suggi
08-30-2007, 12:58 PM
Can anyone tell me if my mold relatedhealth problems coild possibly be related to snow mold? Is this mold on the grass dangerous as it must come in on your shoes, etc. The kids are always on the lawn. Apparently it is dorment in the hot weather but spring and fall is bad and it thrives under the snow.
Any advice would be helpful as I am allergic to fungicides and don't know what to do. Thanks
Any advice would be helpful as I am allergic to fungicides and don't know what to do. Thanks
Sponsor
moldman
10-18-2007, 08:56 PM
thanks for the name, I didn't know that nasty stuff had a name.
Hulda Clark (Cure for All Diseases) says that vitamin C detoxifies mold. If you don't have kidney disease you might want to try a non-corn based buffered vitamin C powder in water to drink.
Hulda Clark (Cure for All Diseases) says that vitamin C detoxifies mold. If you don't have kidney disease you might want to try a non-corn based buffered vitamin C powder in water to drink.
sharewithme
11-11-2007, 10:44 PM
I am severely allergic to mold. I must be very careful not to be contaminated. I use vitamin C to clean food from mold. Never used it on clothing, didn't know you could do that. I'd be interested in learning more about that. I use GSE (grapefruit seed extract) products in those situations as this is what my Dr. taught me to do. They work so long as it's not contaminated with one of the molds I am super allergic to. In those situations I decontaminate by disposing of items in question. Golden rule: Never, ever bring anything contaminated with bad molds into my living space/car or I will get sick again. Textiles are especially susceptible to contamination as spores love them. Also paper.
Could your kids leave shoes outside? I have habit now of taking shoes off when first enter and then spraying them w/ GSE solution in order to minimize this very type of thing.
Hope this helps.
Be well,
S-
Could your kids leave shoes outside? I have habit now of taking shoes off when first enter and then spraying them w/ GSE solution in order to minimize this very type of thing.
Hope this helps.
Be well,
S-
moldman
11-12-2007, 11:13 AM
Hi Share,
I will be thinking about your last post some more, but a few things come to mind right now.
I have always had reservations about the use of things like GSE because although it is natural it is still in the realm of poison. In Traditional Chinese Medicine they use 3 things to treat: Food, Tonics and Poison. The last one is a last resort.
So, keeping the idea in mind to build up the body as oppossed to trying to get rid of something inside of it I thought of the use of Zinc. Now, I can fully appreciate sensitivity to musty old books, but if you can get a copy of Mental and Elemental Nutrients by Carl C. Pfeiffer, 1975 you will get a better picture of the judicious use of minerals. The idea is to give the body what it needs without overwhelming it. This is the first book I ever read that said that the use of vitamins and minerals in not for life because they can actually work against you over time. Personally, I favor the use of Zinc Picolinate. I buy a form that has NO EXCIPIENTS. If you read labels a lot have things like rice flour and you will just be exposing yourself to a dozen molds from that alone. I DO NOT take Zinc every day as it competes with copper and other elements.
Zinc can be thought of as a Food and a Tonic as it will help to build the immune system. Mold does not like zinc taken in the body. Mold does not like zinc as a mineral outside the body. It is so hard to get useful products these days and chemical companies will not sell to you directly so I go through the family pharmacist to get things like Zinc oxide powder. You might find this as an active ingredient in foot powder, etc. but it will probably also be tainted with talcum powder and scents. Talc, by the way, always has traces of asbestos.
I have been working on an unpublished theory that such severe reactions like you experience are because there is something inside your body that does not like what is getting in.
Have you done any programs (like Candida cures) other than the GSE?
Can you think of any particular exposures that might have caused your current problem? For example: I know that I was exposed to moldy old carpets when my lungs were damaged by smoke when I was a kid; and then as an adult I got exposed to aggressive mold in the jungle.
The final idea I have without thinking too hard is to look into a Vitamin D lamp. Vitamin D builds the immune system (we've all been damaged if you've had even just one vaccine) and if you have a topical fungal problem the Ultraviolet is the other thing that mold does not like. This is not something you should do without knowing what you are doing. (Insert: Ask your Doctor, see your doctor disclaimer here)
I will be thinking about your last post some more, but a few things come to mind right now.
I have always had reservations about the use of things like GSE because although it is natural it is still in the realm of poison. In Traditional Chinese Medicine they use 3 things to treat: Food, Tonics and Poison. The last one is a last resort.
So, keeping the idea in mind to build up the body as oppossed to trying to get rid of something inside of it I thought of the use of Zinc. Now, I can fully appreciate sensitivity to musty old books, but if you can get a copy of Mental and Elemental Nutrients by Carl C. Pfeiffer, 1975 you will get a better picture of the judicious use of minerals. The idea is to give the body what it needs without overwhelming it. This is the first book I ever read that said that the use of vitamins and minerals in not for life because they can actually work against you over time. Personally, I favor the use of Zinc Picolinate. I buy a form that has NO EXCIPIENTS. If you read labels a lot have things like rice flour and you will just be exposing yourself to a dozen molds from that alone. I DO NOT take Zinc every day as it competes with copper and other elements.
Zinc can be thought of as a Food and a Tonic as it will help to build the immune system. Mold does not like zinc taken in the body. Mold does not like zinc as a mineral outside the body. It is so hard to get useful products these days and chemical companies will not sell to you directly so I go through the family pharmacist to get things like Zinc oxide powder. You might find this as an active ingredient in foot powder, etc. but it will probably also be tainted with talcum powder and scents. Talc, by the way, always has traces of asbestos.
I have been working on an unpublished theory that such severe reactions like you experience are because there is something inside your body that does not like what is getting in.
Have you done any programs (like Candida cures) other than the GSE?
Can you think of any particular exposures that might have caused your current problem? For example: I know that I was exposed to moldy old carpets when my lungs were damaged by smoke when I was a kid; and then as an adult I got exposed to aggressive mold in the jungle.
The final idea I have without thinking too hard is to look into a Vitamin D lamp. Vitamin D builds the immune system (we've all been damaged if you've had even just one vaccine) and if you have a topical fungal problem the Ultraviolet is the other thing that mold does not like. This is not something you should do without knowing what you are doing. (Insert: Ask your Doctor, see your doctor disclaimer here)
sharewithme
11-14-2007, 12:13 PM
Greetings Mold Man:
I'm having trouble calling you that. I respect your choice for a user name it's just kinda weird to say that to you now that you have written to me. You see, to me, your perspective, your writing are the words of a healer. Just kind of a strange association for me, that's all.....
I appreciate your time and willingness to share your knowing.
I do need help. What I am doing w/ GSE has been beneficial for me but the help is fraught with problems as I have developed sensitivity to it. Has been of great concern. I also do not like using poisons, anywhere on anybody.
The last serious mold hit I took was in a library, woman sat next to me for 5 minutes. I was engulfed in a cloud of toxic mold spore. Made the mistake of standing there (inside, not outside as I should) too long to tell her, "I'm a mold geiger counter, you have it in your home, need to test, etc." Turns out she needed the info very badly as she and her son are both quite sick. You could see the light bulb go off. I'm glad I helped her, I just need to make sure I take better care of me next time. Took 2 weeks to recover and am still more chemical sensitive, have active yeast again, allergies in general are hotter. Feels like thyroid was impacted as well. Adrenals are better now. Joints were really hurting -- neurological (buzzing in hands & feet) has finally stopped. Loss of coordination, vision, short term memory and mental clarity were also affected. That has improved, more normal. Of course that begs the question, what exactly is normal now? Certainly not what it could be. So I need to change, improve what I am doing.
I also must ask, is this a safe place for me to live? Mold people (what I call those who live or work in a high mold count like I used to) are everywhere. I have to remember, I encountered them in the southwest too. Isn't that bizarre? But all too true. The West -- swamp coolers, wanton chemical use, and black mold. Took one of the worst hits ever in Flagstaff,AZ and Tuscon is so full of mold, Pima County now has outdoor monitoring stations for it!
I have concluded what I must do is -- HEAL. Stay out of mold, keep my distance from mold people. Is kinda hard to do and still be in the world. I have given up visiting people I care about as they live in mold. I cannot stay with those closest to me because of mold growth in their homes or residue from previous places they've lived, etc. Can you say, Share is super sensitive to the damn stuff?
I hate mold. And what I call the little monsters, yeast overgrowth in my body.
Am open to better and better ways to accomplish quality of life. And to exercising outside as much as possible. Really helps me feel better on all counts.
I want to respond to your queries and suggestions, I just need a break from my computer. A brisk walk will do me wonders. Am obviously getting mad about what has/is happening to me, need to clear myself. There is other stuff going on Mold Man. Starting over again can be an exciting adventure but it also is a giant pain in the a--! Grumble, grumble. Could be worse. I could be homeless.....
Be well,
S-
I'm having trouble calling you that. I respect your choice for a user name it's just kinda weird to say that to you now that you have written to me. You see, to me, your perspective, your writing are the words of a healer. Just kind of a strange association for me, that's all.....
I appreciate your time and willingness to share your knowing.
I do need help. What I am doing w/ GSE has been beneficial for me but the help is fraught with problems as I have developed sensitivity to it. Has been of great concern. I also do not like using poisons, anywhere on anybody.
The last serious mold hit I took was in a library, woman sat next to me for 5 minutes. I was engulfed in a cloud of toxic mold spore. Made the mistake of standing there (inside, not outside as I should) too long to tell her, "I'm a mold geiger counter, you have it in your home, need to test, etc." Turns out she needed the info very badly as she and her son are both quite sick. You could see the light bulb go off. I'm glad I helped her, I just need to make sure I take better care of me next time. Took 2 weeks to recover and am still more chemical sensitive, have active yeast again, allergies in general are hotter. Feels like thyroid was impacted as well. Adrenals are better now. Joints were really hurting -- neurological (buzzing in hands & feet) has finally stopped. Loss of coordination, vision, short term memory and mental clarity were also affected. That has improved, more normal. Of course that begs the question, what exactly is normal now? Certainly not what it could be. So I need to change, improve what I am doing.
I also must ask, is this a safe place for me to live? Mold people (what I call those who live or work in a high mold count like I used to) are everywhere. I have to remember, I encountered them in the southwest too. Isn't that bizarre? But all too true. The West -- swamp coolers, wanton chemical use, and black mold. Took one of the worst hits ever in Flagstaff,AZ and Tuscon is so full of mold, Pima County now has outdoor monitoring stations for it!
I have concluded what I must do is -- HEAL. Stay out of mold, keep my distance from mold people. Is kinda hard to do and still be in the world. I have given up visiting people I care about as they live in mold. I cannot stay with those closest to me because of mold growth in their homes or residue from previous places they've lived, etc. Can you say, Share is super sensitive to the damn stuff?
I hate mold. And what I call the little monsters, yeast overgrowth in my body.
Am open to better and better ways to accomplish quality of life. And to exercising outside as much as possible. Really helps me feel better on all counts.
I want to respond to your queries and suggestions, I just need a break from my computer. A brisk walk will do me wonders. Am obviously getting mad about what has/is happening to me, need to clear myself. There is other stuff going on Mold Man. Starting over again can be an exciting adventure but it also is a giant pain in the a--! Grumble, grumble. Could be worse. I could be homeless.....
Be well,
S-
moldman
11-14-2007, 04:37 PM
I'm having trouble calling you that. I respect your choice for a user name it's just kinda weird to say that to you now that you have written to me. You see, to me, your perspective, your writing are the words of a healer. Just kind of a strange association for me, that's all.....
No Worries as they say Down Under. I'm just trying to steal power from what steals power from me. (Quite literally. There are several kinds of fatigue. One is a metabolic fatigue at a cellular level that can be caused by many things including environmental toxins. Another is just overwork. And another is just lack of go-juice from adrenals being squeezed dry trying to cope with all of the above)
I appreciate your time and willingness to share your knowing.
You wouldn't believe how much I have learned from people on this site just sharing what they go through even if they don't know what it is they are going through or why. Knowledge is power. In fact, the most I learned is from a <removed> woman who called herself a Canary and listed EVERYTHING that she went through to try to get better. I used her work coupled with a dozen textbooks and found some missing links. I will be passing those on below.[/COLOR]
I do need help. What I am doing w/ GSE has been beneficial for me but the help is fraught with problems as I have developed sensitivity to it. Has been of great concern. I also do not like using poisons, anywhere on anybody.
What you are describing would make everybody with MCS give a wry smile and shake their heads going "Spreading Phenomena". Seems once the cascade starts it branches out into other things that you were not sensitive to before. Who knew that eating a homegrown organic pear (one of my favorite fruits) could drop my BP to 80/60 and make me think my heart was going to stop? You feel the world getting pretty small when even food starts working against you.
The last serious mold hit I took was in a library,
Don't get me started on libraries. The repositories of human knowlege that should be a haven for people like us that need reference to sort out the madness and just with the musty paper, toxic printing ink, and sizing (the stuff that they coat the paper with that ranges from pesticides in National Geographic to the smell of sour milk in really cheap presses) its not fit for man nor beast THEN you couple it with the innocent patrons who come in wheeling their babies in strollers and you nearly pass out because they have some STEALTH SCENT that you can't even get a warning off of by smelling it in time to get away because quite a number of chemicals HAVE NO ODOR.
woman sat next to me for 5 minutes. I was engulfed in a cloud of toxic mold spore. Made the mistake of standing there (inside, not outside as I should) too long to tell her, "I'm a mold geiger counter, you have it in your home, need to test, etc." Turns out she needed the info very badly as she and her son are both quite sick. You could see the light bulb go off. I'm glad I helped her, I just need to make sure I take better care of me next time.
Been there done that. (Not an affectation as I have been to Australia and yes, the water does run down in the opposite direction) I fully understand the need to look out for #1 but in a way you were doing that by sharing what you know. You may be able to help someone else break the cycle and that will be an entire family that could prevent contaminating your airspace in the future. I think the toughest people in the world are sick people because they have to cope with their crap and everyone elses at the same time.
Took 2 weeks to recover and am still more chemical sensitive,
The most important thing my Clinical Ecology Doctor told me was to keep a journal. You can track exposures (it lets you find and avoid things that you may not be aware of). I will keep reminding you that the exotoxins from mold are indeed chemicals, so, although it is necessary and proper to identify WHAT is making you ill it is also helpful to understand WHY you are ill. It also sooths the mind to know that there are not a MILLION things that are out there to get you, there is just a FAMILY of things (Chemicals) to which you are reactive. Hopefully, you will come to understand what I mean as time goes by - because, especially, in the world of microbes there are certain things that they don't like, so if you can harmonize your body's environment to have what they don't like (Zinc, Sulfur, etc.) then you have a even playing field to fight back.
have active yeast again,
Take some time to explain why you think you have (I assume systemic) a yeast (I assume Candida Albicans) problem. I am aware that a lot of people read the books on Yeast and their profiles match everything the questionaire says; but no one I have talked to has had any clinical verification of systemic candidiasis. Now, realize that I know you can have a bad lab test, subclinical presentation, etc. But I always try to reference what is going on with something demonstrable. The biggest obstacle to this is money. If you are sick you can't work, if you can't work you can't get the kind of care you need...
allergies in general are hotter. Feels like thyroid was impacted as well.
When I can afford it I buy organic seaweed in bulk from Maine. It is loaded with trace minerals and Iodine. Practically all landlocked Americans are deficient in Iodine. My favorite quote from a nutrition book is that lack of Iodine leads to low intellect and no ambition. I am still looking into the safety of Potassium Iodide as found in salt as there is conflicting ideas on whether it is effective or safe. My favorite labels are things like the nutrition drinks that have Salt Form minerals (sodium selenite, copper sulfate, etc.) because they meet federal guidelines but are totally unassimilateable (sp?)
Adrenals are better now.
Do you do anything special for your adrenals or does rest restore them? I have to treat mine with Whole Adrenal glandular (frowned on by vegan/vegetarians) and occaisionally Chromium Picolinate. It is important to emphasize that these trace minerals can build up and become toxic so it is never: One Asprin is Good a Whole Bottle Might Be Better scenario. I also use a Cassava based vitamin C powder. I have had no success with megadoses (recommeded 2 grams) vitamin B(? brain fade) also known as Pantothenic acid or its super expensive active co-enzyme form (? still can't remember). But I do occaisionally take a B-complex with active forms of some of the vitamins.
Some people's genetic makeup won't let them activate B-6 so they have to take P-5-P (Pyridoxal 5 Phosphate). Pyridoxine Hydrochloride is totally useless if you can't convert it. Things got so bad for me that I started getting a crack in the corner of my mouth (after farm pesticide spraying) and ONLY the active form of Riboflavin (Riboflavin 5 Phosphate) would make it go away. I know if I went to a doc they would give me a salve and tell me to live with it, but I have a pre-drug industry mania book on vitamins and it showed the exact picture of what I had and how to correct it. The problem is that modern medicine does not believe that Americans can have vitamin deficiencies which is an article of faith not science.
Joints were really hurting -- neurological (buzzing in hands & feet) has finally stopped. Loss of coordination, vision, short term memory and mental clarity were also affected.
What you just describe is directly out of Theron Randolph's description of the advanced stage of chemical sensitivity. The blood brain barrier protects the CNS from the outside world. I assume that these things can happen over time or instantly. It could very well be that the outside world is getting in. I am scrambling to find out how to correct the damage (very difficult when modern cell biology is based on false premises) and trying to stem the tide inbetween. The major thing for me was a Histamine response that took out my higher functions. Histamine among other things is a neurotransmitter and can drop you like a rock if it is out of whack.
That has improved, more normal. Of course that begs the question, what exactly is normal now?
I have a friend who is a Chiropractor who said that if people were 'normal' they would all be sick because the world is so toxic.
Certainly not what it could be. So I need to change, improve what I am doing.
I also must ask, is this a safe place for me to live?
There is no safe place. The Desert Southwest is where everyone went to get cured Back In The Day, but then they wrote back East to say what wonderful place it was so everyone else moved out there, but they missed the things they were familiar with out East so they brought all the things that made them sick with them and the cycle started all over again. Theron Randolph made an astounding discovery that Allergy and Addiction are the SAME THING. This is why they brought their sick-making things with them. There is Oleander (yes the poisonous plant) used as median plantings along the roadsides from California to Arizona. I couldn't live in those states if I wanted to. The recommendation of Clincal Ecologists is to create a safe Oasis in your own home. Fix roof leaks, dry up your basement/crawlspace, vent your bathroom, CLEAN YOUR GUTTERS (I found that out the hard way). I pour vinegar down my sink drains to keep microbes from growing.
Mold people (what I call those who live or work in a high mold count like I used to) are everywhere. I have to remember, I encountered them in the southwest too. Isn't that bizarre? But all too true. The West -- swamp coolers, wanton chemical use, and black mold. Took one of the worst hits ever in Flagstaff,AZ and Tuscon is so full of mold, Pima County now has outdoor monitoring stations for it!
I have concluded what I must do is -- HEAL. Stay out of mold, keep my distance from mold people. Is kinda hard to do and still be in the world. I have given up visiting people I care about as they live in mold. I cannot stay with those closest to me because of mold growth in their homes or residue from previous places they've lived, etc. Can you say, Share is super sensitive to the damn stuff?
I hate mold. And what I call the little monsters, yeast overgrowth in my body.
Am open to better and better ways to accomplish quality of life. And to exercising outside as much as possible. Really helps me feel better on all counts.
Here is what I learned from the Canary who was ALLERGIC to sulfur. I reacted to sulfur containing things like amino acids, eggs, garlic, onions, etc due to Arsenic exposure in industry. It took YEARS of finding the right supplements with the right formulas to get to a point where I could tolerate them. First, the supplements have to be free of extra crap (excipients) that you might react to. Then, you have to find the ones that get the right metabolic stage to you so that your body does not have to convert it. I had great success with a form of B1 called Allithiamine or Thiamine Tetrahydrofurfuryl Disulfide.
Do you know how many YEARS and study it took just to <discover> information on a protocol for Autistic kids that treated conditions that were identical to MCS?
But it helped. It smells like the inside of a steel belted radial tire, but it gets the sulfur where it needs to be with no intermediates. Now, I can eat garlic (couldn't for years despite all of the health gurus who say it is good for you). I gave up the Allithiamine for garlic (in keeping with the Chinese concept of food for medicine)
I want to respond to your queries and suggestions, I just need a break from my computer. A brisk walk will do me wonders. Am obviously getting mad about what has/is happening to me, need to clear myself. There is other stuff going on Mold Man. Starting over again can be an exciting adventure but it also is a giant pain in the a--! Grumble, grumble. Could be worse. I could be homeless.....
The Grumble Grumble could be the sign of an overstressed liver (from Chinese Medicine theory) because the toxins have to be processed and sent somewhere. If you can tolerate sulfur based foods it might help in that arena. Sorry this took so much time, but you have to peel back decades of lies to get back to the real problem so that you can start at the souce instead of some Red Herring.
Be well,
S-[/FONT][/FONT]
[/FONT][/COLOR][/SIZE][/FONT][/QUOTE]
No Worries as they say Down Under. I'm just trying to steal power from what steals power from me. (Quite literally. There are several kinds of fatigue. One is a metabolic fatigue at a cellular level that can be caused by many things including environmental toxins. Another is just overwork. And another is just lack of go-juice from adrenals being squeezed dry trying to cope with all of the above)
I appreciate your time and willingness to share your knowing.
You wouldn't believe how much I have learned from people on this site just sharing what they go through even if they don't know what it is they are going through or why. Knowledge is power. In fact, the most I learned is from a <removed> woman who called herself a Canary and listed EVERYTHING that she went through to try to get better. I used her work coupled with a dozen textbooks and found some missing links. I will be passing those on below.[/COLOR]
I do need help. What I am doing w/ GSE has been beneficial for me but the help is fraught with problems as I have developed sensitivity to it. Has been of great concern. I also do not like using poisons, anywhere on anybody.
What you are describing would make everybody with MCS give a wry smile and shake their heads going "Spreading Phenomena". Seems once the cascade starts it branches out into other things that you were not sensitive to before. Who knew that eating a homegrown organic pear (one of my favorite fruits) could drop my BP to 80/60 and make me think my heart was going to stop? You feel the world getting pretty small when even food starts working against you.
The last serious mold hit I took was in a library,
Don't get me started on libraries. The repositories of human knowlege that should be a haven for people like us that need reference to sort out the madness and just with the musty paper, toxic printing ink, and sizing (the stuff that they coat the paper with that ranges from pesticides in National Geographic to the smell of sour milk in really cheap presses) its not fit for man nor beast THEN you couple it with the innocent patrons who come in wheeling their babies in strollers and you nearly pass out because they have some STEALTH SCENT that you can't even get a warning off of by smelling it in time to get away because quite a number of chemicals HAVE NO ODOR.
woman sat next to me for 5 minutes. I was engulfed in a cloud of toxic mold spore. Made the mistake of standing there (inside, not outside as I should) too long to tell her, "I'm a mold geiger counter, you have it in your home, need to test, etc." Turns out she needed the info very badly as she and her son are both quite sick. You could see the light bulb go off. I'm glad I helped her, I just need to make sure I take better care of me next time.
Been there done that. (Not an affectation as I have been to Australia and yes, the water does run down in the opposite direction) I fully understand the need to look out for #1 but in a way you were doing that by sharing what you know. You may be able to help someone else break the cycle and that will be an entire family that could prevent contaminating your airspace in the future. I think the toughest people in the world are sick people because they have to cope with their crap and everyone elses at the same time.
Took 2 weeks to recover and am still more chemical sensitive,
The most important thing my Clinical Ecology Doctor told me was to keep a journal. You can track exposures (it lets you find and avoid things that you may not be aware of). I will keep reminding you that the exotoxins from mold are indeed chemicals, so, although it is necessary and proper to identify WHAT is making you ill it is also helpful to understand WHY you are ill. It also sooths the mind to know that there are not a MILLION things that are out there to get you, there is just a FAMILY of things (Chemicals) to which you are reactive. Hopefully, you will come to understand what I mean as time goes by - because, especially, in the world of microbes there are certain things that they don't like, so if you can harmonize your body's environment to have what they don't like (Zinc, Sulfur, etc.) then you have a even playing field to fight back.
have active yeast again,
Take some time to explain why you think you have (I assume systemic) a yeast (I assume Candida Albicans) problem. I am aware that a lot of people read the books on Yeast and their profiles match everything the questionaire says; but no one I have talked to has had any clinical verification of systemic candidiasis. Now, realize that I know you can have a bad lab test, subclinical presentation, etc. But I always try to reference what is going on with something demonstrable. The biggest obstacle to this is money. If you are sick you can't work, if you can't work you can't get the kind of care you need...
allergies in general are hotter. Feels like thyroid was impacted as well.
When I can afford it I buy organic seaweed in bulk from Maine. It is loaded with trace minerals and Iodine. Practically all landlocked Americans are deficient in Iodine. My favorite quote from a nutrition book is that lack of Iodine leads to low intellect and no ambition. I am still looking into the safety of Potassium Iodide as found in salt as there is conflicting ideas on whether it is effective or safe. My favorite labels are things like the nutrition drinks that have Salt Form minerals (sodium selenite, copper sulfate, etc.) because they meet federal guidelines but are totally unassimilateable (sp?)
Adrenals are better now.
Do you do anything special for your adrenals or does rest restore them? I have to treat mine with Whole Adrenal glandular (frowned on by vegan/vegetarians) and occaisionally Chromium Picolinate. It is important to emphasize that these trace minerals can build up and become toxic so it is never: One Asprin is Good a Whole Bottle Might Be Better scenario. I also use a Cassava based vitamin C powder. I have had no success with megadoses (recommeded 2 grams) vitamin B(? brain fade) also known as Pantothenic acid or its super expensive active co-enzyme form (? still can't remember). But I do occaisionally take a B-complex with active forms of some of the vitamins.
Some people's genetic makeup won't let them activate B-6 so they have to take P-5-P (Pyridoxal 5 Phosphate). Pyridoxine Hydrochloride is totally useless if you can't convert it. Things got so bad for me that I started getting a crack in the corner of my mouth (after farm pesticide spraying) and ONLY the active form of Riboflavin (Riboflavin 5 Phosphate) would make it go away. I know if I went to a doc they would give me a salve and tell me to live with it, but I have a pre-drug industry mania book on vitamins and it showed the exact picture of what I had and how to correct it. The problem is that modern medicine does not believe that Americans can have vitamin deficiencies which is an article of faith not science.
Joints were really hurting -- neurological (buzzing in hands & feet) has finally stopped. Loss of coordination, vision, short term memory and mental clarity were also affected.
What you just describe is directly out of Theron Randolph's description of the advanced stage of chemical sensitivity. The blood brain barrier protects the CNS from the outside world. I assume that these things can happen over time or instantly. It could very well be that the outside world is getting in. I am scrambling to find out how to correct the damage (very difficult when modern cell biology is based on false premises) and trying to stem the tide inbetween. The major thing for me was a Histamine response that took out my higher functions. Histamine among other things is a neurotransmitter and can drop you like a rock if it is out of whack.
That has improved, more normal. Of course that begs the question, what exactly is normal now?
I have a friend who is a Chiropractor who said that if people were 'normal' they would all be sick because the world is so toxic.
Certainly not what it could be. So I need to change, improve what I am doing.
I also must ask, is this a safe place for me to live?
There is no safe place. The Desert Southwest is where everyone went to get cured Back In The Day, but then they wrote back East to say what wonderful place it was so everyone else moved out there, but they missed the things they were familiar with out East so they brought all the things that made them sick with them and the cycle started all over again. Theron Randolph made an astounding discovery that Allergy and Addiction are the SAME THING. This is why they brought their sick-making things with them. There is Oleander (yes the poisonous plant) used as median plantings along the roadsides from California to Arizona. I couldn't live in those states if I wanted to. The recommendation of Clincal Ecologists is to create a safe Oasis in your own home. Fix roof leaks, dry up your basement/crawlspace, vent your bathroom, CLEAN YOUR GUTTERS (I found that out the hard way). I pour vinegar down my sink drains to keep microbes from growing.
Mold people (what I call those who live or work in a high mold count like I used to) are everywhere. I have to remember, I encountered them in the southwest too. Isn't that bizarre? But all too true. The West -- swamp coolers, wanton chemical use, and black mold. Took one of the worst hits ever in Flagstaff,AZ and Tuscon is so full of mold, Pima County now has outdoor monitoring stations for it!
I have concluded what I must do is -- HEAL. Stay out of mold, keep my distance from mold people. Is kinda hard to do and still be in the world. I have given up visiting people I care about as they live in mold. I cannot stay with those closest to me because of mold growth in their homes or residue from previous places they've lived, etc. Can you say, Share is super sensitive to the damn stuff?
I hate mold. And what I call the little monsters, yeast overgrowth in my body.
Am open to better and better ways to accomplish quality of life. And to exercising outside as much as possible. Really helps me feel better on all counts.
Here is what I learned from the Canary who was ALLERGIC to sulfur. I reacted to sulfur containing things like amino acids, eggs, garlic, onions, etc due to Arsenic exposure in industry. It took YEARS of finding the right supplements with the right formulas to get to a point where I could tolerate them. First, the supplements have to be free of extra crap (excipients) that you might react to. Then, you have to find the ones that get the right metabolic stage to you so that your body does not have to convert it. I had great success with a form of B1 called Allithiamine or Thiamine Tetrahydrofurfuryl Disulfide.
Do you know how many YEARS and study it took just to <discover> information on a protocol for Autistic kids that treated conditions that were identical to MCS?
But it helped. It smells like the inside of a steel belted radial tire, but it gets the sulfur where it needs to be with no intermediates. Now, I can eat garlic (couldn't for years despite all of the health gurus who say it is good for you). I gave up the Allithiamine for garlic (in keeping with the Chinese concept of food for medicine)
I want to respond to your queries and suggestions, I just need a break from my computer. A brisk walk will do me wonders. Am obviously getting mad about what has/is happening to me, need to clear myself. There is other stuff going on Mold Man. Starting over again can be an exciting adventure but it also is a giant pain in the a--! Grumble, grumble. Could be worse. I could be homeless.....
The Grumble Grumble could be the sign of an overstressed liver (from Chinese Medicine theory) because the toxins have to be processed and sent somewhere. If you can tolerate sulfur based foods it might help in that arena. Sorry this took so much time, but you have to peel back decades of lies to get back to the real problem so that you can start at the souce instead of some Red Herring.
Be well,
S-[/FONT][/FONT]
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suggi
11-14-2007, 05:35 PM
Hi S
I feel for you -- I have high levels of mold mycotoxins in my blood and no way to detox. I can not take cholestrymine and there doesn't seem to be anything else except I agree about Vit C. Since I have Chrons disease I can not tolerate too much Vit C so you see where I am. I had a mastectomy, hyperthyroidism and had to take the radioactive iodine pill to kill off the thyroid -- also severe osteoporosis. Who knows if all these illnesses besides the terrible headaches, chronic sinusitis, unexplained rashes, eczema -- is caused by the mold exposure I had for years.
It cost over $30,000 to remediate and took all the equity loan and the rest of what we had and are left with nothing. Can't even get out of this house now because of lack of funds --- the mold is gone but with the osteoporosis I need a house with a bathroom, kitchen and bedroom all on one floor. My house is a multilevel and do not have that. The doc said I could break turning over in bed so somehow I have to find a ranch or a one floor condo but aside from apartment type condos all the others are 2 floors or have a loft which is where all the heat goes. A friend got one of those and pays $500 in heat during the winter. Hubby doesn't make much and I am going to be 70 and in bad health so I can't work. Sorry to ramble but mold ruined our lives and to think when we bought the house the former owner had taken out the sump pump so we did not know about the water intrusion and we were so stupid we left the wooden partitions in that were there until we finally realized there was mold on the bottom -- 10 years later. I am the one more affected as I was down there doing wash all the time. I was not as sick when I was working. This house is probably cleaner than any other house we could buy as since the remediation I have dehumidifiers, air purifiers going and after water intrusion ( which we can not stop - coming in from underground through the chimney door and it is a free standing chimney on hollow cinder blocks so the mason could not fix it) hubby fogs with concrobium when it dries up just to make sure it stays OK even though the wooden partitions are gone. I'm just making extra sure. I have done some swab samples on my own since then and they have been coming back with no fungi detected, thank goodness.
Hope you feel better.
I feel for you -- I have high levels of mold mycotoxins in my blood and no way to detox. I can not take cholestrymine and there doesn't seem to be anything else except I agree about Vit C. Since I have Chrons disease I can not tolerate too much Vit C so you see where I am. I had a mastectomy, hyperthyroidism and had to take the radioactive iodine pill to kill off the thyroid -- also severe osteoporosis. Who knows if all these illnesses besides the terrible headaches, chronic sinusitis, unexplained rashes, eczema -- is caused by the mold exposure I had for years.
It cost over $30,000 to remediate and took all the equity loan and the rest of what we had and are left with nothing. Can't even get out of this house now because of lack of funds --- the mold is gone but with the osteoporosis I need a house with a bathroom, kitchen and bedroom all on one floor. My house is a multilevel and do not have that. The doc said I could break turning over in bed so somehow I have to find a ranch or a one floor condo but aside from apartment type condos all the others are 2 floors or have a loft which is where all the heat goes. A friend got one of those and pays $500 in heat during the winter. Hubby doesn't make much and I am going to be 70 and in bad health so I can't work. Sorry to ramble but mold ruined our lives and to think when we bought the house the former owner had taken out the sump pump so we did not know about the water intrusion and we were so stupid we left the wooden partitions in that were there until we finally realized there was mold on the bottom -- 10 years later. I am the one more affected as I was down there doing wash all the time. I was not as sick when I was working. This house is probably cleaner than any other house we could buy as since the remediation I have dehumidifiers, air purifiers going and after water intrusion ( which we can not stop - coming in from underground through the chimney door and it is a free standing chimney on hollow cinder blocks so the mason could not fix it) hubby fogs with concrobium when it dries up just to make sure it stays OK even though the wooden partitions are gone. I'm just making extra sure. I have done some swab samples on my own since then and they have been coming back with no fungi detected, thank goodness.
Hope you feel better.
moldman
11-14-2007, 07:27 PM
Hello Ladies,
The stories posted on these boards are simply heartbreaking.
I choked through a text on the Biosynthesis of Mycotoxins A Study in Secondary Metabolites and took notes. (I can't remember anything anymore although I used to be a walking encyclopedia). Like all of the material published today, it is a few hundred pages of appologetics for what they don't know. When I was done I couldn't tell if Phosphates and Tryptophan inhibited the formation of toxic alkaloids or made them worse....I did get the clear impression that whatever assaults they make on our bodies that their actions and our reactions burn up essential materials like amino acids so there is the additional problem of deficiencies after exposure. It also seemed that they provoked a Nitric Oxide effect (NO) (not the laughing gas) as a response by the body to break down the toxins. This seems to be in line with Jeffery Blands work on chemical allergy. I will try to look up the main points of how he proposed to quench the Nitric Oxide.
Suggi, when you brought up Chron's I immediately thought that a large portion of the lymph system is in the large intestine which makes me wonder if that is where you are storing the mycotoxins. There is a difficulty when detoxifying in that Phase 1 adds or subtracts an electron so that they can become ready to be attached to an amino acid Phase 2 and then excreted. If Phase 1 is happening faster than Phase 2 then toxic secondary metabolites can build up and sometimes be worse than the original thing until they get the amino acid attached onto it in the liver then sent to the kidneys to go out. My Phase 2 always lagged my phase 1 so there was a time when I couldn't even tolerate Vitamin C. (At this point I should emphasize that BUFFERED vitamin C is the important thing to have since true Ascorbic Acid can rot your teeth and will probably pull calcium from your bones to buffer it in your body). I lived on liquid amino acids (a natural form of soy sauce - not fermented wheat and soy) and took lots of free form amino acids just to get to a point where vitamin C didn't make me deathly ill.
I highly recommend the postings on the sinus washing/irrigation/lavage. Always start with sterile solution and work your way into cleaning your sinuses when you have difficulty (everything in moderation you can overdo it).
On the topic of eczema I would be grateful to anyone with eczema who reads these posts to let me know if they EVER had a bad reaction to penicillin or other antibiotic (i.e. mold toxin - Share - I told you I would keep reminding you of this until you owned the knowledge. Antibiotics are the exotoxins from molds).
The stories posted on these boards are simply heartbreaking.
I choked through a text on the Biosynthesis of Mycotoxins A Study in Secondary Metabolites and took notes. (I can't remember anything anymore although I used to be a walking encyclopedia). Like all of the material published today, it is a few hundred pages of appologetics for what they don't know. When I was done I couldn't tell if Phosphates and Tryptophan inhibited the formation of toxic alkaloids or made them worse....I did get the clear impression that whatever assaults they make on our bodies that their actions and our reactions burn up essential materials like amino acids so there is the additional problem of deficiencies after exposure. It also seemed that they provoked a Nitric Oxide effect (NO) (not the laughing gas) as a response by the body to break down the toxins. This seems to be in line with Jeffery Blands work on chemical allergy. I will try to look up the main points of how he proposed to quench the Nitric Oxide.
Suggi, when you brought up Chron's I immediately thought that a large portion of the lymph system is in the large intestine which makes me wonder if that is where you are storing the mycotoxins. There is a difficulty when detoxifying in that Phase 1 adds or subtracts an electron so that they can become ready to be attached to an amino acid Phase 2 and then excreted. If Phase 1 is happening faster than Phase 2 then toxic secondary metabolites can build up and sometimes be worse than the original thing until they get the amino acid attached onto it in the liver then sent to the kidneys to go out. My Phase 2 always lagged my phase 1 so there was a time when I couldn't even tolerate Vitamin C. (At this point I should emphasize that BUFFERED vitamin C is the important thing to have since true Ascorbic Acid can rot your teeth and will probably pull calcium from your bones to buffer it in your body). I lived on liquid amino acids (a natural form of soy sauce - not fermented wheat and soy) and took lots of free form amino acids just to get to a point where vitamin C didn't make me deathly ill.
I highly recommend the postings on the sinus washing/irrigation/lavage. Always start with sterile solution and work your way into cleaning your sinuses when you have difficulty (everything in moderation you can overdo it).
On the topic of eczema I would be grateful to anyone with eczema who reads these posts to let me know if they EVER had a bad reaction to penicillin or other antibiotic (i.e. mold toxin - Share - I told you I would keep reminding you of this until you owned the knowledge. Antibiotics are the exotoxins from molds).
sharewithme
11-14-2007, 08:23 PM
Good Evening:
moldman...suggi... my heart is with you both. I am not able to give you much in the way of advice. I do not have your knowledge or experience. What I am able to share is my willingness to "listen", my sincere wishes for your well being, my prayers for your healing.
Best way I have detoxified is plain old sweating. At one point my sweat was a weird yellowish color. I can always tell when I am detoxifying as it always smells weird, very distinctive odor especially with certain kinds of mold. It also came out in my urine, smelled super bad, was very dark in color. I believe was also from yeast die back. Caused secondary infection in bladder. At one point kidneysn hurt like hell. i just knew it was the mold coming out of me. Fortunately, that has passed. am much, much better now. suggi, hope you will be too.
I appreciate all you are sharing with me.
I am not a fast typist, never learned! All communiques take longer because of this... Hence my mentioning computer time.
Eczema went away when I got out of moldy house. mildly flared up when took hit in library recently, as did itchy ears, sinus congestion,
hay fever, itchy scalp, vaginal yeast, burping, and several other things I can't think of right now. I am allergic to penecillin, tetracycline and had a very serious reaction to one of the mycins, so don't take any of them. I HATE antibiotics and only take when truly desperate and nothing else works. If I never took again, it would be too soon!
I'm in a somewhat precarious situation with my living situation as the place I am in now, is too expensive and not good for mcs.. First time in 3 decades I have to rent. I must buy a used car, has been very difficult, very slow going. Am working on my resume, first time not self employed in 25 years. Is a whole new world out there. So many details, so much information everyone needs. All records were lost to me -- mold contamination. Is tedious and time consuming with no feeling of actually having accomplished anything. I keep plugging away at it....
Good news! Today I skipped rope!!!! First time in many years. Trying to find fun, practical, realistic ways to exercise outside. Tried to get a couple of kids to jump with me but only one would do it. I asked, "Do you know a good skipping song?" They did! Was a similar melody to the one we used when I was their age, let's see that would be app. 40 years ago. Shoot fire! I'm old enough to be that young 'uns Momma! (No kids of my own, just wasn't in the cards...) Anyway, I had fun. Laughed and laughed. Good for my soul. And my body.
Later,
S-
PS moldman, i like that power from what robs you. thanks
for sharing your reasoning. also, i replied to other string, where you asked about all the mold hits i took? i did a quote but it doesn't show up like yours did to me. i need to learn how you did that! works vey well....
moldman...suggi... my heart is with you both. I am not able to give you much in the way of advice. I do not have your knowledge or experience. What I am able to share is my willingness to "listen", my sincere wishes for your well being, my prayers for your healing.
Best way I have detoxified is plain old sweating. At one point my sweat was a weird yellowish color. I can always tell when I am detoxifying as it always smells weird, very distinctive odor especially with certain kinds of mold. It also came out in my urine, smelled super bad, was very dark in color. I believe was also from yeast die back. Caused secondary infection in bladder. At one point kidneysn hurt like hell. i just knew it was the mold coming out of me. Fortunately, that has passed. am much, much better now. suggi, hope you will be too.
I appreciate all you are sharing with me.
I am not a fast typist, never learned! All communiques take longer because of this... Hence my mentioning computer time.
Eczema went away when I got out of moldy house. mildly flared up when took hit in library recently, as did itchy ears, sinus congestion,
hay fever, itchy scalp, vaginal yeast, burping, and several other things I can't think of right now. I am allergic to penecillin, tetracycline and had a very serious reaction to one of the mycins, so don't take any of them. I HATE antibiotics and only take when truly desperate and nothing else works. If I never took again, it would be too soon!
I'm in a somewhat precarious situation with my living situation as the place I am in now, is too expensive and not good for mcs.. First time in 3 decades I have to rent. I must buy a used car, has been very difficult, very slow going. Am working on my resume, first time not self employed in 25 years. Is a whole new world out there. So many details, so much information everyone needs. All records were lost to me -- mold contamination. Is tedious and time consuming with no feeling of actually having accomplished anything. I keep plugging away at it....
Good news! Today I skipped rope!!!! First time in many years. Trying to find fun, practical, realistic ways to exercise outside. Tried to get a couple of kids to jump with me but only one would do it. I asked, "Do you know a good skipping song?" They did! Was a similar melody to the one we used when I was their age, let's see that would be app. 40 years ago. Shoot fire! I'm old enough to be that young 'uns Momma! (No kids of my own, just wasn't in the cards...) Anyway, I had fun. Laughed and laughed. Good for my soul. And my body.
Later,
S-
PS moldman, i like that power from what robs you. thanks
for sharing your reasoning. also, i replied to other string, where you asked about all the mold hits i took? i did a quote but it doesn't show up like yours did to me. i need to learn how you did that! works vey well....
moldman
11-15-2007, 12:24 AM
Share,
Thanks for the sharing.
Suggi,
Thanks for the concrobium tip. I looked it up. If I can use it (chemical allergies prevent a lot) I will.
Thanks for the sharing.
Suggi,
Thanks for the concrobium tip. I looked it up. If I can use it (chemical allergies prevent a lot) I will.
suggi
11-15-2007, 08:18 AM
moldman
No chemicals -- very non toxic -- don't need any protection to use it and it works. I am allergic to everything and antibiotics -- esp. penicillin. The high mycotoxin levels in me are penicillium, aspergillus, cladasporium, chaetomium and probably others that I could not afford to pay for testing any more -- lab did not take insurance for these tests $600 worth.
