SnowOwl16
01-26-2002, 07:32 PM
Hi everyone. My neck muscles are always tight and my body spasms randomly at times. I did have an incident at camp where my neck was spasming so that the side of my face would pull down to my shoulder uncontrolably. I had to go to the ER and get valium for it. No doctor knew what it was ( i visited a neurosurgeon, neurologist, chiropractor, and physical therapist). I thought it could be fibromyalgia or spasming torticollis, but i'm not sure. I'm only 16, (the camp incident happened when i was 13)so i'm not sure if i'm too young to have these conditions. I just thought that 3 years of chronic neck pain (i do have remissions of pain) with spasming and fatigue is not normal for my age. I have taken Skelaxin, Celebrex, and a few other pain reducers.
Sorry if this was a lot to read. I just want to know peoples opinions. Also a doctor determined that i am lacking the backwards C curve in my neck, so it is completely straight. I don't know if this has anything to with what happened with my neck. Thanks for any responses! http://www.healthboards.com/ubb/redface.gif)
Sorry if this was a lot to read. I just want to know peoples opinions. Also a doctor determined that i am lacking the backwards C curve in my neck, so it is completely straight. I don't know if this has anything to with what happened with my neck. Thanks for any responses! http://www.healthboards.com/ubb/redface.gif)
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korken
01-26-2002, 07:43 PM
Hello, What do the doctors say it might be?
Have you done research on many sites?
We have posted several links under a few posts on this board. If you haven't read them please do there is a lot of info. Post titles New to board.... and ....IN A NUT SHELL and a couple more.
Good luck and good researching.
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Take care ~Kim & Gary~
Have you done research on many sites?
We have posted several links under a few posts on this board. If you haven't read them please do there is a lot of info. Post titles New to board.... and ....IN A NUT SHELL and a couple more.
Good luck and good researching.
------------------
Take care ~Kim & Gary~
SnowOwl16
01-27-2002, 12:45 AM
Hi, i have done a lot of researching. But i have symptoms of many conditions, so i'm not sure that i have anything specifically. Its confusing, lol. But Fibromyalgia seems closest to what i may have. The only thing is that i don't have pain in my lower body all that often and i'm not sure that i have the required 11 out of 18 pressure points. But some sites say that that doesn't mean a person doesn't have it. I'm just looking for answers.
The doctors were very unhelpful for the most part, but they don't know much about Fibromyalgia. The neurosurgeon was the only one who could tell me that i had a straight neck which could cause pain (it does). But i hear a Rheumatologist could help.
I'll look through the archives. Thanks for the reply. :)
The doctors were very unhelpful for the most part, but they don't know much about Fibromyalgia. The neurosurgeon was the only one who could tell me that i had a straight neck which could cause pain (it does). But i hear a Rheumatologist could help.
I'll look through the archives. Thanks for the reply. :)
cioc1212
01-27-2002, 01:12 PM
Get headaches?
I have "atypical" FM. I do NOT have all of the tender points but do have dozens of them.....just not all in the spots they're supposed to be!
By the way, Al,Kim, myself and several other oldtimers have been booted from the site because we disagreed with the moderators. You guys are stuck on your own but if you look around, the way to us will be clear. Go to the co-cure site recommended to newbies, they have a great board!
Rachael
[This message has been edited by cioc1212 (edited 06-17-2002).]
I have "atypical" FM. I do NOT have all of the tender points but do have dozens of them.....just not all in the spots they're supposed to be!
By the way, Al,Kim, myself and several other oldtimers have been booted from the site because we disagreed with the moderators. You guys are stuck on your own but if you look around, the way to us will be clear. Go to the co-cure site recommended to newbies, they have a great board!
Rachael
[This message has been edited by cioc1212 (edited 06-17-2002).]
SnowOwl16
01-27-2002, 02:46 PM
yes, i do get headaches often. Every once in a while i get a really bad neuralgia pain on either side of my neck. Maybe i could have the "atypical" form. Thanks for replying. It seems as though the symptoms and tests have a long range and aren't totally set. Well, i'll look into that.
la_brat
01-27-2002, 05:07 PM
Both our daughters are now diagnosed with FMS. They started with flu like smyptoms before they were in their teens. The older they got the more frequent and more drastic the pain, fatigue, and frequency. The younger is particularly troubled by fatigue and headaches. She has headaches continuously with times when they are worse. Both have pains (feels like cramping or burning) in unusal parts of muscle groups, nerve pulling tight, and blood vessels seeming to pull at various times. For them, the about mentioned pain lasts from seconds to a month at a time then mysteriously goes away.
If you think FMS might be the name for your illness, consult a Rhuematologist that believes the syndrome exsists.
