sujenke
02-07-2002, 10:42 PM
Hi!
Ive made an appointment with an allergist at the Univeristy of Missouri who's supposed to have good luck finding food and environmental allergens that make fibromyalgia worse, or even be the sole cause of the symptoms.
Has anyone else been to an allergist, and have you found any "clues" to your condition? I'm on Zyrtec everyday for allergies, but still have a constant stuffy nose and nasal problems. I also get rashes easily from food. I've had allergy problems for years before the fibromyalgia symptoms started. I really hope that she will be able to enlighten me!
SUsan
Ive made an appointment with an allergist at the Univeristy of Missouri who's supposed to have good luck finding food and environmental allergens that make fibromyalgia worse, or even be the sole cause of the symptoms.
Has anyone else been to an allergist, and have you found any "clues" to your condition? I'm on Zyrtec everyday for allergies, but still have a constant stuffy nose and nasal problems. I also get rashes easily from food. I've had allergy problems for years before the fibromyalgia symptoms started. I really hope that she will be able to enlighten me!
SUsan
Sponsor
rhody
02-08-2002, 09:35 AM
You can see what I wrote in the Source-Of-Pain Experiment on this post. I wonder, also, if some of you are affected by environmental allergens. Maybe not exactly like me, as I had problems with my mercury-silver dental amalgams. But maybe there's other things too....
Morficarts
02-08-2002, 10:44 AM
I don't know if this will help or not, but I have severe allergies after having a silicone implant rupture and now I'm diagnosed with fibro. Also I had problems with my teeth. I stopped counting at 14 root canals, and I couldn't get numb anymore. There are 37 chemicals in silicone and 5 to 7 heavy metals in the shells. Maybe you have a sensitivity to some of the same things I do but just from different sources. Just a thought. Good luck Terry
cadwellm
02-09-2002, 02:09 AM
I went to an allergist and found out I'm allergic to just about everything. Now I wish I hadn't gone.
darlene
02-10-2002, 03:07 AM
I have an appointment this coming Monday with an allergist/Immunologist at OHSU. Trouble is, the only reason I'm seeing him is because my workmen's comp carrier is sending me to him. So, naturally he will rule on the side of the insurance company. I was exposed to molds & yeasts at work and although I already had FM I trully do believe the exposure made the FM much worse. If he gives me any answers I will share them with you.
Good Luck,
Darlene
Good Luck,
Darlene
la_brat
02-10-2002, 01:23 PM
Darlene:
We would very much like to know how the visit to Oregon Health Sciences University goes. Our daughter was sent to OHSU for an "evaluation" of her inability to attend school in 1999. She saw Dr. Burton and Dr. Tilles. Tilles wrote the report that resulted in the loss of a full year of schooling for our daughter. They recommended a Neurologist for her "unsubstantiated" headaches and psychological intervenion for everything else. While OHSU might have a rhuematologist who believes in and treats FMS, it is not Tilles. Get yourself to a good and respected rhuematologist as soon as you can to counter the Tilles's of this world.
By the way, in Renton, Washington, there is a very caring Rheumatologist (Dr. Andrew Holman). Our daughter was sent there by her Boise, Idaho Rheumatologist to consult with in our daughter's FMS treatment.
We would very much like to know how the visit to Oregon Health Sciences University goes. Our daughter was sent to OHSU for an "evaluation" of her inability to attend school in 1999. She saw Dr. Burton and Dr. Tilles. Tilles wrote the report that resulted in the loss of a full year of schooling for our daughter. They recommended a Neurologist for her "unsubstantiated" headaches and psychological intervenion for everything else. While OHSU might have a rhuematologist who believes in and treats FMS, it is not Tilles. Get yourself to a good and respected rhuematologist as soon as you can to counter the Tilles's of this world.
