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View Full Version : Just Diagnosed with Fibromyalgia....


melissa123
07-06-2002, 11:11 PM
Hey, Just wondering if anyone is on talwin. What side effects did you experience?? I dont think it does much for my pain. The dr is sending me for an mri next week to see if i have a pinched nerve. The dr didnt tell me much about this, any info would be appreciated. Thanks in advance....

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melissa123
07-07-2002, 10:54 PM
Ok...thanks anyways guys!!

tonzie
07-09-2002, 12:11 AM
Hi, I saw your post and am wondering what talwin is for. Is it a pain reliever? What are you having an MRI for? Good luck to you! I take several different pills and could tell you the side effects of many, but haven't heard of yours.....

Oma
07-09-2002, 01:03 AM
Hi!Talwin is somewhat greater than Codiene and about one third that of Morphine. It is a pain reliever and also works great as a muscle relaxer, if your muscles are "twitching". I am sorry no one got back to you. Happens to me all the time, therefore, I didn't answere, thinking someone else would answer. I hope you feel better. The best thing you can do is rest as much as you can, and try not to feel guilty when you can not do the things you used to. Take care, Oma

melissa123
07-09-2002, 09:39 AM
Thanks guys!! I appreciate the replies!!!!!!!!!

Raven
07-09-2002, 11:57 AM
Hi Melissa,
Sorry it took us a few days to respond. It happens a lot to me too but someone always writes. Talwin bothers my stomach. I think there is Asprin or Tylenol in it. What ever the compound that is in it, it is like a anti inflammatory and I can't take any without stomach pain and burning. I find Percocet works the best for my pain yet it never completely takes it away. I take Soma also for muscle spasms. I get alot of spasms. So tell us more about your symptoms and when they started. I have had symptoms for years but the last part of last year I was diagnosed with FM MPS, CFS, Carpel Tunnel, Migraines, Disk problems in my back with pinced nerves ect. I am depressed too. I take Percocet 2 tabs 4-times a day for Pain, Soma 1-2 tabs 4 times a day for muscle spasm, Trazodone 2 tabs at night for sleep, Ambien 1 tab at night for sleep, Xanax as needed for anxiety, Nexium once a day and Carafate 2 times a day for my stomach. I am hoping to find a more natural way to help with my conditions because I worry about all the meds I take yet I can't function because the pain and spasms are so bad unless I take them. I even have to go in to my Doctor weekly or every two weeks for numbing shots in my back and hip. I get so upset that I have to live this way so I am hoping to learn all I can what helps others with the same conditions. Do you take other medications? What does the Doctor say about your condition? I hope you can find something that works for you and you get pain free days. Good luck! Raven

bugsgal
07-09-2002, 07:00 PM
Hi Melissa... Sorry to say welcome to the group. I have had Fibro for 3 years and am in pain all the time. I am just starting the Duragesic patch 25 tomorrow with Lortab7.5/500 for break thru pain. I have been on Vicodin, Lortab, Tylox and Ozycontin. I have had massage therapy,accupuncture, physical therapy,nerve blocks and treated for depression. I'm on Zoloft 300 a day, Ambien to sleep and Xanax....( kinda sounds like you, Raven). I hope you find a good Dr. Mine is truly trying to help me....and that is half the battle.I'll let you know how the patch works for me. Best of luck to you dear! Bugsgal

melissa123
07-09-2002, 07:12 PM
Thanks guys for responding!! I have three small kids and it is hard to give them a bath at night. How do you guys do it?? I am 26yrs old and I feel like I am about 100. I just wish I was more active for my kids. I feel so bad for them, I am like this all the time, I just feel so guilty. My kids are little and it is hard to keep up with them, they are 4,3, and 2. Any advice??? What meds are good, that wont make me sooo sleepy??

Oma
07-10-2002, 12:16 PM
Hi Bugspal. Glad you are starting the duragesic patch. I am on 75mg of Duragesic now, and it makes the biggest difference. It keeps me from taking pain meds for breakthrough. Raven and Melissa Hi. Ya'll sounded just like me. I take 27 pills each day for this monster that I feel keeps me in fibro fog. My body doesnt respond any more like it should. I've gained 20lbs. There is so much meds, and swelling that when my heart pounds because of fluids, they give me predisone. I feel like my brain has become dislexis. Today I got the biggest slap in the face. I used to be a nurse until this morning. I gave my mom an empty syringe, when it was supposed to have 0.6mg of her med for arthritis. So, I gave her 0.6mg of air. It was in muscle, so she will be and is o.k.but, now I know longer have the little that was me and no one else left. My husband is at work. He wants me to take my morning meds. I don't want to take any ever again. I can't be a nurse and if I can't get SSD, I'll be living off someone eles all my life. I think that is why there is so much depression. I can't believe how I could have hurt her. Methotrexate is the med she,gets once a week. I've always given it to her. Not anymore. God bless you all and please pray for me.Oma

