sallie61
08-27-2007, 01:42 PM
I Have Many Questions
Sponsor
MSNik
08-27-2007, 02:27 PM
sallie,
Would love to hear whats on your mind, if we can, (or I can) Ill respond to you. Whats going on that you want to share with us?
Nikki
Would love to hear whats on your mind, if we can, (or I can) Ill respond to you. Whats going on that you want to share with us?
Nikki
sallie61
08-27-2007, 03:39 PM
hi, well i am waiting for my mri appt, i have pars planitis in my eyes doc said my chances are 1 in 10 that it is ms. I am very tired and i have alot of pain in my hips and back, when i am cold my feet and fingers turn white and numb. i have had mono in 1999 and loose my balance very easy. In 1994 they did a mri and the spinal thing (took fluid i guess) and they did these test because of my eye problem and everything was negative back then, and i also loose my balance pretty often, could you tell me what you think?
MSNik
08-27-2007, 04:46 PM
Hi there. I read your post, and I can understand how afraid you are. Being that I do not know about pars planitis, I had to look it up. From what I read, it usually hits at a younger age, and is controllable. It also is usually mild vision loss, and is treated with topical steroids, or not at all, but simply monitored.
You wrote that your doctor thinks it is only 1 in 10 that it is MS, and without knowing much more about what you have going on, I would have to agree that this doesnt really sound like MS. I have MS, and I do not have a single symptom that you describe. My fingers and toes do get cold, however they do not change color...
You also wrote that you are waiting for your MRI. I have 2 MRIs both with and without contrast and in on my spine and brain on Wed. This will be my
5th go round of MRIs. We can compare notes!
You said you have had one before, but it was in 1994. MRIs only show what is visiable at that time. Its very possible that what didnt show up in 1994 WILL show up now giving your doctor more answers. They can change overnight, those films. Sometimes, if a legion is too small, it wont show up on an MRI, but 6 months later, when repeated, it is there. Those 'invisable' legions can cause all kinds of problems but not be identified, which is why its important to have an MRI yearly, if not bi-yearly.
Alot of what you are describing can be due to both your eyes, and stress. NOT that I think you are crazy, far from it...but not knowing what is going on, can cause the coldness and even imbalance, if you are really anxious. Can you doctor prescribe something mild for you, to help you thru this tough time? I was given xanax when I was all freaked out about not knowing..it really helped, and Ive only taken a pill every ten days or so. I dont find myself relying on them...only as needed. I dont know that this is going to help you, but it sounds like you are quite panicky..and with good reason.
Even if this was MS, people do not go blind from MS, and the only real eye disease Ive been able to find associated with MS is Optical Neuritis. What you are describing doesnt sound like Optical Neuritis at all, and even if it were, that can be treated easily.
What kind of doctors are you seeing? Are you seeing both an opthamologist and a Neurologist? I would suggest seeing both, unless you have a good Neuro-Opthamologist in the area. These doctors are cross trained to help both neurological and opthamological diseases, usually of the eyes. When is your next MRI and who will be reading this? I mean, do you have a good Neuro who will be able to look at the films and make judgement, or are you dealing with a general practicioner? I would hope at this point, that you have a good neuro whom you trust.
i hope this helps. Im not really sure what you are looking for. I cant give out medical advice, beyond recommendations to see a good trusted Neuro or Neuro-optha, and get some recent tests done so that they can make a dx..I do feel badly for you. Your fear and your anxiety are coming across loud and clear. Is there anything else which you need which might help you? At this point in time, I can only tell you that you are not alone in your fears...the unknown is a very scary place. Please reach out to us and post to us if we can help.
Hugs to you.
Nikki
You wrote that your doctor thinks it is only 1 in 10 that it is MS, and without knowing much more about what you have going on, I would have to agree that this doesnt really sound like MS. I have MS, and I do not have a single symptom that you describe. My fingers and toes do get cold, however they do not change color...
You also wrote that you are waiting for your MRI. I have 2 MRIs both with and without contrast and in on my spine and brain on Wed. This will be my
5th go round of MRIs. We can compare notes!
You said you have had one before, but it was in 1994. MRIs only show what is visiable at that time. Its very possible that what didnt show up in 1994 WILL show up now giving your doctor more answers. They can change overnight, those films. Sometimes, if a legion is too small, it wont show up on an MRI, but 6 months later, when repeated, it is there. Those 'invisable' legions can cause all kinds of problems but not be identified, which is why its important to have an MRI yearly, if not bi-yearly.
Alot of what you are describing can be due to both your eyes, and stress. NOT that I think you are crazy, far from it...but not knowing what is going on, can cause the coldness and even imbalance, if you are really anxious. Can you doctor prescribe something mild for you, to help you thru this tough time? I was given xanax when I was all freaked out about not knowing..it really helped, and Ive only taken a pill every ten days or so. I dont find myself relying on them...only as needed. I dont know that this is going to help you, but it sounds like you are quite panicky..and with good reason.
Even if this was MS, people do not go blind from MS, and the only real eye disease Ive been able to find associated with MS is Optical Neuritis. What you are describing doesnt sound like Optical Neuritis at all, and even if it were, that can be treated easily.
What kind of doctors are you seeing? Are you seeing both an opthamologist and a Neurologist? I would suggest seeing both, unless you have a good Neuro-Opthamologist in the area. These doctors are cross trained to help both neurological and opthamological diseases, usually of the eyes. When is your next MRI and who will be reading this? I mean, do you have a good Neuro who will be able to look at the films and make judgement, or are you dealing with a general practicioner? I would hope at this point, that you have a good neuro whom you trust.
i hope this helps. Im not really sure what you are looking for. I cant give out medical advice, beyond recommendations to see a good trusted Neuro or Neuro-optha, and get some recent tests done so that they can make a dx..I do feel badly for you. Your fear and your anxiety are coming across loud and clear. Is there anything else which you need which might help you? At this point in time, I can only tell you that you are not alone in your fears...the unknown is a very scary place. Please reach out to us and post to us if we can help.
Hugs to you.
Nikki
moore170
08-27-2007, 04:48 PM
Hi Sallie, I think you need to hear the results of your MRI. There are so many things that you could be encountering. The important thing is to find out what you are dealing with and treat it. We will be anxious to see what you find out.
Candy
Candy
moore170
08-27-2007, 05:02 PM
I forgot to mention, my fingers and toes always are cold.....It just goes to show how unpreditable MS is.