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neufa
02-06-2002, 12:14 AM
Source-of-Pain Experiment (fat vs. dairy vs. sugar

FIRST EXPERIMENT
NON-FAT DAIRY

During the course of a week, drink alot of skim milk with other foods
EXCEPT FOR SATURATED-FAT FOODS

Mark your degree of pain that week
==================

SECOND EXPERIMENT
SUGAR-FAT

During the course of a week, eat alot of Hershey DARK Chocolate
BUT ELIMINATE ALL DAIRY.
ALSO ELIMINATE NUTS (CONTAINING CALCIUM LIKE DAIRY

Mark your degree of pain that week
===================

THIRD EXPERIMENT
DAIRY FAT (CALCIUM-FAT) EXPERIMENT

During the course of a week, eat alot of hard cheeses
BUT AVOID SUGAR & CARBS.

Mark your degree of pain that week

Sponsor
 



korken
02-06-2002, 12:39 PM
What were your results?

We have been following a low or no saturated fat intake for years and colestorol. We also only use low fat milk products and very little refined sugar. It has helped with losing weight.



------------------
Take care ~Kim & Gary~

neufa
02-07-2002, 01:52 AM
First of all, you mentioned avoiding cholesterol.

I haven't found cholesterol to cause me pain (and in fact I thrive on egg+oil based products, such as mayo which contain lysine and therefore buffer my tendency toward vaginal & urethral bleeding).

I proposed the experiment, because there's an ongoing debate in the FM community as to whether

SUGAR or
DAIRY

causes the most pain.

I myself have noticed that FAT is the worst for me. I'm not yet sure whether DAIRY FAT or SUGAR FAT is worst.

So anyone brave enough is welcome to try experimenting & reporting back re: the root of the matter!

rhody
02-07-2002, 12:49 PM
Neufa,

I think that's wonderful that you are suggesting some safe experimentation with foods. When I was so sick with muscular aches and pains and many other health problems, I experimented with so many things (vitamins, foods, herbs, water, minerals etc.) for years and years. I eventually linked all of my FM symptoms to my mercury-silver dental amalgams after years of trial and error, but I also wonder if my recovery has been increased because of my knowledge that resulted from these experiments.

For example, a few weeks back, when I overdid it with extreme exercise and work, my back, neck, and shoulder muscle pains were killing me (I wrote about that experience on this board). But, I knew to increase my diet to include calcium-rich foods like spinach, and herbs and today all is well. During that time I worked 7 days a week, straight through for two weeks. Such work-related stress makes things worse, but because I was able to find some mechanisms to improve my health naturally, I was able to defeat this horrible discomfort and continue with my job.

I still wonder if some fibromyalgia is caused or made worse by stress, toxins, allergens, and wrong diet. I don't think the answer is clear for everyone. Again, I think it's great that you are doing this safe experimentation. Maybe some of you will discover some new interesting things. It will be neat to hear the responses.

Do any of you have doctors that encourage you to improve your lifestyles with better diet etc. to reduce the pain of fibromyalgia? Why isn't more attention in the medical world addressed to these issues? What was so frustrating for me, is that I got well on my own with my experiments (not from doctor's care or advice). My doctors never emphasized herbs, natural foods, removing toxins etc. From my experience here in the United States, not enough doctors understand the relationship of having mercury in your mouth either, and its potential allergic complications for some people. Who knows what household cleansers or other chemicals that could be doing us harm as well?

I hope that you all can find some things that could help you all feel better. Personally myself, I avoid all processed foods, especially those that are high in sugars. For me, the calcium-rich foods like milk, almonds, brocolli, and spinach were always helpful.

neufa
02-07-2002, 06:30 PM
rhody:

You mentioned that calcium-rich foods are good for you & that you avoid sugars.

I guess that means you would not eat milk chocolate (which contains calcium) & dark chocolate because they both have sugar.

You didn't say how hard cheese affects you.

Do you eat alot of hard cheese, (since after all it has calcium)? If so, how are you affected?

rhody
02-08-2002, 12:22 AM
Hi,

Yes, I would never eat milk chocolate or any candies. You can see what I just posted on the diet and nutrition board. Being sick all the time, forced me into eating healthy.

I don't eat a lot of hard cheese. What I eat, I think one would consider it soft cheese. I do have some cheese. Often I have quesadillas, which are cheese, jalapenos and tortillas. (It's a Mexican cheese sandwhich.)

