darlene
01-13-2002, 04:01 AM
Has anyone ever had a "tilt table test"? If so, how does it relate to FMS or CFS?
Darlene
Darlene
Sponsor
LArabi
01-13-2002, 04:43 PM
Tilt table tests diagnose cardiac problems. I've never heard of them being used for CFS or FMS. The purpose is to see if your heart triggers a sudden drop in blood pressure when the table tilts slowly upward. If the blood pressure does drop, then you faint. If you have a history of undiagnosed fainting or waking up on the floor without knowing how you got there, then this is the test for you. I don't know how a tilt table test would be helpful for patients with CFS or FMS.
Terri
Terri
korken
01-13-2002, 06:33 PM
We've never heard any mention anywhere about this test being used in DXing FMS or CFS either. Did your doctor tell you why they were ordering this test? If not call and ask him.
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Take care ~Kim & Gary~
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Take care ~Kim & Gary~
SamQKitty
01-13-2002, 09:25 PM
About five or so years ago, some CFS researchers thought they had discovered what caused CFS. Using a tilt table, they researched a condition called "neurally mediated hypotension" (NMH for short), which is a condition that results in very low blood pressure when standing upright for a period of time. They thought that perhaps this was why people with CFS were so tired all the time. I believe the end results were that some people had been misdiagnosed with CFS when they actually had NMH, and some people with CFS also had NMH and improved somewhat when the NMH was treated, but still had some sypmtoms of CFS. Also, not all people with CFS who were tested had NMH.
darlene
01-15-2002, 02:31 AM
Hi, thanks for the reply. How it came up was last year I had about 5 or 6 months where I was dizzy all the time. After having an ENG they had discussed doing a tilt table test but never did.
I did get some good news today, my doctor has signed the papers for disabiltiy for FMS. Not SS disability, but a private policy I had through work, long term disability. I was actually surprised because he is quite a conservative doctor so it was a nice surprise. Since he did this, do you think this would have any bearing on SS disability being easier to get??? I am also going in tomorrow for an ultra sound on my thyroid. Ten years ago I had 2/3 of it removed because I had a tumor on it, now something has grown back so just one more thing to worry about.
Darlene
I did get some good news today, my doctor has signed the papers for disabiltiy for FMS. Not SS disability, but a private policy I had through work, long term disability. I was actually surprised because he is quite a conservative doctor so it was a nice surprise. Since he did this, do you think this would have any bearing on SS disability being easier to get??? I am also going in tomorrow for an ultra sound on my thyroid. Ten years ago I had 2/3 of it removed because I had a tumor on it, now something has grown back so just one more thing to worry about.
Darlene
SamQKitty
01-16-2002, 12:50 AM
Hi Darlene,
Like you, I had LTD through work. It's a godsend, because it can keep you going while you fight for social security disability income. Unfortunately, qualifying for LTD through work is meaningless when it comes to SSDI. They have their own standards. Most employer LTD policies require you to apply for SSDI. If you end up getting SSDI, the LTD policy will usually only pay you the difference between what your SSDI monthly payment is and what you would receive on LTD if you had no SSDI. Usually, that's still more than SSDI alone.
As for qualifying for SSDI for fibromyalgia, it has been done, by myself and many others. It's a bit difficult, but not impossible. Your doctor has to be willing to work with you. To qualify for SSDI, you must be expected to be totally disabled for at least one year and SSDI will not cover the first five months. Also, they usually turn you down at first, you then have to file a "reconsideration", which also usually gets turned down, then you go before an administrative law judge, at which point you'll need an attorney. Bad news (but not so bad if you've got LTD to carry you during that time) is that the whole process can take up to 2 years; good news is that if you get it, it's retroactive to when you first filed. Other good news is attornies work on contingency fee...they get nothing if you don't get an award, and then they get a portion of the retroactive award. If you decide to go this route, email me at SamQKitty@aol.com, and I'll give you as much info/tips as I can. Oh, if you email me, in the subject line, put "FM Healthboards", so I'll know what it's about and open your email!
[This message has been edited by SamQKitty (edited 01-15-2002).]
Like you, I had LTD through work. It's a godsend, because it can keep you going while you fight for social security disability income. Unfortunately, qualifying for LTD through work is meaningless when it comes to SSDI. They have their own standards. Most employer LTD policies require you to apply for SSDI. If you end up getting SSDI, the LTD policy will usually only pay you the difference between what your SSDI monthly payment is and what you would receive on LTD if you had no SSDI. Usually, that's still more than SSDI alone.
As for qualifying for SSDI for fibromyalgia, it has been done, by myself and many others. It's a bit difficult, but not impossible. Your doctor has to be willing to work with you. To qualify for SSDI, you must be expected to be totally disabled for at least one year and SSDI will not cover the first five months. Also, they usually turn you down at first, you then have to file a "reconsideration", which also usually gets turned down, then you go before an administrative law judge, at which point you'll need an attorney. Bad news (but not so bad if you've got LTD to carry you during that time) is that the whole process can take up to 2 years; good news is that if you get it, it's retroactive to when you first filed. Other good news is attornies work on contingency fee...they get nothing if you don't get an award, and then they get a portion of the retroactive award. If you decide to go this route, email me at SamQKitty@aol.com, and I'll give you as much info/tips as I can. Oh, if you email me, in the subject line, put "FM Healthboards", so I'll know what it's about and open your email!
[This message has been edited by SamQKitty (edited 01-15-2002).]
rnmcd
02-20-2004, 07:57 PM
I had a tilt table test today and I was almost unconcious at the end...they nurse said I passed out but I don't think it was quite that bad.
I don't know if I beleive the process used. It seems like anyone would pass out after being injected with the medication to make your heart race.
It was very disconcerting.
I don't know if I beleive the process used. It seems like anyone would pass out after being injected with the medication to make your heart race.
It was very disconcerting.