The holistic doc that did the tests (regular docs know nothing about mold) wanted to give me 2x weekly Vit C intravenously at $80 a pop (not covered by insurance). Hubby doesn't make much money and besides that -- I only have one arm to work with. Can't use the mastectomy side for blood draw, IVs, blood pressure taking, nothing so the other arm already looks like I am a druggy. I have scar tissue on my veins from all the blood tests and IVs esp. when I was in the hospital for the hyperthyroidism. I was in the midst of a thyroid storm and in the telemetry (sp) unit with all the heart patients. They were sure I was going to have a heart attack my numbers were so high.
As far as soy is concerned, I heard it was good for you but my cancer was/is estrogen receptive so I can't have soy. I just don't know what to do at this point as my WBC and lymphocytes are always low and don't know how to get them up -- docs don't know and I stopped going to the holistic doc as I can't do his treatment. My immune system is shot so I have to be careful. Holistic doc also told me with my mycotoxin levels I am at risk for liver and kidney cancer so somehow I have to detox. Any suggestions beyond cholestrymine which I can't take or extremely high doses of Vit C. Will 500 of buffered do anything??????? The cholestryjine causes brittle bones which I already have and also I am on Evista for my bones and under drug interactions it states you can not take cholestrymine if you are on Evista.....bad, bad.....so what can I do - Evista is the only drug I can take for the bones. I am allergic or can not tolerate the other drugs -- that goes for the Crohns too. Can not take the Crohns drugs because I found out I am allergic to them so I am only on Librium and Librax, culturelle ( a probiotic) and omega 3 to try to control it I was on heavy doses of prednisone in the beginning to stop the 8 hours of bleeding from the rectum and stayed on it for a year to try to heal and then became allergic to cortisones in the prednisolone family (prednisone is one). I even had patch testing done which proved it as my doc said you can't be allergic to cortisone - your body produces it.......a lot he knows. I am very allergic to 3 classes. There are 4 classes of cortisone and of course the very one I need is the one I can't take. I was using it for my eczema and it was getting worse and worse so I went for the testing and turned out it was causing the eczema to be worse since I had become allergic to it after using it for many years.
HELP.
No chemicals -- very non toxic -- don't need any protection to use it and it works. I am allergic to everything and antibiotics -- esp. penicillin. The high mycotoxin levels in me are penicillium, aspergillus, cladasporium, chaetomium and probably others that I could not afford to pay for testing any more -- lab did not take insurance for these tests $600 worth.
The holistic doc that did the tests (regular docs know nothing about mold) wanted to give me 2x weekly Vit C intravenously at $80 a pop (not covered by insurance). Hubby doesn't make much money and besides that -- I only have one arm to work with. Can't use the mastectomy side for blood draw, IVs, blood pressure taking, nothing so the other arm already looks like I am a druggy. I have scar tissue on my veins from all the blood tests and IVs esp. when I was in the hospital for the hyperthyroidism. I was in the midst of a thyroid storm and in the telemetry (sp) unit with all the heart patients. They were sure I was going to have a heart attack my numbers were so high.
As far as soy is concerned, I heard it was good for you but my cancer was/is estrogen receptive so I can't have soy. I just don't know what to do at this point as my WBC and lymphocytes are always low and don't know how to get them up -- docs don't know and I stopped going to the holistic doc as I can't do his treatment. My immune system is shot so I have to be careful. Holistic doc also told me with my mycotoxin levels I am at risk for liver and kidney cancer so somehow I have to detox. Any suggestions beyond cholestrymine which I can't take or extremely high doses of Vit C. Will 500 of buffered do anything??????? The cholestryjine causes brittle bones which I already have and also I am on Evista for my bones and under drug interactions it states you can not take cholestrymine if you are on Evista.....bad, bad.....so what can I do - Evista is the only drug I can take for the bones. I am allergic or can not tolerate the other drugs -- that goes for the Crohns too. Can not take the Crohns drugs because I found out I am allergic to them so I am only on Librium and Librax, culturelle ( a probiotic) and omega 3 to try to control it I was on heavy doses of prednisone in the beginning to stop the 8 hours of bleeding from the rectum and stayed on it for a year to try to heal and then became allergic to cortisones in the prednisolone family (prednisone is one). I even had patch testing done which proved it as my doc said you can't be allergic to cortisone - your body produces it.......a lot he knows. I am very allergic to 3 classes. There are 4 classes of cortisone and of course the very one I need is the one I can't take. I was using it for my eczema and it was getting worse and worse so I went for the testing and turned out it was causing the eczema to be worse since I had become allergic to it after using it for many years.
HELP.
moldman
11-15-2007, 11:27 AM
Suggi,
Thanks for the headsup on the spray.
I will try to see if there is any common compound in the mycotoxins you have in your blood.
Mastectomy - I'm thinking lymph-sequestered mycotoxins again.
I'm still trying to wrap my head around your thyroid condition. Lita Lee says that modern society has poisoned us with estrogens (from pesticides to plastic wrapped meat) and that will take out your thyroid among other things. That mold book said that the yellow mold found on rice is in the penicillin family and is rendered not reactive by iodine so this makes me wonder if your body didn't try to detoxify using that pathway at some time. With your thyroid out of the picture this is probably no longer an option.
500 mg is the limit for what your body can effectively use to make Glutathione. The reason people use megadoses is because you can be grossly deficient and it takes a lot to fill a glass that has a hole in it. I have only gotten good results from steady low doses. High doses of oral Vitamin C can give you diarrhea. I don't know enough about the pros and cons of IV vitamin C. The Nobel Prize winner Linus Pauling said it makes a difference but I would think it would have to be monitored closely so you don't harm the pH of the blood. Buffered vitamin C is buffered with at least a Calcium salt so that should also help with your bone health. Vitamin D is essential and current research says that it helps to build the immune system.
I know someone who calls Prednisone The Evil Pill.
Of course you can be allergic to ANYTHING.
I was waiting for you to say the next words were that you were diagnosed psychosomatic. How would they explain AUTO-Immunity if you can't be allergic to things that are your own body.
The thing that I will keep harping on until you ladies own it is: They are all chemicals.
Prednisone, Prednisolone, etc. are chemicals whether your body makes them or not.
The pathways for mycotoxin synthesis involve the same things that make steroids. Steroids are used in the human body to make hormones. Hormones = cortisone, etc.
It's easy to see how a body under attack could think that normal things are bad for it. I really don't know the first thing about any of this (I'm just trying to sort out hundreds of years of textbook lies) but when you said your eczema got worse on the cortisone it almost seems that the cortisone might have been feeding the mold in your system. I know a fellow whose skin on his fingers would peel off if he got antibiotics (mold toxins).
more later when I have time to think about it.
Thanks for the headsup on the spray.
I will try to see if there is any common compound in the mycotoxins you have in your blood.
Mastectomy - I'm thinking lymph-sequestered mycotoxins again.
I'm still trying to wrap my head around your thyroid condition. Lita Lee says that modern society has poisoned us with estrogens (from pesticides to plastic wrapped meat) and that will take out your thyroid among other things. That mold book said that the yellow mold found on rice is in the penicillin family and is rendered not reactive by iodine so this makes me wonder if your body didn't try to detoxify using that pathway at some time. With your thyroid out of the picture this is probably no longer an option.
500 mg is the limit for what your body can effectively use to make Glutathione. The reason people use megadoses is because you can be grossly deficient and it takes a lot to fill a glass that has a hole in it. I have only gotten good results from steady low doses. High doses of oral Vitamin C can give you diarrhea. I don't know enough about the pros and cons of IV vitamin C. The Nobel Prize winner Linus Pauling said it makes a difference but I would think it would have to be monitored closely so you don't harm the pH of the blood. Buffered vitamin C is buffered with at least a Calcium salt so that should also help with your bone health. Vitamin D is essential and current research says that it helps to build the immune system.
I know someone who calls Prednisone The Evil Pill.
Of course you can be allergic to ANYTHING.
I was waiting for you to say the next words were that you were diagnosed psychosomatic. How would they explain AUTO-Immunity if you can't be allergic to things that are your own body.
The thing that I will keep harping on until you ladies own it is: They are all chemicals.
Prednisone, Prednisolone, etc. are chemicals whether your body makes them or not.
The pathways for mycotoxin synthesis involve the same things that make steroids. Steroids are used in the human body to make hormones. Hormones = cortisone, etc.
It's easy to see how a body under attack could think that normal things are bad for it. I really don't know the first thing about any of this (I'm just trying to sort out hundreds of years of textbook lies) but when you said your eczema got worse on the cortisone it almost seems that the cortisone might have been feeding the mold in your system. I know a fellow whose skin on his fingers would peel off if he got antibiotics (mold toxins).
more later when I have time to think about it.
suggi
11-15-2007, 02:28 PM
Moldman -- Oh my goodness -- are you right on target -- when I was sick for months with the hyperthyroidism -- guess what THEY CALLED ME SYCHOSEMATIC (sp) and sent me to a psych dr and I refused antidepressents.........no one took blood tests including no TSH, T4, etc until my legs ballooned to elephant legs and even then it took a while -- they sent me to the cardiac dr who did an echo and said "boy you have a strong heart -- listen to those heartbeats" ......my heart was pounding, pulse was 98 and when they finally did the blood tests it was way over 100 but I am crazy and depressed. Where are their heads?
By the way, the RAI did not kill it all off. The endo can't figure it out -- I am still within normal range now and it has been 2 1/2 years. He said I should have been hypo more than a year ago .... he is just dying to get me on Synthroid but can't do it unless my numbers go down.. HA HA to him and all of them. I am disgusted with all the docs except my oncologist but you just can't get a good one any more esp a PCP. You see the NP all the time who knows squat and then she gets annoyed when I say I can't take this or that. Not my fault. You sure have to be knowledgable about meds before you pop them in your mouth.
I am allergic to sulfa also and when the legs swelled up (symptom of hypo not hyper by the way??) the ER doc gave me a script for something and when I got to the drug store the pharmacist said it had sulfa in it. Thank God she knew. Then he told her to give me Norvasc for some reason andd the next day when I saw that cardiac doc he said Norvasc can make your legs swell and took me off................................... It's the docs that will kill us. I try to take as little as I can and fend for myself.
Allergic to the flu shot (neomycin and thimerasol) so I found out they now have a preservatove free, antibiotic free flu shot. Last year after begging profusely my doc was able to get one from a pediatrician and made sure I knew how difficult it was for her. This year "she couldn't get it" Luckily I found out there are Minute Clinics in CT - I am in MA that carry it so I got one -- 2 hours down and 2 hours back. She said you have to buy a box od 10 as they have no preservative and are single dose and she did not want to do it because I was they only one who could not get the traditional. All the docs that are any good are not taking new patients so what do you do. I can't go into Boston as I am turning 70 and my car is old and not near the train.
Thanks for letting me rant and rave.....it must be the mold in my brain. The docs don't want to hear about mold. I read somewhere that some guy was told by his doc that if he mentioned the word mold again he would be dismissed from the practice. That is the feeling you get -- you don't dare ask if this or that could be related to long term mold exposure. I even saw an infectious disease doc who said unless I was coughing up blood from aspergillosis there was nothing he could do for me. If I really wanted some antifungals he would give them to me but don't bother him. Well, I am allergic to all the antifungals for women's problems including Diflucan so I figured don't bother. I can take Nystatin yet for thrush but that is not going to do anything for my mycotoxin problems.
From patch testing she found I am allergic to carba mix and balsam of peru. BofP crossreacts with herbs and spices so I am afraid to experiment with them. Now I know why I got big red welts whereever the bandaid adhesive was - carba mix.
I feel kind of hopeless.
By the way, the RAI did not kill it all off. The endo can't figure it out -- I am still within normal range now and it has been 2 1/2 years. He said I should have been hypo more than a year ago .... he is just dying to get me on Synthroid but can't do it unless my numbers go down.. HA HA to him and all of them. I am disgusted with all the docs except my oncologist but you just can't get a good one any more esp a PCP. You see the NP all the time who knows squat and then she gets annoyed when I say I can't take this or that. Not my fault. You sure have to be knowledgable about meds before you pop them in your mouth.
I am allergic to sulfa also and when the legs swelled up (symptom of hypo not hyper by the way??) the ER doc gave me a script for something and when I got to the drug store the pharmacist said it had sulfa in it. Thank God she knew. Then he told her to give me Norvasc for some reason andd the next day when I saw that cardiac doc he said Norvasc can make your legs swell and took me off................................... It's the docs that will kill us. I try to take as little as I can and fend for myself.
Allergic to the flu shot (neomycin and thimerasol) so I found out they now have a preservatove free, antibiotic free flu shot. Last year after begging profusely my doc was able to get one from a pediatrician and made sure I knew how difficult it was for her. This year "she couldn't get it" Luckily I found out there are Minute Clinics in CT - I am in MA that carry it so I got one -- 2 hours down and 2 hours back. She said you have to buy a box od 10 as they have no preservative and are single dose and she did not want to do it because I was they only one who could not get the traditional. All the docs that are any good are not taking new patients so what do you do. I can't go into Boston as I am turning 70 and my car is old and not near the train.
Thanks for letting me rant and rave.....it must be the mold in my brain. The docs don't want to hear about mold. I read somewhere that some guy was told by his doc that if he mentioned the word mold again he would be dismissed from the practice. That is the feeling you get -- you don't dare ask if this or that could be related to long term mold exposure. I even saw an infectious disease doc who said unless I was coughing up blood from aspergillosis there was nothing he could do for me. If I really wanted some antifungals he would give them to me but don't bother him. Well, I am allergic to all the antifungals for women's problems including Diflucan so I figured don't bother. I can take Nystatin yet for thrush but that is not going to do anything for my mycotoxin problems.
From patch testing she found I am allergic to carba mix and balsam of peru. BofP crossreacts with herbs and spices so I am afraid to experiment with them. Now I know why I got big red welts whereever the bandaid adhesive was - carba mix.
I feel kind of hopeless.
moldman
11-15-2007, 08:30 PM
Suggi,
If you have a chance, get a copy of Confessions of a Medical Heretic by Mendelsohn. He explains the game exquisitely.
GeezOPete - where do I start?
The things you described are some basic things that Old School Doctors would know right away. What we have now is a bunch of rich kids who were never sick a day in their lives going into doctoring with a mercenary frame of mind being taught out of textbooks based on false premises and have to pay for their education that was structured from the early 1900's to answer only to the Holy Order of Pharmaceuticals.
Old School could look at a bulbous nose and tell you that you had a heart condition. They could look at the quality of your skin and listen to the sound of your voice and tell what was going on inside. They probably got it from 5000 years of the Chinese doing it and just repackaged it as being American, but at least they were doing the right thing.
Here's what an Old Timer had to say about this kind of thing:
You had a strong heartbeat because thyroid hormones have a direct effect on the heart. It wasn't 'strong' as in 'what a healthy powerful beat you have, Grandma' (Little Red Riding Hood); but overly forceful in compensation for the imbalanced hormones. Thyroid hormones also have an effect on fluid balance (edema) and on brain chemistry (it can make you appear to be a zombie).
So, that was the first clue totally missed.
There should have been TSH, T3, T4 and Thyroid Antibody tests ALL at the same time because there are mathematical ratios that need to be calculated or the tests are half useless.
Great news that the RAI did not finish its evil plot. This should leave you with some residual function - but here is what they DON'T TELL YOU....
They tell you that the radioactive substance has a 'short half-life'. This is true. But unless you know chemistry you don't understand what that MEANS. It means that within months or weeks half of it will be gone. BUT HALF IS STILL LEFT. Then in months or weeks half of that will be gone. You may have heard the story about the frog that jumped halfway to the wall on each hop an never made it to the wall. The gist of this story is that even if you were left with one atom in your system it is still bombarding you with whatever energy level it was manufactured to.
There are three recognized causes of Cancer in Modern Medicine:
Viruses
Chemicals
Radiation
I can't help smiling when I think of how they 'treat' cancer:
Chemicals (Chemotherapy)
Radiation (Radiation therapy)
and now, they are engineering viruses to deliver Gene Therapy
Hair of the Dog that Bit You.
Since I have said it before, I will say it again: you might benefit from NAC (N-Acetyl Cysteine). It is available in healthfood stores over the counter. The trade name is Mucomyst when they use it as a liquid before they give you contrast dyes. The only downside is that some people can make kidney stones from Cysteine. I do not know of a test to find out if you are a stone maker, but that is why most are formulated with B6 to prevent this.
I realize that you said that you are allergic to sulfa. This is not uncommon. Sulfa is a short name for a chemical that is sulfur based. It is not normal to the human body like the amino acid Cysteine. Cysteine can be found in eggs and other foods. I would recommend that you consult a physician before taking sulfur based supplements since you have so many conditions. The Canary was allergic to all forms of sulfur. As I said earlier it took using the right brands of cysteine supplements and many years to get to a point where I could even eat eggs, garlic, onions, etc. I guess if you could tolerate any of the foods, that would be a good start and work your way up.
Once you are on Synthroid it DOWNREGULATES your thyroid basically throwing the switch that says, "Don't bother working on your own anymore." After a while of not working, it forgets how to work and you might not be able to kickstart that motorbike again.
If you are sensing a Sardonic tone it is because this is all known yet it repeats itself over and over again (I've heard this all before from too many other people) but the health industry just keeps going like they've never seen or heard it before. (The working definition for insanity is to do the same thing over and over again expecting different results every time).
But here's why: You're a Cash Cow. They know that if they ignore your thyroid (that is currently the major time keeper for the heart and is usually the first to go) that your adrenals will take over the job. There is just so much that adrenals can do as secondary timekeepers for the heart and still meet the other demands so they give out. Then you have a heart attack - but not to worry! They know ALL ABOUT heart attacks. They have an entire Industry built around that! There's handfuls of drugs, pacemaker implants to make you a Borg from Startrek, and other bells and whistles until you kick it and then they just yell, "NEXT!"
So, let's try to peel back the curtain on this Wizard of Oz.
I don't have a clue on what a thyroid storm is all about. It seems reasonable to think that since there is a relationship with Iodine and certain penicillin species of mold (like yellow rice mold) that it might have been a reaction to some exposure.
Has anyone ever told you WHY it happened? (My favorite medical diagnosis is: I don't know.)
The Old School Doc said that all of his patients who had Hashimoto's all had their carpets cleaned in the summer. His theory was that it was a disease transmitted by dust mites who multiplied during the high humidity of the carpet cleaning that was sustained during the summer because the carpets never really dried.
Without the WHY you will never be able to discover or correct the CAUSE.
Ever wonder why the FDA says: Only drugs can DIAGNOSE or cure a disease? They 'try' a drug and go, "Ooops, that didn't work - well, we know what it isn't."
Should I say, "Norvasc...?" (from your previous post)
Regarding Flu shots: Why do you get them?
The H and N antigen presentations on any given flu 'going around' at any time has worse odds than Vegas of ever being in the shot that you get. According to what you say your age is, you are of the next generation from the one that survived the 1900's mess that pretty much confers immunity to that entire generation. The selling features for a flu shot is that the elderly die of complications like pneumonia. So, what got them, the flu or pneumonia? Barbara Loe Fisher posts all of the pros and cons of vaccines that Dr. Mendelsohn (Confessions of a Medical Heretic) called the Holy Anointing into lifelong treatment.
Dr. Shope demonstrated the EXACT relationship between flu and its causes in the 1930's and 40's and was promptly ignored.
Rant and rave all you want. As you know, they aren't listening. As stated above they can only treat based on what they paid for in their 'education' that does not allow for thinking outside the box.
I will have to look into carba mix and balsam. Adhesive rash is a clear sign of chemical allergy.
Hulda Clark would say avoid Isopropyl (propyl, or rubbing alcohol) at ALL costs. It shows up in things like shampoo, etc. not just the stuff in the bottle.
You've got a lot going on. I hope you have good days.
If you have a chance, get a copy of Confessions of a Medical Heretic by Mendelsohn. He explains the game exquisitely.
GeezOPete - where do I start?
The things you described are some basic things that Old School Doctors would know right away. What we have now is a bunch of rich kids who were never sick a day in their lives going into doctoring with a mercenary frame of mind being taught out of textbooks based on false premises and have to pay for their education that was structured from the early 1900's to answer only to the Holy Order of Pharmaceuticals.
Old School could look at a bulbous nose and tell you that you had a heart condition. They could look at the quality of your skin and listen to the sound of your voice and tell what was going on inside. They probably got it from 5000 years of the Chinese doing it and just repackaged it as being American, but at least they were doing the right thing.
Here's what an Old Timer had to say about this kind of thing:
You had a strong heartbeat because thyroid hormones have a direct effect on the heart. It wasn't 'strong' as in 'what a healthy powerful beat you have, Grandma' (Little Red Riding Hood); but overly forceful in compensation for the imbalanced hormones. Thyroid hormones also have an effect on fluid balance (edema) and on brain chemistry (it can make you appear to be a zombie).
So, that was the first clue totally missed.
There should have been TSH, T3, T4 and Thyroid Antibody tests ALL at the same time because there are mathematical ratios that need to be calculated or the tests are half useless.
Great news that the RAI did not finish its evil plot. This should leave you with some residual function - but here is what they DON'T TELL YOU....
They tell you that the radioactive substance has a 'short half-life'. This is true. But unless you know chemistry you don't understand what that MEANS. It means that within months or weeks half of it will be gone. BUT HALF IS STILL LEFT. Then in months or weeks half of that will be gone. You may have heard the story about the frog that jumped halfway to the wall on each hop an never made it to the wall. The gist of this story is that even if you were left with one atom in your system it is still bombarding you with whatever energy level it was manufactured to.
There are three recognized causes of Cancer in Modern Medicine:
Viruses
Chemicals
Radiation
I can't help smiling when I think of how they 'treat' cancer:
Chemicals (Chemotherapy)
Radiation (Radiation therapy)
and now, they are engineering viruses to deliver Gene Therapy
Hair of the Dog that Bit You.
Since I have said it before, I will say it again: you might benefit from NAC (N-Acetyl Cysteine). It is available in healthfood stores over the counter. The trade name is Mucomyst when they use it as a liquid before they give you contrast dyes. The only downside is that some people can make kidney stones from Cysteine. I do not know of a test to find out if you are a stone maker, but that is why most are formulated with B6 to prevent this.
I realize that you said that you are allergic to sulfa. This is not uncommon. Sulfa is a short name for a chemical that is sulfur based. It is not normal to the human body like the amino acid Cysteine. Cysteine can be found in eggs and other foods. I would recommend that you consult a physician before taking sulfur based supplements since you have so many conditions. The Canary was allergic to all forms of sulfur. As I said earlier it took using the right brands of cysteine supplements and many years to get to a point where I could even eat eggs, garlic, onions, etc. I guess if you could tolerate any of the foods, that would be a good start and work your way up.
Once you are on Synthroid it DOWNREGULATES your thyroid basically throwing the switch that says, "Don't bother working on your own anymore." After a while of not working, it forgets how to work and you might not be able to kickstart that motorbike again.
If you are sensing a Sardonic tone it is because this is all known yet it repeats itself over and over again (I've heard this all before from too many other people) but the health industry just keeps going like they've never seen or heard it before. (The working definition for insanity is to do the same thing over and over again expecting different results every time).
But here's why: You're a Cash Cow. They know that if they ignore your thyroid (that is currently the major time keeper for the heart and is usually the first to go) that your adrenals will take over the job. There is just so much that adrenals can do as secondary timekeepers for the heart and still meet the other demands so they give out. Then you have a heart attack - but not to worry! They know ALL ABOUT heart attacks. They have an entire Industry built around that! There's handfuls of drugs, pacemaker implants to make you a Borg from Startrek, and other bells and whistles until you kick it and then they just yell, "NEXT!"
So, let's try to peel back the curtain on this Wizard of Oz.
I don't have a clue on what a thyroid storm is all about. It seems reasonable to think that since there is a relationship with Iodine and certain penicillin species of mold (like yellow rice mold) that it might have been a reaction to some exposure.
Has anyone ever told you WHY it happened? (My favorite medical diagnosis is: I don't know.)
The Old School Doc said that all of his patients who had Hashimoto's all had their carpets cleaned in the summer. His theory was that it was a disease transmitted by dust mites who multiplied during the high humidity of the carpet cleaning that was sustained during the summer because the carpets never really dried.
Without the WHY you will never be able to discover or correct the CAUSE.
Ever wonder why the FDA says: Only drugs can DIAGNOSE or cure a disease? They 'try' a drug and go, "Ooops, that didn't work - well, we know what it isn't."
Should I say, "Norvasc...?" (from your previous post)
Regarding Flu shots: Why do you get them?
The H and N antigen presentations on any given flu 'going around' at any time has worse odds than Vegas of ever being in the shot that you get. According to what you say your age is, you are of the next generation from the one that survived the 1900's mess that pretty much confers immunity to that entire generation. The selling features for a flu shot is that the elderly die of complications like pneumonia. So, what got them, the flu or pneumonia? Barbara Loe Fisher posts all of the pros and cons of vaccines that Dr. Mendelsohn (Confessions of a Medical Heretic) called the Holy Anointing into lifelong treatment.
Dr. Shope demonstrated the EXACT relationship between flu and its causes in the 1930's and 40's and was promptly ignored.
Rant and rave all you want. As you know, they aren't listening. As stated above they can only treat based on what they paid for in their 'education' that does not allow for thinking outside the box.
I will have to look into carba mix and balsam. Adhesive rash is a clear sign of chemical allergy.
Hulda Clark would say avoid Isopropyl (propyl, or rubbing alcohol) at ALL costs. It shows up in things like shampoo, etc. not just the stuff in the bottle.
You've got a lot going on. I hope you have good days.
suggi
11-15-2007, 11:59 PM
Wow - is there anything you don't know.......you are a wealth of information.
As to the WHY you are right - they don't know. However, I received radiation treatments 2x - as a baby because of an enlarged thymus gland when I was born and again when I was 8 to get rid of scar tissue from the first round. Then when I was about 11 the doc told my mother I would probably die by 15 and if I didn't I should never have kids. Well, to make a long story short - I was disowned at 21 because I married out of my religion and only got back together with my mother when my father died in 1990 and that's when she told me what the doc said. In the meantime I had 2 children and they are OK. I presume the doc learned that the experimental wonder drug "radiation" was not such a good idea after all and there were consequences. I have heard a lot of those kids have gotten thyroid cancer 50 and 60 years later from the radiation -- they used cobalt back then which was not measured either.
I will look into NAC. Don't know about what they give you before contrast dye as I am allergic to nuclear medicine. Broke out in terrible hives after a bone scan. I blame all my allergies and illnesses on mold exposure but too bad I can't do anything about it. I will start taking the Vit C you talked about.
In a way my parents were right about HIM - not the religion part but he turned out to be physically and emotionally abusive and finally I got up the guts to leave and take the kids out of state as he said he would kill me if I left him. I worked 2 jobs to take care of the kids and 9 years later met someone at work and am married again. Just my luck though, I went from poor in my 1st marriage to poorer in my 2nd. This one is good though -- it is nice to not be afraid of someone. I stayed with the 1st one 19 years and once he started to abuse my oldest -- that was it -- we were gone. I did not have kids until a few years into the marriage and should have had the guts to leave before although I am glad I had the kids. I never see them - one is in OK and the other one is in MA but is super busy with a job, kids, games, practices, etc., etc. and I almost never see her now that her kids don't need a babysitter anymore.
Hulda Clark rings a bell -- is she legit?
Thanks for all the info.
As to the WHY you are right - they don't know. However, I received radiation treatments 2x - as a baby because of an enlarged thymus gland when I was born and again when I was 8 to get rid of scar tissue from the first round. Then when I was about 11 the doc told my mother I would probably die by 15 and if I didn't I should never have kids. Well, to make a long story short - I was disowned at 21 because I married out of my religion and only got back together with my mother when my father died in 1990 and that's when she told me what the doc said. In the meantime I had 2 children and they are OK. I presume the doc learned that the experimental wonder drug "radiation" was not such a good idea after all and there were consequences. I have heard a lot of those kids have gotten thyroid cancer 50 and 60 years later from the radiation -- they used cobalt back then which was not measured either.
I will look into NAC. Don't know about what they give you before contrast dye as I am allergic to nuclear medicine. Broke out in terrible hives after a bone scan. I blame all my allergies and illnesses on mold exposure but too bad I can't do anything about it. I will start taking the Vit C you talked about.
In a way my parents were right about HIM - not the religion part but he turned out to be physically and emotionally abusive and finally I got up the guts to leave and take the kids out of state as he said he would kill me if I left him. I worked 2 jobs to take care of the kids and 9 years later met someone at work and am married again. Just my luck though, I went from poor in my 1st marriage to poorer in my 2nd. This one is good though -- it is nice to not be afraid of someone. I stayed with the 1st one 19 years and once he started to abuse my oldest -- that was it -- we were gone. I did not have kids until a few years into the marriage and should have had the guts to leave before although I am glad I had the kids. I never see them - one is in OK and the other one is in MA but is super busy with a job, kids, games, practices, etc., etc. and I almost never see her now that her kids don't need a babysitter anymore.
Hulda Clark rings a bell -- is she legit?
Thanks for all the info.
moldman
11-16-2007, 12:54 AM
The more I study the more I find I don't know nothin'.
What I tend to share with people are the things that I have learned from bitter experience, however, when folks get together like we do it is usually after-the-fact. What we need is PREVENTATIVE MEDICINE. I have been shown the the body is remarkably resilient so I have to work with a mind that given a chance the body can heal itself. What I find unforgiveable is the practitioners who do things like dosing an enlarged thymus - for what? The WHY is the most important thing to answer and if you read Mendelsohn he says "if you are dying, stay out of the hospital, chances are you'll get better."
There are ultrasonic bone scans and other types of x-ray scans that do not require contrast media. I have seen them done for hip/thigh that way. (My mind fades sometimes on the names)
Sorry to hear about your domestic situation, but it is a wonderful thing that your children are fine.
Whenever I come across someone's methods or claims (like Clark) I require that their work be confirmed by 3 unrelated independent sources before I declare it valid.
I had mentioned Shope earlier. His work in the 30's and 40's was true science and pretty much stifled. He wasn't the first to suggest that cancer could be caused by a virus but he did prove it clinically. I love the Gardisil commercials for cervical cancer, "Cancer can be caused by a virus? Who knew?"
You know I shout at the idiot box that Shope did in the 30's.
So what did they do with that useful information besides suppress it for 77 years?
But back to Clark. The other thing that I do is if it seems like a valid theory and I can afford to try it myself I do the program. Her work is in complete agreement with what Shope demonstrated. She has a LOT of good therapies that I use currently. Some I need hard science to demonstrate physical evidence of how it works but I have not been able to convince a collection of doctors to do simple experiments I have designed. (If it ain't their idea it isn't a good idea and if they have to spend their own money it ain't a good idea).
I had unresolveable stomach pain that I knew was from bacterial overgrowth. Regular doctors wanted me to go on antacids (which of course would have created a patient for life). It starts out with an antacid, which opens you up to more infection and the current infection to dig deeper since most stomach problems are from low stomach acid in the first place and acid is what protects you from the outside world. Then, when you get worse they move you up to H-1 blockers. Of course that makes you even worse (they tell you it is your 'disease' that is progressing) until you have to go on the Purple Pill (some Proton blocker that shuts off ALL acid production). But there is a handshake agreement with your duodenum (small intestine) that says if the pH from the stomach contents is not at a certain level THEN NONE SHALL PASS! So, then...they have to add Regulan to the drug mix to move UNDIGESTED food from the stomach to the lower intestine. Hopefully, by then you'll have developed an ulcer from the bacteria eating its way through your stomach and the acidic food punching a hole in your duodenum, but don't worry, they have a drug for that....
Depressed yet?
But the good news is that I used Clark's recipe of 2 tablespoons of whole fennel seed in 3 cups of water, brought to a hard boil then steeped for 30 minutes and drank a cup a day for a month (I also used her homemade zapping device (DO NOT USE THIS IF YOU HAVE A PACEMAKER OR INSULIN PUMP!)). And don't you know the stomach problem went away...
It can and has come back because you can get re-infected (the world is a dirty place) but you do the program again and it takes care of it. I like the taste of fennel tea. It has a long history in herbal traditions for stomach problems.
I disagree with her recipe for the tea as she suggests the use of Honey which I do not recognize as food. It is too dangerous because it can have Botulism spores in it. I won't even have it in the house.
Quite a number of her things pass the efficacy test. I have done other odd therapies for a month or more with no results but I learned from Chinese Medicine that if you don't see results in a positive direction in 10 days it probably won't work. The reason you have to do the Fennel tea for 30 days without interruption is to completely interrupt the lifecycle of the bacteria. This is a very important concept.
So, I take what works from many disciplines because EVERYONE IS DIFFERENT and what works wonders for me may not work for you or anyone else.
Another key thing I found out the hard way is that you can have a great therapy but if it is done in the wrong order it will either not work or make you feel worse. I think Lymph Massage is important but if your liver is congested - don't even think about it.
What I tend to share with people are the things that I have learned from bitter experience, however, when folks get together like we do it is usually after-the-fact. What we need is PREVENTATIVE MEDICINE. I have been shown the the body is remarkably resilient so I have to work with a mind that given a chance the body can heal itself. What I find unforgiveable is the practitioners who do things like dosing an enlarged thymus - for what? The WHY is the most important thing to answer and if you read Mendelsohn he says "if you are dying, stay out of the hospital, chances are you'll get better."
There are ultrasonic bone scans and other types of x-ray scans that do not require contrast media. I have seen them done for hip/thigh that way. (My mind fades sometimes on the names)
Sorry to hear about your domestic situation, but it is a wonderful thing that your children are fine.
Whenever I come across someone's methods or claims (like Clark) I require that their work be confirmed by 3 unrelated independent sources before I declare it valid.
I had mentioned Shope earlier. His work in the 30's and 40's was true science and pretty much stifled. He wasn't the first to suggest that cancer could be caused by a virus but he did prove it clinically. I love the Gardisil commercials for cervical cancer, "Cancer can be caused by a virus? Who knew?"
You know I shout at the idiot box that Shope did in the 30's.
So what did they do with that useful information besides suppress it for 77 years?
But back to Clark. The other thing that I do is if it seems like a valid theory and I can afford to try it myself I do the program. Her work is in complete agreement with what Shope demonstrated. She has a LOT of good therapies that I use currently. Some I need hard science to demonstrate physical evidence of how it works but I have not been able to convince a collection of doctors to do simple experiments I have designed. (If it ain't their idea it isn't a good idea and if they have to spend their own money it ain't a good idea).
I had unresolveable stomach pain that I knew was from bacterial overgrowth. Regular doctors wanted me to go on antacids (which of course would have created a patient for life). It starts out with an antacid, which opens you up to more infection and the current infection to dig deeper since most stomach problems are from low stomach acid in the first place and acid is what protects you from the outside world. Then, when you get worse they move you up to H-1 blockers. Of course that makes you even worse (they tell you it is your 'disease' that is progressing) until you have to go on the Purple Pill (some Proton blocker that shuts off ALL acid production). But there is a handshake agreement with your duodenum (small intestine) that says if the pH from the stomach contents is not at a certain level THEN NONE SHALL PASS! So, then...they have to add Regulan to the drug mix to move UNDIGESTED food from the stomach to the lower intestine. Hopefully, by then you'll have developed an ulcer from the bacteria eating its way through your stomach and the acidic food punching a hole in your duodenum, but don't worry, they have a drug for that....
Depressed yet?
But the good news is that I used Clark's recipe of 2 tablespoons of whole fennel seed in 3 cups of water, brought to a hard boil then steeped for 30 minutes and drank a cup a day for a month (I also used her homemade zapping device (DO NOT USE THIS IF YOU HAVE A PACEMAKER OR INSULIN PUMP!)). And don't you know the stomach problem went away...
It can and has come back because you can get re-infected (the world is a dirty place) but you do the program again and it takes care of it. I like the taste of fennel tea. It has a long history in herbal traditions for stomach problems.
I disagree with her recipe for the tea as she suggests the use of Honey which I do not recognize as food. It is too dangerous because it can have Botulism spores in it. I won't even have it in the house.
Quite a number of her things pass the efficacy test. I have done other odd therapies for a month or more with no results but I learned from Chinese Medicine that if you don't see results in a positive direction in 10 days it probably won't work. The reason you have to do the Fennel tea for 30 days without interruption is to completely interrupt the lifecycle of the bacteria. This is a very important concept.
So, I take what works from many disciplines because EVERYONE IS DIFFERENT and what works wonders for me may not work for you or anyone else.
Another key thing I found out the hard way is that you can have a great therapy but if it is done in the wrong order it will either not work or make you feel worse. I think Lymph Massage is important but if your liver is congested - don't even think about it.
sharewithme
11-16-2007, 01:33 AM
Good Evening:
I've just been reading all your communiques these past 2 days. several things keep jumping out at me which seem to be "normal" for people with advanced mcs/ct (multiple chem. sensitivity and chemical toxicity)- these also "run" in my family. mm (short for moldman, do you mind?) you keep mentioning heart disease, my mother had to have a pace maker this year and it is she who i know i got the genetics from for mcs. she has also had thyroid imbalance, weak immune system, skin problems, breast cancer, digestive problems, severe depression, etc, etc.
i listen to what you are struggling with suggi and i realized something important at a deeper level than ever before. i must stop this destructive process. i must make that the priority financially, again. i think i've been in a mild state of denial, wanting, needing very badly to be just a regular person again. actually own more than a outfit, own a car agin, have a computer again, you know, the bare bone basics. you see, i've sacrificed a lot these past 2 years, just about everything. i've taken avoidance about as far as a person can. i have not always done things in the best way, as i was sick and alone and at times, had what the dr's called disorganized thinking. it's been very costly to me in all respects.
i can't afford to keep making such big mistakes.
i've been wondering for a long time now why the body reacts to chemicals and mold much in the same way. I think I am starting to really get what you mean MM about it all being chemicals. makes a lot of sense actually.
i am finally really accepting that i am chemical sensitive/toxic/allergic.
i realized a while back that i needed to make changes with my diet, that i was missing something. it is quite sobering to really make the connection -- that many foods and supplements can be a constant source of exposure to toxins.
knowledge gives me the power to change what no longer works for me, to prevent further damage and to heal. this is a blessing.
i saw the environmental Dr. today, 2 weeks early. This is my first time seeing one. She thinks I was poisoned with chemicals first (touche' mm) which brought on mold allergy.
She has recommended several tests, I'm wondering if either of you are knowledgable about them.
- an expanded Comprehensive digestive stool analysis
- Organix (fasting overnight urine collection)
- Tissue Mineral Anaysis (hair)
- Profile 7 (metabolic panel)
the total for all the tests (supposedly this is the cash discount ) is $1289.-
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks
The total for all the trtmnts (pay in advance, get 20% disc.) is $928.-
the dr. i originally went to told me about a prtable dry sauna (he didn't say whether it was infared or not) for app. $600. i'm pretty sure he said i could use it in the bathroom. do you have any ideas or experience? the cost of going to her for 8 weeks is $640- so buying one myself kinda makes sense as i have been reading and keep getting from personal experience that i must aid my body long term in detoxing not only what has been there all these years but also in future whenever I get exposed again.
she did tell me to add sunflower oil daily to my diet for omega 6 and to keep taking cod liver oil for omega 3. she reccomends (& sells) a line of supplemets made by Thorne and suggestd their basic detox support capsules for aminos & liver detox. she also wants me to add phosphatydal choline and niacin daily, to start out low and work up on both. i asked about zinc, she said won't know till do test and then wanted to stop. they do not charge for first visit unless you become a patient then it's $75.- for a 45 minute visit. that seemed verey weird to me, almost like penalizing me for becoming a patient! she spent about 30 minutes with me and was pretty nice. i liked her okay. she put emphasis on detoxifying liver. she thinks i am hypothyroidal -- i did not tell her but i think i am too. has worried me as i see it as a sign of toxicity. she wants tests to confirm yeast overgrowth, one of the things CDSA test does.
we also talked about whether i had the test for mycotoxins in the blood yet (not delayed mold test, i got that one). i don't think i did, i think original DR said no, it was too unreliable and quite expensive. she is requesting records and will probably want that. is that what you were talking about suggi?
any feedback?
in peace,
S-
I've just been reading all your communiques these past 2 days. several things keep jumping out at me which seem to be "normal" for people with advanced mcs/ct (multiple chem. sensitivity and chemical toxicity)- these also "run" in my family. mm (short for moldman, do you mind?) you keep mentioning heart disease, my mother had to have a pace maker this year and it is she who i know i got the genetics from for mcs. she has also had thyroid imbalance, weak immune system, skin problems, breast cancer, digestive problems, severe depression, etc, etc.
i listen to what you are struggling with suggi and i realized something important at a deeper level than ever before. i must stop this destructive process. i must make that the priority financially, again. i think i've been in a mild state of denial, wanting, needing very badly to be just a regular person again. actually own more than a outfit, own a car agin, have a computer again, you know, the bare bone basics. you see, i've sacrificed a lot these past 2 years, just about everything. i've taken avoidance about as far as a person can. i have not always done things in the best way, as i was sick and alone and at times, had what the dr's called disorganized thinking. it's been very costly to me in all respects.
i can't afford to keep making such big mistakes.
i've been wondering for a long time now why the body reacts to chemicals and mold much in the same way. I think I am starting to really get what you mean MM about it all being chemicals. makes a lot of sense actually.
i am finally really accepting that i am chemical sensitive/toxic/allergic.
i realized a while back that i needed to make changes with my diet, that i was missing something. it is quite sobering to really make the connection -- that many foods and supplements can be a constant source of exposure to toxins.
knowledge gives me the power to change what no longer works for me, to prevent further damage and to heal. this is a blessing.
i saw the environmental Dr. today, 2 weeks early. This is my first time seeing one. She thinks I was poisoned with chemicals first (touche' mm) which brought on mold allergy.
She has recommended several tests, I'm wondering if either of you are knowledgable about them.
- an expanded Comprehensive digestive stool analysis
- Organix (fasting overnight urine collection)
- Tissue Mineral Anaysis (hair)
- Profile 7 (metabolic panel)
the total for all the tests (supposedly this is the cash discount ) is $1289.-
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks
The total for all the trtmnts (pay in advance, get 20% disc.) is $928.-
the dr. i originally went to told me about a prtable dry sauna (he didn't say whether it was infared or not) for app. $600. i'm pretty sure he said i could use it in the bathroom. do you have any ideas or experience? the cost of going to her for 8 weeks is $640- so buying one myself kinda makes sense as i have been reading and keep getting from personal experience that i must aid my body long term in detoxing not only what has been there all these years but also in future whenever I get exposed again.
she did tell me to add sunflower oil daily to my diet for omega 6 and to keep taking cod liver oil for omega 3. she reccomends (& sells) a line of supplemets made by Thorne and suggestd their basic detox support capsules for aminos & liver detox. she also wants me to add phosphatydal choline and niacin daily, to start out low and work up on both. i asked about zinc, she said won't know till do test and then wanted to stop. they do not charge for first visit unless you become a patient then it's $75.- for a 45 minute visit. that seemed verey weird to me, almost like penalizing me for becoming a patient! she spent about 30 minutes with me and was pretty nice. i liked her okay. she put emphasis on detoxifying liver. she thinks i am hypothyroidal -- i did not tell her but i think i am too. has worried me as i see it as a sign of toxicity. she wants tests to confirm yeast overgrowth, one of the things CDSA test does.
we also talked about whether i had the test for mycotoxins in the blood yet (not delayed mold test, i got that one). i don't think i did, i think original DR said no, it was too unreliable and quite expensive. she is requesting records and will probably want that. is that what you were talking about suggi?
any feedback?
in peace,
S-
suggi
11-16-2007, 10:09 AM
S -
How did you find an environmental doc? I have tried and they only take patients because of exposure from companies not residential exposure. Did you run into this also and is there a different term than environmental that I should be searching for?