For some reason, my biggest benefit that I noticed from any food was spinach. I can give one example.

One day I travelled on business to Albuquerque, New Mexico. I hiked up the Sandia mountains (about seven miles) to the top where there was a restaurant on a Sunday morning. This was about a year or two after I had the mercury-silver dental amalgams removed. I was feeling good, so I wanted to put this new body to the test (I gradually noticed improvement after the amalgams were removed).

It was such a bright and sunny day by these colorful "watermelon" mountains. I started to jog. It was so neat, here in the desert. As I got further up the narrow hiking trail, the cactus and thin leaf plants changed into pine trees. I was in heaven.... Then I noticed that I started having some muscle pains far up my left leg near the joint. Man, was it making me mad. Here it was so nice, and then this lousy thing started again. But, being stubborn I limped stiff-legged all the way up, begging for water as it was so hot, from hikers passing by. Finally, I made it to the top, where the last half mile or so was a flat journey to the restaurant (near the gondola). The pain was worth it. I made it up to this beautiful area on my own two legs. (I took the gondola down.)

Then next two days I was to start my jogging. I knew with this leg pain that I would never make it. So, being a little nutty, when I got back to where I was staying in Albuquerque, I bought some fresh spinach at a supermarket. In the hotel room while watching TV, I ate leaf after leaf. I didn't want to get sick. I was so mad. I was sick of being sick. I wanted to be healthy. I thought that the spinach would help, but I just wasn't absolutely positive.

Well, I started jogging on that Tuesday (two days later) very slowly, and to my hopeful expectations, I had no pain. From that point on, I knew that there was something in the spinach that was like a magic pill. To this day, I don't know why, but it probably is something to do with the high calcium content. Plus spinach is so rich in vitamins. About 1983 or so, I discovered that calcium pills (some of them with magnesium) helped my muscle pains. I had the mercury-silver dental amalgams removed a little over 8 years ago.

neufa
02-10-2002, 12:41 AM
I hear what you're saying about spinach having high calcium BUT

hard cheeses ALSO have high calcium content.

Therefore, what I suspect is that either DAIRY-FAT or ESPECIALLY SUGAR-DAIRY-FAT are the worst.

OTHERWISE, wouldn't hard cheeses also help you (since you say that calcium helps you?

Apparently it's the FAT which clogs the system causing pain (research "sarcopenia" & Baumgartner's research on same.

ALSO, I suspect spinach is so healthy because it's sort of slimy-textured AND bitter, which moisturizes & alkalinizes the system. (I have a dry, acidic system & therefore have poor immunity.

rhody
02-10-2002, 11:44 PM
I didn't experiment enough with cheeses to notice any difference. When I first learned that I responded positively to more calcium (about 18 to 19 years ago), I tried drinking lots more milk. I only noticed a very small improvement. I had to drink so much milk, that I had a bad reaction to it (probably too much lactose).

But for some reason, raw spinach worked so well for me, that it stood out like a "sore thumb". It was quite noticeable, as I have described previously.

Since I have improved so much after I had the mercury-silver dental amalgams replaced with white fillings, I no longer conduct food experiments. But for a lot of you that still have severe fibromyalgia symptoms, it could be a good idea to see if certain foods help you feel better.

I definitely recommend avoiding processed foods that are high in "empty calorie" sugars. On the other side of the coin, there are some raw foods (like salads) that are very good, as they are rich in enzymes. I think changing to a healthy diet is important.

With some experimentation, you might find out. Anyone else out there find that certain foods help them feel better?

neufa
02-12-2002, 12:06 AM
Speak of silver fillings, I'm loaded with them, and believe me, if it weren't a costly (& painful!) proposition, I'd want to replace mine too.

As it is, I have loads of dental sensitivity & pain (can't chew on left side) & spent over $300 on the dentist for nothing. She gave me fillings (silver of course!) but I still cannot chew on left side. I even went to an endodontist for "backup" but he also wasn't sure exactly of my pain source. SIGH.

I made an appointment for the springtime with another dentist, & may do root canal.