Raven
07-10-2002, 03:27 PM
Hi Melissa,
I have a 8 yr old daughter and I have a very hard time with her because she wants so much of my attention and I can't play with her at all. When she was born I was in two wrist casts from Carpel tunnel and De Curvein, I couldn't hardly lift my baby. My husband's family made fun of me and told me I was a terrible mother. My daughter has special needs, she is only 35 pounds at 8 and they still say I don't feed her right yet we eat good foods she just doesn't grow. Doctors say she is fine just not as big as she should be. I take good care of her despite my problems. Anyways, she is now going through anger problems because she doesn't understand why I am not like her friend's moms. I have tryed to get her to understand and sometimes she does know how sick I can get but it really hurts her. We had to go see a counselor because she hit me and grabbed my neck. It hasn't happened anymore yet it really hurt my feelings. I love her more than anything and only wish I could be a mom she can look up too and do the things she wants me to do. I guess I don't have a lot of advice for you except do your best. Make sure your little ones learn early about your condition so they won't get angry. I didn't really tell mine until last Sept. Although she knew I had pain and I got angry a lot. But she didn't understand. I didn't have any help either, I just did the best I could. I hope others have some tips for you!
Oma, Hi sweetie! Don't be so hard on yourself. I know how you feel, I have made some terrible mistakes too but everyone is fine. Just take it easy. I was a EMT for awhile but my migraines and back pain was so bad and I was on so much meds I decided to get out of the ER work. I don't work at all right now except an occassional Pet sit.( My other title is Animal Health Tech and dog Trainer for Search and Rescue). I can't do them either and its so hard to feel important right now. You need to worry about yourself, Lets hope you start having better days. I know with no end to this tunnel in sight its so hard to deal with. But we are all here and hopefully we will have help figuring this out. Hugs to everyone, Raven
PS: I am going to ask my Doc about the Patch.

Oma
07-10-2002, 10:04 PM
Dear Raven and Melissa,.. Raven, thank you so much. You touched my life today when I really needed it. I have had the pittiful me's so bad. I am sitting here nnow with tears running down my cheeks. You and Melissa,Hi Darlin, are such an inspiration for me. I have my Mom, and she is 80, and understands. To have such little ones and to have to explain, must be so hard. I am very proud of you both. If I can ever be there for you to just listen, please, talk to me. I have two wonderful grown children and it is hard for them and sometimes hurt with their words. They are angry sometimes that I have changed so. Raven Let me talk to your inlaws. I am really in the mood!! Some children are just small. That shows you are not feedinkg her junk food. She's not getting fat on something easy to do. Take care and God Bless you both. Good night, Oma

melissa123
07-11-2002, 09:20 AM
Thanks raven and oma!! I cant type more at the moment but will try again later!!

Raven
07-11-2002, 09:24 AM
Hi Oma,
Thanks, I needed that too. I wish someone would talk to them. I have painful scars in my mind because of them. My husband says they never did anything bad to me even though he remembers these things, like their son kicking me in the stomach when I was pregnant saying I want your baby dead and during a holiday when I was unable to get my plate of food because I was feeding my baby my husband got up to get it and his sister turned around and called me lazy and asked what was wrong with me. I had two wrist casts and a tiny baby. When my daughter was 5 weeks old my husbands brother came rushing the car where I was, yelling he was going to kill me. He was told I had said something to someone about him( which wasn't true ). My husband actually had a fight with him. But those are just some of the things they did and I could go on and on. Lucky I moved to another state and haven't seen them in 6 years! My husband soon followed.
Melissa, after thinking about having three little ones like you. Do you have any help at all? A Husband, Mother, friend or babysitter? I think for bath time if you can get someone to help you I'd put them all together and bathe them. Then with someone there, take one out at a time and finish them up. I know how hard it was with just one little one. I am so sorry you have to be in this situation without help. I do not know of a good pain med that doesn't make you tired really except Darvocet didn't make me tired yet it didn't give me much pain relief either.I would put baby gates up so they can't wonder to much during your bad days and I would find games where you can just sit on the floor with them. Its so hard though when they want to run around and want to be picked up. Good luck to you.
To everyone, You know living with this illness really is hard, in every way. especially when people don't believe, and also when even though they know something is wrong they still hurt you because they can't see how bad it is. My own husband sometimes tells me to get to work, he thinks using my muscles when in spasm may help. My goodness whats going on in peoples heads? Its crazy. Anyhow, I know you all here know just want I am talking about. At least we have a place to come to and talk with people who have this dreaded illness and understand. Raven