Also, what is all this?
"- an expanded Comprehensive digestive stool analysis
- Organix (fasting overnight urine collection)
- Tissue Mineral Anaysis (hair)
- Profile 7 (metabolic panel)
the total for all the tests (supposedly this is the cash discount ) is $1289.-
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks"
I certainly feel for you as my money is depleted also. Whatever we had saved for retirement is gone as well as that equity loan spent mostly on mold remediation and a newer car for hubby as he works 1 1/2 hours away and needs a reliable car esp. in the winter. The equity loan is $50,000 and hubby's whole department was laid off and he couldn't find a job (can't tell me there is no age discrimination). He is a bit younger than I am and kept downgrading his resume until he finally got this job which doesn't pay much but at least he is working -- of course, gas prices don't help. You just can't win, can you. I have to be thankful for what I have - I just wish I could work but I am having difficulty just keeping the housework done - remediators said to keep up with the dusting as mold spores love dust and we live on a major highway across the street from an ice cream stand in an unpaved lot so you can imagine the dirt flying over on a windy dry day. Just can't keep up anymore. Also, have to paint and fix up cosmetically if we ever want to sell the house and get a one story that I need. The big drawback is the water intrusion in the basement.
Anyway I like MM - hope Moldman likes it too.
MM - How do you know if you have a congested liver? I know the holistic doc said I was at risk for liver and kidney cancer but how would you know. My PCP doesn't do periodic liver function testing and I think there is no test for early kidney cancer. However, I am on Librium and Librax for the Crohns and I think they can affect the liver so maybe I can use that as an excuse for getting the liver testing as docs don't want to hear about mold. I am also on Prevacid and Zantac the very drugs you were talking about re the digestive tract. Also on Evista (Raloxafine) for the osteo which I can't get off of unless I get a blood clot which is a side effect of Evista. However, they now say it may have a similar effect on helping to keep the breast cancer from returning like it's sister drug Tamoxafine that they give to BC patients for 5 years. I was on nothing - just the mastectomy - no chemo, no radiation (oncologist said I couldn't have it because of what I had as a kid - it would kill my lungs), couldn't do the dye and she didn't even biopsy my lymph glands as there was a 1 millimeter clear margin - WOW 1 millimeter.....The whole breast was full - it was what is known as DCIS. All I can do is look ahead - I wonder if the cancer was caused by my mold exposure as well as the other problems.
You never see "mold exposure" on a death certificate but I'll bet anything that is the cause of at least half the deaths in the country.
Thanks both of you. It's nice to have someone to talk to. Can't burden hubby any more than I have to -- he is too tired by the time he gets home and daughter here in MA thinks I am nuts re: the mold. She has mold on her bathroom floor which is just unfinished wood and isn't worried about it. It is off her bedroom which has carpeting - ugh plus the central a/c return duct is right outside her bedroom. Am I being paranoid????? Too bad we have to go there for Thanksgiving. I come away feeling like taking my clothes off before I get in the car but what can you do. Her kids get sick, strep throat, etc. but I wonder how come they are not all sicker. They have cats and a dog also who do not appear to be sick and yet they are constantly exposed. I guess their immune systems are just better than mine. Hubby is with me most of the time but I know he won't change his clothes or take a shower after leaving there and will get into bed that night with who knows what spores on him and it makes me shudder. I can't get out of it as I haven't seen the kids for a while and I have to at least try to be a halfway good grandma.
Happy Thanksgiving
How did you find an environmental doc? I have tried and they only take patients because of exposure from companies not residential exposure. Did you run into this also and is there a different term than environmental that I should be searching for?
Also, what is all this?
"- an expanded Comprehensive digestive stool analysis
- Organix (fasting overnight urine collection)
- Tissue Mineral Anaysis (hair)
- Profile 7 (metabolic panel)
the total for all the tests (supposedly this is the cash discount ) is $1289.-
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks"
I certainly feel for you as my money is depleted also. Whatever we had saved for retirement is gone as well as that equity loan spent mostly on mold remediation and a newer car for hubby as he works 1 1/2 hours away and needs a reliable car esp. in the winter. The equity loan is $50,000 and hubby's whole department was laid off and he couldn't find a job (can't tell me there is no age discrimination). He is a bit younger than I am and kept downgrading his resume until he finally got this job which doesn't pay much but at least he is working -- of course, gas prices don't help. You just can't win, can you. I have to be thankful for what I have - I just wish I could work but I am having difficulty just keeping the housework done - remediators said to keep up with the dusting as mold spores love dust and we live on a major highway across the street from an ice cream stand in an unpaved lot so you can imagine the dirt flying over on a windy dry day. Just can't keep up anymore. Also, have to paint and fix up cosmetically if we ever want to sell the house and get a one story that I need. The big drawback is the water intrusion in the basement.
Anyway I like MM - hope Moldman likes it too.
MM - How do you know if you have a congested liver? I know the holistic doc said I was at risk for liver and kidney cancer but how would you know. My PCP doesn't do periodic liver function testing and I think there is no test for early kidney cancer. However, I am on Librium and Librax for the Crohns and I think they can affect the liver so maybe I can use that as an excuse for getting the liver testing as docs don't want to hear about mold. I am also on Prevacid and Zantac the very drugs you were talking about re the digestive tract. Also on Evista (Raloxafine) for the osteo which I can't get off of unless I get a blood clot which is a side effect of Evista. However, they now say it may have a similar effect on helping to keep the breast cancer from returning like it's sister drug Tamoxafine that they give to BC patients for 5 years. I was on nothing - just the mastectomy - no chemo, no radiation (oncologist said I couldn't have it because of what I had as a kid - it would kill my lungs), couldn't do the dye and she didn't even biopsy my lymph glands as there was a 1 millimeter clear margin - WOW 1 millimeter.....The whole breast was full - it was what is known as DCIS. All I can do is look ahead - I wonder if the cancer was caused by my mold exposure as well as the other problems.
You never see "mold exposure" on a death certificate but I'll bet anything that is the cause of at least half the deaths in the country.
Thanks both of you. It's nice to have someone to talk to. Can't burden hubby any more than I have to -- he is too tired by the time he gets home and daughter here in MA thinks I am nuts re: the mold. She has mold on her bathroom floor which is just unfinished wood and isn't worried about it. It is off her bedroom which has carpeting - ugh plus the central a/c return duct is right outside her bedroom. Am I being paranoid????? Too bad we have to go there for Thanksgiving. I come away feeling like taking my clothes off before I get in the car but what can you do. Her kids get sick, strep throat, etc. but I wonder how come they are not all sicker. They have cats and a dog also who do not appear to be sick and yet they are constantly exposed. I guess their immune systems are just better than mine. Hubby is with me most of the time but I know he won't change his clothes or take a shower after leaving there and will get into bed that night with who knows what spores on him and it makes me shudder. I can't get out of it as I haven't seen the kids for a while and I have to at least try to be a halfway good grandma.
Happy Thanksgiving
moldman
11-16-2007, 11:45 AM
Hello Ladies,
Share- I will cut and paste your post at the Hives Thread that I have not answered yet. I was trying to find out how to start a brand new thread with a brand new topic but I guess you have to be a 13-year-old computer whiz to figure out how to do it. We can continue our old discussion but I think both of you constitute a forum that have practically identical problems that arose from different causes so here is a good a place as any to continue this thread.
I don't mind MM. I think someone called me Moldy once and I couldn't stop laughing.
I will try to reply at length as you have so much going on.
It may help soothe your troubled minds when I explain why I think the world is in denial about what is obviously a global mold problem (of course my take on things is dark and sardonic so I don't know how soothing that could be - but at least it puts paid to that annoying emotional extortion)
Share- I will cut and paste your post at the Hives Thread that I have not answered yet. I was trying to find out how to start a brand new thread with a brand new topic but I guess you have to be a 13-year-old computer whiz to figure out how to do it. We can continue our old discussion but I think both of you constitute a forum that have practically identical problems that arose from different causes so here is a good a place as any to continue this thread.
I don't mind MM. I think someone called me Moldy once and I couldn't stop laughing.
I will try to reply at length as you have so much going on.
It may help soothe your troubled minds when I explain why I think the world is in denial about what is obviously a global mold problem (of course my take on things is dark and sardonic so I don't know how soothing that could be - but at least it puts paid to that annoying emotional extortion)
moldman
11-16-2007, 01:20 PM
I've just been reading all your communiques these past 2 days. several things keep jumping out at me which seem to be "normal" for people with advanced mcs/ct (multiple chem. sensitivity and chemical toxicity)- these also "run" in my family. mm (short for moldman, do you mind?) you keep mentioning heart disease, my mother had to have a pace maker this year and it is she who i know i got the genetics from for mcs. she has also had thyroid imbalance, weak immune system, skin problems, breast cancer, digestive problems, severe depression, etc, etc.
There are two things that come from modern medicine that I rage against. 'Stress' and 'Genetic causation'. Stress is a garbage can diagnosis for what they can't or won't treat for the very reasons that I outlined demonstrating that if you ignore one subclinical presentation it can lead to a catatrophic failure of an organ that they have an entire industry built around. I'm talking about ignoring the adrenals and palliatively treating the heart. (You never hear about doctors who refuse to put in a stent unless the patient gives up the cheeseburgers). The Genetics thing is a ruse to get people off the scent that vaccines cause so much damage at the cellular and DNA level yet they are enforcing them now under penalty of jail. The Genetics blame always goes to bad breeding not the pollution of the human body. The Ancient Chinese say that you do inherit tendencies from your parents and most of these can be seen with the eye in the form of body shape. Major systems of the body come in pairs: Heart and Small Intestine, Lung and Large Intestine, Liver/Gallbladder, Stomach/Spleen, Kidneys/Bladder. If one of the pair goes bad then the other will overwork to compensate and SINCE ALL ORGANS OF THE BODY ARE CONNECTED THEY WORK IN CONCERT WITH EACH OTHER TO KEEP THE ENTIRE ORGANISM WORKING! Don't you get the feeling that specialists treat you like a car with interchageable replaceable parts? When the Water of the Kidneys is weak it could be because the Metal of the Lungs can't process the extra fluid from the Fire of the Heart. So, you could treat symptomatically or you could go to the root cause and try to harmonize that.
When I ask you endless questions I'm really looking for that early causal unit that might lead to which domino was the first to fall. I had a flash last night when Suggi said that she had an enlarged thymus as a child. The thymus is one of the largest Lymph organs in the body and it is the operation center for developing, activating, and sending out White Blood Cells to protect the body. The fact that someone 'playing' with a new toy took out her thymus that was probably swollen due to some threat that her body was processing at the time may be the triggering event in her whole cascade of problems but it still started somewhere earlier because SOMETHING HAD TO HAVE CAUSED THE THYMUS TO SWELL.
Unless you know the WHY you will never get to solving the problem. Back in the day there were a few vaccines that were required (there are over 40 now) but it only takes one to knock down the domino. Unless there was some other tissue trauma as a child (rusty nail, dog bite, bad case of the worms) that would be my first instinct. But the problem was not the Thymus. It was just doing what it was supposed to do.
Let's look at the sequela after this:
Breast cancer to my understanding is pretty much a lymphatic disease. Quite often they take out lymph nodes into the arm/underarm to 'make sure they got it all'. Makes you wonder how safe those deodorants/antiperspirants we used were when you see dermal absorbtion charts for chemicals. I wet down a handful of sea salt from the healthfood store and use that as deodorant. As I said earlier, my first impression of the Crohns was that the large intestine held most of the lymph system. So these layers of onion are all peeling back to the thymus.
But what was going on in the thymus?
You'll have to tell us. Here's the rub. Any good physician worth their weight should have gotten a detailed history looked at the facts and the patterns and treated the PERSON not the symptoms.
And don't get me started on that Depression crap. The Ancient Chinese linked certain forms of depression to the Heart Meridian. Think about it from outside the Fishbowl. If the heart is not working well then the whole body is not getting proper oxygenation. If the brain (yes the brain bone is connected to the heart bone) isn't getting what it needs it might react in a physiochemical way that could be interpreted as depression, but talking about how you feel about your mother at $100 per hour for the next 20 years won't do a thing to correct the underlying cause. If you remember my earlier posts the Thyroid is a timekeeper for the heart and if the T-1 thyroid hormone is out of whack you can get depression from lack of a hormone. (Post Partum Depression is a lot more lucrative business if you fail to replenish the mother's iodine deficiency that arose from a baby being produced by a landlocked mother taking all of her hormone and mineral stores just so it could have a good start in life) If the body is not looked at holistically then its off to the Nut Hutch for your antidepressant. You really need to read Mendelsohn. He has one page where he lists the symptoms of a psychiatric disorder. On the facing page he lists the side effects of the drug used to treat it. THEY WERE IDENTICAL.
i've sacrificed a lot these past 2 years, just about everything. i've taken avoidance about as far as a person can. i have not always done things in the best way, as i was sick and alone and at times, had what the dr's called disorganized thinking. it's been very costly to me in all respects.
Disorganized thinking. I learned a phrase from a patient advocate called Patient Blaming. If the Central Nervous system is run on electrobiochemical processes and those are interrupted by any means then that would lead to disorganized thinking and it is certainly not a defect of the owner of the brain. Some mold secondary metabolites are vasoactive amines. They will have a direct impact on the body, ergo the mind/brain.
Now for the sick and alone:
I promised this in the earlier short post.
Mold has to be denied.
There are many good reasons for this. First, no one paid for it in their 'education'. As one of you said earlier if you don't present with acute aspergillious then you might as well stay home. As I alluded to earlier, subclinical disease is touched on only briefly in medical literature as it relates to thyroid hypofunction with test values in the low/normal range. What are these ranges anyway? They are standardized measurements based on average size, weight and sex. This means that an individual who is not 'average' can well be out of range but unless a machine said so in a print out this is not so. Mold must be denied because if it were a 'medical' fact that would make it a legal fact and then there would be bankrupting lawsuits of parties liable for the mold problem. It would open up the medical profession to malpractice from ignoring the obvious. This is why mercury fillings in teeth have been denied as a health risk for 100 years even when they knew 100 years ago that a single atom of mercury is toxic. That's 100 years of lawsuits so it is best to believe that Santa is still coming this year.
Mold must be denied because genetically modified crops like what Monsanto puts out leads to the use of chemicals that lead to overgrowth of mold on plants/fields. Of course, they have a fungicide for that, but - wait for it - there are actually 'good' fungus so if you wipe them all out wholesale, then the ENTIRE ecosystem is out of balance. One thing I know for a fact is that when the good guys go away it makes the bad guys stronger.
Finally, mold must be denied because there are quite a number of antibiotics out there to fight bacteria; but there are only a few antifungals; and there are a couple antivirals and those are toxic to human cells too. So there isn't much they COULD do about it even if they wanted to.
i've been wondering for a long time now why the body reacts to chemicals and mold much in the same way. I think I am starting to really get what you mean MM about it all being chemicals. makes a lot of sense actually.
i am finally really accepting that i am chemical sensitive/toxic/allergic.
I was taught to reduce a problem to its irreducible Prime. It is easier to get your mind around that you have a problem with one class of things than an entire planet full of things. Chemical allergy is just as political as mold for all of the reasons in my diatribe above.
i realized a while back that i needed to make changes with my diet, that i was missing something. it is quite sobering to really make the connection -- that many foods and supplements can be a constant source of exposure to toxins.
knowledge gives me the power to change what no longer works for me, to prevent further damage and to heal. this is a blessing.
I hope something helps. There has been so much lying for so long that it is hard to find the fossil inside the rock. Think about food for a while:
Beef is hung in a cooler to 'age'.
They actually scrape off the green mold (used to break down the muscle tissue making it more tender) before they cut it up for the store. So, are you allergic to beef or the mold in/on the beef?
Peanuts cannot be grown without Aspergillus mold leading to Aflatoxin. (Arrowhead mills brand was listed by some government agency as having the lowest count of Aflatoxin of any brand). So, are you allergic to the peanut protein or the mycotoxin?
i saw the environmental Dr. today, 2 weeks early. This is my first time seeing one. She thinks I was poisoned with chemicals first (touche' mm) which brought on mold allergy.
She has recommended several tests, I'm wondering if either of you are knowledgable about them.
- an expanded Comprehensive digestive stool analysis
I mentioned that this is important. If they use the right lab they will actually look at it through a microscope. (Ever notice how nobody in America actually does any work anymore? Most of this stuff is automated and a machine doesn't know anymore than what it was programmed for)
- Organix (fasting overnight urine collection)
24-hour collection is always good. Don't know what it is that they will be looking for here. You will find out within a 24 hour fast (don't drink fruit juice or it will skew the test that Pfieffer suggests) if you have a bacterial overgrowth in your guts. If you feel better and don't react to the usual things after the fast you probably have an overgrowth (Mental and Elemental Nutrients, Pfeiffer)
- Tissue Mineral Anaysis (hair)
The jury is really out on this one. Hard to say if it is helpful
- Profile 7 (metabolic panel)
If nothing else it is always good to have a baseline test of blood work to track changes over time. This should cover pancreas, liver and kidney function.
the total for all the tests (supposedly this is the cash discount ) is $1289.-
Yeah. If you want to know why insurance wouldn't cover this see the reason why mold doesn't exist.
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks
The total for all the trtmnts (pay in advance, get 20% disc.) is $928.-the dr. i originally went to told me about a prtable dry sauna (he didn't say whether it was infared or not) for app. $600. i'm pretty sure he said i could use it in the bathroom. do you have any ideas or experience? the cost of going to her for 8 weeks is $640- so buying one myself kinda makes sense as i have been reading and keep getting from personal experience that i must aid my body long term in detoxing not only what has been there all these years but also in future whenever I get exposed again.
UVB is the wave of the future (no pun intended). All of the current research on vitamin D shows that it is the single most important of all of them. Of course the RDA says you should be afraid of vitamin D and sunlight (patient for life). I have been trying to understand the benefits of IR sauna (beyond the heat part). Sauna is good for getting the toxins out of the body, however, they get into the air of the sauna and you can breathe them in again unless the air is cycled or there is oxygen pumped in (Kellas, Surviving the Toxic Crisis). You also have to be monitored for electrolyte loss and the temperatures can get quite uncomfortable. The sauna detox method was supposedly developed by L. Ron Hubbard and is being studied by the CDC.
she did tell me to add sunflower oil daily to my diet for omega 6 and to keep taking cod liver oil for omega 3. she reccomends (& sells) a line of supplemets made by Thorne and suggestd their basic detox support capsules for aminos & liver detox. she also wants me to add phosphatydal choline and niacin daily, to start out low and work up on both. i asked about zinc, she said won't know till do test and then wanted to stop.
If you are taking any non-prescription stuff you should probably stop a minimum of 4 days before testing so you don't throw off the results.
Here's a curve ball on metals like Zinc. The body stores metals and vitamins in compartments. This means you can have one tissue of your body in total overload of something like zinc, while another tissue is deficient and your blood work says something different. So, even mainstream medicine says to try it for a couple weeks and if you feel different then you know it was working. (Precise science, huh?) Add in something like hair analysis and you have just thrown another compartmentalized variable into the mix.
I need to see data on the use of oils with respect to mold contamination. If seeds are pressed to make oil, how do you keep it from being contaminated? If you heat oil (to kill mold) then you affect the chemical structure of the oil. I am all for oil (I don't do fish oil) but I don't know how to do it right.
they do not charge for first visit unless you become a patient then it's $75.- for a 45 minute visit. that seemed verey weird to me, almost like penalizing me for becoming a patient! she spent about 30 minutes with me and was pretty nice. i liked her okay. she put emphasis on detoxifying liver.
I wanted to suggest to both of you to try adding small amounts of turmeric to your cooking. That is the stuff they make curry out of. It is an antioxidant that has an affinity for the liver. It should not be a problem with the things that you listed from your patch test, Suggi. The other big thing as a food would be globe artichokes.
she thinks i am hypothyroidal -- i did not tell her but i think i am too. has worried me as i see it as a sign of toxicity. she wants tests to confirm yeast overgrowth, one of the things CDSA test does.
we also talked about whether i had the test for mycotoxins in the blood yet (not delayed mold test, i got that one). i don't think i did, i think original DR said no, it was too unreliable and quite expensive. she is requesting records and will probably want that. is that what you were talking about suggi?
Regarding tests:
My Clinical Ecology doctor said you can have all the tests you can afford, however, once you get the information from them - What difference will it make for treatment?
Too bad we need degrees in pharmacy, agriculture, medicine and political science to sort this out. It seems you are on the right track.
There are two things that come from modern medicine that I rage against. 'Stress' and 'Genetic causation'. Stress is a garbage can diagnosis for what they can't or won't treat for the very reasons that I outlined demonstrating that if you ignore one subclinical presentation it can lead to a catatrophic failure of an organ that they have an entire industry built around. I'm talking about ignoring the adrenals and palliatively treating the heart. (You never hear about doctors who refuse to put in a stent unless the patient gives up the cheeseburgers). The Genetics thing is a ruse to get people off the scent that vaccines cause so much damage at the cellular and DNA level yet they are enforcing them now under penalty of jail. The Genetics blame always goes to bad breeding not the pollution of the human body. The Ancient Chinese say that you do inherit tendencies from your parents and most of these can be seen with the eye in the form of body shape. Major systems of the body come in pairs: Heart and Small Intestine, Lung and Large Intestine, Liver/Gallbladder, Stomach/Spleen, Kidneys/Bladder. If one of the pair goes bad then the other will overwork to compensate and SINCE ALL ORGANS OF THE BODY ARE CONNECTED THEY WORK IN CONCERT WITH EACH OTHER TO KEEP THE ENTIRE ORGANISM WORKING! Don't you get the feeling that specialists treat you like a car with interchageable replaceable parts? When the Water of the Kidneys is weak it could be because the Metal of the Lungs can't process the extra fluid from the Fire of the Heart. So, you could treat symptomatically or you could go to the root cause and try to harmonize that.
When I ask you endless questions I'm really looking for that early causal unit that might lead to which domino was the first to fall. I had a flash last night when Suggi said that she had an enlarged thymus as a child. The thymus is one of the largest Lymph organs in the body and it is the operation center for developing, activating, and sending out White Blood Cells to protect the body. The fact that someone 'playing' with a new toy took out her thymus that was probably swollen due to some threat that her body was processing at the time may be the triggering event in her whole cascade of problems but it still started somewhere earlier because SOMETHING HAD TO HAVE CAUSED THE THYMUS TO SWELL.
Unless you know the WHY you will never get to solving the problem. Back in the day there were a few vaccines that were required (there are over 40 now) but it only takes one to knock down the domino. Unless there was some other tissue trauma as a child (rusty nail, dog bite, bad case of the worms) that would be my first instinct. But the problem was not the Thymus. It was just doing what it was supposed to do.
Let's look at the sequela after this:
Breast cancer to my understanding is pretty much a lymphatic disease. Quite often they take out lymph nodes into the arm/underarm to 'make sure they got it all'. Makes you wonder how safe those deodorants/antiperspirants we used were when you see dermal absorbtion charts for chemicals. I wet down a handful of sea salt from the healthfood store and use that as deodorant. As I said earlier, my first impression of the Crohns was that the large intestine held most of the lymph system. So these layers of onion are all peeling back to the thymus.
But what was going on in the thymus?
You'll have to tell us. Here's the rub. Any good physician worth their weight should have gotten a detailed history looked at the facts and the patterns and treated the PERSON not the symptoms.
And don't get me started on that Depression crap. The Ancient Chinese linked certain forms of depression to the Heart Meridian. Think about it from outside the Fishbowl. If the heart is not working well then the whole body is not getting proper oxygenation. If the brain (yes the brain bone is connected to the heart bone) isn't getting what it needs it might react in a physiochemical way that could be interpreted as depression, but talking about how you feel about your mother at $100 per hour for the next 20 years won't do a thing to correct the underlying cause. If you remember my earlier posts the Thyroid is a timekeeper for the heart and if the T-1 thyroid hormone is out of whack you can get depression from lack of a hormone. (Post Partum Depression is a lot more lucrative business if you fail to replenish the mother's iodine deficiency that arose from a baby being produced by a landlocked mother taking all of her hormone and mineral stores just so it could have a good start in life) If the body is not looked at holistically then its off to the Nut Hutch for your antidepressant. You really need to read Mendelsohn. He has one page where he lists the symptoms of a psychiatric disorder. On the facing page he lists the side effects of the drug used to treat it. THEY WERE IDENTICAL.
i've sacrificed a lot these past 2 years, just about everything. i've taken avoidance about as far as a person can. i have not always done things in the best way, as i was sick and alone and at times, had what the dr's called disorganized thinking. it's been very costly to me in all respects.
Disorganized thinking. I learned a phrase from a patient advocate called Patient Blaming. If the Central Nervous system is run on electrobiochemical processes and those are interrupted by any means then that would lead to disorganized thinking and it is certainly not a defect of the owner of the brain. Some mold secondary metabolites are vasoactive amines. They will have a direct impact on the body, ergo the mind/brain.
Now for the sick and alone:
I promised this in the earlier short post.
Mold has to be denied.
There are many good reasons for this. First, no one paid for it in their 'education'. As one of you said earlier if you don't present with acute aspergillious then you might as well stay home. As I alluded to earlier, subclinical disease is touched on only briefly in medical literature as it relates to thyroid hypofunction with test values in the low/normal range. What are these ranges anyway? They are standardized measurements based on average size, weight and sex. This means that an individual who is not 'average' can well be out of range but unless a machine said so in a print out this is not so. Mold must be denied because if it were a 'medical' fact that would make it a legal fact and then there would be bankrupting lawsuits of parties liable for the mold problem. It would open up the medical profession to malpractice from ignoring the obvious. This is why mercury fillings in teeth have been denied as a health risk for 100 years even when they knew 100 years ago that a single atom of mercury is toxic. That's 100 years of lawsuits so it is best to believe that Santa is still coming this year.
Mold must be denied because genetically modified crops like what Monsanto puts out leads to the use of chemicals that lead to overgrowth of mold on plants/fields. Of course, they have a fungicide for that, but - wait for it - there are actually 'good' fungus so if you wipe them all out wholesale, then the ENTIRE ecosystem is out of balance. One thing I know for a fact is that when the good guys go away it makes the bad guys stronger.
Finally, mold must be denied because there are quite a number of antibiotics out there to fight bacteria; but there are only a few antifungals; and there are a couple antivirals and those are toxic to human cells too. So there isn't much they COULD do about it even if they wanted to.
i've been wondering for a long time now why the body reacts to chemicals and mold much in the same way. I think I am starting to really get what you mean MM about it all being chemicals. makes a lot of sense actually.
i am finally really accepting that i am chemical sensitive/toxic/allergic.
I was taught to reduce a problem to its irreducible Prime. It is easier to get your mind around that you have a problem with one class of things than an entire planet full of things. Chemical allergy is just as political as mold for all of the reasons in my diatribe above.
i realized a while back that i needed to make changes with my diet, that i was missing something. it is quite sobering to really make the connection -- that many foods and supplements can be a constant source of exposure to toxins.
knowledge gives me the power to change what no longer works for me, to prevent further damage and to heal. this is a blessing.
I hope something helps. There has been so much lying for so long that it is hard to find the fossil inside the rock. Think about food for a while:
Beef is hung in a cooler to 'age'.
They actually scrape off the green mold (used to break down the muscle tissue making it more tender) before they cut it up for the store. So, are you allergic to beef or the mold in/on the beef?
Peanuts cannot be grown without Aspergillus mold leading to Aflatoxin. (Arrowhead mills brand was listed by some government agency as having the lowest count of Aflatoxin of any brand). So, are you allergic to the peanut protein or the mycotoxin?
i saw the environmental Dr. today, 2 weeks early. This is my first time seeing one. She thinks I was poisoned with chemicals first (touche' mm) which brought on mold allergy.
She has recommended several tests, I'm wondering if either of you are knowledgable about them.
- an expanded Comprehensive digestive stool analysis
I mentioned that this is important. If they use the right lab they will actually look at it through a microscope. (Ever notice how nobody in America actually does any work anymore? Most of this stuff is automated and a machine doesn't know anymore than what it was programmed for)
- Organix (fasting overnight urine collection)
24-hour collection is always good. Don't know what it is that they will be looking for here. You will find out within a 24 hour fast (don't drink fruit juice or it will skew the test that Pfieffer suggests) if you have a bacterial overgrowth in your guts. If you feel better and don't react to the usual things after the fast you probably have an overgrowth (Mental and Elemental Nutrients, Pfeiffer)
- Tissue Mineral Anaysis (hair)
The jury is really out on this one. Hard to say if it is helpful
- Profile 7 (metabolic panel)
If nothing else it is always good to have a baseline test of blood work to track changes over time. This should cover pancreas, liver and kidney function.
the total for all the tests (supposedly this is the cash discount ) is $1289.-
Yeah. If you want to know why insurance wouldn't cover this see the reason why mold doesn't exist.
She also wants me to receive treatments of:
- UVB 1x week for 8 weeks, ea treatment is a series of 3 draws
- Infared Dry Sauna 2x week for 8 weeks
The total for all the trtmnts (pay in advance, get 20% disc.) is $928.-the dr. i originally went to told me about a prtable dry sauna (he didn't say whether it was infared or not) for app. $600. i'm pretty sure he said i could use it in the bathroom. do you have any ideas or experience? the cost of going to her for 8 weeks is $640- so buying one myself kinda makes sense as i have been reading and keep getting from personal experience that i must aid my body long term in detoxing not only what has been there all these years but also in future whenever I get exposed again.
UVB is the wave of the future (no pun intended). All of the current research on vitamin D shows that it is the single most important of all of them. Of course the RDA says you should be afraid of vitamin D and sunlight (patient for life). I have been trying to understand the benefits of IR sauna (beyond the heat part). Sauna is good for getting the toxins out of the body, however, they get into the air of the sauna and you can breathe them in again unless the air is cycled or there is oxygen pumped in (Kellas, Surviving the Toxic Crisis). You also have to be monitored for electrolyte loss and the temperatures can get quite uncomfortable. The sauna detox method was supposedly developed by L. Ron Hubbard and is being studied by the CDC.
she did tell me to add sunflower oil daily to my diet for omega 6 and to keep taking cod liver oil for omega 3. she reccomends (& sells) a line of supplemets made by Thorne and suggestd their basic detox support capsules for aminos & liver detox. she also wants me to add phosphatydal choline and niacin daily, to start out low and work up on both. i asked about zinc, she said won't know till do test and then wanted to stop.
If you are taking any non-prescription stuff you should probably stop a minimum of 4 days before testing so you don't throw off the results.
Here's a curve ball on metals like Zinc. The body stores metals and vitamins in compartments. This means you can have one tissue of your body in total overload of something like zinc, while another tissue is deficient and your blood work says something different. So, even mainstream medicine says to try it for a couple weeks and if you feel different then you know it was working. (Precise science, huh?) Add in something like hair analysis and you have just thrown another compartmentalized variable into the mix.
I need to see data on the use of oils with respect to mold contamination. If seeds are pressed to make oil, how do you keep it from being contaminated? If you heat oil (to kill mold) then you affect the chemical structure of the oil. I am all for oil (I don't do fish oil) but I don't know how to do it right.
they do not charge for first visit unless you become a patient then it's $75.- for a 45 minute visit. that seemed verey weird to me, almost like penalizing me for becoming a patient! she spent about 30 minutes with me and was pretty nice. i liked her okay. she put emphasis on detoxifying liver.
I wanted to suggest to both of you to try adding small amounts of turmeric to your cooking. That is the stuff they make curry out of. It is an antioxidant that has an affinity for the liver. It should not be a problem with the things that you listed from your patch test, Suggi. The other big thing as a food would be globe artichokes.
she thinks i am hypothyroidal -- i did not tell her but i think i am too. has worried me as i see it as a sign of toxicity. she wants tests to confirm yeast overgrowth, one of the things CDSA test does.
we also talked about whether i had the test for mycotoxins in the blood yet (not delayed mold test, i got that one). i don't think i did, i think original DR said no, it was too unreliable and quite expensive. she is requesting records and will probably want that. is that what you were talking about suggi?
Regarding tests:
My Clinical Ecology doctor said you can have all the tests you can afford, however, once you get the information from them - What difference will it make for treatment?
Too bad we need degrees in pharmacy, agriculture, medicine and political science to sort this out. It seems you are on the right track.
sharewithme
11-16-2007, 01:22 PM
MM, Thank you very much! makes me feel better to know i am not the only one sitting in front of my computer thinking, "uhhh, how the heck do i do that?" glad to hear you want to continue our other string. i'll look at it again tonight. if you make happen first, let me know. FYI, at this string, i was able to explore your other strings by clicking on your name & choosing that option. is easy to find that way. agree wholeheartedly w/ preventative care! on all levels....
suggi, my heart is with you. awful to be have to deal with cross contamination and not have support you need. i really feel for you. i just change clothes, etc.- no discussion. but of course i am alone, so that does make it easier in regards to this part of it. I guess like many things in life, it's a trade off. problem is, like your grandchildren, my nieces are who i really want to see. going to their house is not possible right now, so i have not seen them in almost 2 years. and they are 11 and 8, so time is not on my side. you see, my brother is like your daughter about mold and mcs. in addition he really harmed me in the world as he got an opportunity to tell many people in my support system (& anywhere else he could, literally) that major illness is actually craziness (do have some mental symptoms when in high mold, fortunately go away when detoxed), that he has same allergies & is not affected like me (not very accurate actually), that i am a hypochondriac for attention (how do you fake anaphylactic shock?) and that i am for sure, no doubt about it, on drugs (complete fabrication). lost MANY people to those lies. i've been in recovery for almost 23 years and am VERY successful at it & damn proud of that fact. GRRRR, super insulting. my life is about healing, not self destruction! Fortunately, all those in the know, do not doubt me one fraction so parents are behind me 100% now. this has really wounded my bothers and mine's relationship, i do not trust him AT ALL anymore. i know he needs deep emotional healing. was very cruel to our sister most of her life as well. parents say unresolved jealosy from childhood. i say,go to therapy, grow up and get over it a--h---. and then i cry. and work on healing the devestating impact of this in my life.
oh yeah, money, money, money. every body wants it, the world literally revolves round it. is terribly sad reality that there are few who are truly willing to share without financial gain, especially were health care is concerned. don't get me wrong, i've been the recipient of genuine, heartfelt generosity more than one time. i will be the first to tell you there are many good and kind people in the world. i guess i'm just a bit jaded in the health care end of things. if the Dr is willing to cut you slack, their paid staff isn't. i have had to remember that same DR. hired that person for this very reason, to make sure they don't give up too big a slice!
huh, i reread that. conflict of interst for me in a way, sounds kind of hippocritical as i am a business woman and one of the things i'm good at is analyzing costs. have been self employed a long time, understand all too well hidden costs, not to mention payroll -- a huge liability. shoot, i'm human aren't I? i still say there is room for helping those in true need. how are we as a society ever going to make it if we don't do a better job taking care of the middle/working class people? we are the ones who fall thru the cracks, are not eligible for many financial aid programs if you own a house, etc, etc never mind you owe your life on something you can't sell. at least here in GA that's true. and this doesn't even address what you've nbeen talkking about w/ ignorance/ineptitude/denial of many of the Dr's treating people in HMO's, emergency rooms, etc. and doing those same people real harm in the process. oh boy, don't even get me started. i have seriously p----d off more than one emergency room Dr. I guess you can tell, I will confront them. they don't like that very much....
makes such a difference to be sharing with you both. i don't feel quite so alone anymore.
gotta fly, just wanted to drop a quick paragraph (or two or three...) giggle.
affectionately yours,
S-
suggi, my heart is with you. awful to be have to deal with cross contamination and not have support you need. i really feel for you. i just change clothes, etc.- no discussion. but of course i am alone, so that does make it easier in regards to this part of it. I guess like many things in life, it's a trade off. problem is, like your grandchildren, my nieces are who i really want to see. going to their house is not possible right now, so i have not seen them in almost 2 years. and they are 11 and 8, so time is not on my side. you see, my brother is like your daughter about mold and mcs. in addition he really harmed me in the world as he got an opportunity to tell many people in my support system (& anywhere else he could, literally) that major illness is actually craziness (do have some mental symptoms when in high mold, fortunately go away when detoxed), that he has same allergies & is not affected like me (not very accurate actually), that i am a hypochondriac for attention (how do you fake anaphylactic shock?) and that i am for sure, no doubt about it, on drugs (complete fabrication). lost MANY people to those lies. i've been in recovery for almost 23 years and am VERY successful at it & damn proud of that fact. GRRRR, super insulting. my life is about healing, not self destruction! Fortunately, all those in the know, do not doubt me one fraction so parents are behind me 100% now. this has really wounded my bothers and mine's relationship, i do not trust him AT ALL anymore. i know he needs deep emotional healing. was very cruel to our sister most of her life as well. parents say unresolved jealosy from childhood. i say,go to therapy, grow up and get over it a--h---. and then i cry. and work on healing the devestating impact of this in my life.
oh yeah, money, money, money. every body wants it, the world literally revolves round it. is terribly sad reality that there are few who are truly willing to share without financial gain, especially were health care is concerned. don't get me wrong, i've been the recipient of genuine, heartfelt generosity more than one time. i will be the first to tell you there are many good and kind people in the world. i guess i'm just a bit jaded in the health care end of things. if the Dr is willing to cut you slack, their paid staff isn't. i have had to remember that same DR. hired that person for this very reason, to make sure they don't give up too big a slice!
huh, i reread that. conflict of interst for me in a way, sounds kind of hippocritical as i am a business woman and one of the things i'm good at is analyzing costs. have been self employed a long time, understand all too well hidden costs, not to mention payroll -- a huge liability. shoot, i'm human aren't I? i still say there is room for helping those in true need. how are we as a society ever going to make it if we don't do a better job taking care of the middle/working class people? we are the ones who fall thru the cracks, are not eligible for many financial aid programs if you own a house, etc, etc never mind you owe your life on something you can't sell. at least here in GA that's true. and this doesn't even address what you've nbeen talkking about w/ ignorance/ineptitude/denial of many of the Dr's treating people in HMO's, emergency rooms, etc. and doing those same people real harm in the process. oh boy, don't even get me started. i have seriously p----d off more than one emergency room Dr. I guess you can tell, I will confront them. they don't like that very much....
makes such a difference to be sharing with you both. i don't feel quite so alone anymore.
gotta fly, just wanted to drop a quick paragraph (or two or three...) giggle.
affectionately yours,
S-
moldman
11-16-2007, 01:36 PM
Here's an afterthought:
What's in a name?
Most of what mold people are describing could be viewed as hypersensitivity pneumonitis aka farmer's lung. Don't know if that would get you in a doctor's door any better than saying the word Mold, but at least it is in their mode of thinking.
What's in a name?
Most of what mold people are describing could be viewed as hypersensitivity pneumonitis aka farmer's lung. Don't know if that would get you in a doctor's door any better than saying the word Mold, but at least it is in their mode of thinking.
moldman
11-16-2007, 01:47 PM
Afterthought #2, Return Of The Afterthought
Share,
In my expose of the reason why mold didn't exist I stayed primarily in an industrial framework. Your last post reminded me of why mold doesn't exist at the personal and family level.
All Life is a choice. A fork in the road. A decision point.
When confronted with facts - especially lifechanging ones like the impact of mold - the recipient has to make a choice based on these facts.
To believe or disbelieve.
Disbelief is the easy head-in-the-sand way out and that ends all.
The choice to believe then creates another decision point on what to do about it. First, you will have to recognize that certain facts have been suppressed (conspiracy); then you will have to evaluate how it affects your daily life; then you will have to take positive action on how it affects other people around you.
This leads to the most dreaded four letter word in the human vocabulary: WORK
This is why it is easier to 'just ignore it - it will go away'.
I told you before, sick people are the toughest in the world because they have to put up with their own crap and everyone elses.
Share,
In my expose of the reason why mold didn't exist I stayed primarily in an industrial framework. Your last post reminded me of why mold doesn't exist at the personal and family level.
All Life is a choice. A fork in the road. A decision point.
When confronted with facts - especially lifechanging ones like the impact of mold - the recipient has to make a choice based on these facts.
To believe or disbelieve.
Disbelief is the easy head-in-the-sand way out and that ends all.
The choice to believe then creates another decision point on what to do about it. First, you will have to recognize that certain facts have been suppressed (conspiracy); then you will have to evaluate how it affects your daily life; then you will have to take positive action on how it affects other people around you.
This leads to the most dreaded four letter word in the human vocabulary: WORK
This is why it is easier to 'just ignore it - it will go away'.
I told you before, sick people are the toughest in the world because they have to put up with their own crap and everyone elses.
sharewithme
11-17-2007, 12:46 PM
Greetings:
Thanks for the heads up on way in w/ Dr's. Non obvious mold symptoms got me a 1013.
Uhh, yes I believe in working hard at my health and well being. I'm trying to establiash habits that make it more "normal". I have noticed that my attitude has a lot to do with how people respond to me. Of course when you are in close quarters or it's someone you've known a long time, it can be more difficult as people have expectations. Also, I am now in, what I call "the zone". Where I look healthy to most people and so, there is a tendency to think, get over it. Move on. People simply don't understand the types of symptoms we can have, do they? or how bad we can feel and in my case, so quickly. Before it was unbelievably obvious I was sick, most people did not doubt me. Then I was so sad all the time, all you had to do was look in my eyes to know the depth of my losses. That's why I am trying to learn best ways to say my truth, ways that are more likely to be heard. And ways to work through my frustration, anger, sorrow that empower me in any given situation.
I'm glad I'm better. I'd rather be dealing with this end of it, that's for sure.
I've found relating this to what they are already familiar with works best, like comparing to when people get bee stings who are super allergic. Point is to prevent it. Most people seem to understand this. If they are interested I explain, w/ infared could see cloud of mold spores around some people. I breathe it, which can be like the bee sting, gets into clothes and continues to make me sick. Most peopke are very sympathetic. It's the chemical sensitivity/allergy part they get weird about I've found. I'm working on best way to explain this.
To explain cross contamination/decontamination necessity, One analogy I've used is to draw comparison to use of disinfectants, masks and gloves by Dr's. A hundred years ago was not common practice, those who pioneered were thought to be quacks by other professionals! then flu epidemic and all changed. Made big difference in 1930's with TB. They were successful in stopping huge epidemic in this country by isolating, etc. What was once weird was now smart practice which saved many lives. People listen. Ask questions and are friendly to me afterwards so I would assume I am getting through. And seem genuinely concerned about my well being. Even car salesman have been sympathetic...
I look for the lessons in life. For me this part is all about standing in my power. When I do that, people respond with respect.
Of course, family members with huge unresolved emotional issues and/or are in denial are another matter. I understand that this is a serious problem for many with environmental illnesses. For me, this is an important part of our talking to each other. To remind us of our truth. I'm finding it's the long haul which is the hardest emotionally in a way. Reconciling to such a different life style, etc is just plain hard to do.
Yesterday someone I like very much, told me "don't be so serious all the time, be sure and have fun. don't think or talk about illness all the time" I had asked him to be very honest with me, to tell me his opinion. That I need honest feedback. I was reminded of someone I used to know, who had a preemie w/ Cerebal Palsy. Her whole life changd and everything she experienced in life was always related in her mind to either CP or disability isues. She became defensive, even beligerent sometimes when it was hard for others to know or see why. She lost many, many friends. Joining a group of other parents w/CP kids helped her tremendously although she has become very segregated in her intimate life. I noticed this same tendency with a couple of environmental recovery groups I've met a long the way. I'm trying to broaden out some now, stay open. So every day, am making a point to ask others about them, not talk very much about me. And to laugh. Enjoy life. Take a break!