By the way, in Renton, Washington, there is a very caring Rheumatologist (Dr. Andrew Holman). Our daughter was sent there by her Boise, Idaho Rheumatologist to consult with in our daughter's FMS treatment.
darlene
02-11-2002, 12:24 AM
Hi, thanks for the information. Maybe I don't want to go to OHSU for the FMS. Someone had told me that is was ran by a Dr. Bennett, who no longer takes new patients but the other doctors in the clinic do. I've already had my share of rheumatologist's that I disagree with. My PCP put me on disability by the Rheumatologist said he feels it's better for me to continue working - I wish he could walk in my shoes for one day. Also, is anyone having a problem posting reply's to this sight? This is the 4th or 5th time I've tried. I don't unusally have to enter my password or user name but did this time. Anyway, thanks again for the information. By the way, the doc I'm seeing at OHSU tomorrow is for allergies related to mold exposure from work.
Darlene
Darlene
darlene
02-11-2002, 12:27 AM
Hi again - excuse my "brain fog" but it seems to be rather bad right now. Was your daughter seen at OHSU for allergies or FMS?
la_brat
02-11-2002, 01:25 PM
Darlene
At the time of the OHSU visit, the daughter had not been diagnosed with FMS but had been diagnosed with environmental illness, also known as Muliple Chemical Sensitivity. The OHSU docs were hired by the school district to shoot down the symtoms and the concept of environmental factors. They did not recognize the multitude of symptoms and did not address them. They just said she had to be imagining them. Dr. Tilles was quite viscious in doing so. The idea that she was really ill was not addressed although he did say a neurologist might help with her headaches, if they were real. Since she did not have IGE mediated allergies, that is the traditional ones, she couldn't be sick.
Dr. Tilles seems to make a good living writing reports such as the one he did on our daughter for school districts and insurance companies. We have seen his name associated with other cases. Get yourself to a good rheumotologist NOW.
Your insurance carrier will be using Tilles against you. Get someone on your side.
la_brat and gruffgriff
At the time of the OHSU visit, the daughter had not been diagnosed with FMS but had been diagnosed with environmental illness, also known as Muliple Chemical Sensitivity. The OHSU docs were hired by the school district to shoot down the symtoms and the concept of environmental factors. They did not recognize the multitude of symptoms and did not address them. They just said she had to be imagining them. Dr. Tilles was quite viscious in doing so. The idea that she was really ill was not addressed although he did say a neurologist might help with her headaches, if they were real. Since she did not have IGE mediated allergies, that is the traditional ones, she couldn't be sick.
Dr. Tilles seems to make a good living writing reports such as the one he did on our daughter for school districts and insurance companies. We have seen his name associated with other cases. Get yourself to a good rheumotologist NOW.
Your insurance carrier will be using Tilles against you. Get someone on your side.
la_brat and gruffgriff
darlene
02-11-2002, 08:26 PM
Hi, well I had my exam at OHSU with their allergist, can't remember his name right now but it wasn't Tilles. Anyway, I'll be curious to see what his report says since he is actually working for the workmen's comp carrier, which is also for a school district where I work. As far as a good rheumatologist goes, I think I'll call or e-mail Dr. Holman in Renton Wa, as you suggested. The rheumatologist I go to now is supposedly a good one too, but not as far as I am concerned. When all they want you to do is go to physical therapy (which, by the way, is right across the hall from his office and I'm sure he has a financial interest in it), I just can't see him as really being empathetic. He just doesn't get it, that when I was trying to work all day I did not have the energy to get off work and spend 1 to 2 hours going to physical therapy which actually never worked at all. I want to thank you for all your input and I hope everything goes well for you and your family.
Darlene
Darlene
sujenke
02-12-2002, 12:01 AM
Darlene,
Please keep us informed (if you don't mind) and to what goes on with your allergist. I 'm really curious as to what their take on my problems will be. I sure hope they'll be able to help you!
SUsan
Please keep us informed (if you don't mind) and to what goes on with your allergist. I 'm really curious as to what their take on my problems will be. I sure hope they'll be able to help you!
