MSNik
08-28-2007, 04:47 PM
Hey friends.
Tomorrow is the big day for me- one year on Rebif and a whole year of being dx with MS, back into the MRI I go! I actually had an MRI on my brain only 6 months ago, it showed NO NEW LEGIONS and NOTHING ON THE CONTRAST- which is great, since I have over 50 legions to begin with...it meant that the Rebif was doing what it was supposed to be doing.....however, 6 more months have passed, and with this horrible heat, Ive had all the same issues as everyone else with excaberations and feeling generally lousy and now the time has come. This time, we are doing both my spine and brain, both of them with and without contrast. My husband thinks Im going to glow in the dark tomorrorow night!;)
I share this with you because so many of you have shared so much with me over the past year. I am grateful for all of you! I wont have my results until the following Friday, Sept 7th, but hopefully Ill have more good news to share then!
Hugs to you all.
Nikki
Tomorrow is the big day for me- one year on Rebif and a whole year of being dx with MS, back into the MRI I go! I actually had an MRI on my brain only 6 months ago, it showed NO NEW LEGIONS and NOTHING ON THE CONTRAST- which is great, since I have over 50 legions to begin with...it meant that the Rebif was doing what it was supposed to be doing.....however, 6 more months have passed, and with this horrible heat, Ive had all the same issues as everyone else with excaberations and feeling generally lousy and now the time has come. This time, we are doing both my spine and brain, both of them with and without contrast. My husband thinks Im going to glow in the dark tomorrorow night!;)
I share this with you because so many of you have shared so much with me over the past year. I am grateful for all of you! I wont have my results until the following Friday, Sept 7th, but hopefully Ill have more good news to share then!
Hugs to you all.
Nikki
Sponsor
Skinnyjess
08-28-2007, 05:26 PM
Oh I wish you lots of luck! We will be thinking and praying for you.:angel:
MSNik
08-28-2007, 06:13 PM
Thank you Skinnyjess!
tuckersmom
08-28-2007, 07:33 PM
:wave: HELLO! YOU KNOW I AM GOING TO HAVE NOTHING BUT GOOD THOUGHTS AND PRAYER FOR YOU.
Lisa:D
Lisa:D
MSNik
08-28-2007, 07:43 PM
Thanks Lisa, my newest pal!:D More details after the appointment on the 7th. Im also inquiring of my GYN in mid September about the other stuff weve been discussing!
N
N
duttin
08-28-2007, 10:13 PM
Nikki,
GOOD LUCK, I hope you don't glow.
Keep me posted.
T
GOOD LUCK, I hope you don't glow.
Keep me posted.
T
w0rldflame
08-29-2007, 03:59 AM
Good luck Nik.... I hope you get to listen to some great music during the MRI
parisiancat
08-29-2007, 05:07 AM
Good luck Nikki. I'll be thinking of you. Hope you get a good result.
Cat:p
Cat:p
MSNik
08-29-2007, 08:50 AM
Actually T, Im hoping I do glow. Wouldnt that spice things up???:D
Thank you, everyone for your good wishes, and I think Ill take some music with me for this one...its going to be a long one doing both with and without contrast both parts of my body! Good advice, thanks.
Hugs to you all.
Have a great day!
N
Thank you, everyone for your good wishes, and I think Ill take some music with me for this one...its going to be a long one doing both with and without contrast both parts of my body! Good advice, thanks.
Hugs to you all.
Have a great day!
N
WALLEYE
08-29-2007, 08:58 AM
good luck will be thinking of you. good thoughts.:cool:
MSNik
08-29-2007, 09:09 AM
Thank you Walleye. Youre so sweet to think of me, youve got your own hands full. Ill be thinking of you and your wife, too.
Nikki
Nikki
Jill1221
08-29-2007, 10:18 AM
Good luck Nikki. I hope that you get proof that the Rebif is working, and that your symptoms have been heat induced. No more lesions! No more lesions!
glamour girl
08-29-2007, 10:26 AM
Good Luck with the MRI. I remember you said Aug would be 1yr for you. I think everyone feels like they actually know you here.. Our thoughts are with you. You'll prob get one million good lucks.. Make sure they turn that music up for you .. lol...
FLFLOWERGIRL
08-29-2007, 10:42 AM
Good luck--I hope you get the results that you are looking for. FLFLOWERGIRL:)
kimpossible67
08-29-2007, 11:19 AM
Hey Nikki! With your positivity and empathetic nature, I hope nothing short of wonderful comes your way.....you deserve it.
MSNik
08-29-2007, 07:27 PM
Gosh I love all your guys!!:D
Thanks for so many wonderful happy thoughts! Just got back from my tests,my MRI facility has a new thing going on there....they do the C-spine and brain all in one..meaning you dont have to get up and reposition! Sounds great, but it took forever. I was in the machine close to an hour then they pulled me out, injected the contrast and put me back in for 6 more series! I was ready to scream...oh, and get this: NO MUSIC! THey gave me earplugs, but headphones dont fit inside this 'cage" that they strap your head and neck into...
Thankfully, Im not afraid of the machine or the test and Im not clastrophobic! It was a long afternoon....
I really appreciate the good wishes, I really did think of each and every one of you while I was in there....wanna play a game sometime? Picture each persons user name and try to picture physical description. All of you are beautiful by the way!
Hugs to you all and will let you know how that Rebif is working on the 7th.