And with that, I will sign off. Must get some work done too. Want to get out today to hike some, heard there are some trails nearby that are good.
Be well,
S-
Thanks for the heads up on way in w/ Dr's. Non obvious mold symptoms got me a 1013.
Uhh, yes I believe in working hard at my health and well being. I'm trying to establiash habits that make it more "normal". I have noticed that my attitude has a lot to do with how people respond to me. Of course when you are in close quarters or it's someone you've known a long time, it can be more difficult as people have expectations. Also, I am now in, what I call "the zone". Where I look healthy to most people and so, there is a tendency to think, get over it. Move on. People simply don't understand the types of symptoms we can have, do they? or how bad we can feel and in my case, so quickly. Before it was unbelievably obvious I was sick, most people did not doubt me. Then I was so sad all the time, all you had to do was look in my eyes to know the depth of my losses. That's why I am trying to learn best ways to say my truth, ways that are more likely to be heard. And ways to work through my frustration, anger, sorrow that empower me in any given situation.
I'm glad I'm better. I'd rather be dealing with this end of it, that's for sure.
I've found relating this to what they are already familiar with works best, like comparing to when people get bee stings who are super allergic. Point is to prevent it. Most people seem to understand this. If they are interested I explain, w/ infared could see cloud of mold spores around some people. I breathe it, which can be like the bee sting, gets into clothes and continues to make me sick. Most peopke are very sympathetic. It's the chemical sensitivity/allergy part they get weird about I've found. I'm working on best way to explain this.
To explain cross contamination/decontamination necessity, One analogy I've used is to draw comparison to use of disinfectants, masks and gloves by Dr's. A hundred years ago was not common practice, those who pioneered were thought to be quacks by other professionals! then flu epidemic and all changed. Made big difference in 1930's with TB. They were successful in stopping huge epidemic in this country by isolating, etc. What was once weird was now smart practice which saved many lives. People listen. Ask questions and are friendly to me afterwards so I would assume I am getting through. And seem genuinely concerned about my well being. Even car salesman have been sympathetic...
I look for the lessons in life. For me this part is all about standing in my power. When I do that, people respond with respect.
Of course, family members with huge unresolved emotional issues and/or are in denial are another matter. I understand that this is a serious problem for many with environmental illnesses. For me, this is an important part of our talking to each other. To remind us of our truth. I'm finding it's the long haul which is the hardest emotionally in a way. Reconciling to such a different life style, etc is just plain hard to do.
Yesterday someone I like very much, told me "don't be so serious all the time, be sure and have fun. don't think or talk about illness all the time" I had asked him to be very honest with me, to tell me his opinion. That I need honest feedback. I was reminded of someone I used to know, who had a preemie w/ Cerebal Palsy. Her whole life changd and everything she experienced in life was always related in her mind to either CP or disability isues. She became defensive, even beligerent sometimes when it was hard for others to know or see why. She lost many, many friends. Joining a group of other parents w/CP kids helped her tremendously although she has become very segregated in her intimate life. I noticed this same tendency with a couple of environmental recovery groups I've met a long the way. I'm trying to broaden out some now, stay open. So every day, am making a point to ask others about them, not talk very much about me. And to laugh. Enjoy life. Take a break!
And with that, I will sign off. Must get some work done too. Want to get out today to hike some, heard there are some trails nearby that are good.
Be well,
S-
suggi
11-17-2007, 01:14 PM
Thanks S
Thanks MM - I am going to try to find your other posts. Will get some Tumeric - if it helps me detox that would be wonderful.
Hope we all get better
Thanks MM - I am going to try to find your other posts. Will get some Tumeric - if it helps me detox that would be wonderful.
Hope we all get better
sharewithme
11-17-2007, 02:59 PM
MM:
Thank you for sharing your knowing, time and kind words of support.
I'm glad you are expressing your thoughts. No worries for my losing patience w/ "diatribe". I respect what you have to say.
I've come to recognize that you have a dry wit. Harder to tell without hearing voices, ya know? It's easy for it to turn dark dealing with all this. For me, especially in dealings with what we used to call "the establishment" (funny, haven't thought of that in years...), I get angry as there are too many whose intentions are greed induced who have serious power, influence too many outcomes. Grrrr. Always has, especially where people's health is concerned. I feel for you MM. Sounds like you are in the thick of it, hard not to be sardonic. Of course that can have it's value if properly applied. The trick is not to become bitter. Poison in the soul, from my view anyway. So I say, vent it out. Do you feel better writing about it?
I really like it that you advocate for moderation and importance that one feel better.
Haven't figured out new thread yet, got distracted last night.
I do not do vaccines. Had usual as child though. Always worried me. Haven't used anti-perspirants for years. Used salts but developed rash, I think it was yeast. Have been au natural for a couple of years now, will try again.
Just re-read my last response, didn't see this until after posted. Please be aware of something, I do not agree with many things of modern medicine. We are totally on the same page with, the why -- i.e. swollen thymus? imbalanced thyroid. I agree with school of thought (which i believe is better described as wisdom) that the body can and will heal itself. Given what it needs, much of the time the body has all the systems necessary to do this. Lymphatic being an important one.
Unfortunately poisoning requires strong measures, the body needs aid in its healing process. It is wisdom and often courage, which determines what those measures should be.
You are right about work. I ask myslef -- am I willing to do it? Like you said, I am human, there is a part of me that doesn't want to. I am committed though and so, will. It is timing which has me most concerned. I must begin "regular" work again soon. My stamina isn't what it used to be and I am concerned that I need to get in treatments now, so if any intense affects, I will be beyond the worst of it by then. I was pretty sensitive to detoxing, got pretty sick. Awful stuff came out in sweat and urine. Man made and mold chemicals.
Having said that, it is encouraging to hear if treatments/supplements are working I will "feel better in couple weeks". I had kinda forgotten that part. Needed to remember that I did it alone before, I was oveerwhelmed. And not thinking clearly. Much is better now. Already with several things, am feeling better.
I am drawn to adrenal supplement. I know, at the end, when I was in the house still, my heart was being noticeably affected -- racing and palpitations! Scared the crap out of me. Am uncertain how addition of supplements will affect tests and so, when is best to incorporate. And are all tests reliable?
Organix shows how body is absorbing vitamins and minerals for one. was talking fast so i didn't get everything. they also said, very comprehensive test to both this and CDSA. will look up organix and ask about the lab they use.
I appreciate your feedback....
Irreducible prime, yes, an important premise. Thank you for reminding me.
And yes, world is not terrible place to fear, full of toxins will kill me. Understand the why. I appreciate this very much.
Not allergic to peanut protein, am learning more all the time about the Aflatoxins present in many foods. What about soy? Intuitively liked Arrowhead better than others.
Vitamin D3/UV light makes sense to me, am having trouble with invasive part of extracting my blood to do it. You and another source I have are both strong advocates. Strong measures for poisoning? hmmm, I am taking this in. Opening to it.
Good point about sauna. Have been having serious doubts about paying so much to sweat, seems like I should continue to do that on my own. She probably won't like me picking and choosing. Already said, your exercise sweating not the same, etc. Does not like hot baths at all. I'll find way to communicate that leaves me with power of choice but not questioning her judgement. Will be tricky, she wants done in tandem, I think at same time. ?
Clinical Ecology Dr.... get all tests but what diff. make for treatment? uhh, that's the point isn't it? what the treatment should be? huh. That kinda confuses me. I must be missing somethng here, I need to think about that -- was he/she being sarcastic? would you please explain that to me? I'd appreciate it....
Car w/interchangable parts.... Good metaphor! Yes, I do.
stress and genetic causation. hmm, i'll have to think about that.
Chinese medicine keeps coming up for me. I am listening. Heart/small intestine; lungs/large intestine -- i'm hooked. those are hard for me to assume the connection, need to learn more...
Boy oh boy, could you and I talk about modern "medicine of the mind" and the total discount of 99.9% of the professionals to recognize, much less understand and treat properly, the effects of illness on the patients state of mind. Yes sir. Thank you for saying that. Many are super big time jerks about this. Have really bought into need for therapy and/or drugs to treat symptoms not cause. And patient blaming, yep, you got it. I am like a rock on this subject. Illness can cause mental symptoms (like confusion), they go away when "clean", is not an accurate reflection of person's true mental health. Have ended friendship with someone I've known 30 years over this truth -- he's a psycologist. Turns out he really buys into this crap big time. I'll be honest, even if it wasn't about me, I'd not agree with or respect this belief in him. Really opened my eyes. I see now why certain people have ended friendship swith him through the years. I found myslef saying several times, you are not my Dr., I need you to be my friend... Interestingly enough, his brother is one of my oldest and dearest friends. Has seen all, knows and respects my truth.
"Symptoms and side effects, They were identical...." Oh yeah, now that is a great truth. I told a dear friend, that if the head Dr's had their way I'd be a drug induced zombie and would still have all the original symptoms. Have heard of Mendelsohn before, not sure where. Will try to find books.
Is it mostly beef? Monsanto, mold in crops... I've been eating organic for many years. Drink distilled water now. To me it's just real food that humans have eaten for thousands of years! Is a pitiful testimony to what our world has become that we are dealing with these problems in our food/water source. I was working on growing my own and was on a pretty good well, not too much animal farming or agriculture near me. Feel real need to get back to that, am fascinated with companion planting, etc Must remind myself, all in due time.
I wish you healing and that you will always love and be loved.
S-
Thank you for sharing your knowing, time and kind words of support.
I'm glad you are expressing your thoughts. No worries for my losing patience w/ "diatribe". I respect what you have to say.
I've come to recognize that you have a dry wit. Harder to tell without hearing voices, ya know? It's easy for it to turn dark dealing with all this. For me, especially in dealings with what we used to call "the establishment" (funny, haven't thought of that in years...), I get angry as there are too many whose intentions are greed induced who have serious power, influence too many outcomes. Grrrr. Always has, especially where people's health is concerned. I feel for you MM. Sounds like you are in the thick of it, hard not to be sardonic. Of course that can have it's value if properly applied. The trick is not to become bitter. Poison in the soul, from my view anyway. So I say, vent it out. Do you feel better writing about it?
I really like it that you advocate for moderation and importance that one feel better.
Haven't figured out new thread yet, got distracted last night.
I do not do vaccines. Had usual as child though. Always worried me. Haven't used anti-perspirants for years. Used salts but developed rash, I think it was yeast. Have been au natural for a couple of years now, will try again.
Just re-read my last response, didn't see this until after posted. Please be aware of something, I do not agree with many things of modern medicine. We are totally on the same page with, the why -- i.e. swollen thymus? imbalanced thyroid. I agree with school of thought (which i believe is better described as wisdom) that the body can and will heal itself. Given what it needs, much of the time the body has all the systems necessary to do this. Lymphatic being an important one.
Unfortunately poisoning requires strong measures, the body needs aid in its healing process. It is wisdom and often courage, which determines what those measures should be.
You are right about work. I ask myslef -- am I willing to do it? Like you said, I am human, there is a part of me that doesn't want to. I am committed though and so, will. It is timing which has me most concerned. I must begin "regular" work again soon. My stamina isn't what it used to be and I am concerned that I need to get in treatments now, so if any intense affects, I will be beyond the worst of it by then. I was pretty sensitive to detoxing, got pretty sick. Awful stuff came out in sweat and urine. Man made and mold chemicals.
Having said that, it is encouraging to hear if treatments/supplements are working I will "feel better in couple weeks". I had kinda forgotten that part. Needed to remember that I did it alone before, I was oveerwhelmed. And not thinking clearly. Much is better now. Already with several things, am feeling better.
I am drawn to adrenal supplement. I know, at the end, when I was in the house still, my heart was being noticeably affected -- racing and palpitations! Scared the crap out of me. Am uncertain how addition of supplements will affect tests and so, when is best to incorporate. And are all tests reliable?
Organix shows how body is absorbing vitamins and minerals for one. was talking fast so i didn't get everything. they also said, very comprehensive test to both this and CDSA. will look up organix and ask about the lab they use.
I appreciate your feedback....
Irreducible prime, yes, an important premise. Thank you for reminding me.
And yes, world is not terrible place to fear, full of toxins will kill me. Understand the why. I appreciate this very much.
Not allergic to peanut protein, am learning more all the time about the Aflatoxins present in many foods. What about soy? Intuitively liked Arrowhead better than others.
Vitamin D3/UV light makes sense to me, am having trouble with invasive part of extracting my blood to do it. You and another source I have are both strong advocates. Strong measures for poisoning? hmmm, I am taking this in. Opening to it.
Good point about sauna. Have been having serious doubts about paying so much to sweat, seems like I should continue to do that on my own. She probably won't like me picking and choosing. Already said, your exercise sweating not the same, etc. Does not like hot baths at all. I'll find way to communicate that leaves me with power of choice but not questioning her judgement. Will be tricky, she wants done in tandem, I think at same time. ?
Clinical Ecology Dr.... get all tests but what diff. make for treatment? uhh, that's the point isn't it? what the treatment should be? huh. That kinda confuses me. I must be missing somethng here, I need to think about that -- was he/she being sarcastic? would you please explain that to me? I'd appreciate it....
Car w/interchangable parts.... Good metaphor! Yes, I do.
stress and genetic causation. hmm, i'll have to think about that.
Chinese medicine keeps coming up for me. I am listening. Heart/small intestine; lungs/large intestine -- i'm hooked. those are hard for me to assume the connection, need to learn more...
Boy oh boy, could you and I talk about modern "medicine of the mind" and the total discount of 99.9% of the professionals to recognize, much less understand and treat properly, the effects of illness on the patients state of mind. Yes sir. Thank you for saying that. Many are super big time jerks about this. Have really bought into need for therapy and/or drugs to treat symptoms not cause. And patient blaming, yep, you got it. I am like a rock on this subject. Illness can cause mental symptoms (like confusion), they go away when "clean", is not an accurate reflection of person's true mental health. Have ended friendship with someone I've known 30 years over this truth -- he's a psycologist. Turns out he really buys into this crap big time. I'll be honest, even if it wasn't about me, I'd not agree with or respect this belief in him. Really opened my eyes. I see now why certain people have ended friendship swith him through the years. I found myslef saying several times, you are not my Dr., I need you to be my friend... Interestingly enough, his brother is one of my oldest and dearest friends. Has seen all, knows and respects my truth.
"Symptoms and side effects, They were identical...." Oh yeah, now that is a great truth. I told a dear friend, that if the head Dr's had their way I'd be a drug induced zombie and would still have all the original symptoms. Have heard of Mendelsohn before, not sure where. Will try to find books.
Is it mostly beef? Monsanto, mold in crops... I've been eating organic for many years. Drink distilled water now. To me it's just real food that humans have eaten for thousands of years! Is a pitiful testimony to what our world has become that we are dealing with these problems in our food/water source. I was working on growing my own and was on a pretty good well, not too much animal farming or agriculture near me. Feel real need to get back to that, am fascinated with companion planting, etc Must remind myself, all in due time.
I wish you healing and that you will always love and be loved.
S-
moldman
11-17-2007, 07:53 PM
Ladies,
Boy did that come out wrong...
My post on saying that no one was willing to WORK had nothing to do with present company or sick people in general.
We are the miners canaries. The birds were taken into the mine and if they stopped singing the miner knew it was a dangerous situation if they dropped dead the miners knew it might be too late to get out.
What we have here is an entire society that says, "Silly canary - all you do is whine about the gas in the mine. Silly canary - get up it isn't that bad. Silly canary stop playing dead I know you're just faking it."
The point being that we are not respected and the warning that we present as being sickened by our environment is not heeded. It takes action and work to take yourself out of the mine after you see that the canary (weaker than you that you had to foresight to purposely bring in to help you) has succumb to the badness. But society says, "The gas hasn't hurt me yet. Only canaries get sick. Birds are weak." So they do nothing. They should be thanking us, government and society should be working with us because it is an indicator of Things To Come. But instead the sick are ignored, belittled or shunned because it is easier than taking action (WORKING) and making the world a better place for everyone. They live in FEAR because if we are RIGHT and the world can present this many obstacles to health then they are all at risk while whistling in the dark. Some people are more afraid of living than they are of dying. (There is some deep Zen in that statement).
Boy did that come out wrong...
My post on saying that no one was willing to WORK had nothing to do with present company or sick people in general.
We are the miners canaries. The birds were taken into the mine and if they stopped singing the miner knew it was a dangerous situation if they dropped dead the miners knew it might be too late to get out.
What we have here is an entire society that says, "Silly canary - all you do is whine about the gas in the mine. Silly canary - get up it isn't that bad. Silly canary stop playing dead I know you're just faking it."
The point being that we are not respected and the warning that we present as being sickened by our environment is not heeded. It takes action and work to take yourself out of the mine after you see that the canary (weaker than you that you had to foresight to purposely bring in to help you) has succumb to the badness. But society says, "The gas hasn't hurt me yet. Only canaries get sick. Birds are weak." So they do nothing. They should be thanking us, government and society should be working with us because it is an indicator of Things To Come. But instead the sick are ignored, belittled or shunned because it is easier than taking action (WORKING) and making the world a better place for everyone. They live in FEAR because if we are RIGHT and the world can present this many obstacles to health then they are all at risk while whistling in the dark. Some people are more afraid of living than they are of dying. (There is some deep Zen in that statement).
moldman
11-17-2007, 09:46 PM
Suggi,
The upside is that I like Turmeric and I feel low on days when I don't eat it.
Share,
What is a 1013?
I'll try to catch up but the most important thing that struck me is the use of drawing out blood for the UV treatment. Never heard of it before. First impression is: WHY?
The blood belongs in the body so why take it out and/or put it back in? The human body - cells and blood - pretty transparent to sunlight including the UV range. UV can activate cytochrome P-450 in the blood just by being outside. UV can induce melatonin production and vitamin D production in the cells just by being outside. So, I don't understand why you would have to do a draw for this kind of effect. Every time you penetrate the body you cause damage to tissue and according to the new school of thought it is only tissue damage that leads to ill health. (A physical Bite leading to rabies, large parasites burrowing into the body, insects biting, stinging, etc.)
A word of caution that even Alternative Medicine doctors come out of the same schooling as Allopathic doctors so their basic conditioning is to accept protocols developed for them without challenging what the true worth of a procedure might be.
I cite Hulda Clark sometimes because there are such practical why-didn't-I-think-of-that stuff that she writes.
Rock salt for table salt that is mined is driven over by rubber tires on machines that can leak fuel or oil and there are constant exhaust fumes in the air.
Sea salt desalinated in open ponds are subject to whatever blows across or flies over (I will let you think about seagulls for a while).
So, she says to heat your salt in a glass pan in the oven at 400 degrees for 5 minutes to kill the mold spores.
I would tend to think that any rash you get from the external application of salt may be from something other than Sodium Chloride.
It almost makes you feel like a child that you have to have someone tell you to sterilize your salt because we put so much faith in the Ad Man that something that comes in a package can't be bad for you. I learned that consumers are EXPECTED to know that they should wash alfalfa sprouts off before eating them because they are considered a raw agricultural product. How many Yuppies do you know that actually wash them off? How many people do you know who can tell you that Canavanine (a naturally occurring amino acid in alfalfa sprouts) can aggravate Lupus?
It is always a good idea to run all the things you want to try past a doctor. Adrenal glandular may be a good thing unless you have cancer that is sensitive to the components.
Regarding the effects of a therapy:
You can have a bad therapy.
You can have a good therapy.
You can have a good therapy at the wrong time.
You can have a good therapy at the right time but in the wrong order.
Lymph massage is a good therapy. If your liver is congested it is a good therapy at the wrong time. Detoxing your liver without first taking care of your kidneys is a good therapy in the wrong order.[/SIZE]
THE HERXHEIMER EFFECT IS A LIE!
You must feel bad before you get better.
Let's deconstruct this insanity.
Herxheimer was treating syphillis patients with MERCURY!
The basis for his success was that the syphillis went away.
He noted and idiots have quoted ever since that the patients initially felt worse before they got 'better' (syphillis went away).
WELL OF COURSE THEY FELT WORSE - THEY GOT MERCURY POISONING!
As a general rule, therapies should always make you feel better.
If they don't then my list of therapy effects should be consulted. I suffered at the hands of many until I got my first treatment of Traditional Chinese Medicine when I felt almost human for the first time that I can remember. I had to ask why that was, when even the Alternative practitioners in the West preached worse-before-better and the answer was that that was the way it was supposed to work - get better. TCM couldn't do anything for the mold or chemicals but then it never claimed to.
You will find it interesting that the practice of sinus washing is an Ancient Buddhist tradition.
Your heart palpatations might have been an allergic response. One of the early Clincal Ecologists (Coca?) said that if you ate something and your pulse increased you were most likely allergic to it.
Sauna dry heat has to attain certain levels (don't quote me) of 130 degrees to mobilize heavy metals and 140 degrees to get rid of fat stored organic chemicals. You need to stay at those levels for a set period of time or they won't come out. Normal exertional sweating cannot accomplish this. Pretty darn hot and unbearable at the 140 range and definitely needs a physician's supervision. (loss of electrolytes, brain cookin' and all that).
Share,
To explain what the doctor meant about the necessity of multiple tests we need to ask Suggi if the tests that she had to identify the
mold in her blood helped or directed her therapy.
Such a test may prove to be useful, but if there is a set list of therapies for a given category of illnesses (chemicals or mold) how much would the therapies change?
Doctors who don't 'believe' their patients are Priests not Scientists.
Patients who are drugged Zombies don't argue with their Masters.
Psychiatrists are the lowest wage earners of physicians so when you see increased ads on TV for psychoactive substances they are simply trying to get marketshare. If you could romanticize electroshock and insulin shock they would have a commercial for that too...
Theron Randolph had film of a patient who went 'nuts' when dosed with Beet Sugar but his Allergy/Addiction theory was suppressed at the highest levels. He also said that there is no such thing as a Placebo because if you use a sugar pill and the person is allergic to cane, corn or beets your test results will be invalid.
I'm glad you brought up water choice because I forgot to mention that there is a theory that highly chlorinated water may contribute to the heart disease epidemic in the U.S. There is no doubt that the chlorine in city tap water keeps the bowels clean of microbes so that even if you use probiotics the chlorine will affect them too.
Hope everything goes well. If you have good results let us know.
The upside is that I like Turmeric and I feel low on days when I don't eat it.
Share,
What is a 1013?
I'll try to catch up but the most important thing that struck me is the use of drawing out blood for the UV treatment. Never heard of it before. First impression is: WHY?
The blood belongs in the body so why take it out and/or put it back in? The human body - cells and blood - pretty transparent to sunlight including the UV range. UV can activate cytochrome P-450 in the blood just by being outside. UV can induce melatonin production and vitamin D production in the cells just by being outside. So, I don't understand why you would have to do a draw for this kind of effect. Every time you penetrate the body you cause damage to tissue and according to the new school of thought it is only tissue damage that leads to ill health. (A physical Bite leading to rabies, large parasites burrowing into the body, insects biting, stinging, etc.)
A word of caution that even Alternative Medicine doctors come out of the same schooling as Allopathic doctors so their basic conditioning is to accept protocols developed for them without challenging what the true worth of a procedure might be.
I cite Hulda Clark sometimes because there are such practical why-didn't-I-think-of-that stuff that she writes.
Rock salt for table salt that is mined is driven over by rubber tires on machines that can leak fuel or oil and there are constant exhaust fumes in the air.
Sea salt desalinated in open ponds are subject to whatever blows across or flies over (I will let you think about seagulls for a while).
So, she says to heat your salt in a glass pan in the oven at 400 degrees for 5 minutes to kill the mold spores.
I would tend to think that any rash you get from the external application of salt may be from something other than Sodium Chloride.
It almost makes you feel like a child that you have to have someone tell you to sterilize your salt because we put so much faith in the Ad Man that something that comes in a package can't be bad for you. I learned that consumers are EXPECTED to know that they should wash alfalfa sprouts off before eating them because they are considered a raw agricultural product. How many Yuppies do you know that actually wash them off? How many people do you know who can tell you that Canavanine (a naturally occurring amino acid in alfalfa sprouts) can aggravate Lupus?
It is always a good idea to run all the things you want to try past a doctor. Adrenal glandular may be a good thing unless you have cancer that is sensitive to the components.
Regarding the effects of a therapy:
You can have a bad therapy.
You can have a good therapy.
You can have a good therapy at the wrong time.
You can have a good therapy at the right time but in the wrong order.
Lymph massage is a good therapy. If your liver is congested it is a good therapy at the wrong time. Detoxing your liver without first taking care of your kidneys is a good therapy in the wrong order.[/SIZE]
THE HERXHEIMER EFFECT IS A LIE!
You must feel bad before you get better.
Let's deconstruct this insanity.
Herxheimer was treating syphillis patients with MERCURY!
The basis for his success was that the syphillis went away.
He noted and idiots have quoted ever since that the patients initially felt worse before they got 'better' (syphillis went away).
WELL OF COURSE THEY FELT WORSE - THEY GOT MERCURY POISONING!
As a general rule, therapies should always make you feel better.
If they don't then my list of therapy effects should be consulted. I suffered at the hands of many until I got my first treatment of Traditional Chinese Medicine when I felt almost human for the first time that I can remember. I had to ask why that was, when even the Alternative practitioners in the West preached worse-before-better and the answer was that that was the way it was supposed to work - get better. TCM couldn't do anything for the mold or chemicals but then it never claimed to.
You will find it interesting that the practice of sinus washing is an Ancient Buddhist tradition.
Your heart palpatations might have been an allergic response. One of the early Clincal Ecologists (Coca?) said that if you ate something and your pulse increased you were most likely allergic to it.
Sauna dry heat has to attain certain levels (don't quote me) of 130 degrees to mobilize heavy metals and 140 degrees to get rid of fat stored organic chemicals. You need to stay at those levels for a set period of time or they won't come out. Normal exertional sweating cannot accomplish this. Pretty darn hot and unbearable at the 140 range and definitely needs a physician's supervision. (loss of electrolytes, brain cookin' and all that).
Share,
To explain what the doctor meant about the necessity of multiple tests we need to ask Suggi if the tests that she had to identify the
mold in her blood helped or directed her therapy.
Such a test may prove to be useful, but if there is a set list of therapies for a given category of illnesses (chemicals or mold) how much would the therapies change?
Doctors who don't 'believe' their patients are Priests not Scientists.
Patients who are drugged Zombies don't argue with their Masters.
Psychiatrists are the lowest wage earners of physicians so when you see increased ads on TV for psychoactive substances they are simply trying to get marketshare. If you could romanticize electroshock and insulin shock they would have a commercial for that too...
Theron Randolph had film of a patient who went 'nuts' when dosed with Beet Sugar but his Allergy/Addiction theory was suppressed at the highest levels. He also said that there is no such thing as a Placebo because if you use a sugar pill and the person is allergic to cane, corn or beets your test results will be invalid.
I'm glad you brought up water choice because I forgot to mention that there is a theory that highly chlorinated water may contribute to the heart disease epidemic in the U.S. There is no doubt that the chlorine in city tap water keeps the bowels clean of microbes so that even if you use probiotics the chlorine will affect them too.
Hope everything goes well. If you have good results let us know.
Studiowray
11-17-2007, 11:51 PM
Good evening all.......
I just discovered this site tonight and have read back a few pages to get a jest of what everyone is going through. Moldman, Share and Suggi you 3 seem to be the ones with the most information and you all sound like you have been dealing with this for some time. As for me, I just discovered the mold in my condo (that I rent) on Sept. 17, 2007. My landlord has been an *** since then and did not remediate, instead he had construction guys come in tear out the walls and spread the toxic mold spores all over everything. I had a mold test done because I couldn't hardly breath in there and was getting headaches and pain in my hips, knees and feet. The test came back with Stachybotrys, Cladisporium, Penicillium, Aspergillius and more but those were the top ones and I probably didn't spell them right but I KNOW I feel the effects from them. And you are right, people think you are crazy and just get over it....they say just walk away, start over.....HELLO! That all takes money and of course I don't have that and even less since this all started!
The stress of this and my landlord has put work all but on hold, I finally was able to stay with my brother's family while I go through this but, it's difficult sharing my space and invading theirs as well. I have talked to SO many Lawyer's offices...it's difficult to speak to an actual lawyer and have not had one help me yet, but, I will continue this avenue. I do want to start trying to heal myself and have to try to detox without spending money on the Doctor right now........Any of your inputs on this I would appreciate.
This is life changing.....and my friends just don't understand except for maybe a couple of them........and even at that they really don't realize what I'm facing health wise, living wise, work wise , everything. I have been close to a nervous breakdown and have been in tears a few times but, I need and have to push on. I'm in a battle with my landlord about this...his lack of knowledge and concern is appalling. I have gotten the City after him because of the Codes he is breaking and one of them specifically says he can't rent that with mold there! I still need him to acknowledge the fact that he's the one that hired the people that did this to me and he needs to be responsible to pay for my things to be remediated and moved from there.
AND on top of all this I have to deal with him and the courts with the way I feel and how people treat me............this is scary and I'm glad to have a place to just let this out, even if I don't get a response back.
Today I tried to do something that would be a normal thing to do before this all started and that was to go to a craft show with a girlfriend and sure enough when I went into the artist's studio I was hit with a wall of mold that sent me flying............will I ever be able to get better? Will mold always effect me so severly? How can I get through this.........boy, I'm I depressed.
What about all my things that are still in my apartment? I have taken clothes out and washed about 30 loads so far and washed some things down with a mixture of Zepp's Mold/Mildew cleaner, but, most of my things are still there......I don't want to lose my mind but it feels that way.
Well, if you got this far thanks for being there and I will be thinking of you all and hoping and praying that we get the help and support that we deserve.
Thanks for all the info and I'm looking forward to the latest updates....Studiowray
I just discovered this site tonight and have read back a few pages to get a jest of what everyone is going through. Moldman, Share and Suggi you 3 seem to be the ones with the most information and you all sound like you have been dealing with this for some time. As for me, I just discovered the mold in my condo (that I rent) on Sept. 17, 2007. My landlord has been an *** since then and did not remediate, instead he had construction guys come in tear out the walls and spread the toxic mold spores all over everything. I had a mold test done because I couldn't hardly breath in there and was getting headaches and pain in my hips, knees and feet. The test came back with Stachybotrys, Cladisporium, Penicillium, Aspergillius and more but those were the top ones and I probably didn't spell them right but I KNOW I feel the effects from them. And you are right, people think you are crazy and just get over it....they say just walk away, start over.....HELLO! That all takes money and of course I don't have that and even less since this all started!
The stress of this and my landlord has put work all but on hold, I finally was able to stay with my brother's family while I go through this but, it's difficult sharing my space and invading theirs as well. I have talked to SO many Lawyer's offices...it's difficult to speak to an actual lawyer and have not had one help me yet, but, I will continue this avenue. I do want to start trying to heal myself and have to try to detox without spending money on the Doctor right now........Any of your inputs on this I would appreciate.
This is life changing.....and my friends just don't understand except for maybe a couple of them........and even at that they really don't realize what I'm facing health wise, living wise, work wise , everything. I have been close to a nervous breakdown and have been in tears a few times but, I need and have to push on. I'm in a battle with my landlord about this...his lack of knowledge and concern is appalling. I have gotten the City after him because of the Codes he is breaking and one of them specifically says he can't rent that with mold there! I still need him to acknowledge the fact that he's the one that hired the people that did this to me and he needs to be responsible to pay for my things to be remediated and moved from there.
AND on top of all this I have to deal with him and the courts with the way I feel and how people treat me............this is scary and I'm glad to have a place to just let this out, even if I don't get a response back.
Today I tried to do something that would be a normal thing to do before this all started and that was to go to a craft show with a girlfriend and sure enough when I went into the artist's studio I was hit with a wall of mold that sent me flying............will I ever be able to get better? Will mold always effect me so severly? How can I get through this.........boy, I'm I depressed.
What about all my things that are still in my apartment? I have taken clothes out and washed about 30 loads so far and washed some things down with a mixture of Zepp's Mold/Mildew cleaner, but, most of my things are still there......I don't want to lose my mind but it feels that way.
Well, if you got this far thanks for being there and I will be thinking of you all and hoping and praying that we get the help and support that we deserve.
Thanks for all the info and I'm looking forward to the latest updates....Studiowray
mod-anon
11-18-2007, 04:23 AM
OK, folks, I've seen several mentions on this thread that a couple of you don't know how to start a new thread. Here's the instructions:
The New Thread button is on the upper left side of the main page for each message board. You cannot find this button when you are viewing other people's questions. You have to go the main index page for the board you want to post on. This is already explained in the FAQ's. Please read the FAQ's and the Posting Policy.
The New Thread button is on the upper left side of the main page for each message board. You cannot find this button when you are viewing other people's questions. You have to go the main index page for the board you want to post on. This is already explained in the FAQ's. Please read the FAQ's and the Posting Policy.
sharewithme
11-18-2007, 12:27 PM
Welcome Studiowray,
You certainly have a more than valid complaint. I take real issue with landlords who do not disclose and/or take care of the problem properly. Good for you, that you are fighting for your rights. You are not allowing yourself to be further victimized, this takes courage and a willingness to heal. Both are super important in this whole process.
There are ways and there are ways to clean your stuff. It might benefit you to talk to a mold remediation specialist to get a better idea of what to do.
From what I was taught and from hard learned experience, it is not recommended that you keep anything with fibers, this does include clothing. I was told no mattresses, sofas, rugs, etc unless they are valuable and worth the expense of a mold remedial cleaning. Mold spore/mold LOVES fibers. It hitch hikes to find places to grow that way. To give you a sobering example, transplanted mold spores and consequently mold, have become a real problem in desert areas like the US Southwest. That's why their commercial HVAC systems liberally use fungicides in the evaporative water cooling end of things. Otherwise they have mold growing in their systems. They also now have mold in their environment (outside!) which is not indigenous. And all because it traveled there with people bringing their contaminated belongings.
It also feeds on paper, cardboard,etc. I have salvaged some of my records by having them faxed to me. Otherwise I've had to go back to original source and try to recreate. IT's very time consuming but necessary. The quicker you do it, the easier it is to get what you need.
You are not crazy or paranoid. What you are experiencing is just awful and can have life long consequences. Not only do you have to deal with all the very serious health concerns but on top of it to be displaced is quite simply, a terrible life experience. My heart is with you.
Knowledge is everything. You simply can't learn enough. The types of toxic molds you are dealing with are super bad ****.
Trust yourself, your inner knowing. If you go somewhere and don't feel well and want to leave, trust it. Trust your symptoms. Your awareness of your symptoms can save you from further harm. A way to think about it is this: these immediate symptoms are like pain, a warning from your body that something is terribly wrong. Your body is telling you, STOP. Don't do that anymore. I've been told by several Dr's and I believe it's true, that you can become damaged by further exposure. There are simply too many people with chronic illnesses which prove this to be true.
Having said that, I also believe in the healing abilities of the body. Take heart. You have had the courage to act and to reach out for help.
You will heal. You already are by leaving the apartment.
In my experiences, my intuition/instincts have also aided me greatly. It is almost uncanny at times how accurate it has been. I am learning (has been life long actually) not to intellectualize this process too much. How to be truly in the moment with it and not discount what I'm getting by rationalizing it away.
As big a pain as it is to be camping out with relatives, it is worse to be alone. At least during this initial stage of recovering from toxic mold contamination, you have a safe place to go with people who love you. There is a blessing in this.
Sincerely,
Share
You certainly have a more than valid complaint. I take real issue with landlords who do not disclose and/or take care of the problem properly. Good for you, that you are fighting for your rights. You are not allowing yourself to be further victimized, this takes courage and a willingness to heal. Both are super important in this whole process.
There are ways and there are ways to clean your stuff. It might benefit you to talk to a mold remediation specialist to get a better idea of what to do.
From what I was taught and from hard learned experience, it is not recommended that you keep anything with fibers, this does include clothing. I was told no mattresses, sofas, rugs, etc unless they are valuable and worth the expense of a mold remedial cleaning. Mold spore/mold LOVES fibers. It hitch hikes to find places to grow that way. To give you a sobering example, transplanted mold spores and consequently mold, have become a real problem in desert areas like the US Southwest. That's why their commercial HVAC systems liberally use fungicides in the evaporative water cooling end of things. Otherwise they have mold growing in their systems. They also now have mold in their environment (outside!) which is not indigenous. And all because it traveled there with people bringing their contaminated belongings.
It also feeds on paper, cardboard,etc. I have salvaged some of my records by having them faxed to me. Otherwise I've had to go back to original source and try to recreate. IT's very time consuming but necessary. The quicker you do it, the easier it is to get what you need.
You are not crazy or paranoid. What you are experiencing is just awful and can have life long consequences. Not only do you have to deal with all the very serious health concerns but on top of it to be displaced is quite simply, a terrible life experience. My heart is with you.
Knowledge is everything. You simply can't learn enough. The types of toxic molds you are dealing with are super bad ****.
Trust yourself, your inner knowing. If you go somewhere and don't feel well and want to leave, trust it. Trust your symptoms. Your awareness of your symptoms can save you from further harm. A way to think about it is this: these immediate symptoms are like pain, a warning from your body that something is terribly wrong. Your body is telling you, STOP. Don't do that anymore. I've been told by several Dr's and I believe it's true, that you can become damaged by further exposure. There are simply too many people with chronic illnesses which prove this to be true.
Having said that, I also believe in the healing abilities of the body. Take heart. You have had the courage to act and to reach out for help.
You will heal. You already are by leaving the apartment.
In my experiences, my intuition/instincts have also aided me greatly. It is almost uncanny at times how accurate it has been. I am learning (has been life long actually) not to intellectualize this process too much. How to be truly in the moment with it and not discount what I'm getting by rationalizing it away.
As big a pain as it is to be camping out with relatives, it is worse to be alone. At least during this initial stage of recovering from toxic mold contamination, you have a safe place to go with people who love you. There is a blessing in this.
Sincerely,
Share
Studiowray
11-18-2007, 12:48 PM
Thank you Share for your heartfelt sympathy and incouragement......I'm doing the best I can in this trying time........Studio
sharewithme
11-18-2007, 01:17 PM
Hi!
Suggi: I hope this finds you feeling better today. I've been thinking about you a lot. You really have had an awfully hard time of it. I feel for you. I am praying for your healing, that your house will sell quickly and that you will find a very affordable single story right away.
I appreciate you sharing your story, your struggles, your pain. It has helped me immensely.
And for starting this thread. I have been doing so much "talking", it's feels like its all me, me, me. I know, that's an important part of what this is for. But, I'm not really stopping in the moment and connecting with the other person about what is going on with them. This is out of balance in my life.
I lost someone I really love over it sometime back. They have their own serious struggles and really don't need to be burdened with my troubles as well. I realize also that I was in a "role" with that person I could no longer be. They got really mad at me! To this day, they do not understand why I haven't gone back to my house. That has been the biggee for many people. Labeled me as super paranoid.
My Dr. told me I was so "hot" with allergy I wouldn't wake up if I went back home. Since I almost died, I believed him. Early on, using GSE, doing item by item remediation was not successful for me. Lends weight to advice to just let it all go. I'm at a turning point right now with possessions. Thinking, now that I'm not so hot and since others are able to do it, maybe I can salvage some hard surface items. I recently read about the combined use of UV light and hydrogen peroxide to clean hard surface items only. Do you have any experience with these? I know you like concrobrium and have had no adverse affects from it. I'm not familiar with that product -- need to learn more. I'm thinking anyway of using UV light for treatments for my body. I know sunlight has helped me and this gives me an intensive way to get what nature would otherwise provide. With moderation of course. The deal with the environmental Dr. (was referred to her by my allergist, also got referral from a web sight I use) is to treat my blood with this same type of light. Makes me nervous to have my blood drawn and recirculated. Do you know anything about that? I talked to someone yesterday who takes D3 internally. I need to
understand all this better, re-read some of what I've already been told, research further. That reminds me, what tests did your Dr do on you for mold toxicity?
Time is a super precious commodity these days.
Today, I pluck up the courage to start looking for a car again. I'm trying very hard to go with the flow, change course as necessary. Kinda hard to let go of expectations sometimes, ya know?
Thanksgiving --I'm glad you are going to see your grandchildren. Is good for you and them! I'll pray for you that you have minimum exposure and a day full of much love and laughter.
I had a good surprise in that regards. My parents decided to meet as a family in a neutral place for holiday meal and my brother wants to join us. I will focus on healthy boundaries, staying detached with him and relaxing with my parents. I'll call several friends and then take time to go for a hike at a trail not too far from here. Maybe even see a movie that evening. Do things to make it a real holiday for me.
Gotta fly. Be well,
Share
Suggi: I hope this finds you feeling better today. I've been thinking about you a lot. You really have had an awfully hard time of it. I feel for you. I am praying for your healing, that your house will sell quickly and that you will find a very affordable single story right away.
I appreciate you sharing your story, your struggles, your pain. It has helped me immensely.
And for starting this thread. I have been doing so much "talking", it's feels like its all me, me, me. I know, that's an important part of what this is for. But, I'm not really stopping in the moment and connecting with the other person about what is going on with them. This is out of balance in my life.
I lost someone I really love over it sometime back. They have their own serious struggles and really don't need to be burdened with my troubles as well. I realize also that I was in a "role" with that person I could no longer be. They got really mad at me! To this day, they do not understand why I haven't gone back to my house. That has been the biggee for many people. Labeled me as super paranoid.
My Dr. told me I was so "hot" with allergy I wouldn't wake up if I went back home. Since I almost died, I believed him. Early on, using GSE, doing item by item remediation was not successful for me. Lends weight to advice to just let it all go. I'm at a turning point right now with possessions. Thinking, now that I'm not so hot and since others are able to do it, maybe I can salvage some hard surface items. I recently read about the combined use of UV light and hydrogen peroxide to clean hard surface items only. Do you have any experience with these? I know you like concrobrium and have had no adverse affects from it. I'm not familiar with that product -- need to learn more. I'm thinking anyway of using UV light for treatments for my body. I know sunlight has helped me and this gives me an intensive way to get what nature would otherwise provide. With moderation of course. The deal with the environmental Dr. (was referred to her by my allergist, also got referral from a web sight I use) is to treat my blood with this same type of light. Makes me nervous to have my blood drawn and recirculated. Do you know anything about that? I talked to someone yesterday who takes D3 internally. I need to
understand all this better, re-read some of what I've already been told, research further. That reminds me, what tests did your Dr do on you for mold toxicity?
Time is a super precious commodity these days.
Today, I pluck up the courage to start looking for a car again. I'm trying very hard to go with the flow, change course as necessary. Kinda hard to let go of expectations sometimes, ya know?
Thanksgiving --I'm glad you are going to see your grandchildren. Is good for you and them! I'll pray for you that you have minimum exposure and a day full of much love and laughter.
I had a good surprise in that regards. My parents decided to meet as a family in a neutral place for holiday meal and my brother wants to join us. I will focus on healthy boundaries, staying detached with him and relaxing with my parents. I'll call several friends and then take time to go for a hike at a trail not too far from here. Maybe even see a movie that evening. Do things to make it a real holiday for me.
Gotta fly. Be well,
Share
suggi
11-18-2007, 01:48 PM
Hey Share -
The tests done were for the mold mycotoxins to the 4 highest level molds in the house - didn't do more because of the expense. It was sent to Immunosciences Lab but I have since learned from someone on another board that the lab no longer tests for mold mycotoxins. I guess there were not enough docs testing for it. I did some research and this seemed to be the only lab that did this anywhere in the country.