SUsan
darlene
02-20-2002, 06:15 PM
Hi, well this is my 2nd post to this subject, don't know what I did wrong with the first one. Anyway, I got my report from the allergist at OHSU, I'm allergic to animals, dust mites & mold. He claims that my allergy to mold has nothing to do with the FMS getting worse. Do most rheumatologists believe that allergies affect FMS? When I presented the fact to my rheumatologist that our building was found full of mold, he made no comment and still says that working would be better for me than staying home. I'm frustrated and ticked off, sick of all of this run around from all these different doctors. I know I'm not making this up, I am sick, and I'd love to give it to them, let them go through all of this.
Darlene
Darlene
cioc1212
02-22-2002, 10:46 AM
I was tested 2 years ago and am allergic to dust,mold,trees,weeds,grasses.........se asonal and indoor allergies and severe ones too. I went for over a year for the allergy shots, they helped more than any medication. Only stopped because they were squeamish about giving me the injections while I was on Cumadin. I need to go back,it was the first time in years that I could breathe through my nose!
Did it affect the FM? No, I don't think so although I'm very sure that the allergies and frequent sinus infections contributed to the fatigue and general feelings of...........well feeling like crap!
My opinion(and this is coming from someone who's finally feeling good again) is that any little thing you can do to improve your health, that doesn't involve swallowing more pills(with more side effects), should be top on your list. For me, I've found a combination of mild exercise 3x a day, meditation,some medications,surgery for an existing problem, the allergy shots, and taking care of any other outstanding medical problems, has given me my life back. I'm not 100% but on average I vary from 65%-90% better than I was a year ago. Huge improvement but it took time, research, the right doctor, and a hell of a lot of work on my part!
I'm going to rattle on.......you need to be your own investigator,your own advocate and definitely your own researcher. Try things that are recommended and make triple sure that the doctors are running thorough tests. Get copies of your tests & bloodwork, look up the information on the net and question everything. Don't take anyone's word that they've run a test or that the results are ok till you've seen it yourself! Don't get blown off by a doctor who isn't willing to be flexible, spend time with you and combine traditional and non-traditional medicine. Find a new doctor!
Funny story- after my surgery,at the follow up, I asked for copies of my surgical reports from the office staff(having found that my records from prior surgeries vanished after 8 years or so). The office staff freaked out,it wasn't "appropriate" they "can't give that information to a PATIENT", etc. I really blew them out of the water. When I went in to see the surgeon, I asked him for a copy of the surgical records,explaining as I did to the office staff, that I keep a copy of any important tests or medical records at home now. He was SO impressed! Said that it was such a great idea, he was always surprised that more people didn't ask and wham,bam, I had copies in my hand. LOL!
Did it affect the FM? No, I don't think so although I'm very sure that the allergies and frequent sinus infections contributed to the fatigue and general feelings of...........well feeling like crap!
My opinion(and this is coming from someone who's finally feeling good again) is that any little thing you can do to improve your health, that doesn't involve swallowing more pills(with more side effects), should be top on your list. For me, I've found a combination of mild exercise 3x a day, meditation,some medications,surgery for an existing problem, the allergy shots, and taking care of any other outstanding medical problems, has given me my life back. I'm not 100% but on average I vary from 65%-90% better than I was a year ago. Huge improvement but it took time, research, the right doctor, and a hell of a lot of work on my part!
I'm going to rattle on.......you need to be your own investigator,your own advocate and definitely your own researcher. Try things that are recommended and make triple sure that the doctors are running thorough tests. Get copies of your tests & bloodwork, look up the information on the net and question everything. Don't take anyone's word that they've run a test or that the results are ok till you've seen it yourself! Don't get blown off by a doctor who isn't willing to be flexible, spend time with you and combine traditional and non-traditional medicine. Find a new doctor!
Funny story- after my surgery,at the follow up, I asked for copies of my surgical reports from the office staff(having found that my records from prior surgeries vanished after 8 years or so). The office staff freaked out,it wasn't "appropriate" they "can't give that information to a PATIENT", etc. I really blew them out of the water. When I went in to see the surgeon, I asked him for a copy of the surgical records,explaining as I did to the office staff, that I keep a copy of any important tests or medical records at home now. He was SO impressed! Said that it was such a great idea, he was always surprised that more people didn't ask and wham,bam, I had copies in my hand. LOL!
sujenke
02-22-2002, 03:22 PM
Rachel, what are the shots like? Can you continue to take allergy medication like zyrtec or claritan while you get the shots? Does it get worse before it gets better? I'm sure the doctor will want to give me allergy shots, and I'm willing to try them if they may help. I'm tired to feeling like I have a cold all the time!
