WALLEYE
08-27-2007, 05:46 PM
wife was taken of copaxone because of vision and dizzy spells and docter does not feel that the copaxone is working for her, she was put on rebif anyone have experience with this drug. shes still out of work until decisability runs out late aug or sept.
no news on hotflashes and (dryness)
shell go into gyno cologist to figure this one out since this guy does not have any answers for us on the hot falshes. as far as the vertgo therapy i guess this will take time.wife very upset about work which i can fully understand. shes wooried about the god almighty fricken$$. i guess her health insurance will go bye bye to.
im just dont get it all these young kids having kids and getting help from the state cause they cant afford it and the wife cant get %^&$. this stinks shes been working since she was 16 she now is turning 39, but the state does seem to have any kind of help for someone who really needs it. theyed rather give it to kids to dumb to use condums and lazy people who refuse to work.
next ms appointment is three months.
does anyone know if its the meds taht affect the eyes( i mean a difference in lighting )
Scott
ps we got a computer at home one of my younger brothers bought it for us. wife cant seem to use it it bothers her eyes.
:confused: :mad:
no news on hotflashes and (dryness)
shell go into gyno cologist to figure this one out since this guy does not have any answers for us on the hot falshes. as far as the vertgo therapy i guess this will take time.wife very upset about work which i can fully understand. shes wooried about the god almighty fricken$$. i guess her health insurance will go bye bye to.
im just dont get it all these young kids having kids and getting help from the state cause they cant afford it and the wife cant get %^&$. this stinks shes been working since she was 16 she now is turning 39, but the state does seem to have any kind of help for someone who really needs it. theyed rather give it to kids to dumb to use condums and lazy people who refuse to work.
next ms appointment is three months.
does anyone know if its the meds taht affect the eyes( i mean a difference in lighting )
Scott
ps we got a computer at home one of my younger brothers bought it for us. wife cant seem to use it it bothers her eyes.
:confused: :mad:
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MSNik
08-27-2007, 06:00 PM
Hi Walleye
Im on REbif. Its one of the three interferon drugs which are given by injection. Much like Copaxone in theory, its NOT the same drug. Rebif is given 3 times a week, subcutaneously, which means UNDER the SKIN NOT in the MUSCLE. I happen to really like Rebif and have been on it a year...but be warned. The first 3 months on Rebif are bad...the side reactions are flu like sytmpoms and feeling overall lousy...it DOES go away and most everyone gets used to the drug, but the first few months are tough...give your wife Aleve 1/2 hour before each shot...it keeps working for up to 12 hours and can be bought in any grocrery or drug store.
On the computer front- can you turn down the brightness? I sometimes get really freaked out by bright lights too. Movies kill me anymore...however most computers, if you go into the control panel, have a place where you can brighten or dim the lights, and also make the fonts (the reading) bigger! hopefully this will help.
Hope she starts feeling better soon.
Nikki
Im on REbif. Its one of the three interferon drugs which are given by injection. Much like Copaxone in theory, its NOT the same drug. Rebif is given 3 times a week, subcutaneously, which means UNDER the SKIN NOT in the MUSCLE. I happen to really like Rebif and have been on it a year...but be warned. The first 3 months on Rebif are bad...the side reactions are flu like sytmpoms and feeling overall lousy...it DOES go away and most everyone gets used to the drug, but the first few months are tough...give your wife Aleve 1/2 hour before each shot...it keeps working for up to 12 hours and can be bought in any grocrery or drug store.
On the computer front- can you turn down the brightness? I sometimes get really freaked out by bright lights too. Movies kill me anymore...however most computers, if you go into the control panel, have a place where you can brighten or dim the lights, and also make the fonts (the reading) bigger! hopefully this will help.
Hope she starts feeling better soon.
Nikki
duttin
08-27-2007, 06:19 PM
Walleye,
I can understand you frustration.
It took me 2 years to get my disability.
You are correct,the system just doesn't seem to be fair,we work and when we need the help we have have to fight tooth and nail.
I'm also on rebif,have not had a new MRI since starting rebif.It took awhile to adjust,I have had 2 relapse since starting it,this is a nasty disease and it likes to linker in some people.I'm hoping that the rebif has helped slow the progression and my other meds help with the symptoms.
I can understand you frustration.
It took me 2 years to get my disability.
You are correct,the system just doesn't seem to be fair,we work and when we need the help we have have to fight tooth and nail.
I'm also on rebif,have not had a new MRI since starting rebif.It took awhile to adjust,I have had 2 relapse since starting it,this is a nasty disease and it likes to linker in some people.I'm hoping that the rebif has helped slow the progression and my other meds help with the symptoms.
moore170
08-28-2007, 02:20 PM
It took me one month to qualify for SSDI but I know that is not the norm. There is a six month waiting period from when you are determined eligible. I don't know why we should have to wait but that is how they do it. Most states (maybe all) offer SSI (short term disability income) for the interim. It is a lot less but at least it is something.