As far as understanding from others I just gave up.....no one wants to hear about it -- we are paranoid and need psych elp!!!!!!!!!!!!!!!!!!!!! I almost lost hubby over the mold...he finally understood and agreed to the remediation but still thinks I go overboard on some things i.e, I try to find out when they WERE coming so I could move my car and tape up the stove and dryer exhaust vents as the blow the mulch all over and I imagine all the mold spores coming in. I think that is why the guy quit on us -- I wanted him to call me when he was going to do the fall cleanup so I could cover. I have a very old car and the seals on the doors seem to not be tight and last fall I did not know they were coming and by the time I got a jacket on they had started to blow all over so I stayed in (the workers don't speak english) and it took me 2 hours to get the mulch out of my car that they blew in as it was in thje driveway. Am I asking too much - am I being paranoid?????
He has bad asthma and we had a guy do the lawn last year - mow, leaves, etc and he just stopped coming but kept saying he was if I happened to get him on the phone so I have been out there sweeping the driveway trying to keep up with the leaves that keep coming in on my carpet....door is level with driveway which slops down with stone walls on both sides and we get all the leaves. Haven't warn a mask but I think I should as my sinuses have gotten terrible. He is going to borrow a neighbor's lawnmower and try to cut the long grass that hasn't been cut for 5 weeks and is covered in leaves and even with a mask I am worried about him getting an attack.
Do you think it is OK for me to be doing the leaves?? There is no one else and the other places I called are just about done with fall cleanup. It is so bad today I ccouldn't get out the door -- got more leaves in than out just about. Can't leave it. Did get a lightweight blower yesterday - maybe that will be better. I'll find out.
Take care.
The tests done were for the mold mycotoxins to the 4 highest level molds in the house - didn't do more because of the expense. It was sent to Immunosciences Lab but I have since learned from someone on another board that the lab no longer tests for mold mycotoxins. I guess there were not enough docs testing for it. I did some research and this seemed to be the only lab that did this anywhere in the country.
As far as understanding from others I just gave up.....no one wants to hear about it -- we are paranoid and need psych elp!!!!!!!!!!!!!!!!!!!!! I almost lost hubby over the mold...he finally understood and agreed to the remediation but still thinks I go overboard on some things i.e, I try to find out when they WERE coming so I could move my car and tape up the stove and dryer exhaust vents as the blow the mulch all over and I imagine all the mold spores coming in. I think that is why the guy quit on us -- I wanted him to call me when he was going to do the fall cleanup so I could cover. I have a very old car and the seals on the doors seem to not be tight and last fall I did not know they were coming and by the time I got a jacket on they had started to blow all over so I stayed in (the workers don't speak english) and it took me 2 hours to get the mulch out of my car that they blew in as it was in thje driveway. Am I asking too much - am I being paranoid?????
He has bad asthma and we had a guy do the lawn last year - mow, leaves, etc and he just stopped coming but kept saying he was if I happened to get him on the phone so I have been out there sweeping the driveway trying to keep up with the leaves that keep coming in on my carpet....door is level with driveway which slops down with stone walls on both sides and we get all the leaves. Haven't warn a mask but I think I should as my sinuses have gotten terrible. He is going to borrow a neighbor's lawnmower and try to cut the long grass that hasn't been cut for 5 weeks and is covered in leaves and even with a mask I am worried about him getting an attack.
Do you think it is OK for me to be doing the leaves?? There is no one else and the other places I called are just about done with fall cleanup. It is so bad today I ccouldn't get out the door -- got more leaves in than out just about. Can't leave it. Did get a lightweight blower yesterday - maybe that will be better. I'll find out.
Take care.
suggi
11-18-2007, 01:56 PM
Studio -
I am glad you are out and good luck with lawsuit. I have heard they are heard to win unless you can prove illness from mold. Please find a doc that will stand behind you.
As for me, we can't even put the house up yet -- need to paint all rooms and that is hard for me and hubby can't breathe then. Someday maybe we can move but can't look for a house before we sell and here the market is really soft -- nothing is moving even new ones. I just don't want to die in this house and don't want to move to New Hampshire where hubby works as it is too far from my oncologist tha I really like and have faith in....also my daughter and hubby's mom and dad and son - he considers my grandchildren his also but he just had his first REAL grandchild so I guess you know what I mean.
Hope you feel better.
I am glad you are out and good luck with lawsuit. I have heard they are heard to win unless you can prove illness from mold. Please find a doc that will stand behind you.
As for me, we can't even put the house up yet -- need to paint all rooms and that is hard for me and hubby can't breathe then. Someday maybe we can move but can't look for a house before we sell and here the market is really soft -- nothing is moving even new ones. I just don't want to die in this house and don't want to move to New Hampshire where hubby works as it is too far from my oncologist tha I really like and have faith in....also my daughter and hubby's mom and dad and son - he considers my grandchildren his also but he just had his first REAL grandchild so I guess you know what I mean.
Hope you feel better.
suggi
11-18-2007, 02:34 PM
Hey All-
Just had a thought--
Do any of you know if whenthere is mowing or leafe clean up going on - mulch getting blown all over (I am sure with mold spores) esp under the kitchen window ----- if I put the dryer on and the kitchen fan on will that keep anything from coming in??????????????????????? My exhaust fan is weird - it blows out but in the front it also recirculates the air and is blowing in - not sure if thart is just inside air or outside air.
Thanks much.
suggi
Just had a thought--
Do any of you know if whenthere is mowing or leafe clean up going on - mulch getting blown all over (I am sure with mold spores) esp under the kitchen window ----- if I put the dryer on and the kitchen fan on will that keep anything from coming in??????????????????????? My exhaust fan is weird - it blows out but in the front it also recirculates the air and is blowing in - not sure if thart is just inside air or outside air.
Thanks much.
suggi
Studiowray
11-18-2007, 11:02 PM
Thanks Suggi.....for your kind support....people do think you go over board but they just don't get it......finally my brother did, he went to my place to help with a few boxes and was only there for about a half hour and got a severe allergy attack with swollen eyes and a bad cough and that made him finally sit up and take notice to what I've been saying all along. Well, tomorrow is another day and another fight I'm sure but onward and upward.......
If you or your husband are doing anything outside to stir up dust please wear a respirator type of mask. I know it looks weird but it really has helped me get some things out of my apartment....you need it to protect your lungs.
I have not had any tests done on myself as of yet but, they sound expensive and complex.....I do know that I have the mycotoxins in the air at my place so I hope I can find a doctor to test me here. My nauthropath gave me a Dr. Crinnion who is a specialist in mold and toxins here in the valley....I called to get pricing, expensive.
I will eventually get this type of help and I will keep looking here for everyones posts, this has been so helpful and comforting.........Thank you all for giving me someplace to lean into and get answers to questions most people don't even know anything about.
Happy Thanksgiving to all...........TTYL.......Studio
If you or your husband are doing anything outside to stir up dust please wear a respirator type of mask. I know it looks weird but it really has helped me get some things out of my apartment....you need it to protect your lungs.
I have not had any tests done on myself as of yet but, they sound expensive and complex.....I do know that I have the mycotoxins in the air at my place so I hope I can find a doctor to test me here. My nauthropath gave me a Dr. Crinnion who is a specialist in mold and toxins here in the valley....I called to get pricing, expensive.
I will eventually get this type of help and I will keep looking here for everyones posts, this has been so helpful and comforting.........Thank you all for giving me someplace to lean into and get answers to questions most people don't even know anything about.
Happy Thanksgiving to all...........TTYL.......Studio
Studiowray
11-18-2007, 11:05 PM
Also Suggi.......I'm a painter and when you are ready to paint check the local paint stores for "low oder" paint.....it is more environmentally friendly and has very little smell.....good luck with that, Studio
sharewithme
11-19-2007, 12:03 AM
Suggi:
In the southeast,I know that leaf mold is present where leaves are wet. In the world of gardening that I enjoy, leaf mulch is preferred. I doubt I'll be able to use it in the future, will just have to find something else I guess. Anyway, I would think getting the leaves up quickly would diminish likelyhood of abundant mold spores but I'm just guessing here. Maybe you can google leaf mold....
I'm not sure what is best for you to do as far as usaing exhaust fans or dryer. My guess is that it would not help any to turn them on but rather, would help to close windows and dooors, not allow outside air in while everything is all stirred up.
Good luck with that. You are helping me to think about all that is involved with yard work, something I used to would have offerd to do in rental situatiion....
Bummer about your car, you are smart to keep it all locked up from now on while blowing, etc going on.
I was actaully asking if you have tyour blood tested for mycotoxins?
Be well,
S-
In the southeast,I know that leaf mold is present where leaves are wet. In the world of gardening that I enjoy, leaf mulch is preferred. I doubt I'll be able to use it in the future, will just have to find something else I guess. Anyway, I would think getting the leaves up quickly would diminish likelyhood of abundant mold spores but I'm just guessing here. Maybe you can google leaf mold....
I'm not sure what is best for you to do as far as usaing exhaust fans or dryer. My guess is that it would not help any to turn them on but rather, would help to close windows and dooors, not allow outside air in while everything is all stirred up.
Good luck with that. You are helping me to think about all that is involved with yard work, something I used to would have offerd to do in rental situatiion....
Bummer about your car, you are smart to keep it all locked up from now on while blowing, etc going on.
I was actaully asking if you have tyour blood tested for mycotoxins?
Be well,
S-
moldman
11-19-2007, 12:04 AM
Mod Anon,
Thanks for the Thread info. Earlier, I tried searches for the word 'thread' on the portal page and FAQs but I think I need to hire a teenager to sort it out.
Thanks for the Thread info. Earlier, I tried searches for the word 'thread' on the portal page and FAQs but I think I need to hire a teenager to sort it out.
moldman
11-19-2007, 01:04 AM
Hi Studio,
Now we have 3 'S's.
Suggi and Studio if you can tolerate wearing them, find a source for Particulate Respirators also known as N95 masks.
I am not talking about dual cannister carbon half masks like painters wear. Those will work too but the ones I am talking about are the white, fiber face masks with two straps. They will protect you from the mold but they are limited use because they will trap the particles (thus concentrating them) and the action of your breathing puts bacteria and other goodies inside the mask so if they have a nice moist enviroment to breed in you can't reuse them for long without the stuff on the inside making you ill. They are disposable but everything costs money so you might want to buy a box at a time.
DO NOT BUY CHEAP PAPER MASKS! They are totally useless.
Another thing to consider is that your eyes present a mucus membrane to the world so you might want to consider tight fitting goggles if you are going to spend a lot of time in The Zone.
Share,
If you are going to try using UV light to sterilize make sure you have protective eyeware.
Shakespear said everything that needs to be said about lawyers.
If you sign a contract with a lawyer and they turn out to be a lazy cheat they will still get a percentage if you decide to sign with another lawyer and that one wins. So take your time and interview them harshly, ask for documented track records of wins, and get written commitments to what they intend to do for you and get costs (like incidental copying, phone calls etc.) up front as they can bankrupt you with nickles and dimes. Find out for sure if you have to prove lasting or permanent injury in order to file suit as it seems that you may have just a structural and contractual case instead of trying to get some physician to prove you aren't crazy.
You aren't crazy.
You've heard of the insanity defense to keep out of jail - these subhumans turn it around and use the insanity offense to discredit us.
The 'emotional/mental' things you are going through are real on two fronts:
One: It is a major criminal behavior perpetrated towards you and no one needs to put up with that.
Two: Adrenocorticosteriods rise in response to toxins getting into the body. This depletes the normal adrenal hormones and eats up vitamins. Adrenaline itself can be toxic if there are not enough vitamins to break it down and recycle it so that can lead to emotional/mental distress from the inside.
When you mentioned entering a studio and having a reaction I immediately thought: What kind of chemicals might have been in there over and above the mold?
I suggested to the other ladies to keep a journal to keep track of what makes you ill, what you do about it and what works. In your case a journal will also prove to be a useful tool in your legal case.
I must echo the others in that you have some really nasty species of mold.
Suggi,
I have worked with most of the major species of woods from around the world. Out here in the midwest they try to pretend to be Green by turning everything into mulch. Oak is a particuarlly nasty species that will show up in some batches, but I can smell Philipines mahagony that only comes from chewed up plywood which means that there is ureaformaldehyde glue in the mix too. I really love when they spread mulch AROUND THE ENTIRE HOSPITAL AND CLINIC! No matter how many times I write to the CEO, they never respond and continue to mulch and spray for dandelions. Healthcare in America.
It's hard to say if you are helping by turning things on that blow air out of the house. That would be considered negative pressure because you are venting but that same action would create a low pressure to draw more air in from the inside. Positive pressure would be if you turned on fans inside in attempts to force air outside against the gradient of the wind, etc but it had no easy escape. Don't think you would have much success with that because it would have to be strong fans. I keep plastic around my windows year round.
Please promise me that you won't do that yourself because I don't want you getting injured trying to climb onto a step stool to put it up!
Suggi,
I hear you on not trying to 'educate' anybody on the condition. As a man I was viewed as weak if I tried to explain or get people to cooperate. There certainly wasn't an ounce of sympathy. I found if I aggressively just told them the way it was and was going to be that people responded to it because most humans are bullying children at any age and will back down if you set the tone.
This applies to Studio too, because if they percieve you as a victim they will want to kick you when you are down.
Best wishes to all
Now we have 3 'S's.
Suggi and Studio if you can tolerate wearing them, find a source for Particulate Respirators also known as N95 masks.
I am not talking about dual cannister carbon half masks like painters wear. Those will work too but the ones I am talking about are the white, fiber face masks with two straps. They will protect you from the mold but they are limited use because they will trap the particles (thus concentrating them) and the action of your breathing puts bacteria and other goodies inside the mask so if they have a nice moist enviroment to breed in you can't reuse them for long without the stuff on the inside making you ill. They are disposable but everything costs money so you might want to buy a box at a time.
DO NOT BUY CHEAP PAPER MASKS! They are totally useless.
Another thing to consider is that your eyes present a mucus membrane to the world so you might want to consider tight fitting goggles if you are going to spend a lot of time in The Zone.
Share,
If you are going to try using UV light to sterilize make sure you have protective eyeware.
Shakespear said everything that needs to be said about lawyers.
If you sign a contract with a lawyer and they turn out to be a lazy cheat they will still get a percentage if you decide to sign with another lawyer and that one wins. So take your time and interview them harshly, ask for documented track records of wins, and get written commitments to what they intend to do for you and get costs (like incidental copying, phone calls etc.) up front as they can bankrupt you with nickles and dimes. Find out for sure if you have to prove lasting or permanent injury in order to file suit as it seems that you may have just a structural and contractual case instead of trying to get some physician to prove you aren't crazy.
You aren't crazy.
You've heard of the insanity defense to keep out of jail - these subhumans turn it around and use the insanity offense to discredit us.
The 'emotional/mental' things you are going through are real on two fronts:
One: It is a major criminal behavior perpetrated towards you and no one needs to put up with that.
Two: Adrenocorticosteriods rise in response to toxins getting into the body. This depletes the normal adrenal hormones and eats up vitamins. Adrenaline itself can be toxic if there are not enough vitamins to break it down and recycle it so that can lead to emotional/mental distress from the inside.
When you mentioned entering a studio and having a reaction I immediately thought: What kind of chemicals might have been in there over and above the mold?
I suggested to the other ladies to keep a journal to keep track of what makes you ill, what you do about it and what works. In your case a journal will also prove to be a useful tool in your legal case.
I must echo the others in that you have some really nasty species of mold.
Suggi,
I have worked with most of the major species of woods from around the world. Out here in the midwest they try to pretend to be Green by turning everything into mulch. Oak is a particuarlly nasty species that will show up in some batches, but I can smell Philipines mahagony that only comes from chewed up plywood which means that there is ureaformaldehyde glue in the mix too. I really love when they spread mulch AROUND THE ENTIRE HOSPITAL AND CLINIC! No matter how many times I write to the CEO, they never respond and continue to mulch and spray for dandelions. Healthcare in America.
It's hard to say if you are helping by turning things on that blow air out of the house. That would be considered negative pressure because you are venting but that same action would create a low pressure to draw more air in from the inside. Positive pressure would be if you turned on fans inside in attempts to force air outside against the gradient of the wind, etc but it had no easy escape. Don't think you would have much success with that because it would have to be strong fans. I keep plastic around my windows year round.
Please promise me that you won't do that yourself because I don't want you getting injured trying to climb onto a step stool to put it up!
Suggi,
I hear you on not trying to 'educate' anybody on the condition. As a man I was viewed as weak if I tried to explain or get people to cooperate. There certainly wasn't an ounce of sympathy. I found if I aggressively just told them the way it was and was going to be that people responded to it because most humans are bullying children at any age and will back down if you set the tone.
This applies to Studio too, because if they percieve you as a victim they will want to kick you when you are down.
Best wishes to all
Studiowray
11-19-2007, 03:47 AM
Thank you MM for all your helpfulness and insight..........good info about the lawyers. I will keep that in mind if I ever get to talk with a lawyer. I have been on the phone with many lawyers offices but still have not gotten a lawyer to sit down with me and look at my pictures and information. <I read some> some information on biological warfare that list mycotoxions as one of the ingredients they use to hurt people..........I will continue to research this........it's interesting and frightening at the same time. Right now no one is helping me as far as insurance, the landlord, the courts ( just yet) and I'm not going to sit by and just take it..........just lose everything on my dime when I didn't cause this to happen to me..........Thanks again for all of you who care and understand.....Studio
sharewithme
11-19-2007, 03:33 PM
Greetings MM:
I hope this finds you well and of good cheer.
Dad gum it! I fell asleep last night, klunk, writing this. Laid back to stretch out back and legs (am feeling new exercise program) and just went right to sleep I guess, don't remember! Slept pretty well although I did get cold and woke up because of that. JUst now got to it to finish.
Boy did I feel kinda dumb about the way to set up a new thread. A little too obvious, I just kept looking too hard I guess. Glad to have info, just need new subject to begin with? Not quite sure where to go with it, have some ideas. Brain fade I reckon. I'm pretty tired, I skipped rope off and on for about half a mile today. when i can do it nonstop, i'll consider myself in pretty good shape. Also I've never started a thread before,....
I do eat Tumeric, I like it, just don't use daily. "Don't feel low when I take it?" you do mean ingest don't you? How much does it take to aid you?
Sinal wash. yes, trying to get back into routine care patterns. did not know Buddhist tradition, very interesting.
Finally found seaweed and kelp, both organic from Maine coastal waters. Got the kelp, higher in iodine. I usually like both. Wanted to start eating right then so I did! will ingest daily until can't stand taste of.
Don't understand reference to rash from exterior use of salt. Must have been someone else... don't eat much salt actually although i do love frontiers garlic salt. good point about tires, etc we think alike. Hulda clark, need to get her books amongst others. Oh sure, that makes sense--super sarcasm here -- develop basic premise of medicine that must get worse before better based on mercury poisoning, grrrrrr. Not exactly sure why I felt so bad, I was in a foreign environement (SW) outside a great deal in 112 temps, got dehydrated which took a long time to correct, was not resting well at all, did release tons of toxins in a very short time from detoxifying mold/chemicals as well as going thru what I understood as yeast die back. I am much better now so I doubt I will have alot of problems in that regard. I thought about it, realized my fear and had to work thru it. don't want to be sick anymore. i'm okay with it now though, I know, have faith I will heal, not get sicker. Thanks for supporting me in this awareness. I really appreciate it.
Recirculated blood treated by uv light, aka uvb treatments. pretty invasive, scares me. some say really works. i read article at website i mentioned, they advocate uv light treatment but do mention people having success with uvb. as of that posting, the author had not tried it. good to hear your perspective on it. i appreciate you clarifying the uv treatments you suggested as not being the same as uvb.
I need a good Dr, I agree. Am thinking of returning to original internist who correctly diagnosed mold allergy and sent me to allergist. He does rely on testing and did prescribe compounded T3/T4. He does use supplements a good bit and is very pro diet although I can't really see him telling me to use kelp to solve thyroid problem where as environmental Doc might, not sure yet. He suggested stool testing last rtime i saw him, I think it was CDSA. He used 24 hour urine collection for hormone testing, not a common practice but much more reliable. He really stuck up for me with my brother also. I like him. He has a good heart and is pretty good diagnostician. First trime I went to him in crisis he immediately suspected adrenaLs and gave me an in office test I always forget the name of, dang it! I scored super low on it. He was really there for me every time I ever needed him. Was my primary care physician for app. 7 years. Hmmm. Not sure what to do. I'll reread what you said about UV treatments tomorrow, when fresh. Shoot. I really want to get to it....
So I'm doing what has worked before for me, exercise, be outside as much as possible, eat well, plenty of rest, focus on healing. Of course i'm not out there enough, that's the problem. criminy. that was best part about living out of doors. got daylight & fresh air all day long every day for months. did really help me.
Yes, protocol based on learned systems of treatment. how much do tests affect therapies? important points to remember. very important. thank you.
I will be careful about heat. do have tendency to be a bit too independent sometimes, must recognize limitations, need for supervision, etc. Effects of a therapy.... Timing is all important, isn't it? and the knowing, the wisdom of what to do when. I need to be well educated and find the right Dr., a healer who I can work with, where there is room for a difference of opinion, one who really connects with me works with me.
Am I my own healer? Yes, I am. I will heal.
I'll let you know what happens.
1013, that means a DR (MD in my case) orders that you be evaluated for up to 72 hours by a psychiatrist whether you agree or not, to determine if you are at risk for harming yourself or another. If they decide you are, you can be held for a maximum of 6 months for treatment. Serious business. Drug addiction, severe depression, bi-polar disorder and schizophrenia are what 99.9% of people are diagnosed with. Most patients say, yes, I am that. They give addicts drugs by handful -- really weird form of treatment. Others are there to use system for some purpose, mostly to get government assistance of some type, I think. And then there are too many who are in symptom hell, freaking out because they can't figure out how to stop symptoms without taking drugs, after all everyone has told you the DR said you are blah, blah, blah and so you need drugs to make you right again. They stopped saying that to me very quickly. I told them in no uncertain terms what I thought of that. Many saw me really trying to understand the cause of my problems and how to heal. When I left, many of the staff were openly talking mold allergy (some people included chemicals)! hugged me, said "You don't need this place so make sure you don't come back. If you need ER again, don't piss off the Dr.'s, okay? You can be very diplomatic, find a better way to get the help you need (good advice....) We are rooting for you, believe you pegged it and will get better"
I learned a lot from it. Decided to turn it into a positive experience and so, it was. Like many things there was good and bad. Found out Dr's will and most importantly can get away with lying. At first I was pretty angry with the a--h--- Dr. who did that to me, the system. etc. Thought of writing to the hospital, the state medical boards, etc to make the point that their/his unwillingness to understand how mold allergy can and does affect a person's state of mind, is well documented, etc and that the use of drugs does not solve those problems, they actually create more. Still thinking about it.
I believe that quite often things happen to us for a reason, there is always a lesson in it. And there are often blessings although in situations like this, they can be hard to see. I started to listen. I realized several things, that there were some genuinely good people working there who really did want to help me and I could use their honesty and kindness to learn what I needed so I would not have to repeat that experience. I asked, why did he, the Dr, do this? They said, you came in very non-communicative, looking very out of it, showed me photograph of myself, I said "yes that's because I was sick from mold/chemicals toxicity." They said you look a lot better now, I said, hmm. i am in a different environment, got rid of clothing, scrubbed well. hmmm. This is not exactly great place but oddly enough, low chemicals I react to most of the time and no mold. hmmm.
ER Dr. said paranoid and delusional, another Dr addded dissociative. Mind you I had given them my background with mold allergy so they deduced that I must be all these if unwilling to go back to my home. I asked, why would you assume that? you don't understand what is involved, have you looked this up online? and you haven't really talked to me. Oh no the Dr's don't listen to the patient or heaven forbid! do research? no, no, no just take these psychotropic drugs, don't you know they are solution to all mental health problems? I was not impressed and made that known. I realized that when I told them my history with living in mold I got labeled as psychotic. Also I can get to the point where I have a llot of trouble talking. communications are choppy, i'll think something and think i said it, that type of thing. Staring off into space a lot, take 20 minutes to finish sentence, repeat myslef. I get strange ideas of what will solve my problems and I am afraid to take another bad hit. If anyone around me with mold or there are strong chemicals, I get afraid of that/them. Just want to get away from the damn stuff, get into fresh air. I decided to use this as an opportunity to understand two things:
1) I can get pretty damn weird when I take a strong hit, people really do worry about me. so I asked the people whose opinion I respected and some of the other patients -- what are my mental symptoms that you see? they said disorganized thinking, some paranoia, super out of it and so must have trouble functioning, hence reason for questioning if I was a harm to myself.
2) how to recognize onset of symptoms which mean i was exposed and then how to stop the snoball effect immediately
They had these classes (which I wasn't supposed to be able to attend, not in system long enough but I got special permission from head nurse) which focused on recognizing onset of symptoms and how to take care of yourself so you don't become acute. I soaked it right up, made point nonstop to all about mold induced symptoms, that this was great for me to understand in this regard especially. I figured out how I got into a snowball affect. I'd take thye hit, not decontaminate properly and so keep taking the hit. It affected my ability to reason out how to solve problems in a way that was best for me, I'd get too vulnerable, make too many costly mistakes. Also I could just be too big a pain in the *** for most people. I'd Lose their support in the process of helping me.
I concluded, I have to be healthy to stay healthy. So I came up with the system I now have. Is working for it's application. Still need to improve health from inside out so won't be so sensitive anymore....
I decided to make sure people got what was going on with me so I have gone back to many places where people/businesses helped me to say hello, thank you, please keep helping people! can make a huge difference in a persons life. So far overwhelming response has been amazement at difference in me, say I look great! are super supportive, very friendly, tell me keep coming back. when see me again almost always remember me immediately, ask how I am doing, remember details! some hug me. Over all has been a very good thing for all. And very important!!!! i don't feel shame and people are learning. Interesting side note: i have talked to the police before about what happened to me, they are mostly quite sympathetic (have helped me more than one time) and are fairly knowledgable about mold.
I can think of 2 people i actually got thru to at the state hospital, i mean they really got it, actually think about it in their lives, people they know, etc. i pray it will make a difference for the next person in my shoes and maybe for someone in their lives to get appropriate help.
i try very hard to educate people to realities of indoor pollution from all chemicals, including mold. People are generally very nice to me, like me, ask about me -- I am trying to turn that into talking about the terrible situation, we as people on this earth, have created for ourselves and all other living things. people are responding. yesterday someone i thought i'd never, ever hear this from said i believe greenhouse effect is real, emissions are a problem, i'm worried about atmosphere, then said, but of course nothing i can do about it - i said that's not true, there is much you can do!
Sorry, i do go on sometimes, don't i?
Enjoy your day.
S-
I hope this finds you well and of good cheer.
Dad gum it! I fell asleep last night, klunk, writing this. Laid back to stretch out back and legs (am feeling new exercise program) and just went right to sleep I guess, don't remember! Slept pretty well although I did get cold and woke up because of that. JUst now got to it to finish.
Boy did I feel kinda dumb about the way to set up a new thread. A little too obvious, I just kept looking too hard I guess. Glad to have info, just need new subject to begin with? Not quite sure where to go with it, have some ideas. Brain fade I reckon. I'm pretty tired, I skipped rope off and on for about half a mile today. when i can do it nonstop, i'll consider myself in pretty good shape. Also I've never started a thread before,....
I do eat Tumeric, I like it, just don't use daily. "Don't feel low when I take it?" you do mean ingest don't you? How much does it take to aid you?
Sinal wash. yes, trying to get back into routine care patterns. did not know Buddhist tradition, very interesting.
Finally found seaweed and kelp, both organic from Maine coastal waters. Got the kelp, higher in iodine. I usually like both. Wanted to start eating right then so I did! will ingest daily until can't stand taste of.
Don't understand reference to rash from exterior use of salt. Must have been someone else... don't eat much salt actually although i do love frontiers garlic salt. good point about tires, etc we think alike. Hulda clark, need to get her books amongst others. Oh sure, that makes sense--super sarcasm here -- develop basic premise of medicine that must get worse before better based on mercury poisoning, grrrrrr. Not exactly sure why I felt so bad, I was in a foreign environement (SW) outside a great deal in 112 temps, got dehydrated which took a long time to correct, was not resting well at all, did release tons of toxins in a very short time from detoxifying mold/chemicals as well as going thru what I understood as yeast die back. I am much better now so I doubt I will have alot of problems in that regard. I thought about it, realized my fear and had to work thru it. don't want to be sick anymore. i'm okay with it now though, I know, have faith I will heal, not get sicker. Thanks for supporting me in this awareness. I really appreciate it.
Recirculated blood treated by uv light, aka uvb treatments. pretty invasive, scares me. some say really works. i read article at website i mentioned, they advocate uv light treatment but do mention people having success with uvb. as of that posting, the author had not tried it. good to hear your perspective on it. i appreciate you clarifying the uv treatments you suggested as not being the same as uvb.
I need a good Dr, I agree. Am thinking of returning to original internist who correctly diagnosed mold allergy and sent me to allergist. He does rely on testing and did prescribe compounded T3/T4. He does use supplements a good bit and is very pro diet although I can't really see him telling me to use kelp to solve thyroid problem where as environmental Doc might, not sure yet. He suggested stool testing last rtime i saw him, I think it was CDSA. He used 24 hour urine collection for hormone testing, not a common practice but much more reliable. He really stuck up for me with my brother also. I like him. He has a good heart and is pretty good diagnostician. First trime I went to him in crisis he immediately suspected adrenaLs and gave me an in office test I always forget the name of, dang it! I scored super low on it. He was really there for me every time I ever needed him. Was my primary care physician for app. 7 years. Hmmm. Not sure what to do. I'll reread what you said about UV treatments tomorrow, when fresh. Shoot. I really want to get to it....
So I'm doing what has worked before for me, exercise, be outside as much as possible, eat well, plenty of rest, focus on healing. Of course i'm not out there enough, that's the problem. criminy. that was best part about living out of doors. got daylight & fresh air all day long every day for months. did really help me.
Yes, protocol based on learned systems of treatment. how much do tests affect therapies? important points to remember. very important. thank you.
I will be careful about heat. do have tendency to be a bit too independent sometimes, must recognize limitations, need for supervision, etc. Effects of a therapy.... Timing is all important, isn't it? and the knowing, the wisdom of what to do when. I need to be well educated and find the right Dr., a healer who I can work with, where there is room for a difference of opinion, one who really connects with me works with me.
Am I my own healer? Yes, I am. I will heal.
I'll let you know what happens.
1013, that means a DR (MD in my case) orders that you be evaluated for up to 72 hours by a psychiatrist whether you agree or not, to determine if you are at risk for harming yourself or another. If they decide you are, you can be held for a maximum of 6 months for treatment. Serious business. Drug addiction, severe depression, bi-polar disorder and schizophrenia are what 99.9% of people are diagnosed with. Most patients say, yes, I am that. They give addicts drugs by handful -- really weird form of treatment. Others are there to use system for some purpose, mostly to get government assistance of some type, I think. And then there are too many who are in symptom hell, freaking out because they can't figure out how to stop symptoms without taking drugs, after all everyone has told you the DR said you are blah, blah, blah and so you need drugs to make you right again. They stopped saying that to me very quickly. I told them in no uncertain terms what I thought of that. Many saw me really trying to understand the cause of my problems and how to heal. When I left, many of the staff were openly talking mold allergy (some people included chemicals)! hugged me, said "You don't need this place so make sure you don't come back. If you need ER again, don't piss off the Dr.'s, okay? You can be very diplomatic, find a better way to get the help you need (good advice....) We are rooting for you, believe you pegged it and will get better"
I learned a lot from it. Decided to turn it into a positive experience and so, it was. Like many things there was good and bad. Found out Dr's will and most importantly can get away with lying. At first I was pretty angry with the a--h--- Dr. who did that to me, the system. etc. Thought of writing to the hospital, the state medical boards, etc to make the point that their/his unwillingness to understand how mold allergy can and does affect a person's state of mind, is well documented, etc and that the use of drugs does not solve those problems, they actually create more. Still thinking about it.
I believe that quite often things happen to us for a reason, there is always a lesson in it. And there are often blessings although in situations like this, they can be hard to see. I started to listen. I realized several things, that there were some genuinely good people working there who really did want to help me and I could use their honesty and kindness to learn what I needed so I would not have to repeat that experience. I asked, why did he, the Dr, do this? They said, you came in very non-communicative, looking very out of it, showed me photograph of myself, I said "yes that's because I was sick from mold/chemicals toxicity." They said you look a lot better now, I said, hmm. i am in a different environment, got rid of clothing, scrubbed well. hmmm. This is not exactly great place but oddly enough, low chemicals I react to most of the time and no mold. hmmm.
ER Dr. said paranoid and delusional, another Dr addded dissociative. Mind you I had given them my background with mold allergy so they deduced that I must be all these if unwilling to go back to my home. I asked, why would you assume that? you don't understand what is involved, have you looked this up online? and you haven't really talked to me. Oh no the Dr's don't listen to the patient or heaven forbid! do research? no, no, no just take these psychotropic drugs, don't you know they are solution to all mental health problems? I was not impressed and made that known. I realized that when I told them my history with living in mold I got labeled as psychotic. Also I can get to the point where I have a llot of trouble talking. communications are choppy, i'll think something and think i said it, that type of thing. Staring off into space a lot, take 20 minutes to finish sentence, repeat myslef. I get strange ideas of what will solve my problems and I am afraid to take another bad hit. If anyone around me with mold or there are strong chemicals, I get afraid of that/them. Just want to get away from the damn stuff, get into fresh air. I decided to use this as an opportunity to understand two things:
1) I can get pretty damn weird when I take a strong hit, people really do worry about me. so I asked the people whose opinion I respected and some of the other patients -- what are my mental symptoms that you see? they said disorganized thinking, some paranoia, super out of it and so must have trouble functioning, hence reason for questioning if I was a harm to myself.
2) how to recognize onset of symptoms which mean i was exposed and then how to stop the snoball effect immediately
They had these classes (which I wasn't supposed to be able to attend, not in system long enough but I got special permission from head nurse) which focused on recognizing onset of symptoms and how to take care of yourself so you don't become acute. I soaked it right up, made point nonstop to all about mold induced symptoms, that this was great for me to understand in this regard especially. I figured out how I got into a snowball affect. I'd take thye hit, not decontaminate properly and so keep taking the hit. It affected my ability to reason out how to solve problems in a way that was best for me, I'd get too vulnerable, make too many costly mistakes. Also I could just be too big a pain in the *** for most people. I'd Lose their support in the process of helping me.
I concluded, I have to be healthy to stay healthy. So I came up with the system I now have. Is working for it's application. Still need to improve health from inside out so won't be so sensitive anymore....
I decided to make sure people got what was going on with me so I have gone back to many places where people/businesses helped me to say hello, thank you, please keep helping people! can make a huge difference in a persons life. So far overwhelming response has been amazement at difference in me, say I look great! are super supportive, very friendly, tell me keep coming back. when see me again almost always remember me immediately, ask how I am doing, remember details! some hug me. Over all has been a very good thing for all. And very important!!!! i don't feel shame and people are learning. Interesting side note: i have talked to the police before about what happened to me, they are mostly quite sympathetic (have helped me more than one time) and are fairly knowledgable about mold.
I can think of 2 people i actually got thru to at the state hospital, i mean they really got it, actually think about it in their lives, people they know, etc. i pray it will make a difference for the next person in my shoes and maybe for someone in their lives to get appropriate help.
i try very hard to educate people to realities of indoor pollution from all chemicals, including mold. People are generally very nice to me, like me, ask about me -- I am trying to turn that into talking about the terrible situation, we as people on this earth, have created for ourselves and all other living things. people are responding. yesterday someone i thought i'd never, ever hear this from said i believe greenhouse effect is real, emissions are a problem, i'm worried about atmosphere, then said, but of course nothing i can do about it - i said that's not true, there is much you can do!
Sorry, i do go on sometimes, don't i?
Enjoy your day.
S-
suggi
11-19-2007, 05:13 PM
Share
Thanks -- I should have explained -- my vents do not seem to close all the way as you can smell smoke in the winter from outside and feel a draft from the vent over the stove so I was wondering if I should try to put tape over them during fall cleanup or just have them blowing out. It is very dewy around here this time of year and they are coming tomorrow at 6:30 AM so I would have to cover them up at 6 AM and not sure if I am keeping moisture from the night in that way or not. Perhaps if I turned them on for a few minutes before taping them up -- or if it is blowing out would anything blow in???? That is my other alternative. Pick your poison I guess.
Thanks
Thanks -- I should have explained -- my vents do not seem to close all the way as you can smell smoke in the winter from outside and feel a draft from the vent over the stove so I was wondering if I should try to put tape over them during fall cleanup or just have them blowing out. It is very dewy around here this time of year and they are coming tomorrow at 6:30 AM so I would have to cover them up at 6 AM and not sure if I am keeping moisture from the night in that way or not. Perhaps if I turned them on for a few minutes before taping them up -- or if it is blowing out would anything blow in???? That is my other alternative. Pick your poison I guess.
Thanks
moldman
11-19-2007, 07:26 PM
Share,
Novel writing after midnight, huh?
I sort the kelp (if it is whole leaves) for critters and shells (Never eat a snail shell - Heap Bad Medicine) then I bring it to a boil in a big pan because it likes to foam and boil over, then I slow boil for at least a half an hour. I have never minded the taste of any seaweed except Wakami (sp?) and Sea Palm.
I thought you had mentioned getting a rash from using salt as deodorant? It occurred to me later that most commercial salt contains sand (alumino silicate) and corn sugar (dextrose). I would vote that anyone with corn allergy would react to the dextrose.
I learned from someone I respect - to follow your gut. I no longer sign on to a therapy because I am desperate. If you feel you must have a therapy then do it but if you have reservations you should delay until you have all the facts. You had mentioned an author who had not tried the therapy - I never write about anything that I have not tried myself and I clearly indicate when I am speculating.
1013....
That is just code for the Militarization of Medicine.
That's sick.
Now, hold on to your pantyhose:
Do a search on Ergot and Salem Witch Trials and toss in Linda Caporael.
She made a convincing argument that the reason those poor people were murdered was not because they were witches but because they were suffering from Ergot toxicity and the doctors were out of their depth so they deferred to religion.
I guess nothing has changed.
Let's examine this: Even if a patient is confrontational with a physician their oath is to heal the patient not conveniently institutionalize them because they are so infantily ignorant that they don't know basic biochemistry. At the very least they should be reported to the Department of Profesional Regulation. This is a government agency that does peer review so they will probably sit around a table laugh about the patient tell the doctor to not get caught at it again and go on business as usual after they go out for drinks. In a ideal situation there should be disciplinary action taken against these power abusers. I know that you would like to harbor warm feelings for the nurses that treated you humanely, yet you should consider that they were complicit in your abuse. If they did in fact suspect that mold allergy was a legitimate medical explanation for your need for medical care and unjust imprisonment, then they should have confronted the doctor and if there was no reponse at the least reported him.
I would like to encourage you all to free yourself from the Victim Mentality of this disease.
STUDIO,
We should all be able to sleep soundly tonight after your last post!
You revealed the answer I have been looking for for years:
Just how far up the foodchain this conspiracy goes to have mold allergy sufferers labeled as nutjobs. I never knew the ultimate military use of mycotoxins. This explains everything. The coverup. The lack of any substantive data on remediation or control and the suppression of medicine to recognize or do anything about it.
I am indebted to you.
Share,
With respect the 'feeling had to get away', this falls into the other garbage can diagnosis of Panic Attack/Anxiety.
The ancient chinese defined anxiety this way: feeling out of breath.
That is the best clinical definition I have ever heard in 5000 years.
Let's examine this:
There is an oxygen sensor in your brain. Federal law requires that public building and housing have certain dimensions based on the amount of people that might be inside at any given time. This is based partially on the amount of air that can be consumed and cycled through the rooms. If FOR ANY REASON you have poor oxygenation of your blood and you enter a room full of people and FEEL YOU HAVE TO GET OUT it is probably because there is low oxygen in the room from too many blowhards and/or smokers.
You do not have Trait Shyness (ask your doctor, see your doctor for a prescription, some side effects may include....(Endless TV commercials), antisocial behavior or panic attack.
It is physiological.
Your body, your machine told you the area was not safe and told you what to do. No amount of sitting on a couch talking about your feelings is going to change biochemistry.
There are many reasons for hypoxia. Some are mechanical some are physical and some are chemical. You can have tests to determine levels of pyruvate vs. lactate that might indicate if there is an enzymatic defect that leads to low oxygen. There could be anemia there could be ANY NUMBER OF THINGS TO RULE OUT before dealing drugs.
Beyond the oxygen sensor your brain knows and processes threats at a chemical level. You don't need to know the name of a chemical any more than you need a degree in architecture to know when a picture's perspective is off. You just know something is wrong.
Feel free to write to anyone in government, but only one in 15,000 is really a human being. Without persistence there will be more tragedies like yours. We must change this.
I'm glad you're better.
Novel writing after midnight, huh?
I sort the kelp (if it is whole leaves) for critters and shells (Never eat a snail shell - Heap Bad Medicine) then I bring it to a boil in a big pan because it likes to foam and boil over, then I slow boil for at least a half an hour. I have never minded the taste of any seaweed except Wakami (sp?) and Sea Palm.
I thought you had mentioned getting a rash from using salt as deodorant? It occurred to me later that most commercial salt contains sand (alumino silicate) and corn sugar (dextrose). I would vote that anyone with corn allergy would react to the dextrose.
I learned from someone I respect - to follow your gut. I no longer sign on to a therapy because I am desperate. If you feel you must have a therapy then do it but if you have reservations you should delay until you have all the facts. You had mentioned an author who had not tried the therapy - I never write about anything that I have not tried myself and I clearly indicate when I am speculating.
1013....
That is just code for the Militarization of Medicine.
That's sick.
Now, hold on to your pantyhose:
Do a search on Ergot and Salem Witch Trials and toss in Linda Caporael.
She made a convincing argument that the reason those poor people were murdered was not because they were witches but because they were suffering from Ergot toxicity and the doctors were out of their depth so they deferred to religion.
I guess nothing has changed.
Let's examine this: Even if a patient is confrontational with a physician their oath is to heal the patient not conveniently institutionalize them because they are so infantily ignorant that they don't know basic biochemistry. At the very least they should be reported to the Department of Profesional Regulation. This is a government agency that does peer review so they will probably sit around a table laugh about the patient tell the doctor to not get caught at it again and go on business as usual after they go out for drinks. In a ideal situation there should be disciplinary action taken against these power abusers. I know that you would like to harbor warm feelings for the nurses that treated you humanely, yet you should consider that they were complicit in your abuse. If they did in fact suspect that mold allergy was a legitimate medical explanation for your need for medical care and unjust imprisonment, then they should have confronted the doctor and if there was no reponse at the least reported him.
I would like to encourage you all to free yourself from the Victim Mentality of this disease.
STUDIO,
We should all be able to sleep soundly tonight after your last post!
You revealed the answer I have been looking for for years:
Just how far up the foodchain this conspiracy goes to have mold allergy sufferers labeled as nutjobs. I never knew the ultimate military use of mycotoxins. This explains everything. The coverup. The lack of any substantive data on remediation or control and the suppression of medicine to recognize or do anything about it.
I am indebted to you.
Share,
With respect the 'feeling had to get away', this falls into the other garbage can diagnosis of Panic Attack/Anxiety.
The ancient chinese defined anxiety this way: feeling out of breath.
That is the best clinical definition I have ever heard in 5000 years.