Susan
Susan
la_brat
02-23-2002, 01:33 PM
Darlene, I have a question or two and some opinions about your visit to the allergist.
This sounds very much like the form of the report that we got from Oregon Health Sciences for the school district when the district was trying to prove our daughter was not sick to duck their responsibilities in regard to her education.
Were the results based on a blood test only? Unless the test has improved recently, most doctors will not treat you based on this test. They will confirm contact allergies with a skin test and if it is food allergies with the diet modification test. The blood test is only an indicator and not very accurate.
Does this allergist who told that a mold and mildew allergy does not affect FMS have a certification in FMS? What experience does he have with FMS? Most people dealing with FMS realize that any extra stress on the body heightens the FMS symptoms. If this gets to be a legal problem, it is important to point out that the Allergist is an Allergist and is not an expert on FMS.
Can this allergist tell when you developed the allergy to mold and miidew, to what extent they affect you, and which of your symptoms he attributes to your allergic reaction? These answers are important if you a interested in defending your opinion that the mold and mildew have increased the FMS symptom reponse.
Good Luck
This sounds very much like the form of the report that we got from Oregon Health Sciences for the school district when the district was trying to prove our daughter was not sick to duck their responsibilities in regard to her education.
Were the results based on a blood test only? Unless the test has improved recently, most doctors will not treat you based on this test. They will confirm contact allergies with a skin test and if it is food allergies with the diet modification test. The blood test is only an indicator and not very accurate.
Does this allergist who told that a mold and mildew allergy does not affect FMS have a certification in FMS? What experience does he have with FMS? Most people dealing with FMS realize that any extra stress on the body heightens the FMS symptoms. If this gets to be a legal problem, it is important to point out that the Allergist is an Allergist and is not an expert on FMS.
Can this allergist tell when you developed the allergy to mold and miidew, to what extent they affect you, and which of your symptoms he attributes to your allergic reaction? These answers are important if you a interested in defending your opinion that the mold and mildew have increased the FMS symptom reponse.
Good Luck
korken
02-23-2002, 10:24 PM
I am not Rach but, I did the allergy shot route years ago and even gave my self one at home for the 2 kinds of dust. I was unable to take them after a year and a half of going up to a new level and then back down due to server allergic reactions to the shots. I almost died 3 times and that was the end of the shots for me. They never told me that I could have a server reaction to the shots that could kill me. They never helped me and boy I wish they had. I think that my case is rare onthe shots. So if anyone decides to get them ask many q's and wait there for more then the 30 mins. after the shot to be sure. I wouln't react serverly for over am hour. I would get very itchy and it was a bit hard to breath. I didn't realise that this was such a dangerous signal and when they would go into action with the addrenilan shots and all. I was not concurned untill the third time when the nurse had me wait for the doctor to finish with the person he was with(all of 7 min.) He freaked and started to yell and say that she could have killed me by waiting. I then asked all the q's. and stopped the shots. Live and learn if it doesn't kill you. I was young and didn't know how important it was to question everything. Now I question and research all. I buy a PDR every few years. As Rach said you must do for your self. It is amassing how many people die each years from hospital, doctor, nurse and meds errors. We must all look out for ourselves.