BTW, spinach is also very healthy for me ESPECIALLY because I'm jaundiced. I have hypercalcemia, & I suspect I got that from being pumped with too much milk as a child (which I hated). Milk isn't a well-absorbed form of calcium (unlike spinach) & creates calcium-buildup & pain.

rhody
02-12-2002, 02:17 AM
By the way, the so-called "silver fillings" are about 50 percent mercury. The silver content is only about 30 percent. It's been a cover-up for years. That's why I call them mercury-silver dental amalgams. Few people that have these actually realize that they have a mouth full of toxic mercury - one of the most dangerous pollutants on the earth next to plutonium. This mercury doesn't stay hard in the teeth, but slowly leaks and accumulates in the body all over the place. That's the sad truth.

For some reason, some people are more sensitive to it. Plus it all depends how many of these that you have in your mouth. It's controversial, but I speak about it, because I was soooo soooo sick, and now am well after getting rid of those poisons. I still have some problems, but they are minor, and are aggravated when I overdo it. Sometimes my kidneys still flush me out with great volumes, usually at night. I'm still fighting this thing, with exercise, my herbs and proper diet. I never wanted to be sick.... I refused to accept this unhealthy condition. I never, never, never gave up - just too stubborn I guess.

Even after a person gets rid of this mercury from their teeth, then they have to spend considerable time detoxifying their body. Usually people don't realize that they have this problem with their teeth, gums, and FM symptoms, until they are older when the accumulation has reached toxic levels. Unfortunately, I believe a lot of this is masked by saying we are too old. That's what my doctor told me in 1978, when I went to him about these strange muscle pains. He said I was too old, and I was only 27 years old (almost 28). I'll never forget his strange looks when I described these pains to him. I'll never forget....he just didn't know what to think of it. In those days, it was called fibrotitis.

neufa
02-14-2002, 02:12 AM
yea. Well, I'm too worn out (& not wealthy enough) to go thru the process of changing my fillings.

When i win the lottery maybe http://www.healthboards.com/ubb/clown.gif

korken
02-14-2002, 12:38 PM
We had those silver fillings taken out several years back. We are now worse. I guess that we didn't just have symtoms but did get the DX that we have FMS by a board certified FMS specialist. It is so hard that so many things can mimic FMS and some have more than FMS or not FMS at all. Rach had charie and needed brain surgery. But, she also has FMS. Many docs missed this important finding. Rach went to the samr doc as I and he digs till he rules out everyting. Great doc. Each must research and know all they can about there condition and question when in dought that is what we do. As Rhoudy said he found out that he was being posioned by mercury. If I am right can't that kill you. FMS does not. That is why it is so important that the docs do the right rule out tests.



------------------
Take care ~Kim & Gary~

rhody
02-14-2002, 05:20 PM
At the time I had the insurance to pay for part of the mercury-silver dental amalgam replacement. All I had to pay for, was the difference between the cost of "silver fillings" and the "white fillings". For those interested they could ask to find how much it would cost. It may not be as expensive as you think. My fillings were so old that they were due for replacement anyway.

Since myself, being a lot like a lot of you, I did not know for certain at first that the mercury-silver dental amalgam were causing me problems; I changed them out for cosmetic purposes. It was fortunate for me, that this was key in getting me better. But for all, this may not be the case.

So, in summary, until mercury-silver dental amalgams are definitely linked to some cases of fibromyalgia (or its symptoms), I would think that this would be done for cosmetic purposes only. We are all different, and for each of us, this could or could not improve our health.

I've also worked carefully with natural healing too, with diet, herbs and exercise. I never smoked and stopped drinking alcohol in about 1983. I never drank alcohol very much, but I wanted to get well so much that I cut all of that junk, including sweets. I think that has been something also that has been important for me to improve. It's a combination of things....

I linked also the mercury-silver dental amalgams to my health in many ways during the removal and replacement period too. I probably wrote about this before. The strangest thing happened after my last amalgam was removed and replaced with a white filling. A point on my right knee (on the right side) became sore to touch. It was like a bad bruise. When you touched it, it hurt pretty bad. In those days about 8 years ago, I thought that it would affect my running, but it fortunately did not. Over the years, this strange pain lessened slowly. I always wondered why that happened. But I suppose a lot of us wonder why we had any of these strange pains in the first place.

Also one more point. If replacing out the "silver fillings" made you worse, could it be possible that this something else that that was put in its place is more toxic to your body? I had a naturopath determine which dental restoration materials were good for me and which were bad before I had made the substitution. I was even tested for the cementing agents.