Let's examine this:
There is an oxygen sensor in your brain. Federal law requires that public building and housing have certain dimensions based on the amount of people that might be inside at any given time. This is based partially on the amount of air that can be consumed and cycled through the rooms. If FOR ANY REASON you have poor oxygenation of your blood and you enter a room full of people and FEEL YOU HAVE TO GET OUT it is probably because there is low oxygen in the room from too many blowhards and/or smokers.
You do not have Trait Shyness (ask your doctor, see your doctor for a prescription, some side effects may include....(Endless TV commercials), antisocial behavior or panic attack.
It is physiological.
Your body, your machine told you the area was not safe and told you what to do. No amount of sitting on a couch talking about your feelings is going to change biochemistry.
There are many reasons for hypoxia. Some are mechanical some are physical and some are chemical. You can have tests to determine levels of pyruvate vs. lactate that might indicate if there is an enzymatic defect that leads to low oxygen. There could be anemia there could be ANY NUMBER OF THINGS TO RULE OUT before dealing drugs.
Beyond the oxygen sensor your brain knows and processes threats at a chemical level. You don't need to know the name of a chemical any more than you need a degree in architecture to know when a picture's perspective is off. You just know something is wrong.
Feel free to write to anyone in government, but only one in 15,000 is really a human being. Without persistence there will be more tragedies like yours. We must change this.
I'm glad you're better.
Bearygood
11-20-2007, 08:35 AM
Oh my goodness! Boy, have I been away from this board for a while!!!! Sorry to hear what everyone is going through! Just want to add a few things...
Right on about the thyroid testing -- it's all about the balance. I went undxed for a long time because my levels were within normal range but my TSH results were listing as "to follow" and well, my idiot doctor did not follow UP! By the time I was dxed (by another doctor) I too had become very swollen and absolutely toxic. When we saw the OLD test results with the true TSH numbers they were through the roof!!
Re: Turmeric, the active ingredient is Curcumin (the supplement I take is called "Turmeric Force"). As someone with MS, I am very much concerned with anti-inflammatory supplements and ones that support the blood-brain barrier (and relieving "oxidative stress"). Also, to supplement with D to compensate for sunshine (I think that was what the reference to ultraviolet light was about), it's vitamin D3 (cholecalciferol).
As I said, I haven't been to this board for a while but as for why I came here in the first place? I discovered about a year ago that I had been living with mold for around 7 years, which was finally remediated this past spring. This past March I was dxed with MS and even if I've actually had it for a long time, I seriously suspect that at the very least, the mold triggered it out of dormancy.
Also, I have chronic sinus problems and it was interesting to note that a lot of people I've run across with MS do as well. I have done research on this and that correlation aside (and yes, I found a few things), one bit of information that relates to ANYONE who is prone to sinusitis is some evidence that with chronic, recurring infections, sinus sufferers become even MORE sensitive to regular airborne fungi. In other words, actually develop allergic reactions to things that wouldn't bother "normal" people. Obviously, posting this because a lot of people who have been through the mold ringer have experienced respiratory problems.
Right on about the thyroid testing -- it's all about the balance. I went undxed for a long time because my levels were within normal range but my TSH results were listing as "to follow" and well, my idiot doctor did not follow UP! By the time I was dxed (by another doctor) I too had become very swollen and absolutely toxic. When we saw the OLD test results with the true TSH numbers they were through the roof!!
Re: Turmeric, the active ingredient is Curcumin (the supplement I take is called "Turmeric Force"). As someone with MS, I am very much concerned with anti-inflammatory supplements and ones that support the blood-brain barrier (and relieving "oxidative stress"). Also, to supplement with D to compensate for sunshine (I think that was what the reference to ultraviolet light was about), it's vitamin D3 (cholecalciferol).
As I said, I haven't been to this board for a while but as for why I came here in the first place? I discovered about a year ago that I had been living with mold for around 7 years, which was finally remediated this past spring. This past March I was dxed with MS and even if I've actually had it for a long time, I seriously suspect that at the very least, the mold triggered it out of dormancy.
Also, I have chronic sinus problems and it was interesting to note that a lot of people I've run across with MS do as well. I have done research on this and that correlation aside (and yes, I found a few things), one bit of information that relates to ANYONE who is prone to sinusitis is some evidence that with chronic, recurring infections, sinus sufferers become even MORE sensitive to regular airborne fungi. In other words, actually develop allergic reactions to things that wouldn't bother "normal" people. Obviously, posting this because a lot of people who have been through the mold ringer have experienced respiratory problems.
moldman
11-20-2007, 10:55 AM
Hi Beary,
Thanks for coming back and sharing. Throughout my posts I try to draw a connection between mold and chemical allergy. The doctors who treat chemical allergy say that their patients typically have a lower than normal enzyme in their sinuses. The way I understand it, this is a first line defense against what comes into the respiratory system). My sinuses are as dry as the desert, so I don't even have mucus to protect me.
Sorry, I don't have any practical advice on what to do about it.
I've always found most of modern medicine useless with the endless tests, invasive imaging, then they say, "Well, we know what you have." So you ask, "What can you do about it?" Most of the time the answer is "Nothing."
I don't like being left with no options, so I have been trying to understand what might have interferred with the expression of this enzyme to see if there is a fix for it.
There is some information out there that MS can be triggered by vaccines. Is there a possibility that you got a shot before your symptoms started?
Is MS the one that deposits Calcium plaques? If so, how are your parathyroids doing? They direct where calcium goes in the body. Calcium and cholesterol are used like plaster to cover up 'cracks' in the body's tissue so they mean well but it builds up and gets in the way. It's likely that the mold could have irritated the body to the point where it sent out the spackeling crew and thats when the MS showed up.
How do you manage the MS? Is it by treating symptoms or is there anything that targets the cause?
Thanks for coming back and sharing. Throughout my posts I try to draw a connection between mold and chemical allergy. The doctors who treat chemical allergy say that their patients typically have a lower than normal enzyme in their sinuses. The way I understand it, this is a first line defense against what comes into the respiratory system). My sinuses are as dry as the desert, so I don't even have mucus to protect me.
Sorry, I don't have any practical advice on what to do about it.
I've always found most of modern medicine useless with the endless tests, invasive imaging, then they say, "Well, we know what you have." So you ask, "What can you do about it?" Most of the time the answer is "Nothing."
I don't like being left with no options, so I have been trying to understand what might have interferred with the expression of this enzyme to see if there is a fix for it.
There is some information out there that MS can be triggered by vaccines. Is there a possibility that you got a shot before your symptoms started?
Is MS the one that deposits Calcium plaques? If so, how are your parathyroids doing? They direct where calcium goes in the body. Calcium and cholesterol are used like plaster to cover up 'cracks' in the body's tissue so they mean well but it builds up and gets in the way. It's likely that the mold could have irritated the body to the point where it sent out the spackeling crew and thats when the MS showed up.
How do you manage the MS? Is it by treating symptoms or is there anything that targets the cause?
sharewithme
11-20-2007, 11:54 AM
Welcome Bearygood!
Glad to have you with us.
Thanks for info on supplements, way to get tumeric in regularly. You are 2nd person to mention D3. I will explore as supplement as well as in UV light traetment.
yes, thyroid has been an issue for a long time now. am really feeling it lately. environmental doc suggested metabolic panel. prety sure its not the same one original doc used for thyroid. need to explore further.
when taking compounded T3/T4, i had such a hard time with fluctuating levels, i'm a bit skittish to taking again. I also don't need to be so out of whack I can't get anything done! is a dilemma. really want to correct thru diet, supplements if can. let my body fix itself. shoot.
I also have had chronic sinusitus for most of my life as do all my family. interesting info about that. thanks.
look fwd to hearing more from you.
be well,
Share
Glad to have you with us.
Thanks for info on supplements, way to get tumeric in regularly. You are 2nd person to mention D3. I will explore as supplement as well as in UV light traetment.
yes, thyroid has been an issue for a long time now. am really feeling it lately. environmental doc suggested metabolic panel. prety sure its not the same one original doc used for thyroid. need to explore further.
when taking compounded T3/T4, i had such a hard time with fluctuating levels, i'm a bit skittish to taking again. I also don't need to be so out of whack I can't get anything done! is a dilemma. really want to correct thru diet, supplements if can. let my body fix itself. shoot.
I also have had chronic sinusitus for most of my life as do all my family. interesting info about that. thanks.
look fwd to hearing more from you.
be well,
Share
sharewithme
11-20-2007, 11:57 AM
Greetings all:
I want to reply to all that's been written but time won't allow. Instead I opted to tell you that I've taken several hits lately. Has been fairly minor but is getting worse. I am pretty concerned as I realized that I am not getting a lot done and several symptoms appeared yesterday that are not good. I realized that some of what I've been dealing with for a while now are not just fluctuations but rather are cumulative and have become pronounced enough that I must do something about them. Worrisome sign for me. I haven't said anything as I am SO MUCH BETTER in so many ways, I am trying to focus on positive, not let difficulties get me down so much. This is why I decided to see environmental Dr and have been asking so many questions about therapies. Also, this place here, where I am presently staying, is bad for chemicals and occasional exposure to people (& things) fleeing moldy homes. Not everyone is careful to protect others from cross contamination, not even when they know better.
I found out yesterday that a place where I have been to buy clothing several times in the last 2 weeks and where I ate several days ago, has toxic mold being "cleaned up" next door thru a common area. Both places are owned by the same company, one clothing the other furniture. A manager told me about it, said stay away from there! Turns out she got very sick from working there a couple of years ago. We bonded over mold allergy. I "knew" when I first saw their other business 2 weeks ago that I did not want to go there and yesterday felt a strong aversion to going near the common area! I also thought Sunday that "I shouldn't eat here". I then went into intellectual caw caw and so, rationalized away that warning instead of just listening and asking myself, why? I think if I can remember to do that, I will realize it is a feeling of apprehension. Since i am not a particularly fearful person but rather adventuresome and inquisitive by nature, this should set off alarm bells for me. I can't tell you how many times in my life, I have had feelings, knowledge, insights, etc. regarding various situations (certainly not limited to mold/chemicals) which proved uncannily accurate. I am fairly psychic and have had quite a few life altering experiences with it. Still it is hard these days to tune into this more subtle aspect of the gift. It comes as a dispassionate thought form, usually no emotion at all and is so quiet, often presents itself as a fleeting thought.
Cultivated, this intuitive ability is a blessing, as it can keep me safe from too much exposure. Also I want and need to be more attuned, then you see, I flow with life in a way that is quite wonderful. It is like a dance actually. When I am in step, moving with grace, in sync with this part of me that is truly connected to all life around me, connected to the world as I move through it, with it -- life is full of wonder in a way that is hard to describe. I feel a connection that is empowering and humbling all at the same time. I experience this in others as well. Often in sync with my own experiences. It's an important part of who I am in the world.
It's uplifting to me, to recognize that I "got it" ahead of time. My intuition warned me of the danger. I will hold that truth near to my heart and mind , use that awareness to inspire me.
I am also being very much affected by man made chemicals on a regular basis. Had to face fact that being around new clothes (stuff) is a real problem. I have not figured out how to buy safe used clothing yet. And cannot afford organic. Need clothes now, don't have time to learn to sew everything. I was buying these other clothes at great savings and so, was lured in. Thrift stores are out of the question as I've taken too many mold hits that way. Is super weird for me as I am the queen of used, made my living that way, for over 35 years, almost never biought anything new! I do not like a lot about this way of dressing, shopping, etc. Quite simply, it isn't me. I never did llike new stuff, too many chemicals. Get this, that same manager said they are wrapping clothing in plastic then spraying boxes with clothes in them with insecticides before shipping. Girl in receiving got sick from it. To stay away from boxes. I said all the above is toxic! She agreed.
No wonder I'm having a hard time. I'll be honest, I can't figure out what to do. I must have business attire and really needed just plain old every day jeans, etc. Two huge chain discount stores also affected me. In one, I approached an area where clothes are and started vibrating immediately. We have joked and called me the mold geiger counter. I assume it was mold by my symptoms. I was already reactive to new stuff. A remediation specialist who is a real scientist (& very nice person) told me once, mold is everywhere, even new stuff can come in contact with it. Trust yourself. If it doesn't feel right, get the hell away from it. Good advice. Important awareness.
What will I do when its time to buy furniture? I literally need everything.... I did not do well at all with remediatioin. I wish that was not so. I miss my stuff.
I need a good home base very much!!!! I have almost gotten all in order so as to pass muster when applying with people to share their home space. They practically want your first borne these days. Can't say as I blame them, after all it is their home I will be sharing. I'd probably do the same.
And a car. I need a safe, reliable used car.
Pray for me that soon, soon I will find the right person/place to live for some time to come. Affordable rent, like spirited folk, healthy environment. And a safe, reliable car. Very important also. Buses are not good option here, everything is too spread out and they don't run half the time, like Sundays!
And that I will find right combination to aid my body in healing. So I can grow stronger, healthier, progress in becoming less sensitive again.
I may need to camp out for a few nights to "clear" some. I've been thinking about it a good bit lately. Just accept that I need that time for my healing.
I miss the fresher air of the greater outdoors. I'll work outside today, no rain, got stuff to do it with last night. I'll feel better for it, I'm sure.
In Peace,
Share
I want to reply to all that's been written but time won't allow. Instead I opted to tell you that I've taken several hits lately. Has been fairly minor but is getting worse. I am pretty concerned as I realized that I am not getting a lot done and several symptoms appeared yesterday that are not good. I realized that some of what I've been dealing with for a while now are not just fluctuations but rather are cumulative and have become pronounced enough that I must do something about them. Worrisome sign for me. I haven't said anything as I am SO MUCH BETTER in so many ways, I am trying to focus on positive, not let difficulties get me down so much. This is why I decided to see environmental Dr and have been asking so many questions about therapies. Also, this place here, where I am presently staying, is bad for chemicals and occasional exposure to people (& things) fleeing moldy homes. Not everyone is careful to protect others from cross contamination, not even when they know better.
I found out yesterday that a place where I have been to buy clothing several times in the last 2 weeks and where I ate several days ago, has toxic mold being "cleaned up" next door thru a common area. Both places are owned by the same company, one clothing the other furniture. A manager told me about it, said stay away from there! Turns out she got very sick from working there a couple of years ago. We bonded over mold allergy. I "knew" when I first saw their other business 2 weeks ago that I did not want to go there and yesterday felt a strong aversion to going near the common area! I also thought Sunday that "I shouldn't eat here". I then went into intellectual caw caw and so, rationalized away that warning instead of just listening and asking myself, why? I think if I can remember to do that, I will realize it is a feeling of apprehension. Since i am not a particularly fearful person but rather adventuresome and inquisitive by nature, this should set off alarm bells for me. I can't tell you how many times in my life, I have had feelings, knowledge, insights, etc. regarding various situations (certainly not limited to mold/chemicals) which proved uncannily accurate. I am fairly psychic and have had quite a few life altering experiences with it. Still it is hard these days to tune into this more subtle aspect of the gift. It comes as a dispassionate thought form, usually no emotion at all and is so quiet, often presents itself as a fleeting thought.
Cultivated, this intuitive ability is a blessing, as it can keep me safe from too much exposure. Also I want and need to be more attuned, then you see, I flow with life in a way that is quite wonderful. It is like a dance actually. When I am in step, moving with grace, in sync with this part of me that is truly connected to all life around me, connected to the world as I move through it, with it -- life is full of wonder in a way that is hard to describe. I feel a connection that is empowering and humbling all at the same time. I experience this in others as well. Often in sync with my own experiences. It's an important part of who I am in the world.
It's uplifting to me, to recognize that I "got it" ahead of time. My intuition warned me of the danger. I will hold that truth near to my heart and mind , use that awareness to inspire me.
I am also being very much affected by man made chemicals on a regular basis. Had to face fact that being around new clothes (stuff) is a real problem. I have not figured out how to buy safe used clothing yet. And cannot afford organic. Need clothes now, don't have time to learn to sew everything. I was buying these other clothes at great savings and so, was lured in. Thrift stores are out of the question as I've taken too many mold hits that way. Is super weird for me as I am the queen of used, made my living that way, for over 35 years, almost never biought anything new! I do not like a lot about this way of dressing, shopping, etc. Quite simply, it isn't me. I never did llike new stuff, too many chemicals. Get this, that same manager said they are wrapping clothing in plastic then spraying boxes with clothes in them with insecticides before shipping. Girl in receiving got sick from it. To stay away from boxes. I said all the above is toxic! She agreed.
No wonder I'm having a hard time. I'll be honest, I can't figure out what to do. I must have business attire and really needed just plain old every day jeans, etc. Two huge chain discount stores also affected me. In one, I approached an area where clothes are and started vibrating immediately. We have joked and called me the mold geiger counter. I assume it was mold by my symptoms. I was already reactive to new stuff. A remediation specialist who is a real scientist (& very nice person) told me once, mold is everywhere, even new stuff can come in contact with it. Trust yourself. If it doesn't feel right, get the hell away from it. Good advice. Important awareness.
What will I do when its time to buy furniture? I literally need everything.... I did not do well at all with remediatioin. I wish that was not so. I miss my stuff.
I need a good home base very much!!!! I have almost gotten all in order so as to pass muster when applying with people to share their home space. They practically want your first borne these days. Can't say as I blame them, after all it is their home I will be sharing. I'd probably do the same.
And a car. I need a safe, reliable used car.
Pray for me that soon, soon I will find the right person/place to live for some time to come. Affordable rent, like spirited folk, healthy environment. And a safe, reliable car. Very important also. Buses are not good option here, everything is too spread out and they don't run half the time, like Sundays!
And that I will find right combination to aid my body in healing. So I can grow stronger, healthier, progress in becoming less sensitive again.
I may need to camp out for a few nights to "clear" some. I've been thinking about it a good bit lately. Just accept that I need that time for my healing.
I miss the fresher air of the greater outdoors. I'll work outside today, no rain, got stuff to do it with last night. I'll feel better for it, I'm sure.
In Peace,
Share
Bearygood
11-20-2007, 01:39 PM
moldman, don't know about the lowered enzymes; I just know there was an interesting study done about the increased sensitivity/response to "normal" molds in people with chronic sinusitis. My doctor wants me to have endoscopic sinus surgery but I'm not ready to do it for a variety of reasons. I spoke to a different doctor's office yesterday -- he is actually an allergist, not an ENT, and has "reportedly" successfully treated patients with recurrent sinusitis in other ways although I was relieved to hear that he does not always advise not to have surgery. (That would have made me more skeptical.) In the meantime, someone recommended an over the counter spray that I'm probably going to try. Interesting to note that it's an anti-fungal. Also going to try to resume better habits with my Netti pot and I found a good recipe for it -- again, anti-fungal. We'll see! If your sinuses are dry and you have problems, I'd highly recommend you trying to keep them moister.
No, shots had nothing to do with MS and I'm not sure they ever do (there is good evidence that they might be implicated in autism though). I believe that there is a predisposition (possibly created by a virus like EBV) or perhaps other factors and then it's "triggered" by something. Montel Williams believes a vaccine he received "catalyzed" his MS but didn't cause it -- I do buy that.
There can also be genetic and/or hereditary factors (they really are two different things). I believe there are more subsets of the 4 types of MS currently known and there is more than one cause; we did not all get here the same way.
I'm not sure about my parathyroid function specifically but my panels overall were fine. Re: calcium, don't know. There have been other incidents in my life that are now seemingly attributable to MS but with many years in-between. I think that something knocked it out of dormancy and in terms of mold, it might be the connection between the respiratory impact to my sinuses and then the bacterial connection to MS. (Bacteria is a hot, disputed topic among people with MS but like I said before, I think that several things can cause it and I believe bacteria is one of them.)
The only things I take for MS are supplements. Even with medication on the market, there is no cure and and no guarantee that they'll halt or delay progression. Any honest doctor will tell you that it's a crap shot either way so with that, I'm not going to run and put interferon in my body. My sx are thankfully very mild, at least so far.
No, shots had nothing to do with MS and I'm not sure they ever do (there is good evidence that they might be implicated in autism though). I believe that there is a predisposition (possibly created by a virus like EBV) or perhaps other factors and then it's "triggered" by something. Montel Williams believes a vaccine he received "catalyzed" his MS but didn't cause it -- I do buy that.
There can also be genetic and/or hereditary factors (they really are two different things). I believe there are more subsets of the 4 types of MS currently known and there is more than one cause; we did not all get here the same way.
I'm not sure about my parathyroid function specifically but my panels overall were fine. Re: calcium, don't know. There have been other incidents in my life that are now seemingly attributable to MS but with many years in-between. I think that something knocked it out of dormancy and in terms of mold, it might be the connection between the respiratory impact to my sinuses and then the bacterial connection to MS. (Bacteria is a hot, disputed topic among people with MS but like I said before, I think that several things can cause it and I believe bacteria is one of them.)
The only things I take for MS are supplements. Even with medication on the market, there is no cure and and no guarantee that they'll halt or delay progression. Any honest doctor will tell you that it's a crap shot either way so with that, I'm not going to run and put interferon in my body. My sx are thankfully very mild, at least so far.
Bearygood
11-20-2007, 01:48 PM
Share, when you say compounded T3/T4, do you mean Armour? Well, even if not, it sounds like synthetic might be the way to go. Some people do have problems with natural because it's inconsistent. If you're underactive, you do have to have it treated though --when I was dxed I was seriously toxic and if left untreated, would not be here to post on this board.
The sinus thing seems to be a vicious cycle -- allergens/molds make it occur and then with each bout, the sensitivity increases. That REALLY made sense to me.
Vitamin D3 is interesting to read about. It actually acts in the body as a hormone. You CAN overdo it though so make sure you research thoroughly. Anything over 4,000 a day should not be taken without the advice of a physician and even then, that's a pretty high dose. I can talk to you more about this if you want -- I take D3 because there is some support that it can help MS. Oh -- and if you DO wind up taking Synthroid for your thyroid, you must supplement with calcium w/D anyway -- any synthetic hormone can weaken the bone.
Share, so sorry to read about all you're going through. I hope things turn around soon!
The sinus thing seems to be a vicious cycle -- allergens/molds make it occur and then with each bout, the sensitivity increases. That REALLY made sense to me.
Vitamin D3 is interesting to read about. It actually acts in the body as a hormone. You CAN overdo it though so make sure you research thoroughly. Anything over 4,000 a day should not be taken without the advice of a physician and even then, that's a pretty high dose. I can talk to you more about this if you want -- I take D3 because there is some support that it can help MS. Oh -- and if you DO wind up taking Synthroid for your thyroid, you must supplement with calcium w/D anyway -- any synthetic hormone can weaken the bone.
Share, so sorry to read about all you're going through. I hope things turn around soon!
moldman
11-20-2007, 02:20 PM
Beary,
Tell me more about bacteria and MS.
Share,
The urge to go into a place that you know is not good for you is not unsual. According to Randolph's Addiction/Allergy theory (they are one in the same) the urge to expose yourself to an antigen is biologically based so it is hard for the mind to override.
For a lot of xenobiotics (cool name for things foreign to the body) the adrenals kick in with their steroids to try to knock them down. If you understand that you initially get a boost ( a high, a kick) before you feel low (metabolic energy expended and toxins released) then you can see why you might want to go into somewhere that you know intellectually won't be good because your body has a memory of the initial boost it got when it was in that situation. Allergy/Addiction (it demystifies and destigmatizes addiction as if it were some personality or moral fault).
Clothes -
What a mess.
Chemical people react to synthetics. Permanent press is made so with formaldehyde (embalming fluid), there is a thread on these boards where someone had an itching reaction to cotton. I didn't understand until I bought some cotton clothes made in a foreign country that felt like FIBERGLASS on my skin. I have no idea if it was poorly processed fibers or that the chemicals banned in the US are shipped to foreign countries and cotton is the most heavily pesticide dosed plant on Earth.
The Environmental Health people say to stay away from pine furniture. I find Oak unbearable. Maple is neutral for me. Metal is OK if it does not have machine oil or enamel that isn't offgassed. Then you run into the same problems with cushions as you do with clothes.
It might have been Sherry Rogers in one of her books that said Environmental Illiness is the Rich Man's disease. You spend all you money trying to figure out what you have then you spend all the rest of your money trying to fix it.
Mold is Everywhere.
That is a fact.
Global warming is increasing the amount, and types of diseases we are seeing. The midwest is so warm (I think I saw some polar bears drift by on chunks of iceberg on Lake Michigan) that the normal insect pests and microbes that would die off from brutal winters are now lingering throughout the winter. We may be farming in Canada soon.
Tell me more about bacteria and MS.
Share,
The urge to go into a place that you know is not good for you is not unsual. According to Randolph's Addiction/Allergy theory (they are one in the same) the urge to expose yourself to an antigen is biologically based so it is hard for the mind to override.
For a lot of xenobiotics (cool name for things foreign to the body) the adrenals kick in with their steroids to try to knock them down. If you understand that you initially get a boost ( a high, a kick) before you feel low (metabolic energy expended and toxins released) then you can see why you might want to go into somewhere that you know intellectually won't be good because your body has a memory of the initial boost it got when it was in that situation. Allergy/Addiction (it demystifies and destigmatizes addiction as if it were some personality or moral fault).
Clothes -
What a mess.
Chemical people react to synthetics. Permanent press is made so with formaldehyde (embalming fluid), there is a thread on these boards where someone had an itching reaction to cotton. I didn't understand until I bought some cotton clothes made in a foreign country that felt like FIBERGLASS on my skin. I have no idea if it was poorly processed fibers or that the chemicals banned in the US are shipped to foreign countries and cotton is the most heavily pesticide dosed plant on Earth.
The Environmental Health people say to stay away from pine furniture. I find Oak unbearable. Maple is neutral for me. Metal is OK if it does not have machine oil or enamel that isn't offgassed. Then you run into the same problems with cushions as you do with clothes.
It might have been Sherry Rogers in one of her books that said Environmental Illiness is the Rich Man's disease. You spend all you money trying to figure out what you have then you spend all the rest of your money trying to fix it.
Mold is Everywhere.
That is a fact.
Global warming is increasing the amount, and types of diseases we are seeing. The midwest is so warm (I think I saw some polar bears drift by on chunks of iceberg on Lake Michigan) that the normal insect pests and microbes that would die off from brutal winters are now lingering throughout the winter. We may be farming in Canada soon.
Bearygood
11-20-2007, 02:48 PM
Essentially, that is can be caused by bacteria. Interesting to note that Lyme is and that the diseases present in much the same way (lesions and sx). One of the commonly suspected bacterias amongst believers is Chlamydia Pneumoniae and some patients have reported success by treating their MS with antibiotic protocol. Although I'm not doing this, this possible connection and the fact that I have recurrent sinusitis might explain my interest -- and also why I think that mold may have played a factor in bringing me toward a dx. Mold and sinusitis, definitely bacteria related and MS (or I should really say MY MS)...maybe. ;)
suggi
11-20-2007, 05:00 PM
Hi all
Wondering if any of you have heard of fungal balls in the sinuses. I read somewhere on the net about a person who had a CT scan because of bad chronic sinusitis and the doc operated on what he assumed was a tumor. It turned out to be a mold fungal ball and was close enough to the brain to have been fatal if not treated when it was. Certainly glad it was not cancer but it sounds like just as fatal. I guess once that gets into the brain you are a goner. I have also heard of fungal balls in the lungs.
I have been getting winded easily lately and sometimes wonder if it is just old age or a fungal ball with my mold exposure history. Don't like xrays to the chest area as I have had quite a few esp around the time of the hyperthyroidism. Sure do not want the cancer back.....there is no way to check the side of the mastectomy, no ultrasound, no nothing. Just the usual mammogram on the other side. What if it returned on the mastectomy side???? How would I know. Doc just feels my ribs and under my arm when I go but my visits have been cut down to every 8 months and then it will be every year, and so on. And yet they say it can return even 10 years later. I am fairly certain the mold caused 99% of my health problems.
Too bad the world doesn't want to acknowledge how bad mold really is. If I do ever finish working on the house and put it up for sale and actually sell it how do I know wherever I move to that there is no cover up like they had here. Who is to say whether they ever had a mold problem and fixed it correctly. The way people fix is take some bleach to it and forget about it. It doesn't work that way. Bleach is not EPA approved for mold remediation esp. on wood. the water in the bleach seeps into the wood and makes the problem worse. It may kill the mold on hard surfaces but dead mold spores are just as dangerous as live ones. They also carry mycotoxins which disperse into the air and into your lungs and mold spores love to live in dust. I try hard to keep up with my dusting but it is impossible. I am just sooooo tired and try so hard.
Try to stay away from carpeting. that harbors mold spores like crazy. I have (damaged) hardwood floors and the 1st level which is level with the street and driveway and half underground in the back has wall to wall indoor/outdoor carpeting as the concrete and broken ASBESTOS tiles under the carpet are uneven so it would cost a fortune to take care of so when we had the mold remediation they put new carpet in. However, I have been scared stiff to shampoo it for fear it would not dry - remains humid down there even with the dehumidifier going so now that the temps have dropped I am trying to get 2 good days with low humidity that I can keep the windows open and the dehumidifier going and spray with Benefect Disinfectent spray made with thyme (also a fungicide) and wipe and maybe not wet it too much. At 69years old I have trouble on my hands and knees but will have to do the whole carpet that way. Have to do it before it is in the 30's during the day so I can still wash out the dehumidifier filter and bucket outside and put it away for the winter. Time is running out but the weather has been against me.
Any other suggestions for washing the carpet - hasn't been done and it is 1 1/2 years. I vacuum regularly but the dehumidifier bucket gets black where the water runs down even the day after I wash it out and I empty it every day so I assume it is not mold but dirt from the carpet. The other dehumidifiers do not have this problem and there is no carpet either.
Thanks much
Suggi
Wondering if any of you have heard of fungal balls in the sinuses. I read somewhere on the net about a person who had a CT scan because of bad chronic sinusitis and the doc operated on what he assumed was a tumor. It turned out to be a mold fungal ball and was close enough to the brain to have been fatal if not treated when it was. Certainly glad it was not cancer but it sounds like just as fatal. I guess once that gets into the brain you are a goner. I have also heard of fungal balls in the lungs.
I have been getting winded easily lately and sometimes wonder if it is just old age or a fungal ball with my mold exposure history. Don't like xrays to the chest area as I have had quite a few esp around the time of the hyperthyroidism. Sure do not want the cancer back.....there is no way to check the side of the mastectomy, no ultrasound, no nothing. Just the usual mammogram on the other side. What if it returned on the mastectomy side???? How would I know. Doc just feels my ribs and under my arm when I go but my visits have been cut down to every 8 months and then it will be every year, and so on. And yet they say it can return even 10 years later. I am fairly certain the mold caused 99% of my health problems.
Too bad the world doesn't want to acknowledge how bad mold really is. If I do ever finish working on the house and put it up for sale and actually sell it how do I know wherever I move to that there is no cover up like they had here. Who is to say whether they ever had a mold problem and fixed it correctly. The way people fix is take some bleach to it and forget about it. It doesn't work that way. Bleach is not EPA approved for mold remediation esp. on wood. the water in the bleach seeps into the wood and makes the problem worse. It may kill the mold on hard surfaces but dead mold spores are just as dangerous as live ones. They also carry mycotoxins which disperse into the air and into your lungs and mold spores love to live in dust. I try hard to keep up with my dusting but it is impossible. I am just sooooo tired and try so hard.
Try to stay away from carpeting. that harbors mold spores like crazy. I have (damaged) hardwood floors and the 1st level which is level with the street and driveway and half underground in the back has wall to wall indoor/outdoor carpeting as the concrete and broken ASBESTOS tiles under the carpet are uneven so it would cost a fortune to take care of so when we had the mold remediation they put new carpet in. However, I have been scared stiff to shampoo it for fear it would not dry - remains humid down there even with the dehumidifier going so now that the temps have dropped I am trying to get 2 good days with low humidity that I can keep the windows open and the dehumidifier going and spray with Benefect Disinfectent spray made with thyme (also a fungicide) and wipe and maybe not wet it too much. At 69years old I have trouble on my hands and knees but will have to do the whole carpet that way. Have to do it before it is in the 30's during the day so I can still wash out the dehumidifier filter and bucket outside and put it away for the winter. Time is running out but the weather has been against me.
Any other suggestions for washing the carpet - hasn't been done and it is 1 1/2 years. I vacuum regularly but the dehumidifier bucket gets black where the water runs down even the day after I wash it out and I empty it every day so I assume it is not mold but dirt from the carpet. The other dehumidifiers do not have this problem and there is no carpet either.
Thanks much
Suggi
sharewithme
11-21-2007, 01:56 AM
Hi everybody!
Suggi: Fungal balls, you betcha. I've personally passed 2 of the super nasty things. YUCK. Obviously they didn't kill me. Sure is a good thing they came out, I was super sick, like I had the flu for months and months. It was app. 8 months after taking a motherlode mold hit in the Turkish baths in Istanbul 1997 that I passed them. Super bad place for people with mold allergy, too bad I didn't know I had it. Bummer is I didn't even enjoy massage.....I could hardly breathe through my nose for a long time. Had a lot of headaches, drainage, snored something terrible -- all got so much better when moved out of moldy house, is simply amazing. Still not where I want to be though. Am trying to get back in habit with sinal washing.
The thing I deal with now is more related to my ears itching and getting soupy, also I have spasmodic breathing, I think it's also called hiccup asthma. Symptoms are very quick with exposure to both mold and chemicals.
Thanks for reminder about carpeting. I'll be as careful as i can. Sounds like you know more than I do about how to clean carpet. I know it must be very difficult trying to keep up with daily chores with only the one arm. Not to mention addtl stuff we must do with mold prevention, etc. You persevere Suggi. I respect that.
Beary: sounds like you are coping pretty well with ms without drugs. good for you. mold can be super nasty stuff, can't it? and chemicals are so overdone in the world, it's frightening. i think we are seeing many people with mcs who don't know it. i am amazed at how many people talk to me about such and such a chemical they have trouble with. i point out, where there is one area of sensitivity there is room for more...
the compounded t3/t4 i took was a synthetic form of thyroid, have forgotten the name, different one than synthroid. it was made to order (compounded) based on my specific needs. expensive. worked at first then my levels began fluctuating and i'd go hypo, then hyper, my adrenals were so burned out, levels were in my sox --oh boy it was awful, i felt terrible. that wa when i lived in moldy house. I need to understand what is going with me now and if there is a possibilty of iodine ingestion using seaweed or kelp, then i'm all for it. even though i'm not sure how i will manage the flavor long term. right now, i just want to get better so i'm doing it. hopefully getting enough, i'm just eating it out of the bag until my body says enough. so far doesn't taste bad to me at all, just salty. am being careful of snail shells, etc. thanks.
Thank you, I really appreciate specific doses on D3. I will read about it very thoroughly and may very well need to talk with you again. I understand women past a certain age can become deficient in D3 very easily.
I appreciate your kind support. it helps me.
MM:
so much to say, as usual....yes those warm winters are a real problem. i've been thinbking on this very subject for some time now.
i need to reread and think about several things we've been talking about. Tomorrow I'm going to sit outside at a local coffee shop to do emails, etc and so will respond then to you. until then...
your genuine concern for others is uplifting. I hold this in very high esteem.
Studio:
I hoope you are getting the help you need. This is a very difficult time, when you are realizing the depth of what has happened to you. The losses can be overwhelming. You are considerate of others, while still having the fighter in ya! admirable qualities.
To All:
My prayer for you,
May you have many, many more good days than bad; may you find the answers you seek; may all those you need and care about hear your truth and respect it; may you experience a profound healing in your life; may you always love and be loved.
In peace,
Share
Suggi: Fungal balls, you betcha. I've personally passed 2 of the super nasty things. YUCK. Obviously they didn't kill me. Sure is a good thing they came out, I was super sick, like I had the flu for months and months. It was app. 8 months after taking a motherlode mold hit in the Turkish baths in Istanbul 1997 that I passed them. Super bad place for people with mold allergy, too bad I didn't know I had it. Bummer is I didn't even enjoy massage.....I could hardly breathe through my nose for a long time. Had a lot of headaches, drainage, snored something terrible -- all got so much better when moved out of moldy house, is simply amazing. Still not where I want to be though. Am trying to get back in habit with sinal washing.
The thing I deal with now is more related to my ears itching and getting soupy, also I have spasmodic breathing, I think it's also called hiccup asthma. Symptoms are very quick with exposure to both mold and chemicals.
Thanks for reminder about carpeting. I'll be as careful as i can. Sounds like you know more than I do about how to clean carpet. I know it must be very difficult trying to keep up with daily chores with only the one arm. Not to mention addtl stuff we must do with mold prevention, etc. You persevere Suggi. I respect that.
Beary: sounds like you are coping pretty well with ms without drugs. good for you. mold can be super nasty stuff, can't it? and chemicals are so overdone in the world, it's frightening. i think we are seeing many people with mcs who don't know it. i am amazed at how many people talk to me about such and such a chemical they have trouble with. i point out, where there is one area of sensitivity there is room for more...
the compounded t3/t4 i took was a synthetic form of thyroid, have forgotten the name, different one than synthroid. it was made to order (compounded) based on my specific needs. expensive. worked at first then my levels began fluctuating and i'd go hypo, then hyper, my adrenals were so burned out, levels were in my sox --oh boy it was awful, i felt terrible. that wa when i lived in moldy house. I need to understand what is going with me now and if there is a possibilty of iodine ingestion using seaweed or kelp, then i'm all for it. even though i'm not sure how i will manage the flavor long term. right now, i just want to get better so i'm doing it. hopefully getting enough, i'm just eating it out of the bag until my body says enough. so far doesn't taste bad to me at all, just salty. am being careful of snail shells, etc. thanks.
Thank you, I really appreciate specific doses on D3. I will read about it very thoroughly and may very well need to talk with you again. I understand women past a certain age can become deficient in D3 very easily.
I appreciate your kind support. it helps me.
MM:
so much to say, as usual....yes those warm winters are a real problem. i've been thinbking on this very subject for some time now.
i need to reread and think about several things we've been talking about. Tomorrow I'm going to sit outside at a local coffee shop to do emails, etc and so will respond then to you. until then...
your genuine concern for others is uplifting. I hold this in very high esteem.
Studio:
I hoope you are getting the help you need. This is a very difficult time, when you are realizing the depth of what has happened to you. The losses can be overwhelming. You are considerate of others, while still having the fighter in ya! admirable qualities.
To All:
My prayer for you,
May you have many, many more good days than bad; may you find the answers you seek; may all those you need and care about hear your truth and respect it; may you experience a profound healing in your life; may you always love and be loved.
In peace,
Share
sharewithme
11-22-2007, 11:31 AM
Greetings All:
Finally! I got enough accomplished today that I don't feel like I'm falling backwards into a hole but am actually getting somewhere. Have several people to meet with in next 2 days re: buying a used car. Decided to focus on getting a civic as economical in all respects and hopefully, reliable. Let's pray one of them works out. Really need that resolved.
My Dr told me to take GSE internally if I take a mold hit (had no suggestion for chemical hit). what do you do?
as you know he also told me to use GSE laundry detergent to salvage clothes that didn't take a bad hit and als0 occassionally for maintenance. It's super expensive and makes me itch. I'm washing with it then washing again with free & clear! what do you do?
Am in need of cleaning supplies which begs the question, what do y'all use that isn't too expensive, works, and doesn't bother your mcs?
for laundry detergent -- I've used 7thy generation free & clear w/ fair success, what do you use?
stove top, sink and bathroom cleanser -- i've used bon ami and on toilet bac out, know anything else?
glass - vinegar water, 7th generation free & clear all purpose, any other
suggestions?
what about shampoo? one of the symptoms that has crept up for me again, is an itchy scalp. i've been using neem shampoo, very expensive. can anyone recommend shampoo good for itchies (i think caused by fungus on scalp) and one that is good for all around just get your hair clean, maybe even a little clarifying to boot, that's affordable and not harsh for mcs?
what's the word on water? is distilled better than ionized in anyone's opinion? of course, i know, if could use glass containers better but not possible for me right now. i had well water for years, this has been a big adjustment but was what was recommended. no floridation, etc, makes sense to me and i use it exclusively for cooking and drinking. i've been buying 1 gallon distilled. is worth it to me what do you think? any suggestions on what not to buy when it comes to this?
Am on Vitamin B complex again. wonder if feeling better is related. also have incorporated daily chew on kelp, zinc picolinate, vitamin c, and phosphatidyl choline to what already taking. is it possible to discuss levels? will explore vitamin d3 internally further later. still need aminos and enough sulfur foods.
MM:
thanks for info on synthetics and woods. already hip to metal. had fiberglass on skin experience myslef. awful. i wonder, what is happening to the drinking water in those countriues?
Sherry Rogers said it well, unfortunately.
My sinuses were too dry sometimes out west, I feel for you. must hurt.
kelp instructions, thanks! i'll remember about seaweed next time...
salt as deordorant, oh yeah, i forgot. i meant mineral stone not salt.
i appreciate support to not act out of desperation. that really helped me. "trust your gut" something i belive in very much. always better to have the facts before doing something so important, yes, i agree.
"militarization of medicine" [FONT="Comic Sans MS"][SIZE="3"]thank you vry much. they were so weird. i told them, you need to learn how to be kind. one nurse laughed and did something for me he wasn't supposed to do, i rather like that fellow. had the courage to just do it, ya know?
nothing has changed... sadly that is all too true.
Let's examine this: Even if a patient is confrontational with a physician their oath is to heal the patient... touche'. i am laughing now as is a tragically humorous truth. (i cried at first, overwhelmed with emotion at being understood) it's kinda obvious you've had too much personal experience with this crap way of thinking/being. rather disheartening isn't it?
I know that you would like to harbor warm feelings for the nurses... not really. i heard them more than once making fun of me and so, true to form , confronted them on being unprofessional jerks. I was at the hospital for several days as I was actually sick and did need medical care. I finally got a human for a Dr., who transferred me to another area when i told him what they were doing. there they treated me with care and respect. He couldn't get the 1013 rescinded but he did try to help me. ordered some imporatnt tests which revealed what i am dealing with now -- 3 fibroid tumors in uterus and 1 ovarian cyst. all are painful. i will go to health dept. next week for pap and consult. need to explore what can be done. know about surgery. do not want to go that route obviously, but i am c9ncerned as i bleed when exposed to mold and periods are way too heavy and painful. i am convinced chemical toxicity is original cause. mold definitley affects my hormones and since i am at a pivotal point in life, easy easy for dr's to assume age is only cause. grrr.
journaling! criminy, i forgot to get one. dad gum it! need to do that. shoot.
f[COLOR="Black"]free ourselves from victim mentality of this disease...yes, a long hard won lesson that. is hard to express feelings and not at least sound like it. hmmm. i am listening. thanks for feedback, it is so easy to be in that place and not even know it, especially with chronic condition.
yep, writing to the bureaucracy is something you do for emotional release, not to get results. for that you go and see people in person. of course you are fighting an uphill battle against a rip tide but heh! sometimes it's worth it. i'm still thinking about what i want/need to do. i speak out all the time but i am in need to say something to several people who treated me unkindly in this whole process, including some people i know. i'm letting time aid me in working thru my emotions so i will be able to speak to this as an advocate for myself in every respect.
which brings me to today. am seeing family in an hour. if brother asks questiions, i will not discuss with him. he is not safe person for me. I realize i am very angry with him for damage he has done in my life. when he entered picture and started telling people "about me" it was unbelievable, like someone threw a switch. i knew something bad happened, too pronounced a change. finally somebody who knows history of him w/ my sister and who i still trust warned me, watch out, he's out for your throat. really and truly damaged me in the world. a family friend who my brother tried to spill poison to but who knows what he is like, has come fwd to aid me. there are those who can see the truth. including now my parents, thanks be. without their help in getting house refinanced i would be in deep trouble still. and believe me, they are violently opposed to drugs, if they thought even a whiff of 'em, they wouldn't see me much less sign on the dotted line, ya know? so for all ours sake, i want/need to have today be peaceful with them. be a day of thanks. i must do something about feelings with brother though. quite simply, he has harmed me too many times.
okay, i need to prepare here. i am thankful for second chances in life. i am thankful for those who pursue the truth and persevere with it. i am thankful for kindness in others. i am thankful for all of you. I am thankful for healing power in my life.
in peace and with best wishes for a loving and hopefully, joyful holiday season,
Share
Finally! I got enough accomplished today that I don't feel like I'm falling backwards into a hole but am actually getting somewhere. Have several people to meet with in next 2 days re: buying a used car. Decided to focus on getting a civic as economical in all respects and hopefully, reliable. Let's pray one of them works out. Really need that resolved.