------------------
Take care ~Kim & Gary~
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Take care ~Kim & Gary~
darlene
02-24-2002, 03:56 AM
la_brat - Hi, well I'll try to answer what questions I can. Yes, the tests were based on blood tests only. The only other things he did was a sinus CT scan and had me breathe into a machine. His names is Dr. Anthony Montanaro, and he is listed as head of the Allergy & Immunology department at OHSU. After posting my last post I started looking up names of doctors so I could find a good rheumatologist, and guess what?? He is listed as a qualifed rheumatologist in the field of FMS. But remember, as he was with you, he is definitely going to rule on the side of the school district. I mean I asked him what kind of animals am I allergic to? He told me I would need to find my own allergist to go into more detail. I have always had animals and have never had any allergy problems before, and why would I feel better in the past when I was on school break, when in fact I would have been spending more time at home with my animals? Anyway, I have already requested copies of any and all reports he sends to the workmens comp carrier so I will let you know what I find out. Also, when he had his secretary call me back to give me the correct name of the specific mold I was allergic to, she said I was a two plus. Not knowing what that meant, she said you are rated from zero to six and I was at a two. I know for a fact I have food allergies but nothing was said about that at all. I don't know if I will be able to prove it but I know for a fact that when went to work in the building where I was at that is exactly when my FMS really kicked into gear. Before that it would come and go, but since starting there it just gradually got worse & worse. Truthfully, I think the only reason they finally did the testing on the building was to hopefully prove me wrong because I had told them for over two plus years that the place was making me sick. I got a new administrator last July and he & I did not really hit it off and I'm sure he was hoping that they could test the building and therefore prove that my absences were not building related and write me up and hopefully get me out of there. Maybe I'm being paranoid but I do feel that way. I'll let you know more when I find out more.
Darlene
Darlene
Morficarts
02-27-2002, 07:41 PM
Kim is right about the shots. I'm allergic to 23 air borne pollens and I was told I could do the shot treatment as well. Then I was told by another patient who tried the shots that she went into shock and her body started shutting down. In fact I talked to several people who also went into shock after having just one shot. Then there's the cost of having 3 to 5 years of these shots, that's how long I was told it would take, and that there's no guarantee that they will even work. I didn't like the odds so I didn't choose to do them. Terry
sujenke
02-28-2002, 12:20 AM
These shots sound a lot riskier than I ever imagined! I"m going to be sure and ask LOTS of questions before I allow them to give me any. Were you told of this risk before the shots? I was looking forward to the shots - only because I thought it was a way to FINALLY reduce these allergies of mine.
Susan
Susan
korken
02-28-2002, 02:12 PM
Susan,
The shots have helped many people.
I was not told before the shots about the reaction that could kill me. As I said I believe that this reaction doesn't occur in most. I had the higest and quickest reaction that they had seen and the first time I almost died was at the testing. They didn't even tell me then.
I would talk to your doctor then make your mind up.
------------------
Take care ~Kim & Gary~
The shots have helped many people.
I was not told before the shots about the reaction that could kill me. As I said I believe that this reaction doesn't occur in most. I had the higest and quickest reaction that they had seen and the first time I almost died was at the testing. They didn't even tell me then.
I would talk to your doctor then make your mind up.
------------------
Take care ~Kim & Gary~
SharonMWinner
02-28-2002, 03:40 PM
I have had food allergies for many years before coming down with fibromyalgia. They were diagnosed by Dr. Jonathan Wright of Kent, WA after I started having recurrent bronchitis and sinusitus. After reading his books on nutritional therapy (he is one of the first and best alternative medicine MD's), I flew down from Alaska to see him because of my 20 month old son's severe food allergies and intolerances, which were not being adequately treated up here. I figured I might as well have a physical myself while down there, and he solved ALL of our health problems quite nicely. However, having my allergies under control did not keep me from developing FM 4 years ago.
Anyway, that was 16 years ago, and I still have the food allergies, and have developed a couple of new ones. My most recent allergies did go undiagnosed for quite a while, and perhaps the FM developed sooner than it would have otherwise because of that. There's really no way to know. I haven't noticed that occasionally eating the foods I'm allergic to makes my symptoms any worse. It just gives me rashes and the sneezes. The combination of those symptoms plus my FM symptoms was certainly confusing for quite a while.
Incidentally, Dr. Wright was the one who put me on the Magnesium Malate/Relaxin hormone therapy that seemed to completely cure my FM for a while (only to have it recur after I trained for and ran a marathon).
