Only a suggestion. Good luck. Take care, Snoozyowl;)
moore170
08-25-2007, 06:35 PM
Any insight would be helfpul. I am just getting over the reality that I don't have MS and now the fear is creeping back in. If it continues, I will call the neuro on Monday, but was wondering about the hip pain or in general, what does an exacerbation feel like with MS?
Thanks in advance.[/QUOTE]
An exacerbation is very different for everyone. I have not had fatigue as a presenting symptom very often. An exacerbation can range from numbness, vision problems, coordination problems, balance problems, loss of hearing, bladder problems etc. This probably didn't help but I don't think an exacerbation can be pin pointed.
Candy
Thanks in advance.[/QUOTE]
An exacerbation is very different for everyone. I have not had fatigue as a presenting symptom very often. An exacerbation can range from numbness, vision problems, coordination problems, balance problems, loss of hearing, bladder problems etc. This probably didn't help but I don't think an exacerbation can be pin pointed.
Candy