For example, I had a friend a couple of years ago, tell me that he had the dentist put back the "silver filling" back in, because the "white filling" gave him a bad reaction (I think) to his tongue.

Various allergens and toxins affect us all in different ways. I think more research needs to be done in that area. For example, on the dental board, we discussed why latex materials are extremely dangerous for some people, yet for others it is safe. Each of us is different. Apparently dentists use gutta percha as a root canal filler. It is a latex material. I'm not sure that I got the spelling right.

Yes, mercury can kill in high enough doses. For example, a researcher got just a few small drops on her (methlyated mercury on her fingers or hand that went through the protective gloves) and she died. First went into a coma.... There's a sad web page about it somewhere I was reading....

Fibromyalgia or its symptoms can not kill, but at one point in my life I didn't want to live any more. I wished I was dead. The horror of it all was too much. At some of the worse parts of my life, my bladder filled up so much to the point of exploding in pain, but I could not go. Fortunately I found the doctor. Later, I discovered herbs. I was miserable. Can you imagine? It was like you were going to die a horrible death - like you know when you are drowning and that you are going to die - I knew that I was dying....

neufa
02-15-2002, 12:12 AM
You mentioned about cutting out junk, including sweets.

But if people don't have at least some sweets (syrups are very good) in their diet, they can be at risk of constipation.

arkie6
02-15-2002, 12:05 PM
Originally posted by neufa:
You mentioned about cutting out junk, including sweets.

But if people don't have at least some sweets (syrups are very good) in their diet, they can be at risk of constipation.

Please say you are joking. You are joking right?

Alan

rhody
02-15-2002, 06:28 PM
To me, sweets mean sodas, candies, cookies, cakes, ice cream, donuts, and other refined carbohydrates filled with sugar etc. I avoid all of those like the plague. To change my diet, it didn't happen over night. It took years. And I'm a lot like all of you, I'll cheat a little bit with some pizza or something like that. So, who's perfect? :) :) But, I try to stay with natural foods (non-processed) as much as possible.

As far as constipation goes, eating a high fibrous natural food diet makes that almost never a problem (extremely rare). Those that eat natural foods know this. It is much better for your digestive tract.

I read that people who eat sugary refined-carb foods, that their body excretes a thin coating on the intestinal tract each time, because the body regards this as a poison. I don't know if it's quite true or not, but I read that if someone eats all that junk for a long time their intestines can be restricted with a tar-like coating that is built on there over the years. I'm not an expert at this, so please take this with a "grain of salt", until you can find some more confirmation about this. I only read about this from one source. Eating junk food is very bad for all of us, nevertheless. If someone knows more about this reaction to the intestinal tract, it would be interesting to hear.... There's a very good procedure to clean up this tar coating with herbs that I read about, if someone is interested. I haven't tried it, because it's kind of gross, and I'm just hoping that my system is back to normal now with my better diet. I also didn't want to do any more of my experiments for a while.

Getting back to fibromyalgia.... I think it's important for whoever has these FM symptoms to try to put the body in the best healthy condition possible. We may not be guaranteed that we will be feeling better, but eating better couldn't hurt. It's worth a try.

Thanks all for your comments. This is an important post, to understand diet and the type of foods that can affect our health.

neufa
02-16-2002, 11:09 PM
No I'm not joking.

In fact, when situations (with constipation) are desperate, hospitals give patients enemas consisting of milk with molasses.

Pediatricians prescribe sugar water for constipation.

For "dried-out" people in really bad shape (like me) in fact, the stuff which helps best is sweets (or sweet 'n sour), or chocolatey-bulk (such as fudge grahams) & sweet hot drink.

arkie6
02-17-2002, 12:32 AM
Originally posted by neufa:
...In fact, when situations (with constipation) are desperate, hospitals give patients enemas consisting of milk with molasses....


Hmmmm. Are you sure? I've never heard of that. Sounds kinda odd to me. An enema of milk and molasses????? Are you sure you didn't misinterpret when someone said they were given Milk of Magnesia? It sounds kinda like milk and molasses, but it is quite different. Milk of Magnesia is a laxative taken orally that is quite effective at relieving constipation.

