I am new to this so please be patient with me....My son is 22 months old, has CP and PVL. Kaleb was 3 months premature and spent only 4 weeks in the NICU! Before leaving the NICU, the doctors made the discovery of the PVL. The CP (spastic triplegia) was disgnosed when Kaleb was 4 months old. He receives therapy (both PT and OT) 3 times a week. The reason I need advice is that we are scheduled to have adductor release surgery on the 28th, I am very reluctant as I do not want Kaleb in any kind of pain. He is my first child and possibly the only one that I will ever have as he requires so much love and attention! I am a single mom trying to make all the right choices for him. If you have experienced anything similar I would like to hear from you. I still have time to cancel the surgery. Even if you have not had a similar experience, any advice would be very helpful. Thank you for the opportunity to share my experiences.

Nicole

Hello, Welcome aboard.;)
God bless,
Deborah

Hello, Welcome aboard. :)

God bless,
Deborah

Hey there! Welcome to the board.
I hate to break it to you, but CP is not comfortable. He will experience pain... but so will everyone else at one point or another. I haven't had this particular surgery, but as far as surgeries go, releases are not bad. If you think he will benefit from it I'd say keep moving forward.

Welcome aboard..

I have to agree with the above, Karim has not had releases but I do remember the first time he went under general...it was a little frightening but you have to remember that you are doing it because it will improve the quality of life for your child. I found that as much anxiety as I had, Karim has coped so well with everything and never really complained. This will probably be one of many ops/proceedures he'll have to go through. Pace your self!! And early invervention can really make all the difference in the later years. You are doing so well. Hope everything goes smoothly.

Hi Nicole, my daughter Samantha (CP), who is almost 9 had adductor releases when she was about 3-4 years old. Everyone is different so it's hard to say how your son will cope. When Samantha was is in hospital she had the pain management team monitoring her and giving her pain relief as needed. It's a mother's worst nightmare seeing their child suffer. Samantha was sent home in broomstick casts and pain relief medication. Unfortunately there is always pain involved in these types of surgeries. Hopefully your son won't need too many in his lifetime. I don't have any regrets with the decisions I've made for Samantha, but you should trust your instincts too. Also don't understimate your son, he's probably a lot stronger than you think. In my experience kids with CP, including my daughter, have high pain threshold, I suppose you can see that as a positive. I wish you the best of luck in making this decision. If you have any more questions, I'm happy to chat. Vivienne