SKYESNANA
09-20-2007, 07:22 AM
WE HAD SKYE EVALUATED YESTERDAY BY EARLY INTERVENTION.. EVERYTHING WAS ABOVE AVERAGE BUT HER WALKING SHE SCORED A 40 PERCENT DELEAY THERE WITH HER WALKING IN A 15-17 MTH OLD RANGE.. THEY DONT KNOW IF ITS SOME FEAR OR PERCEPTION OR ITS HER BRAIN...BUT THERES DEFINATLY AN ISSUE TEHRE WITH THE WAY SHE WALKS AND REFUSES TO GO DOWN STAIRS AND CANT RUN .. THEY HAVE A PT GOING TO CALL US TO START WORKING WITH HER ...... CAN THE PT SAY SHE THINKS ITS CP AND REFER US TO A PED. NUROLIGIST ? IS THAT HOW THIS WOULD WORK NOW? I KNOW THE PT SKYE IS GOING TO GET SUSPECTS IT SHE IS FAMILIAR WITH SKYE ARLEADY BUT CAN SHE ACTUALLY GET THE BALL ROLLING HERE SO WE CAN GET SKYE THE HELP SHE NEEDS ... THANKS FOR ALL YOUR HELP ALREADY THIS IS SUCH A WONDERFUL INFORMATIVE BOARD !
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open_the_door
09-20-2007, 10:45 AM
WE HAD SKYE EVALUATED YESTERDAY BY EARLY INTERVENTION.. EVERYTHING WAS ABOVE AVERAGE BUT HER WALKING SHE SCORED A 40 PERCENT DELEAY THERE WITH HER WALKING IN A 15-17 MTH OLD RANGE.. THEY DONT KNOW IF ITS SOME FEAR OR PERCEPTION OR ITS HER BRAIN...BUT THERES DEFINATLY AN ISSUE TEHRE WITH THE WAY SHE WALKS AND REFUSES TO GO DOWN STAIRS AND CANT RUN .. THEY HAVE A PT GOING TO CALL US TO START WORKING WITH HER ...... CAN THE PT SAY SHE THINKS ITS CP AND REFER US TO A PED. NUROLIGIST ? IS THAT HOW THIS WOULD WORK NOW? I KNOW THE PT SKYE IS GOING TO GET SUSPECTS IT SHE IS FAMILIAR WITH SKYE ARLEADY BUT CAN SHE ACTUALLY GET THE BALL ROLLING HERE SO WE CAN GET SKYE THE HELP SHE NEEDS ... THANKS FOR ALL YOUR HELP ALREADY THIS IS SUCH A WONDERFUL INFORMATIVE BOARD !
A physical therapist can not diagnose CP. A doctor has to do that when you take them to a developmental pediatrician. A physical therapist actually is the one that told me that my son had CP. The neurologist (in California )always said that my son was delayed, delayed, and delayed. He said that "You don't want to label your child", was his quote. I was so ignorant, and thought wow, he has a point, who wants to have a child labeled with CP(I didn't even know what CP was at the time). When we moved, (to Washington State) and my child was seen by another therapist(I went through early interventions), that is when the PT said that it was CP on the evaluation report. I can still remember to this day how I felt. I felt betrayed from that doctor(neurologist in California) that he wasn't honest with me. He saw Peter's CT scan and MRI, it was obivious there in those scans that Peter had CP. The other therapists in California couldn't tell me that Peter had CP because it was not their job, and Peter was so young. Sometimes it is hard to diagnose until your child is 2 or 3 because obviously they aren't walking, or walking correctly, or feeding themselves. There are so many things. The important thing was that I had my son in P.T. and O.T. when he was 5 months old.
It is important for you to take Skye to every kind of therapy there is. It will help her so much in the long run. Yesterday Peter actually started to take some steps on his own. It was a very emotional day for me. It is best to take your child to a pediatrician, and then they will probably send a referral for you to take her to a developmental pediatrian and then a neurologist. There are alot of steps, and it takes time, but take the time for this child. The neurologist will probably do a CT scan or MRI to see what is going on in the brain. Good luck and thank God she has you........some many children get neglected, and ignored.