Candy
Candy
WALLEYE
08-29-2007, 08:46 AM
thanks to all this is some really rough crap.
docter says she not even close to being disabled. they want to get the eyes and dizziness under control. not sure when the nurse will come from rebif, confused about still taking copaxone if its not wiorking.
wife talked to therapist and told her after eye excersises that the dizzy spells get rotten and the therapist feels that the dizzy/vertigi is related to ms.
i guess when her disability from work stops its time to open doors. im working on this now.
you guys and gals are the best support.
thank you:cool:
docter says she not even close to being disabled. they want to get the eyes and dizziness under control. not sure when the nurse will come from rebif, confused about still taking copaxone if its not wiorking.
wife talked to therapist and told her after eye excersises that the dizzy spells get rotten and the therapist feels that the dizzy/vertigi is related to ms.
i guess when her disability from work stops its time to open doors. im working on this now.
you guys and gals are the best support.
thank you:cool:
duttin
08-29-2007, 06:58 PM
Walleye,
Has your wife ever have a eng/vng? Done by an ENT or a neurOtologist.This would tell if the dizziness is central(brain)or peripheral(nerves in ears).
My dizzyness and vertigo is from my MS detected through a vng.
Has your wife ever have a eng/vng? Done by an ENT or a neurOtologist.This would tell if the dizziness is central(brain)or peripheral(nerves in ears).
My dizzyness and vertigo is from my MS detected through a vng.
moore170
08-29-2007, 11:37 PM
thanks to all this is some really rough crap.
docter says she not even close to being disabled. they want to get the eyes and dizziness under control. not sure when the nurse will come from rebif, confused about still taking copaxone if its not wiorking.
wife talked to therapist and told her after eye excersises that the dizzy spells get rotten and the therapist feels that the dizzy/vertigi is related to ms.
i guess when her disability from work stops its time to open doors. im working on this now.
you guys and gals are the best support.
thank you:cool:
The Dr. that said she is not close to being disabled is not someone you need. Social Security would run with those words. It sure sounds to me like she is not capable of working.
docter says she not even close to being disabled. they want to get the eyes and dizziness under control. not sure when the nurse will come from rebif, confused about still taking copaxone if its not wiorking.
wife talked to therapist and told her after eye excersises that the dizzy spells get rotten and the therapist feels that the dizzy/vertigi is related to ms.
i guess when her disability from work stops its time to open doors. im working on this now.
you guys and gals are the best support.
thank you:cool:
The Dr. that said she is not close to being disabled is not someone you need. Social Security would run with those words. It sure sounds to me like she is not capable of working.
WALLEYE
08-30-2007, 12:09 PM
Walleye,
Has your wife ever have a eng/vng? Done by an ENT or a neurOtologist.This would tell if the dizziness is central(brain)or peripheral(nerves in ears).
My dizzyness and vertigo is from my MS detected through a vng.
No she has not had those 2 tests, im not sure what they are.;)
Has your wife ever have a eng/vng? Done by an ENT or a neurOtologist.This would tell if the dizziness is central(brain)or peripheral(nerves in ears).
My dizzyness and vertigo is from my MS detected through a vng.
No she has not had those 2 tests, im not sure what they are.;)
WALLEYE
08-30-2007, 12:11 PM
The Dr. that said she is not close to being disabled is not someone you need. Social Security would run with those words. It sure sounds to me like she is not capable of working.
no shes really not able to work if she goes to work it lasts if lucky 2-3 hours and tn all hell breaks lose with the vertigo/dizziness.;)
no shes really not able to work if she goes to work it lasts if lucky 2-3 hours and tn all hell breaks lose with the vertigo/dizziness.;)
duttin
08-30-2007, 02:04 PM
Walleye,
An ent is a ears nose and throat Dr, a neurOtologist is a neuro ent.
These test are studies of the ears and eyes,they are painless.Its a 3 part test.One is having your eyes track infrared lights on a black bar,in a dark room,the other is a positional test of the head,the other is where they put warm and cold water in the ears to provoke dissiness,this test is either done with ******s on with a few electrodes leading to the brain or just the electrodes pasted in different areas of the brain ,back of neck and behind the ears.
These test would definatly tell if it was from the MS or not.I would check into it further,it would benifit your wife.I can't beleive your wifes DR has not suggested it.
An ent is a ears nose and throat Dr, a neurOtologist is a neuro ent.
These test are studies of the ears and eyes,they are painless.Its a 3 part test.One is having your eyes track infrared lights on a black bar,in a dark room,the other is a positional test of the head,the other is where they put warm and cold water in the ears to provoke dissiness,this test is either done with ******s on with a few electrodes leading to the brain or just the electrodes pasted in different areas of the brain ,back of neck and behind the ears.
These test would definatly tell if it was from the MS or not.I would check into it further,it would benifit your wife.I can't beleive your wifes DR has not suggested it.