Your body has no requirements for refined sugar. Many with a sweeth tooth might want to disagree, but there really is no biological need for you to consume sugar in any form or fashion. If you are having trouble with constipation, eat more high fiber vegetables, drink more water, and supplement with magnesium if necessary.

Alan

sujenke
02-17-2002, 01:24 AM
I'm jumping in on this conversation, and I maybe I shouldn't, but I just had to......

I've always heard that sugar CAUSES constipation....If someone's body SEEMS to NEED sugar in order to work properly, then I've always heard that that is a sign of a problem - diabetes, yeast infestation in the intestinal tract (we all have yeast, but it can get out of hand with too many carbohydrates), or, if you believe some of the new diet doctors, you could have a "carbohydrate addiction".

When I was pregnant and thought I needed sugar to survive (I was CRAVING the stuff), my doctor told me to cut ALL sugar out of my diet for about 3 days, and then I'd stop craving and needing it. He was correct.

Hope I didn't butt in too much, but I really feel that sugar is a big undiagnosed problem for many of us.

SUsan

neufa
02-17-2002, 01:43 AM
Look, I have no idea if either of you have suffered from severe IBS, but believe me, I tried all the "conventional" roots that the NIH propose (the spiel - lots of liquids & fiber & bran & senna tea & prunes & YOU NAME IT).

Nothing helped when I was in severe trouble EXCEPT chocolate cake & sweet drinks.

And I tried all the conventional "healthy" stuff for a few days. It did NOT help.

Furthermore, weeks ago, there was someone on these healthboards (the IBS board I believe) who complained of constipation, & after my post about chocolate cake, he tried it & was helped after nothing else helped him. And there are others like myself on other boards.

Everyone is different. People can't ALL go by what the BOILERPLATE IDIOTIC MEDICAL ESTABLISHMENT establishes as dyed in the wool.

Because NOTHING is dyed in the wool. We're not all from one mold.

So if your stuff works for you, fine. (But if I, & others, had listened to you, I'd be in BAD shape. "Standardized" advice can be totally off-target in some cases.

Long ago, Maimonides prescribed honey & warm water for the elderly with weak digestion. Honey is sweet.

Sugar has been given an unwarranted bad rap. Granted, too much of it is no good. But then, the highly-touted FIBER can cause problems for people with Colitis. So, you see, there's all sorts of foods that can be bad, or good - if taken in moderation.

arthelia
02-17-2002, 03:41 AM
I'm new here, so maybe I shouldn't "butt-in" either, but...

First of all...if your convinced Chocolate Cake is helpful to you, then by all means eat chocolate cake! Whatever works! But, did you ever consider that chocolate has a small amount of caffine and that may be what is stimulating your bowels and helping with constapation?

I just would hate for FM or CFS sufferers to read the chocolate cake thing and think that gives them a good excuse to chow-down on it...because I totally agree with the benifits of eliminting refined sugar from your diet!

I couldn't stick strictly to it forever, because I'm a whimp, LOL, but when I was desperatly, desperately ill, that is the thing that helped...going on a diet that forbids refined sugars! When I was so sick I could barely move, I decided I'd try anything and I went on the diet found in the book "Yeast Connection". It took awhile, but I quit craving sweets and started to get my energy back! It made the greatest impact on my FM/CFS of anything I've ever tried!

Just my two cents worth...don't mean to be controversial or anything...just wanted to tell my experience and say that it did help me!

rhody
02-17-2002, 04:00 AM
I agree that we are all individuals and no one diet is perfect for all. I can't eat a lot of meat for example. I just stay away from the sugars and processed foods etc.

But, I have to say when I did eat a lot of junk food (over 20 years ago), it did have the opposite affect for me than constipation. I found that if I had too much ice cream or sodas, that I shouldn't be very far from a bathroom. Apparently, the body tries to get rid of this stuff as soon as possible, from what I read, especially if you take too much of it.

But, also a sugar-rich refined-carb diet in moderation may cause constipation. The key is how much of this stuff one is consuming. I think it depends so much....

But for people with fibromyalgia, I think that people should try to see how a healthy diet works for them. By all means, modify that diet, based on your own experiments on how it makes you feel. That's what started this post, was analyzing experiments with food. And I think that neufa was doing a great job of bringing this to our attention.

