My MIL had AML dx'd 4/06, did chemo, relapsed 4/07, did chemo, relapsed 9/07. Her WBC was 35,000 and went to 75,000 in one week. The drs will not treat her and hospice will now come once a week.

Any guesses on how long we have with her? What can we expect? Worst case, best case? Experiences?

Nevermind.

I was looking for some support from somebody who experienced this, but we lost her in October. Just in case anyone needing support comes across this... we only had 1 week from her final diagnosis until she was comatose (post stroke 2* leukemia) for 1 more week, so get that time in with your loved one!

OMG, I'm so sorry to hear that.

I'm so sorry to hear of your loss. My aunt died of AML in June. She was a completely normal, healthy, bubbly & energetic 54 year old, then one day she called me to tell me she had it and she was put in the hospital & BAM 6 weeks later she was gone. You really never do know how long you have with someone so you are right about spending all the time you can. I never got to go visit her in the hospital, I was told she could have NO visitors b/c of the germs anyone may carry can weaken her already weak immune system. Heck, if I knew she wasn't going to make it (the Dr.'s gave her a 75% survival rate) I would've went & saw her anyway if I knew it would've been my last time.

sorry to hear about your loss..my mom has aml..she just got out of the hospital and the doc said it does not look good..what do i need to know,,what to expect..he plateletts dropped to 2000..she has been getting them almost on a daily basis..2 weeks befor xmas they said they would try to get her through the holidays..then i had to take her to the hospital..for a nose bleed..i thought this was it ..i never saw so much bolld in my life.but she is back home..and on a new chemo..but the doc said its just to prolong life..she looks great today.i am always in a panic..whats next...please tell me..since you have been through this..this started in july 07..and the first 3 months were good..but everything is getting so scary..thank you for any helpful info you could give me.. patty

My mom was diagnosed with AML last week. She was airlifted to the hospital after going to the local hospital and they were not equipped to treat her. It seems to me that leukemia is very different for every person who has it.
The doctor told us that if she had waited 12 more hours to get to the hospital she would have died. Her WBC at the highest was 165,000! She has since undergone 5 days of chemo and her WBC is 300 with a platelet count of 10 (normal platelet count is between 150 and 400- I am assuming that is counted in the thousands). She has a sinus infection now- who knows where that came from. Anyway, it is like being on pins and needles every single day because anything could happen. It is very scary! Just looking for support.

so sorry to hear about your mom..as with my mom when we took her to the er for a bloody nose..the doc did some blood work and he said she would have had a heart attack within a few hours,,as her blood counts were the lowest he has ever scene..that was in mid june..she has had many many blood and plateletes transfusions.and is now on a new chemo just started 1 week ago..we thought we were losing her but thank god she is still here..tomorrow she will have 2 units of blood and 1 unit of hla plateletes and then go straight for chemo..as for the sinus infection she has a bad one now..but seems to have had them since this aml started..my mom is 75 but looks great i pray everything works out for your mom also..this is a horrible desease..when i brought her home from the hospital christmas eve her platelettes were 2000..i was soooo scared..the new chemo is called ara c and they are giving her a low dose..and is does not make her sick at all..good luck i will be praying for your mom..i know how you feel..and please let me know how she is doing...god bless....love patty

[sucrechef patty d;3368626]so sorry to hear about your mom..as with my mom when we took her to the er for a bloody nose..the doc did some blood work and he said she would have had a heart attack within a few hours,,as her blood counts were the lowest he has ever scene..that was in mid june..she has had many many blood and plateletes transfusions.and is now on a new chemo just started 1 week ago..we thought we were losing her but thank god she is still here..tomorrow she will have 2 units of blood and 1 unit of hla plateletes and then go straight for chemo..as for the sinus infection she has a bad one now..but seems to have had them since this aml started..my mom is 75 but looks great i pray everything works out for your mom also..this is a horrible desease..when i brought her home from the hospital christmas eve her platelettes were 2000..i was soooo scared..the new chemo is called ara c and they are giving her a low dose..and is does not make her sick at all..good luck i will be praying for your mom..i know how you feel..and please let me know how she is doing...god bless....love patty[/QUOTE]