Anyway, that was 16 years ago, and I still have the food allergies, and have developed a couple of new ones. My most recent allergies did go undiagnosed for quite a while, and perhaps the FM developed sooner than it would have otherwise because of that. There's really no way to know. I haven't noticed that occasionally eating the foods I'm allergic to makes my symptoms any worse. It just gives me rashes and the sneezes. The combination of those symptoms plus my FM symptoms was certainly confusing for quite a while.
Incidentally, Dr. Wright was the one who put me on the Magnesium Malate/Relaxin hormone therapy that seemed to completely cure my FM for a while (only to have it recur after I trained for and ran a marathon).
darlene
03-02-2002, 12:22 AM
Hi Sharon - thanks for the information. Does Dr. Wright treat allergies and FM? He isn't exactly in my neighborhood but if he's really that good a three hour trip would be worth it. Can't stand this being sick all the time. I have scheduled with an allergist here in Portland but can't see him for about 4 more weeks.
Darlene
Darlene
SharonMWinner
03-03-2002, 05:22 AM
Yes, he does treat both. Be prepared for a non conventional medicine approach and lots of vitamin and mineral supplements. He's very hard to get an appointment with. It may take longer than the 4 weeks you're waiting for the Portland allergist. He is not an allergist or a rheumatologist, but an "alternative medicine" doctor. I think he is one of the best in the field.
angeleyes1
03-03-2002, 02:12 PM
To anyone who is willing to write,
What exactly is fibromyalgia and all the symptoms?A couple years back I was diagnosed with a severe illness that affeced my brain cells and central nervous systom.It slowly subsided after a full year and a half I could finally go to a movie without it feeling like it was going to blow out my eardrums.Before this sickness I rarely even got the flu.My doctor now says that my immune systom is lower because of this attack on my white blood cells.I now seem to catch everything that comes along and also have bad aches and pains.They come and go but I feel like and old lady and I haven't even hit my thirties yet!
Thanks,
------------------
angel
What exactly is fibromyalgia and all the symptoms?A couple years back I was diagnosed with a severe illness that affeced my brain cells and central nervous systom.It slowly subsided after a full year and a half I could finally go to a movie without it feeling like it was going to blow out my eardrums.Before this sickness I rarely even got the flu.My doctor now says that my immune systom is lower because of this attack on my white blood cells.I now seem to catch everything that comes along and also have bad aches and pains.They come and go but I feel like and old lady and I haven't even hit my thirties yet!
Thanks,
------------------
angel
korken
03-03-2002, 04:07 PM
:angel:,
Welcome http://www.healthboards.com/ubb/bang.gif
There are a few posts with links. That have the information you asked for. It isn't easy to put down in a few words or answers. These links 2 are listed und IN A NUT SHELL others, ...Rule out tests ... New to Board.... They have links to a great start on what this is. Good luck and research all you can.
------------------
Take care ~Kim & Gary~
Welcome http://www.healthboards.com/ubb/bang.gif
There are a few posts with links. That have the information you asked for. It isn't easy to put down in a few words or answers. These links 2 are listed und IN A NUT SHELL others, ...Rule out tests ... New to Board.... They have links to a great start on what this is. Good luck and research all you can.
------------------
Take care ~Kim & Gary~
darlene
03-04-2002, 03:03 PM
la_brat & others: well I got my copy of the report from Dr. Mantanaro, allergist at OHSU, and as we probably all knew he ruled in favor of the School District. I tested positive for mold allergy, the office where I worked is now sealed and nobody is allowed in there because of mold contamination, but Dr. Mantanaro claims that has nothing to do with my illnesses. What he's going on is that I'm suffering from FMS and that the mold exposure had nothing to do with the increasing problems from FMS. I have made an appointments to see my own Allergist sometime I think next week, so am curious what she will say. I will say one thing positive though, from the letter Dr. Mantanaro wrote I would say that it should support my claim for SSD, but somehow I'm sure they'll find a way to turn it all around.
Darlene
Darlene
korken
03-04-2002, 03:13 PM
Good luck Darlene http://www.healthboards.com/ubb/bang.gif Hope all goes well.