Nikki
Thanks for so many wonderful happy thoughts! Just got back from my tests,my MRI facility has a new thing going on there....they do the C-spine and brain all in one..meaning you dont have to get up and reposition! Sounds great, but it took forever. I was in the machine close to an hour then they pulled me out, injected the contrast and put me back in for 6 more series! I was ready to scream...oh, and get this: NO MUSIC! THey gave me earplugs, but headphones dont fit inside this 'cage" that they strap your head and neck into...
Thankfully, Im not afraid of the machine or the test and Im not clastrophobic! It was a long afternoon....
I really appreciate the good wishes, I really did think of each and every one of you while I was in there....wanna play a game sometime? Picture each persons user name and try to picture physical description. All of you are beautiful by the way!
Hugs to you all and will let you know how that Rebif is working on the 7th.
Nikki
Bearygood
08-30-2007, 01:19 AM
Glad your tests went well, Nikki! Here's to a good result!
tuckersmom
08-30-2007, 09:07 AM
Nikki, I thought of you several times yesterday and prayed you were doing ok. I know those days can be so long.....I look forward to the 7th with you to hear the happy news. Hope you have a good day.
glamour girl
08-30-2007, 09:16 AM
Nikki,
You say Your MRI scan was brain & C- spine was done into one. Is that a new way for you guys ? Its the only way i have had my scans for the past 7 years..Seems like you had yr scan another way.. I've been having Brain and spine scans without ever being pulled out to adjust, Yep always in the machine for 45-60 mins. I assumed the machine is the same everywhere. Now i'm wondering.
As for the music.. I usually take my own CD and they play it over the speakers, just need to remind them to pump up the music, (my last one it was too low).
Well best of luck with your results. Hope Rebif has done its job for you.
You say Your MRI scan was brain & C- spine was done into one. Is that a new way for you guys ? Its the only way i have had my scans for the past 7 years..Seems like you had yr scan another way.. I've been having Brain and spine scans without ever being pulled out to adjust, Yep always in the machine for 45-60 mins. I assumed the machine is the same everywhere. Now i'm wondering.
As for the music.. I usually take my own CD and they play it over the speakers, just need to remind them to pump up the music, (my last one it was too low).
Well best of luck with your results. Hope Rebif has done its job for you.
MSNik
08-30-2007, 09:54 AM
Hi GG
I dont know if it is a new way of doing things here in the states, or my MRI center just started using this way....in the past, they put me in the brain thing, with the head gear to keep me still- put headphones on me, and did the scans...pullled me out, rearranged the gear and the way I was positioned and did the neck....then, pulled me out again, did the contrast, and started the whole thing over.
This time, there was a new head piece, which actually went down to about bra strap area across my chest...the scans were done on my head and spine at the same time...BUT they couldnt put headphones on me with this contraption. I did have earplugs in, but no headphones....there wasnt anything piped in and the tech never said a word to me thru the room intercom...I never knew how many scans were left to do...all the sudden, I was being slid out, to do the contrast- at that point, he said 6 more to go...and slid me back. When the 6th one was over, he was back, sliding me out and taking the gear off my body/face. It was over..
It seemed strange to me that there was so little communication, but I have the films ( i waited for them) I refuse to look at them, as I am a huge advocate of letting the docs tell me what I need to know, and not playing doctor myself. I dont have the report, which is being faxed to my doctors office- but Ill take the films with me for him to read anyway. My doc isnt a huge proponent of the reports- he likes to read them himself.
so, if thats what they have been doing in Australia for years- I wouldnt doubt it...my MRI center has state of the art machines, but maybe not so state of the art techs! I might have always had a tech who did it "old style" when this was available the whole time. I dont know....all I know is thank goodness it is over..and results on the 7th.
Thanks for the good wishes...have a great day.
nikki
I dont know if it is a new way of doing things here in the states, or my MRI center just started using this way....in the past, they put me in the brain thing, with the head gear to keep me still- put headphones on me, and did the scans...pullled me out, rearranged the gear and the way I was positioned and did the neck....then, pulled me out again, did the contrast, and started the whole thing over.
This time, there was a new head piece, which actually went down to about bra strap area across my chest...the scans were done on my head and spine at the same time...BUT they couldnt put headphones on me with this contraption. I did have earplugs in, but no headphones....there wasnt anything piped in and the tech never said a word to me thru the room intercom...I never knew how many scans were left to do...all the sudden, I was being slid out, to do the contrast- at that point, he said 6 more to go...and slid me back. When the 6th one was over, he was back, sliding me out and taking the gear off my body/face. It was over..
It seemed strange to me that there was so little communication, but I have the films ( i waited for them) I refuse to look at them, as I am a huge advocate of letting the docs tell me what I need to know, and not playing doctor myself. I dont have the report, which is being faxed to my doctors office- but Ill take the films with me for him to read anyway. My doc isnt a huge proponent of the reports- he likes to read them himself.
so, if thats what they have been doing in Australia for years- I wouldnt doubt it...my MRI center has state of the art machines, but maybe not so state of the art techs! I might have always had a tech who did it "old style" when this was available the whole time. I dont know....all I know is thank goodness it is over..and results on the 7th.
Thanks for the good wishes...have a great day.
nikki
glamour girl
08-31-2007, 04:47 AM
Yeah. The way you described it in yr 2nd paragraph is exactly the way we have it here. Gosh i hope yr results are good. Its hard to believe you've been dx for 1 yr. You seem so knowledgeable, its great to always read your answers. Sometimes i'll read a post. Think about replying, then yr already there with wise words.. You rock.