My Dr told me to take GSE internally if I take a mold hit (had no suggestion for chemical hit). what do you do?
as you know he also told me to use GSE laundry detergent to salvage clothes that didn't take a bad hit and als0 occassionally for maintenance. It's super expensive and makes me itch. I'm washing with it then washing again with free & clear! what do you do?
Am in need of cleaning supplies which begs the question, what do y'all use that isn't too expensive, works, and doesn't bother your mcs?
for laundry detergent -- I've used 7thy generation free & clear w/ fair success, what do you use?
stove top, sink and bathroom cleanser -- i've used bon ami and on toilet bac out, know anything else?
glass - vinegar water, 7th generation free & clear all purpose, any other
suggestions?
what about shampoo? one of the symptoms that has crept up for me again, is an itchy scalp. i've been using neem shampoo, very expensive. can anyone recommend shampoo good for itchies (i think caused by fungus on scalp) and one that is good for all around just get your hair clean, maybe even a little clarifying to boot, that's affordable and not harsh for mcs?
what's the word on water? is distilled better than ionized in anyone's opinion? of course, i know, if could use glass containers better but not possible for me right now. i had well water for years, this has been a big adjustment but was what was recommended. no floridation, etc, makes sense to me and i use it exclusively for cooking and drinking. i've been buying 1 gallon distilled. is worth it to me what do you think? any suggestions on what not to buy when it comes to this?
Am on Vitamin B complex again. wonder if feeling better is related. also have incorporated daily chew on kelp, zinc picolinate, vitamin c, and phosphatidyl choline to what already taking. is it possible to discuss levels? will explore vitamin d3 internally further later. still need aminos and enough sulfur foods.
MM:
thanks for info on synthetics and woods. already hip to metal. had fiberglass on skin experience myslef. awful. i wonder, what is happening to the drinking water in those countriues?
Sherry Rogers said it well, unfortunately.
My sinuses were too dry sometimes out west, I feel for you. must hurt.
kelp instructions, thanks! i'll remember about seaweed next time...
salt as deordorant, oh yeah, i forgot. i meant mineral stone not salt.
i appreciate support to not act out of desperation. that really helped me. "trust your gut" something i belive in very much. always better to have the facts before doing something so important, yes, i agree.
"militarization of medicine" [FONT="Comic Sans MS"][SIZE="3"]thank you vry much. they were so weird. i told them, you need to learn how to be kind. one nurse laughed and did something for me he wasn't supposed to do, i rather like that fellow. had the courage to just do it, ya know?
nothing has changed... sadly that is all too true.
Let's examine this: Even if a patient is confrontational with a physician their oath is to heal the patient... touche'. i am laughing now as is a tragically humorous truth. (i cried at first, overwhelmed with emotion at being understood) it's kinda obvious you've had too much personal experience with this crap way of thinking/being. rather disheartening isn't it?
I know that you would like to harbor warm feelings for the nurses... not really. i heard them more than once making fun of me and so, true to form , confronted them on being unprofessional jerks. I was at the hospital for several days as I was actually sick and did need medical care. I finally got a human for a Dr., who transferred me to another area when i told him what they were doing. there they treated me with care and respect. He couldn't get the 1013 rescinded but he did try to help me. ordered some imporatnt tests which revealed what i am dealing with now -- 3 fibroid tumors in uterus and 1 ovarian cyst. all are painful. i will go to health dept. next week for pap and consult. need to explore what can be done. know about surgery. do not want to go that route obviously, but i am c9ncerned as i bleed when exposed to mold and periods are way too heavy and painful. i am convinced chemical toxicity is original cause. mold definitley affects my hormones and since i am at a pivotal point in life, easy easy for dr's to assume age is only cause. grrr.
journaling! criminy, i forgot to get one. dad gum it! need to do that. shoot.
f[COLOR="Black"]free ourselves from victim mentality of this disease...yes, a long hard won lesson that. is hard to express feelings and not at least sound like it. hmmm. i am listening. thanks for feedback, it is so easy to be in that place and not even know it, especially with chronic condition.
yep, writing to the bureaucracy is something you do for emotional release, not to get results. for that you go and see people in person. of course you are fighting an uphill battle against a rip tide but heh! sometimes it's worth it. i'm still thinking about what i want/need to do. i speak out all the time but i am in need to say something to several people who treated me unkindly in this whole process, including some people i know. i'm letting time aid me in working thru my emotions so i will be able to speak to this as an advocate for myself in every respect.
which brings me to today. am seeing family in an hour. if brother asks questiions, i will not discuss with him. he is not safe person for me. I realize i am very angry with him for damage he has done in my life. when he entered picture and started telling people "about me" it was unbelievable, like someone threw a switch. i knew something bad happened, too pronounced a change. finally somebody who knows history of him w/ my sister and who i still trust warned me, watch out, he's out for your throat. really and truly damaged me in the world. a family friend who my brother tried to spill poison to but who knows what he is like, has come fwd to aid me. there are those who can see the truth. including now my parents, thanks be. without their help in getting house refinanced i would be in deep trouble still. and believe me, they are violently opposed to drugs, if they thought even a whiff of 'em, they wouldn't see me much less sign on the dotted line, ya know? so for all ours sake, i want/need to have today be peaceful with them. be a day of thanks. i must do something about feelings with brother though. quite simply, he has harmed me too many times.
okay, i need to prepare here. i am thankful for second chances in life. i am thankful for those who pursue the truth and persevere with it. i am thankful for kindness in others. i am thankful for all of you. I am thankful for healing power in my life.
in peace and with best wishes for a loving and hopefully, joyful holiday season,
Share
Studiowray
11-22-2007, 03:09 PM
[B][/B
Hi Everyone........HAPPY THANKSGIVING!
I am thankful for discovering this when I did and that I didn't become sicker than I could have.............I don't seem to have the sinus problems associated with this but I did have adrenal exhaustion diagnosed in the first 6 months after I lived in this new apartment, and I moved in there June of 2005. The test for the Adrenals indicated that my Cortisol was extremely low.......Normal levels in morning should be between 13-24 and mine were 8........midday should be between 5-10 mine were 2......mid-afternoon should be 3-8 mine were <1 or minus one! and for the night levels they should be between 1-4 and again mine were minus 1...........that means I was extremely tired........my Doctor put me on Isocort which did improve my situation....I was tested again 6 mos. later and had significant improvement but my DHEA was low so now I take that along with a supplement for estrogen........This is all natural and I have had results from this. I recently asked my Doctor if the pain in my hips, knees and feet were the result of mold exposure and she wrote back in e-mail, YES, this could be the result of mold exposure......and gave me the name of a local (Phoenix) Doctor........Dr. Walter Crinnion and a book called "MOLD WARRIORS". I have Goggled both and ordered the book and also found much information on this Dr. Crinnion............he is a specialist in environmental effects on humans. I have not received the book as of yet.
I hope this will be helpful to all........Dr. Richie Shoenfield is the author of the book and is considered an expert on mold............My doctor said that exposure is worse in some people than others due to genetic inheritance of a gene that slows the ability to detoxify mold.
I recently went to an Herb & Tea shop I hadn't been to for some time and told her what I was going through and she gave me a Detox Tea to drink twice a day........I say it can't hurt..;-) She also mentioned Tea Tree Oil, she said that I should put some in a spray bottle I think diluted with water and spray on all my things.....that the Tea Tree Oil kills mold....Does anyone know of this or have you tried it?
I know everyone is on different treatments for different things but one thing I do along with everything else I'm trying is a daily vitamin by METAGENICS called Women's Wellness Essentials which I get through my Nautropathic Dr.
I really appreciate reading and learning new things on this Board...........thank you all for your inputs and caring............Hope I can help you as well....
One more thing, has anyone taken this blood test called BLL/ZPP?
I spoke with a company about cleaning my things and removal the other day and he said that all the employees get tested 2 x a year with this test. He said it was for testing Mold & Lead in there blood........I'm considering taken this test for proof against my landlord.........I have an attorney going to call landlord......I will let you know what happens....
ALSO: One company suggested I replace old furnace filters with FILTRATE filters, these trap more allergans and dust mites than any other....have not gotten to that yet......I know they cost more but we are worth it! I think you can find them at Home Depot or Loews of one of your own local Hardware stores.........I want to respond to all the posts but I have been off the computer for a few days and had three pages of catching up to read.....just know that I'm thinking, and praying for all of you this Thanksgiving Day.....
Love and light, Studio
Hi Everyone........HAPPY THANKSGIVING!
I am thankful for discovering this when I did and that I didn't become sicker than I could have.............I don't seem to have the sinus problems associated with this but I did have adrenal exhaustion diagnosed in the first 6 months after I lived in this new apartment, and I moved in there June of 2005. The test for the Adrenals indicated that my Cortisol was extremely low.......Normal levels in morning should be between 13-24 and mine were 8........midday should be between 5-10 mine were 2......mid-afternoon should be 3-8 mine were <1 or minus one! and for the night levels they should be between 1-4 and again mine were minus 1...........that means I was extremely tired........my Doctor put me on Isocort which did improve my situation....I was tested again 6 mos. later and had significant improvement but my DHEA was low so now I take that along with a supplement for estrogen........This is all natural and I have had results from this. I recently asked my Doctor if the pain in my hips, knees and feet were the result of mold exposure and she wrote back in e-mail, YES, this could be the result of mold exposure......and gave me the name of a local (Phoenix) Doctor........Dr. Walter Crinnion and a book called "MOLD WARRIORS". I have Goggled both and ordered the book and also found much information on this Dr. Crinnion............he is a specialist in environmental effects on humans. I have not received the book as of yet.
I hope this will be helpful to all........Dr. Richie Shoenfield is the author of the book and is considered an expert on mold............My doctor said that exposure is worse in some people than others due to genetic inheritance of a gene that slows the ability to detoxify mold.
I recently went to an Herb & Tea shop I hadn't been to for some time and told her what I was going through and she gave me a Detox Tea to drink twice a day........I say it can't hurt..;-) She also mentioned Tea Tree Oil, she said that I should put some in a spray bottle I think diluted with water and spray on all my things.....that the Tea Tree Oil kills mold....Does anyone know of this or have you tried it?
I know everyone is on different treatments for different things but one thing I do along with everything else I'm trying is a daily vitamin by METAGENICS called Women's Wellness Essentials which I get through my Nautropathic Dr.
I really appreciate reading and learning new things on this Board...........thank you all for your inputs and caring............Hope I can help you as well....
One more thing, has anyone taken this blood test called BLL/ZPP?
I spoke with a company about cleaning my things and removal the other day and he said that all the employees get tested 2 x a year with this test. He said it was for testing Mold & Lead in there blood........I'm considering taken this test for proof against my landlord.........I have an attorney going to call landlord......I will let you know what happens....
ALSO: One company suggested I replace old furnace filters with FILTRATE filters, these trap more allergans and dust mites than any other....have not gotten to that yet......I know they cost more but we are worth it! I think you can find them at Home Depot or Loews of one of your own local Hardware stores.........I want to respond to all the posts but I have been off the computer for a few days and had three pages of catching up to read.....just know that I'm thinking, and praying for all of you this Thanksgiving Day.....
Love and light, Studio
Bearygood
11-23-2007, 09:40 PM
Share, if you're interested, you can also have your D levels tested. I don't think it's been changed already but I know that there has been talk about the RDA for vitamin D being raised. As we discussed, D3 is the "sunshine" component and actually works as a hormone. Do be careful about heaving dosing unless advised a doctor because this is one of the vitamins that could be bad if you take too much of it. A few people who have MS have reported that their neuros have them take 4,000 IU a day -- I've also read this with another opinion that you should decrease this in summer months (or year round if you live in a warm, sunny climate). Now, these are people with MS and right now, even I don't take that much. I'm currently at around just over 2,000 a day, adding up the D3 in my calcium and multi and supplementing from there. But again, I'm not "normal". That said, I think that's probably a safe dose but you should do some more research on it in general and also as it might relate to what you're experiencing.
Re: thyroid, Synthroid is very controlled (more so than Armour and I would think a compound) so if what you're doing doing doesn't work, you may want to think about it. Just make sure you get the full thyroid panel done before doing anything and consult with an endocrinologist -- it's all about the balance, not just one number.
Lastly, just a word on the shampoo and other things you're using. I've used Nizoral shampoo (for Tinea Verisicolor, an airborne fungus that settles on the skin and scalp) and think it's very good. You might want to check it out to see if there are any ingredients that might not sit well with you though. When I get TV (usually once a year, when it's hot and humid) I use this and found nothing that comes close to being a "real" shampoo (not drying, etc.).
I'm not an expert on allergen stuff but I saw a TV segment with a woman named Amilya Antonetti who had a VERY sick child and despite seeing many doctors, no one could figure out what was wrong. She had a hunch and discovered on her own that her son was highly allergic to household stuff and things "normal" people use. She eventually developed her own line of products and although I don't know where you can get them, it's called Soapworks. Not sure, but it might be worth checking out.
Good luck to you!
Re: thyroid, Synthroid is very controlled (more so than Armour and I would think a compound) so if what you're doing doing doesn't work, you may want to think about it. Just make sure you get the full thyroid panel done before doing anything and consult with an endocrinologist -- it's all about the balance, not just one number.
Lastly, just a word on the shampoo and other things you're using. I've used Nizoral shampoo (for Tinea Verisicolor, an airborne fungus that settles on the skin and scalp) and think it's very good. You might want to check it out to see if there are any ingredients that might not sit well with you though. When I get TV (usually once a year, when it's hot and humid) I use this and found nothing that comes close to being a "real" shampoo (not drying, etc.).
I'm not an expert on allergen stuff but I saw a TV segment with a woman named Amilya Antonetti who had a VERY sick child and despite seeing many doctors, no one could figure out what was wrong. She had a hunch and discovered on her own that her son was highly allergic to household stuff and things "normal" people use. She eventually developed her own line of products and although I don't know where you can get them, it's called Soapworks. Not sure, but it might be worth checking out.
Good luck to you!
sharewithme
11-25-2007, 12:11 AM
Good evening all:
I have some good news -- i bought a car! I got what i need, reliable well maintained low mileage civic with no mold and minimal chemicals (can we ever say no chemicals when it comes to a car?). i am encouraged. this is an important accomplishment as it will allow me the mobility to make everything else happen.
i have not had a car for two years now. this means so much to me. i feel like i have regained a part of my life, a life that has at times, felt truly dead to me.
now for a healthy, affordable place to live with like spirited folk.
something intersting, in the last 2 days have noticed an improvement in my sense of smell, especialky of mold. i attribute it to the supplements i am taking now. i like this very much. i wonder, will i smell flowers more sensitively as well? i lost my sense of smell completely when i lived in mold (also affected hearing and sight), so this is a welcome improvement as i have wondered more than once if i might never again smell as i was had.
Beary: I hope this finds you feeling well. thanks for info on synthroid, etc. I am cooking with kelp, made a southern favorite, black eyed peas. looking for ways to get it into my diet daily. see if i don't improve with food before go back to meds. the panel my dr. used for years was very in depth, gave T3/T4/TSH levels, in great detail. he understood and explained ratios, is considered an expert in treating thyroid. i have faith in what he does, he has been an excellant diagnostician and does favor better testing methods. i want so much to aid my body in its healing without having to take drugs to do it though. i really need to try. wouldn't it be wonderful if it works!
I'm reading about Vit D now, <removed> 60 micrograms (2400 IU) daily as a safe dose. <removed> many people are deficient, especially after a certain age and that in certain latitudes as well as in the summer when outdoors more, with less clothing on, etc won't need as much supplementation. I certainly fit the profile for symptoms and with all the immune stuff I have going on, makes sense for me to take it for a while. I seem to have a natural ability to tune into what I need, as i practically crave to be outside in natural light of day. Thanks for this info. I really appreciate it.
Am seriously considering using the lamps as that therapy seems to be successful for many mold survivors fro several reasons. will look into costs, etc soon. this site i found also says body processes Vit D from UVB light better than supplements and once balance is achieved, Vit D will simply degrade as fast as it is generated so zero danger of overdose. like that most of all, give my body way to heal itself and create natural balance in process...
Soapworks, hmmm. i like supporting family owned businesses especially with that background. sounds interesting. found site, is under construction. appreciate suggestion on shampoo too. i'll let you know if helps...
Studio:you mentioned government study of mycotoxins. my allergist gave me a paper written about the study of tricothocenes by war dept. for use in germ warfare! i have also read that these same tricothocenes from Stachy become 40,000 times more toxic when the mold dies!!!!! super bad s--t! EPA closes structure and destroys when found in higher levels. gulp. needless to say, that is one of the five i cannot get anywhere near. one day at pharmacy used by allergist, i entered and immediately picked up on something very bad, they said yes, patient was in whose client has it in their home, patient had to leave job and go to Dr/pharmacy for meds. carried residue with them which affected me. super bad s--t that has now been transplanted here to GA in just this type of way, clothing, furniture, rugs.... crap, we, the human race, need to stop this!
You do know not to go to coastline of gulf states, right? mold is still high there. CDC issued bulletin 2 years ago to stay away from 150 miles of coastline of 5 states: FL, AL, LS, MI, TX. not sure what status of that is now, just know there are still serious problems from too many hurricanes too close together. has contributed to serious problems here as well, as they swept inland and were very destructive. AL, TN, GA, NC, SC, VA all were affected.
sometimes i really wonder if i can stay here, is home so is a real dilemma.... mold is everywhre after all.....am praying for answers. meanwhile strengthen my body so can heal from within, less sensitive in the process.
let's see you are in Sonoran Desert. yes, that's right, not many swamp coolers, mostly refridgerated airwhich ismuch better for you now.
thanks for info on adrenal test & treatment, is very helpful in checking what dr's did already. sorry you were so affected. did they test your fasting blood sugar levels also? and what about thyroid? seems all can be affected. was for me. mold warrior, also recommended to me, forgot about it! let me know what you think. great you have specialist to go to. best of luck, hope is a real healer. some use tea tree oil in remediation, my dr. did not recommend, said gSE works better. do know that tea tree has been used topically by many for fungal issues and is said to work although can be very astringent if not diluted properly but heh! gse is a botanical poison so i don't really know which is better. i have used in soaps for myself and shampoo for my dog, worked fantastic for her, actually won vet over to product for treatment of hot spots. re: mold, if you find out, please pass along. mm suggested to me using vinegar to spray shoes with as mold doesn't like it's own waste (explanation many pages back, goes to original query for string). need to explore all non toxic possibilities as am already sensitive to gse. vinegar stinks but is cheap and non toxic. wonder to what dilution will still work.....
not sure about that blood test, mold and lead? is there an association between those two? huh, not familiar with that. I am getting my records next week. quite simnply, i was too sick to comprehend these things. glad i'm past that now! have been discussing testing, pros and cons. several here and elsewhere have said to me, will tests make a difference on treatment? very good question for me, as no insurance. is beneficial to hear what is happening with you, appreciate your willingness to share.
Best of luck with lawyer/landlord caw caw. i'm in your corner all the way. i say, go for it. make them pay for everything you possibly can.
I used filtrate filters at my house, let's see, i think it was 1200 microns per cubic inch? not sure, anyway, pretty decent filter. did help somewhat with dusty mites, etc here's what i figured out, need no mold and clean ventilation system then filters are more effective. dr's recommend in room air cleaners. none of this will fix mold spore problem, too small for filters to stop. if you discover something else, i'm always open to hearing about it.
best wishes to you all for a fun, restful and loving holiday season,
Share
I have some good news -- i bought a car! I got what i need, reliable well maintained low mileage civic with no mold and minimal chemicals (can we ever say no chemicals when it comes to a car?). i am encouraged. this is an important accomplishment as it will allow me the mobility to make everything else happen.
i have not had a car for two years now. this means so much to me. i feel like i have regained a part of my life, a life that has at times, felt truly dead to me.
now for a healthy, affordable place to live with like spirited folk.
something intersting, in the last 2 days have noticed an improvement in my sense of smell, especialky of mold. i attribute it to the supplements i am taking now. i like this very much. i wonder, will i smell flowers more sensitively as well? i lost my sense of smell completely when i lived in mold (also affected hearing and sight), so this is a welcome improvement as i have wondered more than once if i might never again smell as i was had.
Beary: I hope this finds you feeling well. thanks for info on synthroid, etc. I am cooking with kelp, made a southern favorite, black eyed peas. looking for ways to get it into my diet daily. see if i don't improve with food before go back to meds. the panel my dr. used for years was very in depth, gave T3/T4/TSH levels, in great detail. he understood and explained ratios, is considered an expert in treating thyroid. i have faith in what he does, he has been an excellant diagnostician and does favor better testing methods. i want so much to aid my body in its healing without having to take drugs to do it though. i really need to try. wouldn't it be wonderful if it works!
I'm reading about Vit D now, <removed> 60 micrograms (2400 IU) daily as a safe dose. <removed> many people are deficient, especially after a certain age and that in certain latitudes as well as in the summer when outdoors more, with less clothing on, etc won't need as much supplementation. I certainly fit the profile for symptoms and with all the immune stuff I have going on, makes sense for me to take it for a while. I seem to have a natural ability to tune into what I need, as i practically crave to be outside in natural light of day. Thanks for this info. I really appreciate it.
Am seriously considering using the lamps as that therapy seems to be successful for many mold survivors fro several reasons. will look into costs, etc soon. this site i found also says body processes Vit D from UVB light better than supplements and once balance is achieved, Vit D will simply degrade as fast as it is generated so zero danger of overdose. like that most of all, give my body way to heal itself and create natural balance in process...
Soapworks, hmmm. i like supporting family owned businesses especially with that background. sounds interesting. found site, is under construction. appreciate suggestion on shampoo too. i'll let you know if helps...
Studio:you mentioned government study of mycotoxins. my allergist gave me a paper written about the study of tricothocenes by war dept. for use in germ warfare! i have also read that these same tricothocenes from Stachy become 40,000 times more toxic when the mold dies!!!!! super bad s--t! EPA closes structure and destroys when found in higher levels. gulp. needless to say, that is one of the five i cannot get anywhere near. one day at pharmacy used by allergist, i entered and immediately picked up on something very bad, they said yes, patient was in whose client has it in their home, patient had to leave job and go to Dr/pharmacy for meds. carried residue with them which affected me. super bad s--t that has now been transplanted here to GA in just this type of way, clothing, furniture, rugs.... crap, we, the human race, need to stop this!
You do know not to go to coastline of gulf states, right? mold is still high there. CDC issued bulletin 2 years ago to stay away from 150 miles of coastline of 5 states: FL, AL, LS, MI, TX. not sure what status of that is now, just know there are still serious problems from too many hurricanes too close together. has contributed to serious problems here as well, as they swept inland and were very destructive. AL, TN, GA, NC, SC, VA all were affected.
sometimes i really wonder if i can stay here, is home so is a real dilemma.... mold is everywhre after all.....am praying for answers. meanwhile strengthen my body so can heal from within, less sensitive in the process.
let's see you are in Sonoran Desert. yes, that's right, not many swamp coolers, mostly refridgerated airwhich ismuch better for you now.
thanks for info on adrenal test & treatment, is very helpful in checking what dr's did already. sorry you were so affected. did they test your fasting blood sugar levels also? and what about thyroid? seems all can be affected. was for me. mold warrior, also recommended to me, forgot about it! let me know what you think. great you have specialist to go to. best of luck, hope is a real healer. some use tea tree oil in remediation, my dr. did not recommend, said gSE works better. do know that tea tree has been used topically by many for fungal issues and is said to work although can be very astringent if not diluted properly but heh! gse is a botanical poison so i don't really know which is better. i have used in soaps for myself and shampoo for my dog, worked fantastic for her, actually won vet over to product for treatment of hot spots. re: mold, if you find out, please pass along. mm suggested to me using vinegar to spray shoes with as mold doesn't like it's own waste (explanation many pages back, goes to original query for string). need to explore all non toxic possibilities as am already sensitive to gse. vinegar stinks but is cheap and non toxic. wonder to what dilution will still work.....
not sure about that blood test, mold and lead? is there an association between those two? huh, not familiar with that. I am getting my records next week. quite simnply, i was too sick to comprehend these things. glad i'm past that now! have been discussing testing, pros and cons. several here and elsewhere have said to me, will tests make a difference on treatment? very good question for me, as no insurance. is beneficial to hear what is happening with you, appreciate your willingness to share.
Best of luck with lawyer/landlord caw caw. i'm in your corner all the way. i say, go for it. make them pay for everything you possibly can.
I used filtrate filters at my house, let's see, i think it was 1200 microns per cubic inch? not sure, anyway, pretty decent filter. did help somewhat with dusty mites, etc here's what i figured out, need no mold and clean ventilation system then filters are more effective. dr's recommend in room air cleaners. none of this will fix mold spore problem, too small for filters to stop. if you discover something else, i'm always open to hearing about it.
best wishes to you all for a fun, restful and loving holiday season,
Share
sharewithme
11-30-2007, 01:06 AM
Greetings MM:
I am so thankful for all you've shared with me. In the last 3 days I've taken as many chemical/mold hits and am holding up pretty darn well. I guess you'd say I'm not as sensitive in all respects. Just a few weeks prior to this I would not be feeling well right now.
I have incorporated most supplements we've talked about, no uv light therapy yet though. Can tell a huge difference eating kelp, if miss one dose can feel it. Sense of smell is still improving.
Will be meeting with people seeking a permanent abode this weekend so I can hopefully create my oasis. You have been so kind with your knowing, would you please share with me what you do if you take a bad mold or chemical hit? I'd appreciate it as I am trying to refine that end of things.
Thank you from the bottom of my heart for all your help.
I wish you a blessed life,
Share
I am so thankful for all you've shared with me. In the last 3 days I've taken as many chemical/mold hits and am holding up pretty darn well. I guess you'd say I'm not as sensitive in all respects. Just a few weeks prior to this I would not be feeling well right now.
I have incorporated most supplements we've talked about, no uv light therapy yet though. Can tell a huge difference eating kelp, if miss one dose can feel it. Sense of smell is still improving.
Will be meeting with people seeking a permanent abode this weekend so I can hopefully create my oasis. You have been so kind with your knowing, would you please share with me what you do if you take a bad mold or chemical hit? I'd appreciate it as I am trying to refine that end of things.
Thank you from the bottom of my heart for all your help.
I wish you a blessed life,
Share
Studiowray
11-30-2007, 02:36 PM
Hi Share........glad you are finding a new home.....that is what I'm in the process of doing.
I'm going to make a claim against my landlord in court today to pay for my cleaning and moving expenses. I still don't have my things yet. I'm feeling better since I'm away from that apartment. I was at the laundromat the other day and walked by someone whos clothes reeked of mold, I can't believe how sensitive I am to this now. Next week I'm going to see a doctor to have my blood tested for mold exposure and I will let you know how all that turns out. I have talked in detail about certain things in my emails which upon reading all the rules and regulations are not allowed........I didn't know....I'm watching what I say hear cuz' I want to be allowed to comumicate with like mindes souls such as you and MM.........
There was an article in todays paper about mold and the new proposal to congress in January to help homeowners with insurance claims. 39 states exempt mold from their policies and AZ is one of them.....not much help for me, but, it did say how bad it can effect people.....I wish you a safe and healthy new place....take care, Studio
I'm going to make a claim against my landlord in court today to pay for my cleaning and moving expenses. I still don't have my things yet. I'm feeling better since I'm away from that apartment. I was at the laundromat the other day and walked by someone whos clothes reeked of mold, I can't believe how sensitive I am to this now. Next week I'm going to see a doctor to have my blood tested for mold exposure and I will let you know how all that turns out. I have talked in detail about certain things in my emails which upon reading all the rules and regulations are not allowed........I didn't know....I'm watching what I say hear cuz' I want to be allowed to comumicate with like mindes souls such as you and MM.........
There was an article in todays paper about mold and the new proposal to congress in January to help homeowners with insurance claims. 39 states exempt mold from their policies and AZ is one of them.....not much help for me, but, it did say how bad it can effect people.....I wish you a safe and healthy new place....take care, Studio
sharewithme
12-04-2007, 01:13 AM
Studio:
Glad to hear you are better. I've seen several Dr's who specialize in mold and all agree, avoidance is key. Doesn't surprise me at all that you are aware of heightened sensitivity. As difficult as it can be it is also a blessing in a way. My feeling on it is that our bodies are making sure we know what we should stay away from. As unpleasant as that is, it's actually worse to lose that awareness and take hits and not know how or where it happened to you. Much worse.
My experience is that clothing and paper are super bad for carrying and holding onto mold in all its manisfestations -- all of which can make me sick if types I am allergic to.
Are you sensitive to chemicals as well? For me, this increases with mold hits which I understand is not uncommon. MM was trying to explain to us that our bodies read mold and chemicals exactly the same, that they are literally the same thing. I know they are tied together for me, no doubt about it. And I have been told by Dr's that once a person becomes sensitive to one, sensitivity to the other is sure to follow. My understanding about it, is that it's all in how my body responds to the toxins. I need to reread what was written and research further so as to understand better. There was much shared that so far, seems pretty darn accurate. I will always be thankful for this generosity of spirit. What I have incorporated is helping enormously.
Hope all went well for you in court. I also wish you the best in your search for a healthy place to live.
Yes, insurance companies are looking for ways to limit liability. Here it began in earnest with Hurricane Andrew, must have flood insurance now for limited coverage. I can sympathize with you as can many others I'm sure. One thing here though, is state law mandates that mold, termites and water damage must be disclosed. That makes all thye difference if buyer has an honest agent and understands all that means. It certainly seems that the internet can help with this. The experts say most people are not affected by mold unless high levels of only a few black molds. I know many peopkle here who live in mold and are not sick. I pray they won't get sick. I worry about this as I meet many peoplke with sensitivity to chemicals. I know one thing, I would argue strongly with raising children in mold, not worth the risk in my opinion.
Thanks for heads up on rules, I'll read again. Certainly do not want to be excluded. I'd be very sad indeed to lose this as a place to connect with like spirited folk such as yourself.
Be well,
Share
Glad to hear you are better. I've seen several Dr's who specialize in mold and all agree, avoidance is key. Doesn't surprise me at all that you are aware of heightened sensitivity. As difficult as it can be it is also a blessing in a way. My feeling on it is that our bodies are making sure we know what we should stay away from. As unpleasant as that is, it's actually worse to lose that awareness and take hits and not know how or where it happened to you. Much worse.
My experience is that clothing and paper are super bad for carrying and holding onto mold in all its manisfestations -- all of which can make me sick if types I am allergic to.
Are you sensitive to chemicals as well? For me, this increases with mold hits which I understand is not uncommon. MM was trying to explain to us that our bodies read mold and chemicals exactly the same, that they are literally the same thing. I know they are tied together for me, no doubt about it. And I have been told by Dr's that once a person becomes sensitive to one, sensitivity to the other is sure to follow. My understanding about it, is that it's all in how my body responds to the toxins. I need to reread what was written and research further so as to understand better. There was much shared that so far, seems pretty darn accurate. I will always be thankful for this generosity of spirit. What I have incorporated is helping enormously.
Hope all went well for you in court. I also wish you the best in your search for a healthy place to live.
Yes, insurance companies are looking for ways to limit liability. Here it began in earnest with Hurricane Andrew, must have flood insurance now for limited coverage. I can sympathize with you as can many others I'm sure. One thing here though, is state law mandates that mold, termites and water damage must be disclosed. That makes all thye difference if buyer has an honest agent and understands all that means. It certainly seems that the internet can help with this. The experts say most people are not affected by mold unless high levels of only a few black molds. I know many peopkle here who live in mold and are not sick. I pray they won't get sick. I worry about this as I meet many peoplke with sensitivity to chemicals. I know one thing, I would argue strongly with raising children in mold, not worth the risk in my opinion.
Thanks for heads up on rules, I'll read again. Certainly do not want to be excluded. I'd be very sad indeed to lose this as a place to connect with like spirited folk such as yourself.
Be well,
Share
Studiowray
12-05-2007, 09:41 AM
HI Share.... Court did not go well, I lost. Must get my things out no matter that it makes me sick or could harm anyone else......unbelievable! I went to the doctor yesterday after court to test my blood for mold and if it is there which I'm sure it is, I will be suing the heck out of that landlord. The doctor gave me all kinds of stuff to take and said to increase vitamin C till I can't stand it. Also, a hydro-therapy and colonics for a month to rid me of toxins.......I don't know if this rids you of all the bad toxins or not. He also said to leave everything behind as the Stachybotros (blackToxic mold) is very bad for you and sticks to everything especially cotton clothes and that washing it does not kill it...........I'm suppose to walk away from everything.....needless to say I took a pretty good hit yesterday from mold and I wasn't even in my apartment!!!!
I will get through this! I am so sensitive to all kinds of smells now, it's weird. I can't sleep, I'm exhausted and anxious.....I have alot to do in the next few days.....take care of yourself and I will be back here soon......Studio
I will get through this! I am so sensitive to all kinds of smells now, it's weird. I can't sleep, I'm exhausted and anxious.....I have alot to do in the next few days.....take care of yourself and I will be back here soon......Studio
sharewithme
12-05-2007, 10:14 PM
Dear Studio:
I am incensed! You were exposed to Stachy... and the court system did nothing to aid you? Unbelievable. Ahh, you were unable to prove they knew about it, I bet. Criminy. I'm so sorry. I rreally feel for you.
I know this is hard to hear but I would listen to the Dr. With continued exposure you could become so much sicker than you are now, literally suffer permanent impairment. None of those things are worth it. You are what's important, not the stuff and not the money.
Remember this, if you get too sick, you can't work. Now you are talking financial hardship beyond anything you are experiencing now.
I know of what I speak Studio. This is an overwhelming loss but to end up unable to move about in the world without getting sick all the time, is worse. It is important to also understand that you can become so chemical sensitive from mold toxicity that functioning in the world becomes extremely difficult. I wish to spare you what happened to me.
I have faith in you, that you will recover. Keep persevering.
I've been told that it is possible to remediate hard nonporous surface objects using GSE if you are not too sensitive but to leave everything padded (mattresses, sofas, etc) and all cloth and paper (includes lamp shades, paintings, etc). Just throw them away, they are ruined.
I also understand that Stachy.. is one of the very worst to have your objects contaminated by. I've read that it's mycotoxins increase in toxicity 40,000 times when Stachy.. dies and it is one of the molds studied by government for possible use in germ warfare.
I'm concerned for you. To put it in perspective, I am 100% positive that it would literally kill me to walk into a structure where it thrives.
I have not read nor been told that hydrotherapy or colonics are effective in detoxing from mold although Vit C is recommended. I suggest you reread this string, it contains a wealth of information.
I came to your world last year for the sun, the dry heat to detoxify. It did help alot. I am sure I would not be where I am now without having spent so much time outside there. I am also sure I took a hit from Stachy.. outside a bldg in Flagstaff prior to that. Afterwards I found out that a school and a Natl. Forest Park Rangers office were closed and destroyed in Flagstaff because of Stachy.. contamination. It is super bad s--t. Do not underestimate how pervasive the contamination can be. Remember, the mycotoxins/tricothocenes travel with the mold spores which are microscopic, they can permeate anything, move anywhere that a gas can get.
I have developed a system that stops cross contamination dead in its tracks -- it has made a world of difference for me. If you want/need the info, I will tell you exactly what I do. I am also willing to share what supplements I am taking now. I know one thing that has worked well for me is to get a llot of fresh air and sunshine every day. At one point it made all the difference to live outside. I would do it again if necessary although it is very difficult. Someone with chemical toxicity told me what to do. I hope to spare you that extreme.
There is hope. I was in the very worst category Studio, I was anaphylaxic several times. Got so sick from motherlode hits that I was so sick all the time, I could not function. I was so toxic that for quite some time I could barely go into structures, so many chemicals and any mold residue made me sicker.
If you are being held to a legal circumstance which dictates that you must take responsibility for removal, I suggest that you disclose the situation of toxic mold and pay someone else to remove your property. DO NOT BE PHYSICALLY INVOLVED, don't go there and stand aside and direct, don't have anyone you know and will see later do it, don't go anywhere near that place ever again. The mold spore and residue travels with people, in their clothing, their hair, their skin. When in high mold count environment, immediately after handling ANYTHING contaminated (including door knobs, etc) the previously uncontaminated objects now being handled are subject to cross contamination, this has been proven to me beyond any question. An important point along these same lines, don't stand close to anyone who lives or works in high mold as you can breathe mold spore emanating from their clothing, this will also make you sick. (oh boy, I apologize for not thinking to tell you this sooner) There are people I love who live in high mold count in their home, I cannot get within 12 feet of them at any given time and do not stand downwind from them ever. Experience has proven I will get sick otherwise.
A ray of light, when there is no mold affecting you anymore, you will feel so much better, it is almost incomprehensible and when you detoxify you will not be so sensitive anymore!!!!!! Build your body, stay away from toxins, strengthen from inside out. Heal.
My heart and prayers are with you,
Share
I am incensed! You were exposed to Stachy... and the court system did nothing to aid you? Unbelievable. Ahh, you were unable to prove they knew about it, I bet. Criminy. I'm so sorry. I rreally feel for you.
I know this is hard to hear but I would listen to the Dr. With continued exposure you could become so much sicker than you are now, literally suffer permanent impairment. None of those things are worth it. You are what's important, not the stuff and not the money.
Remember this, if you get too sick, you can't work. Now you are talking financial hardship beyond anything you are experiencing now.
I know of what I speak Studio. This is an overwhelming loss but to end up unable to move about in the world without getting sick all the time, is worse. It is important to also understand that you can become so chemical sensitive from mold toxicity that functioning in the world becomes extremely difficult. I wish to spare you what happened to me.
I have faith in you, that you will recover. Keep persevering.
I've been told that it is possible to remediate hard nonporous surface objects using GSE if you are not too sensitive but to leave everything padded (mattresses, sofas, etc) and all cloth and paper (includes lamp shades, paintings, etc). Just throw them away, they are ruined.
I also understand that Stachy.. is one of the very worst to have your objects contaminated by. I've read that it's mycotoxins increase in toxicity 40,000 times when Stachy.. dies and it is one of the molds studied by government for possible use in germ warfare.
I'm concerned for you. To put it in perspective, I am 100% positive that it would literally kill me to walk into a structure where it thrives.
I have not read nor been told that hydrotherapy or colonics are effective in detoxing from mold although Vit C is recommended. I suggest you reread this string, it contains a wealth of information.
I came to your world last year for the sun, the dry heat to detoxify. It did help alot. I am sure I would not be where I am now without having spent so much time outside there. I am also sure I took a hit from Stachy.. outside a bldg in Flagstaff prior to that. Afterwards I found out that a school and a Natl. Forest Park Rangers office were closed and destroyed in Flagstaff because of Stachy.. contamination. It is super bad s--t. Do not underestimate how pervasive the contamination can be. Remember, the mycotoxins/tricothocenes travel with the mold spores which are microscopic, they can permeate anything, move anywhere that a gas can get.
I have developed a system that stops cross contamination dead in its tracks -- it has made a world of difference for me. If you want/need the info, I will tell you exactly what I do. I am also willing to share what supplements I am taking now. I know one thing that has worked well for me is to get a llot of fresh air and sunshine every day. At one point it made all the difference to live outside. I would do it again if necessary although it is very difficult. Someone with chemical toxicity told me what to do. I hope to spare you that extreme.
There is hope. I was in the very worst category Studio, I was anaphylaxic several times. Got so sick from motherlode hits that I was so sick all the time, I could not function. I was so toxic that for quite some time I could barely go into structures, so many chemicals and any mold residue made me sicker.
If you are being held to a legal circumstance which dictates that you must take responsibility for removal, I suggest that you disclose the situation of toxic mold and pay someone else to remove your property. DO NOT BE PHYSICALLY INVOLVED, don't go there and stand aside and direct, don't have anyone you know and will see later do it, don't go anywhere near that place ever again. The mold spore and residue travels with people, in their clothing, their hair, their skin. When in high mold count environment, immediately after handling ANYTHING contaminated (including door knobs, etc) the previously uncontaminated objects now being handled are subject to cross contamination, this has been proven to me beyond any question. An important point along these same lines, don't stand close to anyone who lives or works in high mold as you can breathe mold spore emanating from their clothing, this will also make you sick. (oh boy, I apologize for not thinking to tell you this sooner) There are people I love who live in high mold count in their home, I cannot get within 12 feet of them at any given time and do not stand downwind from them ever. Experience has proven I will get sick otherwise.
A ray of light, when there is no mold affecting you anymore, you will feel so much better, it is almost incomprehensible and when you detoxify you will not be so sensitive anymore!!!!!! Build your body, stay away from toxins, strengthen from inside out. Heal.
My heart and prayers are with you,
Share
Studiowray
12-06-2007, 01:09 PM
Thank you Share..............I am incensed as well......you mentioned a system that you have come up with for reducing cross-contamination..............there are things in the apartment I don't want to leave........family pictures, personal artwork...favorite ceramics....which the Dr. said if I washed glass surfaces in the dishwasher (5x) that I could keep those things..........I'm SO going crazy....!!! I have taken last month clothes out of there and washed them, 40 loads to be exact! and have brought them to the new invironment..........THIS IS INSANE........The court or should I say Judge does not recognize that STACHY is dangerous and considered "Unsafe/Unhealthy" to live in..............because my things are there that I must pay the rent.......HOW crazy is that?!?!? No mention that the landlord created this situation by ordering the construction and not remediation..............HE SHOULD PAY to have my things cleaned!
lets say that a person that has not been exposed before goes in there with no protection and they are not in there very long......will they get sick? Does ALL exposure make you sick or if you have never been and just go in breifly will that make you sick? I'm going to call the Doctor about that today...................I'm so nauseous from all this that is happening................Thanks for your concern and support.........it means alot to me, Studio
lets say that a person that has not been exposed before goes in there with no protection and they are not in there very long......will they get sick? Does ALL exposure make you sick or if you have never been and just go in breifly will that make you sick? I'm going to call the Doctor about that today...................I'm so nauseous from all this that is happening................Thanks for your concern and support.........it means alot to me, Studio
sharewithme
12-11-2007, 11:30 PM
Dear Studio:
I apologize for taking so lobng to write. I'm having a lot of trouble with the place I'm living in and the search for a room to rentl is also not going very well. I finally find a place without mold and they just painted, cleaned carpets. etc. I'm really getting worried. Think I may have to rent a used tent and camp for awhile in order to save money, get "clear" again, etc while zi continue searching for a safe space to live. Biggest problem is it's difficult to internet and keep safe camp sight as everywhere to camp is far away. And showers are challenging because of mold. Have food in the freezer which will go bad as well. Dry ice is hard to find here. SIGH.
I'm really worried about you getting superr sensitive and chemicals becoming a huge issue. As bad as this is, with that to deal with every where you go, it's much, mush worse.