Oma
07-11-2002, 01:28 PM
Raven, Hey Sweetie!!Are you able to go to a counselor? Or you Melissa? If someone could get you there with your daughter Raven and your husband. For two different reasons. I am going to one now for the first time in my life, and see there is nothing wrong with it and I should have been taking my own advice for all those years. My Husband went with me once and he said things to her, that made me see how helpless he feels. Wow, that was a diferent outlook for me. At that moment, he was no longer taking care of me, and big and strong, but was really reaching out to see what was the best way to help me. Your daughter, if she could see how Mommie hurts and tell her new friend how afraid she is, maybe that would make her feel better. I have to leave for now. I am feeling o.k. and think I have about an hour if I do it slow to do a few things. I love ya'll, and will pray when I get off for all of us whose burdons are so heavy right now. Oma

MARTI K
07-12-2002, 06:47 AM
HI EVERYONE.
DEAR OMA, I CAN'T IMAGINE WHAT YOU ARE GOING THRU. MY MOM IS 70 AND HEALTHIER THEN I AM, AND MY ONLY REAL SUPPORT, AND IF I HAD DONE THAT I WOULD HAVE BEEN DEVASTATED TOO. BLESS YOUR HEART. I FEEL SO BAD FOR EVERYONE.THE MEDS JUST MAKE US THAT WAY. IT'S NOT YOU! I WISH I HAD GOTTEN ON THE SITE EARLIER (BEEN UP SINCE 4a.m. DUE TO THE PAIN), SO I COULD HAVE TIME TO SAY MORE. BUT, ALAS, I HAVE TO GO TO WORK. I AM AT LEAST ABLE TO WORK PARTIME, DUE TO THE DURAGESIC PATCH, EVEN THO MY DOCTOR DIDN'T WANT ME TO. AND HE IS ALSO RELUCTANT TO GIVE ME MY PAIN MEDS DUE TO ADDICTION. WALK IN OUR SHOES, RIGHT LADIES. IF MY INJURY HADN'T HAVE HAPPENED WHERE I WORK NOW I AM SURE THEY WOULD NOT BE PUTTING UP WITH ME. PLUS MY JOB IS SO EASY...BOOKKEEPING SITTING AT A PUTER (THANK YOU GOD!).I JUST HOPE EVERYONE HAS A BETTER DAY. IT IS BEAUTIFUL HERE IN OHIO THIS FRIDAY MORNING. I ALSO JUST CAUGHT MY HUSBAND TRYING TO FIND COMPANY ON THE INTERNET (IF YOU KNOW WHAT I MEAN), AND I HAVE BEEN CRUSHED DUE TO THAT.I AM SORRY I AM NOT THE WOMAN I USE TO BE, BUT WHAT ARE YOU GONNA DO?? THIS ILLNESS JUST TAKES EVERYTHING OUT OF US!!! ANYWAY,SO GLAD TO HAVE LIKES TO CHAT WITH ABOUT OUR WOES. GOTTA RUN (OR WALK SLOWLY). BLESS ALL!

Oma
07-12-2002, 11:13 AM
Dear Raven Melissa and MartiK, I feel so lucky and blessed this morning I have three new friends that know what I am going through exactly. How is that for blessed. Even before I got sick I didn't have that. Once I can stand up, I think I keep getting taller and taller because of ya'll. I am sorry that I get so mushy. I cry so much but today, it is for real happiness. I have an embroidery machine, and I am going to change every (3) thing in my closet thatstill fits. Tee Hee. Will talk to ya'll latr. Love ya'll. I really do. Oma

melissa123
07-12-2002, 11:43 AM
Oma, I feel the same way. I am 26yrs old and although my husband is great....he just doesnt understand what i am going through. He thinks as young as i am, i should be able to keep going. It is so hard to get people to understand that some days you just cant. At times I feel guilty for not being able to but other times I just accept it. My five yr old son told me the other day he would run the vacuum for me wasnt that sweet. I am so thankful for you all on here. I dont feel so alone anymore. Do you guys think that having my kids so close together made this worse. I had my kids (3 of them) a yr apart. My back pain seems worse but then again it may have gotten bad anyway without me having kids i dont know. Well I wont ramble on but just to let you all know, thanks for the support and I am here for all of you all too!!!

 
 
 




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