------------------
Take care ~Kim & Gary~
------------------
Take care ~Kim & Gary~
cioc1212
03-07-2002, 12:22 PM
I AM Rach, lol. The shots were extremely helpful and I was able to take Claritin or Allegra while I got them. They are very careful with testing and each new vial of serum, they do a test injection to make sure theres no reaction. Then after each shot I have to wait 1/2 hr in the office. I committed to weekly shots for 1 1/2 yrs and it was worth the investment. The only reason I'm not still doing them is because I am now on Cumadin, a blood thinner, and they were anxious about doing the sub-cutaneous injections under those circumstances. My hematologist said it was ok to get them but I haven't had the time to go back and start over. Even so, after 6 months+ off the shots, I'm still feeling better, my sinuses are 90% less swollen and I'm not stuffy all the time.
Rach
Rach
darlene
03-22-2002, 04:37 AM
Hello to all of you - well, I got my determination from Dr. Montanaro at OHSU and of course he has determined that my allergies have nothing to do with my being sick. Now, how can I be allergic to the same mold that was found in my place of employment and not have it make me sick while at work????? Anyway, I have now gone to my own allergist and I am VERY allergic to many more molds that what the infamous Dr Montanaro came up with. Also, in his report to workmen's comp he states that I am allergic to animals and that I have a cat & dog at home. My allergist did skin tests and I am NOT allergic to animals of any kind. Really makes me angry, obviously his findings are only in favor of whoever is paying his bill. Now I need to decide if I am going to appeal or not.
korken
03-22-2002, 04:58 PM
I would appeal and get one other allergist yours knows to show that you have two and the resukts to prove your side. Don't give up there are plenty of idiot docs out there that as you say onlt want the money and won't bite the hand that feeds them.
I say Go for the appeal and don't get bumbed.
------------------
Take care ~Kim & Gary~
I say Go for the appeal and don't get bumbed.
------------------
Take care ~Kim & Gary~
cioc1212
03-28-2002, 10:50 PM
You should be getting allergy shots in a doctor's office. I went for 1 1/2 yrs and they made me sit for 1/2hr after the shots every single time. Just in case of reaction which is rare but they don't take chances.
I've been off the shots now since last summer and am still doing well, am just noticing some allergy symptoms again, a little stuffy, a little burny eyes.
The shots were very worthwhile and something that's worth trying if your insurance covers it. It's one less pill, no side effects,etc. I started feeling better after about 6 months of injections. They told me that some people start getting relief after a few shots, others take up to a year. Different people get different levels of relief but for a lot of people it works.
Rach
I've been off the shots now since last summer and am still doing well, am just noticing some allergy symptoms again, a little stuffy, a little burny eyes.
The shots were very worthwhile and something that's worth trying if your insurance covers it. It's one less pill, no side effects,etc. I started feeling better after about 6 months of injections. They told me that some people start getting relief after a few shots, others take up to a year. Different people get different levels of relief but for a lot of people it works.
Rach
sujenke
03-28-2002, 11:32 PM
I finally went to see the allergist(she has a really long waiting list) at the University of Missouri. She said (after looking at my food diary) that she thinks I have a corn allergy - especially to corn syrup and corn oil!! That's in just about everything!! She thought that my system is so over-taxed by the allergies, that it probably accounts for alot of my fibromyalgia symptoms. We won't know for sure until they do the skin prick test. She also thought I may have a yeast infestation (almost like a yeast infection of the gut), and wants me off ALL breads and sugars and processed foods. I've done this for two days now, and other than really wanting to BINGE ON SUGAR, my achiness, etc. has lessened. For more on the yeast connection, see my post "the yeast connection"
Even though it'll be inconvenient to cut out all this processed food and ALL corn products, it made me hopeful that real long-term relief for my FMS might be in my near future. This doctor has had alot of luck with FMS patients, and I was so lucky to be able to get an appointment with her!!
Happy Easter, everyone!
Susan
Even though it'll be inconvenient to cut out all this processed food and ALL corn products, it made me hopeful that real long-term relief for my FMS might be in my near future. This doctor has had alot of luck with FMS patients, and I was so lucky to be able to get an appointment with her!!
Happy Easter, everyone!
Susan