MSNik
08-27-2007, 10:46 AM
Ezee
Ive noticed you jump into alot of threads here which are closely related to, but not on topic with what you are asking, so I wanted to start a thread just for you, so that people would comment and you would get the attention you deserve. You deserve some answers! Its unfortunate, but you ask questions which dont always pertain to the exact topic of the thread, so therefore I wanted to start a thread to respond to you specifically.
The questions you have written about B12 and PA probably wont be addressed here, as you are discussing another disease altogether. Again, PA isnt MS related....and B12, although many MSers do have low B12 amounts in their body,it is coincidental and not caused by MS.
"I have had both arms go completely numb on numerous occasions, while sleeping completely off of my arms, in my easy chair. With my arms laying on very cushy arms of the chair, I wake up and have to shake my arms for minutes to get sensation back into them. "
These symtpoms do not sound at all like MS, they do sound neurological though. With MS, something called parastastia kicks in. You cant shake it off. Its actual numbing and tingling of the nerves, due to Myelin damage. The biggest trigger and issue to note is its NOT off and on, an it cant be shaken off like when a limb falls asleep. ITs usually permanent and its always constant. Also Edema is not an MS symtpom...you really do need to get a thorough MS specialist to rule out this disease. Having followed your posts this week, you mention soo many symptoms, but honestly, they mimic but do not really sound like, MS symtpoms. Have you had lyme tests, and have you spoken to anyone about Fybro?
You really do need the attention of an MS specialist in order to rule out MS. I do realize that for men, symptoms can be signicantly different then for women, however your sytmoms are sounding less and less like MS as you continue to post...are you on any meds at this point? Has anyone given you any kind of feedback on what they believe this to be? Id be curious to hear what tests you have had and where you are in your dx limbo...
I wish you nothing but pain free days and nights.
Nikki
Ive noticed you jump into alot of threads here which are closely related to, but not on topic with what you are asking, so I wanted to start a thread just for you, so that people would comment and you would get the attention you deserve. You deserve some answers! Its unfortunate, but you ask questions which dont always pertain to the exact topic of the thread, so therefore I wanted to start a thread to respond to you specifically.
The questions you have written about B12 and PA probably wont be addressed here, as you are discussing another disease altogether. Again, PA isnt MS related....and B12, although many MSers do have low B12 amounts in their body,it is coincidental and not caused by MS.
"I have had both arms go completely numb on numerous occasions, while sleeping completely off of my arms, in my easy chair. With my arms laying on very cushy arms of the chair, I wake up and have to shake my arms for minutes to get sensation back into them. "
These symtpoms do not sound at all like MS, they do sound neurological though. With MS, something called parastastia kicks in. You cant shake it off. Its actual numbing and tingling of the nerves, due to Myelin damage. The biggest trigger and issue to note is its NOT off and on, an it cant be shaken off like when a limb falls asleep. ITs usually permanent and its always constant. Also Edema is not an MS symtpom...you really do need to get a thorough MS specialist to rule out this disease. Having followed your posts this week, you mention soo many symptoms, but honestly, they mimic but do not really sound like, MS symtpoms. Have you had lyme tests, and have you spoken to anyone about Fybro?
You really do need the attention of an MS specialist in order to rule out MS. I do realize that for men, symptoms can be signicantly different then for women, however your sytmoms are sounding less and less like MS as you continue to post...are you on any meds at this point? Has anyone given you any kind of feedback on what they believe this to be? Id be curious to hear what tests you have had and where you are in your dx limbo...
I wish you nothing but pain free days and nights.
Nikki
Sponsor
ezee
08-27-2007, 12:14 PM
I thought contributing or sharing experiences is what was done here. Sorry if I ruffled any feathers.
I also noticed a total of one other male on this board, and for a while wondered if I had intruded on that account too.
No Edema is not an MS symptom, I mentioned it because one of the other board members posted about swelling and discoloration in the feet. I don't see how that was off topic. Neither is the arms falling asleep per se. Moreover, my symptoms do by-and-large mimic MS, and since others are mentioning symptoms that are similar to mine, I was commenting. I think I'm in the wrong board. Wrong gender, wrong comments, and wrong malady.
Good luck to you all, I don't have the energy left to deal with such social graces, or parliamentary procedure, as it is most difficult just to get on and see to read and type. Sorry for the disruption. It was not by any means ezee for me.
I also noticed a total of one other male on this board, and for a while wondered if I had intruded on that account too.
No Edema is not an MS symptom, I mentioned it because one of the other board members posted about swelling and discoloration in the feet. I don't see how that was off topic. Neither is the arms falling asleep per se. Moreover, my symptoms do by-and-large mimic MS, and since others are mentioning symptoms that are similar to mine, I was commenting. I think I'm in the wrong board. Wrong gender, wrong comments, and wrong malady.
Good luck to you all, I don't have the energy left to deal with such social graces, or parliamentary procedure, as it is most difficult just to get on and see to read and type. Sorry for the disruption. It was not by any means ezee for me.
MSNik
08-27-2007, 02:24 PM
No feathers ruffled, here. I thought I was helping YOU. You posted in a thread which I started about Omega 6s to someone, and you talked about Anemia. Figured it would help you to start a thread simply for you to talk to others about your experiences, since it wasnt relevant to my thread. Then, in another thread about someone's diagnosis and starting on Copaxone, you posted about numbness in your arms and adema. I figured that it would be beneficial to you to have a thread started where we could talk about YOUR sytmpoms and not someone else's. Sorry if It came across anything but helpful.
You are most welcome here, as are all members; female and male. It is unforutunate that the ratio of men who have MS to women with MS is so incredibly low. Thats why you see more female participants then male, there simply arent as many males with the disease.
sorry if I offended you by trying to start a thread just for you. I didnt want to respond to you in someone else's thread, Ive been told to stick to the original topic and not go off topic before, and I didnt want that to happen here. I wanted to communicate with you, find out more about your tests, doctors, etc and see if we could find some common ground....the offer is still open if you care to respond.
Hope you have painless days ahead.
N
You are most welcome here, as are all members; female and male. It is unforutunate that the ratio of men who have MS to women with MS is so incredibly low. Thats why you see more female participants then male, there simply arent as many males with the disease.
sorry if I offended you by trying to start a thread just for you. I didnt want to respond to you in someone else's thread, Ive been told to stick to the original topic and not go off topic before, and I didnt want that to happen here. I wanted to communicate with you, find out more about your tests, doctors, etc and see if we could find some common ground....the offer is still open if you care to respond.
Hope you have painless days ahead.
N
Deedle77
08-27-2007, 03:29 PM
Ezee,
I posted a reply to you specifically under "Seizures/Hospitalization/Diagnosis". Please see it there. I feel really bad for all that you are going through. We are all here to support and help in anyway we can. I hope you will read my response.
Annie
I posted a reply to you specifically under "Seizures/Hospitalization/Diagnosis". Please see it there. I feel really bad for all that you are going through. We are all here to support and help in anyway we can. I hope you will read my response.
Annie
moore170
08-28-2007, 01:59 PM
My neuro and primary care Dr. said my edema was from my MS.
Candy
Candy