A physical therapist can not diagnose CP. A doctor has to do that when you take them to a developmental pediatrician. A physical therapist actually is the one that told me that my son had CP. The neurologist (in California )always said that my son was delayed, delayed, and delayed. He said that "You don't want to label your child", was his quote. I was so ignorant, and thought wow, he has a point, who wants to have a child labeled with CP(I didn't even know what CP was at the time). When we moved, (to Washington State) and my child was seen by another therapist(I went through early interventions), that is when the PT said that it was CP on the evaluation report. I can still remember to this day how I felt. I felt betrayed from that doctor(neurologist in California) that he wasn't honest with me. He saw Peter's CT scan and MRI, it was obivious there in those scans that Peter had CP. The other therapists in California couldn't tell me that Peter had CP because it was not their job, and Peter was so young. Sometimes it is hard to diagnose until your child is 2 or 3 because obviously they aren't walking, or walking correctly, or feeding themselves. There are so many things. The important thing was that I had my son in P.T. and O.T. when he was 5 months old.
It is important for you to take Skye to every kind of therapy there is. It will help her so much in the long run. Yesterday Peter actually started to take some steps on his own. It was a very emotional day for me. It is best to take your child to a pediatrician, and then they will probably send a referral for you to take her to a developmental pediatrian and then a neurologist. There are alot of steps, and it takes time, but take the time for this child. The neurologist will probably do a CT scan or MRI to see what is going on in the brain. Good luck and thank God she has you........some many children get neglected, and ignored.
Marcus&DeanaMum
09-20-2007, 08:37 PM
Great advice. You reg ped will give you the referal and from ther dev. ped you will get referred to the services that she will need hth.
wlmar
09-24-2007, 12:34 PM
As others have said, a good PT can spot CP, but to DIAGNOSE it, you need a neurologist and an MRI.
How much you involve your regular pediatrician is up to you (and, I suppose, your insurance company). Unless your insurance company requires a referral from your regular pediatrician, I'd go directly to a neurologist and perhaps an orthopedist.
Unfortunately, I've found that unless you have a truly exceptional pediatrician, they are really only good for coughs, colds, flus and check-ups. When it comes to complicated conditions (especially ones that have a very broad range of types and presentations, like CP) I feel that they are not adequately trained, or don't have the time or inclincation, to recognize and really deal with serious issues. They tend to over generalize and tell parents "not to worry" and "he/she will catch up."
We see our children every hour of every day, and they see them for 5 minutes in an office. It's impossible for them to really make a good judgement and true evaluation under those conditions.
Seek out a specialist. If you are required by your insurance to go to your regular pediatrician first, don't ask him/her if you should see a neurologist - tell him/her that you want to see one. Don't let anyone minimalize your concerns.
How much you involve your regular pediatrician is up to you (and, I suppose, your insurance company). Unless your insurance company requires a referral from your regular pediatrician, I'd go directly to a neurologist and perhaps an orthopedist.
Unfortunately, I've found that unless you have a truly exceptional pediatrician, they are really only good for coughs, colds, flus and check-ups. When it comes to complicated conditions (especially ones that have a very broad range of types and presentations, like CP) I feel that they are not adequately trained, or don't have the time or inclincation, to recognize and really deal with serious issues. They tend to over generalize and tell parents "not to worry" and "he/she will catch up."
We see our children every hour of every day, and they see them for 5 minutes in an office. It's impossible for them to really make a good judgement and true evaluation under those conditions.
Seek out a specialist. If you are required by your insurance to go to your regular pediatrician first, don't ask him/her if you should see a neurologist - tell him/her that you want to see one. Don't let anyone minimalize your concerns.
tmagic650
09-24-2007, 07:39 PM
You would be surprized by the fact that more Physical Therapists are qualified to notice or diganose most any condition over many doctors. I am always diagnosed as having MS... I was born 2 1/2 months premature and I weighed 2 pounds 8 ounces
open_the_door
09-24-2007, 09:06 PM
You would be surprized by the fact that more Physical Therapists are qualified to notice or diganose most any condition over many doctors. I am always diagnosed as having MS... I was born 2 1/2 months premature and I weighed 2 pounds 8 ounces
Nice to see you visiting this site. I told you that it was great. Kolac
Nice to see you visiting this site. I told you that it was great. Kolac