Everyone had good comments, based on what they understand from personal experiences or what they have read. Peace everyone. Let's keep this friendly and support each other. Thanks. :)

[This message has been edited by rhody (edited 02-17-2002).]

sujenke
02-17-2002, 09:26 PM
Well, now all I can say now is that I'm craving a
BIG PIECE OF CHOCOLATE CAKE!!!!!

Susan
who has no sweets in the house :-(

Lyndal Stuhr
02-18-2002, 03:45 AM
I KNOW I eat too much refined sugars & I AM CONSTIPATED ! I really like chocolate cake, too! I suspect I, too, have FMS, as I have ALL the symptoms & have had for many years. I am intrigued by the Mercury-Silver fillings because my mouth is full of them!! I have been getting silver fillings since childhood. It makes alot of sense to me. Of course, not everyone has the same sensitivity to toxins. I will be seeing my Internal Medicine Dr. later this week to talk about Fibromyalgia. I am in s-o-o-o much pain! Also have had sleep difficulties for many years. I would love to have a full night of uninterupted sleep! This last year I have been wearing a wrist brace for CorpalTunnel Syndrome and have NOT recovered from surgery on both feet for Heel spurs. I walked around with foot pain for close to 30 yrs. I am blessed in reading your experiences and have gained hope for myself. I plan to take as much info. to Dr. appt. as I can find. Thank you all! Lyndal

Lyndal Stuhr
02-18-2002, 03:47 AM
I KNOW I eat too much refined sugars & I AM CONSTIPATED ! I really like chocolate cake, too! I suspect I, too, have FMS, as I have ALL the symptoms & have had for many years. I am intrigued by the Mercury-Silver fillings because my mouth is full of them!! I have been getting silver fillings since childhood. It makes alot of sense to me. Of course, not everyone has the same sensitivity to toxins. I will be seeing my Internal Medicine Dr. later this week to talk about Fibromyalgia. I am in s-o-o-o much pain! Also have had sleep difficulties for many years. I would love to have a full night of uninterupted sleep! This last year I have been wearing a wrist brace for CorpalTunnel Syndrome and have NOT recovered from surgery on both feet for Heel spurs. I walked around with foot pain for close to 30 yrs. I am blessed in reading your experiences and have gained hope for myself. I plan to take as much info. to Dr. appt. as I can find. Thank you all! Lyndal

Lyndal Stuhr
02-18-2002, 04:01 AM
I KNOW I eat too much refined sugars & I AM CONSTIPATED ! I really like chocolate cake, too! I suspect I, too, have FMS, as I have ALL the symptoms & have had for many years. I am intrigued by the Mercury-Silver fillings because my mouth is full of them!! I have been getting silver fillings since childhood. It makes alot of sense to me. Of course, not everyone has the same sensitivity to toxins. I will be seeing my Internal Medicine Dr. later this week to talk about Fibromyalgia. I am in s-o-o-o much pain! Also have had sleep difficulties for many years. I would love to have a full night of uninterupted sleep! This last year I have been wearing a wrist brace for CorpalTunnel Syndrome and have NOT recovered from surgery on both feet for Heel spurs. I've walked around with foot pain for close to 30 yrs. For the last year I seem to have a sore mouth (inside the lips) & sometimes the roof. Does anyone have an idea?? I am blessed in reading your experiences and have gained hope for myself. I plan to take as much info. to Dr. appt. as I can find. Thank you all! Lyndal

Lyndal Stuhr
02-18-2002, 04:08 AM
I KNOW I eat too much refined sugars & I AM CONSTIPATED ! I really like chocolate cake, too! I suspect I, too, have FMS, as I have ALL the symptoms & have had for many years. I am intrigued by the Mercury-Silver fillings because my mouth is full of them!! I have been getting silver fillings since childhood. It makes alot of sense to me. Of course, not everyone has the same sensitivity to toxins. I will be seeing my Internal Medicine Dr. later this week to talk about Fibromyalgia. I am in s-o-o-o much pain! Also have had sleep difficulties for many years. I would love to have a full night of uninterupted sleep! This last year I have been wearing a wrist brace for CorpalTunnel Syndrome and have NOT recovered from surgery on both feet for Heel spurs. I walked around with foot pain for close to 30 yrs. I am blessed in reading your experiences and have gained hope for myself. I plan to take as much info. to Dr. appt. as I can find. Thank you all! Lyndal





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