If you think FMS might be the name for your illness, consult a Rhuematologist that believes the syndrome exsists.
Allen
01-28-2002, 04:30 PM
-----I guess this is where I say goodbye to those who haven't already figured out what happened to a number of us. Our crime: disagreeing with the moderators. I wasn't shrill or intimidating, but feel that the present restrictive policies treat us as children. There is no room for negotiating with the mods, so mind your manners or you'll be consigned to cyber-purgatory. Take care and God bless, Al P.S. My e-mail is awpcwp@cs.com
[This message has been edited by Allen (edited 06-17-2002).]
[This message has been edited by Allen (edited 06-18-2002).]
[This message has been edited by Allen (edited 06-17-2002).]
[This message has been edited by Allen (edited 06-18-2002).]
korken
01-28-2002, 07:22 PM
Al, They say it is Familiar. So kind of the chance with one parent has it. Then it gives a child 25% chance of deveopling it. If both parents have FMS then any children would have 50%. Technically at this time they say just Familiar.
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Take care ~Kim & Gary~
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Take care ~Kim & Gary~
la_brat
01-29-2002, 12:01 AM
This is reply to "does it run in families" question. Personally, it seems tome that it does. Of my two nieces (They are cousins, not of same mother and father.), one is diagnosed as having FMS and the other has migraines. The symptoms of FMS my mother had and her mother had, and also my husband's mother had. I believe our daughters got it from all sides.
spiritasmitzi
06-16-2002, 04:13 AM
Originally posted by la_brat:
Both have pains (feels like cramping or burning) in unusal parts of muscle groups, nerve pulling tight, and blood vessels seeming to pull at various times. For them, the about mentioned pain lasts from seconds to a month at a time then mysteriously goes away.
[/B]
That is one my biggest problems! I will go to bed fine and wake up with a pain here or there and sometimes it lasts just a short time and sometimes months. I had a knee pain.. no swelling, no nothing, nothing on xray, but I could not even straighten it at all! It felt as though it were wrapped tight in an ace bandage, then it went away as quick as it came. About 3 months ago I woke up dreaming that some one was cutting my foot in half, only to realize it was a major cramp in the bottom of my foot! Now the top of my foot hurts, some times minor pain, and some times I can hardly bare weight on that foot.. before I was dx with Fibro, *I* thought I was a hypocondriac.. silly me :)
Mitzi
Both have pains (feels like cramping or burning) in unusal parts of muscle groups, nerve pulling tight, and blood vessels seeming to pull at various times. For them, the about mentioned pain lasts from seconds to a month at a time then mysteriously goes away.
[/B]
That is one my biggest problems! I will go to bed fine and wake up with a pain here or there and sometimes it lasts just a short time and sometimes months. I had a knee pain.. no swelling, no nothing, nothing on xray, but I could not even straighten it at all! It felt as though it were wrapped tight in an ace bandage, then it went away as quick as it came. About 3 months ago I woke up dreaming that some one was cutting my foot in half, only to realize it was a major cramp in the bottom of my foot! Now the top of my foot hurts, some times minor pain, and some times I can hardly bare weight on that foot.. before I was dx with Fibro, *I* thought I was a hypocondriac.. silly me :)
Mitzi
la_brat
06-16-2002, 06:33 PM
In our daughters' cases, I know that the doctors thought we were bad parents for not making them go to school when there was nothing medically wrong with them. But after three years of carefully watching and keeping diaries of what they ate, when they said they were ill, and what they were willing to do and not do when they said they were sick; my husband and I were very sure they were sick and not faking. It was just a matter of finding a name for it and then the cure. Still awaiting the cure.
Our youngest daughter had a small wad, ball, about 1/2 inch in diameter, must have been muscle, in mid under side of her forearm for about a week. She now has a line of pain (feels pulled tight) from her wrist to elbow, again the under side of the arm, on both arms. This has been for a long time. The doctor says it is FMS with no inflamation.
Before running into these things with our children, I would have thought that none of the aches, pains, and knots could have happened in a body. They are so strange.
Our youngest daughter had a small wad, ball, about 1/2 inch in diameter, must have been muscle, in mid under side of her forearm for about a week. She now has a line of pain (feels pulled tight) from her wrist to elbow, again the under side of the arm, on both arms. This has been for a long time. The doctor says it is FMS with no inflamation.
Before running into these things with our children, I would have thought that none of the aches, pains, and knots could have happened in a body. They are so strange.
SapphireChild
06-17-2002, 12:29 AM
in reply to the question of Does it run in families well I have it my mom has it my aunt has it and 2 of my cousins have it . so ummm in my opinion yeah it sure does run in families atleast it does in mine and thats enough proof for me.