"you mentioned a system that you have come up with for reducing cross-contamination."
i"m writing for you, will have soon.
"there are things in the apartment I don't want to leave........family pictures, personal artwork...favorite ceramics....which the Dr. said if I washed glass surfaces in the dishwasher (5x) that I could keep those things..........I'm SO going crazy....I have taken last month clothes out of there and washed them, 40 loads to be exact! and have brought them to the new invironment.!!!"
Boy, can I sympathize. You are at VERY difficult stage in all this. Supoer hard to do what is needed. Here’s the really scary part in all this. I have been told and I believe there is real truth in it --You can take that one hit too many and suffer permanent impairment. You see, toxicity is cumulative so it is absolutely imperative that you detoxify as soon as possible. That means you must stop taking hits, stop cross contamination.
Like most of us you may find that what works best for you is a combination of things taught/suggested to you. A word of advice, err on the side of caution since you are still so sensitive and also because you lived for quite some time in a very toxic mold environment. It takes time to detoxify and until you do, you are at greater risk for bigger hits.
"lets say that a person that has not been exposed before goes in there with no protection and they are not in there very long......will they get sick? Does ALL exposure make you sick or if you have never been and just go in breifly will that make you sick?"
I was told there are those who are not affected, that it will not make them sick (this is one of the reasons people justify that we are crazy, over reactive, etc) I must admit, this was hard for me to accept especially in regards to the most toxic molds. How to solve problems like this can create a real moral dilemma. How about this, try calling a mold remediation company and ask if they are willing to remove items for a fee. Tell them your situation. You might get someone who is willing to talk off the record to you if they are not willing to go in themselves or its too expensive. Here they will do the removal and cleaning for a fee. I was fortunate to have one who is a scientist explain several things to me about their process. No one, not one professional or respected source that I have read has ever suggested washing items in a dishwasher. I would be hugely concerned about cross contamination of my dishwasher! If all it took were hot water and detergents, uhh we wouldn't be talking.
Okay here's what I was told about remediating items(not houses) = use a pure GSE solution (citrisafe is the brand I use) to clean with. First we discuss hard nonporous items only. You dip small items into solution for at least 30 seconds and then using a new clean cloth, wipe down the item, using a clean "side" of the cloth with each wipe and always wiping in the same direction, top to bottom. It is important not to reuse the cloth, you throw it away. If it is an item too large to dip, you drench it with pure solution spray, let it sit min. 30 seconds and then use the same wipe down method. It is very tedious and the person doing it must pay close attention to what they are doing. Here's the down side -- tricothocenes can be very hard, if not impossible to completely remove. So if you are really sensitive, it may not work.
Wood must be sanded and then thoroughly sprayed and you should allow the spray to soak in. It is possible to not get it all by not sanding deep enough, or to miss cracks, etc. It is difficult unless very painstaking measures taken.
I was told to discard all paper products as mold feeds on paper. Have someone fax or email important documents to you as this is safest way. Don't rely on them copying for you, as cross contamination is very high that way.
Everything made with fibers, they are very difficult to clean and it is very controversial as to effectiveness, especially if an item was exposed to high levels or had prolonged exposure. They say some things can be treated with antifungal agents like GSE and then they use a vaccum process to pull all the residue out. My understanding is that this can be an Iffy process and it is expensive, item must be worth a lot of money and it still might not work.
If you think about the nature of mold spores (how mycotoxins are conveyed) you quickly realize they are insidious in their ability to permeate anything they decide to settle on or in.
Your car, did the Dr. tell you anything about that? Is super important. If same car you had when you lived in mold, it is contaminated, zero doubt about it.
Here's one of the worst things about mold allergy -- not only does the live mold make us sick but so does the dead mold and the chemical residue of mycotoxins. We can get sick from tactile contact, ingestion and inhalation. It can be in the air, on any surface or object, even in our food and water. It is truly one of the very worst things to be poisoned by/allergic to. Avoidance is key.
Tea tree oil is also antifungal. I have heard about remedial specialists which use it instead of GSE. I do not have experience with it in remediation, only therapuetic use in skin and hair care. I have recently read that UVB light can also kill mold very effectively. I really don't know how well this actually works in a remedial application. The light killing the mold makes a lot of sense to me, it’s making sure that the mycotoxins have been destroyed that have me concerned. I too have things I'd rather not lose and am very interested in alternative methods as traditional antifungal chemicals are very toxic to my body, a big reason why I had trouble in the SW USA as they are used widely in commercial cooling towers. If anyone has insights about this, please share!
For me, my experience has proven that fibers are out completely. And let me say to you, I too had family heirlooms, paintings, things with intrinsic as well as sentimental value, I lost in this process. Heart wrenching to put it mildly. I really feel for you.
Finally a word
about the emotional side of this. Everybody close in your life will go thru stages with this and denial is definitely one of them. Grief, anger, frustration are also predominant feelings. It is usually very overwhelming. The tendency after a while is to just shut you out. Many jump to the forefront in the beginning only to just disappear a few short months later. Be sure and use those resources wisely as they will disappear soon. Think, if this is the only thing this person ever does for me, what is the most important thing I need that they are most likely to actually do? Sounds rather manipulative doesn’t it? Truth is, if they offer help, you let them. And you are best judge of what you need after all so don’t be afraid of asking for what you need. Know that we are not alone in this as this is reality for many with chronic illnesses that get acute on a regular basis, talk to cancer patients. They'll tell you.
I will send decont. info soon. I am praying for you,
Share
I apologize for taking so lobng to write. I'm having a lot of trouble with the place I'm living in and the search for a room to rentl is also not going very well. I finally find a place without mold and they just painted, cleaned carpets. etc. I'm really getting worried. Think I may have to rent a used tent and camp for awhile in order to save money, get "clear" again, etc while zi continue searching for a safe space to live. Biggest problem is it's difficult to internet and keep safe camp sight as everywhere to camp is far away. And showers are challenging because of mold. Have food in the freezer which will go bad as well. Dry ice is hard to find here. SIGH.
I'm really worried about you getting superr sensitive and chemicals becoming a huge issue. As bad as this is, with that to deal with every where you go, it's much, mush worse.
"you mentioned a system that you have come up with for reducing cross-contamination."
i"m writing for you, will have soon.
"there are things in the apartment I don't want to leave........family pictures, personal artwork...favorite ceramics....which the Dr. said if I washed glass surfaces in the dishwasher (5x) that I could keep those things..........I'm SO going crazy....I have taken last month clothes out of there and washed them, 40 loads to be exact! and have brought them to the new invironment.!!!"
Boy, can I sympathize. You are at VERY difficult stage in all this. Supoer hard to do what is needed. Here’s the really scary part in all this. I have been told and I believe there is real truth in it --You can take that one hit too many and suffer permanent impairment. You see, toxicity is cumulative so it is absolutely imperative that you detoxify as soon as possible. That means you must stop taking hits, stop cross contamination.
Like most of us you may find that what works best for you is a combination of things taught/suggested to you. A word of advice, err on the side of caution since you are still so sensitive and also because you lived for quite some time in a very toxic mold environment. It takes time to detoxify and until you do, you are at greater risk for bigger hits.
"lets say that a person that has not been exposed before goes in there with no protection and they are not in there very long......will they get sick? Does ALL exposure make you sick or if you have never been and just go in breifly will that make you sick?"
I was told there are those who are not affected, that it will not make them sick (this is one of the reasons people justify that we are crazy, over reactive, etc) I must admit, this was hard for me to accept especially in regards to the most toxic molds. How to solve problems like this can create a real moral dilemma. How about this, try calling a mold remediation company and ask if they are willing to remove items for a fee. Tell them your situation. You might get someone who is willing to talk off the record to you if they are not willing to go in themselves or its too expensive. Here they will do the removal and cleaning for a fee. I was fortunate to have one who is a scientist explain several things to me about their process. No one, not one professional or respected source that I have read has ever suggested washing items in a dishwasher. I would be hugely concerned about cross contamination of my dishwasher! If all it took were hot water and detergents, uhh we wouldn't be talking.
Okay here's what I was told about remediating items(not houses) = use a pure GSE solution (citrisafe is the brand I use) to clean with. First we discuss hard nonporous items only. You dip small items into solution for at least 30 seconds and then using a new clean cloth, wipe down the item, using a clean "side" of the cloth with each wipe and always wiping in the same direction, top to bottom. It is important not to reuse the cloth, you throw it away. If it is an item too large to dip, you drench it with pure solution spray, let it sit min. 30 seconds and then use the same wipe down method. It is very tedious and the person doing it must pay close attention to what they are doing. Here's the down side -- tricothocenes can be very hard, if not impossible to completely remove. So if you are really sensitive, it may not work.
Wood must be sanded and then thoroughly sprayed and you should allow the spray to soak in. It is possible to not get it all by not sanding deep enough, or to miss cracks, etc. It is difficult unless very painstaking measures taken.
I was told to discard all paper products as mold feeds on paper. Have someone fax or email important documents to you as this is safest way. Don't rely on them copying for you, as cross contamination is very high that way.
Everything made with fibers, they are very difficult to clean and it is very controversial as to effectiveness, especially if an item was exposed to high levels or had prolonged exposure. They say some things can be treated with antifungal agents like GSE and then they use a vaccum process to pull all the residue out. My understanding is that this can be an Iffy process and it is expensive, item must be worth a lot of money and it still might not work.
If you think about the nature of mold spores (how mycotoxins are conveyed) you quickly realize they are insidious in their ability to permeate anything they decide to settle on or in.
Your car, did the Dr. tell you anything about that? Is super important. If same car you had when you lived in mold, it is contaminated, zero doubt about it.
Here's one of the worst things about mold allergy -- not only does the live mold make us sick but so does the dead mold and the chemical residue of mycotoxins. We can get sick from tactile contact, ingestion and inhalation. It can be in the air, on any surface or object, even in our food and water. It is truly one of the very worst things to be poisoned by/allergic to. Avoidance is key.
Tea tree oil is also antifungal. I have heard about remedial specialists which use it instead of GSE. I do not have experience with it in remediation, only therapuetic use in skin and hair care. I have recently read that UVB light can also kill mold very effectively. I really don't know how well this actually works in a remedial application. The light killing the mold makes a lot of sense to me, it’s making sure that the mycotoxins have been destroyed that have me concerned. I too have things I'd rather not lose and am very interested in alternative methods as traditional antifungal chemicals are very toxic to my body, a big reason why I had trouble in the SW USA as they are used widely in commercial cooling towers. If anyone has insights about this, please share!
For me, my experience has proven that fibers are out completely. And let me say to you, I too had family heirlooms, paintings, things with intrinsic as well as sentimental value, I lost in this process. Heart wrenching to put it mildly. I really feel for you.
Finally a word
about the emotional side of this. Everybody close in your life will go thru stages with this and denial is definitely one of them. Grief, anger, frustration are also predominant feelings. It is usually very overwhelming. The tendency after a while is to just shut you out. Many jump to the forefront in the beginning only to just disappear a few short months later. Be sure and use those resources wisely as they will disappear soon. Think, if this is the only thing this person ever does for me, what is the most important thing I need that they are most likely to actually do? Sounds rather manipulative doesn’t it? Truth is, if they offer help, you let them. And you are best judge of what you need after all so don’t be afraid of asking for what you need. Know that we are not alone in this as this is reality for many with chronic illnesses that get acute on a regular basis, talk to cancer patients. They'll tell you.
I will send decont. info soon. I am praying for you,
Share
Studiowray
12-13-2007, 03:14 AM
Hi Share............sorry to hear about your living arrangements......that's tough. I'm so glad I can stay at my brother's right now.....it has been an adjustment but, we seem to be getting along good, and I'm glad I'm here for the holidays. I had my first colonic and hydro-therapy yesterday.......it wiped me out....sleept alot after. I'm going for another one tomorrow.....hope I'm not as tired after this one. HOW is one suppose to detox when this stuff is seemingly everywhere??? I went to my apartment this past week to get things out...I cleaned them in Zepp a cleaner for mold and mildew that was recomended by a remediation company.....the ones I got to bid on the job ranged from 10,000 to 3,000 dollars and was out of MY price range............! I wore as much protective gear as possible but still was affected. After the items are cleaned I seem to be ok with them in my space. As far as clothes I took some and cleaned them in the washer weeks ago and I was feeling fine with them it is when I went into THAT appartment that the symptoms got really bad. I don't know what my tolerance level is but in there it is terrible, I'm not allowed back now.
My friend told me today that the morning show that is from NY the one that Matt Lauer is on had a segment about mold and what to clean it with, etc. I'm going to look tomorrow for that on line.............speaking of which, I'm sorry to hear about your difficulties of getting on line that is very frustrating. I just dunked my phone in a water bowl (by accident) and can't get numbers out of it or use it for anything.....frustrating to rely on electronic stuff on top of the difficulties of exposure! I pray about this alot and for you and others in this situation. I need to get my blood tests back to see just what is going on and get on the right track. And proceed with legal action if I can. I must sign off for now, late and tired.........take care Share and I will be back here soon, good night and be safe, Studio
My friend told me today that the morning show that is from NY the one that Matt Lauer is on had a segment about mold and what to clean it with, etc. I'm going to look tomorrow for that on line.............speaking of which, I'm sorry to hear about your difficulties of getting on line that is very frustrating. I just dunked my phone in a water bowl (by accident) and can't get numbers out of it or use it for anything.....frustrating to rely on electronic stuff on top of the difficulties of exposure! I pray about this alot and for you and others in this situation. I need to get my blood tests back to see just what is going on and get on the right track. And proceed with legal action if I can. I must sign off for now, late and tired.........take care Share and I will be back here soon, good night and be safe, Studio
sharewithme
12-15-2007, 04:57 AM
Good evening,
Studio, I'm so happy for you that staying with your brother is working out. You are blessed to ahve that.
i'm really sorry you ahd to go back in there. glad that part is over with for you.
i understand about colonics, what is hydro therapy you are doing? detoxing can be a b--ch! have they told you what symptoms you may have from it? if tired is all that happens to you, be glad. regardless, is worth it. yu will heal.
yep, the dropsies, know 'em well. loss of coordination is not uncommon. hope your phone is working again...
I found a place yesterday and signed a lease today. It's unbelievably hard to get peopel tp slow down in situatiions like this. Was the same with my car. I just ahve to hope and pray is right place. We are month to month, so I can get out of it and he's paying utilities so i don't havr a bunch of deposits to worry about. it's half what i've been paying but still about $200. a month more than I need to be paying. Just couldn't find a place to share that would work and with the closck ticking, I felt like I had to make the move. it aired out really well, so i'm pretty sure will be okay. i wanted to pay for 2 nights and try it but he wouldn't go for it. like many people, he was fairly compassionate until it took too much time. then got persnickety. i finally told him not to be rude about it. that it is real, whether he understands or not. he chilled out after that. is a different world these days. so many need money, rent only because of that, resent intrusion. not sure what his issue is but as it's a seperate apartmnt I decided to go ahead. have private washer/dryer, big fridge, full stove, tiled floors, the works. is okay for now. gave myself permission to wait until spring and look again then, find space with chemical sensitive person, share and save money.
meanwhile i'll grow stronger.... now i must find gainful employment....
i went into a store last night to buy a few things and took mold hit, i think it's alternaria, not sure. started bleeding right there in the store. was the same at the library. am worried about fibroids in my uterus. may need surgeryu after all. employees were concerned and helpful, asked me to talk to managmnet for them. said, we are sure you are right about this.... gee, imagine that. i forgot to call but will. have committed to doing this whenver possible. am worried about where i'll work. want to be at a certain chain of health food stores here as always feel good when go in there and is health related frield which i am drawn to. but not sure will be able to make enough money with them as don't have a degree and they usually require for managment which i am qualified for.
blah, blah, blah. sorry to go on so about myslef. should be happy but the mold hit and many cxhemical hits and now am feeling bad, am bleding very ehavily and only just stopped a week ago from bleeding for 11 days. criminy. is about the hundreth time i've started to bleed when take a hit from toxic mold. felt it in my chest, asthma first. thyroid/adrenals close o0n heels. then bleeding. just to name the first few... am positive is all tied together. and then this place on top of it. tonight is last night here, am REALLY glad. do not like it, is bad place for me. can't sleep...
I don't want you to end up like this.
won't have internet for about a week at new place. will try to write again soon.
bright spot. am finally connecting in person with local heal group (environmental illness folks). i'm excited about that. will be wonderful to be in mold/chemical free environment indoors! and to see others who understand...
be well and safe,
Share
Studio, I'm so happy for you that staying with your brother is working out. You are blessed to ahve that.
i'm really sorry you ahd to go back in there. glad that part is over with for you.
i understand about colonics, what is hydro therapy you are doing? detoxing can be a b--ch! have they told you what symptoms you may have from it? if tired is all that happens to you, be glad. regardless, is worth it. yu will heal.
yep, the dropsies, know 'em well. loss of coordination is not uncommon. hope your phone is working again...
I found a place yesterday and signed a lease today. It's unbelievably hard to get peopel tp slow down in situatiions like this. Was the same with my car. I just ahve to hope and pray is right place. We are month to month, so I can get out of it and he's paying utilities so i don't havr a bunch of deposits to worry about. it's half what i've been paying but still about $200. a month more than I need to be paying. Just couldn't find a place to share that would work and with the closck ticking, I felt like I had to make the move. it aired out really well, so i'm pretty sure will be okay. i wanted to pay for 2 nights and try it but he wouldn't go for it. like many people, he was fairly compassionate until it took too much time. then got persnickety. i finally told him not to be rude about it. that it is real, whether he understands or not. he chilled out after that. is a different world these days. so many need money, rent only because of that, resent intrusion. not sure what his issue is but as it's a seperate apartmnt I decided to go ahead. have private washer/dryer, big fridge, full stove, tiled floors, the works. is okay for now. gave myself permission to wait until spring and look again then, find space with chemical sensitive person, share and save money.
meanwhile i'll grow stronger.... now i must find gainful employment....
i went into a store last night to buy a few things and took mold hit, i think it's alternaria, not sure. started bleeding right there in the store. was the same at the library. am worried about fibroids in my uterus. may need surgeryu after all. employees were concerned and helpful, asked me to talk to managmnet for them. said, we are sure you are right about this.... gee, imagine that. i forgot to call but will. have committed to doing this whenver possible. am worried about where i'll work. want to be at a certain chain of health food stores here as always feel good when go in there and is health related frield which i am drawn to. but not sure will be able to make enough money with them as don't have a degree and they usually require for managment which i am qualified for.
blah, blah, blah. sorry to go on so about myslef. should be happy but the mold hit and many cxhemical hits and now am feeling bad, am bleding very ehavily and only just stopped a week ago from bleeding for 11 days. criminy. is about the hundreth time i've started to bleed when take a hit from toxic mold. felt it in my chest, asthma first. thyroid/adrenals close o0n heels. then bleeding. just to name the first few... am positive is all tied together. and then this place on top of it. tonight is last night here, am REALLY glad. do not like it, is bad place for me. can't sleep...
I don't want you to end up like this.
won't have internet for about a week at new place. will try to write again soon.
bright spot. am finally connecting in person with local heal group (environmental illness folks). i'm excited about that. will be wonderful to be in mold/chemical free environment indoors! and to see others who understand...
be well and safe,
Share
sharewithme
12-16-2007, 06:58 PM
Dear Studio:
Sorry my last message was full of so many personal comnplaints, was being affected by place i was in and really needed to vent. This one is only about the mold decontamination process I promised to share with you.
So you know, I was literally in the very worst state of sensitivity/toxicity and was rapidly headed for having to live in a bubble. What saved me from permanent impairment and put me back on the road to profound healing are: believing I could heal; time in the great out of doors; not keeping one item from my house including my car; not reentering structures known to have mold; minimizing exposure to chemicals; minimizing cross contamination; focusing on healing from within by modifying my diet, including needed supplements & therapies.
Mold allergy symptoms can vary so much, not only from person to person but from mold to mold. There is one very common and difficult symptom to cope with -- brain fog. Symptoms can include memory loss , difficulty thinking straight, comprehension problems, thinking one thing but saying another, difficulty sequencing -- to name just a few. For me the worst thing abut brain fog is how it can interfere with my taking care of myself when I take a hit. This is where having routine ways of protecting myself have become invaluable – saves me from trying to figure it out everytime, something I may not be able to do.
One of the best pieces of advice I was given is to trust my inner knowing. If I go somewhere and get a sense that something isn’t right, I don’t doubt it anymore. It’s critical that I trust my ability to read the situation accurately. I finally figured out that if I listed each early onset symptom in great detail and then checked it several times a day if necessary, I could figure out better what was affecting me. Pay close attention to them, they are your warning bells, don't delay until symptoms are screaming at you, just leave. Those bells can save you from getting sick again. You know better than anyone else how you feel and when there is something wrong, learn to trust that. Keeping a journal can help in understanding this also.
An important question: How to foster more support and less resistance from the people around you? I have found if I can handle these situations very matter of factly and with minimal assistance from people I know well (they just burn out) that works best. This is where being prepared with a decont. Kit can be invaluable. And if I’ve taken a really bad hit, adding the availability of money, has really helped me to stay out of my car until I have finalized all stages of the decontamination process. Remember, you must protect your car. Mold spore loves upholstered items, including leather, loves to burrow into padding, loves to get into ventilation systems and remediation is not always successful.
Three things are sacrosanct - your car, personal work space and living space.
For me the decontamination process is all about how to cope with hits. I always prepare for the worst case scenario as I have taken hard hits very unexpectedly, continued to get sicker and sicker and then lost everything because of cross cont. This has happened way too many times until I finally got it. Those who advised me actually knew what they were talking about when they said one item can contaminate everything –they were not paranoid or over reacting. Since I have implemented this system, I am taking relatively mild hits or staying well and improving. This means I am less sensitive which means milder hits which means stronger immune system which means better healing which means less sensitive....! I'm sure when I'm in right living & work space, I'll just take off! So take heart, don’t despair. There is a light at the end of this tunnel.
Decontamination Kit is in 2 plastic bags, each bag tied shut with contents arranged as follows (to maximize protection):
2 pair of disposable vinyl gloves
disposable clear plastic hair cap (like hair stylist use)
sox
menstrual pad w/ underwear (if bad mold i often start bleeding...)
long sleeved shirt and pants
shoes (I buy washable cheap ones so can reuse)
6 plastic grocery bags
Next to kit I place close to the opening, very easy to pick up:
several pairs of disposable vinyl gloves, 1 set at a time
spray bottle with GSE solution made regular strength as directed
$20. and couple dollars in quarters in a Heavy Duty freezer Ziplock bag
several plastic grocery bags, each separate
Decontamination process: Leave immediately, stand outside and breathe deeply. Calm down, don't panic. Open trunk, being aware of wind -- stand to side if necessary to keep spore from entering. Put on a pair of disposable gloves. Leave trunk open. Take spray bottle, step away from car and spray myself damp from head to toe, front & back, including face and hair. Drop keys onto ground, spray liberally. Dump contents out of purse away from keys and spray liberally. Now get a plastic grocery bag and put the damp purse inside it, without touching purse, being sure to tie shut. Bag purse again and put it into trunk to wash later. (remember If bad hit, throw it away!) Now spray all plastic bags inside purse very liberally, put in gallon ziplock bag and seal. Put all else in second ziplock until know how bad hit is, dispose of any paper or if anything came in direct contact with contamination. Put these ziplocks in a plastic grocery bag and tie shut, leave in trunk. Spray trunk liberally and leave bottle in trunk. Take de-cont. kit, keys, close trunk & leave for nearest safe bathroom away from contamination area. Upon entering, set kit to left. Remove contaminated clothes carefully, trying not to touch face, etc as pull off. Fold over on self and set aside to right. Remove gloves inside out and set on top of clothing. Go to sink and wash hands, arms, face. I prefer cold water as closes pores, think it minimizes absorption. If bad hit, dampen your hair as this helps keep the spore from floating around. Be sure to wash your hands after handling your hair. Work slowly, carefully. Contain clothes in bag without touching them (use bag like a glove and then wrap around items). Shoes in another bag. Tie shut. If bad hit, throw away right now - don't even think about it, just do it. If its obvious that you stopped it in time or its not one you are super allergic to, then bag 2 more times, inverting each time and tie shut each time so can take home in trunk and wash separately with GSE laundry detergent (they'll last only a few more hits this way but at least you got that much more out of them.)If bad hit, put on other pair of gloves and cover hair with cap, leave these on until shower. Otherwise get dressed and go back to car. If super bad hit, get money and find way to a safe place to shower. DO NOT ENTER CABIN OF CAR until have finished decontaminating with shower. Otherwise get spray bottle from trunk, dampen hair again and liberally spray the inside of the drivers seat area with the solution, get in and go where can shower that is safe. Be sure and have soap with GSE or Tea tree available to wash your hair, body, etc. Scrub. Use cool/cold water initially. Change into clean clothes again, making sure to bag clothes just worn for washing and using again for decont. Kit. (if bad hit, get rid of them) Take GSE internally (10 drops in small amount of water then drink big glass water after).Once daily for a couple of days usually does it for me unless bad hit then 2 – 3 times daily for several days. Be sure and take your next round of supplements when eat. Put on new pair of gloves and lightly spray inside of ca. While outside and away from car, change items from purse into new ziplocks. Take clothes in and dump directly into washing machine using GSE detergent. REPLACE DECONTAMINATION KIT.
“mold person” = someone who lives or works in a high mold count environment and consequently is walking around in a cloud of spore which can contaminate anything or anybody which gets too close to them.
"took a hit" = contact either thru air or touching that causes onset of symptoms which persist beyond a couple hours. This is typically either contact with someone who lives in a high mold count environment or I have entered a structure that has a mold problem or I have touched something contaminated, like clothing... Food is another issue we can discuss later.
* "Bad Hit" = I was exposed to the live spore of one of the molds I am very allergic to or I touched something/someone where high mycotoxin levels exist from one of those molds. I’m usually symptomatic for several weeks minimum. Last time were milder symptoms—med. brain fog, loss of coordination, blurry vision, yeast overgrowth, hiccup asthma daily again, frequent urination with weird smell of tricothocenes, thyroid/adrenal dysfunction, etc. I'm sure it would have been much worse if I hadn’t used this system, as my family has aspergillus in their house and I got sick every single time I saw them until started doing this way.
* “Super bad hit” = can feel getting sick during exposure, usually within minutes. An example of how this can happen? I actually went into a structure where there is active growth of worst allergic molds (worst possible scenario) or got within 2 feet of a mold person transporting worst type of mold spores. If at all possible get help. Get them to spray you, bag your purse and to hand you the decont. Kit.
* Always without any delay, go outside and breathe fresh air, get decont. Kit asap and then dispose of everything exposed, most especially all clothing. If you can feel any strong symptoms then your hair is now a problem. The cap really helps to contain spore, so does wetting the hair although that can be tricky because people can be super weird about you “taking a shower” so I just dampen it most of the time and get out quickly. If really, really bad, like I walked into a place like my house? I hose my hair down and wear the cap, being sure to put it on before I put on my clean clothes. It can be embarrassing but heh! keeps me from breathing more spores and from contaminating my stuff at home, so it's worth it, right? Just being in the world and dealing with hits, I have found there are 3 kinds of people: the a--h---s, I suggest that you don't engage with them or give them any power, try to slip away unnoticed. The indifferent, who could care less. The caring, who will ask questions and may even offer to help. I have found that there are more kind people than mean and that it’s best to save the caring people for when I’m in real trouble and need someone to open my trunk for me, hand me decont. Kit, things like that. It can make a world of difference to have supportive people in the community at large.
Important Notes: As an everyday practice, I now keep most important/expensive items in my purse in heavy duty 1 qt. freezer ziplock bags, i.e. my Drivers license in one alone - I never take it out; credit card in one alone - I scan, not the cashier, if at all possible; checks are in one alone; cell phone, I use a pay as go phone with transferable minutes & phone number, much cheaper to replace. That way if I use somewhere and then realize I was exposed, this practice minimizes losses and/or what has to be treated. Be sure and change bags out every so often as they get tears in them with use. I'm super careful where I sit with my laptop, very high risk. If a mold person approaches me and I have it with me, I get away asap and try to put in a plastic bag so I don’t ruin my padded computer bag. I have a method I’ll share with you that’s okay so long as it didn’t have direct exposure to bad hit. In general, when shopping, I always just double bag, tying each bag closed so if I encounter mold person I can just lift out inner bag and go on, this is especially important with fibers or expensive items.
If I'm going to place never been before or place I have a question about, I wear cheap clothing if at all possible which I keep for this very purpose. I do not buy anything at thrift stores anymore. Used clothing is especially at risk for mold unless I can get it from an individual I know is safe. Remember there are 700 different kinds of mold and it is literally everywhere in world now. You become sensitive to it with exposure. Everytime I buy anything made of fiber, I first stand and hold the item for a few minutes. If I get a buzz, I leave it, new or used, doesn’t matter. A pro told me, mold is in warehouses and anything can be affected if shipped or stored from one with it. I always wash first time with GSE detergent.
If seeing someone I know lives in mold, I keep my distance (app. 12 feet seems to work), try not to touch things they touch (no hugging), always stay upwind and use decont. process when leave them. I spray myself and inside of car w/ GSE solution whenever there is a potential problem. I use GSE candle 1x a week for 1 hour for maintenance in car and where I live. Dr wants me to spray GSE into vent system of car and so must start that soon. Is difficult because of cabin filter. Sigh, have to pay for this.
Ideally you would place a decont. kit in each place: trunk of car, and if possible-- in a discreet place at work away from personal workstation. Also I try to keep a spare somewhere like the garage at home in case I forgot to put kit back in trunk, etc. Make sure decont. clothing is appropriate to situation! Also, think about where you go, what you do. Let's say your brother's place is actually closer to where you shop or socialize than home is, you may want to leave one at his house as well. Figure out ahead of time, how you will change your clothes without entering areas you frequent. This is very important as you will cross cont. if you are walking in a cloud of spore.
It has been proven to me over and over again that GSE does kill mold, so trust it. When I have time I will do more research on way to use tea tree, etc. as it is better for my body to rotate systems, more effective that way.
When encountering unknown structures. I "test" by standing at door for several minutes and trust all my senses, most especially my awareness of the energy present. We joke and call me the mold geiger counter. If I pick up on something after I’m in the bldg. I have developed a way of saying things so that people know I'm not going to sue them (biggest fear is liability). They get it that this is really just about staying healthy and are almost always honest with me about what’s going on. Very validating, and interestingly enough, often not just for me. In speaking out, I have also aided others by bringing attention to and/or clarifying what’s wrong.
I believe in a holistic approach to healing and have found that for me, things like trusting my intuition can be a serious advantage in preventing contact. I also focus on releasing the negative energy from myself as I decontaminate. Visualize it washing down the drain, being trapped inside the bag, absorbing into the Earth. I understand that this is a fundamental form of energy work. I put the focus on channeling this toxic energy out and away from me. I am untrained in this, you may know a lot more about it than I do. I do know that I can feel the energy of the toxins, that this is what the “buzzing” of the Geiger counter is all about. I have found that understanding what gifts and abilities you have, are important tools which may help you in your healing process. Learn to trust them.
I hope this helps you. Remember that what I am sharing with you is based on my experience as well as what a couple of Dr's, a pharmacist, 2 nurses and several other patients have shared with me. I've been as specific as possible so you will learn way of thinking not just logistics. If you have questions, pleasse don't hesitate to ask me and others.
I wish you a life of good health and much shared love.
In peace,
Share
Sorry my last message was full of so many personal comnplaints, was being affected by place i was in and really needed to vent. This one is only about the mold decontamination process I promised to share with you.
So you know, I was literally in the very worst state of sensitivity/toxicity and was rapidly headed for having to live in a bubble. What saved me from permanent impairment and put me back on the road to profound healing are: believing I could heal; time in the great out of doors; not keeping one item from my house including my car; not reentering structures known to have mold; minimizing exposure to chemicals; minimizing cross contamination; focusing on healing from within by modifying my diet, including needed supplements & therapies.
Mold allergy symptoms can vary so much, not only from person to person but from mold to mold. There is one very common and difficult symptom to cope with -- brain fog. Symptoms can include memory loss , difficulty thinking straight, comprehension problems, thinking one thing but saying another, difficulty sequencing -- to name just a few. For me the worst thing abut brain fog is how it can interfere with my taking care of myself when I take a hit. This is where having routine ways of protecting myself have become invaluable – saves me from trying to figure it out everytime, something I may not be able to do.
One of the best pieces of advice I was given is to trust my inner knowing. If I go somewhere and get a sense that something isn’t right, I don’t doubt it anymore. It’s critical that I trust my ability to read the situation accurately. I finally figured out that if I listed each early onset symptom in great detail and then checked it several times a day if necessary, I could figure out better what was affecting me. Pay close attention to them, they are your warning bells, don't delay until symptoms are screaming at you, just leave. Those bells can save you from getting sick again. You know better than anyone else how you feel and when there is something wrong, learn to trust that. Keeping a journal can help in understanding this also.
An important question: How to foster more support and less resistance from the people around you? I have found if I can handle these situations very matter of factly and with minimal assistance from people I know well (they just burn out) that works best. This is where being prepared with a decont. Kit can be invaluable. And if I’ve taken a really bad hit, adding the availability of money, has really helped me to stay out of my car until I have finalized all stages of the decontamination process. Remember, you must protect your car. Mold spore loves upholstered items, including leather, loves to burrow into padding, loves to get into ventilation systems and remediation is not always successful.
Three things are sacrosanct - your car, personal work space and living space.
For me the decontamination process is all about how to cope with hits. I always prepare for the worst case scenario as I have taken hard hits very unexpectedly, continued to get sicker and sicker and then lost everything because of cross cont. This has happened way too many times until I finally got it. Those who advised me actually knew what they were talking about when they said one item can contaminate everything –they were not paranoid or over reacting. Since I have implemented this system, I am taking relatively mild hits or staying well and improving. This means I am less sensitive which means milder hits which means stronger immune system which means better healing which means less sensitive....! I'm sure when I'm in right living & work space, I'll just take off! So take heart, don’t despair. There is a light at the end of this tunnel.
Decontamination Kit is in 2 plastic bags, each bag tied shut with contents arranged as follows (to maximize protection):
2 pair of disposable vinyl gloves
disposable clear plastic hair cap (like hair stylist use)
sox
menstrual pad w/ underwear (if bad mold i often start bleeding...)
long sleeved shirt and pants
shoes (I buy washable cheap ones so can reuse)
6 plastic grocery bags
Next to kit I place close to the opening, very easy to pick up:
several pairs of disposable vinyl gloves, 1 set at a time
spray bottle with GSE solution made regular strength as directed
$20. and couple dollars in quarters in a Heavy Duty freezer Ziplock bag
several plastic grocery bags, each separate
Decontamination process: Leave immediately, stand outside and breathe deeply. Calm down, don't panic. Open trunk, being aware of wind -- stand to side if necessary to keep spore from entering. Put on a pair of disposable gloves. Leave trunk open. Take spray bottle, step away from car and spray myself damp from head to toe, front & back, including face and hair. Drop keys onto ground, spray liberally. Dump contents out of purse away from keys and spray liberally. Now get a plastic grocery bag and put the damp purse inside it, without touching purse, being sure to tie shut. Bag purse again and put it into trunk to wash later. (remember If bad hit, throw it away!) Now spray all plastic bags inside purse very liberally, put in gallon ziplock bag and seal. Put all else in second ziplock until know how bad hit is, dispose of any paper or if anything came in direct contact with contamination. Put these ziplocks in a plastic grocery bag and tie shut, leave in trunk. Spray trunk liberally and leave bottle in trunk. Take de-cont. kit, keys, close trunk & leave for nearest safe bathroom away from contamination area. Upon entering, set kit to left. Remove contaminated clothes carefully, trying not to touch face, etc as pull off. Fold over on self and set aside to right. Remove gloves inside out and set on top of clothing. Go to sink and wash hands, arms, face. I prefer cold water as closes pores, think it minimizes absorption. If bad hit, dampen your hair as this helps keep the spore from floating around. Be sure to wash your hands after handling your hair. Work slowly, carefully. Contain clothes in bag without touching them (use bag like a glove and then wrap around items). Shoes in another bag. Tie shut. If bad hit, throw away right now - don't even think about it, just do it. If its obvious that you stopped it in time or its not one you are super allergic to, then bag 2 more times, inverting each time and tie shut each time so can take home in trunk and wash separately with GSE laundry detergent (they'll last only a few more hits this way but at least you got that much more out of them.)If bad hit, put on other pair of gloves and cover hair with cap, leave these on until shower. Otherwise get dressed and go back to car. If super bad hit, get money and find way to a safe place to shower. DO NOT ENTER CABIN OF CAR until have finished decontaminating with shower. Otherwise get spray bottle from trunk, dampen hair again and liberally spray the inside of the drivers seat area with the solution, get in and go where can shower that is safe. Be sure and have soap with GSE or Tea tree available to wash your hair, body, etc. Scrub. Use cool/cold water initially. Change into clean clothes again, making sure to bag clothes just worn for washing and using again for decont. Kit. (if bad hit, get rid of them) Take GSE internally (10 drops in small amount of water then drink big glass water after).Once daily for a couple of days usually does it for me unless bad hit then 2 – 3 times daily for several days. Be sure and take your next round of supplements when eat. Put on new pair of gloves and lightly spray inside of ca. While outside and away from car, change items from purse into new ziplocks. Take clothes in and dump directly into washing machine using GSE detergent. REPLACE DECONTAMINATION KIT.
“mold person” = someone who lives or works in a high mold count environment and consequently is walking around in a cloud of spore which can contaminate anything or anybody which gets too close to them.
"took a hit" = contact either thru air or touching that causes onset of symptoms which persist beyond a couple hours. This is typically either contact with someone who lives in a high mold count environment or I have entered a structure that has a mold problem or I have touched something contaminated, like clothing... Food is another issue we can discuss later.
* "Bad Hit" = I was exposed to the live spore of one of the molds I am very allergic to or I touched something/someone where high mycotoxin levels exist from one of those molds. I’m usually symptomatic for several weeks minimum. Last time were milder symptoms—med. brain fog, loss of coordination, blurry vision, yeast overgrowth, hiccup asthma daily again, frequent urination with weird smell of tricothocenes, thyroid/adrenal dysfunction, etc. I'm sure it would have been much worse if I hadn’t used this system, as my family has aspergillus in their house and I got sick every single time I saw them until started doing this way.
* “Super bad hit” = can feel getting sick during exposure, usually within minutes. An example of how this can happen? I actually went into a structure where there is active growth of worst allergic molds (worst possible scenario) or got within 2 feet of a mold person transporting worst type of mold spores. If at all possible get help. Get them to spray you, bag your purse and to hand you the decont. Kit.
* Always without any delay, go outside and breathe fresh air, get decont. Kit asap and then dispose of everything exposed, most especially all clothing. If you can feel any strong symptoms then your hair is now a problem. The cap really helps to contain spore, so does wetting the hair although that can be tricky because people can be super weird about you “taking a shower” so I just dampen it most of the time and get out quickly. If really, really bad, like I walked into a place like my house? I hose my hair down and wear the cap, being sure to put it on before I put on my clean clothes. It can be embarrassing but heh! keeps me from breathing more spores and from contaminating my stuff at home, so it's worth it, right? Just being in the world and dealing with hits, I have found there are 3 kinds of people: the a--h---s, I suggest that you don't engage with them or give them any power, try to slip away unnoticed. The indifferent, who could care less. The caring, who will ask questions and may even offer to help. I have found that there are more kind people than mean and that it’s best to save the caring people for when I’m in real trouble and need someone to open my trunk for me, hand me decont. Kit, things like that. It can make a world of difference to have supportive people in the community at large.
Important Notes: As an everyday practice, I now keep most important/expensive items in my purse in heavy duty 1 qt. freezer ziplock bags, i.e. my Drivers license in one alone - I never take it out; credit card in one alone - I scan, not the cashier, if at all possible; checks are in one alone; cell phone, I use a pay as go phone with transferable minutes & phone number, much cheaper to replace. That way if I use somewhere and then realize I was exposed, this practice minimizes losses and/or what has to be treated. Be sure and change bags out every so often as they get tears in them with use. I'm super careful where I sit with my laptop, very high risk. If a mold person approaches me and I have it with me, I get away asap and try to put in a plastic bag so I don’t ruin my padded computer bag. I have a method I’ll share with you that’s okay so long as it didn’t have direct exposure to bad hit. In general, when shopping, I always just double bag, tying each bag closed so if I encounter mold person I can just lift out inner bag and go on, this is especially important with fibers or expensive items.
If I'm going to place never been before or place I have a question about, I wear cheap clothing if at all possible which I keep for this very purpose. I do not buy anything at thrift stores anymore. Used clothing is especially at risk for mold unless I can get it from an individual I know is safe. Remember there are 700 different kinds of mold and it is literally everywhere in world now. You become sensitive to it with exposure. Everytime I buy anything made of fiber, I first stand and hold the item for a few minutes. If I get a buzz, I leave it, new or used, doesn’t matter. A pro told me, mold is in warehouses and anything can be affected if shipped or stored from one with it. I always wash first time with GSE detergent.
If seeing someone I know lives in mold, I keep my distance (app. 12 feet seems to work), try not to touch things they touch (no hugging), always stay upwind and use decont. process when leave them. I spray myself and inside of car w/ GSE solution whenever there is a potential problem. I use GSE candle 1x a week for 1 hour for maintenance in car and where I live. Dr wants me to spray GSE into vent system of car and so must start that soon. Is difficult because of cabin filter. Sigh, have to pay for this.
Ideally you would place a decont. kit in each place: trunk of car, and if possible-- in a discreet place at work away from personal workstation. Also I try to keep a spare somewhere like the garage at home in case I forgot to put kit back in trunk, etc. Make sure decont. clothing is appropriate to situation! Also, think about where you go, what you do. Let's say your brother's place is actually closer to where you shop or socialize than home is, you may want to leave one at his house as well. Figure out ahead of time, how you will change your clothes without entering areas you frequent. This is very important as you will cross cont. if you are walking in a cloud of spore.
It has been proven to me over and over again that GSE does kill mold, so trust it. When I have time I will do more research on way to use tea tree, etc. as it is better for my body to rotate systems, more effective that way.
When encountering unknown structures. I "test" by standing at door for several minutes and trust all my senses, most especially my awareness of the energy present. We joke and call me the mold geiger counter. If I pick up on something after I’m in the bldg. I have developed a way of saying things so that people know I'm not going to sue them (biggest fear is liability). They get it that this is really just about staying healthy and are almost always honest with me about what’s going on. Very validating, and interestingly enough, often not just for me. In speaking out, I have also aided others by bringing attention to and/or clarifying what’s wrong.
I believe in a holistic approach to healing and have found that for me, things like trusting my intuition can be a serious advantage in preventing contact. I also focus on releasing the negative energy from myself as I decontaminate. Visualize it washing down the drain, being trapped inside the bag, absorbing into the Earth. I understand that this is a fundamental form of energy work. I put the focus on channeling this toxic energy out and away from me. I am untrained in this, you may know a lot more about it than I do. I do know that I can feel the energy of the toxins, that this is what the “buzzing” of the Geiger counter is all about. I have found that understanding what gifts and abilities you have, are important tools which may help you in your healing process. Learn to trust them.
I hope this helps you. Remember that what I am sharing with you is based on my experience as well as what a couple of Dr's, a pharmacist, 2 nurses and several other patients have shared with me. I've been as specific as possible so you will learn way of thinking not just logistics. If you have questions, pleasse don't hesitate to ask me and others.
I wish you a life of good health and much shared love.
In peace,
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